varsha Gaikwad CHLP 2008-3-FR 30.pdf
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                        Community Health Learning Programme
 Cl
 
 i
 
 2008
 
 CHL?-2£)0&>Z/FK3d
 
 Community Health Learning Programme
 June 2008 to February 2009
 
 REPORT
 
 varsha Gaikwad
 intern, community Health Cell
 
 Acknowledgment
 This programme has given me a special opportunity to know about my self thru the
 special care and guidance of Dr Sukanya, my mentor in this course. Without her
 valuable guidance I would have not come across the vast world of knowledge and
 esteem which was under cover due to my personnal family problems. She was the
 guiding lighthouse to change my view to live independently and take my own
 decisions through various means. I am also grateful to Mr Premdas who always
 encouraged me to go for tire new avenues in life without taking care of other worldly
 tilings on my own even with sacrificing my own personal family life. Dr Rakhal who
 also was a inspirational lamp and his valuable guidance was very much practical from
 time to time. All the friends', interns, who were with me through out the programme
 at the various points taking care of each other and shared the views at various point in
 their happy moments.
 I am very much grateful to the whole staff of CHC for their ready to help attitude and
 kind nature without which it would have been not possible for me to achieve this small
 drop of knowledge from the ocean.
 This learning programme would not have been possible without Dr Ravi Narayan and
 Dr Thelma Narayan whose vision gave rise to the idea of CHC where there is fusion of
 knowledge and values from various fields which provides a platform to an individual
 to groom up his/her knowledge and change the view of life.
 
 2
 
 Introduction
 I am Varsha, President of Positive Womens Network, Maharashtra, and Vice-President
 of Positive Womens Network at the national level. I had completed my Master's in
 social work. We started the state level Positive Women Network of Maharashtra
 (MPWN+) in the year 2007 and are working in the field of HIV/ AIDS and are affiliated
 to the Positive Women Network (PWN+), Chennai, a national body of women living
 with HIV in India. The members of MPWN+ are also offering their services through
 counseling and treatment adherence programme of the Government Medical College,
 at the ART centre in Nagpur. Besides, there is our counseling centre close to the
 Government Medical College where the PLHAs are counseled with regards to the
 nutrition.
 MPWN+'s purpose is to change the existing situation of all women living with
 HIV/AIDS and infected/affected children in the State of Maharashtra. We build
 women's capacities to increase their access to rights, develop partnerships and
 advocate for programmes and policy changes to address concerns of women living
 with HIV/ AIDS.
 
 As a leader, I was not capable to handle all responsibilities of leadership. I was
 completely unaware about the national health policies, health movements and the
 related NGO's who were working in this field. I got a great opportunity to learn the
 various aspects relating to the policy making in respect to health and the NGOs who
 are pioneers in the respective fields, I honed my skills for efficient leadership to lead
 my Organization, The Positive Women's Network of Maharashtra in Nagpur.
 From childhood I am very ambitious, always to ready to learn new things, to meet new
 friends and different thoughts of people, When I opened website SOCHARA, on seeing
 the contents I was puzzled. My first question for myself was that what is community
 health? I gathered the related information on the matter to understand that this
 fellowship will be of help to me to show a new path in future.
 
 Reflections of the fellowship programme
 There were many questions in my mind before joining CHC. What and which type
 of learning can I acquire? In CHC, I came across a very unique way of learning, which
 was the active participatory method of the volunteers, by self learning groups, critical
 thinking and adult learning process. I acquired more knowledge by observation and
 group discussions. When I had earlier read the WHO definition of health, I merely
 understood the meaning, but from the CHLP I came to know the real sense of health, it
 is not only related to disease and illness but it is also affected by social determinants
 like class, caste and gender.
 Dr. Ravi had given us space to express our feelings, experiences and facilitated self
 awareness for the first time I had asked myself what will I learn, what I like and don't
 like. I recalled some pleasant and unpleasant memories in my life. We learnt skills and
 values required as community health worker. I learnt that participatory skill,
 communication, nonjudgmental attitudes are important for leadership. The sessions on
 the epidemiological triad and primary secondary and tertiary prevention of
 Tuberculosis;
 3
 
 Alma Atta Declaration - Health for All concept; the Public health system, policies
 and programmes. Implementation of services, regulation and monitoring were very
 useful. Now I am aware about what is primary and public health care , structure of
 PHC, duties and responsibilities of ANM.
 
 Through stories, I deeply understood the concept of then People's Health
 Movement. The life journey of Dr. Ravi and Dr. Thelma, in the community health
 movement is an inspiration for me.
 Through the group work assignment on structure of public health system in respective
 states, I learnt more about how geographical position and population affects
 community health.
 In group discussions I got a clear idea about positive and negative impact of
 globalization and how globalization, liberalization and privatization has eventually
 increased the gap between rich and poor.
 All the interns from different background, shared their experience on issues
 from grass root level to global participation these discussions have been instrumental in
 increasing my confidence.
 Exposure visits were really an interesting learning experience for me. In Hannur,
 the Holy Cross Comprehensive Rural Health Project (HCCRHP) are taking initiative to
 protect the children from child labour and provide platform to enjoy their childhood
 and education through day care bridge schools and residential and join them to the
 main stream. The bridge school Satvidya, bridge school, is a great example of the first I
 have seen. When we saw vast areas in Arbgare covered under water shed project, I
 really felt happy that with help of organizations and fund's acres of wasteland has been
 cultivated. I visited a PHC for the first time in my life. We observed what health
 facilities were provided, the health workers attitude and also their limitations due to
 the limited facilities available in PHC. Then I concluded that every PHC must be
 having similar problems. Meeting with Jaddejamma a health worker trained by a Holy
 Cross project was unforgettable moment in my life. We learnt lot of things ( use of
 herbal medicines ) when she had shared her experiences with us.
 In Hospet, we met Dr. Bhagya of SAKHI. This organization is running a hostel for
 SC/ST girls and provides scholarship for higher studies. Here I came to know the real
 meaning of globalization or capitalization. Due to the increasing illegal mining projects,
 life of people had been changed, as they had lost their land. Agricultural land has
 become infertile. Unemployment has increased leading to addiction of drugs and
 alcohol. There were also cases of sexual abuse and rape, and Sakhi also fights for
 justice for the victim.
 We also had a chance to visit Hampi, it was a memorable trip, cannot be described in
 words. We all fully enjoyed the scenery and even forgot the tension, worries and
 regained our energy.
 The visit to Jagrutha Mahila Sanghatan (JMS) in Raichur was a very interesting
 experience. JMS is working for empowering the Dalit women and organizing the
 women to fight for their rights. Their continuous effort of 8 years, got them tire success,
 that women have come forward and have made 42 SHG groups and are running a
 school for poor, orphan and helping working children to get back to schooling. Women
 groups are running many income generating programmes like making terracotta
 jewelry, herbal medicine and neem fertilizers.
 
 4
 
 We stayed for four days with these children, sang songs, danced and played games
 with diem. I was surprised to see the way they maintain discipline throughout die day
 .Early morning they did yoga, exercise, homework, got ready for school and all the
 daily chores. Jeyapaul had taught them many songs widi actions. We all had seen
 simple hardworking village life. We also learnt how to make terracotta jewellery and
 preparation of herbal medicines from medicinal plants and which disease it can be
 used. Chinamma shared her experiences of successfully treating many people.
 The field visits which were carried out were personally very interesting for me as I
 came across many situations where the community had found solutions to their
 problems and I was also able to help them with some.
 Our CHC mentors are like friends and guides for each fellow. When I came to
 CHC, I was very upset and unhappy due to my family problems but when I met with
 all the staff of CHC , then I forgot all my problems due to the lovely behavior of all.
 Dr.Sukanya always provided me help in my personal problems. Due to my health
 problems I was worried about traveling. Through email and phone we were always in
 touch. My Mentor always showed me the way whenever I needed.
 
 Learning objectives
 1.
 2.
 3.
 4.
 5.
 6.
 
 Improve my leadership skills to be an efficient leader for the movement.
 Learn National level HIV AIDS policies and NACP III in relation to women and
 children.
 Understand different health and women related movements and network for
 collective advocacy.
 Understand and learn more on alternative medicines that help in improving the
 health of an individual
 Development of personality skills.
 Improve writing and documentation skills.
 
 Plan of action
 1 a) Visit and talk with various leaders in movements.
 2. b) Collect and read the NACP III document and the related programmes.
 c) Visit MSACS and collect state's action plans on HIV and women & children.
 d) To visit MASUM, CEHAT and other women movements and network within the
 
 state
 a) To visit and document activities of PHM and its structure.
 b) Visit PWN+ Chennai and strengthen Maharashtra PWN+.
 c) Participate in training programmes related to reproductive health, HIV AIDS and
 advocacy.
 4. a) To collect literatures on alternative medicines for women's health.
 b) Compile a booklet for HIV positive women on alternative medicines to maintain
 good health.
 c) Participate in future in the related trainings, to work towards the betterment of
 the community.
 
 3.
 
 5
 
 Time line of activities:Time Period
 Activity
 13th to 18th July
 National workshop for planning
 for strengthening national and
 state level Networks
 From 22nd to 30th Advocacy
 training
 on
 July
 reproductive Health and Rights
 at Naukuchiatal in Uttarakhand
 On 1st to 3rd Aug
 meeting
 for
 advocacy
 programme
 4th to 8th Aug.
 Orientation course on prevention
 of micronutrient malnutrition
 22nd to 26th August 1st
 National
 Consultation
 2008
 Workshop
 From 1st to 7th Mid term review of CHLP
 September
 16th
 and
 17* meeting with D. G.
 September
 21s1 September TO Field work and attending public
 7* November
 hearing in 4 district
 
 Organisation
 PWN+Chennai
 
 SAHA YOG ,CHSJ,PLP
 
 DPWN+
 NIPCCED Delhi
 New Delhi DPWN+
 
 CHC Bangalore.
 NACO New Delhi
 
 SATHI
 Pune.
 
 CEHAT
 
 1st to 8th October 2nd
 National
 consultation
 New Delhi
 workshop
 2008
 Revised training for trainer
 PWN+Chennai
 29th to 2nd Nov
 MPWN
 Signature and quilt campaign
 15 th Nov
 3rd
 National
 Consultataion PWN+ New Delhi
 1st to 4* Dec 2008
 Workshop
 Alumni workshop
 • CHC Bangalore
 5th to 6* Dec 2008
 Project work
 • MPWN
 Jan and Feb
 
 Presentation of work with respect to Learning Objectives
 National workshop for planning for strengthening national and state level Networks
 We were 22 women leaders from nine different states who participates in the 3 days
 workshop.
 On day one, we interacted with each other, shared our state wise concerns and
 strength's and weakness of the National secretariat office.
 On day two, Ms. Geetha from engender health took a session on understanding the
 situation of women's movements in India. The state level network's shared their work.
 We reinstated the PWN+ vision (see Anexure V) and came up with ideas and solutions
 to strengthen our network.
 On day 3 we went to Mahabalipuram where a three days National conference of project
 directors on HIV/AIDS was going. We, all the 22 WLHIV state leader's met Dr.Sujata
 Rao Director General of NACO .We gave her the memorandum on why, Drop in
 Center's exclusively for women are required.
 6
 
 I gave a short note in AIDS INDIA about Railway concession for PLHIV which is
 available only in the general class which created interest and a long discussion was
 needed on this issue.
 On 21st July I went to 1CRW (International Counsel for Research Welfare ) office and met
 the project director, to seek technical support for documenting the research
 undertaken on the current landscape of involvement of WLHA and the results of
 training workshops and a national consultation on involvement of PLHA. The 1CRW
 was also given the responsibility of documenting (print and film), the history of PWN+
 to commemorate its tenth
 anniversary.
 *
 1 attended a ten days
 training
 programme
 on
 advocacy for Reproductive
 Health and Sexual rights in
 Nainitaal which was organized
 by SAHAYOG ,CHSJ, and
 population
 Leadership
 programme from July 22 - July
 30, 2008.
 
 Objectives of the Training Programme
 
 Build conceptual clarity on rights-based approach to sexual and reproductive health
 (including maternal health and safe abortion) within an overall human rights
 perspective
 1. Develop an in-depth understanding of the present scenario in sexual and
 reproductive health and rights: policies, evidence and debates - globally and
 locally
 2. Understand the role of rights based advocacy in the context of social change,
 what factors/actors are involved to change opinions, practices, policies
 3. Develop understanding of the components of essential advocacy
 • analysis of the political, economic, social context
 • identification of problems/advocacy issues/rights violations
 • stake-holder analysis
 • mobilization, organization-building, networking, alliance building
 • communication, negotiation, conflict-resolution
 • campaign planning, influencing specific groups of opinion makers, working
 with media
 • using and building evidence, developing information and advocacy
 materials
 
 7
 
 4.
 
 Apply the above in developing strategic advocacy plans including identifying
 process indicators and intermediate outcomes
 
 Modules and Contents
 1.
 
 Sexual and Reproductive Health and Rights (Two and half days)
 • Gender, Power and Reproductive and Sexual Health
 • What are Rights? Introduction to Human Rights.
 • Reproductive and Sexual Rights - Tehran, CEDAW, ICPD, Beijing, MDG
 • Health and Human Rights - UN system and India, AAAQ framework
 • SRHR and Population Facts and Myths
 • Rights based approach
 • Introduction to NRHM and RCH2
 
 Understanding Advocacy (3 days)
 i. What is advocacy - advocacy and social change
 ii. Rights based and evidence based advocacy
 iii. Identifying key advocacy issues - Using evidence
 iv. Identifying actors and factors - stakeholder analysis
 v. Advocacy Experiences - community based advocacy, policy
 advocacy, legislative advocacy, legal advocacy, media advocacy
 3. Planning for Advocacy (One and half days)
 4. Developing an advocacy plan
 I met the Facilitators Dr. Abhijit, Ms.Jashodhara and Ms.Renu Khanna.
 I shared my views and got them refined by Ms Renu, who was very cooperative and
 explained each and every point that was raised in a very easy to understand way. Total
 25 participants came from different NGO,s all over the country.
 2.
 
 In this training I came across some technical points related to advocacy. I was able to
 distinguish between advocacy and activism. I came to know that many women suffered
 from genital T.B. and it has an affect on their fertility which is a cause of social stigma. I
 also learnt full forms of abbreviations like:
 CEDAW- Conventional Elimination of all forms Discrimination Against Women
 UDHR- Universal Declaration of Human Rights.
 
 The training helped me significantly in my work. I learnt about the analysis of stake
 holders networking of the NGOs, the media power and how to utilize it best for the
 advocacy of a cause.
 * I stayed four days in the Delhi Positive Women Network state level office.
 Here we had a meeting and fixed an agenda for a one day advocacy programme to be
 held on 6th August in Delhi to raise issue on widow pension scheme.
 * I met with Ms. Freya who was providing her voluntary services from VSO (Voluntary
 Service Organization). She gave training on improvement of computer skills, how to
 access internet and many other things to our WLHIV in DPWN+ office. I had a
 
 8
 
 discussion with her about the VSO strategies and capacity building programmes for
 state level network.
 
 * I attended the orientation course on prevention of micronutrients, malnutrition at
 NIPCCED New Delhi from 4-8 Aug, 2008.
 The National Institute of Public Cooperation and Child Development designed this
 course especially for executive and middle level functionaries associated with health
 and nutrition programmes for women and children. The main objective of this
 programme was to sensitize the participants about the magnitude of the problem of
 micro-nutrients, create a awareness about policies and programmes for control of
 micronutrient deficiencies, highlight causes and consequences of micronutrient
 malnutrition, and evolve the strategies for prevention of malnutrition of micronutitient.
 The contents of the programme had been covered through a combination of training
 method including lecture cum discussions, group discussions, case study analysis,
 group exercise, films, with emphasis on participatory approach to learning. Besides
 faculty of the institute, programme faculty comprised of experts from technical
 institutions, government and non govt organizations working in the field of nutrition
 and health. I learnt that MM is a serious problem in adolescents and the programmes
 that are run by the govt to reduce micronutrient malnutrition. I enjoyed participating
 in group discussion and exercises.
 * A three day workshop on introduction to GIPA, its structure and functions and the
 role of gender was held from 22nd to 26th August 2008. The sessions were as follows:
 
 Workshop One Day 1 Understanding GIPA
 Introduction
 and
 background to GIPA
 
 Day 2 - Structures and Day 3 - Gender and
 GIPA
 Functions
 Structure of NACO, Gender and HIV
 SACS, district units and
 their
 programs
 on
 prevention,
 treatment,
 care and support
 
 Benefits of GIPA for Understanding the role Gender and GIPA
 PLHA,
 NGOs
 and of networks and NGOs
 government.
 
 Involvement
 and Why women should be
 meaningful involvement involved
 - case studies
 
 Overcoming barriers to
 involvement
 
 During the workshop I was introduced to GIPA, explored its structure and functions
 and developed an understanding of the role of gender in GIPA.
 
 9
 
 Another three day workshop was held for exploring national policies and the role of
 GIPA. The sessions are listed below:
 
 Day 1 - GIPA
 national level
 GIPA revisited
 
 at Day 2 - Policies
 
 Day 3 - GIPA Draft Policy
 and training for own
 research
 Exploring GIPA draft
 policy
 
 NACP-III
 
 Structure and functions UNAIDS "Three Ones" Training on participant's
 of
 national
 level principles
 own field observation on
 stakeholders
 the prevalence and quality
 of women's involvement
 at the state level
 Global Fund
 Coordinating
 Mechanisms
 
 Country
 
 This workshop developed my knowledge on national and international level policies
 including NACP-III, UNAIDS "Three Ones" principles and the Global Fund Country
 Coordinating Mechanisms.
 One the final day of the workshop, 15 participants were trained on how to undertake
 their own research on the prevalence and quality of women's involvement in their own
 states.
 I got the GIPA draft Policy translated in the local language and in our MPWN+ I took a
 complete session on GIPA and NACP-III for our members.
 
 * National consultation was organized with the support and involvement of Global
 Coalition on Women and AIDS (GCWA), NACO, UNAIDS, UNIFEM, UNICEF, UNDP,
 VSO and other national and international organizations working on women and HIV
 and AIDS in December 2008 at Delhi.
 The 110 women attending the consultation were divided into three groups, focusing on
 national, state and district level functioning of government bodies and NGOs. During
 the consultation participants who undertook research, had discussions on the results of
 their field observation on levels of involvement of WLHA and barriers to involvement.
 The groups began to develop recommendations to improve involvement of women
 living with HIV with input from stakeholders. UNAIDS "Three Ones" principles and
 the draft GIPA policy was analyzed and further recommendations developed. WLHA
 had been given the opportunity to share their thoughts and experiences with
 stakeholders and discuss the barriers to involvement that they have experienced and
 the ways that these can be overcome. The recommendations for improving
 involvement presented followed by a panel discussion. Feedback was obtained from
 stakeholders through an open discussion.
 
 10
 
 The National Consultation had
 given the, supporters and
 stakeholders an opportunity to
 commemorate
 the
 tenth
 anniversary of Positive Women
 Network. And to present the
 achievements of PWN+ over the
 last ten years, the challenges we
 faced and the challenges we have
 to overcome in the future. We
 had launched our ten year
 commemoration
 document,
 screened
 the
 accompanying
 documentary film and honored
 our supporters and network members.
 The 30 women who attended the training workshops travelled from their states. 15-20
 women attended a the preparatory training workshop two days prior to the
 consultation to develop skills to enable them to facilitate sessions and share knowledge
 during the consultation. The first two days of the consultation involved discussion and
 development of recommendations with stakeholders. Stakeholders and supporters
 invited to attend PWN+ 10 year commemoration event on the final day of the
 consultation.
 
 NationalConsulta tion Sessions are as follows
 Day 2
 Dayl
 Two day
 preparatory
 workshop
 Presentation from - Analysis of draft
 15
 participants G1PA policy and
 Ones"
 who
 undertook "Three
 own research on principles.
 Further
 the
 prevalence
 and quality of development of
 recom me nd a tions.
 women's
 involvement
 at
 the state level and
 barriers
 encountered
 - Discussion on - Presentation of
 of
 the functioning of testimonies
 WLHA
 and
 government
 bodies and NGOs recommendations
 at district, state to stakeholders.
 Forum
 for
 and national level
 and
 and the barriers discussion
 Q&A.
 to involvement
 - Development of
 recommendations
 
 Day 3
 
 Commemoration of
 PWN+ tenth year
 anniversary
 
 - Launch of booklet
 and
 video
 documentary
 commemorating
 PWN+ anniversary
 Launch
 of
 research report on
 women's
 involvement
 
 11
 
 as to how women
 can
 become
 involved.
 
 Honoring of PWN+
 partners
 and
 supporters
 Celebration of past
 ten
 years
 and
 looking forward to
 future of PWN+
 
 * My fieldwork was in SATHI (Support for Advocacy and Training to Health
 Initiatives) SATHI is the action centre of Anusandhan Trust evolved from CEHAT.
 SATHI envisages a society, which has realized its right to health and health care-
 
 •
 
 •
 
 •
 
 A society which has eliminated health inequities, by removing the structural
 barriers which today prevent the majority from accessing healthy living
 conditions and quality health care;
 A society which instead of the current pathological model of development, has
 adopted a developmental path which fosters health of both the people and their
 environment;
 A society where people, are not appendages of the health care system but; are its
 prime movers and have universal access to appropriate health care as a human
 right-
 
 To realize this long term goal, SATHI's strategy is to contribute as a team of pro-people
 health professionals, to the movement and initiatives towards such a society, by
 focusing on the aim of realization of health and health care as fundamental human
 rights.
 
 SATHI's origin is traced to a small action-team in CEHAT, which since 1998, pioneered
 a collaborative Primary Health Care project with three People's Organi-zations. During
 the last 10 years this work has developed considerably and, has moved beyond it's
 initial focus and now consists of many components.
 A. Collaborative health initiatives with four people's organizations in Maharashtra and
 Madhya Pradesh.
 
 B.
 
 Advocacy at broader level for Primary Health Care and Health Rights
 
 C.
 
 Training on Health Rights and in Community Health Initiatives
 
 D. Action-research related to Health Advocacy
 During the field placement of two months with SATHI, I attended 4 district level
 Jansunwai and one state level Jansunwai (Public Hearing). In this process I
 encountered the positive angles of Community Based Monitoring of Health Services.
 12
 
 Under the NRHM programme, nine states were selected to be part of the first phase of
 CBM Maharashtra wss one of the state. In Maharashtra this community based
 monitoring process started in 5 districts, i) Amravati ii) Nandurbar iii) Osmanabad iv)
 Pune v) Thane. Three Talukas were selected in each of the above districts, and three
 PHCs in each taluka and 5 villages under each PHC were undertaken. As a State
 nodal organization SATH1 CEHAT Pune, undertook the above said programme for the
 period of April 2007 to January 2008. [see Annexure IV J
 
 My observation
 
 •
 
 People were very actively involved with greater enthusiasm in the process.
 The people were getting aware of the health services which are available at PHC,
 sub center, and about the rights to avail them.
 People at grass root level were coming to know about the amount of funds
 which was made available to their village/taluka/district/state. Awareness was
 seen on ascending trend for the services provided on paper and in physical state.
 Provision of health services improved at sub center PHC and RFI level after the
 public hearings.
 The mothers were getting there dues under the Jannani Suraksha Yojana without
 any delay from the concerned authorities.
 Various vacant posts at different levels were filled in due course and fresh
 appointments and tenders were issued for future programmes.
 The people's health rights charter was displayed in each PHC and RH
 prominently and was given wide publicity.
 All the essential medicines will be provided across the counter on a cashless
 basis and with the provision of local purchase if not available on hand at the
 time of requirement.
 Free transportation will be provided to and from the referral services if it is not
 available
 arrangement will be made through the 1PH funds
 
 •
 
 Signature and quilt campaign on 15th November 2008: Women Voices &
 
 •
 •
 
 •
 
 •
 •
 
 •
 
 •
 •
 
 •
 
 MPWN+ organized a signature and
 quilt campaign (Quilt made by the
 belongings of people living with HIV
 and few those no more with us) to
 enlighten the masses and to bring
 greater awareness about the SHGs, and
 NGOs working in the field of
 HIV/AIDS or those voicing the various
 issues pertaining to women.
 The Objectives of the Campaign were -
 
 •
 
 To impart knowledge to the general public on how to reduce Infection rate
 among women.
 13
 
 •
 
 To help the community to be aware of how they can help tire positive women. (
 Both Emotionally as well as by Economic Support)
 
 * In December 2008, with the experiences of women living with HIV AIDS in areas of
 sexual and reproductive health, I developed a proposal for MPWN+ with the following
 goals and activities and submitted to ITPC. The goal of the project was Empowering
 women living with HIV as peer educators and activists in responding to women's
 specific opportunistic infections in three districts of Maharashtra
 1. Developing 30 master trainers / educators in three districts of Nagpur, Gondia and
 Gadchiroli as prevention ambassadors for women specific opportunistic infections
 1.1 Selection of 10 WLHA master trainers from each district based on prior
 experiences and background knowledge on HIV and ART
 1.2 Developing a Flip Book on prevention and treatment referrals on cervical and
 breast cancers among WLHA
 1.3 Three day training for master trainers in Nagpur and training on how to use the
 Flip Book in community
 1.4 Organising and sharing information through support group meetings of WLHA
 in respective districts
 1.5 Mobilising 300 women living with HIV in three districts and encouraging them
 for screening tests on cervical and breast examinations
 
 2. Networking with health care providers in public and private sector to improve
 referral services on women specific illnesses like cervical and breast cancers among
 WLHA
 2.1 Individual one to one meetings with public and private health centers that
 provide treatment on breast and cervical cancers
 2.2 Organising quarterly meetings among heath care service providers to strengthen
 the referral systems
 2.3 Recording information and encouraging WLHA to access cervical and breast
 cancer tests
 2.4 Documenting the results and preparing status paper towards treatment
 advocacy for women specific illnesses
 
 3.
 
 Advocating with SACS and other service providers to include prevention of specific
 OI among WLHA
 3.1 Develop advocacy IEC materials (Poster and an information Brochure) on
 prevention and treatment of Women specific Opportunistic infections
 3.2 Organise one day advocacy event involving district and state level HIV AIDS
 stakeholders in highlighting the need and further action on needs in women
 specific Opportunistic infections in the state.
 
 Though we submitted with the detailed list of activities and plan, unfortunately our
 proposal was not accepted. Hence the same concept I am using with CHLP support to
 implement some components of this proposal.
 
 14
 
 * One day health training programme on 14th February 2009
 The main objective of this health training programme was to empower women living
 with HIV as peer educators and activists in responding to women specific
 opportunistic infections.
 This programme started at 12 pm in the premises of the Positive Women Network of
 Maharastra office. Near about 30to 35 participant had registered.
 In introduction session every one gave their introduction and why they participated in
 this training programme and their expectations.
 A small questionnaire was given to them for pre evaluation.
 Mr. Riyaz Quazi, project co-ordinator of H1V+T.B. cordination project, gave
 information on causes, etiology , signs and symptoms and treatment of Tuberculosis.
 After tea snacks break I took a session on Opportunistic infections and how to manage
 them. Availablity of treatment In the
 session on I focused on women specific
 O.Is like breast cancer and cervical
 cancer available screening test like
 paps smear.
 Mr. Sanjay, counsellor of Ashirwad
 Kanti,
 gave
 information
 about
 government schemes
 like Sanjav
 Gandhi Niradhar yojana , children
 hostel and day care school by their
 organistion .Health check up camp and
 health facilities was available free of
 cost.
 Dr. Amabade, of A.R.T center, made a short visit from his busy schedule.
 He provided valuable knowledge about ART and management of its side effects and
 also on the importance of adherence.
 
 Looking Inward - What did I learn about myself?
 I was very narrow and fixed minded, and also short tempered. After attending the
 orientation in CHC, a total change has occurred in my behavior as observed by friends,
 colleagues and family members. As I attend programmes , training and various
 workshops, 1 am finding it very' easy to make present, with a high level of confidence
 which I was unable to do earlier
 
 Looking Outward - What did I learn about the community?
 •
 
 •
 
 During the programme I came across many NGOs and social workers who are
 pioneers in there own fields or have attained a place of respect in the
 community. It was a great opportunity to meet them and learn about their way
 of working and the process they followed. This gave me vision to cany out my
 new ventures in future.
 In the advocacy programme I experienced discrimination. When my room
 partner came to know my HIV status, she felt uncomfortable and left the room.
 This incidence taught me a good lesson not to disclose my HIV status before
 15
 
 unsensitised people. During counseling I always tell my clients to disclose their
 status to sensitized medical health care providers.
 During field placement in SATHI CEHAT I learnt about coordination,
 networking and team work which are the essential ingredients to carryout a
 successful project.
 I met Dr. Satish Gogulwar who started a project called -Aamhi Amachaya
 Arogyasathi which motivates women in the villages to come together and form
 'bachat gat'. They have become confident and having dairy decoration and
 herbal medicine. Aamhi Amachaya Arogyasathi whose vision statement is to
 build healthy capable and equity based global society. Believe in initially several
 concept and get them implemented from local people after their empowerment.
 I went to Nandurbar district with the sathi-cehat team. Personally it was a great
 experience for me. We stayed in Dr. Dhananjay's native. I met his parents his
 mother was so kind and active .She shared her experiences with me and I gained
 a lot of knowledge from her .
 After attending the three workshops national consultation of the Positive
 Women Network, I learned the gender policy, GIPA (Greater Involvement of
 People Living wit HIVAIDS) and NACP III (National AIDS Control
 Programme).
 During the workshop in New Delhi of PWN, I got the opportunity to visit
 NACO head office and meet the director general Ms Sujata Rao, I also visited the
 UNODC, the UNICEF and UNIFEM offices which gave me a golden
 opportunity to gain knowledge about big structure of ournational and
 international health policy.
 I have learn the meaning of community health which is a process of improving
 physical, mental and social well being of the community and all component
 members. Health services must be available, and equally shared with the whole
 community, It is not merely the absence of illness, sickness and disease but
 related with the social determinants geographically, economically, and class,
 caste, gender. Practically what I saw was that common people do not get access
 to treatment according to their needs .Government has made many health
 policies but due to corruption, lack of awareness, gap between health care
 provider and common people, lack of coordination between public health
 system and Panchayati Raj and political leader health programme, it is not
 successfully implemented. Any public service can be improved only with active
 participation of the local people. Social action can improve health. Community'
 health can be improved by participation of people in decision making, for
 example for the GIPA policy, there was PLHIV at decision making committees
 with gender balance
 The people need to enable themeslves to maintain their health, exercise thenresponsibilities collectively and also demand health as their right.
 Due to community monitoring process in the pilot project districts people were
 aware about their health rights through display of health charter. People got
 platform to solve their problems in public hearing at PHC, district and state
 level.
 As a counselor I am trying to implement all these principle in my work. In the
 ART center I counsel every new client with information about HIV/AIDS,
 respective tests, treatment and their health rights.
 16
 
 Looking Ahead - Where do I go from here?
 With all the learning's I received I will be able to work with a stronger position and the
 weapon of skills achieved from tire programme to strive for the betterment of the
 community at the grass root level and also take tire grievances of the community to
 appropriate position to solve them.
 
 17
 
 Annexure
 Annexure I
 NATIONAL AIDS CONTROL POLICY -PHASE III
 Excerpt from NACP III document
 To halt and reverse the epidemic in India over the next five years
 Specifically reducing new infections by
 > 60% in High Prevalence States
 > 40% in Vulnerable States
 
 Objectives:
 • Prevention of new infections (saturation of HRG coverage and scale up of
 interventions for General population)
 • Increased proportion of PLHA receiving care, support and treatment
 • Strengthening capacities at district, state and national levels
 • Building Strategic information management systems
 • Three Ones
 • Equity
 • Respect for the rights of the PLHA
 • Civil society representation and participation
 • Creation of enabling environment
 • Improved access to services
 • Effective HRD strategy
 • Evidence based and result oriented programme implementation
 • Prevention
 • Saturation of HRG
 • Targeting of Bridge Population
 • Focusing on Women, Youth and Children
 • Blood Safety
 • Access to STD Care
 • Condom Promotion
 • Comprehensive Communication Package
 • Advocacy
 • IEC (Mass Media & IPC)
 • Social Mobilization
 Ila
 Care and Support
 > Community Care Centers
 • OI Management
 • Drug Adherence
 lib
 Treatment
 > ART
 ■ Adult
 ■ Paediatric
 He
 Impact Mitigation and Stigma Reduction
 • Implementation Strategies
 18
 
 > Shift of focus from states to district based on evidence
 > Decentralization
 > Capacity Building - Infrastructure and Training
 > Setting up procurement systems
 > Convergence with health systems
 > Mainstreaming
 > Partnership with Civil Society and Private Sector
 
 Annexure-II
 The meaning of 'Greater involvement of PLHIV'
 In December 1994, at the Paris Summit, 42 nations declared their support for the greater
 involvement of people living with HIV/ AIDS (PLHIVs)l in prevention and care, policy
 formulation, and service delivery. Signatory governments to the Paris Declaration
 undertook to "support a greater involvement of people living with HIV/ AIDS through
 an initiative to strengthen the capacity and coordination of networks of people living
 with HIV/AIDS and community-based organizations. By ensuring their full
 involvement in our common response to the pandemic at all national, regional and
 global-levels, this initiative will, in particular, stimulate the creation of supportive,
 political, legal and social environments (Paris Declaration, 1994)."
 Since the Paris Summit, GIPA has been endorsed in numerous international statements,
 most recently by the UNGASS Declaration of Commitment on HIV/AIDS, which
 acknowledges "the particular role and significant contribution of people living with
 HIV/AIDS, young people and civil society actors in addressing the problem of
 HIV/AIDS in all its aspects and recognizing that their full involvement and
 participation in design, planning, implementation and evaluation of programs is crucial
 to the development of effective responses to the HIV/AIDS epidemic (United Nations,
 2001, paragraph 33)."
 
 The PLHIV movement in India
 From a handful of selectively open PLHIV in the mid 90's, the PLHIV movement has
 steadily grown in size, visibility and capacity. In the late 90's the first National network
 of PLHIV was formed which has since grown to have many state level networks and
 district level networks. New leadership has emerged; women living with HIV have
 increasingly become part of this growing group of articulate and informed advocates.
 Alongside, collectives of men who have sex with men, sex workers and Intravenous
 drug users have also benefited from the experience of those among them who live with
 the virus. These collectives have specifically contributed to the advocacy on creating
 enabling legislative environment, reduction of stigma and challenging discrimination.
 Consistently, they have represented their concerns at international, national, state and
 district levels. They have been at the forefront of treatment advocacy in India, played
 the important role of being the eyes and ears of the national AIDS programme,
 ensuring that quality services are provided. Many PLHIV have stood shoulder to
 shoulder with Presidents and Prime Ministers of India, ministers and legislators at
 
 19
 
 different levels, sensitizing them about the key HIV issues. Their fearless presence on
 print and electronic media has contributed significantly to reduction in stigma.
 However, the involvement of PLHIV and those directly affected can become more
 meaningful, consistent and systemic, thereby benefiting the national HIV response by
 accelerating its impact.
 Purpose/objectives of the policy
 The National AIDS Programme of India defines the involvement of PLHIV and affected
 communities as a specific expression of the right to active, free and meaningful
 participation in all aspects of the HIV/AIDS response.
 The application of the principle of GIPA is an organic and ongoing process that
 demands different levels of readiness. This policy aims to effectively harness the
 meaningful involvement of PLHIV in order to reduce the spread of HIV and mitigate
 the impact of the virus in India.
 Guiding Principles of the GIPA Policy for HIV Programmes
 The national AIDS programme of India recognizes that involving PLHIV and affected
 communities in the HIV response makes a powerful contribution to the pandemic by
 enabling individuals and communities to draw on their lived experiences; thus
 contributing to reducing stigma and discrimination and to increasing the effectiveness
 and appropriateness of the HIV/AIDS response.
 The advantages of GIPA at the policy level flow beyond the immediate concerns of
 prevention, care, and treatment issues and can improve the capacity of various sectors,
 such as education and employment, to respond to HIV/AIDS.
 To effectively ensure that PLHIV and affected communities are actively involved in
 responding to the pandemic it is essential that PLHIV fulfill a diverse range of roles
 that include policymakers, activists, healthcare workers, educators, scientists,
 community leaders and public servants, as may be applicable in a given situation and
 setting.
 Meaningful inclusion of voices of PLHIV who are marginalized because of gender,
 sexuality, age and behaviors in the HIV response is key to the success of the
 programme.
 PLHIV leadership is also central to establishing a voice in the policy process. PLHIV
 leaders generally have to accept the heavy burdens imposed by the physical and social
 experience of living with HIV & AIDS. Leaders often emerge because they are among
 the first people in their country to speak openly about living with HIV. The limited
 number of openly positive people creates huge demands on those who have taken the
 step to be public about their status. A critical element in sustaining such public
 leadership remains the provision of ARVs and OIs treatment and diagnostics including
 second line for those who lack sustainable access.
 To ensure that PLHIV and affected communities are meaningfully involved in all
 aspects of the HIV/AIDS response it is essential that we all work together to advocate
 for and with PLHIV. Effective advocacy requires that:
 • The voice of PLHIV is heard
 • PLHIV obtain their rights
 • The interests of PLHIV are represented
 • PLHIV have access to necessary services and support in an enabling and conducive
 environment
 20
 
 Policy Guidelines
 PLHIV will be recognized as important providers of information, knowledge and skills;
 their participation will be on the same level as professionals in the design, adaptation
 and evaluation of interventions.
 PLHIV will be facilitated to carry out real and meaningful roles in HIV interventions
 such as acting as caretakers, peer educators and/or outreach workers.
 PLHIV will be active spokespersons in campaigns to change behaviors and will be
 meaningfully involved in sharing their views at meetings and conferences.
 PLHIV will be meaningfully involved in contributing to public awareness raising
 activities and act as role models in the HIV response.
 PLHIV will be actively involved in tire development of HIV information, education and
 communication (IEC) resources, and provide important feedback that will influence the
 ongoing development of IEC initiatives
 NACO, SACS and all partner agencies will promote the active and meaningful
 involvement of PLHIV and affected communities within the organisation — in
 partnership with organizations and networks of PLHIV and affected communities; this
 is essential for implementing the GIPA Principles.
 NACO, SACS and all partner agencies will have an organizational environment that
 fosters non-discrimination, and values the contribution of PLHIV and affected
 communities.
 The national AIDS programme will recognize and encourage the involvement of a
 diverse range of PLHIV and affected communities in all HIV work.
 All implementing partners of NACP3 will define the roles of PLHIV in our organisation
 and their associated responsibilities, including supporting the capacity of individuals to
 fulfill those roles, and provide the necessary organizational and financial support to
 those people.
 All implementing partners of NACP3 will ensure that organisational policies and
 practices provide timely access to information so PLHIV and people from affected
 communities work in an environment that fosters non-discrimination, and values their
 specialized contributions.
 All implementing partners of NACP3 will ensure that workplace policies and practices
 recognise the health and related needs of PLHIV, and create an enabling environment
 that supports their involvement in our organisation.
 All implementing partners of NACP3 will ensure that PLHIV and affected community
 organization/network representatives that work with organisations are supported to
 be accountable to their members, and we assist them to establish processes that enable
 them to represent the views of their membership.
 AU implementing partners of NACP3 will give resources and support to capacity
 building within PLHIV and affected community organisations and networks.
 AU implementing partners of NACP3 will fund and/or advocate for funding for
 PLHIV and affected community organisations to ensure they have the resources to
 build their capacity and empower others within their own networks.
 TO include:
 - include the perspective of PLHIV
 - involve PLHIV to feed into the programs on prevention and care programs on
 HIV
 21
 
 all implementation agencies of NACP3 to involve PLHIV as watchdogs to
 evaluate and monitor the program progress
 involvement of PLHIV towards bridging the gap between service providers and
 community
 PLHIV are the best advocates for tire issues
 Involve PLHIV to reduce stigma and discrimination and impact mitigation
 efforts
 Preferences to be given to PLHIV during recruitment of staff and as and when
 required PLHIV experiences be replaced with educational qualification
 At least one PLHIV be recruited in each intervention sites supported by
 NACO/SACS. This will help reduce stigma
 Promoting GIPA at the management level- involvement of PLHIV at decision
 making committees with gender balance
 Investment in GIPA (capacity building, network formation and strengthening,
 sustaining networks)
 -
 
 Annexure-III
 Positive Women Network
 Positive Women Network (PWN+) is the only national self-help organization focusing
 entirely on issues of women living with HIV. PWN+ was initiated in 1998 to address
 the need for a support mechanism for women and children living with HIV. With the
 organizational goal of improving quality of life by providing an enabling environment,
 PWN+ envisions a better life for women living with HIV. Positive Women Network
 seeks to empower women and children living with HIV/AIDS to access their rights
 and live a life of dignity, free from stigma and discrimination.
 PWN+ functions as an information centre, organising workshops and sensitising
 groups on positive living and issues of women living with HIV/AIDS. Its activities
 include networking, advocating for issues affecting women living with HIV,
 counselling, training and the initiation of self-help groups of WLHA.
 For the last ten years, PWN+ has been committed to building the capacities of women
 living with HIV and campaigning for equality and justice. It has conducted numerous
 capacity building workshops for WLHA, including gender training and visioning
 sessions and legal literacy workshops designed to create awareness among WLHA of
 their rights and the existing laws and policies which can protect them. We have also
 conducted advocacy training to empower WLHA to advocate for women's rights in
 HIV-related policies and programs put forward by government and other stakeholders.
 pyyjq+ has also campaigned tirelessly against stigma and discrimination and for the
 recognition of the rights of WLHA.
 
 In 2002, PWN+, with the support of UNIFEM, UN agencies and NACO, organized a
 national consultation, Positive Faces and Voices of Women, the first of its kind in India.
 The consultation was the outcome of a felt need for a platform to address the special
 needs, concerns and issues of women living with HIV/AIDS in order to bring about
 tangible improvements in the quality of their lives.
 22
 
 In 2003, PWN+ alongside the National Commission for Women organized public
 hearings in Karnataka, Kerala and Tamil Nadu to address concerns of women living
 with HIV. The public hearings were organized in response to 'Positive Speaking', a
 study undertaken by PWN+ and the Centre for Advocacy and Research (CFAR) which
 indicated high levels of stigma and discrimination against people living with
 HIV/ AIDS in the three states.
 Organized in 2004 with support from UNIFEM, UN agencies and NACO, Shaping a
 New Reality': for Women Living With HIV/AIDS, which promoted a gender-sensitive
 multi-sectoral approach to HIV/AIDS was the second national consultation organized
 by PWN+. The consultation was preceded by training-workshops undertaken over a
 six-month period which addressed mainstreaming concerns of WLHA in existing
 schemes of the Government. Following the training, women were able to develop local
 goals and strategies to access government programs, which they advocated during the
 National Consultation. During the consultation, recommendations were developed for
 Government ministries including the Ministry of Social Justice and Empowerment,
 Ministry' of Rural Development and Ministry of Youth Affairs and Sports on how
 various government schemes could be extended or adapted to better involve WLHA.
 Out of the consultation came a declaration by members of the Positive Women
 Network to shape a new reality.
 In 2006, PWN+, in partnership with UNICEF organized The National Consultation for
 Children Affected by HIV/ AIDS in India. The consultation brought together children
 affected by HIV/AIDS and created a platform for their voices to be heard by high-level
 policymakers in the Indian government and NGO community. Through this forum,
 children from all over India articulated many concerns - being orphaned, being denied
 services, lacking access to education - and offered suggestions to improve the quality of
 their lives.
 
 Significance
 Improving involvement of people living with HIV/AIDS is recognized as 'critical to
 halting and reversing the epidemic'1. However, despite being officially on the agenda
 in the response to HIV/AIDS since the Paris AIDS Summit of 1994, it is widely
 recognized that the principles of involvement are rarely fulfilled.
 At the 2001 UN General Assembly Special Session on HIV/AIDS it was agreed by over
 180 countries that gender equality and women's empowerment are fundamental to
 reducing girls' and women's vulnerability to HIV/AIDS. India's National AIDS
 Control Organization (NACO) has renewed its commitment to improving involvement
 of people living with HIV/AIDS in its NACP-III guidelines in recognition of the failure
 of NACP-II to adequately address the issue. UNAIDS also supports the principles,
 calling for 'all actors to ensure that people living with HIV have the space and the
 practical support for their greater and more meaningful involvement'2. Similarly, the
 1 UNAIDS Policy Brief (GIPA)
 
 23
 
 Global Coalition on Women and AIDS have made improving involvement of women
 living with HIV a priority in its Agenda for Action of Women and AIDS.
 PWN+ wishes to be at the centre of the renewed commitment to involving people
 living with HIV/ AIDS to represent the voices of women and children living with HIV.
 
 Annexure IV
 
 Key issues emerging from various District level Jan Sunwais Related to
 Community monitoring of Health services in Maharashtra
 This note briefly lists the key issues that were presented in various District level Jan
 Sunwais in five districts, as part of the Community monitoring process under NRHM.
 Not all the issues and cases of denial of health care have been listed here, however
 major issues, especially those requiring district level or state level intervention, have
 been outlined.
 It should be noted that Community monitoring has led to a number of improvements
 in all of these districts, and this process has led to increased dialogue between people
 and public health providers. However these improvements have not been covered in
 this note.
 
 District Nandurbar
 
 Key issues:
 
 Availability of medicines
 Representatives of the Block Nodal NGO in Akkalkuwa and Dhadgaon have
 shown that most of the PHCs do not have adequate medicine availability
 (especially ASV, TT inj, and disposable syringes).
 Specific issues observeda. Participants in the Jan Sunwai have unequivocally said that many times
 syringes that are used in the PHC are autoclaved, although these are
 disposable syringes.
 b. Mechanism of local procurement of medicine was not revealed to community
 monitoring agencies inspite of repeated requests.
 A. Ambulance availabilityOut of the nine PHCs monitored, only four PHCs have a functional ambulance.
 Issues observeda. It has been claimed time and again that wherever ambulance is not available
 people can hire a private vehicle for which reimbursement would be given.
 However in practice it is rarely done citing various rules.
 b. Though the untied fund is supposed to be used for hiring private vehicle
 wherever ambulance is not available, many people have reported that for one
 or the other reason this service has been denied. Hence patients are often
 denied ambulance facility.
 B. Vacant Posts-
 
 24
 
 It has been pointed out that there are large number of Health posts which are
 lying vacant for last few years, mainly posts of ANMs and MOs.
 Issues observeda. One interesting phenomenon that has been observed in Nandurbar is
 simultaneous appointment of single doctor at two places, e.g. Kusumvada
 PHC doctor also happens to be ADHO. Because of this arrangement though
 on paper PHC MO post in Kusumvada appears filled, in practice the MO is
 never present in the PHC. It should be noted that arrangement like this also
 hides real number of vacancies in the District.
 b. ANM posts have been vacant for last many years; even the monitoring
 agencies are convinced that the present ANMs are simply overburdened.
 C. Construction of new PHCs and location of the present onesa. One of the issues which has been repeatedly stressed by community' level
 activists is the poor location of certain PHCs. In Dhadgaon block most of the
 PHCs become inaccessible during monsoon, including the one which is
 designated as 24x7. Similarly in Akkalkuwa, location of some PHCs is
 inconvenient to the people residing in the PHC area.
 b. In some areas though the new PHCs have been sanctioned, due to non
 cooperation of Panchayats and also because of the vested political interests
 these PHCs could not be constructed.
 D. Incentive based schemes- (Janani Suarksha Yojana and Matrutva Anudan
 Yojana)Delay in the payment, partial payment, asking for number of documents which are
 difficult to arrange are some of the general problems that are observed in Nandurbar.
 
 Issues Observeda. In some cases payment was delayed for more than three months. According to
 the DHO, at the District level itself there was delay in receiving the money.
 b. The range of paperwork that a potential beneficiary of JSY or Matrutva Anudan
 Yojana (Maharashtra specific maternal benefit scheme) has to perform is simply
 overwhelming for the ordinary Adivasi person. This leads to lapse of benefits.
 c. Incentives are provided only at the service points like PHC and RH. There were
 instances where woman who has delivered at home, with a newborn baby has to
 go to these service points within 10 days of her delivery for seeking benefits of
 the mentioned scheme.
 
 District Pune
 Key issues:
 Taluka Khed
 
 PHCs
 •
 
 •
 
 PHC Wada and Kadus do not have drinking water leading to lower utilization
 by people
 The planned new PHC should be operationalised at Vashere (which is more
 centrally located) instead of Vetale (less convenient location for most villages)
 
 25
 
 PHC Khed does not have proper quarters for doctors, hence doctors and staff are
 not staying at PHC. Similar problem of quarters for PHC Kadus
 RH Chandoli - Serious issue of demand being made by doctors in the range of Rs. 5000
 to Rs. 7000 for performing operations, including cesarean operations
 
 •
 
 Taluka Velhe
 PHCs
 • Sub-unit at Panshet is insufficient to provide full range of health services to
 surrounding villages. This must be upgraded to PHC at the earliest
 • Quarters for staff inadequate, leading to non-residence of PHC staff
 • Vacant posts of ANMs and MPWs
 • Almost all of the PHCs do not have functioning laboratories, lack of lab
 technicians
 • Most of the PHCs do not have functional ambulances or patient transport
 vehicles
 RH Velhe
 Not a single specialist doctor. Entirely run by general MOs. No cesareans or operations
 performed.
 Serious problem of electricity supply leading to some deliveries being performed in
 near-darkness. Inadequate water supply.
 Ambulance exists but no proper driver. Peon is driving vehicle but charge of Rs. 5 per
 Km. taken from all patients.
 Inadequate number of indoor beds.
 
 Taluka Purandar
 PHCs
 • Belsar PHC does not have its own building, lack of proper space leading to
 serious deficiency in provision of services. Adequate building needs to be
 arranged at earliest
 • Till recently doctor at PHC Malshiras was frequently prescribing medicines for
 purchase from medical store
 • Quarters for staff inadequate, leading to non-residence of PHC staff
 • Vacant posts of ANMs and MPWs
 • Almost all of the PHCs do not have functioning laboratories, lack of lab
 technicians
 • Most of the PHCs do not have functional ambulances or patient transport
 vehicles
 
 RH Saswad
 • Expired drugs have been found in the pharmacy, which were kept for being
 dispensed
 • Pharmacist is on leave (period not known) leading to problems in dispensing of
 medicines
 • Pregnant women are asked to have Ultrasound performed from a private
 facility, have to make payment for this
 • Patients required to have HIV and Widal tests performed from private labs
 • Inadequate specialist doctors and staff
 26
 
 Cases of denial of Health care at various Rural Hospitals • Serious complaints were voiced by certain women patients concerning RH
 Chandoli (Tai. Khed), who accused the surgeon of having demanded large
 amounts of money for performing cesarean operation. It was alleged by two
 women that Cesarean operation was denied when they refused to pay the illegal
 bribe of Rs. 5000 that was demanded.
 • Similarly another woman who had undergone sterilization in RH Chandoli one
 and half years back, became pregnant (a clear case of sterilisation failure) yet
 when she approached the same RH for D&C (abortion), Rs. 1500 were
 demanded by the doctor. It was only after the intervention of a local journalist
 and the threat of media exposure that this demand was withdrawn and the
 abortion was performed.
 • Complaint was voiced by a woman who approached RH Saswad (Tai. Purandar)
 during labour, and was asked to get Ultrasound performed from a private clinic
 as a precondition for the delivery being done in the RH. This was despite an
 earlier, normal U/S report for the woman being presented when she approached
 the RH. Ultimately delivery care was denied and she had to undergo delivery in
 a private hospital
 
 Some cross cutting issues noted by the panel:
 • Lack of availability of medicines is significant and in some cases medicines are
 being prescribed for purchase - this must stop and all essential medicines must
 be made available from the PHC stock itself.
 • Certain commonly required medicines found deficient include Inj. Methergin,
 Syp. Paracetamol and Syp. Co-trimoxazole
 • Large number of PHCs do not have functioning laboratories; serious shortage of
 lab technicians needs to be addressed
 • Charter of Citizen's health rights needs to be displayed in all PHCs with name
 and mobile numbers of Medial officers
 
 District Amaravati
 Key issues:
 A. Inadequate infrastructure and humanpower at PHCs Issues observeda. Vacant Posts of ANMs and MOs for last many years in certain PHCs.
 b. Unavailability of certain essential medicines.
 Upon checking the indent register in some of the PHCs it has been observed that
 there is inconsistency in medicine supply, most of the medicines that are
 supplied are less than what has been demanded.
 c. In one PHC upon checking the medicine stock it has been observed that lot of
 medicines are still stocked though their expiry date has already passed.
 B.
 
 Referrals of delivery casesa. It has been observed that in many PHCs the tendency of referring women in
 labour without even examining the patient is growing. There were at least
 27
 
 three instances where a woman was referred to the Rural Hospital or tire
 private hospital citing complications. However all these woman had normal
 delivery after reaching the referral hospitals. (In every PHC there should be
 clear guidelines about referral, in case it is observed that the referral was
 unwarranted an enquiry should be conducted)
 b. Another significant problem that has been noticed is access to ambulance
 services in Rural Hospital. It has been observed that in some of the PHCs
 ambulance services are available, however these services are available only
 till the rural hospital; for subsequent transfer from RH to the sub district or
 district hospital people have to approach the Civil surgeon. This arrangement
 is creating lot of problem for patients who need ambulance services in RH.
 c. Almost all PHCs do not have stretcher or wheel chair facility, upon enquiry it
 was told that there is no provision of budget to buy these essential
 commodities. However if needed PHC officials were told to buy it from
 untied fund.
 C. Anganwadi Servicesa. In Melghat it has been observed that there are some Anganwadis which are giving
 services to as many as seventy children, with limited man power and resources.
 There has been consistent follow up of this issue by the district nodal NGO
 however no action has been taken on it.
 b. Though there is a guideline by the state Government that whenever a grade m and
 IV child is admitted in the hospital, the mother accompanying a child should also
 be given adequate food and also monetary incentive to take care of loss of daily
 wages. However this rule is not at all followed by the Public Health Department.
 
 D. Arbitrary transfer of PHC MO at Dhamangaon Gadhi In spite of large scale community protest, the DHO and other officials at the district
 level are adamant on transferring a PHC MO, Dr. Mrs. Miraj Ali, in Dhamangaon
 Gadhi. This is despite the fact that she has significant community support since she has
 been regularly providing services while being based at the PHC. (separate letter has
 been sent by panellists to MD, NRHM in this regard).
 
 E.
 
 There has been a long standing demand by many activists working in this area
 that every PHC and RH should have a counsellor, who knows local dialect, who
 would facilitate communication between local Adivasis and Public Health
 functionaries. This would lead to better access to health services and better
 awareness amongst Adivasis about various Government schemes.
 
 District Osinanabad
 Rural Hospitals
 There were two main issues that need follow up at higher levelI)
 Availability of Essential Medicines Gross shortage - for example, out of minimum eight commonly required
 antibiotics that should be available, five were totally missing in Ter and six were totally
 missing in Tuljapur RH respectively. Out of 14 medicines examined, 9 were missing in
 Ter and 10 were missing in Tuljapur RH respectively.
 28
 
 II)
 Vacant postsIn Tuljapur and Kalamb RH • Only one or two of the four posts of specialist doctors have been filled.
 • The post of Medical Superintendent was vacant in both RHs.
 
 Primary Health Centres
 Because of Community Monitoring, number of visits of the staff to villages has
 improved but home visits have not improved.
 As regards supply of essential medicines, out of 8 PHCs surveyed, the situation was as
 follows:
 Good - 3 (37%)
 Fair - 2 (25%)
 Unsatisfactory - 3 (37%)
 There were some discrete examples of highly unsatisfactory services • In Naldurg PHC, people complained that even simple delivery cases are referred
 to a nearby private hospital, routinely. One concrete case was reported wherein
 the woman who had come for delivery at 4 PM was asked to go to the private
 hospital. She was in no position to do so and was delivered by a nurse, who was
 on leave but had come to PHC for some other work. The doctor did not do
 anything in this case. After the delivery, the mother and baby were left alone in
 dark in the PHC at night.
 • Jaagji PHC is supposed to be 24x7 PHC. But only 8 deliveries were conducted in
 this PHC during last 1 month. One of the nurses conducts deliveries at home and
 charges fees for it. She was suspended, but has been reinstated.
 • Staff does not visit Dalit bastis in Pohner PHC area in Osmanabad Taluk.
 There was a strong suggestion that the system of trained dais being paid some
 honorarium per delivery conducted should be revived.
 
 29
 
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