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HIV/AIDS
Information
Services
October 1994
CDC National Al DS Clearinghouse
1
Acc. No.
4/4
©
Class Gode :
74
DOCUMENTfiT
CENTRE
HIV/AIDS
Information
Services
Profiles of Successful Services
Plus Advice for Starting Your Own
October 1994
CDC NATIONAL AIDS CLEARINGHOUSE
/
N
INSA'
INTERNATIONAL SERVICES ASSOCIATION
5/1, BENSON CROSS ROAD,
BENSON TOWN, BANGALORE-560 046.
it : 3536633, 3536299.
FAX: 91-80-3536633.
Table of Contents
Introduction
1
Overview
.5
Organizational Structure of AIDS Information Providers .........................................
What Are the Missions of AIDS Information Providers and Who Do They Serve? .
How Do AIDS Information Providers Measure the Effectiveness of Their Services?
How AIDS Information Providers Are Funded ..........................................................
How AIDS Information Providers Are Staffed.............................................................
What Is Included in an AIDS Information Collection? ...............................................
How Information Collections Are Organized................................................................
How Information Gets into a Collection.........................................................................
How Information Is Disseminated .................................................................................
How AIDS Information Centers Network......................................................................
Profiles of AIDS Information Services
33
AIDS Information Center, U.S. Department of Veterans Affairs ....................
AIDS Information Network Library
...................................................................
AIDS Survival Project Treatment Library ..........................................................
California AIDS Clearinghouse ............................................................................
The Friends Project ...............................................................................................
The Hemophilia and AIDS/HIV Network for the Dissemination of Information
Monroe Community College AIDS Resource Center............................................
Seattle AIDS Information Bulletin Board Service.................................................
Seattle Treatment Education Project
...................................................................
Teen AIDS Student Coalition .................................................................................
West Hollywood Library HIV Information Center ...............................................
Project Addresses and Phone Numbers ................................................................
Appendices
Appendix 1:
Appendix 2:
Appendix 3:
Appendix 4:
Appendix 5:
Appendix 6:
Appendix 7:
Appendix 8:
Appendix 9:
Appendix 10:
Appendix 11:
Appendix 12:
.5
8
10
12
15
17
19
22
25
28
Needs Assessment and Evaluation Surveys
Periodical Titles
Book and Audiovisual Titles
A Selected Guide to HIV/AIDS Bulletin Board Systems
Classification Systems and Indexing Thesauri
Newsletters and Other Publications
Announcements of Seminars and Public Forums
Bibliographies and Guides to Materials
AIDS Education General Information System (AEGIS)
Resource Guide
Services of the CDC National AIDS Clearinghouse
Glossary of Library-Related Terms
i
33
36
40
44
47
50
53
57
59
62
64
67
Introduction
For organizations working in the field of
HIV/AIDS, keeping up with the volume of
AIDS information, and finding effective ways
to get that information to their communities,
poses a great challenge. Many AIDS
information services have sprung up in the last
decade in response to this challenge.
The diversity of these settings as well as the
varied experiences of the people (both paid
staff and volunteers) who successfully operate
these services clearly illustrate the point that
traditional library settings are not the only
ones that can provide effective HIV/AIDS
information services to both lay and
professional audiences.
This report, prepared by the Centers for
Disease Control and Prevention National AIDS
Clearinghouse (CDC NAC), has a dual
purpose: to describe how a small group of
AIDS information services is meeting this
challenge, and to help people working in the
HIV/AIDS field to establish and maintain
effective information services. The suggestions
provided have been drawn primarily from the
experience of the 11 projects that are profiled
in this report, and supplemented by the
knowledge of CDC NAC staff.
Each profile describes the functions of a
project and the population it serves, how the
project was founded, and what its missions
are. Staff of each project relate how they
secure their funding and how their programs
are staffed. In addition, they describe what
their information collections contain, how their
collections are organized, what strategies they
use to disseminate information to their
communities, and how they network with other
AIDS service providers.
Profiles of AIDS Information Services
We hope that learning about how these groups
have met the challenges of AIDS information
collection and dissemination will help others
who are engaged in the same type of work.
Eleven projects are profiled in this report.
Our objective was not to conduct a compre
hensive survey of HIV/AIDS information
service providers, but to profile a few that
are effective in delivering a range of services.
We have chosen these 11 projects because of
the diversity of their operating structures,
audiences, and dissemination mechanisms.
We have included:
Organization of the Report
This report is divided into three sections:
The Overview section summarizes the
differences among the projects and
provides advice on launching and
maintaining an information service.
"Action Steps" at the beginning of
each section chapter provide practical
tips on how to get the various
components of an AIDS information
service underway. Throughout the
Libraries in various settings;
A telephone hotline service;
A correspondence club;
An electronic bulletin board service;
An information clearinghouse; and
A student-run information
dissemination service.
1
section, references are made to profiles
of specific projects to illustrate the
ideas presented.
to refer to them, is provided on
page 67.
The Appendices include examples of
forms, publications, classification
schemes, etc., used by the projects
profiled in this report. Also included in
the appendices are a glossary of
library-related terms and an extensive
resource guide to publications and
organizations that provide background
information helpful in carrying out the
functions of an information service.
The Profiles of AIDS Information
Services section includes a description
of each project based on information
obtained in a telephone interview.
Whenever possible, direct quotes of
project staff have been included. A
list of project addresses and phone
numbers, as well as the acronyms and
abbreviations used throughout the text
2
Ove rvi e w
Organizational Structure of AIDS Information Providers
Action Steps
Develop a plan to systematize your approach to information collection and dissemination.
Many organizations providing information about AIDS find themselves serving as unofficial
information clearinghouses with information systems that have evolved according to need,
but are not especially efficient. In these cases, you need to analyze how your organization
handles information and develop a plan that will systematize that approach and enable you
to provide those services more efficiently. If you are going to create a new service, you
should begin by creating a plan for that service. This report, other CDC NAC materials,
and materials from other organizations, can help you plan an efficient HIV/AIDS
information service (see Appendix 10: Resource Guide). You can also call the CDC NAC
technical assistance staff at 1-800-458-5231 for further help.
■
Consider affiliating your service with an existing institution, such as a public or academic
library, a community-based organization, or a foundation, to reduce costs and get access
to services and facilities that would otherwise be out of your reach.
Consider establishing an electronic AIDS bulletin board service as an independent, low-cost
method of disseminating AIDS information.
Involve other community groups in the design and implementation of your project. Many
AIDS information dissemination projects are created by task forces concerned about access
to information in their communities. Task forces can be used to design an information
service, raise funds for the service, network with other community-based organizations
(CBOs), and serve as a source of volunteer skills and labor.
The 11 projects profiled in this report were
founded either by their "parent" agencies, or
organized by community task forces or
individuals as their communities’ need for
information on HIV infection and AIDS
escalated throughout the last half of the
1980’s. Specifically, three organizational types
were identified: organizations created by
parent agencies; organizations that sought
affiliation with another agency; and
organizations functioning as independent
information dissemination projects.
Projects Created by Parent Agencies
Two of the 11 projects profiled were
conceived and created by agencies already
serving communities affected by AIDS.
Creation of these projects was driven by the
demand for information on AIDS expressed by
the constituencies of a state health department
-5-
and by a national health association. The
parent organizations found it efficient and
effective to formalize their HIV/AIDS
information dissemination efforts by creating
separate departments for this purpose.
AIDS, a coalition of AIDS service
organizations, as part of its 5-year plan to
provide informational support for AIDS
education in the Rochester, New York, area.
The task force designed the information project
and secured county funding for it and then
solicited support from MCC. which agreed to
provide space and technical support to the
Center. The Seattle Treatment Education
Project (STEP) was also established by a
community task force of HIV-positive
individuals who then affiliated their project
with the Northwest AIDS Foundation, which
provides STEP with office space and
administrative support.
For example, the California AIDS
Clearinghouse (CAC) was created by the
Office of AIDS, California Department of
Health Services, to serve the educational and
informational needs of state-funded contractors
who provide education and prevention
programs. HANDI, The Hemophilia and
AIDS/HIV Network for the Dissemination of
Information, is another example of an
information dissemination project that was
established by an existing organization that
found itself serving as an information
clearinghouse on HIV/AIDS due to the needs
of its constituents. The National Hemophilia
Foundation (NHF) decided to streamline its
information dissemination efforts by creating a
separate department devoted entirely to the
collection and dissemination of information on
AIDS. HANDI serves the needs of NHF’s
patrons as well as the educational and
informational needs of the Foundation’s staff.
Affiliation with an existing agency, whether
initiated by the existing organization or by the
new project, is an effective cost-reducing
strategy for AIDS information dissemination
projects. As described above, larger
organizations provide office space and
administrative support, thus reducing overhead
costs of the HIV/AIDS information project.
See the profiles of MCC, STEP, TeenAIDS
Student Coalition (TeenAIDS), and West
Hollywood Library HIV Information Center
(W. Hollywood) for examples of such
projects.
Projects That Sought Affiliation with
an Existing Organization
Especially advantageous are arrangements with
existing libraries that can yield substantial cost
savings by providing the AIDS information
dissemination projects with administrative and
technical support in acquiring materials,
organizing them, and circulating them (see
MCC, W. Hollywood).
In other cases, information dissemination
projects were conceived and designed by
community task forces, planning committees,
or individuals who then identified an existing
organization with which to affiliate. The only
difference between this category of projects
and the one described above is that the projects
in this group took the initiative to locate an
agency with which to affiliate.
Independent Information
Dissemination Projects
An example of an affiliated project created by
a task force is the Monroe Community College
(MCC) AIDS Resource Center, which was
founded by the Rochester Task Force on
AIDS information dissemination projects also
function as independent agencies, created by
task forces or individuals concerned about
access to AIDS information in their
-6-
1
assessment to identify the community's AIDSrelated information needs. Interviews were
conducted with people living with HIV and
AIDS, AIDS service agency staffs, and other
community-based organizations to gather data
on their needs for AIDS information. The
coalition then worked with a group of
librarians to design the AIDS Information
Network Library and organized a candlelight
walk of concerned Philadelphians, which
raised $6,000 of seed money to establish the
nation's first lending library dedicated
specifically to information on HIV/AIDS. The
library began delivering services to the
community in 1987.
communities. The Seattle AIDS Information
Bulletin Board Service (SAIBBS) was
established as an independent project in 1989
by an individual who was concerned about the
limited amount of information about
HIV/AIDS available in the Seattle community;
his goal was to make this information
anonymously and readily available.
Another example of an independent
information dissemination project is the
AIDS Information Network (AIN) Library, a
Philadelphia-based project. In the mid 1980’s,
a task force conducted a formal needs
- 7-
What Are the Missions of AIDS Information Providers and Who Do They Serve?
Action Steps
Decide whether to be a comprehensive or specialized information service. Some AIDS
information services strive to provide access to information about all aspects of the AIDS
epidemic. Other services choose to specialize in one area of the epidemic, for example,
prevention, treatment, or legal issues. Determine which aspects of AIDS your information
service is planning to-cover, and identify referral sources for those areas it will not cover.
Identify the population your program will serve. Some information projects serve the
general public, with no particular focus on special populations. Other projects focus their
services on particular groups, for example, people with hemophilia, teenagers, or health
care providers.
Identify the geographic scope of your service. Some projects provide services to their local
communities, while others have a national scope. Some began as local information services
and grew into national projects by virtue of the need for the information they disseminate
and the quality of their service. See page 26 for ideas on using electronic bulletin board
services and newsletters to expand your service beyond your immediate geographic area.
Write a mission statement. Your mission statement should clearly articulate the goals of
your information project. It should outline who your project will serve and what services
will be provided. Having a written mission statement not only helps you focus your efforts
but also provides you with a concise document that you can give to potential funders,
volunteers, and patrons. Contact other AIDS information projects to see copies of their
mission statements.
Missions
of the organizations profiled in this report.
(See project mission statements in the Profiles
of AIDS Information Services section.)
While the majority of the projects offer
comprehensive information on HIV/AIDS.
some specialize in education and prevention
information (see CAC, TeenAIDS), while
others emphasize HIV/AIDS treatment issues.
All of the projects provide referrals to other
organizations that offer information and
services outside of their scope.
One important goal of the AIDS information
dissemination projects described in this report
is to reduce the spread of HIV infection by
providing free public access to educational and
risk reduction information. Another goal is to
empower people whose lives are affected by
HIV/AIDS by giving them timely access to
information in convenient and non-threatening
environments. These goals are basic to many
- 8-
Populations Served
The information dissemination projects in this
study serve anywhere from 420 to 40,000
patrons per year. All of the projects provide
public access to their information collections.
Even in cases where membership is used to
define the patron base, dues are low and
adjusted or waived according to ability to pay,
for example, the Friends Project (Friends). In
cases where the project is contracted to serve
specific populations, access by the general
public is provided through electronic bulletin
board services (see CAC) or policies that
encourage open use (see HANDI). Patrons
include persons with AIDS (PWAs), health
care providers, caregivers, educators, at-risk
community members, law firms,
pharmaceutical companies, treatment facilities,
students, social workers, and teenagers.
-9-
How Do AIDS Information Providers Measure the Effectiveness
of Their Services?
Action Steps
Survey your patrons. Surveys can be a great way to get information about the demographic
makeup of your users as well as to learn more about their needs and how they like the
services you provide. Distribute these surveys at your information center or through your
newsletter or other publications. Surveys can also be handed out at workshops and trainings
offered by your service.
■
Talk to your patrons to find out how they use your service, whether they are aware of all
the services you provide, and how they think your services could be improved.
Ask a marketing firm to donate services by performing a market analysis of the
community you serve or are planning to serve.
Needs assessment and evaluation are common
components of AIDS information services. All
of the organizations studied in this project
report paying careful attention to the nature of
their patrons’ requests, and using this
information to add or modify services as
needed. Most of the agencies carry out these
functions through patron surveys. Surveys are
typically distributed onsite with every use of
the information service or at regular intervals
through the organization’s newsletters and
other publications. The surveys are generally
designed to elicit demographic information
about patrons, to find out what kind of
information patrons need and how they will
use it, and determine whether patrons are able
to obtain the information sought. Surveys also
allow the patrons to make suggestions about
services they would like to see offered.
In-depth Assessment and Evaluation
Some AIDS information dissemination projects
conduct more elaborate needs assessment and
evaluation activities in an effort to better
understand the community they serve and to
measure the effectiveness of their services.
These include in-depth intake and assessment
questionnaires, meetings with patrons, and
market analyses. The Friends Project collects
extensive personal and demographic
information about its membership through an
intake and assessment form that is mailed out
to new members as part of the enrollment
process. The project uses this information to
match its members with appropriate pen pals
and care providers, as well as to keep project
staff up-to-date on who the members are and
what their needs are.
- 10-
The California AIDS Clearinghouse needs
assessment and evaluation process begins with
the assignment of each member of the
clearinghouse’s AIDS Advisory Panel to a
local education and prevention contractor. The
panel members develop an ongoing working
relationship with these contractors and solicit
written feedback about their use of CAC
materials and services. After reviewing the
feedback, CAC staff and panel members meet
with the contractors. The purpose of the
meeting is to develop materials that will serve
the particular needs of the contractor’s
community, and for the contractor to learn
about the educational purpose of existing
materials. CAC finds this evaluative approach
very useful, not only in directing the
production of targeted materials, but also in
developing and maintaining effective
communication with its patrons.
The AIDS Information Network Library is
currently contracting with a local marketing
firm to assess the Philadelphia community's
awareness and use of AIN. This independent
analysis will give AIN a picture of how the
community perceives and uses project services,
what discourages use, and ways in which
community members think services could be
improved.
For more information on needs assessment and
evaluation activities, see Appendix 1: Needs
Assessment and Evaluation Surveys.
-11-
How AIDS Information Providers Are Funded
Action Steps
Determine whether your project can exist and thrive relying on only one source of funding,
or whether you will have to pursue more than one source.
Use funding resource centers and databases to identify potential sources of funding. Many
cities have nonprofit resource centers that assist organizations in identifying local funding
opportunities. Check with your local public library to find these resources. Many AIDS
information projects use the Foundation Center, which has libraries and cooperating centers
all over the country. The Grantsmanship Center is another organization that can be helpful
in identifying funding (see Appendix 10). The CDC National AIDS Clearinghouse
maintains a database of funding opportunities for AIDS-related services and programs.
When you access this database through NAC ONLINE, you can conduct a search to
identify organizations that fund AIDS dissemination projects.
Recruit professional fundraisers to serve on volunteer fundraising committees. Fundraising
committees can prepare grant applications, organize fundraising events, and solicit private
contributions.
Pursue donations of money and in-kind donations. Many AIDS information services receive
donations of books, journals, subscriptions, shelving, computer hardware and software,
office space, and printing and computer consulting services. Ask for donations by
publishing a "wish list" of needed items in your newsletter and investigate corporate
donation programs in your community.
The AIDS information dissemination projects
in this study receive their funding from
contracts, grants, and donations. None of the
projects assess fees for their services or
currently employ fundraisers. However,
several use the expertise of professional
fundraisers by asking them to serve on
fundraising committees as volunteers. Some
projects have only a single funder, while
others use many sources to obtain needed
support.
Single or Diversified Funding Base
One-third of the projects included in this study
rely upon a single source for their operating
funds. Depending upon a single source of
funding minimizes the amount of effort a
project has to spend on identifying and
pursuing funding sources. Nonetheless,
organizations with only one source of funding
do spend time renewing their grants and
- 12 -
justifying ongoing support of their services to
their funders. Relying upon a single source of
funds has the disadvantage of making a project
vulnerable to the threat of losing 100 percent
of its budget due to the actions of one funder.
Single source funding also tends to be
stagnant; costs and service needs may increase
but budgets may not.
Some of the projects in this study depend on
contracts with county and municipal agencies
that have committed to providing money to
support AIDS information dissemination in
their communities (see MCC, W Hollywood).
Funding for these projects is reviewed each
year and is contingent upon the health of
county and municipal budgets. If allocations
for a project remain steady over time, while
costs of providing information services
increase, the project’s buying power shrinks.
As a result, a project which may have
originally drawn its funding from a local
county source may have to begin seeking
additional sources of funding to supplement its
budget (see MCC).
The other two-thirds of the projects have a
diversified funding base that is drawn from
federal, state, and local sources, as well as
from donations and fundraising events. These
projects rely upon multiple sources of funds to
maximize the size of their budgets and
minimize the impact of loss of funds from any
one source. Developing a diversified funding
base requires time, and grant-writing and
reporting skills, in addition to a significant
investment of resources in identifying and
pursuing potential new funds. In some cases,
the cost of these efforts is reduced through the
use of professional fundraisers who volunteer
their expertise and services on fundraising
committees.
Two-thirds of the projects included in this
study secure funding through grants not only
from county and municipal government, but
also from foundations, corporate donation
programs and individuals. Funds from such
non-government sources tend to be one-time
gifts that allow the project to achieve a
specified goal, for example, subscribe to a new
set of journals or automate a card catalog.
Projects identify potential grants and donations
by looking through the AIDS literature,
monitoring The Foundation Center directories
and publications, searching the CDC National
AIDS Clearinghouse Funding Database, and
checking with local nonprofit resource centers
Even word of mouth plays a significant, if
not always systematic, role in the search
for funding. For more information on ways
to identify funding opportunities, see
Appendix 10.
Contracts, Grants, and Donations as
Sources of Funds
In some cases, state and federal agencies
contract with an information dissemination
project to deliver services over a multi-year
period. These contracts are competitive, which
means the organization must submit proposals
for refunding at the end of every funding
period. Competition for these contracts
provides incentives for the organization
receiving the funds to operate as efficiently as
possible, or risk losing funding to a more
viable service provider. Two of the projects in
this study, the California AIDS Clearinghouse
and HANDI, depend upon contracts as their
sole source of funding.
Many of the projects included in this study
organize fundraising events and ask for
donations of money and contributions of
materials from their communities. Projects
- 13 -
regularly publish requests for donations in
their newsletters. The AIDS Information
Network Library organized a candlelight vigil
that raised $6,000. TeenAIDS heid a chili
cook-off and a "wheel-a-thon" to raise money
for its project. In addition, many of the
projects receive contributions of materials,
such as used copies of periodicals, books, and
computer software and hardware, from
community members and businesses and
exchange their newsletters with other
organizations. The AIDS Survival Project
(ASP) Treatment Library publishes a "wish
list" of books and equipment in its monthly
newsletter. (See Appendix 6: Newsletters and
Other Publications.) The Seattle AIDS
Information Bulletin Board Service solicits
contributions of computer hardware and
software, which it then loans to its patrons for
the period of time they use the information
dissemination service.
- 14 -
How AIDS Information Providers Are Staffed
Action Steps
Use volunteers to help with your HIV/AIDS information project. Health care providers,
librarians, graphic artists, editors, and computer experts can be a great source of expertise
and labor. They can organize and staff special events as well as serve as a regular source
of labor in the day-to-day maintenance of your service.
Draw upon AIDS service organizations and other community-based groups for volunteer
skills and labor.
Develop a partnership with an existing library and use their acquisitions, cataloging, and
circulation systems to supplement your staff. Many AIDS information services are affiliated
with public, academic, and special libraries whose staff handle considerable amounts of
their workload.
Two-thirds of the projects in this study
operate with two or fewer staff members.
These are ASP, Friends, MCC, SAIBBS,
STEP, TeenAIDS, W. Hollywood, and the
AIDS Information Center of the U.S.
Department of Veterans Affairs (VA). Onethird of the projects have no paid staff and are
managed entirely by volunteers (see Friends,
SAIBBS, TeenAIDS). The remaining third
have staffs of 6-10 people (see AIN, CAC,
HANDI).
not in the field of information management,
for example, a graphic designer, a legislative
aide, a pastor, a psychologist, or students.
Although a background in librarianship is an
advantage to an AIDS information specialist, it
certainly is not a requirement for developing
skills in the management and dissemination of
AIDS information.
Volunteers
Volunteers represent an invaluable source of
expertise and labor to AIDS information
dissemination projects. The projects use the
expertise of their communities’ health care
providers, fundraisers, librarians, computer
experts, and others by recruiting these
professionals to serve on committees created to
address such issues as fundraising, information
classification systems, needs assessment,
research priorities, and marketing. Volunteers
can also provide technical support by working
Staff Backgrounds
Librarianship is the most commonly cited
profession among the staff of AIDS
information dissemination projects. Over half
of the projects in this study employ at least
one librarian. Almost all of the organizations
operating with only one staff person employ a
librarian. However, many of the organizations
are staffed by people whose backgrounds are
- 15 -
for the information dissemination projects as
filers, system operators, catalogers,
photocopiers, etc.
I
Supplementing Project Staff
Information dissemination projects that are
affiliated with established libraries are able to
supplement their staff with the services and
expertise of the "parent” library. Two projects
in this study, the West Hollywood Library
HIV Information Center and the Monroe
Community College AIDS Resource Center,
are able to operate with only one part time
staff person because their projects are
supported by staff from their parent libraries
who assist them in acquiring, organizing, and
circulating their materials.
- 16 -
What Is Included in an AIDS Information Collection?
Action Steps
Identify the aspects of AIDS you want to cover in your collection, for example, treatment
or prevention.
Fill your collection with the types and formats of materials that serve your user’s needs and
fit the subjects you cover (see Missions section on page 8). Some examples of material
formats include: journals, newsletters, books (directories, medical textbooks, dictionaries,
encyclopedic resources, fiction, self-help materials, and autobiographical literature),
pamphlets, videotapes and audiocassettes, electronic bulletin boards, and databases.
Identify places, such as libraries and other AIDS service organizations, to refer patrons to
for materials not included in your collection.
Use the collections of other nearby libraries to supplement your materials.
Subscribe to as many AIDS periodicals as your budget will allow, but make sure they fit
your users’ needs and are relevant to the areas of AIDS your service aims to cover.
Become adept in using electronic bulletin boards and online databases to supplement your
print collection.
AIDS information collections may contain a
diversity of resources including journals and
newsletters, books and reference resources,
electronic bulletin boards and computerized
databases, referral information, brochures and
pamphlets, audio and video materials, and
other non-print resources. In general, the types
and formats of materials you include in your
collection are driven by the subjects you plan
to cover and the audience you intend to serve.
periodicals are the most vital part of an AIDS
information collection. Many periodicals are
devoted and/or relevant to AIDS information.
Information services with relatively large
budgets for acquiring materials (see AIN,
HANDI) may subscribe to over 200 medical,
psychosocial, social science and legal journals:
newsletters produced by community-based
organizations; newspapers; and government
periodicals. Organizations with smaller budgets
select titles most relevant to the needs of their
patrons and supplement their own collections
by using the periodicals in other libraries in
their community. For example, the AIDS
Survival Project depends upon Emory
Periodical Literature
Because AIDS information is produced so
rapidly, journals, newsletters, and other
- 17 -
University’s medical journals, and only
subscribes to the community-based AIDS
literature that is not held in Emory’s
collection. (See Appendix 2: Periodical Titles.)
collections. Some projects (see CAC, SAIBBS,
W Hollywood) offer online access to their
users, while others have staff perform searches
for patrons.
Books
Referral Information
Because books are expensive and normally do
not reflect the quickly changing nature of
HIV/AIDS information, they make up a
smaller part of a typical AIDS information
collection. Exceptions to this are found in
libraries whose collections emphasize fiction
and other materials representing the artistic
response to AIDS (see AIN, MCC, W.
Hollywood). Most AIDS information services
do include reference books such as medical
texts, dictionaries, and directories of AIDS
service organizations and other social service
organizations. (See Appendix 3: Book and
Audiovisual Titles.)
All the projects profiled in this report
supplement their own collections with referrals
for their patrons to other collections or
services. They collect this referral information
by perusing the AIDS literature, using
community resource directories, and accessing
the CDC National AIDS Clearinghouse’s
Resources and Services Database (see
Appendix 11: The CDC National AIDS
Clearinghouse).
Pamphlets and Brochures
Most AIDS information collections include
pamphlets and brochures produced by various
AIDS service organizations (ASOs). These
resources are used for ready reference and
distribution. They tend to be written for the
consumer and reflect the knowledge and
experience gathered by ASOs nationwide.
Electronic Bulletin Boards
and Databases
Electronic bulletin boards and databases are
commonly used by the projects in this study to
access information. Most projects rely upon
one to three such electronic systems to serve
their information needs. The most commonly
cited systems are the CDC National AIDS
Clearinghouse’s NAC ONLINE, the National
Library of Medicine’s MEDLINE and
AIDSLINE, AEGIS, HNS HIVNET, and
CAIN. (See Appendix 4: A Selected Guide to
HIV/AIDS Bulletin Board Systems.) However,
some projects regularly search more than 25
electronic bulletin boards and databases to
identify and acquire information for their
Other Materials
Many AIDS collections strive to include
materials in nonprint formats such as
videotapes, audiocassettes, posters and other
illustrative materials. CD-ROM, laser discs,
and even balloons. Some of these materials are
especially useful for people with low reading
skills, students, and other populations with
special needs.
- 18 -
How Information Collections Are Organized
Action Steps
For Print-Based Information Services:
Select or develop a system to organize your information for quick and easy access and
retrieval. Many AIDS information services have developed their own systems to
accommodate the particular needs of their community and collection. (See Appendix 5:
Classification and Indexing Thesauri.)
Select storage systems, such as vertical files, that lend themselves to housing rapidly
expanding collections.
Create ready reference displays for fact sheets and brochures on "hot topics." Many walk-in
AIDS information services set up pamphlet racks or other special areas where patrons can
readily find these materials.
Develop tools such as indexes, catalogs, or bibliographies to help you keep track of the
materials in your collection and to help your patrons find information easily and quickly.
For Electronic Libraries:
Talk to operators of other bulletin board systems for advice on selecting hardware and
software. Appendix 10 lists articles and other resources that review software for electronic
bulletin board systems.
Consider becoming an AEGIS affiliate. By doing this you will joining an electronic network
linking AIDS-related bulletin boards and networks in many U.S. and Canadian cities and
in other parts of the world (see Appendix 9: AEGIS).
Develop user manuals to teach your patrons how to access information electronically.
Contact CompuMentor, a nonprofit organization that teams up volunteer mentors with
nonprofits who are stumped by computer problems (see Appendix 10).
Download files into your electronic system from other AIDS bulletin board systems (BBSs).
Most BBSs encourage distribution of their files. (See Appendix 4: A Selected Guide to
HIV/AIDS Bulletin Board Systems.)
- 19 -
This survey revealed two general models of
AIDS information storage and organization
the print-based information service, which is
composed primarily of printed materials and
offers walk-in or phone-in access to a
collection, and the electronic information
service, which stores information in electronic
format and offers online access to the
collection.
On the other hand, the AIDS Information
Network Library, the AIDS Survival Project,
and HANDI catalog their own materials using
in-house classification systems developed
specifically to organize and index AIDS
information. These AIDS-specific classification
systems offer more in-depth and comprehen
sive coverage of AIDS information, and also
use terminology familiar to the library's
patrons; this makes it easier for them to find
what they are looking for. (See Appendix 5:
Classification Systems and Indexing Thesauri.)
The Print-Based Information Service
(see AIN, ASP, HANOI, MCC, W.
Hollywood)
Catalogs and Finding Aids. Several AIDS
information dissemination projects keep track
of and help their patrons find information in
their collections by producing catalogs,
indices, and research guides. The AIDS
Information Network Library maintains a
traditional card catalog that offers access to the
collection by title, author, and subject; AIN is
in the process of developing an online catalog
that will be accessible by computers with
modems. HANDI, Monroe Community
College, and West Hollywood Library
currently maintain electronic catalogs of their
materials that allow users to identify materials
by title, author, subject, format, year of
publication, etc. Materials in both the Monroe
Community College and West Hollywood
Library collections are included in their parent
library’s electronic catalog. The AIDS
Information Network Library and The Monroe
Community College AIDS Resource Library
produce subject-specific research guides to
their collections to assist their patrons in
finding information. (See Appendix 8:
Bibliographies and Guides to Materials.)
AIDS information services whose collections
are composed primarily of print-based
materials (books, journals and articles) use
shelving, binders, and vertical files to store
these materials. Normally, books and
audiovisual materials stand alone on shelves,
and periodicals are stored in vertical files, or
shelved in loose-leaf binders. Because
loose-leaf materials (such as articles,
pamphlets, brochures, and reports) make up a
significant part of these collections, projects
often maintain multiple vertical files, which
allow for easy updating of these materials (see
AIN, Friends, HANDI, MCC).
Books and loose-leaf materials are organized
by subject using standard library classification
systems or systems developed in-house.
Because they are part of larger libraries that
catalog their materials for them, the Monroe
Community College AIDS Resource Library
and the West Hollywood Library AIDS
Information Center use Library of Congress
and Dewey Decimal classification systems,
respectively, to organize their books by
subject. Another commonly used classification
system is the National Library of Medicine’s
Medical Subject Headings (MeSH).
There are many good database programs
designed specifically for maintaining library
collections and producing useful catalogs and
finding aides. Contact your local public library
- 20 -
or a library association (see page 29) for
suggestions on which database programs and
other software to use. Other AIDS information
services may also be able to recommend
programs they have found useful.
most commonly cited sources for electronic
information are the AIDS Education General
Information System (AEGIS); the CDC
National AIDS Clearinghouse’s NAC
ONLINE; and the National Library of
Medicine's MEDLINE and AIDSLINE.
However, information is also gleaned from
many other electronic sources including local
bulletin board systems and the Internet (see
Appendix 4).
Ready Reference Displays. The AIDS
Survival Project and The AIDS Information
Network Library maintain "ready reference"
displays of information on "hot topics." These
displays offer patrons easy access to ready-togo information on topics of frequent interest.
Common ready reference topics include
information on testing, transmission, and the
latest treatments for opportunistic infections.
These displays are especially useful for new
patrons who are not yet comfortable with the
library setting.
SAIBBS relies upon AEGIS for over 30
percent of its incoming information. AEGIS is
a nonprofit network of electronic bulletin
board systems specializing in AIDS
information collection and dissemination. The
hub of AEGIS is a system maintained by Sister
Mary Elizabeth in San Juan Capistrano,
California. The AEGIS hub regularly searches
for and downloads information from electronic
sources all over the country including NAC
ONLINE, NLM’s AIDSLINE, and other
AIDS-specific databases. This information is
uploaded from the hub to all AEGIS affiliates
on a regular basis. To become an AEGIS
affiliate, organizations must commit
themselves to the principles of free and
anonymous access to information (See
Appendix 9: AEGIS.)
The Electronic Information Service
(see CAC, SAIBBS)
Some AIDS information projects store their
information in databases that are available to
patrons online through electronic bulletin
board systems. These systems typically consist
of conference areas, which support both public
and private interactions, and database files,
which contain information the system user can
search and/or download. Patrons can search
these databases using any word that is relevant
to the search or using an organized system
called a controlled vocabulary.
One of the benefits of maintaining an
electronic service is the ease of accessibility it
offers to patrons who know how to use
electronic information systems. An electronic
service can be accessed from anywhere,
including the comfort and privacy of the
patrons’ homes where they can search,
identify, download, and print information 24
hours a day. Electronic access is not limited by
geographic restrictions and makes it possible
for people in rural or otherwise isolated
settings to use the service with a level of
anonymity that cannot be achieved with a
walk-in collection of print materials.
Electronic-based information services are
typically managed by system operators who
assist patrons with searching and other
technical aspects of finding information. The
information contained in these bulletin board
systems is acquired in three ways: it is
downloaded from other electronic bulletin
board systems; received in electronic format
from the producer; or scanned from print
based materials into electronic format. The
- 21 -
How Information Gets into a Collection
Action Steps
Subscribe to and scan the AIDS-specific periodical literature.
Access the Internet to read and download the AIDS Book Review Journal. This is one of
the few AIDS-specific review sources available to AIDS information workers. Access
electronic bulletin boards on a regular basis to read and download government publications,
community-based literature, and other resources.
Develop relationships with collection development staff in local libraries. Librarians scan
a large number of catalogs to identify new materials and can tell you about new items.
Get on appropriate mailing lists to receive announcements and catalogs of new publications.
Use lists prepared by other AIDS information projects of their books, journals, newsletters,
and audiovisual materials to help develop your collection. Sample lists are included in
Appendix 2 and Appendix 3.
Use a bookjobber. Bookjobbers are companies that provide a link between publishers and
purchasers. They allow you to order many of the books you need from one source even
though they may come from many different publishers. Bookjobbers keep a close eye on
the publishing industry and can alert you to AIDS-related publications as they become
available.
Participate in committees and community task forces to learn about new materials.
Request a free computer search from the Educational Materials Database of the CDC
National AIDS Clearinghouse. This searches will give you descriptions of relevant books,
journal articles, brochures, and videotapes, including information about ordering copies of
each item. (See Appendix 11.)
AIDS information providers cite the following
as the main challenges to maintaining up-todate AIDS information collections:
The absence of standard review
resources for selecting materials;
The short time within which
information becomes obsolete;
The high volume of new information
on AIDS;
- 22 -
The redundancy of coverage of the
same information; and
interlibrary loan arrangements with local health
library consonia (see HANDL MCC, W.
Hollywood); downloading the full text of
periodicals available on AIDS bulletin board
systems (see CAC. Friends. SAIBBS);
securing grants to acquire periodical literature
(see MCC); and soliciting donations of
subscriptions from producers and supportive
community members (see ASP).
The lack of "digested" information as
opposed to raw data.
These factors make identifying and acquiring
new information feel like haphazard processes
that benefit as much from word of mouth and
each day’s incoming mail as from formal
strategies. Despite the absence of a systematic
approach, AIDS information services have
developed strategies for maintaining current
and comprehensive collections. For example,
the California AIDS Clearinghouse deals with
the problem of redundancy of coverage by
posting all publications received for a month,
and then removing duplicates and leaving only
the original source.
Electronic Bulletin Boards and Online
Databases
Sources frequently mentioned that are useful
for maintaining current and comprehensive
collections include the AIDS periodical
literature, electronic bulletin boards and
databases, library review literature, word of
mouth, incoming mail, and producer catalogs.
Many AIDS information providers rely upon
electronic bulletin boards and online databases
to maintain awareness of new information as it
is published and disseminated. These systems
generally provide the full text of government
documents, some periodicals, clinical trial
study releases, and other timely information.
Although many projects depend upon 1-3
sources of electronically stored information,
some of them (see CAC, SAIBBS) routinely
search over 25 bulletin boards systems, and
acquire the majority or all of their information
from these sources (see Appendix 4).
AIDS Periodical Literature
Review Literature
AIDS information collections depend upon
their subscriptions to periodical literature to
keep information flowing into their collections.
These publications include both the full text of
some materials and references to other relevant
materials, which the project can then acquire
from other libraries or electronic sources of
information. Many of the projects in this
report photocopy articles from the periodical
literature and then file them in their vertical
file collections. Because the cost of periodical
literature can be high, many AIDS information
services minimize this cost by exchanging their
own newsletters with other newsletter
producers; photocopying material from other
library collections (see ASP); participating in
Staff of the projects surveyed report that there
are few AIDS-specific resources to help them
evaluate materials they may be considering for
their collections. The two most commonly
cited sources are the AIDS Book Review
Journal produced by the University of Illinois
and distributed on the Internet
(@uicvm.uic.edu), and the AIDS Information
Newsletter produced by the Office of Veterans
Affairs’ AIDS Information Center (see
Appendix 6). Libraries that include fiction,
biographical accounts, and publications
representing the artistic response to AIDS use
the standard library review literature, such as
Publishers Weekly and American Libraries, to
identify books, videotapes, audiocassettes, and
- 23 -
other materials as they are published. The
Monroe Community College AIDS Resource
Library and West Hollywood Library have
arrangements with staff of their parent libraries
to pass on AIDS-specific information as they
come across it in the standard library review
literature.
materials. Information received from being on
mailing lists is another common source. The
AIDS Information Network Library and
HANDI maintain relationships with
bookjobbers, (businesses that mediate between
publishers and purchasers) who alert them to
AIDS-specific materials as they are produced.
Catalogs of educational materials are another
frequently cited source for identifying
audiovisual materials, other nonprint
resources, and educational materials such as
brochures and pamphlets.
Other Strategies
Word of mouth is cited by all of the AIDS
information services profiled in this report as a
significant source of information about new
- 24 -
How Information Is Disseminated
Action Steps
Determine the strategies that will be most effective in disseminating the information you
collect to your community.
Recruit trained staff—hired or volunteer—to operate the phones if you plan to provide
information over the phone, either as part of a larger project or as your primary
information dissemination mechanism. The CDC National AIDS Hotline (NAH) can
provide technical assistance in establishing a hotline (919-361-8430). The CDC Hotline
Training Bulletins provide information (prepared by CDC) to help train telephone staff to
answer questions on important AIDS-related topics. The bulletin is available from CDC
NAC and can be downloaded from NAC ONLINE.
Find staff who can assist patrons in locating information if you plan to operate a walk-in
information service. You should also establish policies on borrowing materials and decide
how to track them.
■
Consider producing a newsletter to disseminate new information to a wide audience.
Newsletters typically include organizational news, treatment updates, information about
local or national events, political news, listings of resources and personal stories. Take a
look at the sample newsletters included in Appendix 6 for content and design ideas. The
Resource Guide in Appendix 10 lists publications and resources that can help you.
Establish an electronic bulletin board service (BBS) as another effective information
dissemination avenue. Operation of a BBS requires an investment in hardware such as a
computer and several telephone lines, and the availability of one or more computer-savvy
persons who can function as system operators (Sysops).
Offer in-service trainings and workshops to the community at large and to other community
organizations.
AIDS information projects have developed
many strategies to deliver information to their
communities. The two most common
information dissemination strategies are
maintaining a walk-in/phone-in information
service and publishing a newsletter. Other
mechanisms include electronic bulletin board
systems, HIV/AIDS seminars and public
forums, telephone hotlines, bulk mailing
services, speakers bureaus, training and
workshops, and the provision of assistance to
other organizations in developing materials.
- 25 -
The Walk-in/Phone-in
Information Service
or quarterly basis. The newsletters publish
original material as well as information
reproduced from other sources. HANDI.
CAC. and the VA AIDS Information Center
produce multiple publications targeting
different audiences.
The most common way AIDS information is
disseminated is through a collection of
materials that is accessible to the public on a
walk-in or phone-in basis. The collections of
many of the projects in this report are located
in comfortable, safe environments in which
patrons can gather AIDS-related information
(see AIN, ASP, CAC, MCC, Hollywood,
HANDI). Some of these projects offer coffee,
tea, and chocolate, as well as couches and
armchairs, gardens, and study carrels to
encourage patrons to feel welcome and at ease.
Newsletters are a very popular dissemination
vehicle, and are often identified by users as the
most valuable service of a project. Publication
of a newsletter allows projects to reach beyond
a local area. AIN and STEP had originally
organized their projects to serve a
local/regional area, but their newsletters were
so popular that they are now distributed
nationwide (see Appendix 6).
Walk-in services allow patrons to borrow and
make photocopies of materials. They also
provide staff to help patrons find and
understand information.
Electronic Bulletin Boards
The third most common strategy of
information dissemination is the electronic
bulletin board (see AIN, CAC, Friends, VA,
SAIBBS). Nearly half of the projects profiled
provide some electronic access to their
information. Electronic access is the primary
method of information dissemination for CAC.
SAIBBS, and the VA AIDS Information
Center. Advantages of this strategy include 24hour anonymous access by users, access via
keyword searching, speed of information
acquisition, breadth of coverage, and storage
for materials and information that is limited
only by the availability of computer storage
space and not by physical space.
All of the print-based services in this study
offer phone-in reference services. Patrons call
in information requests, which are then
researched, and responses are sent by mail,
fax, or e-mail. Phone-based reference services
enable projects to serve patrons whose health,
geographical location, or other circumstances
make walk-in use of the library difficult. The
AIDS Information Network Library, the
Seattle Treatment Education Project, and
HANDI serve 50 percent, 100 percent, and
100 percent of their patrons, respectively,
through phone-based services.
As access to technology becomes increasingly
available, this mode of information
dissemination promises to expand. One
project, CAC, has received an enthusiastic
response to its strategy of placing terminals in
publicly accessible locations including a
hospital, a public library, and a community
pharmacy.
Newsletters
Another commonly-used dissemination vehicle
is a newsletter or other publication produced
by the project (see AIN? CAC, HANDI,
Friends, STEP, VA). Newsletters vary in
length and frequency of publication, averaging
12-30 pages; most are produced on a monthly
- 26 -
Seminars, Public Forums, and
Workshops
classrooms, other ASOs, businesses,
conferences, rallies, and even birthday parties
Topics frequently covered include HIV/AIDS
training for parents, peer education training,
adolescent HIV counseling and testing, and
safer sex.
Two of the projects offer HIV/AIDS
educational seminars to the members of their
communities. STEP offers a 6-week course on
all aspects of AIDS, taught by local experts.
The AIDS Survival Project provides a
weekend seminar also taught by community
experts and designed to give attendees a
comprehensive understanding of HIV/AIDS
issues. In both cases, course enrollment has
been high, ranging from 60-100 persons per
class.
Telephone Hotlines
While many projects offer information over
the phone as one component of their service,
others focus primarily on disseminating
information through a telephone hotline. The
Seattle Treatment Education Project operates a
hotline staffed by volunteers to provide
treatment information to callers.
Public forums featuring local and national
AIDS experts are another information
dissemination strategy. AIN, the AIDS
Survival Project, and STEP offer regular
lectures and presentations to their
communities. The AIDS Survival Project has
an arrangement with a local cable TV program
that records and airs the project’s educational
forums. The TV network donates copies of
these taped forums to the library collection.
(See Appendix 7: Announcements of Seminars
and Public Forums.)
Materials Development Assistance
CAC and TeenAIDS offer assistance in
developing materials as a strategy to educate
and inform their communities on HIV/AIDS
issues. This service is provided by the project
to assist other CBOs and ASOs in the
development of useful educational materials for
the communities which they serve. In the case
of TeenAIDS, the project advises organizations
on the types of materials that are effective in
reaching teens. CAC works with all of its
contractors to assist them in identifying
community characteristics, and in designing
targeted materials that will take these
characteristics into account.
AIN and TeenAIDS maintain speakers bureaus
as another strategy to get information into their
communities. The projects train speakers to
give informational presentations and conduct
training in a variety of settings, including
- 27 -
How AIDS Information Centers Network
Action Steps
Forge relationships with local ASOs by co-sponsoring events and sharing resources.
Make networking or outreach responsibilities a staff member’s job.
Join an AIDS-related electronic bulletin board
Join professional associations to maintain staff skills.
■
Attend conferences to learn and to network.
Serve on community task forces and committees to help coordinate services in your area
and to help make your community aware of your program.
Log on to an AIDS-related electronic bulletin board. AIDS BBSs provide forums to help
you communicate with other organizations and individuals doing the same work.
Networking with other AIDS information
providers is an important part of managing an
effective AIDS information dissemination
project. In the course of their work, AIDS
service organizations amass expertise on the
subject of HIV/AIDS as well as on the subject
of information management. This expertise
represents a valuable resource available to the
AIDS service community. Sharing knowledge
allows AIDS service organizations to maximize
their resources. While networking can be
challenging due to the high rate of staff
turnover and the general atmosphere of crisis
in which most ASOs operate, all of the AIDS
information dissemination projects in this study
make a serious effort to develop and maintain
relationships with other AIDS service organ
izations and information providers.
To do this, project staff use electronic bulletin
boards, attend regional and national meetings
and conferences, and maintain memberships in
professional associations.
Local Networking
Most of the projects find that it is beneficial to
work closely with other local AIDS service
agencies. In most cases, networking is
informal and ongoing. Many of the projects
serve as referral points for other agencies who
send their clients to them for informational
support. Strategies for developing and
maintaining good working relationships with
other ASOs include:
■
-28 -
Inviting other organizations to
cosponsor public forums and events;
Providing in-service training for other
ASOs;
share their expertise, educational materials,
experiences and resources with each other.
BBSs also offer e-mail, which enables
participants to interact with each other on a
one-on-one basis in order to exchange
confidential information. In this study, NAC
ONLINE and AEGIS were the most frequently
cited BBSs used for networking (see Appendix
4 and Appendix 9).
Helping other organizations develop
educational materials;
Donating duplicate materials to other
collections; and
Serving on regional task forces and
planning committees.
Meetings and Conferences
The AIDS Information Network (AIN) Library
makes responsibility for networking a formal
part of one of its information specialist’s job
description. AIN also meets monthly with the
local AIDS hotline to coordinate the work of
the two groups. Three of the projects,
HANDI, the Monroe Community College
AIDS Resource Center, and the West Holly
wood Library AIDS Information Center,
participate in formal interlibrary loan networks
that facilitate exchange of resources with other
resource centers in their region. Staff of STEP
work closely with the local health and
education community through a local planning
committee, which includes health care clinics,
colleges, and the local university, and with
many community-based organizations. The
planning committee enables the organizations
to coordinate their work and avoid duplicating
services. Staff of the AIDS Survival Project
maintain close ties to the community by
serving on a state task force on AIDS, a
citizens advisory board, and other local AIDSrelated committees.
Staff from many of the projects surveyed
attend local, regional, and national meetings as
a way of developing and maintaining staff
expertise. Such meetings help staff see how
others are coping with common problems. The
projects in this survey have found the National
AIDS Update Conference, the Skills Building
Conference, the "Until There is a Cure"
meeting, as well as other meetings, to be
useful in learning about technology, legislative
strategies, hotlines, and HIV/AIDS treatments.
Although budget limitations often make it
difficult for staff to attend conferences, many
of the organizations reported attending
meetings sponsored by pharmaceutical
companies which typically pay all associated
costs.
Professional Associations
Staff and volunteers of the projects belong to a
variety of professional associations through
which they continue their own education and
professional development. The Special
Libraries Association, the Public Library
Association, the Medical Library Association,
the American Library Association, and the
American Public Health Association produce
useful literature, sponsor relevant conferences,
and offer opportunities to participate on
national, regional, and local committees that
often turn out to be valuable networking
opportunities.
Electronic Bulletin Boards
Many of the projects use electronic bulletin
boards to maintain contact with other AIDS
information providers. These bulletin board
services (BBSs) allow organizations to
participate in topic-specific public forums with
participants from all over the country who
- 29 -
Profiles of
HIV/AIDS
Information
Services
AIDS Information Center, U.S. Department of Veterans Affairs (VA)
San Francisco, California
Person Interviewed: Michael Howe, Librarian
Date of Interview: March 1994
Project Highlights:
Library located within a federal agency
All information stored and transmitted to users in electronic format
Produces a current awareness service
Background and Mission
Funding
The AIDS Information Center was established
in 1989 to meet the rapidly expanding
information needs of those involved in VA
HIV/AIDS patient care, education, and
research. The AIDS Information Center’s
mission is to ensure that VA personnel have
timely access to information required for these
activities. The center provides specialized
information services related to HIV/AIDS to
the following organizations and individuals:
the VA Central Office, AIDS Service and
Office of Academic Affairs, AIDS Education
Task Force and Working Group; the AIDS
program directors of the VA Regional Medical
Education Center; and all VA medical centers,
including HIV/AIDS educators, counselors,
and other health care practitioners, as well as
all library service staff. The center’s
information services are transmitted to 171 VA
medical centers around the country.
Information from the center is also made
available on virtually every AIDS-related
bulletin board service.
Funding for The AIDS Information Center is
provided by the Department of Veterans
Affairs, Office of Academic Affairs, as part
of the VA’s National HIV/AIDS Education
Initiatives.
Staffing
The AIDS Information Center is staffed by one
professional librarian who previously worked
as the AIDS information specialist at the
University of Kentucky’s office of the East
Central AIDS Education and Training Center
for 2 years before moving to San Francisco to
run the center for the VA.
Scope of Services
The AIDS Information Center produces a
biweekly newsletter, the AIDS Information
Newsletter, which is transmitted to all VA
Medical Center facilities. The newsletter
includes articles on AIDS-related medical
- 33 -
issues, reviews of AIDS-related materials,
announcements about educational activities,
news releases, updates from the centers for
Disease Control and Prevention, bulletins,
resource lists, articles on the perspectives of
clinicians, and other information. In addition
to disseminating the newsletter to VA
facilities, the center posts it to many AIDS
bulletin boards, including the CDC National
AIDS Clearinghouse’s NAC ONLINE, AIDS
LegalNet, AEGIS (AIDS Education General
Information Service) HNS HIVNET, and the
sci.med.aids listserve on the Internet. (See
Appendix 4: A Selected Guide to HIV/AIDS
Bulletin Board Systems and Appendix 6:
Newsletters and Other Publications.)
The AIDS Information Center
Collection
The AIDS Information Center is housed in an
office of the San Francisco VA Medical
Library, thus enabling staff to easily use the
library's collection of reference materials,
books, government documents and videos, as
well as the library’s comprehensive collection
of medical periodicals. The librarian
supplements these materials by accessing
online sources of information including CAIN,
AEGIS, HNS HIVNET, The National AIDS
Clearinghouse’s NAC ONLINE, OASH
Bulletin Board, FDA (Food and Drug
Administration) Bulletin Board, and the
Internet.
The AIDS Information Center produces a
current awareness news service, the AIDS
News Service, which is transmitted biweekly
to eight VA mail groups around the country.
The News Service includes journal abstracts,
news reports, and other information taken
from the NAC ONLINE AIDS Daily Summary
(see Appendix 6). The center provides
reference and referral services to VA library
network librarians and health care
professionals. Reference services include
online information retrieval from a variety of
biomedical databases and HIV/AIDS
information services.
All of the center’s materials are stored and
transmitted electronically. If the identified
information is a news item that is considered
to be of urgent concern to VA facilities, that
information is transmitted immediately.
Otherwise it is maintained in a directory. For
example, the medical abstracts from NAC
ONLINE’s AIDS Daily Summary are
downloaded to the center’s "NEWS.94"
directory; selected abstracts are then
transmitted to the center’s "AIDS News
Service" on a biweekly basis. Information that
may be used in a future newsletter is stored in
a separate file.
The AIDS Information Center evaluates and
reviews resources pertinent to HIV and AIDS
and makes recommendations concerning
relevant materials for patient care programs.
The center publishes these evaluations and
reviews in the AIDS Information Newsletter.
Getting Materials into the Collection
The librarian acquires information for his
electronic collection by "reading everything.”
Each month he peruses 75-100 journals at the
VA Medical Library and also reads them on
electronic bulletin boards. He has found the
AIDS Book Review Journal, available on the
Internet, (@uicvm.uic.edu) particularly useful.
All information is downloaded and stored in
electronic format until it is needed.
The AIDS Information Center also prepares
annotated bibliographies, resource lists, and
other educational materials for VA programs
and activities.
-34-
Networking
provided an overview of the treatment in VA
facilities and the questions asked during the
conference were helpful in determining the
information needs of this group of health care
providers. I also attended the VA’s training
program for counselors and, again, this
provided first-hand experience on the needs of
those who provide counseling to VA patients
with HIV infection."
The AIDS Information Center shares its
informational resources with the entire AIDS
information community by disseminating its
newsletter on a wide variety of electronic
bulletin boards for free. In terms of attendance
at conferences, the librarian stated that "VA
conferences are, for the most part, the most
useful as the center is one of the primary
elements of the VA’s national training
initiatives and, therefore, needs to be aware of
the information needs of those involved in the
care of persons with HIV infection as well as
those who are involved in education/training of
VA health care professionals. For example, in
August 1993, I attended the Boston conference
for VA physicians. The presentations made by
VA clinical staff during the conference
The librarian participates in national telephone
conference calls with the VA Office of
Academic Affairs and the VA Regional
Medical Education Center directors who
provide training to VA staff He also
participates in VA quarterly teleconferences,
which provide information on issues related to
HIV/AIDS.
II
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AIDS Information Network (AIN) Library
Philadelphia, Pennsylvania
Person Interviewed: Jean Hofacket, Director of Information Services
Date of Interview: March 1994
Project Highlights:
First lending library dedicated specifically to HIV/AIDS information
Maintains extensive demographic information on patrons
Uses in-house classification including over 700 subject areas
Actively seeks low-literacy materials
Background and Mission
make informed decisions about their health and
psychological well-being. People living with
HIV are encouraged to share this information
with caregivers, family members, partners,
and friends so that these individuals can give
the best help and advice possible. AIN also
aims to educate all communities about ways to
prevent HIV infection, and give them
information about how they can help in the
fight against AIDS.
The AIDS Information Network (AIN) was
founded in the mid-1980’s by a coalition of
community-based organizations in response to
an extensive needs assessment of their
community that identified access to
information as a priority in the Philadelphia
AIDS community. The coalition conducted the
needs assessment through individual interviews
with persons with AIDS (PWAs), AIDS
service agency staff and other community
based organizations. The coalition then worked
with a group of librarians to design the library
and organize a candlelight walk of concerned
Philadelphians, which raised some $6,000 for
seed money to establish the nation’s first
lending library dedicated specifically to
information on HIV7AIDS. The library began
delivering services to the community in 1987.
The AIDS Information Network Library serves
the informational needs of its other educational
projects and the general public. Another AIN
program, the Critical Path AIDS Project,
publishes a newsletter, advocates for those
who are HIV positive, and maintains a 24-hour
hotline and an electronic bulletin board
service. The newsletter, Critical Path, is
published quarterly and offers a digest of
current information on treatments, drugs and
clinical trials (see Appendix 6). It is available
in print or on AIN’s electronic bulletin board.
AIN’s mission is to provide people infected
with HIV with current and comprehensive
information and support, thus enabling them to
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AIN also coordinates an education and
prevention program. Safe Guards, which
operates outreach programs for sexual minority
communities, and holds safer sex and risk
reduction workshops and public meetings.
information on all aspects of the epidemic. In
1993, the library managed 99,512 information
transactions. Fifty percent of library patrons
are HIV positive or ASO/CBO staff and health
care providers working directly with HIV
infected individuals or with prevention/
education programs. Thirty two percent of
library patrons are African American. 15
percent are Latino, 2 percent are Asian, and
51 percent are European American. Gender
use is evenly split.
Funding
AIN’s budget for 1993 was $860,000,
$350,000 of which was used to maintain and
develop the library. Funding sources include
federal Ryan White grants, foundation and
corporate donations, donations from
individuals, and library-sponsored fundraising
events. AIN plans to hire a development
officer who will be responsible for
fundraising. In the meantime, fundraising is
the responsibility of the AIN project directors;
they receive assistance from professional
fundraisers who volunteer to serve on an AIN
fundraising committee. AIN relies upon the
Federal Register and directories from the
Foundation Center (see Appendix 10: Resource
Guide), as well as on the published AIDS
literature and word of mouth to gather
information on potential sources of funds.
The AIDS Library is the heart of all AIN
services and functions as a free public library
in the city of Philadelphia. The library offers
public access to its comprehensive AIDS
collection where materials are available for
loan and photocopying, and information
specialists assist patrons in finding and using
resources. As part of this assistance,
information specialists produce pathfinders,
which are listings of materials by subject that
help patrons use the library. (See Appendix 8:
Bibliographies and Guides to Materials.)
The library offers comprehensive referral
information to local, national and international
services and resources. Staff respond to
telephone, fax, and e-mail requests for
information; the library serves twice as many
patrons by phone, fax, or electronic bulletin
board as it does in its facility.
Staffing
AIN’s library has eight paid staff members: an
executive director, a director of information
services (a librarian), 2 information/reference
specialists (one of whom is a librarian), a
director of educational programming, an
administrative assistant, a director of technical
services (a librarian), a technical services
assistant (paraprofessional), and a development
officer (position to be filled). The library also
benefits from the assistance of 50 volunteers.
Within the library, AIN maintains the John
Kelly Living Center, a subset of the collection
tailored to the needs of people living with
AIDS. Within this safe, comfortable setting,
people infected with HIV have easy access to
information on all aspects of HIV treatment
and management.
Scope of Services
To achieve the library’s mission, AIN offers
access to a comprehensive collection of
- 37 -
Needs Assessment and Evaluation of
Services
staff felt that no existing system—the National
Library of Medicine’s (NLM’s) Medical
Subject Headings (MeSH), Library of
Congress, or Dewey Decimal systems—
adequately covered the subject of AIDS. As
the scope of the collection grew, the
classification scheme expanded from its
original 13 subject headings to its current 700
classification and indexing terms. Library staff
are now reviewing the AINSH system using
the volunteered expertise of medical librarians
across the country. Staff use a card catalog to
keep track of and find materials, and are in the
process of developing an online catalog that
will be accessible via modem from outside the
library.
The AIDS Library of Philadelphia conducts
needs assessments and evaluates its services on
an ongoing basis through information gathered
from user surveys given to every library
patron. (See Appendix 1: Needs Assessment
and Evaluation Surveys.) AIN is currently
contracting with a local marketing specialist to
assess the library’s reputation with local ASOs.
AIN expects to use the results of this survey to
modify its current information dissemination
services as needed.
The AIN Collection
Getting Materials into the Collection
The library collection includes 1,850 books;
200 journals, newsletters, and newspapers;
more than 200 videotapes and audiotapes;
government publications; and online resources
and CD-ROM products (see Appendix 2 and
Appendix 3). Books, videos, audiotapes,
journals and newsletters are displayed on
standard library shelving and are available for
loan or photocopying. Over 100,000 articles
and brochures are stored in a vertical file and
may be photocopied. Duplicate copies of
pamphlets and brochures are displayed and
distributed from ready reference racks that
allow patrons quick access to "hot" topics.
The Director of Information Services for the
Library spends approximately 12 hours per
week identifying new materials for the library
collection. She uses the standard library review
literature, AIDS journals and newsletters,
catalogs from producers and publishers,
standing orders with bookjobbers (one in
particular that specializes in Spanish
materials), announcements that come in the
mail, and word of mouth to find materials.
A major challenge in this area is the lack of a
mechanism for centralized review of the
available literature. Unlike other areas of
special librarianship, the AIDS subject area
has no standard review sources, which means
the librarian has to hunt through all the library
literature, ail the AIDS literature, all the
literature on sexually-transmitted diseases
(STDs), and so forth. The diversity of sources,
both mainstream and alternative, make the
process very difficult and time consuming. The
librarian has responded to this challenge by
organizing her own system. As she becomes
aware of new materials, she files them
The library staff have found that, because
there is an overwhelming amount of
HIV/AIDS-related information and much of it
is technical in nature, the resources must be
organized to make them easy to use, or users
will become discouraged. The AIDS Library
has developed its own classification system,
the AIDS Information Network Information
Files Subject Headings (AINSH), which
includes over 700 subject areas about
AIDS-related topics. This in-house
classification system was created because the
- 38 -
services and solicit input on the community's
AIDS information needs. For example, AIN
meets monthly with the Philadelphia AIDS
Hotline to share information and coordinate
services. AIN also offers in-service training to
Philadelphia ASOs to educate them on how to
make the best use of the library.
according to 12 broad subject areas. She then
refers to these files when the library needs,
and can afford, to acquire new materials.
Another challenge is identifying information
that is accessible to illiterate library patrons or
those with low reading levels. The library
actively searches for information in a nonprint
format or materials written at a level that can
be used by this population.
The information/reference specialists' job
description includes developing and
maintaining community connections. However,
library staff report that this effort is sometimes
impeded by the high rate of turnover in AIDS
service organizations and the fact that
everyone is overworked.
Networking
AIN maintains formal and informal
relationships with local CBOs to coordinate
- 39 -
AIDS Survival Project (ASP) Treatment Library
Atlanta, Georgia
Person Interviewed: Dawn Averett-Doherty, Treatment Resource Specialist
Date of Interview: April 1994
Project Highlights:
■
Largest, most comprehensive HIV/AIDS treatment library in the Southeast
Collection organized by subject in 300 looseleaf notebooks
Publishes "wish lists" of materials needed in project newsletter
Staff regularly uses extensive medical resources at local university library
Background and Mission
ASP also offers "Operation: Survive," an
intensive seminar on HIV that covers
information on HIV treatments, legal issues,
insurance, safer sex, and stress management.
This 2-day seminar typically enrolls 50-60
people. ASP sponsors public lectures by
nationally acclaimed physicians and AIDS
researchers throughout the year that are
regularly attended by 50-115 community
members. The project has arranged with a
local cable TV station to tape and broadcast
these forums on a regular basis. (See Appendix
7: Announcements of Seminars and Public
Forums.) The Project also offers peer
counseling for support and referral
information.
The AIDS Survival Project (ASP) was founded
as a membership organization of HIV-positive
individuals and concerned friends in 1987. The
AIDS Survival Project Treatment Library was
founded in 1991 in response to the
membership’s increasing need for treatment
information. The Project is an organization of
"diverse people living with HIV, united to
promote self-empowerment and enhance
quality of life for HIV-affected individuals
through advocacy, education, peer support,
and treatment activism."
In addition to maintaining the Treatment
Library, ASP publishes a free monthly
newsletter, the Survival News, which presents
the latest ASP program information, updates
on advocacy efforts, and news from the
Treatment Library. The newsletter is written
solely by volunteers and offers news,
information, and peer support from the
perspective of those living with HIV/AIDS.
Funding
The Project’s budget of $250,000 is composed
of a federal Ryan White grant, Atlanta
Community Fund grants, and money generated
by fundraising events held throughout the year.
Fundraising is the responsibility of the
-40-
project’s executive director, who identifies
information about new sources of funding from
a local nonprofit resource center, the
Metropolitan Atlanta Community Fund, and by
word of mouth. The Treatment Library itself
has no formal budget; it acquires most of its
materials through solicited donations, although
it does receive some project money for
subscriptions.
of information on other aspects of HIV/AIDS.
The library serves approximately 3,000 people
each year. Roughly, 25 percent of library
patrons are people newly diagnosed with HIV
and 75 percent are people living with AIDS,
health care providers, health educators, and
others affected by HIV/AIDS. The library
emphasizes onsite use of its resources, but will
mail information to patrons who are unable to
visit the library. Patrons are free to borrow
books and videos. All other materials are
available for free photocopying at the library.
Although the library has no formal check-out
system, loaning materials has worked well,
with few materials lost.
Staffing
The AIDS Survival Project operates with a
staff of four full-time employees; an executive
director, an associate director (program
director), a treatment resource specialist, and a
volunteer coordinator/office manager. The
project also has about 65 active volunteers who
function as peer counselors and committee
members and help with the logistics of running
the programs.
Needs Assessment and Evaluation
The Treatment Library performs needs
assessment and evaluation of services on an
ongoing and informal basis through constant
communication with library patrons, and
formally through surveys, administered to
library patrons to collect demographic
information about patrons, as well as data
about the kinds of information sought.
The AIDS Survival Project Treatment Library
is staffed by one full-time person, the
treatment resource specialist, and six
volunteers who each contribute an average of 4
hours per week.
Scope of Services
The ASP Treatment Library
Collection
The AIDS Survival Project Treatment Library
is the largest and most comprehensive
HIV/AIDS treatment library in the Southeast.
The library is located in a small brick house in
downtown Atlanta. It is a very safe,
welcoming environment complete with couches
and a garden.
The library collection consists of over 150
books (reference, textbooks, and self-help);
videotapes and audiotapes, including tapes of
AIDS Survival Project forums; an extensive
reference collection of newsletters from other
community-based organizations (CBOs);
articles; organizational and pharmaceutical
press releases; and brochures and pamphlets
from other CBOs. The collection emphasizes
treatment information, both mainstream and
In addition to providing informational support
to other AIDS Survival Project programs, the
Treatment Library provides free public access
to its collection of up-to-date information on
the treatment of HIV/AIDS, including
alternative therapies, and referrals to sources
alternative, and it also includes information on
legal issues, housing and other related issues.
(See Appendix 2: Periodical Titles and
- 41 -
Appendix 3: Book and Audiovisual Titles.)
Survivor News, (see Appendix 6) and is
generally able to acquire these materials
through donations from its readers. Staff
regularly visit the medical library at Emory
University to photocopy articles from the
medical periodicals not included in its own
collection. In addition, the treatment resource
specialist serves on a number of advisory
committees (see below) that keep her abreast
of new information and its sources. Word-ofmouth among the large group of ASP
volunteers is an important method of
identifying new information.
The collection is organized by subject.
Newsletters and similar materials are stored in
300 looseleaf notebooks, which are shelved
along one wall of the library. The notebooks
are divided into nine subject areas, which are
clearly labeled on the top of the bookshelf.
There are two indexes to the collection: a
general index to every item, and a classified
index to each subject section. (See Appendix
5: Classification Systems and Indexing
Thesauri.)
The library also has a "treatment tree," (or
rack) where it displays the most up-to-date
treatment information, including the latest
issues of treatment publications and flyers
responding to the most commonly asked
treatment questions. This information is ready
to go and especially useful for first time
patrons and people who are intimidated by the
bulk of information available in the notebooks.
The library’s lack of a computer impedes its
ability to identify and access new materials
efficiently. ASP has applied for a grant to buy
a computer and software, which will allow
staff to access AIDS online services such as
those offered by the National Library of
Medicine and the Centers for Disease Control
and Prevention.
Networking
The library maintains a community resource
referral directory of information on health care
providers, insurance policies, housing
organizations, and food banks. The library also
keeps a directory of commercial services in a
separate location so as not to appear to endorse
any particular for-profit service.
Staff of the AIDS Survival Project maintain
close ties to the Atlanta community by taking
advantage of the libraries at the Centers for
Disease Control and Prevention and Emory
University, and by serving on the Georgia
State Task Force on AIDS, the Scientific
Advisory Committee of the AIDS Research
Committee for Atlanta, the AIDS Clinical
Trial Advisory Group, and a treatment
committee in Atlanta. AIDS Survival Project
networks with other AIDS service organi
zations (ASOs) by serving as a referral point
for their members and by inviting other
organizations to cosponsor the AIDS Survival
Series.
Getting Materials into the Collection
The Treatment Library has no budget to
acquire materials. All books and videos are
donated, newsletters are received through
exchange agreements, and pamphlets and
brochures are acquired from other community
based organizations. Information is identified
by perusing the AIDS newsletters and the
promotional materials that arrive in the mail.
The Library publishes "wish lists" of items it
would like to obtain in the project newsletter.
Although lack of funding limits traveling, staff
attend conferences and meetings whenever
possible. The treatment resource specialist
- 42 -
found the "Until There is a Cure" conference
sponsored by AIDS Manasota of Florida to be
"absolutely excellent because it is very much
by and for HIV-positive people. Fifty percent
of conference participants were HIV positive."
The need to maintain visibility in the
community poses a constant challenge to
library staff. The library works to maintain a
high profile by publishing articles in local
newspapers, distributing brochures and flyers,
speaking at local organizations, and working
within the HIV-positive community.
- 43 -
California AIDS Clearinghouse (CAC)
Los Angeles, California
Person Interviewed: Russ Toth, Program Director
Date of Interview: April 1994
Project Highlights:
A state-funded project
Offers extensive assistance in materials development
Provides terminals in public settings to help users access information
Background and Mission
Clearinghouse. CAIN offers electronic mail,
an interactive electronic bulletin board forum,
and databases of educational materials,
upcoming events, organizations, and articles.
The California AIDS Clearinghouse (CAC)
was established in 1988 by the state of
California to serve the educational and
informational needs of state-funded education
and prevention programs. The mission of the
California AIDS Clearinghouse is to provide
appropriate and sensitive services to education
and prevention programs and to testing sites
funded by the Office of AIDS, California
Department of Health Services. In addition,
the Clearinghouse has the responsibility to
promote understanding and communication and
involve all members of the community in
improving the quality of HIV/AIDS
educational materials.
Funding
The California AIDS Clearinghouse receives
all of its funding from the Office of AIDS,
California Department of Health Services. In
1993, the first year of a 3-year contract, the
Clearinghouse had an operating budget of
$800,000. The Director of CAC is responsible
for writing grant applications.
Staffing
The California AIDS Clearinghouse has eight
staff members: a director, an assistant director,
a health educator, a materials coordinator, two
information specialists, a director of services,
and an administrative assistant. CAC also has
an AIDS Advisory Council which is composed
of community members who are invited to
serve 26-month terms. The Council advises
In 1993, the California AIDS Clearinghouse
became a project of the Gay and Lesbian
Community Service Center in Los Angeles,
which had been operating the Computerized
AIDS Information Network (CAIN) since
1984. CAIN now serves as one of the outreach
programs of the California AIDS
-44-
CAC staff on policy and resources, reviews
CAC materials, edits one of CAC’s
publications, and coordinates community needs
assessment.
available to the general public to use or
photocopy at the library.
Electronic access to the resource library is
provided through CAIN, which is available to
all state contractors and accessible, for a small
fee, to the public through DELPHI, a
commercially available online network.
Scope of Services
CAC serves 147 state-funded, contractor-run,
education and prevention programs that
distribute information in communities
throughout California. An average of 100
contractors each month receive assistance from
CAC. The communities served by these
contractors represent the diversity of the
population of California. CAC reaches more
than 6,000 people each month through its
electronic bulletin board, CAIN. CAC
provides comprehensive access to information
on all aspects of HIV infection and AIDS with
an emphasis on health education and
prevention materials.
Needs Assessment and Evaluation
CAC conducts regular assessments of its
contractors' information needs in order to
develop better materials for them. Each AIDS
Advisory Council member is assigned a group
of local education and prevention contractors
with whom they develop ongoing relationships.
Council members solicit feedback about CAC
materials and services from the contractors.
CAC tries to find connections between this
feedback and contractor use of CAC materials.
The clearinghouse also produces HIV/AIDS
prevention and education materials to be used
by the AIDS education and prevention
programs funded by the state of California.
CAC works closely with these programs to
identify the needs of their communities and to
produce materials that are specifically targeted
to meet them. CAC provides free bulk
distribution of a range of educational materials
including brochures, posters and other
customized materials.
Clearinghouse staff also facilitate roundtable
meetings in which the contractor and CAC
staff review the contractor's community,
examine the community’s record of use of
materials, and identify topics not covered by
the materials. The object of this meeting is to
produce new materials for the particular needs
of the contractor, and for the contractor to
learn about the purpose of existing materials.
This approach to needs assessment has been
very useful, not only in directing the
production of new materials, but also in
developing and maintaining effective
communication between the clearinghouse and
its clients.
CAC produces the HIV Educator, a quarterly
journal on health education topics, and the
Technical Bulletin, a one-page publication
printed every 6 weeks, as well as special
research papers that are produced on an asneeded basis (see Appendix 6).
The CAC Collection
The CAC Resource Center maintains a walk-in
library of videos, periodicals, and books,
which circulate among the education and
prevention programs and are available for
CAC maintains a resource center of videos,
books, and manuals, which circulate among
education and prevention programs and are
- 45 -
onsite use by the Los Angeles community. The
California AIDS Clearinghouse stores the bulk
of its collection in an electronic library
available through the Computerized AIDS
Information Network (CAIN). The electronic
library is divided into 4 databases: a research
file of primarily education and prevention
articles on behavior from mainstream and
community-based literature; a directory file of
organizations and events; a materials file of
educational brochures and pamphlets; and a
forum file that includes a variety of resources
and information not contained in the other
Ties. These files are indexed with a specialized
classification system based upon the the
National Library of Medicine’s MeSH system.
CAC has modified MeSH to include language
that is more familiar and accessible to the
non-professional searcher.
subject files. The online services searched
include the CDC National AIDS
Clearinghouse's NAC ONLINE, NLM's
MEDLINE, Associated Press News, and many
community bulletin board systems.
One of the challenges CAC encounters in
acquiring new materials is redundancy in
coverage of the same information. Data
reported by a primary source is often
published and discussed in many other
publications, often causing confusion. CAC
has dealt with this problem by posting all the
publications for a month, and then removing
duplicates and leaving only the original source.
Networking
CAC works closely with the local community
to share its resources. It strives to bring the
information to the user by placing access
terminals in public settings, such as the West
Hollywood Public Library HIV Information
Center (see page 64) a Los Angeles pharmacy,
and a local hospital. Patrons using these
terminals can access CAC’s electronic library
on line. CAC supports the local HIV/AIDS
community by donating duplicate copies of its
materials to the West Hollywood Public
Library. Staff are formally affiliated with the
American Public Health Association and
informally affiliated with other organizations;
this gives them opportunities to further develop
their professional skills by attending seminars
and conferences sponsored by these groups.
Getting Materials into the Collection
CAIN is the clearinghouse’s main resource to
acquire materials. Information about new
materials is received daily both electronically
through online searches and in print format
through the mail. CAIN staff review AIDS
journals and newsletters, publishers’ catalogs,
and materials produced by state contractors.
This material is scanned into an electronic
format and added to the electronic library
collection. CAIN actively identifies and
acquires information by doing regular searches
on over 25 databases each month. This
information is downloaded into one of CAIN’s
- 46 -
The Friends Project
Chowchilla, California
Person Interviewed: Jay Eastman, Project Coordinator
Date of Interview: March 1994
Project Highlights:
Correspondence club for persons with HIV infection and AIDS
Medical research service
Background and Mission
generated from private donations and 12
percent from grants
The Friends Project was started by an
individual in 1991 as an independent
correspondence club for people with AIDS and
concerned others. In response to the needs of
its community, the Friends Project has
expanded the scope of its services to include
research and publications. The Friends
Project’s mission is to "...help resolve the
feelings of social isolation that have so
profound an effect on people with AIDS." In
addition to matching its clients with pen pals,
Friends provides access to comprehensive
information on HIV/AIDS.
The Friends Project operates with an all
volunteer staff. These include the project's
coordinator, who was a pastor before starting
the project; two consulting health care
providers, a clinical psychologist and a
physician; a membership manager; and an
administrative assistant. Each of the volunteers
works between 5 and 10 hours a week, with
the exception of the coordinator who averages
12-hour days, and works 7 days a week.
Funding
Scope of Services
The Friends Project operates on an annual
budget of approximately $3,400. Forty percent
of the project’s funding is generated by
membership dues, which range from $6-12
per year according to ability to pay. Dues are
waived for those who cannot afford them.
Forty-eight percent of the Project’s funding is
The Friends Project has 430 members, many
of whom are gay men. Forty-six percent of the
members are HIV positive. The remainder
includes friends and family of HIV-positive
persons, health care providers and others with
Staffing
nursing and social work backgrounds.
- 47 -
The project organizes a correspondence club
that puts PWAs in contact with each other or
other supportive peers. The project produces
an 8-12 page newsletter. The Survivor, which
comes out 10 times a year, and various
brochures on AIDS-related subjects, which are
distributed for the cost of a self-addressed
envelope (see Appendix 6). The project
provides a medical research service that
enables members to supplement information
from their primary care providers with
information from Friends Project consulting
health care providers. Staff take calls from
members 4 hours a day and provide referral
information for legal, medical, and housing
issues.
The Friends Project’s Collection
The project maintains a research collection that
is used by staff to respond to members'
questions. The collection consists of medical
texts recommended by the consulting health
care providers, 8-12 newsletters acquired
through exchange agreements with other
ASOs, a listing of AIDS-related government
publications as they are posted on the CDC
National AIDS Clearinghouse’s NAC
ONLINE, and a collection of articles,
pamphlets, and brochures that come in the
mail as a result of the project’s inclusion on
many mailing lists. The Friends Project has
access to many more resources than it has on
site through its use of NAC ONLINE, HNS
HIVNET, and the National Library of
Medicine's (NLM's) database, AIDSLINE—
three free electronic sources of AIDS
information.
The project also maintains MEDIC, a database
of information about treatment of HIV
infection and AIDS. The database is available
on HNS HIVNET.
Needs Assessment and Evaluation
Staff organize information on shelves and in a
file cabinet stored in a linen closet.
Information is arranged according to an
in-house classification system that divides the
material into 26 topic folders. The listing of
the topics is cross referenced to allow for
comprehensive access to information (see
Appendix 5). For example, the "Survival" file
reminds the searcher to check the "Lifestyles"
file as well.
The Friends Project does a thorough needs
assessment of its membership through an
enrollment form sent out to each new member.
The form requests information about the
member's psychological, medical, and income
status. This information is used to make
suitable pen pal connections for each new
member and to tailor services and programs to
the needs of the membership. The Friends
Project distributes an annual evaluation form
through its newsletter that asks members for
feedback about project services. Staff has
found that the membership is responsive if the
questionnaire is short and user-friendly. This
evaluative tool has been useful in directing the
project’s attention toward the services most
valuable to the membership (see Appendix 1).
The project also maintains an electronic library
of medical information in its MEDIC database,
which it updates and distributes regularly on a
number of electronic bulletin boards.
Getting Material into the Collection
According to staff, the project is "able to
generate information on medical topics with
- 48 -
our own materials and personnel. However,
we’re atypical—having a physician on call, a
carefully-chosen shelf of recent reference
books, an accumulation of recent medical
journals, good computer software for searching
what’s becoming a good medical data
collection on disk, and other such resources."
The project identifies information online using
NAC ONLINE, "which allows for quick,
no-cost access to almost everything that might
be needed. NAC ONLINE lends itself to
distribution with its downloading capabilities
and policies. HNS HIVNET has a smashing
section of downloadable periodicals and
articles. It’s a good source for tidbits for the
newsletter." Still more information has been
identified with the help of the local reference
librarian. "It’s a good move if you can meet
the reference person at the local library, and
enlist his or her support. They have some nifty
resources all their own."
-49-
The project also receives many donations of
textbooks and subscriptions from volunteers,
members, and other people interested in
supporting its efforts. Project Coordinator Jay
Eastman explains how the project's collection
has grown through contact with other
organizations: "At first all our information on
alternative therapies came from newsletters
like ATN and NAC ONLINE’s AIDS Daily
Summaries and similar sources. Then I was
able to start a dialog with Project Inform, and
then we started getting fact sheets and articles
from the Carl Vogel Foundation."
Networking
The Friends Project depends upon electronic
bulletin boards to maintain working
relationships with other AIDS service
organizations. Through NAC ONLINE and
HNS HIVNET, the Project is able to ask and
respond to questions and distribute its
resources at a national level.
The Hemophilia and AIDS/HIV Network
for the Dissemination of Information (HANDI)
New York, New York
Person Interviewed: Elaine Wells, Project Director
Date of Interview: April 1994
Project Highlights:
Targets HIV/AIDS information needs of people with hemophilia
Publishes four newsletters
Developed in-house classification system for collection
Maintains electronic catalog of materials
Background and Mission
Staffing
HANDI, a project of the National Hemophilia
Foundation (NHF), was founded by a
cooperative agreement between the Bureau of
Maternal and Child Health of the Health
Resources and Services Administration
(HRSA), and NHF in 1989 in response to the
hemophilia community’s increasing need for
information about HIV/AIDS. HANDI’s
mission is to provide health education and risk
reduction information about HIV/AIDS and
hemophilia to people with hemophilia, health
care providers, and the general public.
HANDI has a staff of six full-time positions
and one half-time position. These staff
members include the director, an information
services coordinator, a library services
coordinator, a publications coordinator who
works half time, an information specialist, a
secretary, and an administrative assistant.
Scope of Services
HANDI provides information on all aspects of
HIV, including HIV treatment issues,
psychosocial aspects of living with HIV and
hemophilia, legal and insurance issues, and
referrals to local hemophilia organizations, and
treatment centers and other CBOs. The
project’s target audience is the 20.000 people
in the United States with hemophilia (70% of
whom are HIV positive) and their families, the
300 hemophilia treatment centers where people
with hemophilia receive comprehensive care.
Funding
HANDI receives all its funding from HRSA’s
Bureau of Maternal and Child Health. In 1993,
its budget was $567,000. Each year HANDI
must reapply for the funds; the application
process is coordinated by the National
Hemophilia Foundation.
- 50 -
the 59 NHF chapters and other hemophilia
organizations nationwide, health care
providers, and the general public.
via the publication. The 4 percent response
rate, high for a mail survey, indicated strong
support of the newsletter. This information has
been useful in justifying the continued
investment of resources in the publication (see
Appendix 1).
The project responded to approximately 8.000
requests for information in 1993. HANDI
provides free information to the public,
although it is considering instituting fees for
commercial organizations, such as
pharmaceutical companies and law firms.
HANOI’S Collection
HANDI has office space at the National
Hemophilia Foundation. Their materials
collection is housed in one room on shelves
and in vertical files.
Staff provide ready reference, research, and
referral services to their patrons who access
HANDI by calling a toll-free telephone
number. Information specialists research,
collect, and mail out articles, brochures,
referrals, and other information to patrons.
The HANDI collection consists of books,
periodicals, videos, brochures and pamphlets
and government publications. (See Appendix 2
and Appendix 3.) Because it is not a lending
library, the books are mostly reference works
and are used to support the research efforts of
the information specialists.
HANOI produces four publications: the HIV
Treatment Information Exchange, a quarterly
summary and index to information published
in other community-based newsletters that is
mailed out to 6,600 subscribers; the
Hemophilia Information Exchange, a monthly
summary and index of materials published in
blood industry publications that is mailed to
100 subscribers; the HANDI Quarterly, a free,
topic-specific newsletter mailed to 3,700
readers; and the HANDI Information Center
Update, a free monthly news brief sent to 800
readers (see Appendix 6).
The mainstay of the library collection is the
vertical file of photocopied articles from
journals and newsletters, CBO-produced
pamphlets and brochures, government
documents, press releases, and information
from pharmaceutical companies. Information
specialists use this collection to respond to
queries. When more information is needed
than is held in the collection, the library
services coordinator searches databases to
identify additional sources. The National
Library of Medicine’s MEDLINE is the main
source, but staff also use other databases,
which they access through the DIALOG
Online Information Services.
Needs Assessment and Evaluation
HANOI was created in direct response to the
hemophilia community’s expressed need for
information. The project conducts ongoing
needs assessment by noting which topics are
being requested by patrons and by recording
feedback received from the numerous NHF
committees on which HANOI’S director
serves. The evaluation are focused on
particular products. For example, a recent
survey of newsletter readers was distributed
The books and vertical file collection are
organized by subject according to a
classification system devised for the HANDI
collection. This classification system is
constantly evolving in response to the changing
nature of the epidemic (see Appendix 5).
- 51 -
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Videos are shelved separately in order of
acquisition, with an alphabetized title listing as
a finding aid. Mainstream journals are shelved
in alphabetical order. CBO newsletters are
filed in another vertical file in alphabetical
order. HANDI maintains an electronic catalog
of its materials. Each item is recorded and
indexed using the classification system by
which things are physically arranged.
current information becomes obsolete creates a
need to check all sources all the time.
HANDI’s response to this challenge is to focus
a great deal of energy on literature searches
and the use of online sources, and to check
regularly with other AIDS information
specialists about resources.
Getting Materials into the Collection
HANDI networks nationally through the CDC
National AIDS Clearinghouse’s NAC
ONLINE, through which staff contribute and
receive advice and information from other
AIDS information dissemination projects. The
librarian is a member of both the Special
Libraries Association and the Medical Library
Association, which help her stay abreast of
information systems and issues relevant to the
AIDS information arena. The library
participates in a local consortia of medical
libraries that provide interlibrary loans to its
members. HANDI staff have found
conferences and meetings to be very useful,
both as a source of new techniques and
information, as well as an opportunity for staff
to see how others are handling similar work.
Networking
HANDI acquires a great deal of information
from the journals, newsletters, and other
publications to which it subscribes. Staff
also conduct subject searches on NLM’s
MEDLINE and other databases to identify new
materials, which are then acquired through
interlibrary loan. Publisher’s catalogs, word of
mouth, and news stories are also major sources
for new information.
Acquiring useful information is a challenge
because staff members must refer to so many
sources, yet are still not sure that all pertinent
resources have been identified. The rate at
which new information is produced and
-52-
Monroe Community College (MCC) AIDS Resource Center
Rochester, New York
Person Interviewed: Paul Tantillo, Librarian
Date of Interview: March 1994
Project Highlights:
AIDS library within a community college
Project benefits from assistance of community college librarians
Subject file arrangement based on language of patron requests
Background and Mission
The library is able to operate on such limited
funds due to its relationship with the Monroe
Community College Library, which provides
the center with space and support in acquiring,
cataloging, and circulating materials. The
AIDS Resource Center librarian recently began
writing grant applications to pursue private
monies in order to supplement county funds.
One of these proposals has generated $400 in
1994 to acquire community-based literature.
The librarian uses the CDC National AIDS
Clearinghouse’s Funding Database on NAC
ONLINE and a locally-produced listing of
AIDS funding sources to identify new sources
of funding.
The Monroe Community College AIDS
Resource Center in Rochester, New York, is a
public access library which began operation
in 1988 under the auspices of Monroe
Community College (MCC). The center was
founded by the Rochester Task Force on
AIDS, a coalition of AIDS service organ
izations, as part of its five year plan to
provide informational support for AIDS
education in the Rochester area. Monroe
Community College agreed to support the
center by providing space and technical
support. The AIDS Resource Center’s mission
is to provide HIV/AIDS information resources
to all county residents with a special emphasis
on educators.
Staffing
The Resource Center is maintained by one
half-time professional librarian who receives
occasional assistance from part time students in
work/study programs at Monroe Community
College. Again, the center is able to operate
with such a small staff because of the
contributions of MCC librarians who help with
Funding
The AIDS Resource Center is funded by
Monroe County, which allocates $12,000
annually to cover the costs of purchasing
materials and a half-time librarian’s salary.
- 53 -
acquiring materials, and handle all the
work associated with cataloging and circulation
of materials.
3) identifies the need for assistance by the
librarian; 4) categorizes the topic of research;
5) asks patrons if they found what they
needed; and 6) solicits suggestions about how
the center could be more useful. Although
comments tend to be positive, the surveys have
also been a good source of constructive
criticism. The surveys are most useful in
generating quarterly and annual statistics that
help justify the library's existence (see
Appendix 1).
Scope of Services
The AIDS Resource Center functions as a free
library open to the public on a walk-in basis.
The center serves the 350,000 citizens of
Monroe County and the 12,000 members of
the Monroe Community College community.
Its patrons are primarily educators, health
care providers, and students. In 1993,
services were provided to approximately
420 patrons.
The AIDS Resource Center
Collection
The collection emphasizes psychosocial rather
than clinical subjects. It includes pastoral
materials, biographical accounts of people
living with AIDS, and materials that are
targeted to specific communities, such as
women, children, and minorities.
The AIDS Resource Center is housed in a
separate room of the Monroe Community
College library. Although space is limited,
there is seating for six, including an easy
chair, study carrel, and computer work station.
Many materials are available for loan, and
others can be photocopied at the center. The
library provides ready reference and in-depth
research services to educators, AIDS service
providers, and community members over the
telephone. Users of this service pick up their
materials at the library or receive them by fax
or mail.
The AIDS Resource Center has a circulating
collection of 367 books, 31 journals, and 81
videotapes. These are cataloged with Library
of Congress (LC) subject headings used by
MCC and included in the MCC online public
access catalog, which is accessible statewide.
(See Appendix 2 and Appendix 3.) Although
the librarian is not satisfied that the LC
classification system is adequate because it
does not categorize AIDS materials in a way
that makes them easy to find by the center’s
patrons, the advantage of having the Monroe
Community College Library catalog the AIDS
Resource Center’s books and videos outweighs
the disadvantages of the LC system. The books
and videos are displayed on shelves.
Periodicals are arranged in alphabetical order
in binders on a separate set of shelves.
The AIDS Resource Center librarian functions
as an AIDS educator by speaking at Monroe
Community College and Rochester community
events.
Needs Assessment and Evaluation
The AIDS Resource Center conducts needs
assessment and evaluation studies through
patron surveys distributed by the librarian to
the majority of library patrons. The survey
form: 1) categorizes the patron; 2) records the
time the patron spent in the library;
The collection also contains articles and
brochures that are arranged by subject in a
vertical file and are available for patrons to
- 54 -
photocopy. The vertical file, which was
originally organized using LC subject
headings, is now arranged using an in-house
classification system. This system includes 90
subject headings that are based on the language
of patron requests. The goal is to arrange the
collection so that patrons not familiar with the
library or its cataloging system can find
materials with ease. A listing of the subjects
is available for the patrons. In order to make
the vertical file easier to use, it is divided
into a current file that includes the most
up-to-date information and an archival file that
contains information that has been withdrawn
from the current file (see Appendix 5).
A limited budget is the most challenging aspect
of acquiring information for the AIDS
Resource Center. Another challenge is the lack
of comprehensive review sources. A third is
finding information as opposed to data or
facts. “Library patrons crave digested
information, as opposed to data; this is often
very difficult to find,” says the center’s
librarian, Paul Tantillo. “Educators have a
sense that there’s something perfect out there,
some standard work, and don’t believe that it
doesn’t exist.”
Networking
The librarian maintains close ties with local
and regional AIDS communities by attending
monthly meetings of the Rochester Task Force
on AIDS; he is a member of the Task Force’s
Education Subcommittee. He also obtains
materials and other types of assistance on a
regular basis from ASOs. AIDS Rochester,
Planned Parenthood, the New York State
Library for the Blind, the Sexuality
Information and Education Council of the U.S.
(SIECUS), and HANDI are the AIDS
Resource Center’s most regular contacts. The
Center maintains ongoing relationships with
other AIDS information disseminators
nationally through its use of the CDC National
AIDS Clearinghouse's NAC ONLINE.
The librarian also produces pathfinders—
subject-specific research guides—to facilitate
research and to encourage patrons to use
HIV/AIDS resources in the AIDS Resource
Center and other relevant resources in the
Monroe Community College library collection
(see Appendix 8). The center’s online
resources, which are restricted for use by the
librarian, are NAC ONLINE, NLM’s
AIDS LINE database, and the Internet.
Getting Materials into the Collection
The center’s librarian identifies and selects
new materials by reading the library review
literature received from the MCC librarian;
scanning AIDS-specific periodicals; searching
the CDC National AIDS Clearinghouse
databases (see Appendix 11); looking at
references in articles on AIDS; and perusing
publishers’ catalogs. The Center has also used
OCLC’s First Search service to identify new
materials. Interlibrary loan services through
Monroe Community College allow the AIDS
Resource Center to easily acquire materials
from other libraries.
According to the AIDS Resource Center
librarian, a constant challenge faced by the
center is maintaining visibility in the
community. “Making sure people know we're
here’’ is an important issue; this is complicated
by the fact that the library is small. The
librarian explains, “I am in the paradoxical
position of knowing that more patrons will
mean less service for each patron....! feel
responsible for meeting the needs of the
- 55 -
present patrons adequately; therefore, I haven’t
made it a goal to triple usage because I know
that I would be tripling the frustration level of
the present patrons.” With this in mind, he
focuses on keeping educators aware of the
AIDS Resource Center by writing periodic
articles about the library’s services for the
local paper, maintaining a listing in local gay
publications, and distributing the library’s
holdings list at community events.
-56-
Seattle AIDS Information Bulletin Board Service (SAIBBS)
Seattle, Washington
Person Interviewed: Steve Brown, Project Director
Date of Interview: April 1994
Project Highlights:
A member of the AIDS Education General Information System (AEGIS), an electronic
bulletin board network
Provides online support group monitored by a volunteer
Will lend hardware/software to users if needed
Background and Mission
make that information available to anonymous
users in their own homes. SAIBBS provides
access to information on all aspects of AIDS
including medical, psychosocial, sociopolitical
and treatment issues (see Appendix 4).
The Seattle AIDS Information Bulletin Board
Service was established in 1989 by an
individual who felt that there was not enough
access to HIV/AIDS information in the Seattle
community, and who wanted to find a way to
provide access anonymously and at no cost to
the user. The founder, whose background was
in graphic design, began learning about
electronic bulletin board systems. He quickly
discovered that he could make information
available by developing such a system, leading
to his creation of the Seattle AIDS Information
Bulletin Board System (SAIBBS). SAIBBS is a
member of the AIDS Education and General
Information System, AEGIS, a national
network of bulletin board systems dedicated to
the principles of free and anonymous access to
current information. (See Appendix 9:
AEGIS).
Funding
The bulletin board operates on an annual
budget of approximately $2,100. The seed
money for the system came from a personal
donation by the founder. Current funding
comes from donations from users, Seattle area
organizations, and SAIBBS fundraisers held in
local establishments on a regular basis.
SAIBBS also receives considerable support
from individuals and organizations in the form
of donated hardware and software.
Staffing
The bulletin board is operated by one unpaid
staff person who works about 40 hours per
week and is assisted by nine volunteers who
The mission of SAIBBS is to ensure free
dissemination of AIDS information and to
- 57 -
work from home, moderating forums and
maintaining the system.
would like to see the system modified.
SAIBBS uses this feedback to make
adjustments in the categorization of files, and
to add new services and other mechanisms to
make it easier for users to access and
manipulate the system. For example, SAIBBS
added a late night support group in response to
requests from users for a support forum at an
hour of the night when many users typically
experience feelings of anxiety.
Scope of Services
The SAIBBS, which is targeted to persons with
HIV/AIDS, serves between 200-1,500 users a
month. Although the majority of users are
from the western Washington region, the
system is available to anyone, and calls are
received from all over the nation and the
world. Because use is anonymous, little is
known about the demographics of SAIBBS
users.
The SAIBBS Collection
SAIBBS provides access to hundreds of files
that include downloadable text of newsletters,
government reports, articles and abstracts from
the National Library of Medicine databases,
the AIDS Daily Summary from NAC ONLINE
and clinical trial directories. All files are key
word searchable, which means users can use
any subject term in which they are interested
to search for relevant materials.
SAIBBS provides 24-hour access to its
electronic library of HIV/AIDS information.
The library’s electronic format allows for a
vast information collection, which is easily
searched by subject. Many users take
advantage of the 24 hour access, searching the
board late at night. As part of its services,
SAIBBS offers an online electronic support
group which has been monitored by a Seattle
AIDS Support Group volunteer. The system
also offers public forums where users can
interact with each other openly, and provides
e-mail which allows users to interact privately.
Getting Materials into the Collection
SAIBBS acquires all of its information
electronically, by searching and downloading
from other electronic bulletin board systems.
About one-third of the information is received
from AEGIS, which uploads all its new files at
1:00 a.m. each night. Other information is
gathered by the project director, who regularly
peruses and downloads information from a
national selection of medical, library, hospital,
and government bulletin board systems.
SAIBBS offers technical support including the
provision of hardware and software to users
who are unable to acquire it themselves.
Recipients sign an agreement to return the
equipment when they no longer need it.
SAIBBS staff provide customized research on
specific issues that are not adequately covered
by the information in the electronic library.
Networking
Needs Assessment and Evaluation
SAIBBS is networked nationally with all
AEGIS affiliates and other bulletin board
systems and internationally through its
affiliation with the Global Education Network
on AIDS (GENA).
SAIBBS invites feedback from its users by
encouraging them to send the system operators
e-mail detailing their needs, problems they
have with the system, and ways in which they
- 58 -
Seattle Treatment Education Project (STEP)
Seattle, Washington
Persons Interviewed: Michael Auch. Administrator, and Ron Bills. Member of Board of Directors
Dale of Interview: April 1994
Project Highlights:
Provides telephone hotline service
Coordinates Scientific Review Committee to provide treatment information
Sponsors courses and community educational forums
Background and Mission
able to operate on a small budget is because of
its relationship with the Northwest AIDS
Foundation, which provides the project with
office space, phones, and administrative help.
The Seattle Treatment Education Project was
founded in 1988 by a group of HIV-positive
men who sought to promote HIV/AIDS
research and disseminate treatment information
to residents of the Seattle area. They were
inspired by the work of Project Inform in San
Francisco, and sought a means to make Project
Inform’s treatment information more readily
available to the Seattle community and to
supplement that information with resources of
their own. The project’s mission is to provide
information about a wide spectrum of HIV
treatment options, and to empower
HIV-infected people to take charge of their
health at the earliest possible stage.
Staffing
STEP is operated by highly committed
volunteers who serve on the project’s 10person board of directors and its Scientific
Review Committee. Volunteers also operate
the hotline and coordinate the Community
Educational Forums (see below). STEP hired
its first staff member in 1991. The program
now has two paid staff members, an
administrator whose background is
organizational psychology, and a treatment
specialist who is a registered nurse.
Funding
Scope of Services
STEP’S annual budget of $125,000 is
composed of money from Ryan White federal
funds, grants from the Northwest AIDS
Foundation, corporate donations, and its own
fundraising events. One of the reasons STEP is
STEP offers HIV/AIDS treatment information
and referrals to other organizations that pro
vide other kinds of HIV/AIDS services. The
project serves 7,500-8,000 people annually
- 59 -
through its educational forums and hotline.
Needs Assessment and Evaluation
STEP’S Treatment Hotline operates Mondays.
Wednesdays, and Fridays, from 1:00-5:00
p.m. It is staffed by volunteers who are trained
to answer HIV-related questions, mail out fact
sheets and other customized research materials,
and provide comprehensive referral
information to other community-based
organizations. The hotline responds to over
350 requests for information each month.
The project evaluates its services and assesses
the needs of its community through reader
surveys distributed as flyers in its newsletter.
The results of these surveys have informed the
project staff of the value of the newsletter and
encouraged them to expand the project's local
focus to provide services nationwide. STEP
also collects information by tracking and
categorizing hotline requests, and uses this
information to generate new fact sheets and
suggest research topics to the Scientific
Review Committee.
STEP coordinates a 15-20 member Scientific
Review Committee made up of Seattie-area
health care providers and community members
that produces information for the Treatment
Project and maintains a productive relationship
between the provider and consumer
communities.
The STEP Collection
STEP’S information collection contains
research-based materials for staff use in
answering hotline questions and preparing
articles for the newsletter. STEP subscribes to
a variety of community-based newsletters and
medical journals that are shelved along with
the project’s own fact sheets and newsletter, in
alphabetical order in the hotline office where
staff can easily access the information.
The project produces fact sheets offering
in-depth information on topics such as AZT.
PCP prophylaxis, and other treatment therapies
of interest to those infected with HIV. STEP
also produces a newsletter, STEP Perspective,
which is distributed to over 10,000
organizations and individuals. The 20-30 page
publication is authored by STEP’S Scientific
Review Committee and is published three
times a year, (see Appendix 6).
Getting Materials into the Collection
Staff acquire information by scanning the
periodical literature for treatment information.
STEP also generates its own information
through its Scientific Review Committee,
which meets regularly to discuss new and
ongoing treatment issues, review research, and
write articles. STEP is particularly interested
in identifying alternative treatment
information, which is less accessible to the
community, and uses the community-based
literature. Project Inform publications, and its
own Scientific Review Committee to identify
and develop this information.
STEP sponsors "The Health Management
Series/’ a six-week course designed to
empower individuals with HIV to manage their
treatment. Classes include "Taking Control of
Your Health,” "Antivirals,” "Alternative
Therapies,” "Advanced Nutrition,”
"Manifestations of HIV,” and "Opportunistic
Infections.” STEP offers the series four times
a year and enrolls 60 students per quarter in its
classes. STEP also sponsors regular
community educational forums two or three
times a year (see Appendix 7).
-60-
Networking
STEP works closely with the Seattle health and
education community through a local planning
committee that includes health care clinics, the
University of Washington and other colleges,
and many community based organizations. The
planning committee enables the organizations
to coordinate their work and avoid duplicating
services. STEP’S Scientific Review Committee
functions as a community forum because it
allows the project to maintain contact with and
solicit feedback from the health care and
consumer communities.
- 61 -
TeenAIDS Student Coalition
Washington, D.C.
Person Interviewed: Josh Rosenthal, Project Coordinator
Dale of Interview: April 1994
Project Highlights:
Student-run information dissemination program
Helps groups develop AIDS prevention materials for teens
Maintains a teen speakers bureau
Background and Mission
Funding
The TeenAIDS Student Coalition is a project
of the Washington Area Consortium on HIV
Infection in Youth (WACHIY), a membership
organization that serves as an advocate for
Washington area teens and adolescent
HIV/AIDS prevention service providers.
The Coalition was founded in the spring of
1993. Its mission is to educate and empower
Washington, D.C. metropolitan area teen
HIV/AIDS educators. By providing ongoing
support, information and resources to local
peer AIDS educators, the project plays
an advocacy role for young people who are
battling HIV and AIDS in their communities.
The project seeks to provide this support
directly to youths by supplementing systems
for adults. TeenAIDS emphasis is on creating
and providing prevention and education
materials.
TeenAIDS operates on an annual budget of
$5,000. This money is generated from a Ryan
White Youth Service award, private donations,
grants, and their own local fundraising events,
such as a "wheel-a-thon" and chili cook-off.
TeenAIDS is able to operate on a small budget
in part because it receives free office space and
support from WACHIY.
Staffing
TeenAIDS is staffed by approximately 20
volunteers, 4 of whom contribute an average
of 10 hours a week. They are advised by a
WACHIY staff member.
Scope of Services
In its first year of service, TeenAIDS served
over 7,500 students in the D.C. metropolitan
area. TeenAIDS provides a bulk mailing
-62-
service, conducting monthly mailings of up to
500 brochures and pamphlets to support
educational programs organized by student
organizations. TeenAIDS provides educational
workshops to groups that are working in the
fields of HIV/AIDS training for parents, peer
education training, and adolescent HIV
counseling and testing.
is needed by going through our materials and
seeing what areas we don’t have covered or
don’t have covered well. This is easy because
we always are having different students
evaluate our collection and giving
their advice on what we need to keep,"
says project director Josh Rosenthal.
Getting Materials into the Collection
TeenAIDS provides consultation services to
organizations that are producing HIV/AIDS
prevention and education materials for teens
and student populations. The group also
maintains a speakers bureau, which provides
teen speakers for events in the Washington,
D.C., metropolitan area. TeenAIDS also runs
a hotline for teens which is staffed weekdays,
from 3:00 - 9:00 p.m.
TeenAIDS worked with staff of the CDC
National AIDS Clearinghouse (CDC NAC) to
identify and acquire its initial collection. In
turn, the staff of TeenAIDS advises the
Clearinghouse on materials to acquire for
teens. TeenAIDS also worked with local
organizations, including the Whitman-Walker
Clinic and Children’s Hospital, to identify and
collect resources. Staff continue to use CDC
NAC’s Resources and Services Database and
Educational Materials Database to identify
organizations that produce materials for teens.
TeenAIDS provides comprehensive referral
information on all aspects of HIV/AIDS. The
project contributes to WACHIY’s quarterly
newsletter, which is mailed out to all
WACHIY members (see Appendix 6).
TeenAIDS staff report that it is a challenge to
find materials appropriate to teens, who are
highly susceptible to thinking they are not at
risk, and disinclined to read materials unless
they are very appealing to the eye.
Needs Assessment and Evaluation
Ongoing discussion with diverse groups of
students and adults helps keep TeenAIDS staff
aware of new and relevant HIV/AIDS issues as
they arise. The project sends out a user survey
with its mailings; results of the survey have
indicated a high level of satisfaction with the
services it provides.
Networking
The coalition provides materials and advice to
many local AIDS service organizations. It
makes use of materials produced by national
ASOs by identifying their resources through
NAC ONLINE and then contacting the
producers to acquire the materials.
The TeenAIDS Collection of Materials
The project’s information collection consists
mainly of brochures and pamphlets produced
by other community-based organizations.
Comic books, balloons, videos, and
newsletters are also included. Staff organize
materials on the shelf by subject (abstinence,
other STD’s, PWA’s, etc.) "We find out what
TeenAIDS works to maintain awareness of its
services by submitting articles to school and
local newspapers, sending regular mailings to
school guidance counselors, distributing flyers
at schools, and broadcasting public service
announcements on local radio stations.
-63 -
West Hollywood Library HIV Information Center
West Hollywood, California
Person Interviewed: Nancy Matoon, Librarian
Date of Interview: March 1994
Project Highlights:
HIV Information Center located in public library
Includes materials on artistic response to HIV/AIDS
Benefits from assistance of librarians in West Hollywood Public Library
Background and Mission
representations of the artistic response to
AIDS.
The HIV Information Center, a joint project of
the Los Angeles County Supervisor’s Office,
the Los Angeles County Public Library, and
the City of West Hollywood, has been serving
the West Hollywood community since 1989.
The center was created in response to a
petition to the City Council organized by one
citizen, who then garnered volunteer support
from West Hollywood AIDS service
organizations to create and staff the center.
The mission of the HIV Information Center is
to provide accurate, current, and accessible
materials regarding education, etiology,
prevention, transmission, epidemiology,
treatment methods, and legal issues related to
HIV/AIDS; to make these resources available
to the community in a non-judgmental,
friendly environment conducive to study and
privacy; and to offer reference and readers’
advisory service by expert library staff and
trained volunteers. The HIV Information
Center provides HIV prevention information,
as well as fiction, films, poetry and other
Funding
The HIV Information Center is a joint project
of Los Angeles County and the City of West
Hollywood, which contribute annual sums of
$3,000 and $5,000, respectively. The HIV
Center is able to manage on its limited budget
because of its relationship to the West
Hollywood Public Library, which provides it
with space and technical support in identifying,
acquiring, cataloging, and circulating
materials.
Staffing
The HIV Information Center is staffed by one
half-time librarian. The librarian is assisted on
a regular basis by one volunteer and
occasionally by other volunteers drawn from
West Hollywood community-based
organizations.
-64-
Scope of Services
section of the library as part of the Gay and
Lesbian Fiction Collection. The HIV Informa
tion Center materials are arranged on shelves
according to the Dewey Decimal classification
system which is used by the West Hollywood
Public Library. Periodicals, which are stored
in binders, are shelved alphabetically. The
Center maintains a small vertical file of article
clippings and conference materials.
The majority of requests for information
received by the center are for statistics and
information concerning the transmission of
HIV. The center serves approximately 5.000
users each year. Center patrons are primarily
people who are HIV positive and people with
AIDS, caregivers, students from the
Hollywood community, and inmates of the
California State Prison system.
Getting Materials into the Collection
The center offers onsite access to its
collection. Its collection of books, videos, and
audiotapes may be borrowed and a photocopier
is provided by the library so that patrons can
copy items from the periodicals and vertical
file collections, which do not circulate.
Staff offer reference service over the phone
and will mail materials to patrons upon
request. Prisoners are among the most frequent
users of these services.
In order to identify new materials for the
collection, the librarian scans Publishers
Weekly, American Libraries, publishers'
catalogs such as ETR Associates Catalog, gay
and lesbian publications, and the AIDS Book
Review JournaL which is produced by the
University of Illinois and distributed on the
Internet (@uicvm.uic.edu). Word of mouth
among members of the sci.med.aids, listserve
on the Internet is also an important source of
information (see Appendix 6).
The library provides free public access to
CAIN, the electronic bulletin board of the
California AIDS Clearinghouse. The librarian
is available to assist or perform searches on
CAIN, although she has found that more and
more patrons are able to perform searches on
their own. (See California AIDS Clearinghouse
profile on page 44 for more information
on CAIN.)
The librarian wishes that there were
a centralized review source for AIDS
information resources to make the process
of identifying and evaluating new materials
more efficient. Thus far, the center has not
faced any objections to its materials, a fact
which surprises the librarian who says that
censorship is often a problem in the public
library setting.
The West Hollywood HIV Information
Center Collection
Networking
The collection includes 1,000 fiction and
reference books, 12 newsletters produced by
community-based organizations, 100
videotapes and audiotapes, and access to
CAIN. All of the materials except fiction are
stored in one area of the public library branch
to facilitate use. Fiction is stored in another
As a part of the West Hollywood Public
Library, the HIV Information Center is able to
share its resources with other libraries and
their patrons through an online public catalog
and interlibrary loan. The center maintains ties
to community-based organizations by serving
as a referral site for organizations and their
clients and through the use of CAIN.
- 65 -
Maintaining public awareness of its existence
is a constant challenge to the West Hollywood
HIV Information Center in part due to its
status as a public library, which people do not
think of as a place to get information on
AIDS. The center maintains a high profile by
networking with local ASOs and making sure
that the library is included in all local
HIV/AIDS resource directories.
-66-
Project Addresses and Phone Numbers
Acronyms on this list are the ones we have used to refer to the projects throughout the text.
AIDS Information Center
U.S. Department of Veterans Affairs (VA)
4150 Clement St.
San Francisco, CA 94121
(415) 221-4810
Contact: Michael Howe, ext. 3305
Hemophilia and AIDS/HTV Network for the
Dissemination of Information (HANDI)
110 Greene St., Ste. 303
Soho Bldg.
New York, NY 10012
(212) 431-8541
(212) 431-0906 Fax
Contact: Elaine Wells, Project Director
AIDS Information Network (AIN) Library
32 N. 3rd St.
Philadelphia, PA 19106
(215) 922-5120
(215) 922-6762 Fax
Contact: Jean Hofacket, Director of
Information Services
Monroe Community College (MCC)
AIDS Resource Center
1000 E. Henrietta Rd.
Rm. 315, 3rd Fl.
Rochester, NY 14623
(716) 292-2309
Contact: Paul Tantillo, AIDS Resource
Librarian
AIDS Survival Project (ASP) Treatment
Library
44 12th St., NE.
Atlanta, GA 30309-3979
(404) 874-7926
(404) 872-1192 Fax
Contact: Dawn Averett-Doherty, Treatment
Resource Specialist
Seattle ADDS Information Bulletin Board
Service (SAIBBS)
1202 E. Pike, Ste. 658
Seattle, WA 98122-3918
(206) 323-4420 BBS line
Contact: Steve Brown, Project Director
Califomia AIDS Clearinghouse (CAC)
1625 N. Hudson Ave., Ste. 105
Los Angeles, CA 90028-9998
(213) 993-7415
(213) 993-7419 Fax
Contact: Russ Toth, Director
Seattle Treatment Education Project (STEP)
127 Broadway E., Ste. 200
Seattle, WA 98102
(206) 329-4857
(800) 869-7837
Contact: Michael Auch, Administrator
Ron Bills, Member Board of Directors
Friends Project (Friends)
PO Box 635
Chowchilla, CA 93610
(209) 661-5309
Contact: Jay Eastman, Project Coordinator
-67-
TeenAIDS Student Coalition (TeenAIDS)
PO Box 15577
Washington, DC 20003-5577
(202) 543-9355
(202) 543-3343
Contact: Josh Rosenthal, Project Coordinator
West Hollywood Library HIV Information
Center (W. Hollywood)
715 N. San Vicente Blvd.
West Hollywood, CA 90069
(310) 652-5340
(310) 652-2580 Fax
Contact: Nancy Matoon, Reference Librarian
- 68 -
Appendices
Appendix 1: Needs Assessment and Evaluation Surveys
AIDS information projects use surveys to identify the needs of their patrons, to evaluate the
effectiveness of their projects in meeting those needs, and to collect data about their patrons. The
following are samples of survey instruments used by some of the projects included in this report.
Organizations setting up information projects can use these surveys as models for designing their own
needs assessment and evaluation surveys.
I.
AIDS Information Network Library—Library Use Survey.
2.
Monroe Community College AIDS Resource Center—Library Use Survey.
3.
Hemophilia and AIDS Network for the Dissemination of Information (HANDI)—Reader
Evaluation Survey.
4.
Friends Project—Enrollment Needs Assessment Form.
AIDS Information Network of Philadelphia
{WELCOME! / !HOLA!
AIDS L2x*ry I SaXcGuarda | Cntiol Path AIDS Projcxf
PLEASE FILL OUT COMPLETELY AND RETURN TO FRONT DESK
DATE
TIME ARRIVED
TIME LEFT
AGENCY REPRESENTED (if any)
SCHOOL REPRESENTED ftf any)
YOUR ZIP CODE
AREA OF INTEREST/RESEARCH
YOUR AGENCY’S ZIP CODE
IF YOU WISH A LIBRARY CARD OR TO JOIN OUR MAILING LIST ASK AT THE FRONT DESK
DID YOU FIND THE INFORMATION YOU NEED? YES
HOW MANY PHOTOCOPIES DID YOU MAI
TODA'
HOW MANY BROCHURES/PAMPHLETS DID YOU
HOW MANY MAGAZINES/NEWSPAPE
/ NO
OK UP TODAY?
DID/YOU PICK UP TODAY?
ADDITIONAL COMMENTS
THE CITY OF PHI DEJ_P)HIA REQUIRES ALL AIDS SERVICE ORGANIZATION’S TO PROVIDE
STATISTICAL DAI AB IT THEIR USERS. PLEASE HELP US WITH THE FOLLOWING
INFORMATION./thANK YOU!
ETHNICITY
/
j
GENDER
AGE
White, not Hispanic /
Male
0-12
Black, not jspaDi
Female
13-24
Hispanic
Transgendered
24-34
Asian/Pacific Islander
35-44
American Indian/Alaska Native
45-64
Self Defined
65 or older
s:\p<oc«dur\fonn*\sit«vist
Monroe Community College
AIDS Resource Center
AIDS RESOURCE LIBRARY USER SURVEY
!S' ?/7i
to hs’p i.!S' better meet uour trformsttDr reeds.
Pi esse snswer Dniu the Questtens uuu sre ubmfertsbie witbi
aA/s
DATE
OCCUPATION
Educator or health
care provider
Organization.
.Student
School
.Community resident
TIME SPENT IN ARE
Hours
Minutes.
RESOURCES USED
Books
J o u rn a 1 s
Vi d e od i sc
P o s t e rs.
Research topic.
Did you find what you needed?.
Additional comments or suggestions:.
Videos_
Other.
Vertical file.
HIV Treatment
Information
Exchange
Reader Feedback Form
1. Have you received any previous copies of HTIE during the past 12 months?
□ Yes
□ No
2. Have you read the copies of HTIE that you have received?
□ Yes
□ No
3. If you have not read the copies of HTIE you have received, please explain why.
(If you have not read HTIE, do not continue further with the questionnaire, but please return it to NHF.)
4. How thoroughly do you read HTIE?
□ cover to cover
□ only the articles that interest me
□ only the headlines
□ Yes
5. Does HTIE meet your needs as a reader?
□ No
Please explain:
6. Please rank in order those sections of HTIE that you find most interesting
Announcements?
Newswire?
Excerpts?
7. Is the material contained in HTIE
□ Too technical?
□ Easy to understand?
8. Is the length/size of HTIE
□ Appropriate?
□ Too short?
□ Too long?
9. Do you use the bibliography to locate articles within HTIE?
□ Yes
□ No
10. Please share with us any ideas, suggestions or comments about HTIE.
Please return this form by Marchl 1,1994 to The National Hemophilia Foundation, 110 Greene Street, Suite
303, New York, NY 10012. Fax: 212-431-0906.
The National Hemophilia Foundation
THE NATIONAL
HEMOPHILIA FOUNDATION
February 7, 1994
Dear HTIE Reader:
Thank you for subscribing to HIV Treatment Information Exchange (HTIE). We
hope that this issue contains information that will help you to manage your health
in a positive way.
Now, the editors of HTIE need your help. In order to help us to better meet your
needs, we ask that you take a moment to fill out the survey on the reverse side of
this letter. We need your honest opinions. Please tell us how you feel about HTIE;
what you like, what you don't like, and what we can do to make this a better publi
cation for you.
Please mail or fax your survey back to The National Hemophilia Foundation at
your earliest convenience, but no later than March 11, 1994.
Thank you in advance for your input. Your opinion is important to us.
Sincerely,
G^nn Pierce, MD, PhD
President
PLEASE SEE REVERSE SIDE FOR SURVEY!
THE SOHO BLDG. • 110 GREENE ST • SUITE 303 • NEW YORK. NY 10012
TELEPHONE (212) 219-8180 • FAX (212) 966-9247
Friends Project
Enrollment Form
This first section is for our guidance only, and is TOTALLY CONFIDENTIAL, We truly
do respect your privacy, so hold back info if you wish, as long as you remember
we can serve you better if we know you better.
(We must have your last name
and address, of course!)
Phone
Last name
Mail address
If you’re not HIV- positive, please skip to the long line below,
tell us about your current living circumstances —
Otherwise, please
( ) alone ( ) with significant other ( ) with roommate ( ) with friends
( ) in hospice ( ) with family ( ) other
My general home situation is ( ) stable ( ) unsettled
I’ve told ( ) close family ( ) most relatives ( ) close friends ( ) all friends
( ) co- workers ( ) neighbors . .. that I am HIV+.
My close family is ( ) not ( ) somewhat ( ) fairly ( ) very ... supportive.
Close friends are
( ) not ( ) somewhat ( ) fairly ( ) very ... supportive.
My neighborhood is ( ) city ( ) suburb ( ) small town ( ) country.
My income is ( ) extremely low ( ) low but can manage ( ) fair or better,
I have ( ) much ( ) some ( ) not much trouble getting good health care.
During the last month or so, the words that describe my strongest emotions are:
I live
may be given in a general or specific way to prospecInformation below this line
'
tive pen pals.
BUT if you want a reply kept CONFIDENTIAL, just put parentheses
around it (like this).
Your age
- ( ) M
( ) F - First name
(If you’re under 18 years of age, please obtain signature
of parent/ guardian as indication of knowledge & consent:
If you could describe yourself in one or two dozen phrases or sentences to a
potential pen pal, what would you say?
We’d like a sense of your past and present
life, outlook on the future, your beliefs and priorities.
Your achievements, your
goals, qualities you admire in others, you name it. Please use a separate sheet of
paper for this, then come back here, ignoring any questions you answered in the des
criptive information.
Occupation or prior occupation(s)
Interests and hobbies
If you’ve tested HIV+, when were you first advised of positive results, and what’s
the general state of your health now?
This space for office use in assigning box number & noting forms sent to you.
2
If you don’t have HIV+ status or AIDS, what motivates your interest
to a person who’s affected by these conditions? Please be specific.
in writing
Any subject(s) you’d prefer not to discuss with correspondents?
Any subject(s) you’d especially like to discuss?
Is the sexual orientation, race, religion, age or gender of a potential friend im
portant to you, or would his/ her possible history of substance abuse matter? If
"yes," please explain:
Are vou incarcerated?
( ) Yes
( ) No ... Note:
PEN PAL welcomes incarcerated
people as members.
We respect them as fellow humans and expect the best of them:
That they will give of themselves to those to whom they write, asking nothing in re
turn.
And we ask members on the ’’outside" td join with us in giving incarcerated
members all we possibly can — encouragement, attentive care, and solidarity.
From whom did you hear of our service?
Our newsletter, the SURVIVOR,
is free to members. If you wish to receive it, we
may if necessary use an SASE supplied by you solely for the purpose of getting the
newsletter to you in a timely way. Please check here if that’s okay with you.
( )
Thanks for taking the time to give us a good picture of what you're like.
repay you by trying to find pen pals whose company you’ll really enjoy.
We ’ 11
For PEN PAL,
David Richardson
Membership Mgr.
(C) 1993 TPPP
If you are incarcerated, will your facility allow us to send stamped envelopes to you?
03
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Appendix 2: Periodical Titles
AIDS information projects depend upon periodical literature to keep the information in their
collections up to date. The following are examples of periodical titles subscribed to by some of the
projects in this report. Organizations setting up AIDS information projects can use these listings to
make decisions about subscriptions for their own collections.
1.
AIDS Information Network Library—Currently Received Serials.
2.
Monroe Community College AIDS Resource Center—Current Subscriptions.
3.
Hemophilia and AIDS Network for the Dissemination of Information (HANDI)—Serial
Holdings.
4.
AIDS Survival Project Treatment Resource Library—Subscriptions/Newsletters.
The CDC National AIDS Clearinghouse has a collection of more than 500 AIDS-related journals and
newsletters housed in the Clearinghouse’s two Resource Centers in Rockville, Maryland (800-4585231), and Atlanta, Georgia (404-982-0353). CDC NAC also maintains a database of information
about these periodicals; you can call the Clearinghouse for a free search of the Periodicals Database.
AIDS Information Network of Philadelphia
1
CURRENTLY RECEIVED SERIALS - APRIL 1994
Locations:
Serials Collection shelved in alphabetical order by title.
Other locations:
Book Collection
AIDS & TB Weekly Abstracts from Conference Proceedings.
The AIDS Crisis (SIRS Critical Issues Series), v.1-2
AIDS Law & Litigation Reporter (8.2b.C5)
AIDS Reference Guide
AIDS Weekly
Health (SIRS Series), v.1-4
Hospital Risk Management (97.12c.l.R6)
Refusal of Treatment Legislation (8.2.R45)
Sexuality (SIRS Series), v.1-4
CD-ROM Stations
AIDS and Education Worldwide
’Compact Library: AIDS
Display Racks (free copies)
Alive & Kicking
Art & Understanding
Au Courant
Critical Path AIDS Project
The Griot Press
Labyrinth
LifeTIMES 2
Medical Alert
PGN
Pennsylvania AIDS Law Report
Positive Plus
Treatment Desk
AIDS Therapies
AIDS Treatment News
AIDS/HIV Treatment Directory
Clinical Trial Directory, includes: Treatment Review
The Experimental Treatment Guide
Directory of Philadelphia Area HIV/AIDS Clinical Trials
New York State Directory of HIV/AIDS Clinical Trials
Treatment Issues
2
AAPHR Reporter. San Francisco: American Assoc, of Physicians for Human Rights.
ADA Policy & Law. Washington DC: Buraff.
Advance Data. Hyattsville, MD: National Center for Health Statistics.
The Advocate. Los Angeles: Liberation.
AICH Community Bulletin. New York: American Indian Community House.
*AIDS. Phila.: Current Science.
AIDS Action. London: Appropriate Health Resources & Technologies Action Group
(AHRTAG).
AIDS Alert. Atlanta: American Health Consultants.
Includes: AIDS Guide for Health Care Workers.
AIDS Analysis Africa. London: Africa Analysis.
AIDS & Public Policy Journal. Frederick, MD: University.
AIDS & TB Weekly Abstracts from Conference Proceedings. Atlanta: Charles
Henderson.
AIDS Bibliography. Bethesda, MD: National Library of Medicine.
AIDS Care: Psychological & Socio-Medical Aspects of AIDS/HIV. Oxford: Carfax.
AIDS Clinical Care. Waltham, MA: MA Medical Society.
The AIDS Crisis (SIRS Critical Issues). Boca Raton: Social Issues Resources Series.
AIDS Education & Prevention. New York: Guilford.
AIDS Funding Report. Silver Spring, MD: CD Publications.
AIDS Health Promotion Exchange. Amsterdam: Royal Tropical Inst.
AIDS Information Exchange. Washington DC: US Conference of Mayors (USCM).
AIDS Law & Litigation Reporter. Frederick, MD: University.
AIDS Law & Litigation Reporter Monthly Review. Frederick, MD: University.
3
AIDS Literature & News Review. Frederick, MD: University.
AIDS Medicine & Miracles. Boulder: AM&M.
AIDS Newsletter. London: CAB International, Bureau of Hygiene & Tropical Diseases.
AIDS Patient Care. New York: Mary Ann Leibert.
AIDS Policy & Law. Washington DC: Buraff.
AIDS Reference Guide. Washington DC: Atlantic Information.
Includes: Inside Report on AIDS (monthly summary, v.l)
AIDS Research and Human Retroviruses. New York: Mary Ann Leibert.
AIDS Statistical Summary. Harrisburg, PA: PA Dept, of Health.
AIDS Targeted Information. Baltimore: Williams & Wilkins.
AIDS Therapies. Atlanta: Charles W. Henderson.
AIDS Treatment News. San Francisco: John S. James.
Includes: AIDS Treatment News Service.
AIDS Update. Dallas: AIDS Resource Center.
AIDS Weekly. Birmingham, AL: Charles Henderson.
AIDS/HIV Treatment Directory. New York: AmFAR.
AIDSIine. Lawrenceville, NJ: Academy of Medicine of NJ.
AIDS/SIDA Network News. Washington DC: National Council of La Raza (NCLR)
AIDS Center / Centers for Disease Control and Prevention.
Alive & Kicking. Phila.: We the People.
American Journal of Diseases of Children. Chicago: American Medical Assoc.
American Journal of Public Health. New York: American Public Health Assoc.
The AmFAR Report. New York: American Found, for AIDS Research.
Antiviral Agents Bulletin. Rockville: Biotechnology Information Inst.
4
Archives of Pediatrics & Adolescent Medicine. Chicago: American Medical Assoc.
Art & Understanding. Albany: Art & Understanding.
Au Courant. Phila.: Au Courant.
BABES Talking. Seattle: BABES Network and the Northwest Family Center.
Being Alive. Los Angeles: Being Alive People With HIV/AIDS Action Coalition.
Bilingual: English-Spanish language.
BETA. San Francisco: SF AIDS Found. Bilingual: English-Spanish language.
The Body Positive. New York: Body Positive.
Briefing Paper. San Francisco: Project Inform.
*British Medical Journal.
Building Blocks. Roxbury, MA: Found, for Children With AIDS.
CA Selects: AIDS & Related Immunodeficiencies. Columbus: American Chemical Soc.
Calcutta House. Phila.: Calcutta House.
Canadian AIDS News: The New Facts of Life/SIDA: Realities. Ottawa: CPHA AIDS
Program. Bilingual: English-French language.
CPC HIV/AIDS Prevention Newsletter. Atlanta: Centers for Disease Control &
Prevention.
The Central African Journal of Medicine. Harare, Zimbabwe: Central African Journal of
Medicine.
The Challenger. Phila.: MACT (Men of All Colors Together).
Children With AIDS. Roxbury, MA: Found, for Children With AIDS.
Choice in Dying News. New York: Choice in Dying.
Christopher Street. New York: That New Magazine.
Clinical Trial Directory. New York: AIDS Treatment Data Network.
Includes: Treatment Review.
5
Clinical Trial Review. Now: Treatment Review.
Closing the Circle. Phila.: Circle of Care.
The Collaborative. Phila.: Mediation Program at Good Shepherd Neighborhood House.
The Common Factor. Stoughton, MA: Committee of Ten Thousand (COTT).
Common Sense About AIDS: The Education Resource. Atlanta: American Health
Consultants.
Community Connection. Phila.: University of PA / Program for Student-Community
Involvement.
Community Voices. Pauma Valley, CA: Indian Health Council.
Connections. San Francisco: National Catholic AIDS Network (NCAN).
Formerly: NCAN News.
Critical Path AIDS Project. Phila.: AIDS Information Network / Critical Path.
Crossroads. Phila.: American Friends Service Committee’s Bridges Project.
Current Opinion in Infectious Diseases. Phila.: Current Science.
Dateline: NIAID. Bethesda: National Inst, of Allergy & Infectious Diseases.
Directions. Phila.: CHOICE.
Directory of Philadelphia Area HIV/AIDS Clinical Trials. Phila.: PhiladelphiaFIGHT.
The Dooley News. Deptford, NJ: Dooley House.
D.V.T.C.D. Newsletter. Phila.: Del. Valley Tele-Communications for the Deaf.
The Exchange. San Francisco: National Lawyers Guild.
The Experimental Treatment Guide. New York: AIDS Treatment Data Network.
Family Life Educator. Santa Cruz, CA: ETR.
FDA Consumer. Rockville, MD: Food & Drug Admin.
FDA Medical Bulletin. Rockville, MD: Food & Drug Admin.
6
Focus: A Guide to AIDS Research & Counseling. San Francisco: AIDS Health Project.
Gamma Project Newsletter. Mont Albert, Victoria, Australia: Gamma Project.
Global AIDSnews. Geneva: World Health Organization / Global Programme on AIDS.
The Griot Press. Phila.: Griot.
Health (SIRS Series). Boca Raton: Social Issues Resources Series.
Health Care Action News. Washington DC: AIDS Action Council.
Health Care for Women International. London: Taylor & Francis.
Health Legislation and Regulation. Washington DC: Faulkner & Gray’s Healthcare
Information Center.
Heartlines. Fairfield, CA: Solano AIDS Task Force.
HERO. Baltimore: Health Education Resource Organization.
HIV Education Case Studies. Washington DC: US Conference of Mayors (USCM).
HIV Frontline. New York: Burroughs Wellcome / NCM.
HIV/AIDS Surveillance. Atlanta: Centers for Disease Control & Prevention.
HIV/AIDS Update. Harrisburg: PA Dept, of Health.
Hospital Risk Management: Forms, Checklists & Guidelines. Gaithersburg, MD: Aspen.
Human Rights. Chicago: American Bar Assoc. / Section of Individual Rights &
Responsibilities.
In the Wind. Minneapolis: National Indian AIDS Media.
Infectious Disease Alert. Atlanta: American Health Consultants.
Inside Report on AIDS. Washington DC: Atlantic Information Services.
Interaction. Washington DC: AIDS National Interfaith Network (ANIN).
Intergovernmental AIDS Reports. Washington DC: George Washington University /
Intergovernmental Health Policy Project.
7
JAMA: The Journal of the American Medical Association. Chicago: AMA.
The James White Review. Minneapolis: James White Review.
JANAC: The Journal of Nurses in AIDS Care. Phila.: Nurscom.
Journal of Acquired Immune Deficiency Syndromes. New York: Raven.
The Journal of Infectious Diseases. Chicago: University of Chicago.
Journal of the Physicians Association for AIDS Care (JPAAC). Chicago: PAAC
Formerly: PAACNOTES.
Journal of Women’s Health. New York: Mary Ann Leibert.
Journal Watch. Waltham, MA: MA Medical Soc.
KAIROS NEWS. San Francisco: KAIROS-Support for Caregivers.
The Lambda Update. New York: Lambda Legal Defense & Education Fund.
Labyrinth. Phila.: Labyrinth.
*The Lancet. Baltimore: Williams & Wilkins. North American ed.
LifeTIMES 2. Pittsburgh: Stadtlanders Drug.
MAC [Calendar]. Boston: Muticultural AIDS Coalition.
Medical Alert. Washington DC: NAPWA.
* Medical Letter on Drugs & Therapeutics.
*The Morbidity & Mortality Weekly Report. (MMWR). Waltham, MA: MA Medical
Soc.
MMWR: CPC Surveillance Summaries. Waltham, MA: MA Medical Soc.
MMWR: Recommendations & Report. Waltham, MA: MA Medical Soc.
MMWR: Summary of Notifiable Diseases. Waltham, MA: MA Medical Soc.
The National Report on Substance Abuse. Washington DC: Buraff.
8
National Women’s Health Report. Washington DC: National Women’s Health Resource
Center.
Natural Health. Brookline Village, MA: East West Partners.
Formerly: East West Natural Health-
The Network News. Washington DC: National Women’s Health Network.
Network Update. Vancouver, BC: Canadian HIV Trials Network.
*The New England Journal of Medicine. Waltham, MA: MA Medical Soc.
New Jersey AIDS/HIV Cases. Trenton: NJ State Dept, of Health CN 363.
New Jersey Women & AIDS Network News. New Brunswick, NJ: NJ WAN.
New York Native. New York: That New Magazine.
New York State Directory of AIDS/HIV Clinical Trials. New York: AmFAR.
Newsline. New York: PWAC NY (People With AIDS Coalition of New York).
Formerly:
PWA Newsline.
NIAID AIDS Agenda. Bethesda, MD: National Institute of Allergy & Infectious
Diseases.
Notes from the Underground. New York: People With AIDS Working for Health.
PAACNOTES. Now: Journal of the Physicians for AIDS Care (JPAAC).
PAWS Prints. San Francisco: Pets Are Wonderful Support.
Pediatric AIDS & HIV Infection. New York: Mary Ann Leibert.
The Pediatric Infectious Disease Journal. Baltimore: Williams & Wilkins.
Pennsylvania AIDS Law Report. Phila.: AIDS Law Project of Pennsylvania.
PGN. (Philadelphia Gay News) Phila.: Masco.
Philadelphia FIGHT Newsletter. Phila.: Community Research Initiative.
PHMC Directions. Phila.: Philadelphia Health Management Corp.
9
PLUS Voice, the Magazine About Life & HIV. Chicago: PLUS Magazine.
The Positive Approach. Atlantic City: South Jersey AIDS Alliance (SJAA).
Positive Plus. Bethlehem, PA: Consumer Committee, AIDS Services Center.
The Positive Side. Toronto: Community AIDS Treatment Information Exchange
(CATIE).
Positively Aware. Chicago: Test Positive Aware Network (TPA).
Positively Native Newsletter. Minneapolis: [Positively Native].
POZ. New York: Strubco.
Press Release WHO. Geneva: WHO Global Programme on AIDS.
Prevention. Emmaus, PA: Rodale.
Public Health Reports. Rockville: U.S. Public Health Service.
PWA Newsline. SEE: Newsline.
PWAlive. Minneapolis: PWAlive.
Quarterly Report: Acquired Immune deficiency Syndrome (AIDS). Phila.: AIDS
Activities Coordinating Office (AACO).
The Quilt News. Washington DC: Names Project Chapter of the National Capital Area.
Refusal of Treatment Legislation. New York: Choice in Dying.
Research Activities. Rockville, MD: Agency for Health Care Policy & Research
(AHCPR).
Research Alert. Phila.: Institute for Scientific Information (ISI).
Right-to-Die Law Digest. New York: Choice in Dying.
Rosebuzz. Collingswood, NJ: AIDS Coalition of Southern New Jersey.
The SafeGuard Volunteer. Phila.: AIDS Information Network.
10
SAMHSA News. Rockville: U.S. Dept, of Health & Human Services / Substance Abuse
and Mental Health Services Admin.
SAMJ: South African Medical Journal. Pinelands, SA: Medical Assoc, of South Africa.
San Francisco Sentinel. San Francisco: Ray Chalker.
Scandinavian Journal of Infectious Diseases. Oslo: Scandinavian University.
* Science.
Seasons. Oakland: National Native American AIDS Prevention Center.
Sexuality (SIRS Series). Boca Raton: Social Issues Resources Series.
SIDA Ahora. New York: PWAC NY (People With AIDS Coalition of New York).
Spanish language.
SIDAmerica. Washington DC: Panos. Spanish language.
SIECUS Report. New York: Sex Information & Ed. Council of the US (SIECUS).
Social Security Courier. Baltimore: Social Security Admin.
The Southern Africa Exclusive. London: Richard Hall.
State AIDS Reports. Washington DC: George Washington University /
Intergovernmental Health Policy Project.
State Reproductive Health Monitor. Washington DC: Alan Guttmacher.
TANews. Beaumont, TX: Triangle AIDS Network.
TB Weekly. Atlanta: Charles Henderson.
Teachable Moments. Phila.: Planned Parenthood Southeastern PA.
Technical Assistance Reports. Washington DC: U.S. Conference of Mayors.
Treatment Issues. New York: Gay Men’s Health Crisis (GMHC).
Treatment Review. SEE Clinical Trial Directory.
Treatment Update. Toronto: Community AIDS Treatment Information Exchange
(CATIE).
11
Update. Washington DC: AIDS Action Council.
Update: Newsletter of the Pittsburgh AIDS Task Force. Pittsburgh: PATF.
The Volunteer. New York: Gay Men’s Health Crisis (GMHC).
The Wall Street Journal. New York: Dow Jones.
The Washington Blade. Washington DC: Washington Blade.
Washington Memo. Washington DC: Alan Guttmacher.
The Western Journal of Medicine. San Francisco: California
Women & Health. Binghamton, NY: Haworth Medical.
Women Being Alive. Los Angeles: Being Alive.
World. Oakland, CA: Women Organized to Respond to Life-threatening Diseases.
WorldAIDS. Washington DC: Panos.
12
Professional Literature:
AIRS Newsletter. Tucson: Alliance of Information and Referral Systems.
ALCTS Newsletter. Chicago: ALA / Assoc, for Library Collections & Technical Services.
Bulletin of the Medical Library Association. Chicago: MLA.
Chronicle. Phila.: MLA, Philadelphia Regional Chapter.
Computers in Libraries. Westport, CT: Meckler.
Computerworld. Marion, OH: IDG.
Computerworld Client/Server Journal. [Marion, OH: IDG.]
The Electronic Library. Oxford: Learned Information (Europe).
Information & Referral: the Journal of the Alliance of Information and Referral
Systems. Joliet, IL: Alliance of Information and Referral Systems (AIRS).
Information Retrieval & Library Automation. Mt. Airy, MD: Lomond.
Information Technology and Libraries. Chicago: ALA / Library & Information
Technology Assoc.
INTERFACE. Chicago: ALA / Assoc, of Specialized & Cooperative Library Agencies.
Lambda Rising News. Washington DC: Lambda Rising.
Library Hotline. Newton, MA: Bowker.
Library Resources & Technical Services. Chicago: ALA / Assoc, for Library Collections
& Technical Services.
Library Systems Newsletter. Chicago: ALA / Library Technology Reports.
LITA Newsletter. Chicago: ALA / Library and Information Technology Assoc.
MLA News. Chicago: Medical Library Assoc.
MMWR: The Morbidity & Mortality Weekly Report. Atlanta: CDC.
MMWR: CPC Surveillance Summaries. Atlanta: CDC.
13
MMWR: Recommendations and Reports. Atlanta: CDC.
National Library of Medicine News. Bethesda, MD: NLM.
Nolo News. Berkeley: Nolo.
Publishers Weekly. New York: Cahners-Bowker.
RASP Update. ALA / Reference & Adult Div.
RQ. Chicago: ALA / Reference & Adult Div.
s:\holdings\magzines\seralph (03/21/94)
Monroe Community College
AIDS Resource Center
CURRENT SUBSCRIPTIONS
AIDS RESOURCE LIBRARY
Fall, 1993
AIDS
AIDS ALERT
AIDS & PUBLIC POLICY JOURNAL
AIDS BIBLIOGRAPHY
AIDS LITERATURE & NEWS REVIEW
AIDS PATIENT CARE
AIDS POLICY & LAW
AIDS REFERENCE GUIDE
AIDS SURVEILLANCE QUARTERLY UPDATE
AIDS TREATMENT NEWS
AIDS UPDATE (NYSDOH)
AIDS/HIV TREATMENT DIRECTORY
HIV SEROPREVALENCE
HIV/AIDS PREVENTION NEWSLETTER
HIV/AIDS SURVEILLANCE
MORBIDITY AND MORTALITY WEEKLY REPORT
PI PERSPECTIVE
RESOURCES: AIDS ROCHESTER
SEASONS
STEP PERSPECTIVE
Scattered holdings of other serial publications on the subject of AIDS are also
collected.
Wi? '~
aei the 'oTWU'iC pe^ocice’s.
SOD? -CSn 'vE
"HE COMMON -^CTOR
P;; E W E- ■_ \ P'i E
/’jij • bo rKLH'1 ■ — c uNDcr'-jr:
-'US; . i;/L ’ihWb
-OSiTiVELY AWARE
3 iDA AHURA
TREATMENT ISSUE3
HANOI
NHF Serials Holdings
AABB News Briefs
ACT News
AIDS Alert
AIDS Care
AIDS Clinical Care
AIDS Education & Prevention
AIDS Funding Report
AIDS Information Exchange
AIDS Letter
AIDSline
AIDS Medicines
AIDS Newsletter
AIDS Newslink
AIDS Policy and Law
AIDS Surveillance
AIDS Treatment Data Network
AIDS Treatment News
AIDS Treatment Politics
AIDS HIV Treatment Directory
AIDSFILE
ALERT
Alliance AIDS Housing Needs
American Journal of Nursing
American Journal of Pediatric Hematology Oncology
BETA
Being Alive
Body Positive
CCBC Newsletter
CDC AIDS Prevention Newsletter
Children with AIDS
Common Factor
Critical Path AIDS Project
Dateline: NIAID
Harvard AIDS Letter
Harvard AIDS Report
Hastings Center Report
Hemophilia HIV/Peer ACTION News
HIV Connect
HIV Frontline
HIV HOTLINE
Inside Report on AIDS
Intergovernmental AIDS Report
International Plasma News
Journal of Acquired Immune Deficiency Syndrome
JAMA
Journal of the Association of Nurses in AIDS Care
Lancet
Milbank Quarterly
MMWR
Nation’s Health
New England Journal of Medicine
NIAID Agenda
NIAID News
NJWAN News
PAACNOTES
Pediatric AIDS Foster Care Network Bulletin
Pediatric AIDS and HIV Infection
PI Perspective
PI Briefing Paper
Positive Living
Positively Aware
PWACNY Newsline
PWA Health Group Newsletter-Notes from the Underground
QUIPU
Seasons
Science
SIDAHORA
SID AMERICA
SIECUS Report
Step Perspective
Treatment Issues
Vancouver PWA
Wellspring
World AIDS
AIDS SURVIVAL PROJECT
TREATMENT RESOURCE LIBRARY
SUBSCRIPTKDNS/NEWSLETTERS/PERIODICALS
AIDS CLINICAL CARE
Massachusetts Medical Society
1440 Main Street
Waltham, MA 02154-01649
AIDS READER
SCP Communications
134 West 29th Street
4th Floor
New York, NY 10001-5399
AIDS SURVIVAL PROJECT NEWSLETTER
44 Twelfth Street
Atlanta, GA 30309
AIDS/HIV TREATMENT DIRECTORY
c/o AM FAR
733 Third Avenue 12th Floor
New York, NY 10017
AIDS TREATMENT NEWS
c/o John S. James
P.O.Box 411256
San Francisco, CA 94141
415-255-0588
ALIVE AND KICKING
425 South Broad Street
Philadelphia, PA 19147
215-545-6868 (Billy Blackwell)
BEING ALIVE
3626 Sunset Boulevard
Los Angeles, CA 90026
213-667-3262
BETA
c/o San Francisco AIDS Foundation
P.O.Box 2189
Berkeley, CA 94702
BODY POSITIVE
2095 Broadway
Suite 306
New York, NY 10023
212-721-1619
COMMON FACTOR (THE)
The Committee of Ten Thousand
583 Plain Street
Stoughton, MA 02072
CHRISTOPHER STREET
P.O.Box 1475
Church Street Station
New York, NY 10008
212-627-2120
CRITICAL PATH AIDS PROJECT
2062 Lombard Street
Philadelphia, PA 19146
DIGEST
155 E. 31st Street
Suite 20L
New York, NY 10016
FOCUS
USCF AIDS Health Project
P.O.Box 0884
San Francisco, CA 94143-0884
GMHC TREATMENT ISSUES
129 West 20th Street
New York, NY 10011
HEAL QUARTERLY
i
d
P.O.Box 1103
Old Chelsea Station
New York, NY 10113
HIV FRONTLINE
cJa NCM Publishers inc.
200 Varick Street
New York, NY 10014
I HEARD IT THROUGH THE GRAPE VINE (l.H.i.T.T.G)
C/O Stephen Korsia
AIDS Project Los Angeles
6721 Romaine Lane
Los Angeles, CA 90038
NAPWA MEDICAL ALERT
1413 K Street, NW.
Washington, DC 20005
202-898-0414
NIAID AIDS AGENDA
National Institute of Health
Bldg 31, 7A50
Bethesda, MD 20892
NOTES FROM THE UNDERGROUND
PWA Health Group
150 West 26th Street
Suite 201
New York, NY 10001
212-255-0250
PAAC NOTES
101 West Grand Avenue
Suite 200
Chicago, IL 60610
312-222-1326
PLUS VOICE
29 La Salle Street
Suite 1150
Chicago, IL 60603
F
POSITIVE LIVING
AIDS Project Los Angeles
6721 Romaine Street
Los Angeles, CA 90038
POSITIVELY AWARE
1340 West Irving Park Rd
Box 259
Chicago, IL 60613
PWA COALITION NEWSLINE
31 West 26th Street
New York, NY 10010
PWAIive
•2025 NiooHet Ave 3.
Minneapolis, MN 55404
SEARCH ALLIANCE
7461 Beverly Blvd
Suite 304
Los Angeles, CA 90036
THE ADVOCATE
P.O.Box 541
Mt. Morris, IL 61054-7847
3/0 €.
CU
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I
Appendix 3: Book and Audiovisual Titles
AIDS information projects include a variety of books and audiovisual materials in their collections.
The following are lists of the books and audiovisual titles held by some of the projects included in this
report. Organizations setting up information projects can use these lists to make decisions about
purchasing books and audiovisual materials for their own collections. Complete holdings lists for the
following projects are included in this appendix.
1.
Monroe Community College AIDS Resource Center.
2.
AIDS Survival Project Treatment Resource Library.
The Hemophilia and AIDS Network for the Dissemination of Information (HANDI) maintains an
extensive holdings list. To obtain a copy, contact HANDI.
Information about the CDC National AIDS Clearinghouse collection of books and audiovisuals can be
obtained by calling either of the CDC NAC Resource Centers, in Rockville, Maryland (800-4585231), and Atlanta, Georgia (404-982-0353).
AIDS RESOURCE LIBRARY
MONROE COMMUNITY COLLEGE
1000 East Henrietta Road
Building 2 - 315
Rochester, NY
14623
HOLDINGS LIST
1994
The AIDS Resource Library is located at Monroe Community College on the
third floor of the LeRoy V. Good Library and is open to the public during regular
library hours. This Library houses books, periodicals, videos and other
educational materials. There is both a circulating and noncirculating collection.
The Library is funded by the Monroe County Health Department.
Telephone: 716-292-2309
AIDS RESOURCE LIBRARY
BOOK HOLDINGS LIST
Advice for life: a woman's guide to AIDS risks and prevention. Christopher Norwood. 1st. 178p
New York: Pantheon Books, 1987.
RC607 .A26 N67 1987
After you say goodbye: when someone you love dies of AIDS. Paul Kent Fro man. 270p San
Francisco: Chronicle Books, 1992.
RC607 .A26 F748 1992
Against the odds: the story of AIDS drug development, politics & profit. Peter S. Arno, Karyn L.
Feiden. 314p New York: Harper Collins Publishers, 1992.
RA 644 .A25 A76 1992
AIDS. Anne Aaron and Iben Browning. 171 p Albuquerque, NM: Sapiens Press, 1988.
RA644 .A25 A27 1988
AIDS. Alan Edward Nourse. 128p New York: F. Watts, 1986.
RC607 .A26 N68 1986
AIDS: a Catholic call for compassion. Eileen P. Flynn. 99p Kansas City, MO: Sheed SWard,
1985.
RC607 .A26 F59 1985
AIDS: a guide for survival. Harris County Medical Society & Houston Academy of Medicine,
1987.
RC607 .A26 A254
AIDS: a manual for pastoral care. Ronald Sunderland, Earl E. Shelp. 1st. 76p Philadelphia:
Westminster Press, 1987.
BV4460.7 .S86 1987
AIDS - a moral issue: the ethical, legal and social aspects. Brenda Almond, editor. 186p New
York: St. Martin's Press, 1990.
RC607 .A26 A34523 1990
AIDS: a public health challenge: state issues, policies, and programs. Mona Rowe, Caitlin
Ryan, Constance Thomas. Washington, D.C.: U.S. Dept, of Health and Human Services,
Public Health Service, [1987].
RA644 .A25 R69 1987
AIDS: a self-care manual. Betty Clare Moffatt. 306p Santa Monica, CA: Los Angeles, CA:
IBS Press in cooperation with AIDS Project Los Angeles, 1987.
RC607 .A26 A27 1987
AIDS: Abstracts of the psychological and behavioral literature, 1983-1989. James M. Jones,
Jody L. Kerby, Christine P. Landry, editors. 2nd. 113p Arlington, VA: American
Psychological Association, 1989.
RC607 .A26 A34528 1989
AIDS Resource Library - BOOKS
-2-
AIDS action plan: five year agenda for Rochester and the Finger Lakes region. Rochester Area
Task Force on AIDS, Finger Lakes Health System Agency. 95p (various pagings) Rochester,
NY: The Task Force, 1987.
RA644 .A25 R6 1987
AIDS: an employees guidebook. James A. Klein. 84p Washington, DC: U.S. Chamber of
Commerce, 1988.
RA644 .A25 K55
AIDS and drugs. Nicholas Bevan. 62p New York: Franklin Watts, 1988.
RC607 A26 B48 1988
AIDS and families: report of the AIDS Task Force, Groves Conference on Marriage and the
Family. Eleanor D. Macklin, editor. 284p New York: Haworth Press, 1989.
RC607 .A26 A345553 1989
AIDS and intravenous drug abuse among minorities. 105p Rockville, MD: U.S. Dept, of Health
and Human Services, Public Health Service, National Institute on Drug Abuse, 1989.
RC607 .A26 A3454 1989
Aids and its metaphors . Susan Sontag. 1st. 95p New York: Farrar, Straus, Giroux, 1988.
RA644 .A25 S66 1988
AIDS and IV drug abusers: current perspectives. Robert Galea, Benjamin Lewis, Lori Baker,
editors. Owing Mills, MD: Rynd Communications, 1988.
RA644 .A25 A346 1988
AIDS and long-term care: a new dimension. Donna Lind Infeld, Richard Me K. F. Southby. 178p
Owings Mills, MD: National Health Pub., 1989.
RC607 .A26 A3474 1989
AIDS and other manifestations of HIV infection, 2nd ed. Gary P. Wormser, editor. 715p New
York: Raverr Press, 1992.
RC607 .A26 A3455535 1992
AIDS and patient management: legal, ethical, and social issues. Michael D. Witt, editor. 263p
Owings Mills, MD: National Health Pub, 1986.
RA644 .A25 A35 1986
AIDS and substance abuse: a training manual for health care professionals. Barbara G. Faltz,
Joanna Rinaldi. 100p San Francisco, CA: AIDS Health Project, University of California,
San Francisco, 1987.
R607 .A26 F3 1987
AIDS and the allied health professions. Joyce W. Hopp. 311p Philadelphia: F.A. Davis, 1989.
RC607 .A26 A345556 1989
AIDS Resource Library - BOOKS
-3-
AIDS and the church. Earl E. Shelp, Ronald Sunderland. 1st. 151 p Philadelphia: Westminster
Press, 1987.
BV4460.7 .S54 1987
Aids and the courts. Clark C. Abt, Kathleen W. Hardy, editors. 392p Cambridge, MA: Abt
Books, 1990.
KF3803. A54 A93 1990 ARL
AIDS and the health care system. Lawrence O. Gostin, editor. 299p New Haven: Yale
University Press, 1990.
RA644 .A25 A353 1990
AIDS and the hospice community. Madalon O'Rawe Amenta, editor. 197p New York:
Harrington Park Press, 1991.
RC607 .A26 A34564 1991b
AIDS and the law: a basic guide for the nonlawyer. Allan H. Teri. 180p Washington D.C.:
Hemisphere Publishing Corporation, 1992.
KF3803 .A54T47 1992
AIDS and the law: a guide for the public. Harlon L. Dalton. Scot Burris, editors. Yale AIDS Law
Project. 382p New Haven: Yale University Press, 1987.
KF38O3 .A54 A945 1987
AIDS and the law enforcement officer: concerns and policy responses. Theodore M. Hammett.
National Institute of Justice (U.S.). 80p Washington, DC: The Institute, Office of
Communication and Research Utilization, 1987.
HV7936.H4 H3 1987
AIDS and the nursing home. 109p Washington, D.C: American Health Care Association, 1987.
RC6O7 .A26 A34568 1987
AIDS and the public schools. Susan Hooper, Gwendolyn H. Gregory. National School Boards
Association. 55p Alexandria, VA: NSBA, 1986.
LB3418 .A35 H66 1986
AIDS and the third world. Panos Institute. Philadelphia: New Society Publishers, 1989.
RA644 .A25 A37 1989
AIDS and vision loss. Edwin Kiester, Jr.
1990.
RE65 .K54 1990
115p New York: American Foundation for the Blind,
AIDS and women: a sourcebook. Sarah Barbara Watstein, Robert Anthony Launch. 159p
Phoenix, AZ: Oryx Press, 1991.
RC607 .A26 W38 1991
AIDS Resource Library - BOOKS
-4-
Aids and your company: a report for employers. Larry Beresford. 66p Wall Township, NJ:
American Business Publishing, 1988.
RC607.A26 A28 1988
The AIDS benefits handbook: everything you need to know to get social security, welfare,
medicaid, medicare, food stamps, housing, drugs and other benefits.
Thomas P. McCormack. 257p New Haven: Yale University Press, 1990.
RC607 .A26 M38 1990
AIDS bibliography for 1981-86. Nancy Weissberg. 643pTroy, NY: Whitston Publishing Co.,
1988.
RC6O7 .A26 A3 1981/86
The AIDS book: creating a positive approach (a manual to assist people facing AIDS and other
life-threatening illnesses). Louise L. Hay. Santa Monica, CA: Hay House, 1988.
RC6O7 .A26 H395 1988
The AIDS bureaucracy. Sandra Panem. 194p Cambridge, MA: Harvard University Press, 1988.
RA644 .A25 P36 1988
The AIDS caregivers handbook. Ted Eidson, editor. 1st. 331p New York: St. Martin's Press,
1988.
RC6O7 .A26 A34572 1988
The AIDS challenge: prevention education for young people. Marcia Quackenbush, Mary
Nelson, Kay Clark, editors. 526p Santa Cruz, CA: Network Publications, 1988.
RC607 .A26 A345725 1988
The AIDS crisis: conflicting social values. Gary E. McCuen. 176p Hudson, Wl:
Gary E. McCuen Publications, Inc., 1989.
RA644 .A25 M3
AIDS demo graphics. Douglas Crimp, Adam Rolston. 141 p Seattle: Bay Press, 1990.
RA644 .A25 C75 1990
The AIDS Disaster: the failure of organizations in New York and the nation. Charles Perrow,
Mauro F. Guillen. 206p New Haven: Yale University Press, 1990.
RA644 .A25 P45 1990
AIDS, drugs, and prostitution. Martin Plant, editor. 213p New York: Tavistock/Routledge, 1990
RA644 .A25 A358 1990
AIDS education in the workplace: an educational guide for managers. San Francisco AIDS
Foundation. 67p San Francisco, CA. San Francisco AIDS Foundation, 1987.
RC607 ,A26 A276 1987
The AIDS epidemic: private rights and the public interest. Padraig O'Malley. 556p Boston
Beacon Press, 1989.
RA644 .A25 A3615 1989
AIDS Resource Library - BOOKS
-5-
AIDS: ethics and public policy. Christine Pierce, Donald Van DeVeer. 241 p Belmont, CA:
Wadsworth Pub. Co, 1988.
RA644 .A25 A362 1988
AIDS: etiology, diagnosis, treatment, and prevention. Vincent DeVita, Samuel Hellman, Steven
Rosenberg. New York: J.B. Lippincott, 1988.
RC607 .A26 A346 1988
The AIDS file: what we need to know about AIDS now! George Jacobs, Joseph Kerrins. 128p
Woods Hole, MA: Cromlech Books, 1987.
RC6O7 .A26 J33 1987
The AIDS health crisis: psychological and social interventions. Jeffrey A. Kelly, Janet S. St.
Lawrence. 205p New York: Plenum Press, 1988.
RC607.A26 K45 1988
AIDS, HIV, and school health education: state policies and programs 1990. Rolf Blank, et al.
142p Alexandria, VA: NASBE, 1990.
RA644.A25C6 1990
AIDS home care and hospice manual. Jeannee Parker Martin, Amme M. Hughes, Pat Franks.
2nd 233p San Francisco, CA: Visiting Nurses and Hospice of San Francisco, 1990.
RC607 .A26 M37 1990
A.I.D.S.: how & where to find facts & do research. Robert D. Reed. 43p Saratoga, CA: R&E
Publishers, 1986.
RC607 .A26 R45 1986
AIDS: how it works in the body. Lorna Greenberg. 64p New York: Franklin Watts, 1992.
RC607 .A26 G7 1992
AIDS in an aging sqciety: what we need to know. Matilda White Riley, Marcia G. Ory, Diane
Zablotsky, editors. 226p New York: Springer Pub. Co., 1989.
RA644 .A25 A36353 1989
AIDS in New York State: through 1991. New York State Department of Health. 195p Albany,
NY: State of New York, Department of Health, 1992.
RA644 .A25 A35 1991
AIDS in the mind of America. Dennis Altman. 1st. 228p Garden City, NY: Anchor
Press/Doubleday, 1986.
RC607.A26 A37 1986
AIDS in the workplace: legal questions and practical answers. William F. Banta. 257p
Lexington, MA: Lexington Books, 1988.
KF357O .B36 1988
AIDS Resource Library - BOOKS
-6-
AIDS in the world: a global update. Jonathan Mann, Daniel J. Tarantola, and Thomas W.
Netter, editors. 1037p Cambridge, MA: Harvard University Press, 1992.
RA644 .A25 A36358 1992
AIDS in the workplace: manual. Business Leadership Task Force of the Bay Area. San
Francisco AIDS Foundation. 53p San Francisco, CA: San Francisco AIDS Foundation,
1986.
RC607 .A26 A337 1986
AIDS information monitor: summary of national public opinion surveys on AIDS - 1986 through
1986. Susan Blake, Elaine Bratic Arkin. 275p American Red Cross, 1988.
RA644 .A25 B55 1988
AIDS information resources directory. Trish A. Halleron, Janet I. Pisaneschi. 1st. 192p New
York: American Foundation for AIDS Research, [1988].
RC607 .A26 A26 1988
AIDS information sourcebook 1991-92 3rd. H. Robert Malinowsky, Gerald Perry, editors. New
York: Oryx Press, 1988.
RA644 .A25 A345 1991
AIDS instructional guide, grades K-12. 170p Albany, NY: University of the State of New York,
State Education Dept., Bureau of Curriculum Development, 1987.
RA644 .A25 U5 1987
AIDS issues: confronting the challenge. David Hallman, editor. New York: Pilgrim Press, 1989.
RC6O7 .A26 A3476 1988
AIDS law: implications for the individual & society. Irving J. Sloan. New York: Oceana, 1988.
KF3803 .A54 S59 1988
AIDS legal guide. Abby R. Rubenfeld, Editor. Lambda Legal Defense & Education
Fund. 2nd pd.' completely rev. and expanded, (loose-leaf) Albany, NY: Lambda Legal
Defense and Education Fund, 1987.
KF480.5 .A5 A52 1987
AIDS: living and dying with hope: issues in pastoral care. Walter J. Smith. 184p New York:
Paulist Press, 1988.
BV4460.7 .S65 1988
AIDS ministry in the midst of an epidemic. Wendell W. Hoffman, Stanley J. Grenz. 304p Grand
Rapids, Ml: Baker Book House, 1990.
BV4460.7 H64 1990
AIDS 91 Summary: a practical synopsis of the Vll international conference. Philadelphia
Sciences Group. 348p Philadelphia, PA: Philadelphia Sciences Group, 1991.
RA 644 .A25 A278
AIDS Resource Library - BOOKS
The AIDS notebooks. Stephen Schecter. 166p Albany: State University of New York Press,
1990.
RC607 .A26 S37 1990
AIDS: opposing viewpoints. Lynn Hall, Tom Modi. 223p Opposing viewpoints series. St. Paul,
Ml: Greenhaven Press, 1988.
RC607 .A26 A34443 1988
AIDS: plague or panic? Oliver Trager, editor. 218p New York: Facts on File Publications,
1988.
RC6O7 .A26 A3487 1988
AIDS: policies and programs for the workplace. Kathleen C. Brown, Joan G. Turner. 305p
New York: Van Nostrand Reinhold, 1989.
RA644 .A25 B76 1989
AIDS: principles, practices & politics. Inge B. Corless, Mary Pittman-Lindeman, editors. 252p
New York: Hemisphere Pub. Corp, 1988.
RC6O7 .A26 A3488 1988
AIDS: psychosocial factors in the Acquired Immune Deficiency Syndrome. Gail Henderson
Baumgartner. 113p Springfield, IL: Thomas, 1985.
RC6O7 .A26 B38 1985
AIDS: public attitudes and education needs. The Roper Organization Inc., Gay Men's Health
Crisis. 124p New York: The Organization, 1991.
RC607 .A26 A6 1991
AIDS public policy dimensions. John Griggs, editor. 306p New York: United Hospital Fund of
New York, 1987.
RA644 .A25 A37 1987
The AIDS re ad er;-"a comprehensive discussion of acquired immune deficiency syndrome.
Penny S. Cass, Rita Munley Gallagher, editors. 132p Dubuque, IA: Kendall/Hunt Pub. Co.,
1989.
RC607 .A26 A34892 1989
AIDS reference guide: a sourcebook for planners and decision makers. Michael E. Carbine,
Michele Welsing, editor, (loose-leaf) Washington, DC: Atlantic Information Services,
1988-Updated monthly.
RA644 .A25 A376 1988
AIDS resource manual. New York State Dept, of Social Services. Albany, NY: Rockefeller
College Press, 1987.
RA644 .A25 N4 1987
AIDS: sexual behavior and intravenous drug use. Charles F. Turner, Heather G. Miller, Lincoln
E. Moses, editors. 589p Washington, DC: National Academy Press, 1989.
RC607 .A26 A36 1989
AIDS Resource Library - BOOKS
-8-
AIDS, sharing the pain: a guide for caregivers. Bill Kirkpatrick. 145p New York: Pilgrim Press,
1990.
RC607 .A26 K57 1990
AIDS: testing and privacy. Martin Gunderson, David J.Mayo, Frank S. Rhame. 241 p Salt Lake
City: University of Utah Press, 1989.
RC607 .A26 G86 1989.
AIDS: the burdens of history. Elizabeth Fee, Daniel Fox, editors. Los Angeles: University of
California Press, 1988.
RA644 ,A25 A32 1988
AIDS: the facts. John Langone. 1st. 247p Boston, MA: Little, Brown, 1988.
RC607 .A26 L36 1988
AIDS: the facts. John Langone. rev. and updated. 266p Boston: Little, Brown, 1991.
RC607 .A26 L36 1991
AIDS: the HIV myth. Jad Adams. New York: St. Martin's Press, 1989.
RC607 .A26 A3419 1989
AIDS: the literary response. Emmanuel S. Nelson. 233p New York: Twayne publishers, 1992.
PN771 .A64 1992
AIDS: the new workplace issues. AMA Management Briefing, updated. New York: American
Management Association, 1988.
RC6O7 .A26 A365 1988
AIDS: the second decade. Heather G. Miller, Charles F. Turner, Lincoln E. Moses, editors.
495p Washington, D.C.: National Academy Press, 1990.
RC607 .A26 A3642 1990
AIDS: the spiritual clilemma. John E. Fortunato. 156p San Francisco, CA: Perennial Library,
1987.
RC6O7 .A26 F67 1987
AIDS: the ultimate challenge. Elisabeth Kubler-Ross. 329p New York: Macmillan, 1987.
RC6O7 ,A26 K83 1987
AIDS: the women. Ines Rieder, Patricia Ruppelt, editors. 1st. Pittsburgh, PA: Cleis Press,
1988.
RC6O7 .A26 A3645 1988
AIDS today, tomorrow: an introduction to the HIV epidemic in America. Robert Searles Walker.
187p Atlantic Highlands, NJ: Humanities Press International, Inc., 1991.
RC607 .A26 W35 1991
AIDS Resource Library - BOOKS
-9-
AIDS: trading fears for facts (a guide for teens). Karen Hein. 196p Mount Vernon, New York:
Consumers Union, 1989.
RC6O7 .A26 H45 1989
AIDS: what does it mean to you? Margaret O. Hyde, Elizabeth Held Forsyth. Rev. and
expanded. 116p New York: Walker, 1987.
RC697 .A26 H93 1987
AIDS/HIV infection: a guide for nursing professionals. Jacquelyn Haak Flaskerud. Philadelphia,
PA: W.B. Saunders, 1988.
RC6O7 .A26 A3473 1989
AIDS Treatment News: issues 1 through 75, April 1986 through March 1989. John S. James.
522p Berkeley, CA: Celestial Arts, 1989.
RC6O7 .A26 J35 1989
Among friends: hospice care for persons with AIDS. Robert W. Buckingham. 1991 p Buffalo:
Prometheus Books, 1992.
RC607 .A26 B83 1992
And the band played on: politics, people, and the AIDS epidemic. Randy Shilts. 530p New
York: St. Martin's Press, 1987.
RA644 .A25 S48 1987
Beyond Love. Dominique Lapierre. 400p New York: Warner Books, 1991.
RC607 .A26 L3713 1991
The biology of AIDS. Hung Fan, Ross F. Conner, Luis P. Villareal. 200p Boston, MA: Jones
and Bartlett, 1989.
RC607 .A26 F35 1989
Blacks and AIDS: causes and origins. Samuel V. Duh. 153p Newbury Park, CA: SAGE
Publication§zT991.
RA644 .A25 D84 1991
Blaming others: prejudice, race, and worldwide AIDS. Renee Sabatier and Jon Tinker.
Washington Philadelphia, PA: Panos Institute New Society Publishers, c1988.
RC607 .A26 S22 1988
168p
Borrowed time: an AIDS memoir. Paul Monette. 1st. 342p San Diego, CA: Harcourt Brace
Jovanovich, 1988.
RC607 .A26 M66 1988
Caring for a loved one with AIDS: the experiences of families, lovers, and friends. Marie
Annette Brown, Gail M. Powell-Cope. 64p Seattle, WA: The University of Washington
Press, 1992.
RC607 .A26 B755 1992
AIDS Resource Library - BOOKS
-10-
Caring for persons with AIDS and cancer: ethical reflections on palliative care for the terminally
ill. John Tuohey. St. Louis, MO: Catholic Health Association of the United States, 1988.
RC607 .A26 T86 1988
Children, adolescents, & AIDS. Jeffrey M. Seibert, Roberta A. Olson, editors. 243p Lincoln, NE:
University of Nebraska Press, 1989.
RJ387 .A25 C45 1989
Children and AIDS the challenge for child welfare. Gary R. Anderson. 38p Washington, DC:
Child Welfare League of America, 1986.
RJ387 .A25 A53 1986
Children and the AIDS virus: a book for children, parents and teachers. Rosmarie Hausherr.
New York: Clarion Books, 1989.
RJ387 .A25 H38 1989
Color atlas of AIDS and HIV disease. Charles F. Farthing, Simon E. Brown, Richard Staughton,
editors. 2nd. 115p Chicago, IL: Year Book Medical Publishers, 1988.
RC6O7 .A26 C65 1988
Confronting AIDS: directions for public health, health care, and research. Institute of Medicine
(U.S. ) Committee on a National Strategy for AIDS. 374p Washington, DC: National
Academy Press, 1986.
RA644 .A25 I57 1986
Confronting AIDS on the campus and in the classroom: a guide for higher education. Jackie R.
McClain, Tom E. Matteoli. 222p Washington, DC: College and University Personnel
Association, 1989.
RA644 .A25 M32 1989
Coping with AIDS: facts & fears. Morton L. Kurland. Rev. and updated. 21 Op New York:
Rosen Pub. Group, 1988.
RC607 .A£6 K87 1988
Coping with aids: the public response to the epidemic. Charles F. Kettering Foundation, Public
Agenda Foundation. 44p Dubuque, IA: Kendall/Hunt Pub. Co, 1988.
RA644 .A25 C6 1988
Counseling and education for the prevention of AIDS. Jacalyn Lee. 161 p New York 1988.
RA644 .A25 L425
Counseling chemically depenaent people with HIV illness. Michael Shernoff, editor. 192p New
York: Harrington Park Press, 1991.
RC546 .0694 1911b
Covering the plague: AIDS and the American media. James Kinsella. 299p New Brunswick,
NJ: Rutgers University Press, 1989.
RA644 .A25 K56 1989
AIDS Resource Library - BOOKS
-11-
Courage to care: responding to the crisis of children with AIDS. Gary R. Anderson, editor. 416p
Washington, DC: Child Welfare League of America, 1990.
RJ387 .A25 C68 1990
Crisis at the front line: the effects of AIDS on the public hospitals. Dennis P. Andrulis. 93p New
York: Priority Press, 1989.
RA644 ,A25 A53 1989
CRISIS heterosexual behavior in the age of AIDS. William H. Masters Virginia E. Johnson.
Robert C. Kolodny. 1st. 243p New York: Grove Press, 1988.
RA644 .A25 M38 1988
Dancing against the darkness: a journey through America in the age of AIDS. Steven Petrow.
218p Lexington, MA: Lexington Books, 1990.
RC607 .A26 P48 1990
Developing AIDS residential settings: a manual. G. William Haskell. San Francisco, CA:
Visiting Nurses and Hospice of San Francisco. 1988.
RC607 .A26 D48 1988
A disease of society: cultural and institutional responses to AIDS. Dorothy Nelkin, David Willis,
Scott Parris, editors. 287p New York: Cambridge University Press, 1991.
RC607 .A26 D56 1991
Does AIDS hurt?: educating young children about AIDS. Marcia Quackenbush and Sylvia
Villarreal. 149p Santa Cruz, CA: Network Publications, 1988.
RC607 .A26 Q29 1988
Does AIDS hurt?: educating young children about AIDS, second edition. Marcia Quackenbush,
Sylvia Villarreal. 149p Santa Cruz, CA: ETR Associates, 1992.
RC607 .A26 Q29 1992
Early care for Hiy^disease, 2nd ed. Ronald Baker, Jeffrey Moulton, John Tighe. 144p San
Francisco, CA: San Francisco AIDS Foundation, 1992.
RC607 .A26 B354 1992
Effective HIV education in urban schools: a policymaker's guide. Milton Bins, David Kysilko.
54p Alexandria, VA: NASBE, 1991.
RA644 .A25 E35 1991
The environmental context of AIDS. Marie A. Muir. 214p New York: Praeger, 1991.
RA 644 .A25 M85 1991
Epidemic of courage: facing AIDS in America. Lon G. Nugessel. 255p New York: Martin's
Press, 1986.
RC607 .A26 N86 1987
AIDS Resource Library - BOOKS
-12-
The epidemiology of AIDS: expression occurrence and control of human immunodeficiency virus
type 1 infection. Richard A. Kaslow, Donald P. Francis, editors. 359p New York: Oxford
University Press, 1989.
RA644 .A25 E65 1989
The essential AIDS fact book: what you need to know to protect yourself, your family, all your
loved ones. Paul Harding, Douglas, Laura Pinsky. Columbia University. 63p New York:
Pocket Books, 1987.
RC607 .A26 D68 1987
Face to face: a guide to AIDS counseling. James W. Dilley, Cheri Pies, Michael Helquist,
editors. 400p San Francisco, CA; AIDS Health Project, University of San Francisco, 1989.
RC607 .A26 F33 1989
The family book about sexuality. Mary S. Calderone, Eric W. Johnson, revised. New York:
Harper & Row, 1989.
HQ21 .C24 1989
Fighting back: what some people are doing about AIDS. Susan Kuklin. 11 Op New York:
Putnam, 1988.
RA644 .A25 K85 1989
First AIDS: frank facts for kids. Carol Marsh. 24p Bath, NC: Gallopade Publishing Group,
1989.
RC607 .A26 M35 1987
Friends for life (Kids on the Block Book Series). Barbara Aiello, Jeffrey Shulman. Frederick,
MD: Twenty-First Century Books, 1988.
PZ7 .A26924 Fr 1988
The global impact of AIDS: proceedings of the First International Conference on the Global
Impact of AIDS. A. F. Fleming, editor. World Health Organization, London School of
Hygiene and-Tropical Medicine. New York: Liss, 1988.
RA644 .A25 I58 1988
Good intentions: how big business and the medical establishment are corrupting the fight
against AIDS. Bruce Nussbaum. 1st. 352p New York: Atlantic Monthly Press, 1990.
RC607 .A26 N88 1990
The gospel imperative in the midst of AIDS. Robert H. Iles, editor. 246p Wilton, CT: Morehouse
Pub., 1989.
RA644 .A25 G67 1990
The guide to living with HIV infection. John G. Bartlett, MD, Ann K. Finkbeiner. 337p Baltimore,
MD: The Johns Hopkins University Press, 1991.
RC607 .A26 B376 1991
AIDS Resource Library - BOOKS
-13-
The guide to resources on women and AIDS. 2nd ed. Center for Women Policy Studies. 95p
Washington D.C.: Center for Women Policy Studies, 1991.
RA644 .A25 G843 1991
Guidelines for comprehensive sexuality education: kindergarten - 12th grade. National
Guidelines Task Force. 52p New York: SIECUS, 1991.
HQ57.5 .A3 N38 1991
Guidelines for disclosing AIDS antibody test results a protocol for health professionals. James
Dilley, Neil Seymour, Eileen Eya. revised. San Francisco, CA: AIDS Health Project,
University of California, 1987.
RA644. A25 D54 1987
Health, AIDS instructional guide, grades K-12. 170p Albany: University of the State of New York,
State Education Dept., Bureau of Curriculum Development, 1987.
RA644 .A25 U5 1987
History of AIDS: emergence and origin of a modern pandemic. Mirko D. Grmek. 279p
Princeton, NJ: Princeton University Press, 1990.
RA644 .A25 G7613 1990
HIV and AIDS: a social network approach. Philip Seed, editor. 128p New York: St. Martin's
Press, 1989.
RC607 .A26 H56 1989
HIV and AIDS: management by the primary care team. Adrian Moss. 104p New York: Oxford
University Press, 1992.
RC607 .A26 M69 1992
HIV prevention in Native American communities: a manual for Native American health and
human service providers. Andrea Green Rush. 144p Oakland, CA: National Native
American AIDS Prevention Center, 1992.
RA644 .^25 H588 1992
The HIV/AIDS book: information for workers. 4th ed. Service Employees International Union,
AFL-CIO, CLC. 88p Washington, D.C.: Service Employees International Union, Publishers,
1991.
RA644 .A25 H5 1991
The HIV/AIDS epidemic in Puerto Rico. National Commission on AIDS. 40p Washington, D.C.:
National Commission on AIDS, 1992.
RC607 .A26 H5 1992
Home health care: a complete guide for patients and their families. Jo-Ann Friedman.
589p New York: Norton, 1986.
RT61 .F75 1986
1st.
AIDS Resource Library - BOOKS
.14_
Housing and the HIV/AIDS epidemic: recommendations for action. Nat Blevins, Jane Silver.
14p Washington, D.C.: National Commission on AIDS, 1992.
HD7293 ,N3 1992
How to find information about AIDS. Virginia A. Lingle, M. Sandra Wood. 130p New York:
Harrington Park Press, 1988.
RC6O7 .A26 L56 1988b
How to find information about AIDS. Jeffrey T. Huber, editor. 2nd. 290p New York: Harrington
Park Press, 1992.
RC607 .A26 H9 1991
How to persuade your lover to use a condom: and why you should. Patti Breitman, Kim
Knutson, Paul Reed. 83p Rocklin, CA [s.l.]: Prima Publishing and Communications
Distributed to the trade by St. Martin's Press, 1987.
RA788 .B727 1987
A.I.D.S.: how & where to find facts & do research. Robert D. Reed. 43p Saratoga, CA: R&E
Publishers, 1986.
RC6O7 .A26 R45 1986
If a partner has AIDS: guide to clinical intervention for relationships in crisis. R. Dennis Shelby.
277p New York: Harrington Park Press, 1992.
RC607 .A26 S49 1992b
Inventing AIDS. Cindy Patton. 176p New York: Routledge, 1990.
RA644 .A25 P378 1990
Know about AIDS. Margaret O. Hyde, Elizabeth H. Forsyth. 2nd. 102p New York: Walker,
1990.
RC607 .A26 H94 1990
Latina AIDS action Plan and resource guide. HDI-National Hispanic education and Com
munications Projects. 193p Washington, DC: HDI-National Hispanic Education and
Communications Projects, 1990.
RA644 .A25 L38 1992
Learning AIDS: an information resources directory. Trish Halleron, Janet Pisaneschi, Margaret
Trapani. 2nd. 270p New York: American Foundation for AIDS Research, 1989.
RA644 .A25 L42 1989
Learning by heart: AIDS and school children in America's communities. David Kirp. New
Brunswick: Rutgers University Press, 1989.
RJ387 .A25 K57 1989
Legislative responses to AIDS. World Health Organization. 296p Boston: Martinus Nijhoff
Publishers, 1989.
K3575 .A43 A5 1989
AIDS Resource Library - BOOKS
-15-
Life with AIDS. Rose Weitz. 225p New Brunswick, NJ: Rutgers University Press, 1991.
RC607 .A26 W45 1991
Living with AIDS. Stephen R. Graubard, editor. Cambridge, MA: American Academy of Arts and
Sciences, 1989.
RA644 .A25 L58 1990
Living with AIDS: reaching out. Tom O’Connor, Ahmed Gonzalez-Nunez. 426p San Francisco,
CA: Corwin Publishers, 1987.
RC607 .A26 025 1987
Living with HIV: experiment in courage, mary Elizabeth O'Brien. 222p New York: Auburn
House, 1992.
RC607 .A26 022 1992
Living with HIV: reaching outward and inward. Holly Melroe, James Rothenberger. 203p
Minneapolis, MN: University of Minnesota, 1990.
RC607 .A26 15 1990
Living with the AIDS virus: a strategy for long-term survival. Parris M. Kidd, Wolfgang Huber.
182p Berkeley, CA: HK Biomedical, Inc., 1991.
RC6O7 .A26 K5 1990
Local AIDS services: national directory. 133p Washington, DC: United States Conference of
Mayors, 1988.
RA644 .A25 L6 1988
Lynda Madaras talks to teens about AIDS an essential guide for parents, teachers, and young
people. Lynda Madaras. 106p New York: New Market Press, 1988.
RC607 .A26 M33 1988
Male homosexual behavior and the effects of AIDS education: a study of behavior and safer sex
in New Zeajand and South Australia. B.R. Simon Rosser. 246p New York: Praeger, 1991.
HQ76.2 'N49 R67 1991
Managing AIDS in the workplace. Sam B. Puckett, Alan R. Emery. 191 p Reading, MA:
Addison-Wesley, 1988.
RC607 .A26 P835 1988
The meaning of AIDS: implications for medical science, clinical practice, and public health policy.
Eric T. Juengst, Barbara A. Koenig, editors. 198p New York: Praeger, 1989.
RC607 .A26 M4 1989
The medical management of AIDS. Merle A. Sande, Paul A. Volberding, editors. 2nd. 436p
Philadelphia: Saunders, 1990.
RC607 .A26 M43 1990
AIDS Resource Library - BOOKS
-16-
The medical management of AIDS, 3rd ed. Merle A. Sande, Paul A. Volberding. 525p
Philadelphia, PA: W. B. Saunders Company, 1992.
RC607 .A26 M43 1992
Medical, psychological, and social implications of AIDS: a curriculum for young adults. Ralph C.
Johnston, Jr. Stoney Brook, NY: Research Foundation, 1988.
RC607 .A23 J6 1988
Meeting the challenge: foundation responses to acquired immune deficiency syndrome. Michael
Seltzer. 35p New York: Foundation Center, 1987.
RC607 .A26 S45 1987
The mental health needs of well adolescents in families with AIDS. Barbara Draiman, Jan Hudis,
Jose Segura. New York: City of New York, Human resources Administration, 1992.
RC607 .A26 M4 1992
Mobilizing against AIDS. Eve K. Nichols, revised and enlarged. Cambridge, MA: Harvard
University Press, 1989.
RC607 .A26 M63 1989
Mortal embrace: living with AIDS. A. F. Dreuilhe. 162p New York: Hill and Wang, 1988.
RC607 .A26 D7413 1988
The myth of heterosexual AIDS. Michael Fumento. 41 Ip New York: Basic Books, 1990.
RA644 .A25 F86 1990
Nursing care of the person with AIDS/ARC. Angie Lewis, editor. 386p Rockville, MD: Aspen
Publishers, 1988.
RC607 .A26 N87 1988
Pathology of AIDS: textbook and atlas of diseases associated with Acquired Immune Deficiency
Syndrome. Harry loachim. 243p New York: Gower Medical Publishing, 1989.
RC607 .A26 I65 1989
Pathways to wellness: strategies for self-improvement in the age of AIDS. Paul Ken Froman.
280p New York: Penguin Books, 1990.
RC607 .A26 F75 1990
Peopie with AIDS. Nicholas Nixon, Bebe Nixon. 1st. 159p Boston: D.R. Godine, 1991.
RC607 .A26 N58 1991
The Person with AIDS: nursing perspectives. Jerry D. Durham, Felissa L. Cohen. 274p New
York: Springer Pub. Co, 1987.
RC607.A26 P47 1987
Personal dispatches: writers confront AIDS. John Preston, editor. 183p New York: St. Martin's
Press, 1989.
PS509 .A43 P4 1989
AIDS Resource Library - BOOKS
-17-
Poets for Life: seventy-six poets respond to AIDS. Michael Klein, editor. 244p New York:
Crown Publishers, 1989.
PS 595 .A36 P64 1989
Poison by prescription: the AZT story. John Lauritsen. 192p New York: ASKLEPIOS, 1990.
RC607 .A26 L383 1990
Preventing AIDS in drug users and their sexual partners. James L. Sorenson. 220p New York:
Guilford Press, 1991.
RA644 .A25 P753 1991
Preventing AIDS: the design of effective programs. Roland O. Valdiserri. 304p New Brunswick,
NJ: Rutgers University Press, 1989.
RA644 .A25 P75 1989
Primary prevention of AIDS: psychological approaches. Vickie M. Mays, George W. Albee,
Stanley F. Schneider, editors. 425p Newbury Park, CA: SAGE Publications, 1989.
RA644 .A25 P7
Private acts, social consequences: AIDS and the politics of public health. Ronald Bayer. 282p
New York London: Free Press Collier Macmillan, 1989.
RA644 .A25 B39 1989
Productive living strategies for people with AIDS. Jerry A. Johnson, editor. 227p New York:
Haworth Press, 1990.
RC607 .A26 P76 1990
A promise to remember: the NAMES Project book of letters. Joe Brown, editor. 323p New
York: Avon Books. 1992.
RC607 .A26 P77 1991
Public and professional attitudes toward AIDS patients: a national dilemma. David E. Roger,
Eli Ginsburg, editors. 136p Boulder, CO: Westview Press, 1989.
RA644 .A25 C67 1989
Quality food and nutrition services for AIDS patients. Carol Sherman. 201 p Rockville, MD:
Aspen Publishers, 1990.
RC607 .A26 Q35 1990
Questions & answers on AIDS. Lyn Robert Frumkin, John Martin Leonard. 190p Oradell, NJ:
Medical Economics Books, 1987.
RC607.A26 F78 1987
The quilt: stories from the NAMES Project. Cindy Ruskin, Matt Herron. Names Project. 160p
New York: Pocket Books, 1988.
TT835 .R88 1988
AIDS Resource Library - BOOKS
-18-
The real truth about women and AIDS: how to eliminate the risks without giving up love and sex.
Helen Singer Kaplan. 192p Neil York: Simon & Schuster, 1987.
RC607.A26 K37 1987
Report of the CLWA Task Force on Children and HIV Infection: initial guidelines. Child Welfare
League of America. Donna Pressman, L. Jean Emery. CWLA Task Force on Children and
HIV Infection. 52p Washington, DC: Child Welfare League of America, [1988].
RJ387 .A25 C45 1988
Report of the second public health service AIDS prevention and control conference.
Charlottesville, VA: Public Health Reports, 1988.
RA644 .A25 P8 1988
Report of the working group on social/human issues to the National Commission on AIDS.
National Commission on AIDS. 38p United States: The Group, 1991.
RA644 .A25 U25 1991b
Reports from the holocaust: the making of an AIDS activist. Larry Kramer. 1st. 291 p New York:
St. Martin's Press, 1989.
RC607 .A26 K73 1989
Risky times: how to be AIDS free and stay healthy: a guide for teenagers. Jeanne Blake. 158p
New York: Workman Publications, 1990.
RC607 .A26 B59 1990
Safe sex in a dangerous world: understanding and coping with the threat of AIDS. Art UIene.
1st. 106p New York: Vintage Books, 1987.
RC607 .A26 U44 1987
Safe sex in the age of AIDS. Robert Theodore Mcllvenna. Institute for Advanced Study of
Human Sexuality. 88p Secaucus, NJ: Citadel Press, 1986.
RC607 .A26 S24 1986
The Samaritan's imperative: compassionate ministry to people living with AIDS. MichaeI J.
Christensen. 205p Nashville, TN: Abingdon Press, 1991.
BV 4460.7 C466 1991
The science of AIDS: readings from Scientific American Magazine. 135p New York: W.H.
Freeman and Company, 1989.
RC607 ,A26 S38 1989
The screaming room: a mother's journal of her son's struggle with AIDS. Barbara Peabody.
1st. 254p San Diego, CA: Oak Tree Publications, 1986.
RC607 .A26 V667 1986
Serving HIV-infected children, youth, and their families: a guide for residential group care
providers. Paul Gitelson, L. Jean Emery. 88p Washington, DC: The League, 1989.
RA644 .A25 C45 1989
AIDS Resource Library - BOOKS
-19-
Sex, drugs & AIDS. Bradley Kesden, Oralee Wachter, Lynne Smilow. 76p Toronto New York:
Bantam Books, 1987.
RC607 .A26 K47 1987
Sexual transmission of HIV infection: risk reduction, trauma, and adaptation. Lena Nilsson
Schonnesson, editor. 176p New York: Harrington Park Press, 1992.
RC607 ,A26 S46 1992
Sexually transmitted disease surveillance 1991. U.S. Department of Health and Human
Services. 191 p Atlanta, GA: U.S. Department of Health and Human Services, 1992.
RC200.1 S47 1991
Shattered mirrors: our search for identity and community in the AIDS era. Moinroe E. Price
159p Cambridge, MA: Harvard University Press, 1989.
RA644 .A25 P755 1989
Simple acts of kindness: volunteering in the age of AIDS. John Griggs, editor. 122p New York:
United Hospital Fund of New York, 1989.
RC607 .A26 S583 1989
The social impact of AIDS in the U.S. Richard A. Berk, editor. 143p Cambridge, MA: Abt Books,
1988.
RC607 .A26 S64 1988
Someone at school has AIDS: a guide to developing policies for students and school staff
members who are infected with HIV. Katherine Fraser. 35p Alexandria, VA: NASBE,
1989.
LB3418 .A35 F7 1989
Someone was here: profiles in the AIDS epidemic. George Whitmore. 21 Ip New York: New
American Library, 1988.
RC607.A26 W495 1988
Special issue, psychology and AIDS. Thomas E. Backer, editor. p835-990 Arlington, VA:
American Psychological Association, [1988].
RC6O7 .A26 S65 1988
Strip AIDS: a collection of cartoons to benefit people with AIDS. Trina Robbins, editor. San
Francisco, CA: Last Gasp, 1988.
RA644 .A25 S76 1988
Support groups: the human face of the HIV/AIDS epidemic. Gail Barouth. 91 p Huntington
Station, NY: Long Island Association for AIDS Care, Inc. 1992.
RA644 .A25 B367 1992
Surgeon General's report on Acquired Immune Deficiency Syndrome. United States-Office of the
Assistant Secretary for Health. 36p [Washington, DC: U.S. Dept, of Health and Human
Services, 1986].
RC607.A26 U454.
AIDS Resource Library - BOOKS
-20-
Surviving AIDS. Michael Callen. 243p. IL. New York: Harper Collins, 1990.
RC607 .A26 C33 1990
Surviving with AIDS: a revolutionary program of nutritional co-therapy. Wayne C. Callaway,
Catherine Whitney. 192p Boston: Little, Brown, 1991.
RC607 .A26 C325 1991
Take these broken wings and learn to fly: the AIDS support book for patients, family, and
friends. Steven D. Dietz, M. Jane Parker Hicks. 136p. Tucson, AZ: Harbinger House,
1989.
RC607 .A26 D54 1989
Teaching about A.I.D.S.: a teacher's guide. Danek S. Kaus, Robert D. Reed. 75p Saratoga,
CA: R & E Publishers, 1987.
RC607 .A26 K38 1987
Teaching AIDS: a resource guide on acquired immune deficiency syndrome. Marcia
Quackenbush, Pamela Sargent. Rev. ed. 159p Santa Cruz, CA: Network Publications,
1988.
RC607 .A26 Q3 1988
Teen guide to AIDS prevention. Alan E. Nourse. 62p New York: Franklin Watts, 1990.
RC607 .A26 N683 1990
Teen guide to safe sex. Alan Nourse. New York: Franklin Watts, 1988.
RC200 .2.N68 1988
Thinking AIDS. Mary Catherine Bateson, Richard A. Goldsby. 153p Reading, MA:
Addison-Wesley Pub. Co, 1988.
RA644 .A25 B37 1988
Toward a national policy on drug and AIDS testing: report of two conferences. 81 p Washington,
DC: Brookings Institution, 1989.
RA644 ,A25 T68 1989
Treatment issues: the Gay Men's Health Crisis newsletter of experimental AIDS therapies
(compilation issue, Nov. 1987 - January 1991). Kevin Armington, editor. 193p New York:
Gay Men's Health Crisis, 1991.
RC607 .A26 T74 comp, issue 1987/91.
Understanding and preventing AIDS. Warren Colman. 123p Chicago: Children's Press, 1988.
RC607 .A26 C64 1983
Understanding and preventing AIDS: a book for everyone. Chris Jennings. 2nd. 230p
Cambridge, MA: Health Alert Press, 1988.
RC607 .A26 J46 1988
AIDS Resource Library - BOOKS
-21-
The way we live now: American plays & the AIDS crisis. Elizabeth Osborn, editor. 279p New
York: Theatre Communications Group, 1990.
PS627 .A53 W38 1990
"We have AIDS." Elaine Landau. 1st. p127 New York: Franklin Watts, 1990.
RJ387 .A25 L36 1990
What to do about AIDS: physicians and mental health professionals discuss the issues. Leon
McKusick, editor. San Francisco University of California AIDS Clinical Research Center.
202p Berkeley, CA: University of California Press, 1986.
RC6O7 .A26 W49 1986
What you can do to avoid AIDS
RC607 .A26 J65 1992
Earvin "Magic" Johnson. 192p New York: Times Books, 1992.
What's a virus anyway?: the kids1 book about AIDS. David Fassler, Kelly McQueen. Burlington,
VT: Waterfront Books, 1990.
RC607 .A26 F38 1990
When an employee has AIDS. Victor Schacter, Thomas E. Geidt. 128p New York: Executive
Enterprises, 1989.
RA644 .A25 S3 1989
When someone you know has AIDS: a practical guide. Leonard J. Martelli, Fran D. Peltz,
William Messina. 1st. 238p New York: Crown Publishers, 1987.
RC607 .A26 M36 1987
When someone you love has AIDS: a book of hope for family and friends. Betty Clare Moffatt.
150p New York: NAL Penguin, [1987], 1986.
RC607 .A26 M64 1987
Why I survive AIDS. Niro Markoff Assistent, Paul Duffy. 250p New York: Simon & Schuster,
1991.
RC607 .A26 A85 1991
Winning the battle: developing support for sexuality and HIV education. Debra W. Haffner and
Diane deMauro. 58p New York: SIECUS, 1991.
HQ56 .H33 1991
Women, AIDS, and activism: by the ACT UP/New York Women and AIDS Book Group. Marion
Banzhaf, editor. 295p Boston, MA: South End Press, 1990.
RC607 .A26 W65 1990
Women, AIDS, & communities: a guide for action. Gerry Pearlberg. 129p Metuchen, NJ:
Women's Action Alliance, Inc. and The Scarecrow Press, Inc., 1991.
RA644 .A25 P42 1991
Women and AIDS. Diane Richardson. 183p New York: Methuen, 1988.
RC607 .A26 R53 1988
AIDS Resource Library - BOOKS
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Women and AIDS: a practical guide for those who help others. Bonnie Lester. 143p New York:
Continuum, 1989.
RC607 .A26 L473 1989
Working with AIDS: a resource guide for mental health professionals. Michael Helquist, editor.
AIDS Health Project. 299p San Francisco, CA: AIDS Health Project, University of
California, San Francisco, 1987.
RA644 .A25 W6 1987
Working with women & AIDS: medical, social, & counselling issues. Judy Bury, Vai Morrison,
Sheena McLachlan, editors. 153p New York: Tavistock/Routledge, 1992.
RA644 .A25 W66 1992
A world without AIDS. Leon Chaitow, Simon Martin. 288p Wellingborough: Thorsons, 1988.
RC607 .A26 M37 1988
You can do something about AIDS. Sasha Alyson. 1st. 126p Boston, MA: Stop AIDS Project,
Inc, 1988.
RA644 .A25 Y68 1 988
-23-
VIDEO HOLDINGS LIST
"AIDS: a different kind of germ." MTI/Film & Video. Videorecording. 15 min. Northbrook, IL:
Distributed by MTI/Film & Video, 1991.
Tracey learns the basics about AIDS from her mother who is a doctor, and her cartoon
friend, Microscopic Mike. Explains the effect of AIDS on the body's immune system,
describes how AIDS is transmitted, and two common-sense precautions. Grades K - 3.
PS627 .A53 A5 1991
"AIDS: a family experience." Robin Weatherstone, Lally Cadeau Carle. Medical
Communications Weatherstone Productions Inc. Videorecording. 33 min. Urbana, III:
Distributed by Carle Medical Communications, 1986.
Examines a family's coping with the discovery that a family member has AIDS.
RC607 .A26 A25 1986
"AIDS and health-care workers." Robert E. Windom, C. B. Wismar. U.S. Public Health Service.
Videorecording. 32 min. [Washington, DC]: Distributed by U.S. Public Health Service
1988.
This video examines how AIDS is transmitted, precautions health care workers should
take to avoid contact with the AIDS virus, and how to respond to the needs of the AIDS
patient.
RA644 .A25 A33
“AIDS and other epidemics.Jane Bassick, Jamie Guth, Tom Kidder, Dartmouth/Hitchcock
Medical Center, Films for the Humanities. Videorecording. 19 min. Princeton, NJ: Films
for the Humanities, 1990.
An historical look at epidemic diseases and what has been done to treat and prevent
them. Shows the relationship between plague, smallpox, tuberculosis, polio, and AIDS.
RA649 .A5 1990
"AIDS and the arts." Films for the Humanities (Firm). Videorecording. 20 min. Princeton, NJ:
Distributed by Films for the Humanities & Science, 1987.
This program shows, not only the impact AIDS has had on a community very much in
the headlines, but also the response of artists to risk and to the demands of compassion.
N72 .A35 A3 1987
"AIDS: are you at risk?" Films for the Humanities and Sciences (Firm). Videorecording. 19
min. Health Sciences Princeton, NJ: Distributed by Films for the Humanities and Sciences,
1987.
Examines social attitudes about AIDS in a profile of Don Miller, an AIDS victim battling
discrimination against himself and others with the disease. Also discusses how AIDS is
transmitted and how these modes of transmission relate to society's attitudes about AIDS
and its victims.
RC607.A26 A34537 1987
AIDS Resource Library - VIDEOS
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"AIDS -- care beyond the hospital." Helen Schietinger, Bobby Reynolds. San Francisco AIDS
Foundation. Videorecording. 42 min. San Francisco, CA: Distributed by San Francisco
AIDS Foundation, 1984.
Examines the psychological impact of AIDS, the varieties of physical conditions of people
with AIDS, and case management of persons disabled by AIDS. Includes recreations of
parts of interviews with AIDS patients.
RC607 .A26 A3 1984
"AIDS: community concerns." John Decker, Slawomir Grunberg. Keylight Productions.
Videorecording. 20 min. Ithaca, NY: Keylight Productions, 1989.
Excerpts from discussions held at churches, schools and hospitals which address the
concerns community members have about AIDS. Also, comments from people infected with
AIDS regarding some of their frustrations and difficulties in dealing with the fears and
misunderstandings of members of their communities.
RC607 .A26 A346 1989
AIDS: everything you and your family need to know. C. Everett Koop. Home Box Office.
Ambrose Video Publishing Inc. Videorecording. 40 min. New York: HBO Studio
Productions: Ambrose Video Publishing, 1987. IN SPANISH (dubbed).
Question/answer format. Questions were gathered by Home Box Office from community
members in on-the-street interviews, phone surveys and focus groups. They represent the
most often asked questions about AIDS. Answers are provided by Surgeon General, Dr. C.
Everett Koop.
RA644 .A25 A58 1987
"AIDS, hepatitis and the emergency responder." Videorecording. 26 min. Boston, MA:
Commonwealth Films, 1988.
An introduction to some basic precautions to employ during emergency medical services.
Emphasis is on preventing transmission of AIDS and hepatitis B during contact with bipod.
RC607 .A26 A355 1988
"AIDS home care and hospice video." Visiting Nurses and Hospice of San Francisco/Daniel
Barnes & the Access Group. Videorecording. 35 min. San Francisco, CA: Visiting Nurses
' and Hospice of San Francisco, 1989.
Discusses medical and psychosocial needs of persons with AIDS in the home
care/hospice setting. Includes an overview of the various physical and mental conditions
that may develop during the course of the illness. Intended for nurses, social workers,
attendants, and others involved with AIDS patient care.
RC607 .A26 A356 1989
"AIDS in your school." Perennial Education Inc. Videorecording. 23 min. Evanston, IL:
Distributed by Altschul Group, 1987.
Two high school students interview doctors who discuss what AIDS is and how it can be
contracted. Also three people who have contracted AIDS discuss how they are learning to
cope with the disease.
RC607 .A26 A35
AIDS Resource Library - VIDEOS
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AIDS inservice for the homecare worker, with video "Making a difference." Office of Human
Resources Development, New York State Department of Social Services. Videorecording.
36 min. (with training manual). Albany, NY: New York State Department of Social
Services, 1991.
The purpose of these . . . training units is to provide home care workers throughout New
York State with a uniform, accurate body of knowledge on AIDS ... In addition, the video
"Making a Difference" was developed in conjunction with this training program to reinforce
and highlight certain content areas. {It} focuses on the practical aspects of caring for clients
in the home, as well as the psychosocial issues of clients and home care workers.
RC607 .A26 A3454 1991
"AIDS is about secrets." The Media Group, Inc. Videorecording. 37 min. New York: HIV
Center for Clinical and Behavioral Studies, 1988.
Designed for black women who are at risk because they are or have been the sex
partners of male intravenous drug users. The video focuses on particular behaviors that
place these women in danger of becoming HIV-infected.
RC607 .A26 A3474
"AIDS issues for health care workers." Leslie Hill. Churchill Films. Videorecording. 10 min.
Los Angeles, CA: Distributed by Churchill Films, 1988.
Examines how health care workers can provide excellent care for AIDS patients while
protecting themselves.
RC 607 .A26 A35 1988
"AIDS: medical education for the general community". ALMEGA Group, 1987. 26 min.
Provides facts about AIDS: transmission, precautions, symptoms, extent of the
epidemic, treatment attempts, and methods of prevention. Gives details through animated
illustrations of how the disease invades the body and breaks down the immune system.
For high school students to adult.
RC607.A26 A26 1987
"The AIDS movie." Ginny Durrin, David Brumbach. Durrin Films & New Day Films.
Videorecording. 26 min. Washington, DC, Wayne, NJ: Distributed by Durrin Films, Inc.,
New Day Films, 1987.
Shown on 20/20, Hour Magazine and ABC, NBC, CBS News as an example of AIDS
education.
The AIDS Movie, designed primarily to speak to students, features three people who
share what it's like to live with the disease and how to protect yourself against it. An AIDS
educator also speaks on the importance of awareness and prevention.
RC607 .A26 A347 1987
"AIDS, not us." The Media Group, Inc. Videocassette. 36 min. New York: HIV Center for
Clinical and Behavioral Studies, 1989.
Designed for African American and Latino adolescent men living in inner cities. Focuses
on sexual risk-taking, sexual decision making, attitudes toward risk reduction, and
resistance to condom use.
RC607 .A26 A3476
AIDS Resource Library - VIDEOS
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"AIDS: on the front line". Oliver Video Productions, Harris County Medical Society.
Videorecording. 22 min. Houston, TX: Olivier Video Production, 1987.
For teachers of teenagers. Provides facts about AIDS: transmission, prevention, HIV
antibody test. Illustrates how the AIDS virus invades the body and breaks down the
immune system. Discusses how to convey information about AIDS to students. Also,
considers the fears and concerns parents, teachers, students and administrators might
have. The companion video, AIDS; protect yourself, contains much of the same
information regarding AIDS facts and is primarily for teenagers.
RA644 .A25 A586 1987
"AIDS: protect yourself". Oliver Video Productions, Harris County Medical Society.
Videorecording. 16 min. Houston, TX: Olivier Video Production, 1987. Primarily for
teenagers. Provides facts about AIDS: transmission, prevention, extent of the worldwide
epidemic. Describes in simple terms how the immune system works and how the AIDS
virus invades the body and weakens the immune system. Illustrates how quickly AIDS
could be spread through a group of friends. The companion video, AIDS: on the frontline,
contains much of the same information regarding
AIDS facts, but is narrated for teachers.
It provides additional information specifically for educators.
RA644 .A25 A587 1987
"AIDS, psychosocial interventions." Carle Medical Communications. Norman Baxley and
Associate Susan Tross. Videorecording. 25 min. Urbana, IL: Distributed by Carle Medical
Communications, 1987.
Combines interviews with AIDS patients and medical and counseling professionals on
the psychological trauma of adjusting to having AIDS. Considers psychosocial aspects of
the disease at its various stages and discusses the need for therapy and emotional support
for the AID'S patient.
RA644 .A25 P76 1987
"The AIDS show: artists involved with death and survival.." Robert Epstein, Peter Adair. Direct
Cinema Limited. Videorecording. 58 min. Los Angeles, CA: Distributed by Direct Cinema
Limited, 1986. "Blue Ribbon winner 1987 American Film Festival.
The AIDS show deals with the impact of the AIDS epidemic on the community of gay
men. It is based on San Francisco's Theatre Rhinoceros stage production of the same
name. A powerful hybrid of documentary and drama. . .
PS 3551 .D3 AS 1986
"AIDS: the Surgeon General's update." C. Everett Koop. Consultants International, Future
Vision Pyramid Film & Video. Videorecording. 32 min. Santa Monica, CA: Distributed by
Pyramid Film & Video, 1987.
Presents the current situation with AIDS and emphasizes the importance of education to
make known how it can and cannot be transmitted.
RA644 .A25 A3
"AIDS: what do we tell our children?" Carol Burnett. Walt Disney Educational Media Company
Coronet/MTI Film & Video. Videorecording. 22 min. Deerfield, IL: Distributed by
Coronet/MT! Film & Video, 1987.
Basic information about what AIDS is, who gets it and how it is transmitted. Why, how
and when to talk to children and teenagers about AIDS.
RC607 .A26 A366
AIDS Resource Library - VIDEOS
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"AIDS, what everyone needs to know." Michael S. Gottlieb. Churchill Films. Los Angeles-AIDS
Center University of California. Videorecording. 18 min. Los Angeles, CA: Distributed by
Churchill Films, 1986.
Using life action, animation, and cinematography, provides an introduction to Acquired
Immune Deficiency syndrome. Tells how the AIDS virus destroys the immune system s
ability to protect the body from various diseases. Describes how the virus is, and is not,
transmitted and explains how to protect one's self from contracting the disease. Includes
commentary by Michael Gottlieb and other recognized specialists.
RC607 .A26 A26 1986
"Avoiding AIDS: what you can do." Marshmedia. Videorecording. 12 min. Mount Dora, FL:
Distributed by KIDSRIGHTS, 1987.
For junior/senior high school students. This program explains how the AIDS virus works
on the immune system, how it is spread and how to avoid catching or spreading the
disease by avoiding behavior that increases the possibility of exposure to the virus.
Includes teaching guide.
RC607 .A26 A9 1987
"Beverly's Story." New York State Health Dept. Videorecording. 12 min. Albany, NY: New York
State Health Department. 1988.
Soap opera type format. Beverly’s boyfriend has had a history of IV drug use. When
Beverly informs her girlfriend she is pregnant, her friend encourages her to get tested for
the AIDS virus. Bev's friend explains how a woman infected with AIDS could pass the
disease on to her unborn baby. The video shows Beverly's experience of going to a clinic
to be tested and then convincing her boyfriend that he must also be tested for AIDS.
RA644 .A25 B48 1988
"Beyond fear." John Seldon Allen, Robert Vaughn. American Red Cross. Videorecording.
30 min. [Washington, DC]: Distributed by American Red Cross and Albany Center for
Learning Technologies, New York State Education Dept., 1988.
This three-part documentary offers clear, straightforward information on acquired immune
deficiency syndrome (AIDS), in the context of a moving human drama.
RC6O7 .A26 B49 1988
"Beyond the labels. . . the human side of AIDS." Catholic Health Association of the U.S.
Videorecording. 24 min. St. Louis, MO: Catholic Health Association of the U.S., 1988.
RC607 .A26 B495
"Black people get AIDS too (school version)." Churchill Films. Videorecording. 20 min.
Los Angeles, CA: Churchhill Films, 1987.
For high school and college health classes, community outreach programs and public
health agencies. The purpose of this program is to alert the black community to the high
risks of AIDS. The video examines the causes and symptoms of AIDS, its effects on the
immune system, AIDS screening tests, and the social and economic ramifications of the
disease. Prevention and education are stressed as the only ways currently available to
fight AIDS. Experts provide advice on what constitutes safe sex, the use of condoms and
spermicides and the risk of sharing IV drug works. A discussion guide is included.
RC607 .A26 B54 1987
AIDS Resource Library - VIDEOS
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"Changing focus: women, children and AIDS in the 90,s." Dean Thomas, Eileen Littig,
Northeastern Wisconsin In-School Telecommunications. Videorecording. 29 min.
Green Bay, Wl: Northeastern Wisconsin In-School Telecommunications, 1990.
Discusses the issues facing women who have contracted HIV infection or AIDS.
Interviewees tell how the condition has affected them, the problems they face, and how
they are coping. Some of the issues women with HIV/AIDS face involve child care,
reproductive rights, bias, poverty, lack of insurance and health care services, and lack of
medical research on HIV in women.
RA644 .A25 C42 1990
"Circle of warriors." Phil Lucas Productions, Alaska Native Health Board, Seattle Indian Health
Board, National Native American AIDS Prevention Center. Videorecording. 27 min.
Oakland, CA: National Native American AIDS Prevention Center, 1989.
Nine Native Americans with HIV or AIDS discuss their feelings and experiences.
E98 .D6 C5 1989
"Condoms, a responsible option." Phil Gulotta. Landmark Films. Videorecording. 10 min.
Falls Church, VA: Distributed by Landmark Films, 1987.
Explains how sexually active people spread disease very quickly among themselves and
stresses the importance of condoms in fighting infections, especially AIDS. Describes the
various types of condoms available and shows how they are manufactured and industrially
tested.
RA644 .V4 C6 1987
"A Death in the Family." Wombat Film and Video. Videorecording. 52 min. New York: 1987.
A real-life, personal look at the final days in the life of Andrew, a gay AIDS victim. His
closest friends take him in and care for him when he is released from the hospital. The
video focuses on how his lover, friends, and family cope with their fears and the emotional
strain of his slow and painful death. Also shown are the difficulties his family has accepting
his homosexuality and the awkwardness and apprehension both his gay friends and his
family members feel when they are "forced" together through the events of his illness and
death. The film takes place in New Zealand.
RC607 .A26 D4 1987
"Don't forget Sherrie." American Red Cross. 32 min. Videorecording. Distributed by the
American Red Cross, 1988.
RC607 .A26 D6 1988
"Eddie's Story: how to protect yourself from STDs and AIDS." New York State Health Dept.
Videorecording. 12 min. Albany, NY: New York State Health Dept. 1988.
Soap opera type format. A group of heterosexual male friends discusses issues related
to AIDS and other STD's: monogamy vs. promiscuity, safe sex, honesty in a relationship,
getting tested for AIDS. Also shows a similar discussion between one of these friends,
Eddie and his girlfriend. A second member of the group, Dave, thinks he might have VD.
Eddie suggests that he goes to a clinic to be tested.
RA644 .A25 E3 1988
AIDS Resource Library - VIDEOS
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"An Epidemic of fear AIDS in the workplace." Todd Shuttleworth, Bill Mattis, Bob Thompson,
Evan White. San Francisco AIDS Foundation. Pacific Bell (Firm). Videorecording.
23 min. San Francisco, CA: Distributed by San Francisco AIDS Foundation 1987.
Three men discuss what happened at their jobs when they found out they had AIDS, and
various officials discuss what AIDS is and how it is spread.
RC6O7.A26 E6 1988
"Facing AIDS: teens ask a young man what it's like." Distributed by New York State Health
Department. Videorecording. 20 min. Albany, NY: Distributed by New York State Health
Dept., 1988.
A young man who has AIDS talks openly with 12 New York State teens and answers the
kinds of questions on the minds of youth nationwide.
RC607 .A26 F3 1988
"Fear of caring: the AIDS dilemma." American Hospital Association. Videorecording. 20 min.
Chicago, IL: Distributed by the American Hospital Association, 1986.
Discusses hospital staff members' feelings and fears about caring for AIDS patients, how
the disease is acquired and how standard CDC infection control measures within the
hospital will protect staff members. Also stresses the patient's needs for psychological and
emotional support from hospital staff members.
RC607 .A26 F4 1986
"Flashback" New York State Health Department. Videorecording. 13 min. Albany NY:
distributed by New York State Health Department, 1989.
A drama depicting high school students questioning their behavior in relation to the
HIV/AIDS information presented to them in a health class.
RC607 .A26 F53
"In the shadow of love." WGBH, American Broadcasting Co., MTI/Film & Video. Videorecording.
46 min. Northbrook, IL: MTI/Film & Video, 1991.
Follows high school student and budding TV reporter Katie Dunn as she struggles with
her fears about associating with HIV-positive teenagers. She and another student, Lisa
Diaz, whose brother is HIV-positive, prepare a story on the teenagers for a contest at the
local television station. A coproduction of WGBH and ABC-TV. Originally broadcast as an
ABC Afterschool Special.
PS627 .A53 I5 1991
"The inaugural display of the NAMES Project Quilt: October 11, 1987." Videorecording. 15 min.
San Francisco, CA: NAMES Project, 1987.
Commemorates the unfolding ceremony of the Quilt on October 11, 1987, at the National
Mall in Washington, D.C. The NAMES Project is a nationwide campaign to memorialize the
Americans who have died in the AIDS epidemic.
RC607 .A26 I53 1987
AIDS Resource Library - VIDEOS
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"Infection control: preventive measures." Videorecording. 18 mins. Scranton, PA. Owing Mills,
MD: Distributed by Videolink NHP, 1988.
Discusses symptoms of AIDS, herpes, and hepatitis, how these viral infections are
transmitted, and specific infection control methods for health care workers.
RT95 .15 1989
"Is our blood supply safe?" Diane May, Fran Glemmer, Herbert Hyman. Films for the
Humanities & Sciences. Videorecording. 19 min. Princeton, NJ: Films for the Humanities
& Sciences, 1987.
Focuses on the purity of the nation's blood supply, how effective the current screening
procedures are, and steps blood banks take to maintain a safe supply. Included is a profile
of a hemophiliac who contracted AIDS through a contaminated transfusion, and precautions
taken by a cardiac patient prior to surgery to ensure blood purity. The video also takes a
look at why becoming infected with AIDS through blood donation appears to be impossible.
RC607 .A26 I8 1987
"Joan1 s Story: how women can protect themselves from AIDS." New York State Health Dept.
Videorecording. 8 min. Albany, NY: New York State Health Dept., 1988.
Soap opera type format. Two young women, Joan and Bonnie, discuss why it is
important to be tested for AIDS, how AIDS is transmitted, and methods of prevention. They
are joined in the discussion by Joan's younger sister and a friend who are of high school
age. The video also shows Joan's first experience buying condoms and then talking to her
boyfriend about using them.
RA644 .A25 J6 1988
"Kids with AIDS." William Shebar, William Greenberg, Marianna Moore, Faye Zealand, Tony
Zealand. Films for the Humanities. Videorecording. 20 mins. Princeton, NJ: Distributed
by Films for the Humanities, 1988.
A documentary on how AIDS is devastating entire families. Issues addressed: should
women who have had one AIDS infected baby hake more children? The need for foster
care for infected children whose parents have died; the need for education about AIDS,
especially in inner city communities. Includes discussions with mothers, foster parents
doctor and social workers.
RC607 .A26 KS 1988
"Living with AIDS." Tina DiFeliciantonio, Sally Miller, Gearhart. Carle Medical Communications.
Videorecording. 24 min. Urbana, IL: Distributed by Carle Medical Communications, 1986.
Produced at the Department of Communication, Stanford University. U-matic format.
Shows how an in-home hospice program for AIDS patients works. Lovers Todd and Bob
discuss the effects of Todd's illness on their relationship.
RC607 .A26 L58 1986
"Men, women, sex, and AIDS." Tom Brokaw. Videorecording. 60 min. Chicago, IL: Distributed
by Films Incorporated, 1987.
A current look at the AIDS situation in the United States. Four major issues covered are
the spread of AIDS to heterosexual women, the changing sexual habits of Americans, the
search for a cure and education to help prevent the spread of AIDS.
RC607 .A26 M4 1987
AIDS Resource Library - VIDEOS
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"The microbiology of AIDS." Films for the Humanities. Videorecording. Princeton, NJ: Films for
the Humanities, 1990.
RC607 .A26 M5
"Nightline: national town meeting on AIDS". Roger Goodman, David Bohrman, Ted Koppel.
Videorecording. 108 min. New York: ABC Video Enterprises, 1987. 2 hours.
This program is an edited two-hour episode of ABC News Nightline, hosted by Ted
Koppel. It aired June 5, 1987. Experts from government, medicine, business, religion,
entertainment and other fields share their knowledge of AIDS. The program intends to
provide facts, dispel myths, explore the effects of AIDS on our society, show the extent of
the epidemic, and discuss methods of prevention. Appropriate for high school and college
level or any general audience. A discussion guide is included.
RC607 .A26 A25 1987
"Nobody’s Immune." US Army. National Audiovisual Center, Walter Reed Army Institute of
Research. Videorecording. 30 min. Capitol Heights, MD: National Audiovisual Center,
1985.
Geared toward military personnel. Several AIDS victims describe their experiences; the
behavior which brought them in contact with the disease and the anger, fears and
frustrations they feel. Reactions of their friends are also shown. In one case a man has
passed the disease on to his wife and child. The film stresses how anyone can get AIDS it's not just a "gay disease." At the end of the program a medical doctor provides AIDS
facts.
RA644 .A25 N6 1985
"Now that you know: living healthy with HIV." Randall Neece, Kaiser Permanente, Concept
Media, Inc. Videorecording (4 videocassettes). 196 min. Irving, CA: concept Media,
1991.
Contents: pt. 1. "Coping with the news" (48.41 min) - pt. 2. "Understanding HIV" (33:05
min.) - pt. 3. "Lifestyle choices and changes" (51:03 min.) - pt. 4 "Understanding
treatment" (62:32 min.). Includes workbook.
RC607 .A26 N6 pt. 1
RC607 .A26 N6 pt. 2
RC607 .A26 N6 pt. 3
RC607 .A26 N6 pt. 4
"Ojos que no ven.” Institute Familiar de la Raza Latino AIDS Project. Adinfinitum Films.
Videorecording. 55 min. San Francisco, CA: Distributed by Institute Familiar de la Raza,
Latino AIDS Project, 1987. IN SPANISH.
A Spanish language AIDS education tool. Uses a soap-opera format to explain modes of
AIDS transmission as well as prevention measures. Presents culturally appropriate
treatment of teenage sexuality, homosexuality, IV drug use, and prostitution.
RC607 .A26 036 1987
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"Our worst fears: the AIDS epidemic." Films for the Humanities and Sciences. Videorecording.
57 min. Princeton, NJ: Distributed by Films for the Humanities and Sciences, 1988.
An examination of the AIDS epidemic that provides information on the modes of
transmission and the high risk groups and activities, includes brief profiles of a number of
AIDS victims, and features medical experts who discuss current treatment strategies and
ongoing medical research. Includes statistics on the spread of AIDS in the United States
through January 1988.
RC607 .A26 0968 1988
"Overcoming irrational fear of AIDS." Arthur J. Lange. Carle Medical Communications Norman
Baxley and Associates. Videorecording. 22 min. Urbana, IL: Distributed by Carle Medical
Communications, 1987.
Explains the complex feelings of health care providers who work with AIDS patients.
Presents a rational-emotive approach to assist in surmounting counter-productive thinking.
Discussion leader's guide included.
RC607 .A26 09 1987
"Recovery is an inside job" New York (State), Dept, of Correctional Services, Division of Health
Service (New York). Videorecording. 54 min. Distributed by New York State Department
of Correctional Service 1991.
A program on addiction and HIV taped on location at Mr. McGregor Correctional Facility
in Wilton, NY. The presenter is a recovering substance abuser, and is HIV-positive.
RA644 .A25 R4
"Safe sex." Phil Donahue. Films for the Humanities (Firm). Multimedia Entertainment.
Videorecording. 28 min. Princeton, NJ: Distributed by Films for the Humanities, 1987.
Segment from the television program: Donahue. Guest panel discusses facts necessary
to prevent sexually-transmitted disease, and whether it is better to discuss safe sex frankly
with teenagers and even with children, rather than risk their becoming infected with AIDS
out of ignorance.
RC607 .A26 123 1987
"Se met ko." Haitian Women's Program of the American Friends Service Committee.
Videorecording. 30 min. New York: The Committee, 1988.
Dramatization of a Haitian family's growing concern and awareness about AIDS as the
epidemic begins to affect their neighborhood. Culturally sensitive, with accurate social and
medical information. Spoken in Haitian Creole with English subtitles.
RA644 .A25 S4 1990
"Straight Talk: David talks to teens about drug use and AIDS" New York State Health
Department. Videorecording. 19 min. Albany, NY: New York State Health Department.
David, a person with AIDS, discusses his drug use behavior and his connection with
AIDS. He explains the need to seek treatment for those who are on drugs and discusses
alcohol as a drug that can impair one's judgment about risk reduction. The audience asks
him questions about his symptoms and how he feels about the possibility of dying.
RC607 .A26 S78
AIDS Resource Library - VIDEOS
-33-
"The Subject is: AIDS." Videorecording. 18 min. New York: Distributed by O.D.N
Productions, 1987.
Rae Dawn Chong presents the facts on AIDS for teenagers.
RC607 .A26 S9 1987
"Talk about AIDS." Levi-Strauss & Co. Videorecording. 19 min. San Francisco, CA: Distributed
by San Francisco AIDS Foundation, 1987.
Employees of Levi-Strauss & Co. in Mississippi, Arkansas and California were
interviewed to find out what their fears and questions were regarding AIDS. The video
focuses on how AIDS is and is not transmitted. Scientific research evidence is discussed
by professionals to illustrate that AIDS is not transmitted through casual contact. Also
discussed is how to protect yourself from AIDS and how to talk to your children about the
disease.
RC607 .A26 T3 1987
"Teen AIDS in focus." Kenwood Group, San Francisco Dept, of Public Health. Videocassette.
17 min. San Francisco, CA: The Department, 1989.
Powerful video focusing on three young people who have HIV infection or AIDS, and
their hopes and fears as they face their illness. Racially diverse and suitable for teenagers
and adults.
RC607 .A26 T4 1989
"Telling teens about AIDS." Derek Muirden, Julius Erving, Max Gomez. Videorecording.
47 min. [Princeton, NJ]: Distributed by Films for the Humanities & Sciences, 1988.
Teens, and those who contracted AIDS in their teens, seek to penetrate the walls that
are thrown up every time an adult seeks to warn teens about any danger. Helps teachers
and parents confront the issue of AIDS and shows how an innocent liaison can lead to
death.
RC607 .A26 T4 1988
"Time out: the truth about HIV, AIDS, and you" Arsenio Hall and Earvin "Magic" Johnson.
Videorecording. 42 min. Hollywood, CA: Paramount Pictures, 1992.
An entertaining music-filled and honest look at HIV and AIDS, including interviews with
"Magic" Johnson, and guest appearances by many celebrities. Targeted to teenage and
young adult audiences. Closed captioned for the hearing impaired.
RC607 .A26 T5 1992
"Understanding AIDS what teens need to know." Videorecording. 19 min. Pleasantville, NY:
Distributed by Sunburst Communications, 1988.
Medical doctors present facts and address questions which come up in a discussion
among a group of teenagers about AIDS. A teacher's guide is included.
RC607 .A26 U5 1988
AIDS Resource Library - VIDEOS
-34-
"USAIDS: small town dilemma. "Bill Stenger, Slawomir Grunberg. Videorecording. 58 min.
Ithaca, NY: Keylight Productions, 1988.
A personal look at several families who have members infected with AIDS. Family
members discuss how this disease has changed their lives and how they cope. Focus is
on the negative reactions they have encountered in their communities including protests,
threats, isolation of children from schools, being forced out of public buildings and being
turned away at the doctor's office.
RC6O7 .A26 U8 1988
"Une cuestion de vida o muerte = A question of life or death." Costar Spanish International
H.P.S. Productions, Videorecording. 20 min. Albany, NY: distributed by New York State
Health Dept., 1988.
A dramatic presentation of a Hispanic family faced with the threat of AIDS. Ivette and
Carmen are Josephinas two daughters, Carmen is engaging in unprotected sex with a
former drug user turned dealer. Ivette finds out and the sisters have a talk about possible
pregnancy and AIDS. The film ends with the family waiting for results of the AIDS test and
praying that Carmen will be spared from the disease.
RA644 .A25 C8 1988 ARL
"We bring a quilt." The NAMES Project. Videorecording. 30 min. San Francisco, CA: The
NAMES Project, 1988.
The AIDS Memorial Quilt covered the Ellipse in Washington, D.C. on the weekend of
October 7, 1988. This documentary is a moving chronicle of that event, dedicated to the
thousands of people who have been touched by the AIDS epidemic.
RA644 .A25 W4 1988
"We care: a video for care providers of people affected by AIDS." Women's AIDS Video
Enterprise (WAVE) Videorecording. 32 min. New York: USA Studios, 1990
Offers basic information, advice and practical support to care providers of people
affected by HIV/AIDS. Dispels some common myths and addresses fears in a down-toearth and understandable way. An HIV positive woman gives a tour of her home to
demonstrate how little things have changed for her or her family now that she is HIV
positive. This video is geared toward care providers, but can be used with a wide
audience.
RC607 .A26 W4
"What do you know about acquired immune deficiency syndrome: The national AIDS awareness
test." Videorecording. 120 min. New York: Distributed by Metropolitan Life, 1987.
Hosted by broadcast journalist Steve Bell and actress Morgan Fairchild. A two-hour
program originally shown on TV which features a multiple choice test format. There are 55
questions in nine categories: the Epidemic; Who Gets It?; How You Get It; Safe Sex; the
Bloodstream; What Happens to You; the Cost; the Blood Test; AIDS and You. Answers to
these questions are discussed by medical experts. Includes a pamphlet which lists the test
questions. Appropriate for high school on up.
RC607.A26 W4 1987
"When the family gets AIDS." Bill Stenger, Slawomir Grunberg. Videorecording. 28 min.
Ithaca, NY: Keylight Productions, 1988.
Documents a year in the life of the Stenger family.
RC6O7 .A26 W43 1988
AIDS Resource Library - VIDEOS
-35-
"With loving arms." Child Welfare League of America, State of the Art, Inc. Videorecording.
19 min. Washington, DC: State of the Art, Inc.: Child Welfare League of America, 1989.
RC607 .A26W5 1989
"Women with AIDS." Phil Donahue Films for the Humanities. Videorecording. 28 min.
Princeton, NJ: Films for the Humanities, 1987.
From the television program: Donahue. A panel discusses AIDS in women. The panel
includes a husband and wife, former I.V. drug users, with ARC; a former I.V. drug
user/prostitute with AIDS; a former I.V. drug user with ARC whose infant baby tested
positive for the virus, but later tested negative; a single female reporter who wrote an article
on AIDS prevention; and an M.D. who works in an AIDS program.
RC607.A26 W6 1987
Monroe Community College
AIDS Resource Center
RECENT ADDITIONS TO THE AIDS RESOURCE LIBRARY'S COLLECTION
BOOKS:
Acquired immune deficiency syndrome: biological, medical, social, and legal
issues. Gerald Stine 462p Englewood Cliffs, NJ: Prentice Hall, 1993.
RC607 A26 S75 1993
AIDS a communication perspective. Timothy Edgar, editor. 263p Hillsdale,
NJ: Lawrence Erlbaurn Associates, Publishers, 1992.
RA644 A25 A2863 1992
AIDS: a guide for survival Harris County Medical Society, Houston Academy
of Medicine. 90p Houston, FX: Harris County Medical Society and Houston
Academy of Medicine, 1992.
RC607 .A26 1992
AIDS in Africa: its present and future impact. Tony Barnett, Piers Blaikie
193p New York: T he 6u i 1 f ord Preos, 1992.
RA644 A25 835 1992b
AIDS prevention through eaucatiom a 'world view Jaime Sepulveda, editor.
382p New York: Oxford University Press, 1992
RA644 .A25 P3654 1992
AIDS: problems and prospects. Lawrence Corey, editor. I62p New York: 'w.
W. Norton & Co , 1993
RC607 ,A26 A34883 1993
AIDS treatment news, volume 2: issues 76 through 125, April 1989 through
April 1991. John S. James. 627p Berkeley, CA: Celestial Arts, 1991.
RC607 A26 J35 1989 V. 2
Circle of hope: our stones of AIDS, addiction, & recovery. Perry Tilleraas
364p San Francisco, CA: Harper &. Row, Publishers, 1990.
The color of light. Perry Tilleraas. 35Op New York: HarperCollins
Publishers, 1988.
6V 4910 3 T54 1988
Condoms in the schools Sarah E Samuels, editor. 137p Menlo Park, CA
Henry J. Kaiser Foundation, 1993.
HQ57.5 ,C66 1993
Conference summary report: VIII International Conference on AIDS/ III STD
World Congress, Amsterdam, tne Netherlands 19-24 July 1992. Harvard
AIDS Institute, Dutch Foundation AIDS Conference 1992. 64p Amsterdam,
the Netherlands: CONGREX Holland B V., 1992.
PA644 A25 156 1992a
Dictionary of AIDS related terminology. Jeffrey T. Huber. 165p New York
Neal Schuman Publishers, Inc., 1993.
RC607 .A26 H895 1993
VIII International Conference on AIDS/ III STD World Congress, Amsterdam,
t h e N e t h e r I a n d s 19-24 J u 1 y 1992. Ha r v a rd U n i ver s 11 y, D u t c n F o u n d a 11 o n
AIDS Conference 1992. 3 vols. Amsterdam, the Netherlands: CONGREX
Holland B. V.. 1992.
RA644 .A25 156 1992 V. 1
RA644 A25 156 1992 V. 2
RA644 A25 156 1992 V. 3
The essential HIV treatment fact book. Laura Pinsky, Paul Harding Douglas
448p N e w V o r k: P o c k e t B o o k s. 199 2
RC607 A26 D69 1992
Evaluation and management of early HIV infection. U.S. Agency for Health
Care Policy and Resarch, U S. Dept, of Health and Human Services. 196p
Rockville, flD. U.S. Dept, of Health and Human Services, 1994
RC607 A26 E9 1994
HIV positive: perspectives on counseling. Marot Tallrner, editor.
Philadelphia: The Charles Press, Publishers., 1991.
RC607 ,A26 H577 1990
13p
HiV+ working the system. Robert A. Rirnem Michael A. Connolly
Boston: Alyson Publications, Inc., 1993.
PC607 A26 P545 1993
36p
HIV prevention and AIDS education: resources for special educators.
Elizabeth Byrorn, Ginger Katz., editors 34p Reston, VA: The Council for
Exceptional Children, 1990.
RA644 ,A25 H5o 1990
The HiV test: what you need to know to rnake an inforrned decision. Marc E
Vargo I43p New York. Pocket Books, 1992.
RC607 A26 V36 1992
HiV/AIDS: the evolution of the pandemic, the evolution of the response U.S.
Agency tor international Development, Program for Prevention and Control
o t HIV I n f e c 11 o n 5 5 p W a s h i n g t o n, D CT h e A g e n c u 1993
RA644 a25 H56 1993
immune power a comprehensive treatment program for HIV Jon kaiser
2 40 p N e w Y o rk: St. Martin’s P re s s, 19 9 3
RC607 A26 K35 1993
In the midst of winter. Gillian Walker 362p New York: W. 'W. Norton &. Co.,
i 991
RC607 a26 W34 1991
The invisible epidemic the story of women and AIDS. Gena Corea 356p New
York: HarperCollins Publishers, 1992.
RA644 A25 C665 1992
s
Living in hope: a 12-step approach for persons at risk or infected with HIV
Lindy Mikiuscak-Cooper, Ernrnett Miller. 319p Berkely, CA: Celestial Arts,
199 f.
RC607 .A26 1'154 1991
Management of HIV infection in infants and children Ram Yogev, Edward
Conner. 639p St Louis: Mosby Year Book, 1992.
RJ367 A25 M26 1991
Manual de recursos para el SIDA. Elly Bulkin, Dera Gomez, Benjamin Guzman
220p New York: New York State Dept, of Social Services, 1993.
RC607 .A26 11362 1993
Multicultural human services for AIDS treatment and prevention. Julio
Morales, Marcia Bok. 122p New York: Harrington Park Press, 1992.
RA644 .A25 M855 1992
Muses from chaos and ash: AIDS, artists, and art Andrea R. Voucher. 260p
New York: Grove Press, 1993.
NX504.V38 1993
National HIV seroprevalence surveys: summary of results: data from
s e ro s u r v e i 11 a n c e a c 11 v 111 e s t h r o u g h 19 8 9. C e n t e rs f o r D i s e a s e C o n t ro 1. 2 6 p
Atlanta, GA: U.S. Department of Health and Human Services. 1990
RA644 ,A25 N37 v. 1
National HIV serosurveillance summary volume 2- results through 1990.
Centers for Disease Control 36p Atlanta, GA: U.S. Deptartment of Health
and Human Services, 1991.
HV644 A25 N37 V. 2
Needle exchange. Jeff Stryker, Mark D. Smith, editors. 182p Menlo Park, CA:
H. J. Kaiser Family Foundation. 1993
RA 644 A25 N43 1 993
Pediatric HIV continuum of care study: final report, July 10, 1992. New York
State Department of Health, Bureau of HIV Health Care Albany, NY. Center
for Health Policy Studies. 1992.
RJ387 A25 P4 1992
Preventing HIV transmission in health care settings. National Commission
on Acquired Immune Deficiency Syndrome. 47p Washington, D. C National
Commission on AIDS, 1992.
RC607 A26 U55 1992
The public health impact of needle exchange programs in the United States
and abroad. School of Public Health, University of California. 52ip
Berkeley, CA: The Regents of the University of California, 1993.
RA644 .A25 S37 1993
The public health impact of needle exchange programs in the United States
and abroad: summary, conclusions and recommendations. School of Public
Health, University of California. 43p Berkeley, CA: The Regents of the
University of California. 1993.
RA644 A25 S372 1993
Risky sexual behaviors among African-Americans Ernest H. Johnson. 180p
Westport, CT Praeger, 1993.
RA644 A25 J63’ 1993
The slow plague: a geography of the AIDS pandemic. 22up Cambridge, MA.
Blackwell Publishers, 1993.
RA644 A25 13685 1993
I
The social impact of AIDS in the United States National Research Council
3 2 2 p 'V a s h i n g t o n, D C.. N a t i o n a 1 A c a de rn y P re s s, 1997
RA644 A25 N27 1993
VI DECiS'
Alicia.' David Garcia Productions, KCET, Latino Consortium, Current Affairs
Multimedia. Videorecording 21 min Los Angeles, CA: Current Affairs
Multimedia, 1990.
In Spanish. The story of a woman who contracts HIV from her IVDU
husband and passes the disease on to her child in utero.
RC607 A26 A4 1990
"Bottom line AIDS information for co liege students." New York State
Department of Health. Videorecording 35 min Albany, NY: New York State
Department of Health.
This video uses dramatizations, interviews and other approaches to
inform college students of risky behaviors, modes of HlV transmission,
ways to avoid infection, and benefits of testing and early treatment,
RC607 A26 B6
"Choices, HIV testmg for women and children." New Vork State Department
of Health. Videorecording 23 min Albany, NY: New York State Health
Department. 1990.
Drama portraying six women at risk for HIV/Al DS, their decisions
about HIV testmg, and its impact on their lives.
RC607 .A26 C45 1990
"Clean needles save lives, drug users doing it for ourselves." Gay Men s
Health Crisis, Inc. Videorecording 29 min New York: Gay Men's Health
Crisis, 1991.
Depicts community-based HIV prevention programs for intravenous
drug users in New York City. Reflects "harm-reduction" approach and
includes coverage of a needle exchange program. Techniques for sterilising
used syringes are demonstrated.
RA644 ’A25 C55 1991
" C o u n sen n g c h a 11 e n g e s o f e a r I y HIV i n f e c 11 o n" B u rro u g h s W e 11 c o r n e
Cornpar.g, '.vorld Health Communications, Inc. Videorecording 48 min
Resaerch Triangle Park, NC: Burroughs Wellcome Co., 1992
Discusses the facts of living with HIV. the benefits of early
intervention, the value of social support in deal’ng with anxiety, and the
elements of self care.
RC607 A25 C6 1992
"Eating defensively: food safety advice for persons with AIDS." Li. 5 Food &
Drug Administration, Centers for Disease Control, National AIDS information
Clearinghouse. Videorecording 14 min Washington. D.C.. The Administration
and the Centers. 1989.
Teaches the hazards of unclean or undercooked food for any
immunocompromised patient. Gives recommendations on food selection and
preparation Applies to cancer patients and weak patients as well as those
with AIDS.
"Hiv and the health care worker" Julie Louise Serberding, John fl. Luce
Videorecording 33 min Research Triangle Park, NC: Glaxo Inc., 1992
Techniques that medical personnel performing invasive procedures or
contacting blood can use to avoid HIV infection: suggests procedures to
follow when worker has accidentally been exposed to HIV on the jot.
PC607 A26 H5 1992
"• have AIDS: a teenager's story." Children's Television Workshop,
'■■■'’deorecording 2'5 min New York- Children s Television Workshop, 1989.
The story of Ryan White of Kokomo, Indiana, who contracted HIV from
a blood tranfusion Ryan answers questions asked by his school friends about
AIDS Learn why one need not be afraid to go to school with a student who
has AIDS.
RJ387 .A25 12 1989
"Jugandose la vida: la razon por la cual los drogadictos deben informarse
sobre el SIDA " New York State Department of Health, Division of Substance
Abuse Services. Videorecording 15 min Albany, NY: New York State
Department of Health. 1990
"Set in a New York barrio, this short drama about an intravenous drug
user shows how communication between friends about AIDS can create
behavioral change." In Spanish.
RA644 A25 48 1990
"Las pobiacion ignorada: rnujeres CON SIDA." Hector Galan, Galan
Productions, Inc., KCET Videorecording 29 min Los Angeles, CA: Galan
Productions, inc., KCET, 1990
Hispanic American women are being increasingly infected with HIV
and subsequently developing AIDS. More than half of these women are IV
drug users and others are infected by husbands or lovers, Decribes the
experiences and difficulties encountered by these women and informs
viewers about the consequences of behavior that can expose them to AIDS
RA644 A25 P6 1990
"A positive influence." Greater Los Angeles Council on Deafness.
Videorecordinq 46 min Los Ange 1 es, CA: The Counc11, 1992.
Open-captioned; signed with subtitles, in this dramatization a young
deaf woman and her family educate themselves and others about HIV/AIDS
after she tests positive for the virus. Cast includes Louise Fletcher.
RC607 .A26 Rd 1992
"The psychology of treating patients with HIV disease." Burroughs Wellcome
Company, World Health Communications, inc, Videorecording 20 min NV:
Burroughs Wellcome Company, 1989,
Designed for health care professionals. Discusses the characteristics
of HIV depression and guidelines for combatting it.
RC607 ,A26 P68 1989
5/30^4^
AIDS SURVIVAL PROJECT
TREATMENT RESOURCE LIBRARY
INDEX OF BOOKS
ACUPUNCTURE WITHOUT NEEDLES (J.V.Cerney -1983)
ADVICE FOR LIFE - A Woman’s guide to AIDS Risks and Prevention.
(Chris Norwood - 1987)
AIDS - A CATHOLIC CALL FOR COMPASSION (Eileen P. Flynn - 1985)
AIDS - A GUIDE FOR SURVIVAL (An educational program sponsored by
physicians - 1988)
AIDS - A SELF-CARE MANUAL (BettyClare Moffat, Judith Spiegel,
Steve Parrish, Michael Helquist - 1987)
AIDS AND CHINESE MEDICINE (Qingcai Zhang, Hong-yen Hsg - 1990)
AIDS AND THE LAW (Harlon L. Dalton, Scott Burris, Yale AIDS Law
Project - 1987)
AIDS BUREAUCRACY, THE (Sandra Panem - 1988)
AIDS EPIDEMIC, THE (Kevin M. Cahill - 1983)
AIDS EPIDEMIC, THE (Padraig O’Malley - 1989)
AIDS HEALTH SERVICES AT THE CROSSROADS - Lessons for
Community Care (The Robert Wood Johnson Foundation - 1972)
AIDS IN THE WORLD - A Global Report (Jonathan Mann, Daniel
Tarantola, Thomas Netter - 1992)
AIDS LIFELINE (National AIDS Network - 1987)
AIDS PHOBIA (Hans Jager - 1988)
AIDS - PUBLIC POLICY DIMENSIONS (United Hospital Fund - 1987)
AIDS - TERROR, TRUTH, TRIUMPH (Michael L. Culbert - 1986)
I
r. .□
AIDS - THE DEADLY EPIDEMIC (Graham Hancock & Enver Carim - 1987)
AIDS - THE MYSTERY & THE SOLUTION (Alan Cantwell, Jr. > 1984)
AIDS - THE ULTIMATE CHALLENGE (Elizabeth Kubler-Ross - 1987)
I
i
j>
AIDS - TRADING FEARS FOR FACTS - A Guide for Teens (Karen Hein,
Theresa Foy Digeronimo - 1989)
AIDS TREATMENT NEWS - Issues 1 through 75 (John S. James - 1989)
AIDS - YOU CAN’T CATCH IT HOLDING HANDS (Niki de Sairt Phalle 1987)
AIDS - YOUR CHILD & THE SCHOOL (Danek S. Kaus and Robert D. Reed 1986)
is
ASPECTS OF ALCOHOLISM (J.B. Lippincott Company - 1963)
ASPECTS OF ANXIETY (J.B. Lippincott Company - 1965)
BASIC MICROBIOLOGY - Fifth Edition (Volk & Wheeler - 1984)
BODY AND MIND (Keith Campbell - 1970)
I.
y
p
!?
CANDIDA ALBICANS YEAST-FREE COOKBOOK, THE (Pat Connolly 1985)
CAREGIVERS' JOURNEY, THE - When You Love Someone With AIDS. (Mel
Pohl, Deniston Kay, Doug Toft - 1991)
ii
■i
CARING FOR THE PATIENT WITH CANCER - At Home, A Guide for
Patients and Families. (American Cancer Society)
CELL PHYSIOLOGY (Giese - 1968)
.
CHILDREN AND THE AIDS VIRUS - A Book for Children, Parents &
Teachers. (Rosemarie Hausherr - 1989)
(j
CHURCH AND THE HOMOSEXUAL, THE (John J. McNeill - 1976)
i!
If
I
COLON HEALTH: THE KEY TO A VIBRANT LIFE (Norman W. Walker 1979)
CONFESSIONS OF A KAMIKAZE COWBOY (Dirk Benedict - 1987)
COPING WITH AIDS - Psychological and Social Considerations in
Helping People with HTLV-III Infection - 1987)
DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS
(American Psychiatric Association - 1987)
DIAGNOSTICS - Patient Preparation, Interpretation, Sources of Error,
Post-Test Care. (Nurses reference Library - 1983)
DIAGNOSTIC TESTS - Clinical Pocket Manual (Nursing85 Books 1985)
DIET FOR A SMALL PLANET (Frances Moore Lappe - 1982)
DISCOVER YOUR SELF-CONFIDENCE (Robert H. Schuller - 1978)
DRUGS AND NURSING IMPLICATIONS (Laura E Govoni, Janice E Hayes 1971)
EVALUATION AND MANAGEMENT OF EARLY HIV INFECTION (U.S. Dept of
Health and Human Services - 1994)
EATING HINTS - Recipes and Tips for Better Nutrition During Cancer
Treatment. (U.S. Dept of Health and Human Services - 1987)
EATING WISELY EATING WELL - A Guide to Healthy Eating tor the HIVPositive Person. (Ron Smith, William Brandon - 1991)
EPIDEMIC OF COURAGE • Facing AIDS in America (Lon G. Nungesser 1986)
FACE TO FACE - A Guide to AIDS Counseling (James Dilley, Cheri
Pies, Michael Helquist - 1989)
FIRST LIGHT (Peter Ackroyd - 1989)
GAY MEN'S HEALTH - A Guide to the AID Syndrom & Other Sexually
Transmitted Diseases. (Jeanne Kassler - 1983)
I
L
P.5
I
GUIDE TO MEDICAL TERMINOLOGY (Wallace and Anne Clark - 1956)
HEALING MIRACLES FROM MACROBIOTICS - A Diet for All Diseases
(Jean Charles Kohler and Mary Alice Kohler - 1979)
HIDDEN CAUSES OF IMPOTENCE, THE (The Institute of Human Health &
Wellness - 1986)
HIV (R.D. Westaway - 1991)
HOME CARE FOR THE DYING - An Authoritative, Reassuring Guide to
Physical and Emotional Care (Deborah Whiting Little - 1985)
HOMOSEXUAL MATRIX, THE (C.A. Tripp - 1976)
HOPEFUL LIVING - How To Put Regeneration to Work in your Life (Bob
Rodale - 1987)
HOSPICE - A Handbook for Families and others facing terminal
illness. (Elisabeth Kubler-Ross - 1983)
HOW TO START WORRYING AND START LIVING (Dale Carnegie - 1953)
HOW TO GET CONTROL OF YOUR TIME AND YOUR LIFE (Alan Lakein 1973)
HOW TO BE YOUR OWN NUTRITIONIST (Stuart M. Berger - 1987)
INFECTIOUS DISEASES OF THE FEMALE GENITAL TRACT (Richard
Sweet, Ronald Gibbs - 1985)
INTERNATIONAL CONFERENCE ON AIDS, III ( U.S. Dept of Health and
Human Services - 1987)
INTERNATIONAL CONFERENCE ON AIDS, III - Subject Index to
Abstracts (U.S. Dept of Health and Human Services - 1987)1985)
INTERPERSONAL CHANGE - A Behavioral approach to nursing practice
(Maxine Loomis and JoAnne Horsley - 1974)
INTRAVENOUS MEDICATIONS - A Handbook for nurses and other allied
health personnel (Betty L Gahart - 1981)
b
INTRODUCTION TO ARRHYTHMIA RECOGNITION (California Heart
Association - 1968)
INVISIBLE EPIDEMIC, THE - The Story of Women and AIDS (Gena Corea
- 1992)
LIFT UP YOUR HEART - A Treasury of inspiration and comfort (Ralph
L. Woods - 1971
LIVING SOBER - Some methods A.A. members have used for not
drinking (A.A. World Services - 1975)
LIVING WITH THE AIDS VIRUS - A Strategy for Long-Term Survival
(Parris Kidd, Wolfgang Huber - 1991)
LIVING WITH AIDS - A Self-Care Manual (AIDS Project Los Angeles)
LIVING WITH AIDS - Reaching Out (Tom O'Connor with Ahmed
Gonzalez-Nunez - 1987)
MANAGEMENT OF HIV INFECTION TREATMENT TEAM WORKSHOP
HANDBOOK
MEDICAZL CLINICS OF NORTH AMERICA, THE (Burroughs Wellcome Co 1990)
MENTAL DISORDERS - Diagonostic and Statistical Manual (American
Psychiatric Association - 1968)
MIND OF THE CELLS, THE - Willed Mutation of our Species (Satprem 1981)
NEUROLOGICAL AND NEUROSURGICAL NURSING (Barbara Lang ConwayRutkowski - 1982)
NO TIME TO WAIT - A Complete Guide to Treating, Managing and
Living with HIV Infection. (Nick Siano with Suzanne Lipsett - 1993)
NUTRITIONAL DATA (H.J.HEINZ COMPANY - 1960)
ON BEING DIFFERENT - What it means to be a Homosexual (Merle
Miller - 1971)
H. i
ON DEATH AND DYING - What the dying have to teach doctors, nurses,
clergy and their own families. (Elisabeth Kubler-Ross - 1969)
OUT OF THE CLOSETS - Voices of Gay Liberation (Karla Jay and Allen
Young - 1977)
PERSONAL DISPATCHES - Writers confront AIDS (John Preston 1988)
PHYSIOLOGY OF THE HUMAN BODY (Guyton -1979)
PLAGUE YEARS, THE- A Chronical of AIDS, The Epidemic of our Times.
(David Black - 1985)
PLAIN WORDS ABOUT AIDS (Wm Hovey Smith - 1988)
POCKET GUIDE TO NURSING DIAGNOSES (Mi Ja Kim, Gertrude
McFarland, Audrey McLane - 1984)
POCKETBOOK OF INFECTIOUS DISEASE THERAPY (John G Bartlett 1991)
POSITIVE EMOTIONAL POWER (Stanley Ainsworth - 1981)
PRODUCTIVE LIVING STRATEGIES FOR PEOPLE WITH AIDS (Michael
Pizzi, Jerry Johnson - 1990)
PSYCHO-CYBERNETICS - A New Way to Get More Living Out of Life
(Maxwell Maltz - 1977)
QUESTIONS AND ANSWERS ON DEATH AND DYING (Elisabeth KublerRoss - 1974)
REAL TRUTH ABOUT WOMEN AND AIDS, THE - How to Eliminate the
Risks Without Giving Up Love and Sex (Helen Singer Kaplan - 1987)
RECIPIES FOR A SMALL PLANET (Ellen Buchman Ewald - 1973)
RECOVERING FROM RAPE - Practical Advice on Overcoming the
Trauma and Coping with Police, Hospitals, and Court-for Survivors
of Sexual Assualt and for their Famililes, Lovers, and Friends. (Linda
Ledray - 1986)
P.8
REGENERATION OF HEALTH AND THE HUMAN SPIRIT (Prevention
Regeneration Project - 1986)
RESPIRATORY EMERGENCIES (Kenneth M Moser, Roger Spragg - 1982)
[• 1
REVELATIONS - A Collection of gay male coming out stories. (Wayne
Curtis - 1988)
RISK AND RECOVERY - AIDS, HIV and Alcohol (Marcia QuacKenbush,
J.D.Benson - 1992)
SAFE SEX IN A DANGEROUS WORLD - Understanding and cooing with
the threat of AIDS. (Art Ulene - 1987)
SEARCH FOR THE VIRUS, THE - The Scientific Discovery of AIDS and
the Quest for a Cure. (Steve Connor and Sharon Kingman - 1989)
SEAT OF THE SOUL, THE (Gary Zukav - 1989)
SELF-LOVE (ROBERT H. SCHULER - 1969)
SERENITY - Challenging the Fear of AIDS from Despair to Hope.
Support and Guidance for People with HIV, Their families friends,
and caregivers. (Paul Reed - 1986)
SEX AND THE AMERICAN TEENAGER (Robert Coles & Geoffrey Stokes 1985)
SEX POSITIVE - A Gay contribution to Sexual and Spiritual Union
(Larry J. Uhrig - 1986)
STRANGE VIRUS OF UNKNOWN ORIGIN, A (Jacques Leibowitch - 1984)
SURGEON GENERAL'S REPORT ON NUTRITION AND HEALTH, THE (U.S.
Dept of Health and Human SErvices - 1988)
TAKE THIS BOOK TO THE HOSPITAL WITH YOU (Charles Inlander and Ed
Weiner - 1985)
THANKSGIVING - An AIDS Journal (Elizabeth Cox - 1990)
T
F.y
Ti
THINKING AIDS - The Social Response to the Biological Threat (Mary
Catherine Bateson and Richard Goldsby - 1988)
TURNING YOUR STRESS INTO STRENGTH (Robert H. Schuller - 1978)
UNDERSTANDING THE IMMUNE SYSTEM (U.S. Dept of Health and Human
Services - 1990)
UNDERSTANDING AND PREVENTING AIDS - A Book for Everyone (Chris
Jennings - 1988)
WHAT TO DO ABOUT AIDS j- Physicians and Mental Health
Professionals Discuss the Issues. (Leon McKusick - 1986)
WHEN BAD THINGS HAPPEN TO GOOD PEOPLE (Harold S. Kushner 1981)
WHERE THE WIND BLOWS FREE... Reopened (Gordon H. Barker - 1989)
WOMEN, AIDS & ACTIVISM - The ActUp/NY Women & Aids Book Group
- 1990
WOMEN AND HIV/AIDS - An International Resource Book (Marge Berer
- 1993)
YOU CAN DO SOMETHING ABOUT AIDS (Sasha Alyson - 1988)
L--
Appendix 4: A Selected Guide to HIV/AIDS Bulletin Board Systems
AIDS information projects can benefit from electronic bulletin boards and Internet resources that
include information about HIV and AIDS. This appendix does not include every system available, but
provides an entry point for locating information.
Guide to Selected AIDS-Related
Electronic Bulletin Boards
and Internet Resources*
This is a guide to selected electronic bulletin boards and Internet resources containing information
about HIV infection and AIDS. This guide is not a complete listing of all computerized AIDSrelated services, but has been prepared as an introduction to the subject and can be used as a
starting point to locate information. This document was prepared by the CDC National AIDS
Clearinghouse (CDC NAC). Inclusion of a service does not imply endorsement by the Centers
for Disease Control and Prevention, CDC NAC, or any other organization.
Introduction to Electronic Bulletin Boards
Electronic bulletin board systems, often called BBS’s or bulletin boards, are computerized
information services that are accessed by using a computer, a modem, and a telephone line. The
Internet is a huge network of computerized services described in more detail later in this guide.
Both technologies meet today’s demands for current news on HIV infection and AIDS and
provide a convenient means for information exchange among professionals, volunteers, and
individuals involved in the fight against AIDS.
BBS’s and computer networks can consist of any of the following features: electronic mail,
bulletin board forums, searchable databases, and transferrable information files. Electronic mail,
also called email, is a convenient way of sending private messages to others using the same
system. Bulletin board forums, sometimes called conferences, are interactive systems for posting
public messages to groups of users connected to the same system. Searchable databases can
sometimes be accessed through BBS’s and networks, providing a quick means of obtaining
specific information such as bibliographic references, full-text articles, and information about
organizations. Text files of information can be downloaded from most systems, then later edited
and/or printed at the user’s computer.
To access a BBS, your computer (IBM-compatible or Macintosh) must be equipped with a modem
(external or internal; preferably 9600-baud or greater) and communications software (such as
ProComm, CrossTalk, or Red Ryder). The modem must be connected to the computer and to a
phone line. It is optimal, but not necessary, to use a phonejack separate from any telephones;
the phone and the modem can use the same phone line, but not simultaneously. Unless your
organization is linked to the Internet with a direct connection (as a "node"), you will also need
a modem and software to link to an Internet access point.
*Information in this guide is current as of October 28, 1994. If you have any changes, additions, or
comments about this guide, contact John Fanning or David Jackson at the CDC National AIDS
Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003; (800) 458-5231; Fax: (301) 738-6616.
CDC NAC ONLINE
CDC NAC ONLINE is the computerized information network of the CDC National AIDS
Clearinghouse and gives non-profit AIDS-related organizations direct computerized access to the
CDC NAC and its information and bulletin board services. It contains the latest news and
announcements about many critical AIDS- and HIV-related issues, including prevention and
education campaigns, treatment and clinical trials, legislation and regulation, and upcoming
events. CDC NAC ONLINE provides direct access to CDC NAC databases, such as the
Resources and Services Database of organizations providing AIDS-related services. The system
also features electronic mail and interactive bulletin board forums, and is the original source of
the AIDS Daily Summary newsclipping service.
CDC NAC ONLINE users include U.S. Public Health Service agencies, universities, health
departments, community-based organizations, and other organizations working in the fight against
AIDS. CDC NAC ONLINE is a free service and can be accessed by dialing a toll-free number.
Users must first obtain a username and password. For a registration form or more information,
call the Clearinghouse at (800) 458-5231.
Electronic Bulletin Boards
Unless otherwise stated, services are free. The phone number listed at the top right of each record
is the data-line that can be dialed with a modem. Some of these BBS’s provide access to national
forums. Messages posted on these forums are "echoed" on networks linking BBS’s throughout
the country. Examples of these forums include the FidoNet AIDS/ARC forum, the UseNet
Sci.med.aids newsgroup (available on Internet as the AIDS listserv), the GayCom, Studsnet,
Pridenet, and other large affiliated networks.
AEGIS World HQ
San Juan Capistrano, CA; (714) 248-2836
AEGIS World HQ BBS is the hub of the AIDS Education and General Information
System (AEGIS), a growing network of HIV-related electronic bulletin boards (see
AEGIS section of this document). It includes many newsletters, hundreds of files that can
be downloaded, and has a comprehensive collection of AIDS education and prevention,
treatment, and legal information. It is available via PC Pursuit. Anyone can access
AEGIS free at connections up to 9600 baud. For more information, contact Sister Mary
Elizabeth, Sisters of St. Elizabeth of Hungary, P.O. Box 184, San Juan Capistrano, CA
92693-0184; Internet address: mary.elizabeth@aegis.hivnet.org .
After Dark
Sarasota, FL; (813) 377-6443
After Dark is a gay, lesbian, and bisexual forum that includes AIDS-related information
from CDC NAC ONLINE. Connections up to 2400 baud are available. For additional
information contact: Jim Morton, 4620 Parnell Drive, Sarasota, Florida 34232 (813)
377-2516.
AIDS Info BBS
San Francisco, CA; (415) 626-1246
AIDS Info BBS is a long-established comprehensive electronic bulletin board targeted
primarily to HIV-positive individuals, persons with AIDS, and others concerned about
HIV infection. It contains hundreds of articles including articles from AIDS Treatment
News, electronic mail, and an open forum. Anyone can access AIDS Info BBS free. For
more information, contact Ben Gardiner, AIDS Info BBS, P.O. Box 1528, San
Francisco, CA 94101.
AtlantaLink BBS
Atlanta, GA; (404) 355-3117
AtlantaLink BBS is a computerized bulletin board for Metro Atlanta AIDS service
providers and is provided free of charge by the Pride Medical Group. AtlantaLink
provides access to AIDS Daily Summaries, AIDS-related newsletters, graphics files, and
discussion groups. For more information contact Pride Medical Group at 404-355-3788
or 404-355-6370 (Fax).
Ban-AIDS BBS
Montgomery, AL; (205) 264-8090
The purpose of Ban-AIDS BBS is to "provide education and communication to the public
concerning the dangers and prevention of AIDS and drug abuse." Ban-AIDS BBS, a
public service run by a non-profit organization, targets heterosexual, homosexual, and
bisexual populations. Callers can remain anonymous. Files and information from CDC
NAC ONLINE are available. For more information, contact Ban-AIDS BBS, Inc., P.O.
Box 3388, Montgomery, AL 36109.
Boston AIDS Consortium SPIN
Boston, MA; (617) 432-2511
SPIN, or Service Provider Information Network, is maintained by the Boston AIDS
Consortium. It includes AIDS Treatment News, statistics from CDC, and other AIDSrelated information. Anyone can access SPIN by connecting online and typing the
username "SPIN." For more information, contact Harvard School of Public Health, 677
Huntington Ave., Boston, MA 02112, (617) 432-0885.
CAIN
By Subscription Only
CAIN is the Computerized AIDS Information Network sponsored by the state of
California. CAIN contains electronic mail, an interactive bulletin board forum, and
databases of upcoming events, educational materials, organizations, and articles. It resides
on the Delphi network; charges for connect time are billed by Delphi. For more
information, contact CAIN c/o Gay and Lesbian Community Services Center, 1625 N.
Hudson Ave., Los Angeles, CA 90028-9998, (213) 993-7415.
Computerized AIDS Ministries Resource Network (NAMYork, NY; (212) 222-2135
The "CAM Resource Network" is sponsored by the Health and Welfare Ministries
Program Department, General Board of Global Ministries, The United Methodist Church.
It includes all FOCUS papers produced by Health and Welfare, as well as many other
files related to AIDS issues from a religious perspective. Organizations and other users
who can not afford the toll call can connect by dialing (800) 542-5921. For more
information, contact Rev. Charles Carnahan, Health and Welfare Ministries Department,
General Board of Global Ministries, The United Methodist Church, Room 350, 475
Riverside Drive, New York, NY 10115; (212) 870-3909; Fax: (212) 870-3873.
CDC WONDER/PC
By Subscription Only
The Centers for Disease Control and Prevention (CDC) offers WONDER/PC as a link
to CDC epidemiological data, public health reports and guidelines, and electronic mail
communication with CDC staff and other public health officials. WONDER/PC’s
information includes knowledge bases related to many other diseases in addition to
HIV/AIDS. Statistics from the datasets can be downloaded and converted into graphs,
charts, and maps. WONDER/PC is a free service with a toll-free number for access.
For more information and a user registration form, write to CDC WONDER Customer
Support, 1600 Clifton Road, NE, MS F-51, Atlanta, GA 30333; (404) 332-4569.
CESAR Board
Washington, DC; (301) 403-8343
CESAR Board is administered by the Center for Substance Abuse Research, University
of Maryland, College Park, and supported by the state’s Drug and Alcohol Abuse
Commission. Includes Maryland AIDS statistics. Within Maryland, call (800) 84CESAR. For more information, contact Center for Substance Abuse Research, 4321
Hartwick Road, Suite 501, College Park, MD 20740, (301) 403-8329.
CHEN
By Subscription Only
CHEN is the Comprehensive Health Education Network sponsored by the Council of
Chief State School Officers, and targeted to state AIDS educators and school education
officials. It contains general information about HIV issues related to schools and includes
the biweekly HIV/AIDS Education Bulletin Board newsletter. Use of CHEN is free to
qualified organizations; software and 800# access are provided. For more information,
contact Council of Chief State School Officers, One Massachusetts Avenue, NW, Suite
700, Washington, DC 20001-1431, (202) 408-5505.
Critical Path AIDS Project BBS
Philadelphia, PA; (215) 563-7160
The Critical Path AIDS Project has developed an electronic bulletin board for persons
with AIDS, researchers, health-care providers, and others. It includes an extensive series
of forums and downloadable files including primarily resource and treatment information.
Anyone can access the system free of charge by typing "BBS" when first connecting to
the system. A 9600-baud connection can be made by dialing (215) 463-7162. A user’s
manual is available. Internet e-mail and Usenet groups are now available. For more
information, contact Critical Path AIDS Project, 2062 Lombard St., Philadelphia, PA
19146, (215) 545-2212.
DAIMP
.
Los Angeles, CA; (310) 825-3736
DAIMP is the Drug Abuse Information Monitoring Project sponsored by the state of
California and maintained by the University of California at Los Angeles, Psychiatry
Department. It includes general information about AIDS as well as several documents
covering AIDS in the workplace issues. Much information about drug abuse trends is
available. Call (310) 825-9057 for more information.
FDA Electronic Bulletin Board
Toll-free; (800) 222-0185
The Food and Drug Administration operates a publicly accessible electronic bulletin
board. Included are a limited number of press releases related to AIDS, such as those
announcing new drug approvals. To access, dial the above modem and enter "BBS" at
the "Login" prompt. Local users in the Washington, D.C.-metropolitan area should call
(301) 227-6849. Those on an FTS2000 line should dial FTS-394-6849 or 394-5657.
There is no charge and users can connect at up to 9600 baud. A users manual and
technical support are also available. For more information, contact the FDA Press Office,
5600 Fishers Lane, Rockville, MD 20857. The bulletin board is also accessible through
the Internet.
FedWorld
Washington, DC; (703) 321-8020
FedWorld is sponsored by the U.S. National Technology and Information Agency and
contains a gateway to over 120 Federal BBS’s, including the OASH BBS (see page 6),
the Indian Health Service BBS, etc. It also has several libraries of files, including reports
from the White House. Connections up to 9600 baud are available. More information
about FedWorld Helpdesk can be obtained by calling (703) 487-4608. FedWorld is also
accessible through Internet.
Fog City BBS
San Francisco, CA; (415) 863-9697
Fog City BBS, an AEGIS member, includes many articles, general information, and the
GayComm Talk About AIDS forum. Although a subscription fee is charged for full
membership, anyone can call Fog City BBS for free AIDS information by connecting
online to and logging on as "AIDS INFO" when prompted for first and last name. For
more information, contact Fog City BBS, 584 Castro Street #184, San Francisco, CA
94114-2588; Fax: (415) 863-9718.
GLIB
Washington, DC; (703) 578-GLIB(4542)
GLIB, the Gay & Lesbian Information Bureau, is maintained by the Community
Educational Services Foundation. It includes treatment information and the GayCom Talk
About AIDS echo. Subscription fees vary and may not be required in some cases. GLIB
is also available through Bell Atlantic’s IntelliGate Service. Anyone can obtain
information about GLIB by connecting online as a visitor. For more information, contact
Community Educational Services Foundation, P.O. Box 636, Arlington, VA 22216,
(703) 379-4568.
HandsNet
By Subscription Only
HandsNet, a nonprofit network providing information about housing and related issues,
is cooperating with the Kaiser Family Foundation to develop an network for AIDS
service organizations and others interested in HIV/AIDS prevention, policy, and funding.
Subscribers pay an initial registration fee and monthly usage fees. For more information,
write to HandsNet, 20195 Stevens Creek Blvd., Suite 120, Cupertino, CA 95014; (408)
257-4500.
HNS HIV-NET
Toll-free; (800) 788-4118
HNS HIV-NET, sponsored by Home Nutrition Services, is an electronic bulletin board
for physicians and other health-care professionals treating HIV-positive patients and those
with AIDS. It contains hundreds of files of newsletter articles, bibliographies, and
graphics files with pictures of opportunistic infections. There are also a number of
different forums, corresponding to different health-care professions. Interested users
should dial the data line to register. After being validated or registered by the sysop (or
"systems operator"), they can call back. For more information, contact John Owens,
MD, HNS HIV-NET BBS, 9037 Kirby Drive, Houston, TX 77054.
HRSA DHS-BBS
Washington, DC; (301) 443-9308
The Health Resources and Services Administration (HRSA), Bureau of Health Resources
Development, Division of HIV Services (DHS) has developed this BBS to disseminate
information to organizations and public health administrations receiving funding from the
Ryan White Comprehensive AIDS Resources Emergency (CARE) Act. Grantees use this
system to report statistics and other data to HRSA using the Uniform Reporting System.
For more information, contact system operator Ron Smith at (301) 443-0652.
Labor News
Washington, DC; (202) 219-4784
Labor News is sponsored by the U.S. Department of Labor and contains information
about regulations from the Occupational Safety and Health Administration, including
access to the OSHA Computer Information System (OCIS) a database of full text OSH A
documents and standards, and other information about preventing occupational exposure
to HIV. Baud rates up to 9600 are available. For more information call the U.S.
Department of Labor, Office of Information and Public Affairs at (202) 523-7343.
Legalnet
St. Petersburg, FL; (813) 343-0543
The Stetson University College of Law’s Legal Information Network sponsors an online
discussion area and a selection of files relating to legal HIV issues. Anyone can access
Legalnet free with connections up to 9600 baud. For more information, contact Stetson
University College of Law, 1401 61st Street South, St. Petersburg, FL, (813) 343-0797.
Matchmaker Mecca BBS
East Brunswick, NJ; (908) 821-1684
Matchmaker Mecca is a gay/lesbian/bi board dedicated to online communication. It also
contains special AIDS sections including a message board for research requests and
discussion. Information includes CDC’s AIDS Daily Summary and Body Positive. New
users must first complete an online questionnaire. For more information, write
Microwave, P.O. Box 7121, Edison, NJ 08818-7121.
Midwest AIDS & HTV Information Exchange
Chicago, IL; (312) 772-5958
MAHIE is a free service for people living with HIV/AIDS, not-for-profit social service
agencies, and medical professionals. MAHIE, an ORACOMM Plus BBS, has an online
tutorial which guides new users through its system. It provides a database of service
providers, services, and agencies; the AIDS Daily Summary, news from CDC and the
National Institutes of Health (NIH); newsletters; and "Ask the Doctor" and "Ask the
Nurse" services. For more information, write MAHIE, P.O. Box 146431, Chicago, IL
60614-6431; (312) 772-2207.
NCJRS BBS
Washington, DC; (301) 738-8895
The NCJRS BBS is the electronic bulletin board of the National Criminal Justice
Reference Service. It includes information about publications and services available from
the National Institute of Justice’s AIDS Clearinghouse, such as information about HIV
and incarceration. Anyone can access NCJRS BBS free of charge. For more information,
contact National Criminal Justice Reference Service, P.O. Box 6000, Rockville, MD
20849-6000, (800) 851-3420.
NIH Information Center Bethesda, MD; (800) 644-2271; (301) 480-5144 (MD only)
The National Institutes of Health (NIH) operates a public BBS that contains information
about NIH as well as files dealing with many health and disease topics, including AIDS.
It consists of press releases, articles, and document summaries. This BBS can be
accessed through the Internet via Fedworld. For additional information contact Dennis
Rodrigues (301) 496-6610 or through Internet at
dennis_rodrigues % nihod32.bitnet@cu. nih.gov .
OASH BBS
Washington, DC; (202) 690-5423
The OASH BBS is the free and publicly-accessible electronic bulletin board of the White
House Office of the AIDS Policy Coordinator (ONAPC) and the U.S. Public Health
Service (PHS), Office of the Assistant Secretary for Health (OASH). The White House
section of the BBS allows for public input on HIV/AIDS issues under consideration. The
OASH section distributes many files of AIDS-related information from PHS, including
NLM’s AIDS Bibliography, news releases from the National Institute of Allergy and
Infectious Diseases (NIAID), Federal Register announcements, CDC’s AIDS Daily
Summary, and AIDS-related press releases and reports. For more information, contact
ONAPC, Hubert Humphrey Building, Room 738-G, 200 Independence Ave., SW,
Washington, DC 20201; (202) 690-6248.
OUTline San Francisco/TheHIVe
(415) 554-0470
OUTline San Francisco and TheHIVe BBS provides free access with a graphical interface
that lets you point and click with a mouse. It has a powerful, easy to use, search engine
for files and messages. For a demo, call the above number using "HIV”, "AIDS”, or
"guest" as both the log in and the password. Download the special software (or call for
a free Macintosh of Windows disk) and use it to log in again using the same ID. P.O.
Box 14287, San Francisco, CA 94114. (415) 554-0555.
Positively Healthy
Portland, OR; (503) 243-2557
Positively Healthy is a community BBS, by, for and about people living with HIV. The
focus of the board is becoming and remaining healthy while living with HIV. There are
message areas for sharing experiences and downloadable files about treatment, alternative
therapies, nutrition, and news.
PREVline
Rockville, MD; (301) 770-0850
PREVline is a computer-based message and information service of the Center for
Substance Abuse Prevention (CSAP), Substance Abuse and Mental Health Services
Administration. It provides a direct link between CSAP, the National Clearinghouse for
Alcohol and Drug Information (NCADI), and professionals in the field. The general
public can now access the PREVline Public Plaza either through a modem or through the
Internet. Access using the ID: new. The modem lines support up to 14400 baud. See
Internet section for telnet and WWW access information. For more information contact
NCADI at (800) 729-6686.
Public Health Network
By Subscription Only
The Public Health Network is produced for public health administrators by the Public
Health Foundation and contains information posted by a number of U.S. Public Health
Service agencies. It has recently moved to a service on the CompuServe network. For
more information, contact Chris Frank, Public Health Foundation, 1220 L St., NW, Suite
350, Washington, DC 20005, (202) 898-5600.
Women’s WIRE
By Subscription Only
WOMEN’S WIRE (Worldwidelnformation Resource & Exchange) is a new computer
network serving the information and networking needs of women. WOMEN'S WIRE
draws its content from the media, newswires, women’s organizations, government
sources, and most importantly from its subscribers - offering a central source for the
latest women’s news and information. Subscribers can access the latest legislative
updates, reports, health abstracts, movie reviews, calendars, conversation, and more
about the forces and issues impacting women’s lives. To receive a free starter kit
including a disk (for GUI users), please call 415-615-8989, or send email to
SUBSCRIBE@WWIRE.NET. Please include your name, address, telephone #, and be
sure to specify whether you use a Macintosh, a PC running Windows v. 3.1, or any
other computer.
More Information About Other Electronic
Bulletin Boards
A comprehensive listing of publicly accessible electronic bulletin boards and related services can
be found in Norman Brown's Consolidated List of AIDS/HIV Bulletin Boards. It is compiled for
all people affected by HIV/AIDS and is updated monthly. It includes all BBS’s that carry any of
the AIDS-related echoes from the AEGIS, FidoNet, GayCom, or StudsNet networks, as well as
a number of local BBS’s. The list can be obtained from the Internet or as a downloadable File
named with the letters "abbs" from these BBSs:
State
City
BBS Name
Phone Number
California
Colorado
Delaware
Missouri
New York
San Juan Capistrano
Denver
Wilmington
Jefferson City
Syracuse
WORLDHQ
The Denver Exchange
Black Bag Medical BBS
Doc in the Box
The Erie Canal BBS
(714) 248-2836
(303) 623-4965
(302) 994-3772
(314) 893-6099
(315) 445-4710
AEGIS/HIVNET/GENA
The AIDS Education and General Information System (AEGIS) is a network of BBS’s (see
AEGIS WORLD HQ, page 2) that echoes messages and exchanges Files of HIV/AIDS
information. The AEGIS network is a FidoNet member and re for publications on getting started
on the Internet.
The latest version of the document, Where to Start for New Internet Users, is available by
anonymous ftp from sluaxa.slu.edu, directory /pub/millesjg. Filename newusers.faq, or from
ubvm.cc.buffalo.edu, directory /NETTRAIN, Filename NEWUSERS.FAQ. It may also be
obtained by e-mail by sending a message to LISTSERV@UBVM.cc.buffalo.edu containing only
the line: GET NEWUSERS FAQ NETTRAIN F = MAIL. Where to Startfor New Internet Users
is also available on the World-Wide Web (http://lawlib.slu.edu/newusers.htm).
Listed below are many AIDS-related services available through the Internet. Any user with an
Internet account and username should be able to subscribe to mailing lists and request certain Files
by email. However, some services (FTP, telnet, and gopher) require a certain level of Internet
access which may not be available on your system. If you have any questions, talk with the
technical assistance staff of your Internet access provider.
The CDC National AIDS Clearinghouse maintains an Internet mailing list, through which it
accepts reference questions, orders for free publications, and general inquiries. To correspond
with the Clearinghouse, send mail to aidsinfo@cdcnac.aspensys.com."
Introduction to Internet Resources
The Internet is a vast network connecting thousands of smaller networks in hundreds of countries.
In the United States, Internet links networks such as BITNET for academic institutions, the
original Internet "backbone" NSF-NET (National Science Foundation Network), and commercial
networks such as CompuServe and America Online. The early users of Internet gained access
through educational, government, and research institutions. Increasingly, more individuals and
businesses are included among Internet users accessing through commercial networks.
Gaining Access
Users can access the Internet in two ways: as a dial-up user or as a node. A node is a computer
system that is directly linked to the Internet via a leased high-speed telephone line that is
dedicated to that connection. Although costly, this gives those computers attached to the node
full Internet capabilities. The system at the node can also act as a "host" to offer information
services to other Internet users. The second method of Internet access is to dial into a node using
a modem. A number of commercial online services offer some degree of this type of access
(e.g., Delphi, CompuServe). Users connecting in this way are limited by the speed of their
modem and by the indirect nature of the Internet link.
There are many commercial Internet access providers including MCIMail (800) 444-6245;
CLASS (800) 488-4559; DELPHI (800) 695-4005; AT&T Mail (800) 242-6005; and Netcom
(408) 554-8649. The following are lists of dial-up access providers which may be helpful:
PDIAL (Public Dialup Internet Access List) the most comprehensive list of Internet
access providers for individuals and small organizations which have full Internet access,
including FTP and Internet. Send an e-mail message containing the command "Send
PDIAL" to info-deli-server@netcom.com.
Nixpub is a list of public access Unix systems. These systems often have Internet e-mail
and many offer other Internet services as well. Send mail to: mail-server@bts.com text
of mail should read "get pub nixpub." Users must access this service through a UNIX
environment or send a message through e-mail.
The National Science Foundation has several lists of networks and other organizations
providing access to full Internet services. Its "limited referral" list is devoted to dial-up
access. Send mail to: info-server@nnsc.nsf.net text of mail to read: request: nsfnet
topic: limited-referral request.end.
Applications
Electronic Mail: More users take advantage of electronic mail (email) on Internet than any of
its other features. Any user registered with an Internet "address" can send electronic mail
messages to any other user with an address. This includes users of the peripheral commercial
services such as America Online. A very popular Internet service is the mailing lists, also known
as listservs. Electronic journals or e-journals and books have recently been introduced in this
framework.
File Transfer Protocol (FTP): Although email is very popular, most data traffic across the
Internet is not from messages but from file transfers. The most important advantage of the
Internet is that users in one location can take advantage of computerized resources at other sites,
usually without having a registered account. For example, a user can download files from
thousands of different systems.
Telnet: Telneting, or "remote login," is a way of logging on to a host at another location as if
you were a computer resident on their system. For example, one can telnet to the National
Library of Medicine and search its card catalog. Or one can create graphs on the National
Weather Services computer.
Internet Tools:
Until some recent programming breakthroughs, finding files and other
resources about specific topics among all those sites used to be impossible. But new tools are
making the Internet easier to use.
An archie is a database that can search all files available for FTP from any of the Internet nodes.
Hytelnet is a tool to search telnet services. A gopher is a menu-based system for finding and
accessing Internet resources. Veronica and jughead are tools to search many gopher menus at
once.
Internet programmers are attempting to standardize the interfaces used to access systems and to
develop more efficient ways of finding information. WAIS (Wide Area Information Service)
provides indexed searching to a variety of types of Internet resources. Users can search for
information using Boolean logic. WAIS also uses the client/server architecture with the standard
Z39.50 protocol (to be a standard for indexing Federal information). World Wide Web (WWW
or W3) is a hypertext-based system that links services across the Internet. Mosaic is a graphic
interface for the World Wide Web.
For Additional Information:
There are numerous books and manuals for beginning Internet users. Check your public library
or bookstore for publications on getting started on the Internet.
The latest version of the document, Where to Start for New Internet Users, is available by
anonymous ftp from sluaxa.slu.edu, directory /pub/millesjg, filename newusers.faq, or from
ubvm.cc.buffaio.edu, directory /NETTRAIN, filename NEWUSERS.FAQ. It may also be
obtained by e-mail by sending a message to LISTSERV@UBVM.cc.buffalo.edu containing only
the line: GET NEWUSERS FAQ NETTRAIN F = MAIL. Where to Startfor New Internet Users
is also available on the World-Wide Web (http://lawlib.slu.edu/newusers.htm).
Listed below are many AIDS-related services available through the Internet. Any user with an
Internet account and username should be able to subscribe to mailing lists and request certain files
by email. However, some services (FTP, telnet, and gopher) require a certain level of Internet
access which may not be available on your system. If you have any questions, talk with the
technical assistance staff of your Internet access provider.
The CDC National AIDS Clearinghouse maintains an Internet mailing list, through which it
accepts reference questions, orders for free publications, and general inquiries. To correspond
with the Clearinghouse, send mail to aidsinfo@cdcnac.aspensys.com .
Mailing Lists
Mailing lists, also known as listservs (short for "list server"), send messages to all registered
subscribers. Users submit messages to the list server, which forwards copies of the message to
all users on the mailing list. To subscribe, you must send a message to the addresses listed below.
Leave the subject blank and type the indicated text in the body of the message. Where indicated,
type your first name and then your last name.
AIDS News................................................................. listserv@cdcnac.aspensys.com
The CDC National AIDS Clearinghouse maintains a read-only mailing list for individuals
who wish to receive AIDS-related documents from CDC, including the AIDS Daily
Summary, selected Morbidity and Mortality Weekly Report articles, CDC National AIDS
Hotline Training Bulletins, and factsheets. The listserv also distributes press releases
from other Public Health Service agencies such as the National Institutes of Health. To
subscribe, send the message "subscribe aidsnews firstname lastname" to the address
above.
ACT-UP ....................................................................... act-up-request@world.std.com
ACT-UP uses this Internet listserv as a way of disseminating information about AIDS
political and research issues. Its purpose is to facilitate a discussion of the work being
done by the various ACT-UP chapters worldwide to announce events, to exchange ideas
related to AIDS activism, and more broadly, to discuss the politics of AIDS and health
care. This is not a public list; however, those interested in joining can inquire by
sending an email message to the above address.
AEGIS and HIVNET Echoes..................................... Zzs/name-request@hivnet.org
All AEGIS conference echoes described above and international HIVNET forums can be
joined via the Internet. Send subscription requests to the "request" address for each list;
e.g., to join the Internet news list, send email to "hiv-internet-request@hivnet.org," or
send email to "hiv-aids-woinen-request@hivnet.org " to join the AEGIS discussion of
women’s issues. For more information, send email to info.hivnet.org or to Sister Mary
Elizabeth at mary.elizabeth@aegis.hivnet.org or Matthew Lewis of HIVNET in
Amsterdam at matthew@ic.uva.nl.
hiv-aids-data
hiv-aids-dialogue
hiv-aids-drugs
hiv-aids-trials
hiv-aids-spiritual
hiv-aids-women
hiv-aids-nl
hiv-aids-fr
hiv-aids-de
hiv-aids-denews
hiv-aids-arc
hiv-aids-hiv
hiv-internet
AEGIS read-only postings of news and info
AEGIS general discussion
Text of NLM AIDSDRUGS database
Text of NLM AIDSTR1ALS database
AEGIS spiritual discussion
AEGIS discussion of women’s issues
HIVNET Dutch language discussion and data
HIVNET French language discussion and data
HIVNET German language discussion
HIVNET read-only German language data
FidoNet discussion
FidoNet discussion
Discussion and announcements about lists and gateway
AEGIS/HIVNET Newsletter Mailing Lists
majordomo@hivnet.org
For Internet gateway users who do not have Gopher or FTP access, AEGIS/HIVNET
provides mailing lists of AIDS-related newsletters. The lists are in principle open to
everyone, although those who can gopher or FTP are encouraged to use these methods,
to keep the load on the machine down (see later sections in this Guide regarding FTP and
gopher resources). To subscribe to a list, mail to majordomo@hivnet.org , with a message
body consisting of subscribe xxxx-dist where xxxx is the tag of one of the file areas.
alve-dist
ans-dist
atn-dist
bodypos-dist
cat i-di st
gmhi-dist
hicn-dist
pos-dist
slgt-dist
summ-dist
Being Alive
AIDS Information Newsletter
AIDS Treatment News
Body Positive Newsletter (UK)
Community Aids Treatment Exchange
Gay Mens Health Crisis Treatment Issues
Health Info Comm Newsletter
Body Positive Online Magazine
Searchlight
CDC AIDS Daily Summary
AIDS BBS Directory
abbs-request@tde.com
A file of Norman Brown’s Consolidated List of AIDS Bulletin Board Systems is sent
monthly to subscribers on this list. Send the message "subscribe abbs" to the above
address.
AIDS Book Review Journal
Iistserv@uicvm.uic.edu
The AIDS Book Review Journal (AIDSBKRV) is an electronic publication that reviews
books, videos and journal titles. Send the message "subscribe aidsbkrv firstname
lastname" to the above address.
AIDS Stat
majordomo@wubios.wustl.edu
This list contains official statistics about the rates of HIV infection and associated
conditions. Send the message "subscribe aids-stat" to the above address.
CTN Newsletter
heath@hivnet.ubc.ca
The Canadian HIV Trials Network issues this electronic version of their newsletter,
available in French and English. The newsletter is released bimonthly and contains
articles about ongoing clinical trials and other aspects of clinical research in Canada. To
receive the newsletter, send an email message to the above address. Specify whether you
would prefer the English or French version.
Gay/Lesbian/Bisexual/Transexual Listservs
listserv@umdd.umd.edu
For an extensive compilation of gay/lesbian/bi- and transsexual e-mail lists, send the
following message to "listserv@umdd" (BITNET) or "listserv@umdd.umd.edu ": "get
lesbigay lists".
NIHGDE-L
listserv@jhuvm.hcf.jhu.edu
National Institutes of Health Guide to Grants and Contracts Listserv is now available to
individual subscribers. Send the message "subscribe nihgde-1 firstname lastname" to the
above address.
Online Grief and Loss Network
rivendell@rivendell.org
This is an online information and communications system that deals with death and dying,
bereavement, and major losses, both physical and emotional. The system was built to
give physicians, hospitals, hospices, mental health professionals, funeral homes,
churches, educators, and the bereaved access to this critical information. To subscribe,
send an email message to: rivendell@rivendell.org with the first line reading: subscribe
rivendell your.email.address
SCI.MED. AIDS
listserv@rutvml.rutgers.edu
This is the oldest and most active list. It includes the CDC’s AIDS Daily Summary and
many discussions about contemporary topics. Posting to this list is a good way to
broadcast to a huge group. To join, send the message "subscribe aids firstname lastname"
to the above address.
Womens Health Electronic Newsline
Iistserv@uwavm.u.washington.edu
WMN-HLTH -- womens health electronic news-line, started by the Center for Women’s
Health Research.
Send subscription requests to the above address or to
" 1 istserv@uwavm. bitnet".
File Transfer Protocol (FTP)
Files can be obtained from many Internet sources using file transfer protocol (FTP). Users can
log on to most FTP sites without a registered username: enter "anonymous" when asked for
login name. Most sites request that you enter your username as a password for tracking purposes.
With FTP, the user connects to a site, then changes directories and lists files as any user on that
system would. After identifying a file to transfer, type "get filename" where filename is the file
to be transferred. Some files, including those available on listservs, can be requested by email
and are easier to obtain that way; send an email message to the specified address with the
message "get filename" where filename is the file to be transferred.
By email:
AIDS BBS Directory
ftpmail@tde.com
A list of available back issues of Norman Brown’s Consolidated List of AIDS Bulletin
Board Systems can be obtained by sending the message ’’get abbs.dir" to the above
address. To obtain specific files, send the message "get filename" where filename is the
name of the file you are requesting.
AIDS Book Review Journal
aidsbkrv@uicvm
The AIDS Book Review Journal (AIDSBKRV) is an electronic publication that reviews
books, videos and journal titles. Send the message "index aidsbkrv” to find out what files
are available. Send the message "get aidsbkrv filename" to get the desired file.
Queer Resources Directory
ftpmail@vector.intercon.com
The Queer Resources Directory is an online gay/lesbian/bisexual information center that
includes hundreds of newsletters and other files related to HIV treatment, epidemiology,
prevention and advocacy. To request information regarding what files can be obtained
and how to get them by email, send a message to the above address with the following
commands on separate lines in the text of the message:
"open"; "dir"; "get
ABOUT.VECTOR"; "cd pub/QRD"; "dir"; "get OOREADME"; "quit".
By FTP:
CDC National AIDS Clearinghouse
cdcnac.aspensys.com
The CDC Clearinghouse’s anonymous FTP site contains files of documents such as the
current HTV/AIDS Surveillance report, the Clearinghouse’s Standard Search Series,
AHCPR’s clinical practice guidelines, and pathfinder guides to AIDS information. To
obtain files, FTP to the above address and login as "anonymous." First change to the
public directory (command "cd pub") and then change to the CDC NAC directory ("cd
cdcnac").
AEGIS/HTVNET
ftp.hivnet.org
AEGIS/HIVNET provides anonymous FTP access to its filebase. The mailing lists are
also archived and available via FTP under/gopher/newsgroups.
Several of the
AEGIS/GENA/HIVNET files are automatically unpacked and converted to Unix text
format by the gateway. There is a mailing list for new files in the tree. New files arrive
almost daily. To subscribe, please send mail to: hiv-newfiles-request@hivnet.org.
CDC AIDS Public Information Data Set
dawn.hampshire.edu
This is an approximately 16 megabyte file containing an epidemiologic entry for every
individual reported case of AIDS in the United States. It can be analyzed statistically with
appropriate software. To obtain this file, FTP to the above site, change to the "/AIDS"
directory, and give the command "get pids92q4.dat" for the file containing statistics
through 1992. More current files will be online when they become available. Give the
command "get pidsinfo.txt" for more information about the file and how to use it.
FedWorld
ftp.fedworld.gov
The FedWorld BBS is described earlier in the BBS section. Files identified on the
FedWorld BBS can be obtained from anonymous FTP at the address above. White
House documents are included in the directory /w-house.
Health Science Resources List
,................................... ftp2.cc.ukans.edu
The Health Science Resources List is an attempt to create a comprehensive list of health
science resources available on the wide area networks. The list includes Listserv groups,
Usenet groups, Freenets, Data Archives, Electronic Publications, and health science
oriented databases. This file is over 600k, around 200 printed pages. To access, FTP to
the above address; change to the correct directory with the command "cd pub/hmatraix";
then type the command "get med list??, txt" where ?? is the issue number related to the
latest edition of the list.
HTV/AIDS Surveillance Database
ftp.ciesin.org
The HIV/AIDS Surveillance Database produced by the Bureau of the Census’s Center for
International Research (CIR) is availble via anonymous ftp from the Consortium for
International Earth Science Information Network (CIESIN). For additional information,
contact CIESIN User Services at (517)-797-2700 or Internet e-mail at
CIESIN.info@ciesin.org. To get the file, FTP to the above address; change to the correct
directory with the command "cd holdings/data-sets/100628.aids/dos"; issue the command
"binary"; then issue the commands "get readme. 1st" and "get aidsnet.exe".
MMWR articles
itsa.ucsf.edu
Directory is /u4/aids.bbs Subdirectorys include "/articles" and Zarticles/govt, where one
can find MMWR articles by date.
National Library of Medicine (NLM)
lmpubs.nlm.nih.gov
See NLM factsheet at the conclusion of this guide for more information about NLM FTP.
Queer Resources Directory ....................................................... vector.intercon.com
AIDS information is in the directory /pub/QRD/aids. Available information includes the
AIDS Treatment Directory (subdirectory ATN). If you have any questions, send email to
qrd@vector.intercon.com.
Telnet
Tel netting allows Internet users to remotely log on to other computer systems attached to the
Internet. The user then accesses the host computer system as any computer physically linked to
that system would.
NOTE: Many resources once accessible only through Telnet are now available through Gopher,
World Wide Web, and Mosaic Servers.
FDA BBS
fdabbs.fda.gov
The Food and Drug Administration BBS described earlier in this document can be
accessed by telnetting to the above address. Included are press releases related to AIDS,
such as those announcing new drug approvals. For more information, contact the FDA
Press Office, 5600 Fishers Lane, Rockville, MD 20857. To connect online to FDA BBS,
dial (800) 222-0185 using a computer and a modem. The bulletin board is also accessible
through the Internet: fdabbs.fda.gov. Login: bbs
FedWorld
fedworld.gov
The FedWorld BBS described earlier in the BBS section can be accessed by telnetting to
the above address.
PREVline............................................................................................ ncadi.health.org
Access through the Internet (see page 18) is by telnetting to ncadi.health.org or gophering
to gopher.health.org or mosaicing to www.health.org. When connecting to PREVline
through telnet, press ENTER after the connection is made to bring up the PREVline
logon screen.
SEFAIN
callcat.med.miami.edu
The South East Florida AIDS Information Network contains information about local
services, research programs, and other resources. Login as "library."
Gopher
Gopher is a tool which allows for tunneling through the Internet through a series of menu. It also
helps you to access the resources it lists. Use Gopher to browse for resources using a system of
menus. Gopher can Telnet or FTP for you. Access the University of Minnesota gopher server
for an example of a gopher server (see below). Many institutions are operating gopher servers,
so you really have your choice of where to begin.
The HIV/AIDS information and resources Gopher points to are vast. The best way to learn about
GOPHER and what it has to offer is to log onto one and go exploring. Here’s one everyone will
be interested in and a good place to begin tunneling. For more information on Gopher and its
protocols, connect to the University of Minnesota gopher server at gopher.micro.umn.edu, port
70. This is also a good place to get into the gopher system. To access any of the gophers
below, "point" to the address given.
CDC National AIDS Clearinghouse
cdcnac.aspensys.com
The CDC Clearinghouse’s gopher site contains the AIDS Daily Summary, AIDS-related
Morbidity and Mortality Weekly Report articles, and other CDC documents. Basic
HIV/AIDS-related information is available, as well as information about prevention,
treatment, and living with HIV. To reach the gopher, point your gopher client to the
above address.
AEGIS/HTVNET
gopher.hivnet.org
AEGIS/HIVNET runs a gopher containing much of the information described earlier.
The gopher/ftp tree is still in the process of revision. Users who find potential revisions
should send mail to gopher@hivnet.org . The mailing lists are archived and available via
gopher under "GENA Mailing List Archives."
AIDS Info BBS
itsa.ucsf.edu
The gopher at the University of California, San Francisco, serves as a host or gateway
to over ten AIDS-related gophers. To reach them, point your gopher to the above
address and select the menu option for "Bio and Medical Gophers," then the option for
"HIV/AIDS Gophers." The gopher mirroring the AIDS Info BBS (see page 2) is listed
as the "AIDS BBS Database."
Library of Congress MARVEL
gopher marvel.loc.gov
The Library of Congress (LC) Machine-Assisted Realization of the Virtual Electronic
Library (MARVEL) is a Campus-Wide Information System that combines the vast
collection of information available about the Library with easy access to diverse
electronic resources over the Internet. Its goal is to serve the staff of LC, as well as the
U.S. Congress and constituents throughout the world. It is available on the Internet and
uses the Gopher software from the University of Minnesota.
Multicultural Bisexual Lesbian Gay Alliance Gopher gopher: uclink.berkeley.edu
This server is maintained by the Multicultural Bisexual Lesbian Gay Alliance as a service
to the University of California Berkeley and University of California bisexual/lesbian/gay
community. This server provides a gateway to AIDS-related internet resources and
national gay/lesbian information. Contact mblga@uclink.berkeley.edu, at 510.642.6942
(voice), at 510.643.6396 (fax) for additional information.
National Health Information Resources Center
gopher.os.dhhs.gov
The U.S. Department of Health and Human Services, Office of the Secretary, provides
access to its World Wide Web server. This new Web server provides a centralized
directory of Internet accessible services provided by the U.S. Department of Health and
Human Services, Food and Drug Administration, and Social Security Administration.
Gopher users may access the gopher server at: gopher.os.dhhs.gov.
National Library of Medicine (NLM)
gopher.nlm.nih.gov
See NLM factsheet at the conclusion of this guide for more informaiton about NLM FTP.
NIAID Gopher
gopher.niaid.nih.gov
The National Institutes of Health (NIH), National Institute of Allergy and Infectious
Diseases (NIAID) has a gopher containing the AIDS Daily Summary, NIAID news
releases, AIDS Treatment News, and other newsletters. It also has news and information
from NIH. You can access it on some gophers by selecting Medicine and Health, then
National Institutes of Health Gopher System (see below), then National Institute of
Allergy and Infectious Diseases Gopher.
National Institutes of Health (NIH) Gopher
gopher.nih.gov
This server is maintained by the NIH Division of Computer Research and Technology
(DCRT) and contains information useful to biomedical researchers at the NIH Bethesda
Campus. Notable items of potential interest to the community-at-large include: *NIH
Phone Book. *Information about postdoctoral research and training opportunities at NIH,
from the NIH Office of Education. Molecular Biology databases (GenBank, PIR,
Swiss-Prot, PDB, Prosite, LiMB, TFD).
Queer Resources Directory
vector.intercon.com
The Queer Resources Directory information described earlier has a gopher at address
vector.intercon.com. If you have any questions, send email to qrd@vector.intercon.com
RURALNET Gopher
gopher@musom01.mu.wvnet.edu
The RuralNet Gopher menu structure is designed to emphasize rural health care and to
meet the specialized interests of health care students, faculty, practitioners and staff.
Rather than simply lumping all health science gophers into a single, multi-screen listing,
the health care resources on the RuralNet gopher are sorted into the categories by subject
area. Technical questions, problems, comments, suggestions or additions should be sent
to Andy Jarrell or Mike McCarthy at gopher@musom01 .mu.wvnet.edu or 304/696-7310.
WHO Gopher
gopher.who.ch
The World Health Organization (WHO) offers its bibliographic databases WHOLIS and
WH0D0C via Internet. WHOLIS is the bibliographical database of all WHO
publications (also articles in several WHO periodicals and final reports and technical
discussions of the World Health Assembly, Executive Board and Regional Committees)
and unpublished technical documents of the headquarters and regional offices, and the
Pan American Health Organization (PAHO). Publications of the International Agency for
Research on Cancer (IARC), Lyon, and the Council for International Organizations on
Medical Sciences (CIOMS), Geneva, are also included. WHODOC is a bimonthly update
to WHOLIS. It is available for file transfer (ftp) in ASCII-format. After connecting to
the above gopher address, select option "3" (WHO’s Major Programmes); then option
"7” (Library and Health Literature Services - HLT). One can also telnet to the above
address and login as "gopher." For more information, send email to "gopher@who.ch"
or "akazawa@who.ch".
University-wide AIDS Research Program (UARP)
gopher.ucop.edu
UARP is a state-funded AIDS research funding unit of the University of California.
Currently posted information includes UARP’s newsletter "News Brief" and requests for
applications for various AIDS-related funded programs for investigators in the state of
California. Once connected to the above gopher site, select "UC Systemwide Information
Services," then "Universitywide News," then "Office of Health Affairs News," then
"Special Research Programs," then "Universitywide AIDS Research Program." For
more information, send email to "uarp@ucop.edu"
Mosaic and The Worldwide Web
The World Wide Web (WWW) is based on the model of Hypertext, which is text that is heavily
cross-referenced or "linked," allowing you to read an article and jump to a related topic. WWW
is a global hypertext system allowing links not only between different documents, but between
different documents on different systems on different continents. The links can further be made
to newsgroups, telnet services, gophers, archies and other Internet resources. And finally, the
links or documents don’t have to be textual at all they can as easily be to a digitized image, audio
sound file, or video clip. In order to access this, users need at least a 286/386 computer and
extensive amounts of memory versions.
Mosaic is a graphic interface for the World Wide Web that not only makes navigating the Internet
easy, but also supports the use of other programs to view digitized images, video clips, and listen
to sound files. It is currently available for X-Windows and the Macintosh, and most recently
became available for the Microsoft Windows platform. You can get a copy of Mosaic software
from software developers at the National Center for Supercomputer Applications at the University
of Illinois at Urbana-Champaign using ftp to ftp.ncsa.uiuc.edu. At the login prompt, enter
anonymous and at the Password: prompt enter your mailing address. At the command prompt,
enter cd/Mosaic/Windows. The file you want is WMOS1_O.ZIP. There are some subdirectories
listing viewers (LVIEW31.ZIP) and a sound player (WHAM131.ZIP) that you will also need.
NCSA actually has a "demo page" on their system setup with links to an impressive number of
World Wide Web sites. Simply click on this demo page from one of Mosaic’s starting places and
you will find a treasure chest of interesting hyperlinks. Any text in blue has a link and you can
click on the text to actually connect to some other WWW site.
AIDS Info BBS
|................................ sprite.berkeley.edu
An experimental WWW frontend has been made for the AIDS Info BBS Gopher. It
consists of menus that organize the gopher data more conveniently, but still pulls
information from the gopher server. You must have XMosaic software to access this;
point the Mosaic client to "ftp://sprite.berkeley.edu/www/bbs.html" to bring up a
welcome screen.
For more information, send email to Ken Shirriff at
sh irr i ff@cs. berkeley. edu.
FedWorld
|......................................www.fedworld.gov
The FedWorld BBS described earlier in the BBS section is accessible through the WWW
at the above address.
National Library of Medicine (NLM)
www.nlm.nih.gov
See NLM factsheet at the conclusion of this guide for more information about NLM FTP.
National Health Information Resources Center . www.os.dhhs.gov (158.70.252.2)
The U.S. Department of Health and Human Services, Office of the Secretary, provides
access to its World Wide Web server. This new Web server provides a centralized
directory of Internet accessible services provided by the U.S. Department of Health and
Human Services, Food and Drug Administration, and Social Security Administration.
To access the server, set up your client to connect to:
www.os.dhhs.gov
(158.70.252.2). Gopher users are encouraged to try the gopher server mentioned in the
last section of this document.
Other Online Services
Several publicly accessible commercial networks have AIDS-related forums, such as The Well
(Whole Earth ’Lectronic Network), online registration: (415) 322-7398; GEnie (the General
Electric Network for Information Exchange), voice phone: (800) 638-9636; CompuServe, voice
phone: (800) 848-8990; and America Online, voice phone: (800) 227-6364.
Free-Nets
Freenets are open-access, free, community computer systems. One such system is the Cleveland
Freenet sponsored by CWRU (Case Western Reserve University). There’s no charge for the
registration process and no charge to use the system. To register, telnet to any one of following
addresses: freenet-in-a.cwru.edu freenet-in-b.cwru.edu freenet-in-c.cwru.edu
Freenets are community-based systems that provide electronic mail, bulletin boards, and other
types of information access to members of the community at no charge. The Freenet idea
originated with Dr. Tom Grundner, Dept, of Family Medicine at Case Western Reserve
University.
For more information on NPTN, contact:
National Public Telecomputing Network
P.O. Box 1987
Cleveland, Ohio 44106
Voice: 216-247-5800
FAX 216-247-3328
e.mail: info@nptn.org
Databases
There are also several database vendors that provide direct dial and Internet access to AIDSrelated databases, including the National Library of Medicine [voice phone: (800) 638-8480];
BRS Search Services [a division of Maxwell Online; voice phone: (800) 456-7248]; and DIALOG
[voice phone: (800) 334-2564].
National Library of Medicine (NLM) Databases
AIDS-related databases provided by the National Library of Medicine are now available at no
charge.
AIDSLINE
This database contains more than 90,000 bibliographic references to published literature
about HIV/AIDS and related issues including prevention and treatment. The database
includes citations to journal articles, books, and audiovisual materials. AIDSLINE also
contains the abstracts of the International Conferences on AIDS.
AIDSTRIALS
This database contains information about HIV-related clinical trials, both open (currently
accruing patients) and closed. Information about NIH-sponsored clinical trials is
provided by the National Institute of Allergy and Infectious Diseases (NIAID);
information about privately sponsored efficacy trials is provided by the Food and Drug
Administration (FDA).
AIDSDRUGS
This database contains information about the agents being tested in trials included in
AIDSTRIALS.
DIRLINE
This database is an online directory of information resources covering all areas of
biomedicine. Included are more than 2,000 HIV/AIDS-specific resources such as
organizations, self-help groups, and information systems.
NLM’s online databases are available to health professionals, libraries, and others. Users can
access these databases using Grateful Med, a user-friendly software package available from the
National Technical Information Service at 1-800-423-9255.
For more information about NLM’s databases, including AIDSLINE, and about obtaining access
to them, call 1-800-638-8480. Call NLM’s Office of Public Information at 1-800-272-4787
For more information specifically on the AIDSTRIALS and AIDSDRUGS databases, call (301)
496-3147. Information from these two databases is also available through the toll-free AIDS
Clinical Trials Information Service, co-sponsored by NLM, at 1-800-TRIALS-A (see page 4).
Appendix 5: Classification Systems and Indexing Thesauri
AIDS information projects use classification systems and indexing thesauri to categorize and organize
the information in their collections. The following are examples of classification systems and indexing
thesauri used by some of the projects included in this report. Organizations setting up AIDS
information dissemination projects can use these examples as models for designing their own systems.
i.
AIDS Survival Project—Classified Index.
2.
Friends Project—Vertical File Interchange.
3.
Monroe Community College AIDS Resource Center—Vertical File Subject Headings.
4.
Monroe Community College AIDS Resource Center—Indexing Thesaurus.
5.
Hemophilia and AIDS Network for the Dissemination of Information (HANDI)—Controlled
Vocabulary. Only AIDS-related portions of the HANDI controlled vocabulary list are
included. To obtain the complete list of search terms, contact HANDI.
CDC National AIDS Clearinghouse has produced a thesaurus of terms used for indexing and
retrieving AIDS information. It can be obtained by contacting the CDC National AIDS
Clearinghouse.
F.V
APR 31 'pq 15:07 COLL'NELL BANKER
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AIDS Survival Project
❖
CLASSIFIED INDEa
i
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CAT.
filename
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bUDSCnDT lufiS
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Treatment (Druas/Therapies)
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hiv/aiDS - Related Conditions ana Opportunistic inr~.
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Living with Hl v/AIDS
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Specific Populations
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Oraan i rations
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Education/Prevent ion
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U/ I W< V kM
Conferences
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Friends Project
FILE .CONTENTS -----
JEU ALUU
16C AIDS-RELATED DISEASES. GEN ' L
170 AZT
180 ACTIVISM AMMO
190 ALCOHOL/TOBACCO
200 ALTERNATIVE THERAPIES
210 ASSISTANCE PHOGRAMS/SVCS
^0
220 CDC ANNOUNCEMENTS
230 CIVIL RIGHTS
^oO
240 CONDOMS
250 COUNSELING MAT’LS
. ..,c<u:j "12o
260 CYTOMEGALOVIRUS
270 D4T
280 DDC
290 DDI
300 DEPRESSION
.250 6BO bb0 ’1'U)
310 DISCRIMINATION
J 80 2.30 380 400 530 560 7 J0
320 DOCTOR/PATIENT RELATIONS
330 DRUG/SUDSTANCE ABUSE
340 DRUG THER.. EXPERIMENTAL.
350 DRUG THER.. GENERAL
360 EDUCATION - YOUTH \ CURdYlUNlTY
370 EDUCATION - PHYSIC LAN/NURSE
3TO Sto 6<to
380 ETHICAL QUESTIONS
390 FINANCIAL IMPACT ON PUB
6 J 0 DS0
400 GAY ISSUES
410 GENERAL AIDS ARTICLES
440 GENET1C7M0LECULAR HIV
450 HEALTH IN5UR PMT/DELIVERY
b«lft 3*10 _.,
460 HEMOPHILIA
470 HEPATITIS
475 HERPES DISEASES
480 HETEROSEXUAL TRANSMISSION
490 IMMUNE CoMPONENTS/FUNCT.
500 INCARCERATED ISSUES
510 INCIDENCE GROWTH
")OQ
520 KAPOSI'S SARCOMA
I
LANGERHANS CELLS SEE 570
530 LEGAL ISSUES
22o
540 LIFESTYLES/ AD..':iISTM' TS
-120
550 MIXED PAGES
560 "MURAL" ISSUES
57u MUCOSAL IMMUNITY
580 MYCOBACTERIUM AVIUM
590 MYTHS - FEAR::
G2,0 noo "76o fio
oUu NEUROLOGICAL MANIFEST.
610 NUTRITION
S?0 19a
520 ORIGINS OF HIV
630 FAIN
__GSP__.. 32o.' ...
640 PEDIATRIC
o-.O PNEI JMOCY.GT I:: CAR INTI I’NEU
oou POLITICS
670 PROPHYLAXIS
680 QUALITY OF LIFE ISO.
ziDO &5O
<>90 SOCIAL IMPACT
'
390 ISO “1*0 3Bo
S\o 7JO
700 STATISTICS
710 SURVEYS
Ai"rrrjL>E/OTiiEK
____ *’qq
5^io
720 SURVIVAL
___ _..s^c> LS-©
730 TB / MDR-TD
740 TESTING _
750 THYMIC HIV PHASE
>O£.
|
TRANSMISSION. HETEROSEXUAL SEE TUU >
TRANSMISSION. IV DRUG USE SEE 33U .
760 TRANSMISSION. NON SEX/NEEDLE
18q
77o VACCINES
780 VARIANTS / "NON-HIV AIDE"
!
790 VIATICAL FIRMS
800 WOMEN
810 YOUTH ____
’’po 7to
53qJ__
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f^GvJ^K)Tl(?K)
ShIoK'imCT
/'Co-
OGMtU'T'A OL6-
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Geo
2*o
S
O.C 0
i-8o 330
■2, GO
Monroe Community College
AIDS Resource Library
ARL VERTICAL FILE SUBJECT HEADINGS
AIDS (DISEASE)
AI DS.( DISE ASE)-ABSTINENCE
AIDS (DISEASE)—ADOLESCENTS
AIDS (DISEASE)—ADJUSTMENT PSYCHOLOGICAL
AIDS (DISEASE)—AFRICA
AIDS (DISEASE)—AFRICAN AMERICANS
AI DS (DI SE ASE)—ALCOHOL
AIDS (DISEASE)—ART AND LITERATURE
AIDS (DISEASE)-ASHEJ ARTHUR
AIDS(DISEASE)-ASIA
AIDS (DISEASE)—ASIAN AMERICANS
AIDS (DI SE ASE)—ASSOC I AT IONS
AIDS (DISEASE)—AZT
AIDS (DISEASE)-BEHAVIOR MODIFICATION
AIDS (DISEASE)—BERGALIS, KIMBERLY
AI DS (DI SE ASE)—BI BL IOGR APHY
AIDS (DISEASE)—BLIND EDUCATION
AIDS (DISEASE)-BLOOD
AI DS (DI SE ASE)—BREASTFEED I NG
AIDS (DISEASE)—CASE MANAGEMENT
AI DS (. DISEASE l-CELEBR ITIES
AIDS (DISEASE)-CLINICAL TRAILS
A IDS (DISEASE)—COFACTORS
AIDS (DISEASE)—COLLEGES AND UNYERSITIES
AI DS i DISE ASE)—COMPLI CAT IONS
AI DS. (DISEASE)—CONDOM DI STRUBUTI ON
AIDS (DISEASE)—CONDOMS
AI DS (DI SEASE )-COUNSELI NG
aIDS (DISEASE)—DEAF EDUCATION
AIDS (DISEASE)—DEMENTIA
AI DS (DI SE ASE )-DENT ISTRY
AIE1S (DI u E A. o E)—DI A. G N 0 SIS
AIDS (DISEASE)—DISCLOSURE
AID3 (DISEASE)—DI SCR IMI NATION
AIDS (DISEASE)-DRUG ABUSE
AIDS (DISEASEHECONOMICS
AIDS (DISEASE)-EDUCATION
AIDS (DISEASE)-EMPLOYMENT
A. I DS (DI SEASE )-EP I DEM IOLOGY
AIDS (DISEASE)—EUROPE
AIDS(DISEASE)-FAMILY RELATIONSHIPS
AIDS (DISEASE)-GALLO/MONTAGNIER
AIDS (DISEASE)-GOVERNMENTAL POLICY
AIDS (DISEASE)—HEMOPHILIA
AI DS (DISE ASE)—HI SPAN IC/L A TI NO AMER I CANS
AIDS (DISEASE)—HIV-2
AIDS (DISEASE)-HOME CARE SERVICES
AIDS (DISEASE)-HOMELESSNESS
AIDS (DISEASE)—HOMOSEXUALITY
AIDS (DISEASE)—HOSPICES
AIDS (DISEASE)-ICL
AIDS (DISEASE)-IN OLD AGE
AIDS (DISEASE)-INFANTS AND CHILDREN
AIDS (DISEASE)—INSURANCE
AIDS (DISEASE)—JOHNSON, MAGIC
AIDS (DISEASE)—JOURNALISM, MEDICAL
AIDS (DISEASE)-LATIN AMERICA
AIDS (DISEASE)—LEGAL ASPECTS
AIDS.(DISEASE)—LESBIANS
AIDS (DISEASE)—LIBRARIES
AIDS (DISEASE)-LONG-TERM SURVIVAL
AIDS (DISEASE)-MEDICAL CARE
AIDS (DISEASE)-MEDICAL PERSONNEL
AIDS (DI SE ASE)-MI NOR ITIES
AIDS (DISEASE)-MMWR REPRINTS
AIDS (DISEASE)—MONROE COUNTY (N.Y.)
AIDS (DISEASE)-MORAL AND ETHICAL ASPECTS
AIDS (DISEASE)— MORTALITY
AIDS (DISEASE)—NAMES PROJECT
AI DS.( DI SE ASE)—N A TUR AL HIS TOR Y
AIDS (DISEASE)—NATIVE AMERICANS
AIDS DISEASE)—NEEDLE EXCHANGES
AIDS (DISEASE)—NEW YORK (N.Y.)
AIDS (DISEASE)—NEW YORK (STATE)
AIDS (DISEASE)—NURSING
AIDS (DISEASE)-NUTRITION
AIDS (DISEASE)-OCCUPATIONAL EXPOSURE
AIDS.(DISEASE)-OPPORTUNISTIC INFECTIONS
AIDS (DISEASE)—OR IGIN
AIDS.(DISEASE)—PARTNER NOTIFICATION
AIDS (DISEASE)—PATHOGENESIS
AIDS (DISEASE)—POLITICAL ACTIVISTS
AIDS (DISEASE)—POLITICAL ASPECTS
A IDS (DI SE ASE)—POPULAR CULTURE
AIDS (DISEAsE)—PREGNANCY
AIDS (DISEASE)—PREVENTION AND CONTROL
AIDS (DISEASE)—PRISONS
A IDS (DI SE ASE j-PROST I TUT ION
AIDS (DISEASE)—PSYCHOSOCIAL FACTORS
AIDS.(DISEASE)—PUBLIC HEALTH
AIDS (DISEASE)-PUBLIC OPINION
AIDS (DISEASE)—RELIGION
A. IDS (DISEASE)—RE ■?EAR1H
AIDS (DISEASE)-RURAL HEALTH
AIDS (DISEA.SE)-SELF-CA.RE
AIDS (DISEASE)—SEXUAL ABUSE
AIDS (DISEASE)—SEXUAL BEHAVIOR
AIDS (DISEASE)—STDs
AIDS (DISEASE)-SIV
AIDS (DISEASE)—SPANISH LANGUAGE
AIDS (DISEASE)-SPORTS
AIDS (DISEASE)—STATISTICS
AIDS (DISEASE)—SUICIDE
AIDS (DISEASE)—TESTING
AIDS (DISEASE)—THERAPY
AI DS (DI SE ASE )-TR ANSMISSI ON
Al DS (DI SE ASE )-TUBERCULOS IS
AIDS (DISEASE)—UNITED STATES
AIDS(DISEASE)-'V'ACCINES
AIDS (DISEASE)—WHITE, RYAN
AIDS(DISEASE)-WOMEN
AIDS (DISEASE)—WORLD INCIDENCE
Monroe Community College
AIDS Resource Library
Indexing Thesaurus
AlXOEHFAL EEPQSURE
CufACTufijS
ACUI.IPRESSUFE
COHBiWATION rMERAPV
AC1 A
■ jjMPLIC AT :GN5
ADAR
CCWO’S
ADDIZSCEHTS
COMTftEHCE?
aFRIZA
cceriii
ALTERNATIVE MEDICINE
COSTS
ANH lOHENES E INH IB ITiJRS
OjUhBELINB
ANIMAL MODELS
CRHINAL ..LiSTICE
ANT BODIES
CFlY'PTCiCOCCuSIS
ANTIUHIDANTS
DDC
hNTIVIPalS
DC:
ASIA
DEATH AND DYIND
ASSiXIATIONS
CEMENT IA
AcT
CENT £ IFy
6EHAV>jP MCC>FIXATION
EEPFESSION
ELCiOfr
DIA3NCBI5
BULLETIN BOAfifc SERVICES
DIEIZLC6UFE
BUYER S CL LBS
DISCRIMINATION
C MCEM /M AL ION ANCIES
DOK-SL
CANDIDIASIS
DR’JO reyfE
i. ABE MANAGEMENT
DS--415Z
CD4- T-CELL
EC0N3MCS
CERVICAL CANCER
EDUCATDN
CIRCUMCISION
ELECTRON ID COr-MJN iC AT UN
CLARITHROMYCIN
EMPLOYMENT
Ltr-ilDAL TRIAlS
ER DEMICL jGY
CMV
ETHICS ASFEC”?
EUROPE
HOuaEHCLE ccf-nAcr
EnhLi ftELrtTION5h«P5-
-CbSIht?
FAfiiJlE
HPV
FL'*
H’tPEF'IC !N
’T-UCCinrcOLE
AN[> ’^AWa.
FTtEE PANCALS
IMMUNE RE5IORATICN
PJHC-INB
IMMLNE St STEM
OASTPD INTESTINAL M ANIFEST AT IONS
INFANTS
CHILOREN
CENETHERAPV
INFLLEHEA
GENET CS
INFORM AT E'N SERVICES
GOVERNMENT AL POLE?
INOLRANCE
UP-120
INTERFERON
HAIR? LEUKOPLAKIA
’NTERLEUKIN-2
HARM REE'UCTDN
INTERNATIONAL OTNFEFENLE
HEALTH CARE
ISIS 532D
r€ALTH C^RE REFORM
KAPOSI'S SARCOMA
HEMOPHILIA
LATIN AMERCA
HEPATITIS
LAV/ ENFORCEMENT
HERPES
LEGAL ASPECTS
HETEROSEHUALITV'
LONG TERM UURVIV AL
HIV INFECTIONS
LTE NHIDITCR5
HIV-1
LYMPHATIC SYSTEM
HIY □JANTITATIDN
LYMPHOCYTES
HIV-2
LYMPHOMA
HOME Ci«RE SERVICES
MrVrUU^A
HOMGSEHJALIT?
M^INCL
HDSPICE
MARKERS
HOSPITALS
MASS ACE
MEC-IC^LCAfi£
PEHT^-IIDINE
MEC-ICAL PERSONNEL
PERSONAL Al-CuLINTS
MENTAL HEALTH
PHARMfS£UET>: AL MF j
MICROBICIDES
pne'j-oc’tstjs
MCRTALrrf
’’QETRr
MIXTICULWRAL ASPECTS
POLITICAL ACTIVIST?
MUTATION
POLITIC ft ASPECTS
MM'OOACTER HJM NFECTICWS
FOLtHERASE CHAIN REACTION
MMjPATH'r'
PUPIL AR CULTURE
riATDWit COMMISeDN
PRECfiANCY
NATF/E AMERICANS
FRESE’iTICN
NEELLE EXCHANGES
PR MARY HIV INFECTION
rtUROLOD IC AL A5PECT5NE’/ IP APIFE
PRISONS
NEY/YORK.’(N.Y.)
PRP/ACY
NEV Y0R-: (STATE)
PROGRAM VALUATION
WJRSINB
PROGRESS ON
NUTRITION
PROPHYLAXIS
iXCLF AT IGNAL EXPOSURE
PROSTITUTES
OPPORTUNISTIC NFECTIGNS
FPOTEAEE INHIBITORS
ORAL MANIFESTATIONS
PROTENASE INHIBITORS
OUTREACH
P5 f-CMOSDC I AL F ACTORS
P24 ANTIGEN
PUBLIC HEALTH
P24 ANT PEN ASSAY
PUBLIC OP NON
PAIN MANACEMETT
PUBLIC POLICY
PARTF’ER NOTIFICATION
PUBLICATIONS
PATHuiOESIS
tXIANTrTAT’iOh
PATHCLGOY
■ZU ARANTIFE
FEER EDUCATION
RECALCITRANT BEHAVIOR
REFUSAL TO TREAT
TAT hHIBITuR
REFLBAL TO TREAT
TAXCL
RESEARCH
TESTED
RESISTANCE
THER/^r
RETINITIS
WMOSIH
PIFAPUTIN
TI-r-rMH
R!EK FACTORS
TNF-47ri
FVAf j ‘WHITE C^E ACT
TOXCPLASMGS»S
SAFER SEE
TRADITIONAL MEDICINE
SELF CARE
TRANifUSlOH
SERCCOHVERSIJN
TRANEril!
CN
SERCPREVALEriCE
TRANERLA/MTr.TDN
SEMUAL ABUSE
TRir-TTREX ATE
SEXUAL BEHAVIOR
T1JBERCULOSIS
31?
TUMOR f€CRM 15 FACTOR
•SOCIAL ’WELFARE BENEFITS
UNITED ST ATES
EFRITUAL ASPECTS
U. S. POSTAL SERVICE
STAOINO
VIRAL BLFDEN
STATISTICS
VITAMINS
STDS
nASTIMGSY’riDPCr-E
3TERDD5
far-EN
SULPHONAMIDES
•WCRLD HEALTH ORO ANIMATION
SUPPORT 0PDUP5
YCFLD INCICCHCE
SURGERY’
■SURSEILLANCE
SURVIVAL
StfPHLIS
SYRIHOES
IB
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HANOI Controlled Vocabul^/y
:—==============
prepared on: 16 August, 1993
Page 1
:===============
■ AIDS, general: 01 Series
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AIDS, general (01.00.00.00)
HIV transmission (01.01.00.00)
Bodily fluids (01.01.01.00)
Semen (01.01.01.01)
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Vaginal secretions (01.01.01.02)
Other bodily fluids (01.01.01.03)
Breast milk (01.01.01.04)
Waste issues (01.01.02.00)
Casual contact transmission (01.01.03.00)
Sexual transmission (01.01.04.00)
Heterosexual transmission (01.01.04.01)
Homosexual transmission (01.01.04.02)
Other modes of transmission (01.01.05.00)
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Transfusions and infusions (01.01.05.01)
Needle sharing (01.01.05.02)
Mother/fetus transmission (A), Perinatal
transmission (B) (01.01.05.03)
Dental procedures and HIV transmission
(01.01.05.04)
Occupational exposure (01.01.06.00)
Medical issues and facts (01.02.00.00)
EtiQLoflY__Qf AIDS (B) (01.02.01.00)
I mmuno I ogy (01.02.02.00 )x'"-
Antibodies (01.02.02.01)
T4 helper cells (01.02.02.02)
\ P-24 antigen (01.02.02.04)
StatsisHce related to AIDS/hT
I
/
1.02.03.00)
Statistics, North America (01.02.03.01)
Statistics, South America (01.02.03.03)
Statistics, Africa (01.02.03.04)
Statistics, Asia (01.02.03.05)
Statistics, other international (01.02.03.07)
Mortality rates (01.02.04.00)
Disease demographics (01.02.05.00)
-- AIDS definition (01.02.06.01)
HIV virus (01.02.07.01)
HIV L2 virus (01.02.07.02)
SIV virus (01.02.07.04)
Idiopathic CD4+ lymphocytopenia (ICL)
(01.02.07.05)
Other viruses (01.02.07.06)
Public health issues (01.03.00.00)
Partner notification (01.03.01.00)
Reporting (01.03.03.00)
Mandatory testing (01.03.04.00)
Sexually transmitted diseases (01.03.05.00)
Syphillis (01.03.05.01)
Gonorrhea (01.03.05.02)
(Continued on next column)
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Ch Iamyd i a (01.03.05.04)
Other sexually transmitted diseases (01.03.05.06)
Pelvic inflamatory disease (01.03.05.08)
Opportunistic infections (01.04.00.00)
Neoplasms (01.04.01.00)
Kaposi's sarcoma (01.04.01.01)
Lymphoma (01.04.01.02)
Other neoplasms (01.04.01.03)
Cervical cancer (01.04.01.04)
Fungal infections (01.04.02.00)
Candidiasis (01.04.02.01)
Cryptococcosis (01.04.02.02)
Histoplasmosis (01.04.02.04)
Other fungal infections (01.04.02.05)
Protozoal infections (01.04.03.00)
*
Pneumocystic Carinii Pneumonia (A), PCP (B)
(01.04.03.01)
Toxoplasmosis (01.04.03.02)
Cryptosporidiosis (01.04.03.03)
Other protozocel infections (01.04.03.06)
Viral infections (01.04.04.00)
Cytomegalovirus infections (A) (01.04.04.01)
Herpes simplex/zoster (A) (01.04.04.02)
Papillomavirus (A), HPV (B) (01.04.04.03)
Other viral infections (01.04.04.05)
Progressive multifocal leukoencephalopathy
(PML) (01.04.04.06)
Mycobacterial infections (01.04.05.00)
Mycobacterium avium intracellulare (A), MAI (B)
(01.04.05.01)
Tuberculosis (01.04.05.02)
Other mycobacterial infections (01.04.05.03)
Bacterial infections (01.04.06:00)
Streptoccoci (01.04.06.01)
Other bacterial infections (01.04.06.05)
Other disorders (01.04.07.00)
Gastrointestinal disorders (01.04.07.01)
Weight loss wasting (B) (01.04.07.03)
Cutaneous disorders (01.04.07.04)
Anemia related to AIDS/HIV (01.04.07.05)
Dementia complex (01.04.07.06)
Other neurological disorders (01.04.07.07)
Peripheral neuropathies (01.04.07.08)
Thrombocytopenia (01.04.07.09)
Depression and other mood disorders (01.04.07.10)
Opportunistic infections specific to women
(01.04.07.11)
Opportunistic infections specific to children
(01.04.07.12)
| (Continued on next page)
SEE ALPHA LIST FOR ALL TERMS USED
<
Y
HANDI Controlled Vocabulary
Prepared on: 16 August, 1993
Pa9e 2
=“====s:===:s===============:=============================================================:=======s:====-=s:-==_=_=:.==;===______________
Spanish language materials on HIV (01.14.00.00)
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Spanish language materials on HIV (01.14.00.00)
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I ■ HIV/AIDS treatment: 02 Series
I HIV/AIDS treatment (02.00.00.00)
Drug therapies (02.01.00.00)
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Anti-viral/retroviral treatments (02.01.01.00)
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AZT (02.01.01.01)
I
TAT inhibitors (02.01.01.03)
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Dental disorders (01.04.07.13)
People with AIDS (01.05.00.00)
People with AIDS outside the U.S. (01.05.01.00)
Men with AIDS (01.05.02.00)
Women with AIDS (01.05.03.00)
Children with AIDS (01.05.04.00)
Friends/partners/famiIies/caretakers of people
with AIDS (01.05.05.00)
Hemophiliacs with AIDS (see Hemophilia & AIDS
section) (01.05.06.00)
Protease inhibitors (02.01.01.05)
I
White, Ryan (01.05.06.01)
Ray family (01.05.06.02)
Asymptomatic persons (01.05.07.00)
Living with AIDS (01.06.00.00)
Practical issues of living with AIDS (01.06.01.00)
Psychological issues of living with AIDS
(01.06.02.00)
Quality of life issues of living with AIDS
(01.06.03.00)
Living with HIV (01.07.00.00)
Practical issues of living with HIV (01.07.01.00)
Psychological issues of living with HIV
(01.07.02.00)
Quality of life issues of living with HIV
(01.07.03.00)
HIV/AIDS testing (01.08.00.00)
Antibody tests (01.08.01.00)
Elisa test (01.08.02.00)
Western blot test (01.08.03.00)
Other tests, including T cell (01.08.04.00)
Counselling (pre/post HIV antibody test)
(01.08.05.00)
ReliabiIity/accuracy of HIV tests (01.08.06.00)
Confidentiality (01.08.07.00)
Health care professionals, HIV testing of
(01.08.08.00)
Trends, general (01.09.00.00)
Economic impact (01.11.00.00)
Bibliographies about A1DS/HIV (01.12.00.00)
HIV disease progression (01.13.00.00)
Delayed seroconversion (01.13.01.00)
Incubation period (01.13.02.00)
Progression rate (01.13.03.00)
Long term survival (01.13.03.01)
Progression rate in HJV+ hemophiliacs
(01.13.03.02)
Purity of blood products & immune response
(01.13.03.03)
Surrogate markers (ie.CD4 counts) (01.13.05.00)
(Continued on next column)
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DDC (02.01.01.06)
DDI (02.01.01.07)
D4T (02.01.01.09)
\
Acyclovir (02.01.01.10)
Convergent combination therapy (02.01.01.11)
Other anti-viral/retroviral treatments
(02.01.01.20)
Neoplasm treatment (02.01.02.00)
Alpha interferon (02.01.02.01)
Granulocyte-colony Stimulating Factor
(02.01.02.02)
Interleukin (02.01.02.03)
DNCB (02.01.02.04)
Bone Marrow Transplant (02.01.02.05)
Other neoplasm treatments (02.01.02.10)
Fungal infection treatment (02.01.03.00)
Amphotericin B (02.01.03.01)
Fluconazole (02.01.03.02)
Other fungal infection treatments (02.01.03.10)
Protozoal infection treatment (02.01.04.00)
TMP/SMX:Bactrim Septra (02.01.04.01)
Pentamidine (02.01.04.09)
Other protozoal infection treatments
(02.01.04.10)
Bacterial/Mycobacterial infection treatments
(02.01.06.00)
Globulins (hyper-, immune-, gamma- etc.)
(02.01.06.02)
Rifabutin (02.01.06.03)
Other bac/mycobac-terial infection treatments
(02.01.06.10)
Antidepressants (02.01.08.01)
Marijuana (02.01.08.02)
Peptide T (02.01.08.04)
Megace (02.01.08.06)
Other drug therapies (02.01.08.10)
Alternative treatments (02.02.00.00)
Compound Q (GLQ223) (02.02.01.00)
Her£s (02.02.02.00)
| (Continued on next page)
SEE ALPHA LIST FOR ALL TERMS USED
■ ■ V
HANOI Controlled Vocabulary
Prepared on: 16 August, 1993
Page 3
Ozone (02.02.03.00)
Hyperthermia (02.02.04.00)
AL721/egg lipids (02.02.05.00)
Other alternative treatments (02.02.10.00)
Nutritional therapies (02.03.00.00)
Guidelines for PWAs (02.03.01.00)
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Use of blood products (03.06.01.00)
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Food precautions (02.03.01.01)
Vitamins, minerals & nutrients (02.03.01.02)
Macrobiotics (02.03.02.00)
Other nutritional therapies (02.03.03.00)
Complementary therapies (02.04.00.00)
Traditional Chinese medicine (02.04.01.00)
Homeopathy (02.04.02.00)
Chiropractic therapy (02.04.03.00)
Massage therapy (02.04.04.00)
Other philosophies (02.04.10.00)
Immune therapies (02.05.00.00)
Passive immunotherapy (02.05.01.00)
CD8 expansion (02.05.02.00)
Immunosupression (02.05.03.00)
Other immune boosting therapies (02.05.10.00)
HIV vaccines (02.06.00.00)
Preventive vaccines (02.06.01.00)
Therapeutic vaccines (post exposure) (02.06.02.00)
Gene Therapy for HIV (02.07.00.00)
Other HIV/AIDS Treatments (02.10.00.00)
Adverse effects (02.11.00.00)
Drug resistance (02.12.00.00)
■ Blood: 03 Series
Blood (03.00.00.00)
Blood transfusions (03.01.00.00)
Pre-operative transfusions (03.01.01.00)
Transfusions during operation (03.01.02.00)
Blood diseases and disorders (03.03.00.00)
Sickle cell anemia (03.03.01.00)
Anemia, non-HIV/AIDS (03.03.02.00)
Leukemia (03.03.03.00)
Infections of the blood (03.03.04.00)
Other blood diseases and disorders (03.03.05.00)
Blood drives (03.04.00.00)
Blood donors (03.04.01.00)
Blood donor screening (03.04.01.01)
Blood donor payment (03.04.01.02)
Corporate blood drives (03.04.02.00)
Hospital blood drives (03.04.03.00)
Blood donor education programs (03.04.04.00)
Blood testing (03.05.00.00)
Blood sampling (03.05.01.00)
(Continued on next column)
Blood types (03.05.02.00)
Blood proteins (03.05.03.00)
Blood products (03.06.00.00)
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Blood products advisories (03.06.01.01)
Finance and Reimbursement Bulletin (03.06.01.02)
Cost of blood products (03.06.01.03)
Counselling in use of blood products
(03.06.01.04)
Approval of blood products (03.06.01.05)
Export of blood products (03.06.01.06)
Other issues related to blood products
(03.06.01.07)
Factor VIII (03.06.02.00)
Prophilate, Alpha heat treated solvent
detergent (03.06.02.01)
Koate HP, Cutter (03.06.02.02)
Koate HS, Cutter (03.06.02.03)
Hemophil M, Hyland (03.06.02.04)
Method M, American Red Cross (03.06.02.05)
Monoclate, Armour (03.06.02.06)
FVI11 SD, New York Blood Center (03.06.02.07)
Recombinant (03.06.02.08)
Alpha Nine (03.06.02.08)
Other Factor VIII products (03.06.02.09)
Factor IX (03.06.03.00)
Konyne, Cutter (03.06.03.01)
Proplex T, Hyland (03.06.03.02)
Profilnine, Alpha (03.06.03.03)
Mononine, Armour (03.06.03.04)
Other factor IX products (03.06.03.10)
Specialty products (03.06.04.00)
Humate, Armour (03.06.04.01)
Feiba, Immuno (03.06.04.02)
Autopl ex, Hyland (03.06.04.03)
Hyate C, Porton (03.06.04.04)
DDAVP, Armour (desmopressin) (03.06.04.05)
Amicar, Lederle (aminocaproic acid) (03.06.04.06)
Cyclokapron, kabivitum (transexamic acid)
(03.06.04.07)
Other specialty products (03.06.04.10)
Cryoprecipitate (03.06.05.00)
Other blood products (03.06.06.00)
Blood supply (03.06.07.00)
Blood product safety (03.06.07.01)
Blood purification (03.07.00.00)
Heat pasterization (03.07.01.00)
Solvent detergent (03.07.02.00)
Monoclonal process (03.07.03.00)
| (Continued on next page)
SEE ALPHA LIST FOR ALL TERMS USED
HANOI Controlled Vocabulary
.
. r. .
.
c==s==================================:s:========s=== ========x====:=======x===========:==s==========ss:==-======——_ _______________________
Prepared on: 16 August, 1993
Page 5
School administrators (05.07.04.00)
Teachers (05.07.05.00)
Housing (05.08.00.00)
Housing conditions (05.08.01.00)
Educators (09.01.07.00)
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Housing issues (05.08.02.00)
Public interest groups (05.09.00.00)
Speakers Bureaus (05.10.00.00)
Special events (05.11.00.00)
Volunteers (05.12.00.00)
Community organizations (05.13.00.00)
Chapters of the National Hemophilia Foundation
(05.14.00.00)
Hemophilia treatment centers (05.15.00.00)
■ Discrimination: 07 Series
Discrimination (07.00.00.00)
Age (07.01.00.00)
Ability (07.02.00.00)
Ethnicity (07.03.00.00)
Race (07.04.00.00)
Gender (07.05.00.00)
Sexual Orientation (07.06.00.00)
Military (07.07.00.00)
School (07.08.00.00)
Workplace (07.09.00.00)
Community (07.10.00.00)
Civil or constitutional rights (07.11.00.00)
Advocacy, related to civil rights (07.11.01.00)
■ Drug issues: 08 Series
Drug issues (08.00.00.00)
AIcohoI abuse (08.01.00.00)
Drug abuse (08.02.00.00)
Drug addiction (08.02.01.00)
Prescription drugs (08.02.02.00)
Recreational drugs (08.02.03.00)
Marijuana (08.02.04.00)
Intravenous drugs (08.02.05.00)
■ AIDS/HIV risk reduction: 09 Series
AIDS/HIV risk reduction (09.00.00.00)
AIDS/HIV education target groups (09.01.00.00)
Adolescents, HIV education target group
(09.01.01.00)
African Americans (A) (09.01.02.00)
Asian Americans (09.01.03.00)
Caregivers (09.01.04.00)
Caucasians (09.01.05.00)
Clergy (09.01.06.00)
(Continued on next column)
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Gay persons (A), Homosexuals (B) (09.01.08.00)
General audience (09.01.09.00)
Health care workers (A), Health professionals (B)
(09.01.10.00)
Dentists (09.01.10.01)
Emergency medical personnel (09.01.10.02)
Nurses as an HIV education target group
(09.01.10.03)
Nutritionists, as an AIDS education target
group (09.01.10.04)
Physicians, as an AIDS education target group
(09.01.10.05)
Other health care workers (09.01.10.06)
Heterosexuals (09.01.11.00)
Men (09.01.11.01)
Women, as an AIDS education target group
(09.01.11.02)
Latinos (B) (09.01.12.00)
Incarcerated persons (09.01.13.00)
IV drug users (09.01.14.00)
Lesbians (09.01.15.00)
Low literacy individuals (09.01.16.00)
Native Americans (09.01.17.00)
Parents, as an AIDS education target group
(09.01.18.00)
Pharmacists (09.01.19.00)
Psychosocial professionals (09.01.20.00)
Public safety workers (09.01.21.00)
Professionals (09.01.22.00)
Sex partners (09.01.23.00)
Students, as an AIDS education target group (A),
College students, as an AIDS education target
group (B) (09.01.24.00)
Worried well (09.01.25.00)
Other AIDS/HIV education target groups (09.01.26.00)
AIDS/HIV Education Programs (09.02.00.00)
Community health education programs (09.02.01.00)
Patient education programs (09.02.02.00)
Professional education programs (09.02.03.00)
School health education programs (09.02.04.00)
Evaluation of AIDS/HIV education program
(09.02.05.00)
Quality assurance (09.02.05.01)
Funding of AIDS/HIV education programs (09.02.06.00)
Outreach programs (09.02.07.00)
Peer education programs (09.02.08.00)
Peer support (09.02.08.01)
Peer groups (09.02.08.02)
| (Continued on next page)
SEE ALPHA LIST FOR ALL TERMS USED
HANOI Controlled Vocabulary
Prepared on: 16 August, 1993
Page 9
■ Policy issues: 17 Series
I Support groups (18.14.00.00)
Support group development (18.14.01.00)
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Support groups for people with hemophilia
I
(18.14.02.00)
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Support
groups for people with HIV (18.14.03.00)
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Group
dynamics
(18.14.04.00)
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Self-help
support
groups (18.14.05.00)
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Stress
management
(18.15.00.00)
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Values (18.16.00.00)
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Value systems (18.16.01.00)
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Values clarification (18.16.02.00)
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Psychological
issues of AIDS risk for hemophilia
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community
(18.17.00.00)
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Caregivers (18.18.00.00)
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Policy issues (17.00.00.00)
Church policies (17.01.00.00)
Health care policies (17.02.00.00)
AIDS policy (17.03.00.00)
Pol icy development (17.04.00.00)
Public health policies (17.05.00.00)
Local health policies (17.05.01.00)
State health policies (17.05.02.00)
National health policies (17.05.03.00)
EAP policies (A), Workplace policies (B) (17.06.00.00)
Other policies (17.07.00.00)
School AIDS policies (17.08.00.00)
■ Psychosocial issues: 18 Series
Psychosocial issues (18.00.00.00)
Bereavement (18.01.00.00)
Grief (18.01.00.00)
| Research (19.00.00.00)
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Medical devices (19.01.01.00)
Drug research (19.01.02.00)
Research on AIDS/HIV (19.02.00.00)
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seroprevalence studies (19.02.00.00)
KABB Studies (19.02.02.00)
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Clinical trials of AIDS Drugs (19.02.03.00)
Basic research (19.03.00.00)
Bereavement counseling (18.01.01.00)
Bereavement services (18.01.02.00)
Coping (18.02.00.00)
Counseling (18.03.00.00)
Counseling significant others (18.03.01.00)
Group counseling (18.03.02.00)
Crisis prevention (18.04.00.00)
Death and dying (18.05.00.00)
Euthanasia (18.05.01.00)
Suicide (18.05.02.00)
Fear (18.06.00.00)
Mental health (18.07.00.00)
Mental health education program (18.07.01.00)
Mental health professionals (18.07.02.00)
Psychiatrists (18.07.02.01)
Psychologists (18.07.02.02)
Psychotherapists (18.07.02.03)
Psychological studies (18.08.00.00)
Data collection (19.04.01.00)
Longitudinal studies (19.04.02.00)
Patient selection in studies (19.04.03.00)
Research publications (19.05.00.00)
| ■ HIV prevention: 20 Series
I HIV prevention (A) (20.00.00.00)
Psychological factors (18.08.01.00)
Personality (18.08.02.00)
Psychosocial issues re living with hemophilia
(18.09.00.00)
Social adjustment related to living with
hemophilia (18.09.01.00)
Psychosocial issues of living with HIV (18.10.00.00)
Social adjustment related to living with AIDS/HIV
(18.10.01.00)
Disclosure of HIV status (18.10.02.00)
Psychosocial research (18.11.00.00)
Psychosocial support (18.12.00.00)
Self-help groups (18.13.00.00)
(Continued on next colum)
Deoxyribonucleic acid (DMA) (19.03.01.00)
Research methodology (19.04.00.00)
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Safer sex (20.01.00.00)
Spermicides (20.01.01.02)
Intercourse (20.01.02.00)
Intercourse, oral (20.01.02.01)
Intercourse, vaginal (20.01.02.02)
Intercourse, anal (20.01.02.03)
Behavior modification related to HIV prevention
(20.02.00.00)
Behavior maintenance strategies (20.02.02.00)
Vaccines (20.08.00.00)
| ■ Workplace issues: 21 Series
| Workplace issues (21.00.00.00)
|
Employees (A) (21.01.00.00)
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Employee assistance programs (21.01.01.00)
| (Continued on next page)
SEE ALPHA LIST FOR ALL TERMS USED
HANOI Controlled Vocabulary
Page 10
Prepared on: 16 August, 1993
Employee rights (21.01.01.00)
Employers (21.02.00.00)
Employment (21.03.00.00)
Other issues of hemophiliacs with HIV (24.06.00.00)
Impact of HIV on hemophilia community (24.07.00.00)
Risk reduction/safer sex (24.08.00.00)
Employment opportunities (21.04.00.00)
■ Youth: 22 Series
Youth (22.00.00.00)
Preschool children (22.01.00.00)
Children as a distinct population (22.02.00.00)
Adolescents, general items (22.03.00.00)
Students as a distinct population (22.04.00.00)
■ Ethical issues: 23 Series
Ethical issues (23.00.00.00)
Bioethical issues (23.01.00.00)
■ Hemophilia and AIDS/HIV: 24 Series
Hemophilia and AIDS/HIV (24.00.00.00)
Statistics related to hemophilia and AIDS/HIV
(24.01.00.00)
Hemophiliacs with HIV, U.S. (24.01.01.00)
Hemophiliacs with HIV, International (24.01.02.00)
Children with hemophilia and HIV (24.01.03.00)
Seroprevalence of HIV in people with hemophilia
(24.01.04.00)
Mortality rates and figures (24.02.00.00)
Mortality rates and figures of hemophiliacs with
HIV, US (24.02.01.00)
Mortality rates & figures of hemophiliacs with
HIV, Inti (24.02.02.00)
Mortality rates & figures of children with
hemophilia & HIV (24.02.03.00)
Living with hemophilia and HIV (24.03.00.00)
Practical issues of living with hemophilia and HIV
(24.03.01.00)
Psychological issues of living with hemophilia and
HIV (24.03.02.00)
Children living with hemophilia and HIV
(24.03.03.00)
Press coverage (24.04.00.00)
Press coverage of adults with hemophilia and HIV
(24.04.01.00)
Press coverage of children with hemophilia and HIV
(24.04.02.00)
Spouses, partners, families of hemophiliacs with HIV
(24.05.00.00)
Seroconversion of partners of hemophiliacs with
HIV (24.05.01.00)
Children of hemophiliacs with HIV (24.05.02.00)
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Bibliographies about hemophilia and AIDS/HIV
(24.09.00.00)
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SEE ALPHA LIST FOR ALL TERMS USED
Appendix 6: Newsletters and Other Publications
Publication of newsletters is one of the information dissemination strategies used by AIDS information
projects. This appendix includes newsletters published by projects in this report. Inclusion of entire
issues of every newsletter was not practical because of the length of the publications. Only sample
pages have been included where noted. When a project publishes more than one newsletter, only one
was chosen as an example. An AIDS information project interested in publishing a newsletter can
contact the organization producing a listed publication and request samples and advice on publication
and distribution issues.
i.
AIDS Information Newsletter (entire issue included)—AIDS Information Center, U.S.
Department of Veterans Affairs. AIDS News Service, published by the same organization, is
not included.
2.
WACHIVY News (sample pages only included)—Teen AIDS Student Coalition.
3.
The Survivor (entire issue included)—Friends Project
4.
Critical Path AIDS Project (sample pages only included)—AIDS Information Network
Library.
5.
HIV Educator (sample pages only included)—California AIDS Clearinghouse. Special
Reference Guide to CAC Materials, published by the same organization, is not included.
6.
STEP Perspective (sample pages only included)—Seattle Treatment Education Project.
7.
HIV Treatment Information Exchange (entire issue included)— Hemophilia and AIDS Network
for the Dissemination of Information (HANOI). HANDI Information Center Update and
HAND1 Quarterly, published by the same organization, are not included.
8.
Survival News (entire issue included)—AIDS Survival Project Treatment Library.
AIDS INFORMATION NEWSLETTER
Michael Howe, MSLS, Editor
AIDS Information Center
VA Medical Center, San Francisco
(415) 221-4810 ext 3305
March 25, 1994
TUBERCULOSIS AND HIV INFECTION (Part XVI)
Information Resources
Tuberculosis: A Comprehensive International Approach
(Monograph Information)
Editors:
Lee B. Reichman and Earl S. Hershfield
Description:
792 pp., illustrated, 1993, ISBN: 0-8247-8852-4, $195
Synopsis: This publication, written by over 40 authorities in the
field, deals with tuberculosis in both developed and developing
countries and examines the disease from historical, theoretical,
and practical perspectives. The book contains 1800 bibliographic
citations and more than 150 tables, drawings, photographs, and
micrographs.
The introductory chapter covers the history of tuberculosis and the
remaining chapters are divided into five topic areas:
(1) Basic
Aspects — epidemiology, bacteriology, immunology, pathogenesis,
and transmission/environmental control of tuberculosis;
(2)
Practical Aspects — the tuberculin test, diagnosis, case finding
and case holding, treatment, preventive therapy, BCG vaccination,
and contact tracing; (3) Special and Unique Problems — drug
resistance, TB and infection with HIV, TB in the elderly, homeless
populations, children, correctional facilities, Native North
Americans, Africa, and inner cities, and mycobacteria causing human
disease.
(4) Tuberculosis Control in the World — national
programs, evaluation of applied strategies in the developing world
and in low-prevalence countries, the plan to eliminate TB in the
U.S., and the role of the World Health Organization and of
nongovernmental organizations; and (5) The Future, which discusses
research needs.
Availability: Marcel Dekker, Inc., 270 Madison Avenue, New York,
NY 10016. Phone: 800-228-1160. Fax: 914-796-1772. Hours to call
are 8:30 AM - 5:45 PM (EST), Monday-Friday.
New York residents
tax.
must add appropriate sales tax.
European address:
Hutgasse 4,
Postfach 812, Ch-4001 Basel, Switzerland. Phone: 061-261-8482.
*******************'*-****-******-*■********-***********•*■*■****•****★**★■*
The Continuing Challenge of Tuberculosis
(Monograph Information)
Description:
Synopsis:
148 pp., 1993, $9.50
This
report
[U.S.
Congress,
Office
of
Technology
Assessment, The Continuing Challenge of Tuberculosis, OTA-H-574
(Washington, DC: U.S. Government Printing Office, September 1993)]
synthesizes current understanding of tuberculosis in the United
States and examines the Federal role in its control. After having
declined for 30 years, the overall incidence of tuberculosis is
again on the rise.
Especially hard hit are economicallydisadvantaged people, racial and ethnic minorities, and foreignborn individuals.
The report concludes that, unchecked, these
trends represent a profound threat to communities already saddled
with poor health, poverty, and other social problems. In addition
to reviewing the state of research into new preventive, diagnostic,
and therapeutic technologies, the report pays special attention to
resistant tuberculosis and the relationship between tuberculosis
and HIV.
Availability:
Superintendent of Documents, U.S. Government
Printing Office. P.O. Box 371954, Pittsburgh, PA 15250-7954.
Phone: 202-783-3238.
Stock number: S/N 052-003-01341-0.
$9.50
each.
Controlling Occupational Exposures to Tuberculosis
(Monograph Information)
Author:
Joint
Organizations.
Commission
on
Accreditation
of
Healthcare
Description:
37 pp., $40 (Plant, Technology & Safety Management
(PTSM) Series, Number 1, 1993 Series)
Synopsis: Tuberculosis (TB) is in the air and health care workers
are at risk. Until recently TB was no longer considered a serious
health concern, but it again poses a threat. There were 27,000 new
cases of TB reported to CDC in 1991. The American Lung Association
now estimates that without major efforts, the United States will
see at least 50,000 new TB cases every year within a decade.
Furthermore, multidrug-resistant (MDR) strains of TB have emerged,
strains that do not respond to the usual course of drug therapy.
Serious outbreaks of MDR-TB have occurred recently at health care
facilities in several major cities.
TB is highly infectious and
spreads through the air when infected persons cough, sneeze, or
even speak, although usually transmission requires repeated close
exposure to an infected person.
To address these concerns, the
Joint Commission has published this monograph, the first in the
1993 PTSM Series.
The book discusses:
(1) what measures are
effective in preventing an outbreak of TB in facilities, including
proper isolation room ventilation, the use of ultraviolet light for
air disinfection, and the role of personal respiratory protection;
(2) how TB is transmitted and what makes it so infectious; and (3)
what current and upcoming legislation may require, including
regularly monitoring health care personnel for infection, removing
temporarily contagious employees form the workplace, and proving
ongoing training and education to workers regarding the hazards and
control of TB.
Availability:
Joint Commission on Accreditation of Healthcare
Organizations, P.O. Box 75751, Chicago, IL 60675-5751. Phone: 708916-5800 (7:00 AM - 5:00 PM CT).
★★★★★★★★★★★★★★★★★★★★★★★★*★★*★★★★★*★★*****★*★*★★****★★★*★★★*******
Guidelines Available for Managing TB and HIV in the Workplace
(Monograph Information)
The National Leadership Coalition on AIDS recently issued the
first guidelines to be published that deal with both HIV and TB in
the workplace. This publication, "Managing TB and HIV in Today's
Workplace," provides answers to the most commonly asked questions
and addresses key issues, such as screening of employees, risks of
transmission, return-to work-policies, and implications of the
American Disabilities Act. To order, call 202-429-0930. Cost is
$1.50 to cover postage and handling.
(1) Understanding Tuberculosis Today: A Handbook for Patients
(2) Fundamentals of Tuberculosis Today: For Health Professionals
(Monograph Information)
Author:
William W. Stead, MD, Professor of Medicine, University
of Arkansas School of Medicine and Director, Tuberculosis Program,
Arkansas Department of Health.
Description:
Sth. ed., 31 pp. each, 1992
Synopsis:
"Fundamentals of Tuberculosis Today" is intended as a
companion to "Understanding Tuberculosis Today."
A similar
approach to tuberculosis is provided, but in greater depth for
persons in health-related professions.
The publication has not
been revised since 1980, largely because of lack of demand for
information on TB during the decade of the 1980s when tuberculosis
rates declined. As the 1990s began, however, cases increased and
began to spread more widely particularly among those with HIV
infection.
Success in curing a patient without emergence of drug
resistance deepens upon prescription of the proper medications and
cooperation of the patient with the regimen.
It is to reduce the
chance of development and spread of drug resistant M. tuberculosis
that these two booklets are dedicated.
Availability:
Central Press, Inc., P.O. Box 252, Milwaukee, WI
53201.
Less than 11 copies $5.00 each (prepaid); 11-50 copies
$1.50; 51-100, $1.00; 101-400, 80 cents; 401 or more 60 cents each.
Prices subject to change without notice.
Tuberculosis Controls Receiving Greater
Emphasis at VA Medical Centers
This is a report (GAO/HRD-94-5) of the U.S. General Accounting
Office (GAO) that was published in November 1993 to determine the
reasons for an outbreak of tuberculosis at the Department of
Veterans Affairs (VA) medical center in East Orange, New Jersey and
what management initiatives VA has taken to assist other medical
centers to strengthen their tuberculosis-control efforts.
Most VA Medical Centers Treat Tuberculosis and AIDS Patients
VA's 1993 Infectious Diseases Control Survey shows that
medical centers treated more than 976 tuberculosis-infected
patients as of December 1992.
(This figure does not include two
facilities, Oklahoma City and Honolulu, 1because their survey data
had not been received by VA's Central Office),
Sixteen centers
have tuberculosis workloads that are similar to or greater than
those at the East Orange Center,
The number of tuberculosis
patients treated varied by region, ranging from 152 in Region IV
to 453 in Region III.
In contrast, 31 medical centers reported
that they did not treat any tuberculosis patients in 1992,
according to the survey.
As of December 1992, VA had treated 14,649 AIDS cases since
1979, when VA began tracking them [Editor's Note: As of September,
1993 the cumulative total of AIDS cases within VA had increased to
18,697 ] .
CDC has estimated that the incidence of tuberculosis in
HIV-infected individuals is 500 times greater than in the general
population (1,2).
Some centers face potential risk with high
numbers of patients with AIDS (3), tuberculosis, or both.
For further information or to obtain a copy of the report,
contact, GAO, Washington, D.C. 20548.
Phone: 202-512-6000.
The
report is excerpted in ’’AIDS Reference Guide” (January 1994,
Section 906, pp. 1-8).
This guide has been supplied to all VA
Medical Center libraries with funds provided by AIDS Service, VACO.
(1) For an otherwise healthy person infected with tuberculosis, the
chance of developing active tuberculosis is 10 percent over a
lifetime.
HIV-positive persons infected with the tuberculosis
bacterium have over a 10-percent chance each year of developing
symptoms.
(2) Significant increases in tuberculosis morbidity are occurring
in certain areas with a high prevalence of patients with HIVinfection.
The increase in annual tuberculosis morbidity seen in
the United States occurs mainly in geographic areas and demographic
groups with large numbers of AIDS cases.
This suggests that the
HIV epidemic has begun to influence tuberculosis morbidity.
(3) Twelve VA medical centers account for almost half of the AIDS
cases in VA—the East Orange Center was ranked fifth.
*****************************************************************
Serials
TB MONITOR
The Monthly Report on TB Prevention, Control, and Treatment
Publisher:
American Health Consultants,
Dept.
CD1-91,
P.O.
Box
71266, Chicago, IL 60691-9987.
Customers call 404-262-7436.
Phone: 800-688-2421.
International
Description: According to the publisher, TB MONITOR provides the
latest research developments, actual case studies, and expert
guidance, all designed to provide the practical foundation needed
to effectively deal with the resurgence of TB. The first issue of
this publication (20 pages) was January, 1994.
The following
article titles were included: (1) survey finds most physicians
don't know enough to diagnose and treat TB; (2) hospitals stop
spread of TB with innovative engineering controls; (3) Rikers
Island Prison: a model TB control program that hospitals can learn
from; (4) rapid diagnostic test in development; (5) providers
should counsel active TB patients to avoid public transportation;
and (6) unique TB programs: Bellevue's DOT program uses patient
incentives.
Inserted in this issue: "Common Sense About TB"
patient handout to photocopy and distribute to patients.
Availability: Same as publisher. $219 (12 issues). $259 (12 issues
w/ 18 Nursing Contact Hours). $259 (12 issues w/ 18 Category 1 CME
Credits). USA possessions and Canada add $10 per year. Elsewhere,
add $20 per year.
Photocopying of individual articles for
educational purposes within hospitals or health care facilities is
also approved. Contact the publisher for a sample copy.
TB WEEKLY
Publisher:
Editorial
Atlanta, GA 30307-0528.
and Publishing Office,
Phone: 404-377-8895.
P.O.
Box
5528,
Description:
This international weekly has been published since
1993.
According to the publisher, this newsletter focuses on
scientific, medical and business developments and features news,
research, periodical reviews and a calendar of upcoming meetings.
The editor is also responsible for other publications including
AIDS Weekly, Blood Weekly, Infection Control Weekly, and Drug
Resistance Weekly, and this resource's format is similar.
The
following reports among others were included in the sample copy
available for December 6, 1993: New York. City Must Purchase TB
Masks Health Department Calls Unnecessary; Washington, D.C.
Nation's Capital Faces TB Epidemic; WHO. Global Neglect of
Tuberculosis Crisis Attacked; Africa. Prevention/Treatment of TB
Being Ignored in AIDS Patients; Internal control for detection of
Mycobacterium tuberculosis by DNA amplication; False positives with
the DNA probe for M. tuberculosis; and Tuberculosis and HIV
infection.
Availability:
TB Weekly, P.O. Box 830409, Birmingham, AL 352830409.
Phone: 800-633-4931. $850 for 1 year (48 issues).
This
information shall not, in whole or in part, be redistributed,
reproduced,
or put
i
into a computer without prior written
permission. Possession or distribution of an illegal photocopy of
all or part of this information - even for internal use - is
prohibited by law (17 U.S.C. 504).
Hospital Infection Control
Publisher:
American Health Consultants, 3525 Piedmont Road,
Building Six, Suite 400, Atlanta, GA 30305.
Telephone: 800-6882421 or 404-262-7436.
Description: This publication, as the name implies, provides news
and comment in the field of hospital infection control. The title
is included in this series because tuberculosis has been covered
extensively in recent issues. Abstracts of some of those articles
have been included in this series. The leading article in the most
recent issue (1994 March, Vol. 21, No. 3, pp. 29-44) is "NIOSH
Testing TB Masks: CDC Inundated with TB Reaction as OSHA
Enforcement Continues." The key elements of a TB control program
are excerpted from a recent special briefing by the American
Hospital Association (See: American Hospital Association Technical
Panel on Infections. Tuberculosis Control in Hospitals: A Special
Briefing. Chicago: January 1994).
Also included are: AHA, SHEA
question cost, scope of CDC draft TB guidelines; AHA cost estimates
for TB; and SHEA warns of engineering, mask cost.
Availability:
Same as publisher,
$279 ( 12 issues) . $319 (12
issues w/ 18 Nursing Contact Hours or Category 1 CME Credits),
USA possessions and Canada add $10 per year. Elsewhere, add $20
per year.
Photocopying of individual articles for educational
purposes within hospitals or health care facilities is also
approved.
Contact the publisher for a sample copy.
WACHIVIY NEWS
TeenAlDS Information Network • VolumeS • Number 7 • August!September 1992
A MOTHER REMEMBERS
—by Nancy Kamens
M
inside
■ fly son David died this year,
at the age of 21, on February
28, my mother’s birthday. He
had AIDS. In the four years of
his illness, I walked beside him
and learned from his example
about how to live more in the
moment.
David always lived as if he
knew his would be a short life.
He asked for what he wanted.
He reached for every dream and
President 's Report......................................
Calendar...................................................
2
3
Loyalty Oath Restricts AIDS Education in N. Y.
7
Other News...............................................
7
Project Lifeguard.......................................
AIDS Digest................................................
8
overcame many imposing
obstacles. New ideas—for
himself, for me, and for
everyone else important in his
life—bubbled forth in a steady
stream. Often it was hard to
keep up. As he learned to
dispense with the “should dos”
and “ought tos,” so did I.
My first child, David
always seemed to be the little
wise one. When he was five (I
was single again and dating), he
said (with considerable accu
racy) “Mommy, you have too
many boyfriends and not
enough girlfriends.”
Later, remarried, I was not
always comfortable with David’s
usually wanting the best of
everything—the “in” brands, the
most expensive lines—and the
ways people always seemed to
“do for” him. Was it my own
struggle with my sense of self
worth? Did I think that one
should not expect the best?
David won the bike in the raffle
at the elementary school fair. A
few years later, at age 11, he got
the high-paying yard job across
the street and earned enough
money to fly to Jamaica to visit
a friend.
Often I was there with
caution and doubts (to protect
him from hurt and disappoint
ment?) At the end of sixth
8
We moved again!
Please change your rolodexes and mailing lists!
■ Washington
Area
Consortium
on HIV
Infection
in Youth
Our new addresses 1804 T Street, N. W., Washington, D.C. 20009
Our telephone and fax numbers remain the same.
continued on page 5
PRESIDENT’S REPORT
—by Larry D'Angelo, M.D., M.PH.
recent controversy over
the decision of the commission
on Public Health and the school
CONDOMS IN SCHOOLS: SYSTEMS
INCOMPATIBILITY
Lawrence J. DAngelo, M.D.,
Chairman, Department
ofAdolescent and Young Adult
Medicine, Children’s National
Medical Center, and President,
Washington Area Consortium on
HP/ infection in Youth
(WACHIVIY)
system to make condoms
available in city high schools
and select junior highs may be
symptomatic of the inherent
discomfort that education and
medical care systems have with
one another. This is especially
peculiar in the case of this
program, since it is mainly
conceived to bring focused
educational intervention to
youth who are at increased risk
of a variety of adverse health
consequences. Despite the fact
that condoms can be dispensed
by school nurses, the program
hardly makes them readily
available and to characterize this
program as a “condom give
away” is patently ridiculous.
The uneasiness of medicine
and education may have more
to do with this controversy than
any of the participants might
like to admit. Despite the
school-based clinic” movement,
these systems often interact
awkwardly. One (education) is
charged with bringing knowl
edge to adolescents while the
other (medicine) ministers to
their health. Although these
functions might be considered
to be related, some fundamental
differences get in the way of
of the preadolescent pediatric
visit. This is akin to parents
showing up at back-to-school
night. In many health
smooth interaction. Education
practicioners offices, however,
is grounded in the desirability of
at some rather arbitrary time
(usually age 13 or shortly
thereafter) this parental presence
parental involvement. While
this is most evident on the
elementary school level, such
involvement is probably even
more valuable on the junior and
senior high school levels. It’s
through schools and formal
groups such as PTAs that
parents often become aware of
the issues that endanger their
sons and daughters: premature
sexual intercourse, drug use,
alcohol abuse and violence.
Parents want, expect, and
deserve to have school officials
is no longer viewed as necessary
or desirable. Since my practice is
limited to adolescent medicine,
this usually occurs the first time
I see a patient. Other practitio
ners have different milestones
for changing the nature of care
they provide (high school, first
menstrual period, etc.). Laws in
the District of Columbia,
Maryland, and Virginia protect
this “confidential” relationship
between the adolescent patient
report to them behaviors that
might place their adolescents at
risk of health, legal, or educa
and his or her health care
tional consequences. Moreover,
seek care without parental
parents are used to having a say
over what goes on in the
classroom. In most jurisdictions,
if parents object to their
permission. At the same time,
the health practitioner often
children being taught certain
things that have remotely moral
or ethical overtones, schools
allow these students to be
exempted in accordance with
their parent’s wishes. Interest
ingly, it is the parent’s decision
in this case, with little concern
being expressed about “students
rights.”
For adolescents and their
parents, medicine is quite a
different system. Parental
involvement, up to and
including their presence during
the examination is a cornerstone
provider as well as protecting
the right of an adolescent to
encourages parents to get more
involved with their adolescent in
his or her educational setting. I
often prescribe parental atten
dance at PTA meetings and
encourage regular contact with
school officials. At the same
time, I make it clear to my
patients’ parents that their child
and I will have a relationship
that might at times purposefully
exclude them.
Is there any wonder that
when we try to combine these
two systems into one huge
adolescent well-being emporium
(school) that we have problems?
Parents who arc objecting to the
conUnutd on pogo 9
WACHIVIY NEWS
*
CALENDAR
Street Wise Coalition
Meetings are held most Tuesdays at 9:00 a.m. at 3331/: Pennsylvania Ave.. SE (SMYAL Office). The Street Wist
Coalition meets co discuss issues relating to youth ar highest risk for HIV—Out of Home. Runawaf/Throwawav.
etc. For information call (202) 986-4310.
HIV+Drop-ln Coffeehouse
Friends, family, and caregivers welcome. Hosted by Friends Meeting of Washington. F
" '
Refreshment,
board games.
socializing. 7:30 p.m., 21 I I Florida Ave.. N.W. (enter on Decatur). For information call (202) 483-3310.
Has your organization produced
new education materials? Do you
have programs you want people to
know about? Fax (202) 9860109 or call (202) 986-4310.
Well let people know!
Ifyou have an idea for a feature
or fyou'd like to become involved
in WACHIVIYNEWS—call us!
(202) 986-4310.
National AIDS Hotline
(800) 342-AIDS
Spanish Speaking
(800) 344-SIDA
Deaf
(800) AIDS-TH'
D.C. AIDS Information
(202) 332-AIDS (V/TDD)
Burgess Clinic, Children’s
National Medical Center
(202) 745-2178
The Northern Virginia AIDS
Project
(703) 358-9550
Prince George’s County
Office on AIDS
(301) 386-0348
Sexual Minority Youth
Outreach program weekly Gay & Lesbian youth group. Saturdays. 10:00 a.m.-12:00 p.m. For information call
Emily or Tom at (301) 663-001 1 in Maryland. SMYAL groups meets in the Washington area on Saturdays Call
(202) 546-5941.
September 22, 1992
Metro Condom Availability Coalition Meeting, 6:30 p.m., ar the WACHIV1Y Office. 1804 T St.. N.W. (base
ment). Meetings are also held on alternating Tuesdays. All are welcome. For information call (202) 986-4310.
September 23, 1992
Creative Positive Linkages Family Planning Substances Abuse: Whats the Connection? A cross training
workshop. 9:00 a.m.-3:00 p.m.. Training Center. Metropolitan Washington Council of Governments. 777 North
Capitol St.. N.E.. Washington. D.C.
September 24, 1992
The Medical Society of the District of Columbias Women Physicians Section, in conjunction with the American
Medical Women's Association. Branch I Chapter is sponsoring a seminar on AIDS/HIV and Women
Thursday, 6:00 p.m.-8:00 p.m. at the Medical Society of D.C.. 1707 L Street. N.W. Fourth Floor, Washington.
D.C. Contact Shay Thomas at MSDC. (202) 466-1800.
September 25, 1992
The Mid-Atlantic Network of Youth & Family Services (MANY). Adolescent Abuse Mini-Conference, Manassas.
Virginia.
September 26, 1992
AIDS Walk/Washingcon. Contact the Whitman Walker Clinic, (202) 797-3500.
September 24, 1992 (4th Thursday each month)
Education Subcommittee of the DC Care Consortium. Contact Amshatar Monroe, (202) ?55-3893.
October 1 & November 5, 1992
The Northern Virginia HIV Resource &(. Consultation Center sponsors a
Clinical Training Program for Health Care Professions. For information call (703) 204-3780.
October 8, 1992
National Episcopal AIDS Coalition Conference & Retreat for People Living. Working, and Ministering in the
Second Decade of AIDS. National 4-H Center, Chevy Chase, Maryland. (202) 628-6628.
continued on page 4
WACHIVIY NEWS
Page 3
CALENDAR
from pagt 3
October 8, 1992
Support Center of Washington ManagementWorkshop for Nonprofits: Boards 6c Fund-raising. The Support
Center . 2001 O Street, N.W., Washington. D.C. 20036. (202) 833-0300 or 223-8048
D
-------------- f’’
KzvaiMa
uk.
1 1411VI'
October 8-11, 1992
1992 National Skulls Building Conference. Sponsored bv AIDS National Interfaith Network. National Association
of People with AIDS, National Minority Council, Sheraton Washington Hotel. (202) 544-1076.
October 8-11, 1992
In conjunction with the National Skills Building Conference, one
ie-day institutes: AIDS and the BlaclJ Church.
AIDS Housing Institute, AIDS Public Policy, Nutrition and HIV/AIDS, Woi
—. -omen and AIDS. Call (202) 544-1076
for registration information.
October 9-11, 1992
The Names Project AIDS Memorial Quilt will be on display on
the Mall.
October 8 & December 10,1992
Pediatric AJDS Advisory Committee. OAA Commission of Public Health. 1660 L St.. N.W.. lOrh floor conference
room. 2:30 p.m.-4:30 p.m. Contact Jean Tapscott. Agency for AIDS Activities, at (202) 673-6888.
October 15-16, 1992
The Mid-Adanric Necwork of Youth & Family Services (MANY). Fourth Annual Reg.onal Networking Conference
&c Annual Meeting. Baltimore. Md. Call (412) 366-6562.
*
November 2,1992
Support Center of Washington Management Workshop for Nonprofits: Developing Effective Boards. This
workshop describes board structures & relationships that work. It is recommended that ar least one board member
oat naAAXCCUt,VC
’"“d’ Thc SuPP°rt Ccntcr' 2001 ° Street. N.W., Washington . D.C. 20036. (202)
833-0300.
November 17,1992
Support Center of Washington Management Workshop for Nonprofits: Establishing a Volunteer Program. This
workshop is designed for those who are considering or are in the early stages of developing a volunteer program.
The Support Center, 2001 O Street, N.W., Washington , D.C. 20036, (202) 833-0300.
December 4-5, 1992
Child Welfare League of America. Inc. Saving Young Lives: The Triple Threat of Alcohol & Other Drugs. Sexual
u ^a^&zHIV
call (202) 638-2952.
3 rw°-day symposium. Mayflower Hotel. Washington. D.C. For additional informanon
2nd & 4th Thursdays
Support group for youth between ages 13-23 who have tested positive
for HIV (the virus that causes AIDS). For additional information call Chris Vaughan. MSW. ar (202) 877-6287 or
Dianne Okonseki at (202) 939-5939.
1 st & 3rd Wednesdays
Support group for friends and family of HIV infected individuals meets at 6:00 p.m.. Hunt Place Clinic. 4130
Hunt Place, N.E., Washington, D.C. 20019. Contact Chian Gavin, (202) 727-0528.
1 st & 3rd Wednesdays
HIV support group for gay adolescent males. Burgess Clime at Childrens Hospital. 4 p.m. Contact Donna
Richmond. (202) 745-5389.
Ongoing
HIV Support groups for adolescents. Contact Donna Richmond. (202) 745-5389.
WACHIVIY NEWS
Page 4
THE SURVIVOR
Newsletter of the Friends Projects for People With AIDS and their Supporters
POBox 635 Chowchilla CA 93610
Number 24
Feb 7 1994
This issue is dedicated to Leigh
(323, California)
Alive in Our Hearts Nou and Always
SPECIAL ISSUE: E
We expect to modify the SURVIVOR'S format in a number of ways
between now and
Issue-3.
25. Please
- -------Pleasesee
seethe
thenote
noteininthe
theback
backfor
for more
information about the changes ... and in the meantime, enjoy the old style
with us just once more, for old limps' sake!
^iCBSSDCINL ASPECTS OF AIDS:
The advent of AIDS has brought an obvious and pressing need for increased
medical knowledge of the human body under siege, But what of the mind and
psyche? Are they "cofactors" in development of AIDS?
Earlier on, the question would have been thought unreasonable, as the
physical impact of the disease is so tremendous by itself. Today, however,
the social sciences are apparently trying to tell us something, and we're now
probably more ready to listen.
Under the bulky heading of "psyconeuroimraunology," there are attempts being
made to prove, not just suggest, that the immune system is directly
influenced by mind and emotion. "Holistic" approaches to madirine no longer
sound so exotic to some of us. Dr. Bernie Siegel is the new cult hero. Are
we onto something that can help us fight AIDS?
Indeed, could we go all the way around and attack the front end of the
problem? It's plain that society will have to pay and pay for the
consequences of this disease, but that doesn't relieve us of a duty to
prevent AIDS infections at the boginning if we ran
Consideration of AIDS psychosocial problems often gets mired in the topic
of depression before such new and vital concepts can be addressed. There
still is disagreement onoog behavioral scholars over whether AIDS entails
depression as an opportunistic mental disorder — or whether depression
causes deepening of AIDS' physical symptoms.
The disagreement seems odd, knowing that today's doctor is being encouraged
to look for depression as a causative or contributing factor in so many
illnesses. If that isn't valid, there's a lot of amitriptyline being
prescribed for no good reason today.
But a recent Johns Hopkins study of 1,809 HIV- infected men over eight
years has failed to find a link between depression and increased AIDS
symptoms. While 54% of depressed men developed signs of physical disease.
2
52% of the other subjects did the same.
f°?es from a surver by Jeffrey Burack and colleagues at the
®rsity of California San Francisco. In Dr. Burack's words, "... neither
par1
af£ec^ve depression was significantly associated with
earner AIDS diagnosis or earlier mortality."
AIDS link* °nni^ehl
how can we go on assuming there’s a depression/
many oV’Se riX X^
reaSOnable'
Even though the statistic called the "incidence rate" of infections
aaJ:1r1ea^-nslY, Hldens to include other groups, the brunt of the epidemic is
still borne by gay males and injecting drug users. At a social disadvantage
in any case, these groups may not be the victims of genocide, but they have
been shaken by a dozen years' attrition having about the same effect
a^c^X^g
by
friends and seeing a grim forecast of their own passing. If the loss is that
of a lover, finds psychologist Margaret Kemeney at University of California
the person's immune system will in fact be affected. She
studied standard indicators, such as T-helper cell counts, in forming her
conclusions. (Although she didn't see the same effect when the death was not
sources Relieve that more sensitive immune tests
might well have disclosed an effect.)
In
kook "If a Partner Has AIDS," author Dennis Shelby tries to chart a
messages- ^irst05^/1?^
t^ones left behind. His much- needed
loss, don’t stand all alone, seeJ^help^
Y°Ur partner'
711611 when confronting
Though there are many ways of doing that, the new cornerstone of mental
health is the ’support group," as defined in a study by the Long Island
Association for AIDS Care. "The Human Face of the HIV/AIDS Epidemic," as
relativ^1^©there adenS
PiCtUre to include 1216 needs of caregivers.
Grief is only one facet of "AIDS: Complete Guide to Psychosocial
Interventions," edited by Helen Land. Here are papers on women's and legal
issues; service organizations; education; the special dangers of HIV to the
S? hSre' the SCt?Pe in5ludes
"front end" of the problem as it
ultimately must — young people, and education
In
^iun.t WfrdS of DrSaah’ an epidemiologist, "Young people
generally think they are bulletproof, regardless of sexual orientation." P
Viewing the pathogenesis of AIDS in the gay population, it seems Muratinn
would easily result in the control of AIDS for this group. But some say
Jhe" s a.dfep cultuj-al chasm here, not just a need for some lectures on
health. And a recent resurgence of HIV infections in San Francisco's oav
community almost mandates a new search for control methods.
Continued on Page 10 =—>
3
MEDICAL NEWS
(3?0UP SETS FOCUS ON "IMMUNE RESTORATION" .. .
The Journal of the American Medical Association reports that a "think tank"
made up of diverse scientific talents has for the past 18 months been trying
to forge an approach for control or cure of AIDS in the 90's. The group's
name gives away its emphasis: "Project Immune Restoration."
Some "controversial concepts" have received the group's attention, says
Stella Knight, Ph.D. She's head of the Division of Antigen Presentation
Research at the Clinical Research Center, Harrow, Middlesex (UK).
Her work deals with the depletion of dendritic cells, which is now known to
precede the better known phenomenon of T-cell depletion in HIV pathogenesis.
(Dendritic cells are the differentiated descendant of the Langerhans cell,
and they are the most vulnerable part of what is called mucosal immunity.)
Dr. Knight's work indicates that dendritic cells "teach 'naive' T-cells"
how to respond to antigen, although she concedes her theories aren't polished
or perfected.
But the entire point of Project Immune Restoration is to not spend time
proving or disproving contributed ideas — it is to try to integrate them
into a greater whole, and any work that might lead to strengthening immunity
is fair game for the panel. No politics involved, no going over old and
barren ground.
The project was brought about through the efforts of Jesse Dobson of
Project Inform, who died of AIDS- related disease in September 1993 — just
as evidence of the think tank's productivity was first being seen.
(Source: JAMA, 1993;270: 2527-2531.)
BOLSTERING IMMUNITY WITH CYTOKINES:
One promising area of immune system research is the use of the soluble
natural agents called cytokines. These are part of the "nonspecific" arm of
the immune system, perhaps not as exciting at first glance as the specific
immune functions such as T-cell activity. Still, the cytokines are vital to
immune function, and they may be useful as therapy. One of them, interferon
gamma, is already used in treating some liver disorders, though not widely.
Now the attention is on an interleukin or "IL" — called IL-12, an unknown
factor until recent times. IL-12 has been produced synthetically for
experiments, including those of Dr. Gene Shearer and colleagues for the
National Cancer Institute.
Dr. Shearer reports that in the test tube, IL-12 shows very definite
promise. He's found that the cytokine provokes a strong immune response
called an "HLA Type 1" reaction. If human trials live up to hopes, this
response might be able to stave off — even reverse — the damage HIV causes
to the inmune system.
Dr. Shearer says he found IL-12 could raise T-helper cell levels and
numbers of killer cells, meanwhile causing release of other interleukins and
interferons. (Sources: CDC National AIDS Clearinghouse throughout; NY
Times; Wall St. Journal.)
CD26: THE MORNING AFTER ...
After much publicity over the discovery of a "CD26 co- receptor" said to be
HIV's gateway into previously uninfected T-helper cells, some scientific
detail is now becoming available. Sources up to and including England's
LANCET have published data to give meaning to the earlier, very sketchy
4
reports.
Also there are now second thoughts being voiced, with a few sources
questioning what they see as flaws in a French team's research leading to the
discovery. The media are being faulted as well, with complaints they reacted
too quickly and strongly.
What we've learned is that the CD26 co- factor, also called depeptidyl IV
or "DPP-IV" is said to act at such areas as HIV's V3 loop, cleaving genetic
sequences to enable HIV to enter a cell after attachment. At least one
source believes that CD26 also sends what are called "transduction signals"
through the cell as part of the process.
The French scientists are defending their original work. Unless a cell had
CD26 present, they insist, the odds of transfection were only 3.3 percent of
what they'd have been otherwise.
(Sources: Lancet, 1993:343; 49- and others.)
ANTIOXIDANTS: Not So Fast, Slick ...
There's increasing interest in the use of substances termed "antioxidants"
as a means of protecting or enhancing health. Those with HIV or AIDS are
understandably eager to try any regimen that might be beneficial, but on this
topic there's a fine line between hope — and hype. Not that there's
anything wrong with the basic facts:
There is an unwanted kind of oxidation — introduction of oxygen into the
system — in which molecules called "free radicals" can appear. These are
seen as causing harm to fatty cell membranes and possibly inducing mutations
of a cancerous nature. One source finds that "oxidative damage has been
associated with arthritis and the aging process in general" (Cross CE et al,
Oxygen radicals and human disease, Ann Intern Med 1987;107: 526-545).
Part of the fascination of free radicals is that they sometimes appear to
be formed during intense immune system activity. This is typical of a
heightened white blood cell response to opportunistic AIDS diseases. And
there's reason to believe the body's devices for coping with oxidative
"stress" are impacted by AIDS.
Antioxidants' mechanism of action is such that, by being readily oxidized
themselves, they serve to absorb free radicals — until exhausted. They then
must be replaced. Fortunately, natural agents high in beta carotene, zinc,
copper, and the common Vitamins C and E are very good antioxidants. Anybody
whose nutritive habits are well planned is already being treated for
oxidative stress!
For this simple reason, it can be seen that much of the discussion of
antioxidants overworks the issue, even to the point where credibility is
strained. Unfortunately, there are certain rewards to be had by promoting
scientific facts above their true importance.
The danger is that people might be tempted to take excessive amounts of
nutritive supplements, after hearing the good news about them, but even
vitamins can be somewhat toxic at high intake levels. And experimental or
exotic antioxidants are not recommended.
Oxidation is a very real phenomenon, and it does cause unfavorable physical
changes. Still, the need for mitigating it artificially hasn't been
established, and no antioxidant has curative effects against disease.
c
The Friends Projects
proudly announce
the Release of
M
E
D
I
C
A Text Database of HIV Related Topics
for IBM-PC and Compatible Computers
MEDIC is a mini-encyclopedia of subjects related to HIV and AIDS, on a single
computer diskette. It is being distributed to those who are HIV-infected,
educators, the media, advocates, and nonprofit AIDS service organizations as
FREEWARE.
That’s not a misprint. We want this database, result of several hundred
person— hours of research, to be available to anyone who needs it. MEDIC is
our donation to the war against AIDS. It has
* Over 2,200 entries, total length 600,000 characters
* A complete medical glossary
* Essays on the major HIV-linked diseases
* A section devoted to experimental drugs
* Notes on conventional therapies
* An emphasis on scientific method and philosophy
* Legal, financial, and other HIV lifestyle data
» Resource lists and other features
It’s our hope that YOU will benefit from MEDIC’S distribution. If you don’t
have a computer yourself, please mention the database to your local AIDS
service organization — they might want a copy, Electronic bulletin board
services are encouraged to offer MEDIC as a download item, It may be given
away freely in its original form.
MEDIC is available as a download from HNS HIVNet, (800) 788-4118, and other
BBS systems. Or, you can request a copy directly from us. Just send a self
addressed diskette mailer and a new diskette (5.25" ONLY please) along with
52c postage to our mailing address.
MEDIC will be updated and revised as often as needed. User suggestions are
very welcome, as are contributions of material. Please send all requests and
feedback to ... MEDIC c/o FRIENDS PROJECTS, PO Box 635, Chowchilla CA 93610.
6
MEDICAL PUBLICATIONS OF INTEREST
Here’s a list of magazines or newsletters available to the
person with HIV or
others who need HIV- related information, Many or most of them present medical
information. We want you to know:
There are, to generalize,
layers of available medical information. The
highest of these <are
— ’^d^cal Journals,
i.e., Journal of the American Medical
Association
or JAMA;
Medicine
W€ftern Journal of Medicine; New England Journal of
etc.
„ n.
. .
etc" Information from these sources, though it won’t include
^erapieE’ 1S
and it’s as current as goi fTct- chSi^
before publication jnll allow.
If one takes time, anted with arcS
dictionary or our MEDIC database, one may find items of great relevance in
these Journals. Available at libraries and sometimes via other expedients.
,nany
°n Ule "lay press-"
newspaper or magazine you
n™hi~y
is a bad bet. Even the reputable ones have
problen. because final oversight is done by
by somebody with journalistic
not
medical training, and authority
j to hack somebody with journalistic
away at what the reporter wrote.
Tabloids are vorse than useless,
---- , of
—" course.
The publications listed here csr_.ct
cannot Lbe universally endorsed.
are in the
"third layer," which means that wheni they’re good they are They
brilliant, but
they’re not medical journals. No hard feelings,
£ , that’s just the way it is. Some
of them may feel pressured to be on r""'
the "leading edge" of medicine. and risk
reaching that edge and falling off. (We understand, Our Medical Consultant
has
rapped our knuckles a few times. OUCH!)
17 THRaj3i THE GRAPEVINE, c*
<^°_^-PLAL 6721 Romaine st-» L°s Angeles CA
90038. Ability to pay. r
*'
Published
by Stephen
\ Korsia, an ’’experimental treatment
specialist," provides information on latest
conjectural medicine and offering
the excitement of that, researched deeply. Pub. variable.
BULLETIN OF EXPERIMENTAL TREATMENTS FOR AIDS San Francisco AIDS Found*
n.,
BETA subscription dep’t., PO Box 426182, fSan Francisco CA 94142.
to pay for PWAs, $90 for organizations, free for S.F. res. $45 or ability
Current AIDS
research covered, thematic format. Pub. quarterly.
AIDS TREATMENT NEWS, John S. James,
P"' 411256,
"
---PO Box
San Francisco CA 94141.
$100/ year or $60/ 6 months, write for sliding scale
---- info,
--- - Covers current drug
trials. Interviews, very active. 12-93 needs support to keep publishing.
2
issues/ mo.
POSITIVELY AWARE, Test Positively Aware Network Inc, 1340 W. I 1
7_
Park Box
259, Chicago IL 60613. Although one -source
—-*is advising people Irving
that
-- this
-- is a
ccmnunity- oriented monthly, the issues
we
’
v~
— t_’ve seen are universal in relevance
and it’s a quarterly, as of our 6-92 file issue. Thematic, often aimed
"bright
and basic" for the newly- diagnosed person
HIV. write or call (312) 472--- with
--- ..p,'.
6397 for subscription info.
THE POSITIVE WSMAN, PO Box 34372, 1Washington
’ 1
DC 20043. r'
”‘ or sliding
Hj’
$75
scale
for PWAs. Presents a mix of conventional and other therapy
information, plus
reader input, social issues, etc., from a voman’s perspective and
for an
7
audience that’s rostly female. Pub. at 2- month intervals.
TREATMENT ISSUES, c/o Gay Men’s Health Crisis/ Medical Information, 129 W.
20th St., 2nd Fl., New York NY 10011. $30 for individuals, $50 org’ns., PWAs
write and make offer. A good general publication including medical trial news,
other advances, and educational features. Issued 10 times/ yr.
WORLD, c/o Rebecca Denison, PO Box 11535, Oakland CA 94611. Sliding scale.
inquire. Written for the female "audience," covers therapies and research, also
addresses political and social issues. Monthly.
CRITICAL PATH AIDS PROJECT, c/o Klyoshi Kuromiya, 2062 Lombard St.,
Philadelphia PA 19146. Free to PWAs, $50 others. Along with specific medical
news, social concerns are addressed, some excerpts of interest from other
publications. Monthly.
BODY POSITIVE, 51-B Philbeach Gardens, London, SW5 9EB, Great Britain.
Inquire for subscription info. Part of the appeal here is that news is found
here that won’t necessarily be available in U.S. publications. Monthly.
BODY POSITIVE, 2095 Broadway, Ste. 306, New York NY 10023. According to an
item in "Positively Aware," this is a "monthly newsletter for HIV- positive
people, available in Spanish on limited basis.
Voluntary contributions
accepted." Is pretty obviously not same as other "B.P."
NOTES FRCM THE UNDERGROUND, PWA Health Group of NYC buyers’ club, 150 W. 26th
St., Ste. 201, New York NY 10001. $75 institutions, $35 otherwise, sliding
scale for PWAs. As you’d expect, focus here is on alternative therapies and one
step further into "underground" treatments. Pub. at 2- month intervals.
PI PERSPECTIVE c/o Project Inform, 1965 Market St., Ste. 220, San Francisco
CA 94103. Sliding scale, inquire. Some info of social in^jort along with highlyccmprehensive articles about (mostly) alternative therapies. Very energetic.
Twice yearly, "briefing papers" available at various other times.
TREATMENT AND DATA DIGEST, c/o ACT-UP/ New York, 135 W. 29th St., New York NY
10001. $40. Political/ activism items acconpanied by clinical trials and other
medical developments. Said to be one of the most aggressive in obtaining "fast
breaking" developments. Hopefully, this arm of ACT- UP is in a more stable
condition than others seem to be. Twice monthly.
STEP PERSPECTIVE, Seattle Treatment Education Proj., 127 Broadway East, Ste.
200, Seattle WA 98102. Ability to pay.
A mixture of conventional and
alternative treatment news, plus general articles for PWA audience. Has earned
some good reviews. Three times per year.
MEDIC ALERT, c/o NAPWA, 1413 ”K" St. N.W., Washington DC 20005. Free.
Combines conventional treatment news and some very solid general articles with
other, rather speculative items. Co-sponsored by T2 Medical, Inc. Pub. at 2nonth intervals.
Introducing
... George, White Eagle
... Co-Founder, the FRIENDS Projects.
PUNCH c South Bend Tribune □ Friday. December 3. 1993 cC7
PUNCI
AIDS teaches him about love
By JOSEPH PITS
As Gladish says: “Its about
growth, it’s about learning, it's
SOUTH BEND — George Glad
about how people learn to love
ish looks a reporter straight in the
Here are two ways to
each other, it’s about how people
eyes and says, in all honesty, “The
help yourself and others
(with HIV or AIDS) lock them
best thing I have ever had happen
cope with the uncertain
selves in their homes and don't
in my life is being HIV positive.”
ties of AIDS:
come out. And it's about howr peo
He's serious.
ple have risen above that and how
■
The
seminar
“
Hope
&
“I have more love in my life
life has changed.
Healing
”
on
Saturday
is
than I’ve ever had,” explains the
“It is not political or scientific
open to any HIV or AIDS
former psychotherapist from San
or medical. It’s spiritual, but it's
victim,
their
family
or
Francisco.
not religious.”
friends or caregivers or
J.
It s the lessons he’s learned
He is also moderator for “Liv
anyone interested in fight
about love and compassion that
ing With HIV,” an international
ing
the
disease.
It
opens
are making it an enriching ex
conference line that is available
with registration from 8:45
perience.
through computer bulletin boards.
to 9:30 a.m. and ends at
“I wish I could have learned
It reaches out to people every
5:30 p.m. Lunch is
these lessons another way, but I
where from South Africa to
couldn’t” he says.
provided. It will be held at
Russia.
Gladish will teach many of
First United Methodist
He continues to fund the news
those lessons during a seminar
Church, 333 N. Main St.,
letter through donations and the
Saturday called “Hope & Heal
South Bend. The $10
George Gladish
$740-a-month welfare checks he
ing.” It is designed to help HIV
seminar fee is waived for
Psychotherapist
receives, after he pays for his liv
and AIDS victims, their family
HIV and AIDS victims and
ing expenses.
and friends and caregivers cope
their families. The work
of government agencies. But it
He works and lives in a garage
with the disease. The workshop is
shops are mostly ex
awoke
in
him
a
new
’
sense
of
that
he rents out of a friend s
sponsored by Family & Children
ercises that help partici
empathy for others.
home. A space heater helps take
Senices.
pants work through the
“I don’t step over a homeless out the damp chills. He goes up
. Gladish started to learn about
concerns and emotions
person anymore,” he says. “I stairs into the home whenever he
AIDS when he was diagnosed as
related to the disease. It
don’t treat them as a nonentity.” needs to use the bathroom or
HIX' positive in 1990. He was
is sponsored by Family &
Meanw’hile. his immune system kitchen.
working as a psychotherapist in
Children Services in South
began to weaken. He'd developed
“And I'm the happiest I've been
Philadelphia. He remembers
Bend.
what’s known as AIDS-related in my life,” he saj’s.
hearing the news. He figured he
■ George Gladish’s news
fatigue.
When he runs out of funds or
would live only a short while and
letter “Exploring New
Soon he began to drive his com resources, it seems there's always
that no one would ever love or
Frontiers” can be ordered
passion into a newsletter he a loving hand to help. One day. he
touch him again.
by calling or writing 1831
created, “Exploring New Fron didn’t have enough to pay for
“When I walked out of the
47th Ave., San Francisco,
tiers: A Chronicle for People With stamps. By coincidence, the head
doctor's office, I was in a bubble.
Calif. 94122; (415) 759HIV Concerns.” At the Names of a national nonprofit AIDS
... I felt out of body.”
6607.
Project, he was sifting through a agency’ was driving past Gladish,
For three days, he remained in
thousand or more postcards folks who was walking on the sidewalk.
that “bubble,” reading and re
searching whatever he could on
had sent in to urge President The man backed up his van, mo
the virus. But he didn’t know how tionwide to provide counseling for Bush to increase funding to fight tioned Gladish over and hurriedly
to feet So, he decided to move to large corporations, received 60 re AIDS. There was personal saga handed him a S100 bill.
a region he always enjoyed, to a jection let ers.
after personal saga about people
“This happens constantly.’city where he knew he could work
For the j rst time in his life, he who watched loved ones die from Gladish says.
out the meaning of his infection: began to collect welfare checks AIDS.
“I've learned to receive unconSan Francisco.
and food stamps.
And the monthly newsletter ditional love.” he says, recalling
There he volunteered his time
“That was an eye-opening ex was bom. From meager begin how he has alwaj’s enjoyed show
to the Names Project, which is re perience, as a productive member nings, and through word-of- ering others with love. “That's
sponsible for a giant quilt that of society,” he says. “Our society mouth. it’s circulation has growm one of the most difficult things.
travels the country and illustrates has a tendency to look down on to about 9.000 nationwide.
... But by me receiving their love,
the personal impact of AIDS.
people on welfare.”
It is simply a compilation of in essence. I'm allowing them to
He also looked for a job. But
He began to feel like a number stories about coping with AIDS have those same feelings 1 was
even Gladish, who had flown na- flipping through the bureaucracy written by everyday people.
haiing.”
Tnbune Staff Writer
CONNECTIONS
10
Comments University of California behavioral epidemiologist Ron Stall, "You
can't do a large campaign, get an unprecedented decline in risky behaviors,
declare victory, then leave the field."
Does a rejection of values associated with "family" and heterosexuality
form part of the gay experience? Where monogamy is part of a sanctioned
marriage in the eyes of young gay people whose relationships won't be even
accepted by outsiders, does monogamy then seem to be an unnatural act? It
can't be argued that to be gay is often to rove from one bedmate to another,
and no other behavior spreads HIV faster.
And the problem must be understood if it is to be solved. The quick fix
has failed. There is dark talk about what is termed "behavior modification"
in some quarters, but its originators don’t seem to understand the world of
the homosexual, especially of the young and promiscuous, who clearly do not
feel they should be deprived of their comforts and pleasures.
A U.S. Public Health Service official, Rayford Kytle, has thoughts to
offer. These boil down to a plea for understanding and tolerance for young
people growing up — and remaining — gay. A loving and supportive
environment would take the heat off, says Kytle, and the newly- relaxed
climate would allow for positive change including decreased hazardous
behavior.
A negative environment, this source says, only creates confusion and fear
in the mind of a young person coming to terms with his or her sexuality. The
other side of the coin is that those given acceptance can develop a normal
and healthy sense of self esteem. And where this is the case, young people
have a positive iixiuceroent to lead healthy lives, not self- destructive ones.
Meanwhile, racial factors are equally pressing. "Getting tough on crime"
in our ghetto areas has apparently made drug use and sale even more alluring,
HIV more prevalent. Our obvious failure here doesn't call for surrender, but
for rethinking of strategies, with help from the social sciences.
These matters have come before us unexpectedly and loudly in the age of
AIDS, and they won’t go away. Our old beliefs about the psyche begin to seem
unsteady, unreliable. Only one certainty is left to us: We can adapt,
learn, and work together to find the answers, and we will.
ON THE HEXT PA® ...
Thanks to Ken Riley for sitting in for us awhile and doing Member Advocacy,
probing into the policies of the Social Security Administration on disability
benefits for PWA's. We reprinted our letter to an SSA spokesman in Issue 23,
and are pleased to say we've received a response accompanied by reference
material on the topic.
An analysis of the material is in the works for a forthcoming issue of the
SURVIVOR. In the meantime, we underline one point made in the following:
When speaking with those who take an SSDI/ SSI application, ask for names.
This is a reasonable request, and you need to know who your local SSA
"contacts" will be. We’ll have more tips on clearing the hurdles soon.
DEPARTMENT OF HEALTH & HUMAN SERVICES
Social Security Administration
Refer to:
Baltimore MD 21 235
11
December 8, 1993
Mr. Ken Riley,
Administrator
The Friends Projects
PO Box 635
Chowchilla, CA 93610
Dear Mr. Riley:
I apologize for the delay in responding to your letter of
November 1st. Enclosed are some <additional
''J
1 Social Security
public information materials that you should find helpful as you
prepare the article for your newsletter.
All claims for benefits based on an allegation of HIV
disease that Social Security receives are processed on a priority
basis
basis..
Both Social Security district offices and all state
Disability Determination Services (the offices that make the
medical determination of disability)
,) are aware of the internal,
administrative procedures for expediting decisions on these kinds
of claims.
The matter of "presumptive disability" is a part of the
Social Security Act that applies only to SSI (not SSDI) claims.
People who are not working, who meet the nonmedical SSI
requirements regarding limited income and resources, and whose
medical source confirms the presence of HIV infection severe
enough to meet our criteria, are presumed to be disabled pending
a formal decision on their claim. This is not to say that claims
for SSDI benefits are not also expedited—only that this
particular provision of the law only applies to SSI benefits.
All SSI claims based on an allegation of HIV/AIDS are
automatically considered for possible payment under this
•’nrpciiTnnt
’i
H
i cahi 1 i
presumptive
disability"
procedure.
Claimants who want the status of their pending claim should
call SSA's toll-free number, 1-800-772-1213. They may also
contact directly the Social Security district office that took
their claim. The Social Security claims representative who takes
the application is able to monitor the progress of the claim and
find out the status of the medical decision from the Disability
Determination Service. The claimant, or any person the claimant
has authorized in writing to represent him or her, can contact
Social Security for information on the claim.
Due to a dramatic increase in the numbers of new disability
claims that have been filed over the past several years, there
have been some delays in making decisions on appealed disability
claims. Some regions of the country have been affected more by
this than others. The Social Security Administration is, as I
write this, looking at several ways of addressing this problem
and expediting decisions on these claims. However, if a claimant
believes there has been an undue delay in having his or her case
heard at the hearing or appeals council levels, the claimant or
his or her authorized representative should contact the Social
Security claims representative who originally took the claim, or
the actual hearing office that scheduled the hearing, to see if
an earlier appointment can be scheduled.
I hope the materials I've enclosed answer any further
questions you may have. If you'd like we may be able to arrange
some sort of training through our regional office for your staff
and clients covering Social Security benefit programs, the
application aprocess, the appeals process, etc.
Please give me
a call if you have any other concerns or questions.
Si
rely
Rroert G. Goldstraw
Social Insurance Specialist
(AIDS Outreach)
* THE SURVIVOR is published by the FRIENDS Projects, a nonprofit AIDS service
organization. Newsletter distributed free to members of PEN PAL, a nation
wide correspondence club for people with AIDS. We ask that you PLAGIARIZE
this newsletter joyously and with our blessing. Send photocopies to friends,
ask PWA centers to let you post it on their bulletin boards, mail it to
Members of Congress, send it to other newsletters or the Features Editor of
your local paper. Circle items of interest in RED INK before forwarding or
posting. For info on joining PEN PAL (basic dues $3/6 mos.) send SASE only
to address on masthead. If you don't want to join, send a #10 SASE and 50c
and we'll mail you the next issue of SURVIVOR. Better yet, CONTRIBUTE
written material for us to publish.
THE HOPEFUL WILL BE COURAGEOUS
THE COURAGEOUS WILL PREVAIL!
13
FRIENDS
PROJECT
NEWS
They are able because they think they are able.
— Vergil
Vhile assembling this issue of the SURVIVOR, we received word that we have
lost Jeffrey, Box 223, of Ohio.
~
• He was 30 years of age. He will remember
him
charm,
believe —
he -------woulduswant
. .. for
. . his quiet
------ - and
— we--------------to renew our
dedication to the fight against HIV and AIDS as a mark of our respect for his
own courage and willingness to reach out.
OUR RESOLVE ALREADY STRENGTHENED . . .
... by many generous offers of help and support, gifts making it possible
for us to press on. The richest of these is in the hearts of those who come
forward to join us on the journey. We understand you're with us as a vote of
confidence — thank you for that.
We introduce CHRIS, Box 418 of DC, who has sponsored a full membership for
someone who can't afford dues but needs our services. JOHN, Box 420 of AZ,
has made it possible for us to make those services known to people who
haven't yet heard of us. His generosity is matched by CHARLIE, Box 420 of NJ
— underwriter of printing costs for this issue of the SURVIVOR.
Once again, we feature a cover drawing by DONNA (251, MA), whose patient
hand and witty perspective have given you something to look forward to each
time we published. This pen- and- ink is called "Porch." By the way, which
one of you parked your Schwinn there? Just wondering, no big deal.
BUT HOLD ON! There's More ...
The list of miracles is not done. We've just received word that we're to
be given electronic access to the NATIONAL LIBRARY OF MEDICINE. This is a
great privilege for us, tut its real value is in the access to fully reliable
medical information our members and readers will receive.
We've always promised you NO BUNK in medical research, and with NLM , CDC,
NAPWA, HNS HIVNET, and DR. "X" as sources we'll be able to offer better
\
service than ever before.
CONSIDERATIONS 1 — A Second Anniversary Noted:
On February 7, 1992 a young man by the name of David Richardson contacted
us, sending from nearby Fresno a letter proving the contention that good
correspondence is an art form. We signed him up as a member in a hurry. A
short time later, David came to work here as an all- around assistant.
That arrangement only lasted until we realizec hat we needed this fellow,
with his innate sensitivity and understandir.
f people, for a higher
purpose. Promoted to Membership Manager, David
_d into the work as if the
job had been created for him in the first place.
Now more than ever, we rely on you, David. We're fortunate to have your
donated services and promise not to take them for granted!
CONSIDERATIONS 2 ... Northern Lights:
we’ve just received a packet of information from Bill, Box 245, now located
in Minneapolis, MN. Since joining us in April '92 then relocating. Bill has
become a highly visible advocate for those whose history of drug use targets
14
them for HIV. In the material before us. Bill is asking pointed questions of
the^lV—SaPdouble(^irdinatOr 011:151:1116
at
same time educating
Among the issues touched on in various news items: Viability of clean
needle exchange programs (now proven), and of treatment methods that can
restore drug users to productive life more cheaply than the cost of merely
jailing them.
1
We feel a sense of pride that one of "our own" has taken on these major
issues, knowing that it takes guts and love for the human race to stand up
and make a positive difference. Well done. Bill.
CONSIDERATIONS 3 ... The Best Part:
What's best of all is that David and Bill are not isolated examples.
Others among us are helping to fashion a better tomorrow with activism or
volunteerism. You know who you are, Mae, Steve, Lisa ... Michael, Bob
Arthur — all the others, applause and roses.
THE POSTAL ACTIVITY INDEX:
The Pen Pal Division has been moving along fitfully the last 45 days or so
mostly due to the awful winter weather over on the East Side, along with some
understandable nervousness up and down the California coast and other
distractions. So here's a gentle reminder — nothing written, nothing
gained
Get out the ballpoint, dust off the Smith- Corona, the world of
ideas and friendship is waiting for you ...
NEWS CREDITS:
"Psychosocial Aspects of AIDS" is a staff article, hereby released into the
public domain. Thanks to CDC National AIDS Clearinghouse, our mainstay for
plentiful, accurate information now as always. Also Los Angeles Times
Focus, Baltimore Sun, Science News, Dr. "X," Washington Post, Washington
Blade courtesy Chuck 273, and others.
SO WHAT'S THIS ABOUT A NEW FORMAT? GIVE.
Oh, that? Well, it wouldn’t be right to blab too much and spoil what's
going to be a pleasant surprise if it works out well. On the other hand, it
has to be conceded that some of the details are not yet firm in our minds
No, no, it's okay, not to worry.
Here's what we can tell you. The change ought to bring better "production
values, not something less than the standard SURVIVOR way of doing things.
It's painfully clear that cutbacks and downsizing have become permanent parts
of the American way of life, but we don't care for any of either, thanks. If
we do it at all, we'll do it adequately.
We will have a period of adjustment to get through, during which the number
of gross words- per- issue may drop — that's probably okay’
What's
important is what YOU want from the SURVIVOR.
Speaking of which, we're not planning to change that name, It's served us
well, and everybody's used to it now. 7
’
’’ __2 will stay intact in
The
masthead
general design. Though we'd like to start presenting splashy graphics", that
doesn't seem to be in the cards, sorry!
One last hint: The overall effect of the change is (supposedly) to make
15
assembly easier for the Staff. If this dream doesn't come true to some
degree, we'll have to shift gears again. Still, we're going to give the
SURVIVOR, and you, every effort.
AN OPEN LETTER FROM JAY:
Dear Brothers and Sisters, I try not to do this often, knowing that these
personal messages seem gratuitous, to put it politely. But I need to have a
little heart to heart talk with you, it’s full disclosure time again
' ’“t want you to be concerned about
/ that. I’m not
My health is failing. IT don
ready to chuck it yet and won't. I do
’ ’have to explain
. lil.. that
1.1: something has
gone wrong, and my very. capable
doctor can't
it. I'm down
.
— - do
— anything
—----- about
-----—
fto
* 123 --------’ pounds,
and' from
here on out, there's reason to believe I’ll go on
metabolizing a few ounces of healthy tissue each month.
This began happening around October of last year, and it’s making it almost
impossible for me to work. T*
' ' be
’ easiest for ..„
It would
me to just allow myself
to become bedridden, stay where I’m fairly
comfortable.
’
—~-------------- I propose to go on
working anyway.
I saw this coming. Now you know why I was yelling for someone to take over
for me, or any other offer of volunteered time and help. (It happens that
we’ve got one offer, but from somebody awfully far from here, so we're just
in the discussion stage with that prospect.)
Well, I've considered the alternatives. Drop
. FRIENDS? Dump the
newsletter? Close down all but Pen Pal and a quarterly newsletter?
I 'm not gonna dump FRIENDS, or any part of it. If nobody can take over for
me. I'll stay right here. The good that this entity can do is ahrost without
limit, whether I have limits or not. I am saying, "It's bigger than I am."
And that can't be argued, and now my mind is at ease, no further problem with
priorities.
We're going to economize on effort in every non- critical area. For one
thing, after quickly redoing the existing forms and fact sheets, these items
will take the place of letter writing. I'm no longer physically able to
handle this, so out it goes, though the personal touch is nice. Speaking of
which, though, my personal letter and note writing is going to slow to a
trickle, then evaporate. My beloved friends will surely understand, they got
the best of that while I could give of myself in that way.
We'll suspend leaflet publication, and look for somebody with a computer
and modem to operate the Friends "BBS" on his or her premises part time.
Advocacy, referrals and medical research will stay; the SURVIVOR will
survive, and Pen Pal's mail will go on its appointed rounds.
Now that you know the score, I'd be glad if you wanted to help plan a
future for our projects. And this is my point in telling you about my
personal health and welfare — I want some signals from you as to how to ease
FRIENDS into other hands over the months to come. I've never been more
serious in ray life, and the idea is worth the thought and hassle.
I want to pay tribute to the spirit, and the love, of my partner Kevin. I
sometimes think he is keeping me going by sheer will power and sweetness.
Whatever his approach is, it works. Thank you, Angel.
And thanks again to you, for letting me bend your ear. ZI hope to hear your
thoughts soon, while I'm still able to acknowledge and discuss them, As
always, I believe together we can acconplish anything!
■p
if -
CRITICAL PATH AIDS PROJECT
SPRING 1994
NO 28
WEST COAST UPDATE
OXIDATIVE STRESS
—based on Grahame Perry notes
by George Carter, Craig Sterrit,
Howard Greenspan et al
i
Project Inform holds monthly
Town Meetings in San Francisco.
This report features excerpts from
recent presentations by Brenda Lein
and Martin Delaney giving treatment
updates as well as opinion on public
policy that affects HIV research.
Project Inform operates a
nationwide treatment hotline: (800)
822-7422, 10 AM-4 PM PST, Mon
Sat. New callers can receive the
Treatment Information Packet, as
well as other fact sheets and recent
bulletins. The October meeting was dedicated to Jesse Dob
son, founder and coordinator of Project Inform's Project Im
mune Restoration. Jesse died on September 23rd ofAIDS.
PHILADELPHIA TOWN MEETING: On Tuesday, April
12th, 7 PM-9 PM, Philadelphia FIGHT, We the People and
other organizations including Critical Path, will sponsor a
Project Inform Town Meeting with Martin Delaney, Found
ing Director of Project Inform, at Graduate Hosp. Aud.,
Lombard at 18th St. Refreshments will be provided.
TOPICS: Political Update, Antiretrovirals, Resistance
Forum, Protease Inhibitors, Non-nucleoside Analogs, CDS
Expansion, Immune-based Therapies, TNF Inhibitors,
Clarithromycin and Rifabutin, MAI, KS Progress, TAT,
DNCB, IL-2, Oral Ganciclovir, Stem Cells, HCG, etc.
I
Political Update: Martin Delaney, Founding Director of
Project Inform, fears the current wave of apathy--a lessen
ing in the level of energy because people are tired and be
cause of continuing losses suffered because of AIDS. In
At the IXth International
Conference on AIDS, serious dis
cussion of Oxidative Stress was
relegated to a satellite meeting
that convened in a stark, rather
old-fashioned medical classroom
with stiff-backed wooden pews,
located at a hospital in an area
of Berlin called Westend. Of the
15,000 attendees to this largest
AIDS meeting of the year, only
about 15 or 20 persons attended
this session and were treated to some remarkable information.
More recently, Howard Greenspan, one of the conveners of
that impromptu European meeting organized a larger confer
ence in Bethesda, the very first looking into the subject of
oxidative stress.
This article will try to bring together some of the data from
these meetings: 1) background on oxidative stress and its im
plications for HIV treatment summarizing the Conference on
Oxidative Stress in HTV/AIDS (Nov. 8-10, NIH, Bethesda,
summary courtesy of George Carter of ACT UP/NY and
Craig Sterrit (Treatment Action Group), and 2) A summary of
Dr. Howard Greenspan fs thesis as presented in Berlin.
Although oxidative stress has emerged in recent years as
a suspected critical component of the course of HIV infec
tion and disease progress, its status remains on the fringes.
More and more, researchers are acknowledging that
even in the earliest stages of HIV infection a deleterious
reductive-oxidative (redox) imbalance is evident. What
results is an increased generation of damage-causing reac
tive oxygen intermediates (ROIs), also called reactive
oxygen species (ROS) or "free radicals," coupled with a
Cqnt’d on page 37
Cant'd on page 10
AIDS INFORMATION NETWORK
KEEPING ON THE CUTTING EDGE
CRITICAL PATH PROJECT, INC
No 28
Spring 1994
Editor: Kiyoshi Kuromiya
Editorial and production contributors: ActionAIDS, AIDS Activities
Coordinating Office, David Acosta, ACT UP/NY T+D Cmte, AIDS Info
BBS, AIDS Treatment News, AmFAR, Au Courant, Rebeca Barragan,
Richard Bauer, Michael Bazinet, Bernard Bihari, MD, Being Alive,
George Carter, Martin Delaney, Earl Driscoll, Anna Forbes, Billi Gold
berg, ’Jon Greenberg, Jon Paul Hammond, Roy Hayes, Vic Hernandez,
•Bill Kieffer, Kris Lamana, Lark Lands, Brenda Lein, Gary Long,
Jonathan Lax, •Temple Minner, 'Billy Morton, NAPWALink, NY Times,
Grahame Perry, PGN, Phila. FIGHT, Phila. Inquirer, Richard Pothier,
Project Inform, ’Harry Reid, ’Dr. Charles Rinear, William Roberts,
Michael Ruggieri, Science, sci.med.aids, Treatment Action Group,
Coleman Terrell, Treatment Issues, Treatment Update, Scott Tucker, We
The People, Leonard West, Erik Young
’deceased
Published bimonthly by
CRITICAL PATH PROJECT, INC.
2062 Lombard St. Philadelphia, PA 19146
24-Hour Hotline: (215) 545-2212 FAX: 735-2762
Email Address: kiyoshi@cpp.pha.pa.us
Computer BBS: (215) 463-7160 (six 14,400 baud lines)
in association with
The AIDS Information Network
32 N. 3rd St, Phila, PA 19106
(215) 922-5120, fax 922-6762, tdd 922-7999.
Some information on AIDS and its treatment
may be difficult to understand. But don’t be
discouraged-it can all be explained in simple terms.
A big part of our work is answering your
questions—helping you understand your treatment
options. If you have questions about material pre
sented in here, we urge you to phone our hotline
(215) 545-2212. The Hotline was founded to meet an
urgent unmet need. It is the only 24-hour PWA hot
line anywhere, please use it within reasonable limits.
In the light of recent revelations that 12 years of HIV
antiviral research have yielded only marginal and transient
benefits, married to known toxicities, you may no longer
know what to expect of your doctor. Nor your doctor, you.
Rather than swallow unquestioningly the bitter pill of
marginal treatment benefits, one must-more than ever
before—study one’s options, even though they are often
couched in esoteric language, the specialists’ technical lingo.
Your doctor no longer has the iron-clad force of ab
solute science to back his entrenched antiviral regimens.
He is as likely as ever to leave treatment options to you and
may even elicit your own feelings about antivirals such as
AZT, ddl, ddC, and D4T and may not discourage you from
considering the use of complementary therapies of your
choice--you may choose to self-medicate against op
portunistic infections long before experimental drugs be
come a gold standard. (See "Standard of Care," page 13-16)
Even if your doctor is an AIDS expert with a huge HIV
practice, well-read, and nationally known figure in the clini
cal trials scene, he is unlikely to know all of the regimens
and experimental and alternative therapies that are current
ly available to you. Only a handful have looked into oxida
tive stress, for example. (See "Oxidative Stress," page 1.)
In the face of AIDS, some of our brightest and bestdisinclined to lie down and die—have become proactive
treatment activists and community experts on treatment of
HIV/AIDS. For the first time in history, the patient has as
sumed a new role vis-a-vis his or her doctor: patients
demand access to the same medical literature, medical con
ferences, and other resources as the doctor and researcher.
There have been victories along the way. For example,
the management of opportunistic infections has made sig
nificant, life-extending progress. In January, after a year of
lobbying since the PETT (Patient Education Technical
Transfer) Conference, activists have won free access to the
AIDS databases that reside at the National Library of Medi
cine (NLM). A year ago, activists told NLM Director El
liott Segal that as far as they were concerned, the tax-paying
public had already bought this information reposited in the
NLM. We should not have to pay an additional $18 an hour
to search the abstracts from AIDS Conferences-Florence,
Amsterdam, Berlin. This life-saving research and treatment
information and data should be free for both individuals
with AIDS and for their information providers.
On January 23rd, the NLM announced that its four main
databases on AIDS would now be free to all because of ac
tivist pressure and its own increased budget, and it would is
sue special phone numbers and passwords to all organiza
tions and individuals who request them. The office was
quickly overwhelmed with requests. Critical Project will
provide these searchable databases to the public on its BBS.
Information in treatment newsletters or online differs in
herently from journalism-it is technical info. It is designed
by activists to keep you on the cutting edge of treatment.
This strategy is one for realists—the practical side of hope.
2
A GUIDE TO WHAT’S INSIDE
1 WEST COAST UPDATE based on Grahame Perry notes, edited by Kiyoshi Kuromiya
A treatment update from recent Project Inform Town Meetings, featuring Brenda Lein and Martin Delaney.
1 OXIDATIVE STRESS by George Carter, Craig Sterrit, Howard Greenspan
An overview and review of the first Oxidative Stress Conference and Howard Greenspan's Berlin presentation.
2 THE CUTTING EDGE
Critical Path's activist approach (information gathering and problem-solving) to the current treatment dilemma.
4 TREATMENT AND DATA DIGEST
AZT Patent Challenged; Aztec: A sustained-release formulation of AZT; Alloimmunization as an AIDS Vac
cine; Envelope Vaccines Could Backfire; Stalking a Vaccine; The Department of Defense Vaccine Trials; Salk
Immunogen Development Rights in Arbitration; Last Gasp for the TAT Inhibitor, Mark Jacobson Advises
Against Amikacin; Nizoral-Seldane: A Dangerous Combination; Pennsylvania Special Pharmaceutical Bene
fits Program Adds Five New Drugs; Controversy Surrounds Theory of New HIV Co-Receptor; Landmark Suit
Settled Against Philadelphia Paramedics; Wasting Syndrome-Kotler Finds New Agent.
8 SPANISH LANGUAGE RESOURCE INFORMATION (IN SPANISH)
13 HIV/AIDS STANDARD OF CARE by Jonathan Lax, Kiyoshi Kuromiya, and others
Edition No. 5 ofACT UP Philadelphia's HIV Standard of Care.
17 PHILADELPHIA AREA AIDS/HIV CLINICAL TRIALS
An constantly updated listing of current local clinical trials plus access to other experimental treatments, through
Treatment INDs, Compassionate Use, Expanded Access, Buyers' Clubs with annotations.
34 CLINICAL TRIALS IN PRISON
Guidelines for clinical trials in prison environments and ourPWA Prisoner Resources Guide.
45 COMMUNITY ADVISORY BULLETIN BOARD edited by Greg Haas, Kiyoshi Kuromiya
News of interest to the community members of the clinical trials networks, designed to further communications
between the ACTG Community Constituency Group and CABs, the CPCRA community advisors, and others.
Contents: Toxicities Reported in ACTG 196/CPCRA 009; ACTG CAB Update; Spanish Language Consent
Forms; Immunology Committee; Primary Infection; MOPPS; Pharmacology Report; Women's Health Report;
ACTG 076 Concludes that AZT Reduces HIV Transmission from Mothers to Infants; CPCRA/ACTG Link;
IVIG Product Recalled Due to Hepatitis C Transmission; Community Constituency Group Members Phone
and Committee List.
52 SUPPORT GROUPS FOR THE AIDS-AFFECTED COMMUNITY
The most complete listings for the area (Pennsylvania and neighboring states).
57 DIRECTORY OF PWA RESOURCES: Philadelphia's most complete monthly resource listings.
61 CALENDAR A calendar of events of interest to persons with HIV/AIDS.
63 IMMEDIATE SEATING FREE TICKET PROGRAM: Listings for the new theatre season.
64 SUBSCRIPTION INFORMATION FOR CRITICAL PATH AIDS PROJECT
Critical Path is also available in an online edition, available on Critical Path AIDS Project BBS,
(215) 463-7160 (N-8-1 full duplex) and from other online services.
»
Critical Path AIDS Project is published with the help of grants from The AIDS Activities Coordinat
ing Office and from the Ryan White CARE Act (The Philadelphia AIDS Consortium). Also,
Atwater Kent Foundation, Bread and Roses Community Fund, The Fund for Living From All Walks
of Life, a one-time grant from Hoffrnan-LaRoche, and individual donor gifts and subscriptions.
All material is Copyright (c) 1994 Critical Path Project, Inc.
Permission granted and encouraged for non-commercial reproduction.
3
THE
TREATMENT & DATA
DIGEST
AZT Patent Challenged
AZT’s patent, currently owned by Burroughs-Wellcome,
has been challenged by Barr Laboratories and Novopharm,
who claim that researchers from the National Cancer In
stitute who developed the drug should be added to the
patent. A successful challenge would allow generic com
panies to sell AZT for less money in the US. In July, a
judge ruled that there was no basis for adding the govern
ment scientists to the patent, since they merely served as
BW’s "technicians" in testing the compound against cultured
HIV. The case has been appealed.
Aztec: A sustained-release formulation of AZT.
Aztec (AZT Efficiently Controlled) is a sustainedrelease form of AZT being developed by Verex Labs of
Colorado. The product is a sustained-release formulation
which releases AZT into the system more gradually to
achieve better intracellular levels of the active form of AZT.
Verex has received permission from the FDA to the put the
product into Phase III trials. Verex lawyers claim they will
be able to sell the product regardless of the outcome of the
current patent suit filed against Burroughs-Wellcome, the
makers of AZT.
Alloimmunization as an AIDS Vaccine
In a letter in Science (10/8/93), Gene Shearer and
Mario Clerici of the National Cancer Institute describe the
idea of a vaccine for HIV based on cellular proteins known
as human lymphocyte antigens (HLAs). This idea is based
on the speculations of Stott and colleagues, and the work of
Larry Arthur and others. An antigen is any substance or
microorganism that is recognized as foreign by the immune
system and induces a response on the part of the same sys
tem, such as production of specific antibodies.
These cellular proteins can be identified as HLA alloantigens (or "xenoantigens" in Stott’s work) when first en
tering the host during the first stages of HIV infection.
Studies indicate that protection of macaques against SIV
(the equivalent of the AIDS virus in monkeys) is correlated
with the presence of antibodies against these particular
antigens. Recognition of HLA alloantigens supports Plum
mer’s theory that prostitutes in Nairobi who seemed to be
resistant to HIV may be responding to this phenomenon of
alloantigen recognition and thereby rejecting HIV-infected
leukocytes in semen before HIV infection could occur.
Shearer and his colleagues note advantages of alloim
munization as a potential HIV vaccine.
4
According to the report, allogeneic response is the
strongest known antigen-specific immune response. It does
not require preimmunization since it is well developed at
birth. It is also responsible for foreign tissue rejection,
which could kill allogeneic leukocytes introduced by ex
posure through needle sticks. On the down side,
alloantigen-immunized people may not be good candidates
for allografts. Also, it is impossible to determine which
HLA antigens would need to be known.
Finally, immunization with foreign leukocytes comes
with the risk of infecting the individual with other viruses.
Envelope Vaccines Could Backfire
Some experimental vaccines designed to prevent and
combat the AIDS virus may, in fact, make it easier for
certain viruses to infect a person, say researchers. Vaccines
under current development focus on the outside envelope
coat of HIV. An immunized person responds to the vaccine
by producing immune system antibodies that bond to HIV
deactivating it. According to researchers at the University
of California at San Francisco, these antibodies, instead of
deactivating immunodeficiency viruses, either neutralize
them, enhance them, or have no effect whatsoever.
According to research team head Jay Levy, this can oc
cur because of the ability of HIV to undergo genetic
changes, resulting in the creation of new mutant strains,
some of which resist the body’s immune response. The
studies show that genetically different strains of HIV
respond differently to a single species of antibody, suggest
ing that it is possible for a vaccine to stimulate production
of antibodies that neutralize one strain while making it
easier for other strains to cause infection.
All news on vaccines is not bad, however. Theoretically,
the core (vs. envelope) vaccines may not be subject to the
effects of mutant strains. The Salk immunotherapeutic, for
example, is a core vaccine. (See also, "Stalking a Vaccine,"
below.)
Stalking a Vaccine
According to Washington Technology (Dec. 12, 1993),
while most potential AIDS vaccines focus on the outer "en
velope” of HIV made up of proteins and able to change a
thousand times faster than the second fastest virus, Cel-Sci
Corp, of Alexandria, Virginia, is taking an out-of-themainstream approach. The company’s vaccine HGP-30,
was the first in the world to concentrate on the core of HIV,
but is still a relative unknown. It is based on a protein in
the core of the virus that does not change throughout its
strains and is a synthetic copy of the core protein so that it
cannot cause AIDS in healthy people.
Early trials indicated that the vaccine produced killer Tcells, which destroy AIDS-infected cells before they take
over the body. Other studies observed immune responses
triggered by the vaccine. In addition, blood immunized with
the drug and placed in mice without an immune system
i
Volume 1 Number 2
January - March 1994
HIV
Educator
Focus: Substance Users
E&Ps in Area of Focus
Calendar
Educational Materials
Order Form
A Publication of the
California AIDS Clearinghouse
B
dKh thKenter
health servtces
l A CAY & LESBIAN COMMUNiT Y SERVICES CENTER
It Takes All of Us Working Together
to Stop the Spread of HIV
Notes and News: CAC
This issue of the HIV Educator
focuses on HIV/AIDS and
Substance Use. After talking with
E&Ps from this Area of Focus,
we’ve learned that many feel
posters are very successful in
outreaching this population....so,
we’ve been working together with
the National AIDS Clearinghouse to
bring you limited edition posters
targeting Substance Users, and
other populations too (see page 69).
Also included in the Educational
Materials Section of this issue are
generic "tear-outs" of "Do the
Right Thing" and "Remember: 3 X
3", both in English and Spanish!
You, as an E&P Program, can have
your copies of these materials
customized with your own logo and
local reference numbers, but we
know that many of you interface
with other community-based
organizations in your area that you
might like to share these materials
with. They can photocopy them
and stamp them with their own
information!
We are open to your Educational
Materials needs! Tell us what
you want! Let us know what
materials you are currently using:
materials that you’ve ordered
from CAC in the past; materials
that you’ve ordered from other
sources or clearinghouses; and
especially materials you’ve
developed yourselves!
We know that no one clearinghouse
can possibly supply you with all of
your educational materials needs.
So, as you peruse this issue of the
HIV Educator, please take a
moment to note information on
"other" clearinghouses. You might
like to request their catalogs.
California AIDS Clearinghouse
And
Computerized AIDS Information Network
Advisory Council Members
A Member of the Advisory Council will be calling you personally to
discuss your Educational Materials needs.
Laura Anderson
City of Berkeley
Berkeley Community Education Program
830 University Avenue
Berkeley CA 94710
510-644-6022
Michael Bujazan
Hollywood Sunset Free Clinic
Cara A Cara
3324 West Sunset Blvd.
Los Angeles CA 90026
213-644-1360
Yolanda Chavers
Tulare County Dept of Health
AIDS Program
1062 South "K" Street
Tulare CA 93274
209-685-2535
Peggy Falk
Humboldt County Health Dept.
North Coast AIDS Project
529 "I" Street
Eureka CA 95501
707-441-5632
Alan Gilmore
Fresno Health Services Agency
Fresno, CA 93775
209-445-3370
Judy Klapholz
AIDS Project Los Angeles
1313 N. Vine Street
Los Angeles CA 90028
213-962-1600
Victoria Jauregui
Riverside County Dept of Health Services
PO Box 7600
Riverside CA 92513-7600
909-358-5307
Ralph Mayo
The CORE Program
7740 1/2 Santa Monica Blvd.
West Hollywood CA 90046
213-656-8201
Gary Podschun
San Diego Youth Community Services
3255 Wing Street #108
San Diego CA 92110
619-221-8622
Juan Rodriguez
National Task Force on AIDS Prevention
631 O'Farrell Street
San Francisco CA 94109
415-749-6700
Kimberly Green
Vince Sales
Asian AIDS Project
300 4th Street #401
San Francisco CA 94107
City of Pasadena Health Dept.
415-227-0946
100 North Garfield Ave. Rm #140
Pasadena CA 91109
818-405-4391
Mariana Grogan
Santa Barbara Health Care Services
300 N San Antonio Road
Santa Barbara CA 93110
805-681-5365
Elaine Weston
Marin County Health and Human Serv.
(Marin County AIDS)
20 N San Pedro Road Suite #2002
San Rafael CA 94903
415-499-7804
iii
Notes and News: CAC
Computerized AIDS Information Network (CAIN)
Have you ever been late for a meeting with a big agenda...even 5
or 10 minutes...and discover that you do not even have a due as
to what these people are talking about? No matter how hard you
listen, you just don’t seem to be up to speed? HIV/AIDS
education is very much like a high-powered business meeting in
that the information is flying in and out, fast and furious, and if
you are not getting all of the information from the get-go, how
can you be certain you are giving out the right information?
CAIN can help you stay on top of the information.
What is CAIN?
CAIN is an inter-active on-line network of HIV/AIDS
information that you can access through your computer and
modem. CAIN offers immediate access to a wide variety of
HIV/AIDS information from virus transmission, epidemiology,
statistical data, diagnostic data and treatment, to health promotion
and prevention, psychosocial issues, and nutrition.
How can CAIN Help Me?
CAIN can provide you and your program with direct access to:
•monthly educational and medical abstracts
•up-to-date HIV/AIDS statistics and drug studies
•selected full-text journal articles and newsletters
• "popular press" articles and wire-service stories
•a monthly calendar of conferences, events, trainings, etc.
•an Electronic Mail (E-mail) service
•Forum services (Bulletin Board)
Approximate Posting Dates
Daily
UPI/Rclated News
Forum Messages
Wednesdays
Calendar Events Updated
Thursdays
FDA/Federal BBS (reviewed)
NAC BBS (reviewed)
MMWR
1st Week of the Month
G/L Info Bureau BBS (GLIB)
AIDS Educ & Prevention Journal
Veterans Affairs Newsletter
AIDS Treatment News
2nd Week of the Month
AIDS Information BBS
HIV/AIDS Info BBS
California DHS/OA Statistics
Educational Journal Abstracts
US Conference of Mayors Newsletter
iv
3rd Week of the Month
CA DHS/OA HIV Update
Directory of Services Updated
Veterans Affairs Newsletter
AIDS Treatment News
4th Week of the Month
AIDS-Current Science
Los Angeles DHS Sutistics
Educational Materials Updated
Frontiers
Edge Magazine
Lesbian News
The Advocate
Key Points
to Using CAIN
Getting HELP!!
Help menus are built into the CAIN system.
Just Search for: HELP!!
For detailed
information, choose HELP WITH CAIN from
the CAIN Main Menu.
USING the ? (Question Mark)
To help clarify your search, use a ? after your
keyword or partial keyword. This will tell
you if your keyword is viable, and help you
check your spelling. You can also use a ?
after a qualifier for a list Example: TI=? for
a list of titles.
USING Boolean Operators ”AND'7”OR”
To narrow your search, use the word AND to
combine two keywords (e.g., TREATMENT
AND DRUG.APPROVAL). To widen your
search, use the word OR (e.g., WOMEN OR
LESBIAN).
A CLEARer Search
Type CLEAR at the Prompt > to begin a new
search.
DOWNLOADING to a Disk or to Your
Printer
After you have selected which article or
articles you wish to download, at the
prompt > type the word DOWN, a space, and
the number of the article. Then turn on your
printer or prepare your software to "receive"
a file. If you have selected more than one
article, type the word DOWN and a list of
numbers separated by commas with NO
spaces (e.g., DOWN 1,15,34,112).
The Quick GoodBYE
To leave CAIN quickly, at any prompt > type
BYE and the computer will sign you off of
the system.
I
Notes and News: MARCC
A MARCC Perspective on Two Epidemics: Substance Abuse and HIV at a Glance
By Chris Sandoval, MARCC Director
i
The twin epidemics of substance use and HIV disease require the mobilization of multiple disciplines and multicultural
communities across all systems of research, health education, and health service delivery. The issues which confront us are
complicated and sometimes seem overwhelming. This guideline should be used as a way to tease out important psycho-social
variables, risk factors, and intervention strategies in building a strategic planning process or to support the creation and design of
prevention-case management tools by local communities.
Extensive research provides a baseline for understanding the psycho-social challenges which must be assessed to understand
where the client is in terms of his/her feelings, his/her mental health response to addiction and HIV disease, and to determine the
appropriate plan of prevention case management.
Risk fautors for substance abuse and HIV disease overlap enormously. The rapid assessment guideline attempts to cover the
major factors involved in predicting and diagnosing the problems and prescribing the appropriate course of multidisciplinary
response. While both lists are set side-by-side there has been no attempt to correlate the psycho-social issues and the risk
factors, although the relationship overall is obvious. The strategies outlined are an attempt to list some of the interventions that
work. There is no magic bullet in prevention education. A combination of strategies designed by professionals from multiple
disciplines seems to work best.
MARCC Substance Use-HIV Disease Rapid Assessment Guideline
Psycho-Social Assessment Issues
i
• Fear of Abandonment
• Loneliness
• Isolation
•Alienation
• Feelings of Emptiness
•Confusion
• Anger
• Shame
• Envy
• Immobility
•Obsession
• Dependency
•Compulsiveness
• Paranoia
•Loss of Boundaries
•Blaming
•Depression
•Denial
•Powerlessness
•Rebelliousness
• Aggressiveness
• Impulsiveness
• Bargaining
•Manipulative
•Multiple psycho-social issues
Risk Factors
• Poor academic performance
• Low or negative religious affiliation
•Early initiation to alcohol use
• Poor self esteem
• Pleasure seeking
• Dysfunctional family
• Drug peer group modeling
• Search for anxiety reduction
•Gender variable (males)
• Low sense of social responsibility
•Meaninglessness of life
• Escape from reality
• Poverty cycle
•Hopelessness
•Misperceptions of danger of cigarettes or nonuse of
seatbelts
•Alienation
•Media influence
•Incest
• Family battery and violence
•Personalized and institutionalized racism
•Personalized and institutionalized homophobia
•Use of diet pills, diuretics, and laxatives
•Worry diversion
•Enhancement of personal power
•Multiple risk factors
v
Notes and News: MARCC
Prevention-Education Intervention Strategies
•Promote positive values for the individual, family and community, particularly love and tolerance
•Promote self-esteem and positive affirmation
•Promote clarification of "values"
• Promote alternative choices or behaviors
• Promote peer leadership training
• Promote community involvement for families, faith communities, schools, mass media, and clients through
multidisciplinary and multicultural participation. (This includes bringing researchers, prevention-education practitioners
from the fields of mental health, drug, alcohol, public health in government, university, and community settings)
• Promote refusal skills through roleplays and realplays
•Promote social marketing of condoms, safer sex, and needle exchange in the broader context of a comprehensive
substance use and HIV community strategic plan
• Promote knowledge of substances and their adverse impact on the body, mind, and spiritual well being of communities
at risk
•Promote programs which address addiction to substances and behaviors
• Promote street outreach and peer education
• Promote 12 step programs and other treatment programs
•Promote early intervention support
•Promote psycho-social and clinical support for people with HIV and substance use risk factors
• Promote primary, secondary, and tertiary multidisciplinary, multicultural, multifocused HIV and substance use
prevention-education
•Promote access to communities of color by utilizing culturally appropriate, language appropriate, and skill and life
experience appropriate individuals in education and service delivery
•Promote a combination of research, education, and treatment strategies
Friendly Reminder
As you know MARCC is currently undertaking a statewide needs assessment in California to all State Office of
AIDS funded prevention providers and their subcontractors. We would like to encourage you to reply at your
earliest possible convenience so that we can report back the results to you. Thank you in advance for all your
support and co-operation.
MULTICULTURAL AIDS RESOURCE
CENTER OF CALIFORNIA
(MARCC)
A JOINT PROJECT OF THE CALIFORNIA STATE OFFICE OF AIDS
AND POLARIS RESEARCH AND DEVELOPMENT
CHINA BASIN, SUITE 6400, 185 BERRY STREET
SAN FRANCISCO, CALIFORNIA 94107
VOICE: (415) 777-3229 FAX: (415) 512-9625
HOTLINE: 800-871-6688
Vi
IVE
PERS
VOLUME 5, NUMBER 1
A PUBLICATION OF THE SEATTLE TREATMENT EDUCATION PROJECT
FEBRUARY 1993
The Wasting Syndrome in hiv infected Individuals
w
eightlossisacommon complaint
of individuals with Hiv infection
▼ ▼ and AIDS. The Centers for Dis
ease Control (CDC) defines wasting syn
drome as an unex]plained weight loss greater
than 10% from baseline or ideal body weight
in conjunction with constitutional symptoms lasting one month or longer1. Many
researchers are investigating the cause of
wasting syndrome in AIDS. To date there is
no single mechanism which completely explains wasting syndrome; the underlying
etiology is most likely multifactorial. This
article will review what is known about
wasting syndrome in AIDS, discuss treat
ment options, and make recommendations
based on these data3.
Wasting specifically refers to the loss of
muscle protein often termed lean body mass
(LBM). Studies have demonstrated that
there is a critical level of LBM necessary to
sustain life2,0. People with AIDS who begin
to waste unchecked have significantly
greater morbidity (incidence of illness or
symptoms) and mortality (death) as they
approach this level. Many measures exist
to determine LBM, however the majority
are often influenced by other factors such
as drug therapy, other disease states, or
adipose tissue deposition.
Total LBMcan bedetermined byanumber ofspecialized techniques that are avail
able in a research setting. These studies are
often too laborious and require special technology not readily available in the clinical
environment.
environment. It
Itisisclear
clearthat
thatfollowing
followingthe
the
patient's weight
weight regularly
regularly will
will give
give some
some
indication of overall nutritional status, however
everthis
this may
ma' not adequately reflect LBM
in
inthe
theseriously
seriouslyill
illperson
personwith AIDS experiencing significant weight loss4. SerumalSerum albuminandtricep-foldanthropometricmeasurements are two tests that are inexpen
sive, clinically available, and easy to per
form that will assist clinicians in evaluating
LBM in their patients.
Wastingcan occur because of inadequate
intake due to anorexia (poor appetite) and
fatigue resulting from disease or medica
tions. Given this scenario, a vicious cycle
can occur in the seriously debilitated per
son as malnutrition often produces these
very same symptoms. Thus the individual
becomes increasingly malnourished because he/she has no appetite to eat or limited energy to purchase and prepare food,
Inadequate financial resources for food can
further complicate this picture.
Studies have demonstrated that wasting
due to malnutrition is the most common
cause of wasting syndrome in people with
AIDS4. Therefore it is important that indi
vidualsand their health care providers pay
close attention to nutritional status, inter
vening before wasting has become clinically evident. This intervention can be as
simple as encouraging individuals to eat
more, particularly foods which have a high
caloric value and are ‘nutritionally dense.'
(I often refer to this as Jewish-mother
therapy.) Nutritionally dense foods are
those with high calories and high nutri
tional value vs. those which are high in
calories with limited nutritional value.
Peanut butter and jelly sandwiches vs. a
six-pack of cola soft drinks are an example
of this comparison.
Individuals who are more debilitated or
who find eating large or frequent meals
difficult, may benefit from dietary supple
ments. These come in many forms, ex
amples being Ensure, Sustacal, Resource,
Lipisorb, etc. However, dietary supple
ments are expensive and often not neces
sary. Consultation with askilled and expe
rienced nutritionist is invaluable in devel
oping the best dietary prescription. On
INSIDE
See l^ASTWC, page 22
Highlights
New Prophylaxis for mac
Evaluating Alternative
Therapies
page 5
hiv & Pet Ownership
Understanding your Blood
Test Results
Pregnancy & hiv
d4T as Antiviral Alternative
PAGE 3
page 8
PAGE 18
PAGE 2
PAGE 16
SEATTLE TREATMENT EDUCATION PROJECT. 127 BROADWAY E, SUITE 200. SEATTLE. WA 98 1 02 ( 206) 3 2 9-4 8 5 7
STEP Perspective
2
New Drug approved for MAC Prophylaxis
by Jeff Scboutcn, MD
Mycobacterium avium complex (MAC) is a
serious life-threatening infection in per
sons w’ith severely weakened immune sys
tems. MAC was formerly referred to as
Alycobacterium avium intracellulareiftAAl)■
The causative agent is a mycobacterium,
like tubercu 1 os is,
which
he causative
causes dis
seminated
infections.
AGENT IS A
Clinical
symptoms
MYCOBA CTERIUM,
usually in
clude fever,
weight loss
LIKE TUBERCULOSIS,
and other
nonspecific
infectious
WHICH CAUSES
symptoms.
The clinical
pattern de
DISSEMINATED
pends on
the organ
INFECTIONS,
sy s t e m s
most
in
fected, and
usually includes the gastrointestinal tract,
T
liver, andblood. Persons with CD4 counts
less than 250 mmJ are at risk, with the risk
greatly increasing when CD4 counts are
less than 50 mm°. One study followed 1020
people with AIDS or ARC for a median of 600
days with CD4 counts less than 250 mmJ
who w’ere receiving AZT found that 19%
developed MAC1, a Mycobacterium avium
can often be found in stool cultures in
asymptomatic persons, but this usually is
not an indication for therapy. Treatment
for MAC is usually based on finding the
organism in blood cultures. Cultures can
take three to six weeks for results since the
organism is very slow growing in lab cul
tures.
Treatment of MAC, once the infection is
clinically significant, is difficult. Treat
ment usually consists of multiple antibiotic
combinations, with serious side-effects.
Clarithromycin is the drug used in most
combinations. Therefore, the need is great
for effective prophylactic therapy. For
most HIV -infected people, now that there is
very effective prophylaxis for PneumocyatL)
carinu pneumonia, MAC is the most com
mon life-threatening infection.
The FDA has recently approved the use
PERSPECTIVE
Design/Layout
Steve Knipp
Editor
Printed By
Minuteman Press
Ken Swenson and Way Hamlin
Laury McKean
STEP PERSPECTIVE is published by the Seattle
Joe/ Gibson
Treatment Education Project. All rights reserved.
Robert Nielsen
Bob Stoehr
available to show efficacy against MAC.
Rifabutin use in patients with established
MAC has not been shown to be effective.
The most common side effects, which tend
to be minor, include flu-like symptoms,
gastrointestinal problems, rash, and discol
oration of the urine. The other reported
less common side effects of rifabutin in
clude, neutropenia (loweringofwhite blood
cell count), anemia, lowering of platelets,
and mild liver and kidney damage. These
side effects are usually asymptomatic and
reversible if the drug is discontinued.
Rifabutin is not 100% effective in prevent
ing MAC, but it did prevent MAC infec
tion in a significant group of those treated.
Two studies were reported at the 1992
International AIDS Conference which noted
the efficacy of rifabutin prophylaxis for
MAC. William Cameron, M.D. compared
rifabutin (300 mg a day) to placebo in 556
people with AIDS with CD4 counts less than
200 mmJ. Fifty people in the placebo group
developed MAC compared to only 24 in
the rifabutin treated group. Fred Gordin,
M.D. reported another rifabutin prophy
laxis study and observed that 15% of the
people in the placebo group developed
MAC, compared to only 9% in the rifabutin
group.
Tonisa Claridy, who spoke at the STEP
Community Forum on October 24, 1992,
emphasized the importance of tuberculosis
Assistant Editor
Copy Editors
of rifabutin for the prophylaxis of MAC.
Rifabutin (300 mg) was approved for use
for MAC prophylaxis in HIV positive pa
tients 12 years of age or older with CD4
counts of 200 mm° or below. Rifabutin is
the first drug for which controlled data is
Permission is granted for noncommercial
reproduction. It is recommended that any
reproduction of material that is past publish date of
one year be verified in our office for updated
accuracy STEP is a non-profit agency and rehes
Gary Ballou
heavily on contributions from individuals for the
Rob Crosby
printing and distribution ofthis newsletter -your
Steven Ray
contribution would be greatly appreciated.
(TB) testing in all persons who are consid
ering rifabutin for A1ACprophylaxis. This
is important since rifabutin is closely re
lated to a drug which has some efficacy
against TB, rifampin, but only when used
in combination therapy. Rifabutin therapy,
in someone with TB, could result in the
development of a drue-resistant strain of
TB. <>
SEATTLE TREATMENT EDUCATION PROJECT, 127 BROADWAY E, SUITE 200. SEATTLE, WA 98 1 02 ( 206) 3 2 9-48 5 7 +
STEP Perspect/ve
3
How to Read & Interpret your Laboratory Blood Test Results
by Joel Giboon, MS
key element to taking control
over your health is learning to
monitoryour immune system. The
bulk of immune monitoring is done through
a variety of blood tests. Learning to read
and understand your laboratory tests can
be quite frustrating. This article will pro
vide the basic information to help with this
process. Because different labs report re
sults a little differently, it may be wise to ask
your primary health care provider to help
you read your results as well.
There: are some basic rules which hold
true for nearly
i
all laboratory tests:
I. Different laboratories can get different re
sults on the same sample ofblood. Make sure you
ask your primary health care provider which lab
was used if it not noted on the report.
2. Laboratories can make mistakes. Jf your
results have changed dramatically from your
previous test, have it run again.
5. Most lab values need to be interpreted along
with other clinicaland laboratory data in order to
develop a meaningfuldiagnosis. Very seldom will
only one value give all of the answers.
I. Laboratory values differ according to age,
sex, current medications, etc. Therefore, the in
terpretation of these values needs to be done with
these other parameters in mind.
5. The ,,normaln range u the value that m
normalfor a person who does not have HIV. For
example, a low cholesterol value in an HIV infected
individual is not uncommon.
CBC — The complete BLOOD count (cbc)
is one of the most common tests ordered by
a provider. It is a routine test used to
evaluate the blood and general health.
Asymptomatic, HIV positive individuals
should have this test done twice a year.
Symptomatic individuals should have their
CBC done at least every three months.
Additionally, if you are on antivirals or
other medications you might need to have
this test done more often. A CBCmcasures
all of the following parameters: red blood
cell count (RBC). white blood cell
count(WBC), hemoglobin, hematocrit,
three red cell indices, and the white cell
differential. Platelet counts are sometimes
included in a CBC.
RBC Count — The rbc count is the
number of RBCs in a cubic millimeter of
blood, the RBCs are the cells produced in
the bone marrow that carry oxygen toyour
tissues. The normal range is 4.5-5.9 million/mm3 for men and 4.0-5.3 million/mm3
for women. A slightly decreased value is
not cause for alarm as many individuals
with HIV infection have values below the
normal range. However, a markedly de
creased value should be thoroughly inves
tigated. A person with a significantly low’
RBC count can have symptoms of fatigue,
shortness of breath, and appear pale in
color. A low RBC count can be due to
progressive Hlv ill ness or to certain medications or both. AZT, for example, can sup
press the production of RBCs in some indi
viduals. A decrease in the RBC count
usually causes a decrease in the hemoglo
bin and hematocrit values.
WBC Count — The wbc count is the
number of WBCs in a cubic millimeter of
blood. The primary function of these cells
is topreventand fight infections. There are
many difterent types of white blood cells
that play specific roles in fighting infec-
tions. These specific types of WBCs can be
measured in the white cell differential.
Normal WBC count is from 4,500 to 11,000.
The WBC count cani be decreased for a
variety of reasons: certain medications
decrease the product!ion of WBCs in the
bone marrow, minor viral infections which
you may not even be aware of, stress, and
opportunistic infections. Values markedly
decreased should be cause for concern,
since during this situation one is more sus
ceptible to other infections.
Hemoglobin — Oxygen is carried to the
tissues via HEMOGLOBIN in the RBC. A normal hemoglobin level is 14.0-18.0 g/dl for
menand 12.0-16.0 g/dl for women. Aslow',
progressive decline in hemoglobin is often
seen in people with AIDS. This is usually
due to a decline in the number of RBCs
produced in the bone marrow. Any drug
which causes a suppression of the bone
marrow, will decrease the hemoglobin level.
In most cases it's a matter of balancing the
effects of the drug with its potential side
effects. When the
side effects be
come too great,
ifferent
either the drug
must be removed
LABORATORIES
or the dose re
duced to a toler
CAN GET DIFFER
able level. Adrug
which mimicsthe
action of the hor
ENT RESULTS ON
D
mone erythropoietin
(AKA
Procrit, EPOand
other names), has
its effect on the
bone
marrow
causing the pro
duction of new
RBCs. It has pro
vided great relief
to thousands of
individuals with
HIV infection and
kidney dialysis
patients. Erythropoietin has en
abled
many
people to stay on
bone
marrow
suppressive
drugs without the
need for transfu
sions.
THE SAME
SAMPLE OF
blood. Make
SURE YOU ASK
YOUR PRIMARY
HEALTH CARE
PROVIDER WHICH
LAB WAS USED IF
IT IS NOT NOTED
ON THE REPORT.
Hematocrit — The hematocrit is the
percent of the cellular components inyour
blood to the fluid or blood plasma. This test
is one of the truest markers of anemia.
Normal values for men are 40-54% and for
women 37-47%. A decrease in hematocrit
is always seen with a decrease in the hemoglobin. These two valucsare linked to one
another.
See Lab next page
SEATTLE TREATMENT EDUCATION PROJECT, 127 BROADWAY E. SUITE 200, SEATTLE, WA 98 1 02 ( 206) 3 2 9-4 8 5 7 ♦
STEP Perspective
4
Las, from previous page
MCV —The mean cell volume or ALCV
is the most important of the RBCindices. It
is a measure of the average size of the RBC.
For those individuals taking AZT, the MCV
will always be normally elevated, i.e. greater
than 100. Vitamin B12 and Folic Acid
deficiencies also cause increases in MCV.
Normal MCV levels are 80-96.
The other 2 indices are not so important.
They are the MCH and the MCHCandare
used to help diagnose various anemias and
leukemias.
Platelets — Platelets axe cellular frag
ments which are necessary for the blood to
clot. When activated by "trauma, "platelets
migrate to the site of injury where they
become "sticky," adhering to the injured
site and subsequently used in the developingfibrin clot (scab). Normal platelet val
ues are 150,000-350,000. In some indi
viduals, Hiv infection itself causes a de
crease in the number of platelets. Other
wise, drugs can also cause low platelet
counts. Even though counts are consid
ered low below 150,000, most people can
survive without the threat of internal bleedingwith countsabove 50,000. On very rare
occasions, the number of platelets present
are adequate, but for unknown reasons
they don't function correctly. Any malady
involving ones platelets can be a potentially
serious condition.
White Cell Differential The white
CELL DIFFERENTIAL cou nts 100 white cells and
differentiates them by type. This gives a
percent of the different kinds of w’hite cells
in relation to one another. The three main
types are: polymorphonuclear cells (or
PMNs), lymphocytes, and monocytes.
PMNs are increased during bacterial in
fections while lymphocytes are decreased
with viral infections. Increased monocytes
are sometimes seen in chronic infections.
Normal percent of PMNs is 55-80%. 2533% is the normal numberoflymphocytes,
and 3-7% is normal for monocytes.
There are a wide range of blood chemis
try tests which are done on individuals
either routinely or for a specific reason.
Some of the ones pertaining to Hiv infection
Cholesterol — Cholesterol levels, as
mentioned earlier, are routinely decreased
in Hiv positive individuals. It s not under
stood why this occurs, but is thought to be
related toalteredmetabolism. Normal cho
lesterol levels are 150-250 mg/dl.
Amylase — Amylase is an enzyme that is
secreted in the mouth by the salivary glands
and also in the pancreas. It can be an early
warning sign of acute pancreatitis when
elevated, ddl can cause problems with the
pancreas in a small number of patients
taking the drug. Normal amylase levels are
25-125milliunits/ml.
CPK — CPK OR CK is an enzyme that's
found in the brain and the muscles of the
body. Strenuous exercise as well as a heart
attack can cause increases in CPK. This
makes clear the point of evaluating an ab
normal test result in the context of other
factors. Myopathy, dysfunction/distress
with the muscles, can sometimes be con
firmed with an elevated CPK. Myopathy is
usually caused by Hiv but can also be due to
AZT, especially at higher dosages. Normal
levels of this enzyme are 12-80 milliunits/
ml (30 degrees) or 55- 170 milliunits/ml (37
degrees). Values will be slightly low’er for
women.
Liver Function Tests — Liver function
TESTS include 5-6 individual tests which
ine the
status
collectively can help determine
_________
of ones liver. Elevated liver enzymes are
most often caused by certain medications.
The Hiv infected population also hasa high
prevalence of hepatitis. At least 4 different
viruses are known to cause hepatitis, all
leading to increased liver function tests.
Therefore compound factors can beat work.
If liver enzymes are only moderately el
evated, most providers will take a "wait and
see ’ attitude, monitoring them over a pe
riod of a few weeks to a few months. How
ever, if the elevation is quite high, the
underlying factor must be found. This
might very well be one of the medications
that you're currently taking. The names of
these liver function tests include SGOT,
SGPT, alkaline phosphate, total bilirubin,
and LDH.
Kidney Functions — Two tests which
measure kidney function are the BUN AND
Creatinine The usefulness of these tests in
an Hiv infected individual usually relates to
medications possibly toxic to the kidneys.
Hence kidney function is monitored in this
way. Forcarnet is an example of a drug
which can cause renal toxicity. Normal
BUN levelsare 10-20 mg/dl. Normal levels
of creatinine are 0.6-1.2 mg/dl.
Lymphocyte Subsets — The category
of LYMPHOCYTE SUBSETS includes absolute
counts and percentages of CD4 and CDS
cells as well as other parameters. Usually
the number and percent of B cells is in
cluded and the number and percent of all
lymphocytes (except those called "natural
killer" or NK cells). Lymphocytes are
broken down mainly into T and B cells. T
cells are further divided into CD4 (+) cells
and CD8(+) cells. It is well known that Hiv
infection causesaslow, progressive decline
in the number and percent of CD4 (+) cells
in most individuals. There are exceptions.
Some individuals progress in their disease
very rapidly and others don't seem to
progress much at all after more than 12 or
ISyears of infection. Normal CD4 counts
are 400-1500. The role of CDS cells is less
clearly understood. Early on in the epi
demic, high CDS cell counts caused inver
sion of the CD4:CD8 ratio and was thought
to adversely affect illness. Now’ it is gener
ally believed that elevated CDS cell counts
are advantagous in the Hiv positive indi
vidual as it's thought to indicate the body's
ability to keep Hiv somewhat constrained.
Normal CDS cell counts in an Hiv negative
individual are 275-780. How CDS cells are
beneficial is still being investigated. 0
Please refer to page 25 of
THIS NEWSLETTER FOR A COPY
of our LabTest Tracker
FORM FOR ASSISTANCE IN
RECORDING YOUR LAB TEST
RESULTS.
are mentioned below.
Seattle Treatment education project, 127 Broadway e, suite 200. Seattle, wa 98102 (206) 329-4857
W/V Treatment
information
Exchange
<
O
c
3
o
z
Inside this Issue;
©■
©
> Announcements
AZT Reduces Rate of Maternal Transmission of HIV.......................................... 2
Trends in Survival Among Persons with Hemophilia..........................................3
Product Withdrawal of Gammagard and Polygam............................................ 3
Additional Information on Product Withdrawal of Gammagard and Polygam .. 4
Immunomodulators (with glossary)....................................................................4
> Excerpts
This pubfication is intended to give
the reader an overview ofconsumerorientedAIDS treatment literature
by providing citations or the full
text of articles published in the
last quarter. In order to enhance
the timeliness of this issue, ar
ticles received during production
are listed as citations in the boxes
following each topic. Recent ma
jor events covered by the news
media also are included in the
Newswire section.
3T
Nutrition and Related Issues----------------------------------------- -------------- -— 9
First Things First...................................................................
9
Food for Healing.......... ... .... . ...........................................................
9
Nutrients Provide Armor Against Infections.................................................... 10
Developing Your Own Nutrition Strategy for HIV: Nutrient Supplementation... 11
Healthy Drinks from a Blender . ......................................................................... 13
w
os
Prophylaxis and Other Opportunistic Infection Issues —----------------- ....... 14
Multiple Prophylaxis: Issues and Controversies................................................ 14
©
•3
Antiretroviral Treatments
19
Molecular Scissors................... ......................................................................... 19
HIV Drug Resistance, Convergent Combination Therapy and the NNRTIs..... 20
Immuno therapeutics.......
21
Immune Restoration Research Finds New Energy...................... 21
Z
■M
S
re
S
©
fi
3
C.
©
©
3
Complementary Therapy ,...^..,.....^.......^........^........^......^.......,^.......^.^,.....^......24
Using Chinese Herbs and Acupuncture........................................................... 24
Acemannan........................................
26
Echinacea: My Immune Booster May be Your Downer...................................... 26
Other Treatment Issues
28
> Newswire <
> Resources
> Index.......
30
34
35
■S«
3*
(ft
Q
CD
HIV Treatment Jnfor^
The treatment of HIV disease is constantly evolving. This section ofHUE is designed
to highlight those developments and advances announced by The National Hemophu
Foundation and government agencies, such as the National Institute of Allergies and
Infectious Diseases (NIAID) and the Centers for Disease Control and Prevention
(CDC).
HIV Treatment
Information Exchange
u
SI
LU
o
Charia A. Andrews, Sc.M.
Director, CSnical Research
Eiaine Weils, MA
Director, HANDi
AZT Reduces Rate of Maternal
Transmission of HIV
NIAID News, February 21,1994
Edito.’z Kathy Crosby, MLS
’Library Services Coordinator
j
• Designer Steven Jacoby
!
Program Associate, AEPS
t
j
j
!
jj
i
;
:
HTIE is produced at least four times per
year as a SL^sCript'on pubHcatoin. To
receive subscription information, please
contact HAbfDI. cPeople- n>u<
with hemophilia
who are unable to pay the fee for any
reason may receive the puOlicatioa on a
complimentary basis.
Tne contents of this publication are copy
righted by NHF. Non-commerciai repro
duction is encouraged and should in
clude an attribution to NHF.
5
TO
"3
«■
— Please Note —
3.
O
No r^presentabon, warranty, or endorsement — expressed or implied — is made
as to tne accuracy or completeness of
this informatioa. This information is pro-:
vided as sourcematerialoniy and has not
been independently verified by HANDI or:
NHK NHFdoes not recommend particular
treatments for individuals. NHF recom
mends that you consult your physician or
local treatment center before pursuing
any course of tfeatment.
fa
TO
fi.
©
B
Mt '
Mt :
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The National Hemophilia Foundation
110 Greene Street, Suite 303
New York, NY 10012
212-431-8541
80042-HANDt
FAX: 212-431-0906
©1994
!;
Zidovudine (AZT) therapy has reduced
by two-thirds the risk of transmission of
virus from HIV-infected pregnant
women to their babies according to pre
liminary results of a trial sponsored by
the National Institute of Allergy and
Infectious Diseases (NIAID), in collabo
ration with the National Institute of
Child Health and Human Development
(NICHD) and Institut National de la
Sante et de la Recherche Medicale
(INSERM) and Agence Nationale de
Recherches sur le SIDA (ANRS) of
France. Both NIAID and NICHD are
part of the National Institutes of Health
(NIH).
An interim review of the study, AIDS
Clinical Trials Group (ACTG) Study
076, revealed a transmission rate of 8.3
percent when both mothers and their
babies received AZT, in comparison
with a transmission rate of 25.5 percent
among those receiving a placebo.
"Although this treatment did not pro
tect all the babies in the study, the news
that the risk of HIV transmission to
newborns can be significantly reduced
is very promising," says Donna Shalala,
secretary of the U.S. Department of
Health and Human Services (DHHS).
Anthony S. Fauci, M.D., NIAID direc
tor, stresses "Long-term follow up of all
of the children bom to mothers in this
study is essential to learn more about
the risks and benefits of the treatment
beyond these encouraging early re
sults."
An independent Data and Safety
Monitoring Board (DSMB) reviewed the
ACTG 076 preliminary findings. As a
result of the DSMB's review and. recom
mendations, the study investigators
have stopped enrollment of women into
ACTG 076 and are offering AZT to all
currently enrolled pregnant women
who remain in the study, as well as to
their infants for the first 6 weeks of life.
The study investigators plan to follow
the infants for a number of years be
cause the long-term consequences of
AZT therapy are unknown; in addition,
they will follow the women in the trial
for six months after delivery.
Researchers will monitor the growth
and development and look for any un
usual illnesses among the infants, ac
cording to the chairs of the ACTG 076
protocol Edward M. Connor, M.D., as
sociate professor of pediatrics at the
University of Medicine and Dentistry of
New Jersey in Newark, and Rhoda
Sperling, M.D., of the Department of
Obstetrics and Gynecology at Mount
Sinai School of Medicine.
Because long-term effects of therapy
on the infants are currently unknown,
no recommendations about treatment
to prevent transmission of HIV during
pregnancy and delivery are being
made pending development of consen
sus on the balance between known ben
efit and unknown risk. In the mean
time, more details about this study are
included in a Clinical Alert to Physi
cians and in a Summary of ACTG 076
Findings. These documents are avail
able from the AIDS Clinical Trials Infor-
rs
this publication...
I About
The HIV Treatment Information Exchange (HTIE), produced by the Hemophilia and AIDS/HIV Network for the
II
CN
C
TO
C.
Dissemination of Information (HANDI) and the Department of Clinical Research of the National Hemophilia Foundation,
is a service designed to provide the hemophilia community with news and information on advances in the treatment of HIV.
Content is drawn from a wide scope of newsletters and bulletins focused on HIV treatment. Articles are chosen that provide
the least technical discussion of HIV, related disorders, and their treatments. Those interested in more technical, medical,
or scientific material should contact HANDI to access this information.
The National Hemophilia Foundation provides the material in this publication as a source of general information. It is
not intended to substitute for the guidance provided by the private physician or hemophilia treatment center. For more
information on any of the topics included or other HIV treatment issues, readers should refer to the Resources section at the
end of this document, call HANDI, or contact their local hemophilia treatment center.
HIV Treatment Information Exchange
mation Service, 1-800-TRIALS-A. The
ACTC 076 investigators are preparing
a report of the study that will be sub
mitted for publication to a peer-re
viewed medical journal.
HIV is the fifth leading cause of death
in U.S. children younger than 15 years,
according to the National Center for
Health Statistics. As of Sept. 30,1993,
the Centers for Disease Control and
Prevention have received reports of
4,906 AIDS cases in children younger
than 13 years. Of these children, 4,328
had a mother with, or at risk of having,
HIV and 2,615 have died. Annually in
the United States, an estimated 7,000
HIV-infected women give birth to in
fants, of which approximately 25 per
cent are HIV-infected.
ACTG 076 began in April 1991, with
a target enrollment of 748 HIV-infected
women in their 14th to 34th week of
pregnancy who did not need AZT as
part of their medical care. The women
received either AZT or a placebo during
pregnancy and labor. Neither the re
searchers nor the women knew to
which treatment arm the women had
been randomly assigned. The length of
treatment ranged from one to 29 weeks,
based on the time of the womens' en
rollment.
Within 24 hours after birth and for six
weeks thereafter, infants received the
same treatment, either AZT or placebo,
as their mothers.
The women received either a placebo
or a standard adult dose of AZT during
pregnancy. During labor, the women
received a continuous intravenous dose
of the placebo or AZT. The babies sub
sequently received a syrup of the pla
cebo or of 2 mg/kg AZT four times a
day for six weeks.
As of Dec. 20,1993,477 women had
enrolled in the trial and 421 babies had
been born. The results of at least one
HIV culture test were available for 364
infants. Of these 364, 53 had HIV, of
which 13 were born to mothers receiv
ing AZT and 40 to mothers on placebo.
Investigators found that both moth
ers and infants tolerated the AZT treat
ment well, with no significant short
term side effects other than reversible
mild anemia (low red blood cell counts)
in some infants.
The women ranged in age from 15 to
43, averaging 25 years. Of the 463
women completing the trial, 50 percent
were African-Americans and 29 percent
were Hispanic. Of the 59 sites enrolling
women into the trial, NIAID supported
35 and NICHD supported 15 in the
United States; INSERM supported nine
in France.
[This NIAID release is accompanied
by an executive summary and a ques
tion and answer supplement - please
contact HANDI for copies.]
Trends in Survival Among
Persons with Hemophilia
AIDS Update:MedicaI Bulletin #190,
Chapter Advisory #194, February 7,
1994
[Editor's Note: The National Hemo
philia Foundation (NHF) recently dis
tributed an article entitled, "Changes in
Longevity and Causes of Death Among
Persons with Hemophilia A," published
in February, 1994, issue of the American
Journal of Hematology, to keep the com
munity informed of the most current
information about hemophilia and HIV
disease related to hemophilia.1
The authors of the article reviewed
death certificates to determine both the
average age at death and cause of death
in persons with hemophilia A (factor
VIII deficiency) between the years of
1968 and 1989. Unfortunately, this
study confirmed the sad facts that the
hemophilia community already knows.
• The average age at death for per
sons with hemophilia A increased
between 1968 to 1983 from less than
40 years of age to 64 years of age.
• The average age at death began to
decrease again in 1983 and by 1988
was back to 40 years of age.
• The death rate in persons with he
mophilia A increased by over 150%
from 1983 through 1989.
These statistics are associated with
HIV infection. Persons with hemo
philia A and HIV infection died at a
significantly younger age than non-infected persons. By 1988, HIV infection
had replaced heart disease and hemor
rhage as the leading causes of death for
persons with hemophilia.
The attached study offers evidence
that the hemophilia community did
make tremendous gains in the treat
ment of hemophilia between 1968 and
the early 1980s. These gains are evi-
denced by a decreasing death rate and
an increase in the average age at death.
Tragically, HIV infection has disrupted
much of the progress that was seen
with the advent of factor replacement
therapy in the 1970s.
It is important to keep one thing in
mind as you read articles about groups
of people. The conclusions of the study
are based on overall group averages.
This type of information can be useful
to know, but remember each individual
is unique. This information does not
necessarily tell you about your medical
condition, please discuss them with
your medical doctor or hemophilia
treatment team.
Obviously, these results are not what
we want to see. Even though this infor
mation might be upsetting, we think it
is important for the entire hemophilia
community to have access to all the
available information. Reading this
summary and reviewing the article
might leave you depressed or upset. If
you do feel upset, or have some specific
questions, it is important to talk to
members from your Hemophilia Treat
ment Center team or other medical spe
cialist.
Note: This article represents a dra
matic contrast to a 1985 article that was
published in the American Journal of Epi
demiology in which the authors demon
strated (Johnson, et al.) that "improved
care for hemophilia, including the use
of clotting factor concentrates, dramati
cally reduced hemophilia mortality
rates during the 1970s." The 1985 article
pointed out that between 1972 and 1982
the median age of patients reported by
hemophilia treatment centers increased
from 11.5 to 20 years. It is clear from
the article cited above that all of the life
prolonging advances that we experi
enced in the 1970s have been eliminated
in the 1980s as a result of the AIDS epi
demic in the hemophilia community.
References are provided below for the
1985 article and other articles/letters
that characterize the causes of death in
the hemophilia community. Copies
may be obtained from HANDL
REFERENCES
Aronson, DL. Cause of Death in He
mophilia A Patients in the United States
from 1968 to 1979. Amer J of Hematol
ogy 1988. 27:7-12.
Chorba, TL, et al. Changes in Longer-
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ity and Causes of Death Among Per
sons with Hemophilia. Amer J of Hematologv 1994. 45:112-121.
Eyster, ME, et al. Changing Causes of
Death in Pennsylvania's Hemophiliacs
1976 to 1991: Impact of Liver Disease
and Acquired Immunodeficiency Syn
drome. Blood 1992. 79:2494-5.
Johnson, RE, et al. Acquired Immunodeficiency Syndrome Among Patients Attending Hemophilia Treatment
Centers and Mortality Experience of
Hemophiliacs in the United States.
Amer J of Epidemiology 1985.
121(6):797-810.
Jones, PK and Ratnoff, OD. The
Changing Prognosis of Classic Hemo
philia (Factor VIII "Deficiency"). Amer
Coll of Physicians 1991 114(8)641-648.
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Smit, C. et al. Physical Condition,
Longevity, and Social Performance of
Dutch Hemophiliacs, 1972-85. Br Med J
1989. 298:235-238.
Product Withdrawal of
Gammagard and Polygam
AIDS Update: Medical Bulletin #191,
Chapter Advisory #195, February 25,
1994
We learned late yesterday that Baxter
Healthcare Corporation and the Ameri
can Red Cross have initiated a volun
tary withdrawal of their intravenous
gamma globulin products,
GAMMAGARD and POLYGAM, re
spectively. This withdrawal was begun
because there have been recently re
ported cases of hepatitis, most probably
hepatitis C, potentially associated with
these products. Additional information
on the withdrawal can be found in the
attached letters from Baxter to physi
cians and customers.
The companies have requested that
individuals, physicians, hospitals, phar
macies, homecare companies and drug
wholesalers who have these products
return them to the company that they
were purchased from; cred its/refunds
will be arranged. For information on
alternatives to either GAMMAGARD
and POLYGAM, individuals should
consult with their physician. In addi
tion, if you have received one of these
products, please contact your physician
to discuss possible exposure to hepatitis
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to share this AIDS Update with your
provider.
While intravenous gamma globulin is
not a specific treatment for hemophilia,
many individuals with hemophilia
complicated by HIV and immune (idio
pathic) thrombocytopenic purpura
(ITP) may receive regular treatment
with this type of product.
It should be noted that these gamma
globulin products have not been sub
jected to the same viral attenuation pro
cesses as the factor replacement thera
pies manufactured by Baxter and
American Red Cross. In addition, there
have not been any reported cases of
transmission of hepatitis C virus associ
ated with these factor replacement
products. We will continue to closely
monitor the possibility of transmission
of hepatitis C virus via concentrates in
collaboration with the Food and Drug
Administration (FDA) and the Centers
for Disease Control and Prevention
(CDC).
We will provide you with more infor
mation on this product withdrawal as it
becomes available to us from the
manufacturers and the FDA. In the in
terim, individuals should contact their
physician or hemophilia treatment cen
ter for further information.
(The update is accompanied by cop
ies of Baxter correspondence - please
contact HANDI for copies)
Additional Information on
Product Withdrawal of
Gammagard and Polygam
AIDS Update: Medical Bulletin #192,
Chapter Advisory #196, February 28,
1994
Last week, we sent Medical Bulletin #
191 and Chapter Advisory # 195 to in
dividuals regarding the voluntary with
drawal of GAMMAGARD and
POLYGAM. Since that time, we have
received additional information on
POLYGAM, the gamma globulin prod
uct distributed by American Red Cross
(ARC), and manufactured by Baxter
with ARC plasma. Attached are state
ments from American Red Cross and
the Food and Drug Administration
(FDA).
It should be noted that there have not
been any reported cases of possible
hepatitis C transmission potentially re
lated to POLYGAM. However, the
same manufacturing procedure is used
in the production of both POLYCAM
and GAMMAGARD.
In addition, these gamma globulin
products have not been subjected to the
viral attenuation processes used in the
manufacture of factor replacement
therapies produced by Baxter and
American Red Cross. Further, there
have not been any reported cases of
transmission of hepatitis C virus associ
ated with these factor replacement
products. We will continue to closely
monitor the possibility of transmission
of hepatitis C virus via concentrates in
collaboration with the Food and Drug
Administration and the Centers for Dis
ease Control and Prevention (CDC).
We will also provide you with more
information on this product withdrawal
as it becomes available to us from the
manufacturers and the FDA. In the in
terim, individuals should contact their
physician or hemophilia treatment cen
ter for further information. If you have
not received the previous AIDS Update
on this product withdrawal, please call
HANOI at 1-800-42- HA ND I to request
a copy.
(The Update is accompanied by Bax
ter and American Red Cross releases please contact HANDI for copies]
Immunomodulators
by Shahik Gregorian, PhD, Chair of
the AIDS Treatment Working Group
AIDS Update, Medical Bulletin #195,
Chapter Advisory #199, April 18,1994
Immunomodulators are agents that af
fect the actions of the immune system.
The future role of the
immunomodulators in medical practice
is yet to be defined. The key question is
whether these new agents will bring
remarkable progress in the treatment of
AIDS, or whether they will be of only
minor importance. Currently, there are
a number c ‘hese substances that are
being used under experimental condi
tions to evaluate their effect on the im
mune system. Some of these substances
have been shown to boost the immune
system and restore an impaired im
mune response in test tubes. Efforts are
underway to test these findings in pa
tients with HIV.
Some of the common
immunomodulators that have received
attention in the medical community
include interferons, immune globulin.
HIV Treatment Information Exchange
interleukins and beta (G)-carotene.
Whether these substances will be able
to work in AIDS patients to improve
their damaged immune systems re
mains to be seen. (Please refer to the
glossary for further clarification and
definition of some of the terminology
used in this article.]
1
Intravenous immunoglobulin (IVIG)
Intravenous immunoglobulin (IVIG)
is prepared from plasma of donors that
are not HIV infected. IVIG contains a
concentration of antibodies against a
broad variety of microbes, including
bacteria and viruses. IVIG has many
potential uses in therapy, including act
ing as an immuno-modulator in HIVinfected children. It has been shown to
reduce the occurrence of serious bacte
rial infections (meningitis, sinus infec
tions, etc.) in HIV-infected children
with CD4 cell counts greater then 200/
mm3. In another study that included 20
adults in a randomized open-label trial,
it was concluded that IVIG therapy had
no effect on the overall number of infec
tions. However, the number of deaths
in the group receiving IVIG was smaller
than that in the untreated group. The
role of IVIG in reducing the number of
deaths is not clear. In conclusion, stud
ies from a number of trials indicated the
benefit of IVIG in reducing the fre
quency of recurrent bacterial infections
among HIV-infected children.
Whereas, the evidence for such efficacy
in adults still has not been shown.
Interleukin-2 (IL-2)
IL-2 is a protein produced by the
body which stimulates the growth of Tcells. A man-made genetically engi
neered form of IL-2 has just been ap
proved by the FDA for use in treating
certain cancers. IL-2 activates and
causes multiplication of various white
blood cells, including cytotoxic T-lym
phocytes, natural killer cells. These
cells recognize, attack and destroy HIVinfected cells. IL-2 has been used in a
number of small trials in HIV positive
patients. A modified version of IL-2
(PEG-IL-2) with longer half-life in the
body is being studied in clinical trials.
Initial clinical trials with IL-2 alone
showed no clinical benefits and numer
ous general side effects (fever, rash, and
diarrhea). Subsequent clinical trials
were designed to use PEG-IL-2 (IL-2
modified to last longer in the body)
with an antiretroviral agent such as
AZT or DDL There were no significant
increases in CD4 cell counts in patients
with very low CD4 cell counts, but
there were significant increases after
therapy for patients who entered the
study with a CD4 cell count greater
than 400/mm3. Mild side effects were
observed including a local reaction at
the injection site.
Overall, these studies indicate only
transient CD4 cell count increases and
no changes in the amount of HIV in the
blood were noted.
Interferons (IFNs)
IFNs are a group of proteins that
have antiviral and immune activities.
They are produced by various cells in
fected by almost any virus. There are
three groups of IFNs: IFN-alpha (a),
IFN-beta (8), and IFN-gamma (y). Inter
ferons are produced by white blood
cells, including lymphocytes and mac
rophages (scavenger cells specializing
in destruction of harmful bacteria).
IFN-a is approved for the treatment
of AIDS-associated Kaposi's sarcoma
and extensive clinical experience has
been gained with this treatment. Initial
studies indicated that poor response to
the treatment was seen in patients with
a previous history of opportunistic in
fections who were more immune-suppressed because of advanced HIV infec
tion. A positive response to IFN has
been correlated with a healthier im
mune system.
A recent study in HIV positive pa
tients with CD4 cell counts greater than
400/mm3 showed no changes in CD4
cell counts. No patient treated with IFN
developed an AIDS-defining illness
during follow-up compared to 5 pa
tients who did develop illness in the
placebo group. Other studies have
shown that the combination of IFN-a
plus AZT is more toxic than AZT used
by itself in patients with advanced HIV
infection. Large clinical studies are un
derway to clarify whether to use IFN-<x
alone or in combination with antiviral
drugs such as AZT.
IFN-p
These group of proteins are produced
by fibroblasts (a type of cell found in
skin and other tissue) and it has similar
antiviral activity to that of IFN- in the
test tube. A clinical trial was reported
in patients with poor-prognosis
Kaposi's sarcoma with two different
dosages. The results show 50% decline
in p24 antigen but CD4 positive cells
significantly declined. There were mi
nor toxicity of erythema and ulceration
at the injection site. We will update you
on any future trials of combination
therapy with antiretroviral agents.IFN-y
These proteins are produced by Tcells, and (in vitro) studies have shown
to have antiviral activities. The general
conclusion from a number of clinical
trials indicate that the activities of IFNseen in laboratory studies do not trans
late into significant clinical activity.
Adoptive Cellular Immunotherapy
Increases in cell-mediated immune
response in HIV-infected individuals
could have beneficial effect in control
ling viral replication and slow the pro
gression of clinical disease in these pa
tients. Cytotoxic T-lymphocytes (CTL),
the immune cells that manage this type
of immune response, have the capabil
ity to kill HIV-infected cells in culture
and may also block HIV replication by
release of cytokines (chemicals pro
duced by the cells). The results of num
ber of studies indicate the importance
of HIV-specific CTL in providing pro
tection against HIV. Furthermore,
many investigators have shown that the
activity of CTL against HIV decreases
with advancing disease. Similar obser
vation was made in HIV-infected hemo
philic children.
Expansion and transfusion of CTL
from HIV-infected individuals is under
going initial clinical evaluation. This is
a process where cells are removed from
a patient and grown to large numbers
in the lab, before being transfused back
to the same patient. These clinical trials
are testing the theory that these cells
may be important in protecting indi
viduals against HIV-infection. Given
the difficulty and expense in growing
these cells outside of the body, this ap
proach is unlikely to have widespread
use in the near future. However, these
studies may provide valuable informa
tion on the role of CTL in controlling
viral replication. The Center for Special
Immunology will be performing studies
of this technique and more information
may be obtained from Susanne Loarie
(305/766-2552 ext.100).
Beta (p)-Carotene
B-Carotene, a form of carotene (a
building block of vitamin A, which oc-
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curs naturally in plants and has antioxident properties), is a non-toxic carotenoid with immunomodulating prop
erties in animals and humans.
A preliminary trial of 11 patients in
fected with HIV was performed. Each
individual received 60mg of B-carotene
daily for 4 months. Clinical and labora
tory studies were obtained at baseline
every month while on treatment, and
for two months after treatment. The
results indicate an increase in natural
killer cells and activated lymphocytes.
However, after 3 months of treatment
the effect was diminished. There were
1/ no major changes in CD4 cells. No
i clinical toxicity was observed. It was
concluded that B-carotene can modulate
certain immune markers in HIV-in
fected individuals. Further study of
this compound in HIV infection may be
warranted.
Many of the immunomodulating
therapies reviewed herein such as IVIG,
IL-2, IFN and CTL are hampered by
toxicity and technological difficulties.
The use of immunomodulators in com
bination with antiretroviral drugs looks
promising. These clinical trials promise
to yield significant new information on
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the roles of cytokines, and cell-mediJC
ated immunity in the progression of the
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immune defects seen in advanced HIV
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infection. We will keep you updated on
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any new developments in this area.
In this AIDS update, we have pro
vided
you with a mini review of certain
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immunomodulators. Further informa
tion about clinical trials on
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immunomodulators is available from
the AIDS Clinical Trial Information SerH
vice, 1-800-TRIALS-A. In addition,
more information can be provided for
you by calling the National Hemophilia
Foundation, at 1-800-42-HANDI.
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system has been affected by HIV.
ACQUIRED IMMUNE DEFICIENCY
SYNDROME (AIDS): The most severe
manifestation of infection with the hu
man immunodeficiency virus (HIV).
ACTIVE IMMUNITY: Immunity
produced by the body in response to
stimulation by a disease-causing organ
ism or other antigen.
ADJUVANT: Any substance which
increases the immune-stimulating prop
erties of an antigen or the
pharmacologic effect of a drug.
ANEMIA: A lower than normal
number of red blood cells.
ANTIBODIES: Molecules in the
blood or secretory fluids that tag, de
stroy or neutralize bacteria, viruses, or
other harmful toxins. They are mem
bers of a class of proteins known as im
munoglobulins, which are produced
and secreted by B-lymphocytes in re
sponse to stimulation by antigens.
ANTIGEN: A substance, which
when introduced into the body, is ca
pable of inducing the production of a
specific antibody.
ANTIOXIDANTS: A substance that
inhibits oxidation or reactions pro
moted by oxygen or peroxides.
ANTIVIRAL: A substance or process
which destroys a virus or suppresses its
replication.
ASYMPTOMATIC: Without symp
toms.
B CELLS: See B-Lymphocytes.
2
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GLOSSARY
AIDS CLINICAL TRIALS GROUP
(ACTG): A network of 52 medical cen
ters, sponsored by the National Insti
tute of Allergy and Infectious Disease,
which conducts multi-center trials of
treatments for AIDS/HIV and opportu
nistic infections.
ABSOLUTE CD4+ CELL COUNT (T4
Count): The number of T helper cells
(lymphocytes) in a cubic millimeter of
blood. The CD4+ cell count is signifi
cantly lower in people whose immune
BIOLOGICAL RESPONSE MODIFI
ERS (BRMs): Substances, either natural
or synthesized, that boost, direct, or
restore normal immune defenses.
BRMs include interferons, interleukins,
thymic hormones and monoclonal anti
bodies. (See immunomodulators.)
B-LYMPHOCYTES (B-cells): One of
two major types of lymphocytes. Dur
ing infections, these cells produce large
quantities of antibody directed at a spe
cific microbe.
CELL-MEDIATED IMMUNITY
(CMI): See cellular immunity.
CELLULAR IMMUNITY: The
branch of the immune system that relies
primarily upon specific defense cells
rather than antibodies. See also: hu
moral immunity.
CYTOKINES: Soluble, hormone-like
substances, produced and released by
lymphocytes, which act as messengers
between cells.
CYTOTOXIC: An agent or process
which is toxic to cells; that results in
suppression of function or cell death.
CYTOTOXIC T LYMPHOCYTE
(CTL): A lymphocyte that is able to kill
foreign cells that have been marked for
destruction by the cellular immune sys
tem.
DOUBLE BLIND: A clinical-trial de
sign in which neither the participating
patients or doctors know which pa
tients are receiving the experimental
drug.
ENVELOPE: In virology, a protein
covering which packages the virus' ge
netic information.
EPIDEMIOLOGY: A discipline con
cerned with the determination of the
specific causes or distribution of a dis
ease or the interrelation between vari
ous factors determining a disease.
HALF LIFE: The time for the amount
of a drug to be reduced by through me
tabolism and/or excretion in the body.
HELPER T CELLS (T4, CD4): A sub
set of T cells that carry the CD4 Protein
which are essential for activating im
mune responses.
HEMATOCRIT: A laboratory mea
surement of the percentage of packed
red blood cells in a given volume of
blood.
HUMAN IMMUNODEFICIENCY
VIRUSTYPEI(HIV-l): The retrovirus
isolated and recognized as the etiologic
agent of AIDS.
HUMORAL IMMUNITY: The
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branch of the immune system that relies
primarily upon antibodies. See also:
cellular immunity.
IMMUNE DEFICIENCY: A break
down or inability of certain parts of the
immune system to function, making a
person susceptible to certain diseases
which they would not ordinarily de
velop.
IMMUNE RESPONSE: The activity
of the immune system against foreign
substances.
IMMUNE SYSTEM: The complex
functions of the body that recognize
foreign agents or substances, neutralize
them, and recall the response later
when confronted with the same chal
lenge.
IMMUNITY: A natural or acquired
resistance to a specific disease. Immu
nity may be partial or complete; long
lasting or temporary.
which cause a cell to become resistant
to a wide variety of viruses. They are
produced by cells infected by almost
any virus.
NK CELLS: See natural killer cells.
ITP (immune thrombocytopenic pur
pura): A condition in which the body
produces antibodies against the plate
lets, which are cells responsible for
blood clotting. ITP is very common in
HIV-infected people.
KAPOSI'S SARCOMA (KS): A tumor
of the wall of blood vessels, or the lym
phatic system. Usually appears as pink
to purple, painless spots on the skin but
may also occur internally in addition to
or independent of lesions.
KILLER T CELL: See cytotoxic T
Lymphocyte.
LEUKOCYTES: All white blood cells.
IMMUNOMODULATOR; Any sub
stance that influences the immune sys
tem. (See biological response modifier)
LYMPH NODES: Small bean-sized
organs of the immune system, distrib
uted widely throughout the body. Mi
crobes are filtered out by lymph nodes
or the spleen respectively, and attacked
by the immune system.
IMMUNOSTIMULANT: Any agent
or substance that triggers or enhances
the body's defenses; also called
immunopotentiators.
LYMPHOCYTES: Cells produced
chiefly by the immune system which
are the cellular mediators of immunity.
See T cells and B cells.
IMMUNOSUPPRESSION: A state of
the body in which the immune system
is damaged and does not perform its
norma) functions. Immunosuppression
may be induced by drugs or result from
certain disease processes (such as HIV
infection).
LYMPHOKINES: Non-antibody me
diators of immune responses, released
by activated lymphocytes.
IMMUNOTOXIN: A monoclonal
antibody linked to a toxic drug or ra
dioactive substance.
IMMUNOTHERAPY: Treatment
aimed at reconstituting an impaired
immune system.
IN VITRO: In an artifical environ
ment, as in a test tube or culture media.
which plays a central role in defense of
a host against infection; they engulf
and kill foreign microorganisms.
MONOCYTE/MACROPHAGE: A
large white blood cell which acts as a
scavenger, capable of destroying invad
ing bacteria or other foreign material.
NATURAL KILLER CELLS (NK
cells): Large granular lymphocytes that
attack and destroy tumor cells and in
fected body cells. They are known as
"natural" killers because they attack
without first having to recognize spe
cific antigens.
IN VIVO: In the body of a living or
ganism.
NEUTRALIZATION: The process by
which an antibody binds to specific an
tigens, thereby "neutralizing" the mi
croorganism.
INTERFERON: A general term used
to describe a family of 20-25 proteins
NEUTROPHIL (polymorphonuclear
neutrophils, PMNs): A white blood cell
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OPEN-LABEL TRIAL: A drug trial in
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gators know what drug is being tested
and what drug is being used.
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OPPORTUNISTIC INFECTIONS: An
infection in an immune compromised
person caused by an organism that does
not usually cause disease in healthy
people.
p24: A viral protein that can be mea
sured in the blood of infected patients.
PHAGOCYTOSIS: The process of
ingesting and destroying a virus or
other foreign matter by phagocyte
(monocyte/macrophage, PMN).
PLACEBO: An inactive substance
against which investigational treat
ments are compared.
PLATELETS: Circulating cellular
fragments critical for blood clotting and
sealing off wounds.
PROPHYLAXIS: Treatment intended
to preserve health and prevent the oc
currence of a disease.
PROTEINS: Organic compounds
made up of amino acids. Proteins are
one of the major constituents of plant
and animal cells.
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RANDOMIZED: An experiment ar
ranged so as to produce a chance distri
bution of subjects to different treatment
groups, to help yield unbiased data.
SEROCONVERSION: The develop
ment of antibodies detected by blood
testing.
SYNERGISM/SYNERGISTIC: An
interaction between two or more agents
(drugs) that produces or enhances an
effect which is greater than the sum of
the individual agents.
T CELLS (T lymphocytes): A thy
mus-derived white blood cell that par
ticipates in a variety of cell-mediated
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immune reactions.
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T-LYMPHOCYTE: See T-Cells.
VACCINE: A substance that contains
antigenic components from an infec
tious organism. By stimulating an im
mune response (but not disease), it protects against subsequent infection by
that organism.
VIRAL CULTURE: A laboratory
method for growing viruses.
VIREMIA: The presence of virus in
the blood stream.
VIRUS: A group of infectious agents
characterized by their inability to repro
duce outside of a living host cell. Vi
ruses may subvert the host cells' normal
functions, causing the cell to behave in
a manner determined by the virus.
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VIRUS LOAD: The quantity of virus
in the body.
WESTERN BLOT: A laboratory test
o- ? ■ i for the presence of specific antibodies,
more accurate than the ELISA test.
Glossary Excerpted from the AmFar
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SURVEYS OF READERS, THESE SOURCES ARE REVIEWED TO IDESTIFY THOSE ARTICLES OF GREATEST INTEREST TO H17E READERS. EACH SECTIOS
ISCLUDES A COLLECTION OF ARTICLES IS THEIR ESTIRETY, AS WELL AS REFERESCES TO ADDITIOSAL ARTICLES, OS A PARTICULAR TREATMENT TOPIC.
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Persons interested in receiving copies of referenced articles .may call HANDI to receive them.
NUTRITION AND
RELATED ISSUES
— Please Note —
No representation, warranty, or endorse
ment — expressed or implied — is made
as to the accuracy or completeness of this
information. This information is provided
as source material only and has not been
independently verified by HANOI or NHF.
NHFdoes not recommend particular treat
ments for individuals. NHF recommends
that you consult your physician or local
treatment center before pursuing any
course of treatment.
First Things First
by Jennifer Jensen, MS, RD
Being Alive, January 1994, p. 7
With the new year underway, many
people probably continue to make those
New Year's Resolutions . Others of us
know better. The longer we survive, the
more we know (or tend to remember)
that the resolutions made on January 1
are often broken by January 2. How
ever, with the first month of the new
year, priorities or a "first things first"
attitude do make a lot of sense! If we
don't have a master-plan decision-mak
ing system, we may let ourselves (and
our good health ) down.
First...
Nutritionally (and medically) speak
ing, the first "food" priority is fluids.
That's right. Hydration is our first pri
ority. Believe it or not, up to one half of
all HIV related hospital admissions are
for dehydration. Weight loss will often
follow, given the nature of hospital life.
(Hospitals are also full of sick people
who may pose a health risk for HIV/
AIDS patients by passing along their
germs.)
How does dehydration happen so
much with HIV/AIDS? The most obvi
ous fluid losses are from diarrhea, vom
iting and sweat. Other fluid losses are
less obvious. For example, when
muscle is broken down, hydration is
lost because water is packaged, in our
bodies, with muscle tissue. Lose the
muscle; the water goes too.
To prevent dehydration, drink about
two quarts —for ''usual" days when
there is no vomiting, sweats and/or
diarrhea. In addition, replace the more
obvious fluid losses by adding to the
"two quart" system enough to replace,
ounce for ounce, the water that has
been lost. It doesn't have to be an ex
pensive drink, just a liquid! A safe liq
uid.
Water is great for hydration. Water
can also be a "food safety" risk.
Cryptosporidium and microsporidium,
however, may be totally avoidable Op
portunistic Infections (OIs) by control
ling the type of water we consume. Re
member these three words: "Heat Kills
Germs." Is all bottled water safe? Your
guess is as good as mine. But realize
that the water may not necessarily come
from wherever or whatever source the
bottle label indicates.
What the neurosis on water safety
means is that we should not drink wa
ter other than boiled or distilled (which
is steam from boiling water). If you
love your designer bottle, fine; boil the
water, then refill the bottle with the
same, now guaranteed safe. In restau
rants, hot coffee, tea and other hot bev
erages are safe; iced tea and other
drinks with ice are not guaranteed to be
safe. Even ice should be made from
safe water.
(Just another little note on these two
opportunistic microbes: They live hap
pily in bleach, they divide and multiply
in iodine and they are killed, dead as a
doornail when we boil the water in
which they live. Heat Kills Microbes!)
I Article continues - please contact
HAND! for copy of complete text. In
cludes a section on vitamins and pro
tein chart.J
Food for Healing
by Patrick Donelly
Body Positive, February 1994, p. 15
I was pleased to participate in the Fo
rum on Nutrition for HIV+ People on
November 17th last year, because it was
an opportunity for me to speak person
ally about why I cat the way I do, and
to let people know about the pcrspcc-
tive and services of the Whole Foods
Project. The following is a brief review
of the remarks I made that evening.
I'm the Program Coordinator of the
Whole Foods Project, a non-profit pro
gram that provides six organic vegetar
ian meals a week for people with HIV,
cancer, heart disease and other serious
illness. The Project also provides a wide
array of cooking classes, lectures and
workshops, designed to help people
living with illness learn to care for
themselves nutritionally.
My work at the Whole Foods Project
has grown directly out of my experi
ence as a person living with HIV. When
I was diagnosed I experienced a tre
mendous amount of grief, anger and
confusion. I was fortunate to have the
support of many loving people in my
life, and when I started to recover I got
to work educating myself—about my
self. I read everything I could get my
hands on about HIV, illness in general,
healing, and the body. Because I had
worked for many years as a chef, I had
a special interest in exploring the nutri
tional side of healing. I kept (and still
keep) a huge pile of books and periodi
cals by the side of my bed, and every
night I read them. 1 read them on bus
ses, subways, planes and during dull
bits at parties. I told myself I didn't
have to understand everything I read
all at once, but that if I kept at it, I
would have a clearer idea of the way to
manage my health. I knew that I
wanted to be fully involved in choosing
my treatments, and that whatever
health practitioners I chose would have
to work with me, not vice versa.
Gradually I came to see that the treat
ments available to me fell into (at least)
two philosophical camps. The treat
ments that made the most sense to me,
the ones I eventually chose, are those
based on an understanding of the body,
and the immune system, as being
strong, powerful, and capable of heal
ing themselves if given the proper sup
port.
The issue of support is where the
food comes in. I wanted to give myself
the best nutritional support available.
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so in my reading I was looking for the
answers to two questions: "Are there
foods that help the immune system to
: function?", and "Are there foods that
make it difficult for the immune system
to function?" The following are the
: characteristics of the food my research
and experience have taughtt me are the
most supportive of my health:
Whole: I choose foods that are un
processed or minimally processed,
whenever possible. I eat a wide variety
of whole grains, legumes (beans and
peas), vegetables and fruits (the New
Four Food Groups recommended by
the Physicians Committee for Respon
sible Medicine). These foods are full of
the anti-oxidant vitamins and minerals
which prevent free-radical damage and
are so important to immune system
function.
Organic: My body is dealing with an
immune imbalance. It makes sense to
me that it doesn't need to deal with a
load of toxic pesticides, additives, pre
servatives, hormones, and antibiotics on
top of that. This is why I choose organi__ cally grown foods, in spite of the ex2 . pense, whenever possible. It is also one
of the reasons I choose a mostly plantbased diet, which is much less likely to
be contaminated with toxins. Increas
ing the access of low-income people to
8 . health-supporti'ive organic food,
S' through community-run food coops, is
one of the chief goals of the Whole
Foods Project.
Fresh and Seasonal: I choose food
j'that looks and feels like it's full of life
energy, which sometimes means that it
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was grown locally. I also try, without
H ■ being fanatic about it, to choose foods
that are appropriate to the season I'm
in, because it seems to me that these
foods support me for the kind of
weather and environment I'm experi
encing. (For instance I eat a lot more
whole grains and roasted root veg
etables in the winter, and less cooling
foods like salads.)
Free of Refined Sugars and Low in
Natural Sugars: I haven't been able to
to enjoy sugary foods as much since learn
.=
ing that researchers at Loma Linda Uni
versity found that eating 100 grams of
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sugar (easy to do: there's about 75
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grams in one piece of apple pie, and 40
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thing sugary with every meal (and
"natural" sugars work the same way)
you've got those helpful little phago
cytes working with one arm tied behind
their backs all day. This is not my idea
of supporting my immune system.
Low in Fat. Another reason I choose
a mostly plant-based diet is that it's low
in fat. Eliminating meat, dairy and eggs
from the diet lowers fat intake tremen
dously. A German study going on
since 1978 shows that vegetarians have
more than twice the natural killer cell
activity than meateaters. I'm aware that
many nutritionists who work with
people with HIV recommend a highfat, high-protein diet, mostly because
they are concerned that people not lose
muscle mass. I don't choose to eat this
way because research, like the above
German study, seems to show that a
high-fat diet is immuno-suppressive. I
focus instead on keeping the ecology of
my gastro-intestinal tract healthy, so
that the nutrients I eat can be absorbed
and utilized. I do this by avoiding toxic
drugs (both "recreational" and pre
scription), avoiding food that doesn't
meet the criteria above, avoiding toxic
levels of stress, and by eliminating
stressors like alcohol and nicotine. My
mostly plant-based diet has given me
regular and comfortable digestion, a
stable body weight, a great deal of en
ergy, and contributed to my excellent
health and sense of well being.
I work with many people who experience various digestive disorders and
problems with nutrient absorption.
Some of the comments I've heard from
people from who switch to a diet of
whole foods have included: "I had the
first real bowel movement I've had in
months"..."! have so much more
energy"..."When I stopped eating sugar
my thrush cleared up." On the other
hand, no one has ever said - to me: "I
had diarrhea and wasn't able to absorb
anything I was eating and I changed to
a high-fat, high-protein diet, and all of a
sudden everything cleared up." A highfat, highprotein diet is what is making
the rest of America sick—it doesn't make
sense that it can be good for me just be
cause I have HIV.
My final thought is that there is no
substitute for personal research and
personal experience, when it comes to
choosing a diet or any other aspect of
managing our health. Look closely at
all the different options, ask questions.
experiment, and pay close attention to
the way your body feels. Good food is
helping many people with HIV to stay
healthy drop in at the Whole Foods
Project and find out how.
Nutrients Provide Armor
Against Infections
Brian A Smith, D.C.
Positive Living, March 1994, p. 5
All HIV-positive people need to have
nutritional intervention to realize opti
mal health. Studies have shown nutri
ent deficiencies very early in the
disease state. These nutrient deficien
cies may lead to direct tissue damage,
which is a primary cause of health
problems.
Let's face facts: The body must be
come deranged in its biochemical path
ways to allow disease to occur. HIV
infection is not caused by a lack of AZT
or ddl in the body. As the biochemical
derangements are identified, it becomes
possible to correct them.
This article reports on recent research
in nutrition and preventative therapies
as they apply to HIV.
Vitamin Abnormalities
In metabolic brain disease, the corre
lation between brain lesions characteris
tic of Wernicke's encephalopathy and
thiamine (vitamin B-l) deficiency is re
ported. Thiamine deficiency was found
in 23 percent of AIDS patients. The authors recommend "that dietary thiamine supplementation be initiated in all
newly diagnosed cases of AIDS or
AIDS-related complex."
Vitamin B-12 abnormalities are reported in European Journal of
Haematology and Lancet. The former re
ports patients with low vitamin B-12
levels showed lower hemoglobin, leu
kocytes, lymphocytes, CD4 lympho
cytes and CD4/CD8 ratio than HIV
positive people with normal serum B-12
levels.
It was further found that absorbtion
of B-12 may be impaired and that se
rum proteins that "carry" B-12 may be
decreased as well. The Lancet article
describes a myelopathy (non-specific
functional disturbances or pathologies
changes of the spinal cord) that re
sembles a disorder related to vitamin B12 metabolism, subacute combined de
generation of the cord.
In this study no correlation between
serum B-12, which was normal in all
HIV Treatment Information Exchange
subjects, and disease progression was
noted. This means some factor affecting
the usage of B-12 by the body is in
volved or HIV-positive people require
higher amounts of B-12.
Biochemical Deficiencies
Widespread vitamin B-6 deficiencies
in asymptomatic HIV-positive indi
viduals have been reported in Journal of
Acquired Immune Deficiency Syndromes.
Many of these B-6 deficient subjects
consumed three to seven times the rec
ommended daily allowance of B-6, yet
two-thirds of them were biochemically
deficient. B-6 is required for assimila
tion of dietary protein and immune
function. Deficiency is associated with
atrophy of the thymus and spleen.
Glutathione and the related amino
acid cysteine were reported on in AIDS
Research and Human Retroviruses and
Cellular Immunology. The former study
demonstrated significantly lower glu
tathione levels in CD4 and CDS cells in
HIV-positive people. "Intracellular glu
tathione plays an important role in the
regulation of human immunodeficiency
virus transcription and replication in
vitro, through modulation of signal
transduction by inflammatory
cytokines."
Inflammatory cytokines (tumor ne
crosis factor, interleukin-1 and
interleukin-6) stimulate HIV transcrip
tion and replication. This stimulation is
enhanced when cells are glutathione
depleted. The low glutathione levels are
not due to direct infection by HIV since
only a small percentage of CD4 cells are
infected.
It is thought that HIV induces pro
duction of cytokines which deplete glu
tathione. Glutathione is important for
T-cell proliferation, T- and B-cell differ
entiation, cytotoxic T-cell activation,
NK cell activity and cell protection
against oxidants. These depleted glu
tathione levels can be repleted with use
of N-acetylcysteine (NAC).
In Cellular Immunology it is reported
that DNA synthesis in T-cells is inhib
ited in the absence of cysteine, one of
the amino acid constituents of glu
tathione. Intracellular glutathione levels
are strongly increased by adding cys
teine.
Vitamins and Viral Inhibition
A study published in American Jour
nal of Clinical Nutrition reported the
effects of vitamin C, glutathione and
NAC on viral inhibition.
In vitro testing demonstrated 94-percent reduction of HIV reverse tran
scriptase by vitamin C, 60-percent re
duction by NAC, and no inhibitory ef
fects from glutathione.
Combination therapy of NAC and
vitamin C showed a "greatly increased"
effect. NAC reduced the extracellular
level of p24 by approximately tenfold.
NAC may have directly reacted with
the p24, rather than suppress its forma
tion.
The effects of vitamin C were found
to be not related to the acidity of the
environment, as skeptics earlier
claimed. Suppression by vitamin C re
quired continuous supplementation. It
was further stated that approximately
12 grams per day would be required by
healthy subjects to achieve the lower
levels required for viral suppression.
The amount may be as high as 20 grams
per day. Glutathione did not exhibit
any beneficial effects, probably due to
the fact is needs to be degraded before
it can enter a cell.
[article continues; includes section on
carnitine - please contact HANDI for
complete text)
Developing Your Own
Nutrition Strategy for HIV:
Nutrient Supplementation
by Vivica Kraak^MS, RD
The Body Positive, March 1994, p. 18
A great deal of attention has recently
been focused on the power of nutrient
supplementation for people living with
HIV and AIDS. When discussing nutri
ent supplementation, it is important to
keep in mind that it complements the
food you eat. To better understand the
relationship between nutrient supple
mentation and immune enhancement, it
is first necessary to distinguish what
levels of supplementation we know are
safe and therapeutically beneficial from
what we think may be helpful or even
harmful, based on existing scientific
research.
It is easier to think about the different
functions of supplements by separating
them into four major categories:
(1) therapeutic doses of specific
vitamins and minerals to correct
existing deficiencies;
(2) megadoses of vitamins, miner
als and other substances (ie...N-
acetylcysteine or Coenzyme Q10)
that act as antioxidants to combat
the HIV induced stress and destruc
tion of immune cells brought on by
free radicals;
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(3) commercially prepared liquid
nutritional supplements which pro
vide calories, protein, vitamins and
minerals and other special sub
stances that may have immune en
hancing properties; and
(4) plant-based substances such as:
acemannan, quercetin and herbs,
which are thought to strengthen
immune function. This article will
discuss what is presently known
about vitamin, mineral and liquid
nutritional supplements and how
you can obtain them.
If you choose to supplement your
eating plan with the nutrients discussed
in this article, it is important to commu
nicate to your physician, nutritionist
and other healthcare providers the ex
act dosage of what you are taking. If
you are confident about why you are
taking a supplement, you may have the
opportunity to educate your healthcare
team members on the beneficial effects
of certain supplements that could influ
ence what they recommend to other
people living with HIV. You will find
that your healthcare team will be more
receptive to your needs if you take a
strong interest in your own nutrition
and medical management.
What are Vitamins, Minerals and
Trace Elements
Vitamins, minerals and trace ele
ments are substances that your body
cannot make but needs in small
amounts to survive. They are also
called micronutrients, micro = small
and nutrient = a substance that nour
ishes. Vitamins, minerals and trace ele
ments are involved in specific reactions
in your body and need to be taken with
food because they work with protein,
fat and starches to do their job. You
may be familiar with the thought that
healthy people who eat a variety of
food every day do not need to take a
daily multivitamin and mineral supple
ment because they get what they need
what they need from the food they eat.
Medical nutritionists have begun to re
evaluate this thought, especially with
new research supporting the benefit of
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antioxidants in reversing the negative
effects of smoking or preventing
chronic diseases such as cancer and
heart disease.
Nutritionists have typically used the
Recommended Dietary Allowance
(RDA) as the standard by which to
evaluate the appropriateness off a
person's food intake. The RDA is a
guideline set by the government for
levels of calories, protein, vitamins,
minerals and trace elements to meet the
nutrition needs of most healthy per
sons. The RDA was intended to deter
mine the nutritional requirements for
healthy populations over time and has
a built in margin of safety to ensure that
the nutrition needs of most healthy per
sons within a population are met. The
RDA does not cover the special nutrient
needs for specific disease states. It is
becoming clearer that we need to de
velop standards for each disease state,
including HIV. If you are HIV positive
or have AIDS, you need more than
what food can provide, especially if you
have a poor appetite and skip meals, if
your body is fighting off infections, or if
you have chronic diarrhea.
When Do You Need Therapeutic
Doses of Vitamins and Minerals?
If you are HIV positive and
asymptomatic, the least you should
take is a daily multivitamin and mineral
supplement that is 100% of the USRDA.
If you are HIV positive and symptom
atic or have AIDS, you should take at
least two multivitamin and mineral tab
cl : lets daily that are 100% of the USRDA.
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A recent study conducted at the Uni
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versity of California, Berkeley found
that the daily use of a multivitamin and
mineral supplement was associated
with a 31% decrease in the risk of pro
gressing to AIDS (Abrams, B. et al: J
Acquir Immune Defic Syndr. 1933;6:49)
You can ask your physician to write
out a prescription for a multivitamin or
mineral supplement that can be covered
by Medicaid or the AIDS Drug Assis
tance Program (ADAP) if you are eli■ gible for these services. Research indicates that as HIV disease progresses,
_Jh•'&: specific deficiencies may develop. That
is why many people decide to take a
multivitamin and mineral supplement
that has more than the specific vita
mins, minerals and trace elements in
0
one tablet. Some people take additional
nutrients to a supplement providing at
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least 100% of the USDRA. Dosages of
nutrients that are 5-25 times the USRDA
are called therapeutic doses. Supple
ments with therapeutic doses are avail
able through such mail order services
as: American Preferred Plan, Inc., Puri
tan Pride and Direct AIDS Alternative
Information Resources (DAAIR). These
supplements are not reimbursable at
this time through Medicaid or ADAP.
If you are concerned that you may
have a specific micronutrient defi
ciency, ask your doctor to order a test
for the vitamin or mineral when you
have your blood drawn. If you are
chronically tired and have little energy,
and have already spoken with a nutri
tionist about proper timing of your
meals to rule out hypoglycemia, you
may have an anemia. An anemia is a
condition where you have lower than
normal amounts of red or white blood
cells. There are many types of nutri
tional anemias, resulting from an iron,
vitamin Bl 2, folate, vitamin B6 or cop
per deficiency. There are also non-nutritional anemias related to the side
effect of medications, such as: AZT and
Cytovene. It is important that your phy
sician gets baseline information on
your anemia before you supplement on
your own because the supplement
could mask an ongoing medical prob
lem that is not nutritionally based.
A zinc deficiency has also been docu
mented in progressive HIV disease.
Many nutrition studies have found that
even healthy people with a varied eat
ing plan do not get enough zinc from
the food that they eat. A zinc deficiency
can develop faster if you have been ex
periencing chronic diarrhea. Zinc is
needed to produce mature T cells and
also helps to replete muscle tissue. An
appropriate therapeutic dose range of
zinc is 50-75 mg/day. A dose of 300 mg
or greater can be immunosuppressive.
Vitamins, Minerals and Trace Ele
ments as Antioxidants
Vitamin C, beta carotene, vitamin E
and selenium are involved in your
body's immune system and have been
implicated as important antioxidants to
combat the effects of HIV-induced oxi
dative stress. HIV infection has been
associated with an increased produc
tion of free radicals. Free radicals are
substances produced during periods of
oxidative stress which can damage and
even kill cells by activating enzymes
that cause destruction of cellular RNA
and DNA in CD4 cells. Antioxidants
bind to free radicals before they have a
chance to damage cells. The following
range of micronutrient doses function
as antioxidants: 1,000 to .10,000 mg of
vitamin C/day; 30-60 mg of beta carotene/day = 50,000-100,000 International
Units (IU) of beta carotene/day (1 mg =
1667 IU); 400 IU of vitamin E (dalpha
tocopherol)/day; and 100-200 micro
grams of selenium/day. Selenium
doses exceeding 1000 micrograms/day
will cause adverse side-effects. Nacetylcysteine (NAC) is also a potent
antioxidant, though it is not a micronu
trient. It has been found to replete glu
tathione, a protein that is your body's
major antioxidant, at a therapeutic dose
of 500-600 mg three times/day.
Liquid Nutrition Supplements
These types of supplements come in
many different flavors and are in
tended to give you extra calories, pro
tein, vitamins and minerals in addition
to the food that you eat. They are espe
cially helpful when you have a poor
appetite and don't feel like eating a big
meal, but you can drink 8-16 ounces of
a nutrient dense shake. They are also
useful when you have painful swallow
ing, mouth sores or chronic diarrhea.
Some of the commercial supplements
available that are high in protein and
calories are appropriate if you can di
gest lactose containing products. These
include: Carnation Instant Breakfast,
Meritene or Nutrament. If you are "lac
tose intolerant," you may experience
bloating, gas, cramping and diarrhea
within a few hours of consuming dairy
products containing lactose. If this is
the case, you may want to try some of
the more common liquid supplements
made from soy protein, which are lac
tose-free. These supplements include:
Ensure, Ensure Plus, Sustacal, Resource
Plus and Nutren. You can also make
your own fruit shake with fortified
soymilk if you do not want to drink a
canned supplement but it will be lower
in micronutrients. If you are caring for a
child who is HIV+, the high calorie,
high protein, lactose-free supplement
available is called Pediasure. There are
also special supplements for people
who are diabetic or have HIV-related
renal failure.
If you still experience symptoms of
diarrhea after drinking the lactose-free
HIV Treatment Information Exchange
supplements, try drinking them slowly
at room temperature. You may want to
also try supplements with soluble fiber
added, like Ensure With Fiber, which
helps to bind you and reduce symp
toms of diarrhea. If this does not help
your symptoms, you may be able to
tolerate some of the specialized supple
ments intended for people who have fat
intolerance. These include: Lipisorb,
containing a special type of easily di
gested fat called medium chain triglyc
eride (MCT) oil, which comes in a pow
der or vanilla flavored liquid;
Citrisource, an orange or raspberry fla
vored clear supplement that is rela
tively high in protein, high in calories
but contains no fat; Opti Health Gain, a
chocolate or orange flavored supple
ment that is high in calories, high in
protein and low in fat; and Vivonex
Plus, a low fat supplement that is high
in an easily digestible protein and calo
ries, with an added protein called
glutamine. Glutamine is an amino acid
that helps to build back your intestines
when they have been damaged as a re
sult of chronic diarrhea.
Advera is another supplement that
has just recently become available de
signed specifically for HIV positive
people to prevent muscle wasting. It is
a high protein, high calorie, low fat and
lactose-free supplement made primarily
with soy protein, soluble fiber and
higher levels of vitamin C, E, B6, Bl2,
folic acid, beta carotene, zinc and sele
nium. Although it is low in fat, Advera
contains three special types of fat:
omega3 fatty acid (omega-3 FA), MCT
oil and canola oil. Omega-3 FA is found
in fish oils and has been recently stud
ied as a substance that might lower the
level of cytokines produced by the body
during stress, particularly tumor necro
sis factor (TNF) and interleukin-1 (IL-1).
A cytokine is a chemical messenger of
your immune system. Some are benefi
cial, others, like TNF and IL-1 have been
linked to loss of appetite and HIV wast
ing. However, the results of one study
(Hellerstein et al, 1992) involving 20
people with AIDS suggested that
omega-3 FA did not effectively prevent
the worsening of metabolic changes or
weight loss. This may mean that
omega-3 FA is a weak anticytokine sub
stance, but further research needs to
explore the effect of omega-3 FA at an
earlier stage of HIV disease.
How Can You Get Nutrition Supple
ments and Counseling?
A nutritionist, registered dietician or
physician can help determine if you
need supplements and which specific
types may be best for you. If your phy
sician has found that you have existing
micronutrient deficiencies (ie...vitamin
Bl2, B6, folate, zinc or selenium), and
you need therapeutic doses to build
back your body stores, you can ask
your physician for a prescription that
can be reimbursed through Medicaid or
ADAP, 1-800-542-2437, if you are able.
If you have lost over 10-15 pounds in
the past month and you are below nor
mal weight you should be for your
height, you are eligible for receiving
liquid nutritional supplements either
through Medicaid or ADAP. If you
would like to receive nutritional coun
seling to help you develop an eating
plan incorporating supplements, you
can speak to an HIV nutritionist or reg
istered dietician in the hospital or clinic
where you are being followed, or re
ceive counseling free at licensed facili
ties that provide outpatient primary
healthcare with enhanced Medicaid
reimbursement rates through the
ADAP-Plus program. You can also re
ceive free nutritional counseling at New
York City community-based organiza
tions such as: God's Love We Deliver,
(212) 865-6500), Cay Men's Health Crisis-GMHC, (212) 807-6664, The Momen
tum Project, (212) 268-2610, and Bronx
AIDS Services, (718) 295 - 5598.
*The USRDA is a standard estab
lished for food and supplement labeling
based on the RDA.
*The contents of this article are based
on existing scientific data that support
the benefit of nutrient supplementation.
All readers should consult with their
physician prior to making any changes
in their treatment regimen, and inform
all healthcare providers prior to making
major nutritional changes in your eat
ing or supplementation plan.
ucts. These recipes can help you make
low-lactose or dairy-free drinks that are
high in calories and protein so that you
will be able to maintain your weight
when you have eating and digestion
problems. To prepare each recipe, combine the ingrediants at high speed in a
blender or food processor for one or
two minutes until smooth. Try varia
tions by adding different types of fruit
so that you don't get tired of any one
recipe.
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Fruit Shake Smoothie
1 cup fortified soymilk
2 TBSP, sugar or honey
2 TBSP, protein powder
1 TBSP, wheat germ
1 TBSP, bran
1 cup sliced fruit
This shake is high in calories, protein,
fiber and is lactose-free. Drink this if
you are constipated. You can substitute
Lactaid milk, rice milk, cashew milk or
Ensure with Fiber for soymilk.
Pina Colada
1/2 cup coconut milk
1 cup pineapple juice
1 /2 cup fresh or canned pineapple
4 TBSP, protein powder
1/4 cube of tofu
This drink is high in calories, protein
and is lactose-free. Drink this to gain
weight.
Peanut Butter Chocolate Shake
2 TBSP, peanut butter
1-8 oz can chocolate Ensure Plus
1/2 banana
This shake is high in calories, protein
and potassium. Drink this if you have
diarrhea resulting from lactose intoler
ance. You can substitute soymilk,
Sustacal or Resource Plus for Enusre
Plus.
Healthy Drinks from a
Blender
The Body Positive, March 1994, p. 21
Triple Fruit Yougurt
1 cup vanilla yogurt with an active L.
acidophilus culture
2 TBSP, protein powder
1/2 cup sliced peach & mango
1 cup apricot nectar
2 TBSP, honey or sugar
This shake is low in lactose, high in
calories, protein and potassium. Drink
this if you have diarrhea.
When you are HIV+, there may be
some days that you do not feel like eat
ing. You may have sores in your mouth
or throat that make chewing or swal
lowing difficult. You may even have
diarrhea when you drink milk prod-
Raspberry Sorbet
1 cup orange sherbet
1 /2 cup frozen raspberries
1 cup CitriSource
1 /2 cup crushed ice
2 TBSP, protein powder
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This sorbet is high in calories, protein
and low in fat. Drink this if you have
mouth sores or diarrhea.
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Lipisorb Shake
1 /2 cup mango nectar
1/2 cup apricot nectar
I cup sliced papaya and banana
5 scoops Lipisorb powder
This shake is high in calories, protein
and potassium but low in fat. Drink
this if you have diarrhea resulting
from fat intolerance.
Positively Aware, Mar. 1994, p. 13 (523)
Mild Exercise (Just Plain Walking) Plus Lemon
Juice and Certain Herbs with Meals, Vancouver
PWA, #75 Feb. 1994, p. 7 (510)
Management of Nutritional Status in HIVInfected Patients, HIV HOTLINE, Jan. 1994, p.
9(511)
Muscle Growth, AIDS Treatment Data Network,
Dec. 1993, p. 2 (512)
Weight Loss, Common Factor, #7 Feb. 1994, r
8 (524)
What to Do for Loss of Appetite, by Tim Haas,
Common Factor, #7 Feb. 1994, p. 8 (525)
Zinc, by Diana Peabody, Vancouver PWA, #74
Dec. 1993, p. 20 (526)
■i
Available From HANOI
■
Antioxidant Vitamin: Vitamin C, by Gary Null,
Townsend Letter for Doctors, #127 FebVMar.
1994, p. 174 (500)
Nutrition Information with Emphasis for
People in Recovery, by Vivica Kraak and
Yessmin Hernandez, Wellspring, Jan/Feb. 1994,
p.6(513)
Best Current Products to Build Up Your TCells and Other Immune Modulators,
Vancouver PWA, #75 Feb. 1994, p. 9 (501)
Nutrition and HIV: When You Don’t Feel Like
Eating, by Jack Vondras, Wellspring, Mar/Apr
94, p. 20 (514)
Cracking the Quacks: Evaluating Nutritional
Claims for Accuracy and Efficacy, by Kristy
Dickhens, Positively Aware^Mar. 1994, p. 14
(502)
Nutritional Intervention in HIV Disease, by
Dave Gilden, BETA, Mar. 1994, p. 3 (515)
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Developing Your Own Nutrition Strategy for
HIV: Focusing on Building Muscle Mass, by
Vivica Kraak, Body Positive, Feb. 1994, p. 16
(503)
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Effective Therapy for Anorexia and Cachexia in
«
Patients with AIDS, HIV HOTLINE, Jan. 1994,
15 < p. 8 (504)
I
Hydrazine Sulfate, Vancouver PWA, #75 Feb.
1994, p. 29 (505)
Immunotherapy & Nutrients, BETA, Mar. 94, p.
45 (506)
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o j Enzymes, Vancouver PWA, #75 Feb 1994, p. 7
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Common Factor, #7 Feb. 1994, p. 7 (508)
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Megace: Oral Suspension, Megestrol Acetate
(MeadJohnson insert), HIV HOTLINE, Jan. 1994
(509)
I
On a More Positive Note: Effects of Nutrition
on Disease: the Mediterranean Diet, HIV
HOTLINE, Jan. 1994, p. 7 (516)
One Expert’s Suggestions, HIV HOTLINE, Jan.
1994, p. 10 (517)
Quiz to Measure your Knowledge of Safe
Eating, by Scott Sacks, Positive Living, Feb. 94,
p. 11 (518)
Safety Guidelines for Those on the Go, by Dan
Weber, Positively Aware, Mar. 1994, p. 11 (519)
Vicious Cycle of Infection and Malnutrition,
HIV HOTLINE, Jan. 1994, p. 6 (520)
Truth in Advertising: before You Conclude that
the FDA Must Be Stopped Before They Kill
Again ...,by Spencer Cox, Positively Aware, Mar.
1994, p. 15 (521)
Vitamin Phobia, by Morton A. Klein, Natural
Health, Jan7Feb. 1994, p. 82 (522)
Want to Lose Weight?, by Donna Graessner,
PROPHYLAXIS AND
OTHER
OPPORTUNISTIC
INFECTION ISSUES
— Please Note —
No representation, warranty, or endorse
ment — expressed or implied — is made
as to the accuracy or completeness of this
information. This information is provided
as source material only and has not been
independently verified by HANOI or NHF.
NHFdoes not recommend particular treat
ments for individuals. NHF recommends
that you consult your physician or local
treatment center before pursuing any
course of treatment.
Multiple Prophylaxis: Issues
and Controversies
by Mark A. Jacobsen
AIDSFILE, v.7 #4 December 1993, p. 1
Among HIV-infected patients with
fewer than 100 CD4 lymphocytes, pro
phylaxis for more than one opportunis
tic infection (OI) at a time is becoming a
common clinical practice.
Although the absolute CD4 lympho
cyte count is not a "magic number",
generally the median CD4 count is
fewer than 100 cells for patients who in
the absence of specific prophylaxis, de
velop Pneumocystis carinii pneumonia
(PCP), toxoplasmic encephalitis(TE) or
disseminated invasive fungal infections.
The CD4 count is almost always fewer
than 50 cells for patients who develop
disseminated M. avium complex (MAC)
infection or cytomegalovirus (CMV)
end organ disease.
Randomized prospective trials have
established the efficacy of several
agents, for example, trimethoprim/ sul
famethoxazole (TMP-SMX) and
HIV Treatment Information Exchange
aerosolized pentamidine (AP), in pre
venting PCP and of rifabutin in pre
venting disseminated MAC infection.
In addition, a number of other agents
with antifungal, antiparasitic,
antimycobacterial, and antiherpetic ac
tivity have been licensed by the FDA
for a variety of treatment indications.
These drugs include fluconazole,
itraconazole, atovaquone, azithromycin,
clarithromycin and acyclovir. These
agents increasingly are being prescribed
by clinicians as prophylactic regimens
for specific OIs, despite the fact that
randomized trials evaluating them for
this use have yet to be completed. Fur
thermore, large Phase II randomized
placebo-controlled trials of two poten
tial prophylactic agents for CMV, oral
ganciclovir and valaciclovir (previously
called BW256U87), are nearly fully
filled. One or both of these anti-CMV
agents soon might show prophylactic
efficacy in preventing CMV end organ
disease.
Without specific prophylaxis, the ma
jority of patients with advanced HIV
disease will develop PCP. Since the
safety and efficacy of TMP-SMX and of
AP prophylaxis are well established,
there is now virtually unanimous con
sensus that all patients with CD4 counts
of fewer than 200 cells should receive
PCP prophylaxis. However, in a recent
survey of 448 HIV specialists, 31 per
cent also prescribed fluconazole pro
phylaxis for patients at risk for invasive
cryptococcal disease; 19 percent pre
scribed an antimycobacterial regimen
for patients at risk for disseminated
MAC infection; and 11 percent pre
scribed acyclovir to prevent CMV dis
ease.
Although primary prophylaxis using
more than one agent to prevent more
than one type of OI is now emerging as
a common practice for management of
patients with advanced HIV disease,
little is known about the relative or hi
erarchical efficacy of these various
agents in prolonging or improving the
quality of life, especially when these
agents are used in combination.
Little also is known about possible
adverse drug interactions at either a
pharmacokinetic or pharmocodynamic
level when two or more agents are com
bined. An example of an adverse phar
macokinetic interaction is the combina
tion of ketoconazole and rifampin in
which rifampin accelerates
ketoconazole metabolism to the point
that body concentrations of
ketoconazole are so diminished the
drug no longer is clinically effective. An
adverse pharmocodynamic interaction
is created with the combination of
zidovudine (AZT) and ganciclovir,
both myelosuppressive drugs, which
results in such synergistic neutropenia
and anemia that few patients can toler
ate full doses of both drugs adminis
tered together.
Given the cost and compliance prob
lems inherent in multiple OI prophy
laxis, there is a pressing need to deter
mine the hierarchical efficacy of the best
agents and/or agent-dosing regimens
for specific OIs. This is especially true in
the context of advanced HIV disease,
where one or more antiretroviral medi
cations in addition to other palliative
drugs are the rule rather than the excep
tion. There is also a need to define phar
macokinetic and pharmacodynamic
adverse interactions of the many differ
ent combinations of prophylactic regi
mens now being prescribed or which
may be prescribed in the near future.
It has yet to be determined whether
for some target OIs, when the disease is
clinically mild, a strategy of early diag
nosis and careful, periodic monitoring
might have a less negative effect on sur
vival and quality of life than a prophy
laxis that is toxic or has important ad
verse drug interactions.
In considering multiple Ol prophy
laxis, specific antimicrobial agents are
most logically considered for each of
four target OI pathogen groups: 1 ) PCP
and TE, for which all candidate regi
mens can and should have overlapping
coverage; 2) disseminated fungal infec
tions; 3) disseminated MAC; and 4)
CMV end-organ disease.
With the exception of the macrolides
clarithromycin and azithromycin,
which are active against MAC, Toxo
plasma gondii and possibly PCP, the
most promising prophylactic agents for
each of these target groups generally do
not have overlapping activity against
other target group pathogens. Some of
the issues in choosing the best prophy
laxis for each of the groups are dis
cussed in the following sections.
PCP and TE
Results of several randomized com
parative trials have demonstrated that
TMP-SMX is more effective than AP in
preventing PCP. In addition, there is
evidence from one trial that TMP-SMX
prophylaxis significantly reduces the
risk of developing serious bacterial in
fection compared to AP prophylaxis.
Thus, the expert consensus is that TMPSMX is the prophylactic agent of choice
for those who can tolerate it.
In randomized trials comparing
TMP-SMX to AP, the TMP-SMX dose
tested generally has been one double
strength tablet per day. On the other
hand, several uncontrolled trials exam
ining one double strength tablet three
times a week have reported results
similar to those trials that used the
double strength dose daily. In one ran
domized open label trial, the efficacy
and toxicity of daily single strength v
daily double strength TMP-SMX were
identical. However, in this last trial
there were only 71 patients per arm,
limiting the power to detect clinically
important differences in efficacy or tox
icity. The NlAID-sponsored Commu
nity Programs for Clinical Research on
AIDS (CPCRA) is currently accruing
patients in a much larger randomized
open label trial of double strength TMPtimoc times
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given daily v three
Also of note, double strength (DS)
TMP-SMX given daily appears to pro
vide adequate prophylaxis for toxoplasmic encephalitis (TE) in U.S. patients. In
a multicenter prospective trial of 396
patients with positive blood tests for T.
gondii antibody and fewer than 200 CD4
cells, only one of the 218 at-risk patients
who were taking TMP-SMX at a median
dose of four double strength tablets a
week for PCP prophylaxis developed
toxoplasma disease during a median 8.4
months of follow-up. Retrospective
studies from other parts of the world
have confirmed the protective effect of
TMP-SMX in preventing TE.
Unfortunately, approximately half of
the patients with advanced HIV disease
appear to be intolerant of TMP-SMX. In
one large randomized trial, 27 percent
of the patients assigned to TMP-SMX
switched to AP because of toxicity.
However, this trial excluded patients
with a history of prior TMP-SMX intol
erance so the true rate of intolerance
may be higher. Data from other trials of
therapies for patients with late-stage
HIV disease, in which the type of PCP
prophylaxis is open to clinician and/or
patient choice, indicate that only 50 per
cent of enrolled patients are receiving
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TMP-SMX prophylaxis.
Although AP was licensed by the
FDA in 1990 for primary and secondary
PCP prophylaxis, few clinicians or patients currently are enthusiastic about
using it. This lack of enthusiasm is due
to its high cost, risk of extrapulmonary
pneumocystosis, and because pentamiI ■ I
dine is not effective in preventing
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toxoplasmosis. In fact, since the trial
opened in July 1992, the CPCRA has
been unable to accrue enough partici
pants into a comparative trial of
dapsone v AP prophylaxis for TMPSMX intolerant patients because of the
unacceptability of the AP arm to pri
mary providers and their patients.
Dapsone is the alternative systemic
agent for PCP prophylaxis in the TMPSMX intolerant patients for which we
have the most clinical data. Dapsone is
being compared to TMP-SMX and AP
for primary PCP prophylaxis in a large
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ongoing trial, ACTG 081. Data from
O ■ smaller randomized trials suggest that
the efficacy of dapsone is likely to be
close to that of TMP-SMX.
In one preliminary report of a ran£
domized French trial involving 194 pi>articipants, dapsone prophylaxis was
equivalent or better than AP in prevent
a ing PCP but was associated with signifiq
cantly poorer survival. In two other
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randomized trials involving a total of
435 individuals, dapsone was equiva
lent to AP or TMP-SMX in preventing
PCP and no adverse effect on survival
was noted. The dapsone dose most frequently evaluated in these trials has
been 50 mg/day. Of note, in one of the
European trials in which
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pyrimethamine (50 mg/week) and
folinic acid (25 mg/week) were added
to dapsone (50 mg/day), there was a
significant reduction in the incidence of
toxoplasmosis when compared to an
AP arm.
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that has been approved for the treat
ment of acute PCP in TMP-SMX intoler
ant patients. Data from uncontrolled
trials suggest this agent is effective in
the therapy of acute TE, but there is no
clinical information regarding prophy
laxis at present. Initial studies suggested that oral bioavailability of this
agent is problematic. Development of a
new oral suspension may solve this
problem. Nevertheless, this is a promis
ing prophylactic agent and trials exam
ining its efficacy are being designed.
In summary, there is a strong consen
sus that all patients with fewer than 200
CD4 cells should receive some kind of
PCP prophylaxis and that TMP-SMX is
the optimal choice, although the opti
mal dose (one double strength tablet
daily v three times a week) is still un
known.
For those patients who are intolerant
of TMP-SMX, the optimal prophylactic
agent is not known. Again, there is a
strong consensus that some agent
should be used and that reasonable can
didates include dapsone, AP and
atovaquone. One of the important re
maining questions is determining
which of these alternatives is most ef
fective, least toxic and least subject to
adverse drug interactions.
Disseminated MAC Infection
Based on a prospective evaluation of
more than 1,000 patients with advanced
HIV disease, it appears that approxi
mately 40 percent will develop dissemi
nated MAC infection. Results of two
recent randomized placebo-controlled
trials have shown that rifabutin at 300
mg/day has been effective in prevent
ing MAC bacteremia, reducing the inci
dence by approximately 60 percent. The
trials also demonstrated an acceptable
toxicity profile in patients with ad
vanced HIV disease.
Although no survival advantage was
associated with rifabutin, severe fever
and fatigue occurred significantly
sooner in the placebo group, suggesting
a clinical benefit attributable to
rifabutin. While only a 300 mg/day
dose was studied, it is possible that a
higher dose may be more effective
without increased toxicity. However,
since rifabutin is a possible enzyme in
ducer, concern exists about adverse
pharmacokinetic interactions with other
drugs used in the therapy of advanced
HIV disease. For example, preliminary
data from a fluconazole/rifabutin inter
active pharmacokinetic study suggests
that a potentially clinically significant
increase in rifabutin levels may occur
with this combination. Interactive stud
ies of rifabutin with dapsone and
itraconazole are also under way.
Rifabutin has been reported to decrease
AZT levels. Interactions between
rifabutin and anti-seizure medications
have not been studied to date.
There are two available macrolide
antibiotics with substantial activity
against MAC-clarithromycin and
azithromycin. These are also logical
candidates for MAC prophylaxis. Both
have well-defined toxicity profiles and
have been licensed by the FDA for other
indications. Studies of macrolide
monotherapy for the treatment of
AIDS-related disseminated MAC infec
tion have shown microbiologic and, in
the case of clarithromycin, some clinical
efficacy.
Both drugs are currently being evalu
ated for prophylactic efficacy in pre
venting MAC bacteremia in multicenter
trials. In the context of multiple drug
prophylaxis, there is also concern about
potential adverse drug interactions with
the macrolides. In a clarithromycin/
zidovudine interactive pharmacokinetic
study, for example, clarithromycin ad
ministered simultaneously with AZT
reduced AZT levels by nearly 30 per
cent. This specific interaction appears to
be minimized when smaller doses of
clarithromycin are used and when
clarithromycin and AZT dosing are
separated by four or more hours.
Clarithromycin and azithromycin
have substantial antibacterial activity
against most of the staphylococcal,
streptococcal and hemophilus species
that cause serious AIDS-related bacte
rial infections. Hence, either of these
macrolide agents might have a benefi
cial effect in terms of reducing serious
bacterial infections. Conversely, an in
crease in gram-negative infections, es
pecially the Pseudomonas species, might
occur.
Although a recently convened U.S.
Public Health Service Task Force on
MAC recommended MAC prophylaxis
for HIV-infected patients with a CD4
count of fewer than 100 cells, many HIV
clinicians are skeptical about the clinical
benefit of such an intervention in pa
tients with very advanced HIV disease,
especially in the context of using mul
tiple medications. Unlike PCP or CMV
disease, where lack of prophylaxis ex
poses the patient to immediately life or
sight-threatening disease requiring hos
pitalization and intravenous therapy,
newly diagnosed MAC disease is rarely
immediately life-threatening amd the
treatment, like the prophylaxis is an
outpatient regimen of oral medication.
The important questions regarding
MAC prophylaxis in the context of
multiple prophylaxis include: 1) deter
mining whether there is a net clinical
HIV Treatment Information Exchange
benefit in terms of survival or quality
of life of any prophylactic therapy over
a strategy of careful, periodic monitor
ing and early diagnosis and treatment
of disease; 2) determining which of the
three agents-rifabutin, clarithromycin
and azithromycin-and which doses are
most effective, best tolerated and in
volve the fewest adverse drug interac
tions; and 3) determining what impact
different regimens have on the inci
dence of serious bacterial infections,
with and without concomitant TMPSMX.
Disseminated Fungal Infection
It is estimated that approximately ten
percent of AIDS patients develop
invasive Cryptococcus neoformans infec
tion. Fewer than five percent develop
invasive Histoplasma capsulatum infec
tion outside of areas of endemic disease
in Missouri and Indiana. Some propor
tion, perhaps as high as five percent
based on some autopsy studies, may
develop invasive Aspergillus or
Mucorales infection. Disseminated
coccidiomycosis appears to be a com
mon AIDS-related OI only in the state
of Arizona. Although there have been
no data published to date from ran
domized controlled trials defining the
clinical benefit of systemic antifungal
prophylaxis to prevent life-threatening
disseminated fungal infections, many
clinicians prescribe oral azole therapy
empirically for all patients with ad
vanced HIV disease. In a recent survey
of 448 AIDS specialists, 31 percent pre
scribed fluconazole prophylaxis for
patients at risk for invasive cryptococcal
disease.
Based on its proven efficacy and ex
cellent tolerance in the acute and
chronic maintenance therapy of
cryptococcosis, fluconazole is an obvi
ous choice to consider for primary pro
phylaxis for disseminated fungal dis
eases. This agent also might be useful in
preventing histoplasma and Candida. In
one large uncontrolled trial, prophylac
tic fluconazole administered at a dose
of 100 mg/day to 329 patients was asso
ciated with a lower number of systemic
fungal infections than in 337 historical
control participants who did not get
prophylaxis. A fully accrued trial with
a sample size of 429 patients, ACTG
981, is examining the efficacy of flucon
azole prophylaxis of 200 mg/day in
preventing deep-seated fungal disease
in patients with CD4 counts of fewer
than 200. Results should be available by
early 1994.
A currently accruing trial of 720 pa
tients with the same primary endpoint
is comparing the 200 mg/day dose of
fluconazole to a single 400 mg weekly
dose. Several other trials are examining
the efficacy of lower doses of flucona
zole in the prevention of mucocutane
ous candidiasis. Rifampin appears to
reduce fluconazole levels and flucona
zole may increase plasma concentra
tions.
Itraconazole, like fluconazole, has
substantial in vitro activity against
cryptococcus, histoplasma and Candida.
In addition, this drug, unlike flucona
zole, is effective in vitro against As
pergillus. Some fluconazole-resistant or
unresponsive mucocutaneous Candida
infections have responded to
itraconazole, making it also a promising
prophylactic agent deserving evalua
tion. Although a placebo-controlled
trial of itraconazole prophylaxis to pre
vent disseminated histoplasmosis is
under way in the Midwest, there is no
experience with it to date for general
antifungal prophylaxis. Concern does
exist that there may be clinically signifi
cant drug interaction between
itraconazole and rifabutin. It has been
reported that both phenytoin and
rifampin lower plasma concentrations
of itraconazole.
Ketoconazole also has been used for
antifungal prophylaxis. However, this
agent is known to have an adverse drug
interaction profile with didanosine,
rifampin and birth control pills, and its
inhibitory effect on corticosteroid syn
thesis can precipitate acute adrenal in
sufficiency in patients with advanced
HIV disease. Therefore, ketoconazole is
not an optimal agent for antifungal
prophylaxis.
Arguments against universal system
antifungal prophylaxis include its high
cost and the risk of developing drug
resistant mucocutaneous candidiasis, as
observed with fluconazole. Also, like
MAC, cryptococcosis or
histoplasmosis—when diagnosed early
and when mild or moderate in sever
ity—is rarely immediately life-threaten
ing, and the treatment, like the prophy
laxis, can be an outpatient regimen of
oral fluconazole or itraconazole.
The key questions regarding antifun
gal prophylaxis include: 1) determining
whether there is a net clinical benefit in
terms of survival or quality of life of
any
specific prophylactic therapy over
..........................
strategy of careful periodic monitoring
and early diagnosis and treatment; 2)
determining which drug, fluconazole or
itraconazole, and which dose is more
effective, better tolerated, and involves
the fewest adverse drug interactions;
and 3) determining the impact of anti
fungal prophylaxis on development of
drug resistant unresponsive
candidiasis.
CMV End Organ Disease
The best estimates suggest that at
least 20 percent of patients with very
advanced HIV disease will develop
CMV end-organ disease, primarily
retinitis. Although there have been no
FDA-licensed oral agents available
with the potential to reduce the inci
dence of CMV OIs, two promising in
vestigational oral agents are in large
Phase III trials of CMV prophylaxis effi
cacy.
An oral form of ganciclovir, adminis
tered as one gram three times per day,
is being tested in two placebo-con
trolled multicenter trials with 780 and
850 patients respectively. Both trials are
limited to patients with positive CMV
IgG serology and fewer than 100 CD4
cells, with CMV end-organ disease as
the primary endpoint. Ganciclovir is a
potent inhibitor of CMV replication.
Phase I evaluation of the oral form of
this drug demonstrated that the peak
plasma levels achieved in patients with
advanced HIV disease are in the range
of concentrations that inhibit most clini
cal CMV isolates. The first of these tri
als is likely to have data available by
the end of 1994.
Although pharmacokinetic interac
tions between ganciclovir and other
medications used in this patient popu
lation are unlikely to occur (based on
studies with the intravenous formula
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tion), bioavailability of oral ganciclovir
might vary depending on other medica
tions. In addition, myelosuppressive
pharmacodynamic interactions may
occur with certain other drugs, for ex
ample, zidovudine, that have
myelosuppressive potential.
Valaciclovir (BW256U87) is a valine
ester of acyclovir that is rapidly and
completely metabolized to acyclovir
shortly after oral administration. The
bioavailability of acyclovir from
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valaciclovir administration in patients
with advanced HIV disease is approximately four times that of oral acyclovir.
Although acyclovir is a weak inhibitor
of CMV replication, high plasma con
centrations have been demonstrated to
reduce the incidence of CMV endorgan
disease in controlled trials involving at
risk patients undergoing bone marrow
or renal transplant. Such high plasma
levels are also achievable with
valaciclovir in two gm four times/day
doses. Valaciclovir is being tested in a
multicenter, multinational placebo-con
trolled trial of 1,200 patients. The trial,
ACTG 204, is limited to patients with
positive CMV IgG serology and fewer
than 100 CD4 cells, and has CMV end
organ disease as the primary endpoint.
Enrollment is expected to be completed
by early 1994.
Although pharmacokinetic interac
tions between valaciclovir or acyclovir
and other concomitant medications
used in this patient population are un
likely to occur, bioavailability of
valaciclovir might vary depending on
other medications. Additionally, pro
phylaxis with either oral ganciclovir or
valaciclovir is expected to provide effective prophylaxis for other opportunistic
human herpes virus infections.
If either oral ganciclovir or
valaciclovir is shown to be effective in
preventing CMV retinitis, then prescrib
ing CMV prophylaxis most likely will
become standard practice for patients
with fewer than 100 CD4 cells, just as
prescribing PCP prophylaxis is stan
dard practice for patients with fewer
than 200 CD4 cells. Unlike any other OI,
CMV retinitis entails the risk of perma
nent visual impairment, even with optimal treatment. The treatment for
retinitis requires daily lifelong intrave
nous therapy.
The important questions regarding
antiviral prophylaxis targeting CMV
end organ disease include: 1) determin
ing whether there is a net clinical ben
efit in terms of survival or quality of life
from any specific prophylactic therapy
over a strategy of careful, periodic
monitoring and early diagnosis and
treatment; and 2) determining which of
the two agents, oral ganciclovir or
valaciclovir, is more effective, better
tolerated, and involves the fewest ad
verse drug interactions.
New Resources
Management of
Mycobacterium Avium
Complex in Patients with HIV
Infection
Clinical Infectious Diseases, v. 18 supp
#3, April 1994.
This supplement of Clinical Infectious
Diseases includes the following articles:
Disease Due to the Mycobacterium avium
Complex in Patients with AIDS: Epide
miology and Clinical Syndrome; Pro
phylaxis of Mycobacterium avium Com
plex Bacteremia in Patients with AIDS;
Disease Due to the Mycobacterium avium
Complex in Patients Infected with Hu
man Immunodeficiency Virus: Diagno
sis and Susceptibility Testing; Assess
ment of New Therapies for Infection
Due to the Mycobacterium avium Com
plex: Appropriate Use of In Vitro and In
Vivo Testing; Treatment of Dissemi
nated Disease Due to the Mycobacterium
avium Complex in Patients with AIDS.
Improving the Management of
HIV Disease: an Advanced
Course in Antiretrovirals,
Prophylaxis, and the
Treatment of Opportunistic
Diseases
Conference Report
Includes abstracts, outlines and/or pa
pers of presentations made at the recent
symposium "Improving the Manage
ment of HIV Disease: an Advanced
Course in Antiretrovirals, Prophylaxis,
and the Treatment of Opportunistic
Disease," held Wednesday, March 30,
1994 in New York and sponsored
jointly by the International AIDS Society-USA and the University of Califor
nia School of Medicine. Contents: Virol
ogy of HIV Infection, Initiation of
Antiretroviral Therapy, Strategies for
Continuing Benefit, New Directions in
Antiretroviral Therapy, Current Strate
gies for Prophylaxis of Selected AIDSassociated Opportunistic Infections,
Diarrhea Associated with HIV Infec
tion, Treatments and Prophylaxis of
HIV Related Tuberculosis, Management
of Fungal Infections in Patients with
AIDS.
Available From HANOI
BLAXIN ( Company Indications and Usage
Sheet), Abbott Laboratories (527)
Cryptococcal Meningitis, by Michael Saag,
PAACNOTES,Jan.l993,p.34 (528)
Fluconazole Delays Fungal Infection
Treatment, MAID AIDS Agenda, Winter
1994, p. 4 (529)
Interactions of Prophylactic Drugs, by
Francesca Aweeka,, AIDSFILE, v.7 #4 Dec.
1993, p. 8 (530)
Intravitreal CMV Antisense Oligonucleotide
Enters Trials, Antiviral Agents Bull, v.6 #12
Dec. 1993, p. 356(531)
MAC Incidence Rising; May Be Top 01, by
Peter George, Positive Living, Feb. 1994 and
Mar. 1994 (532)
MAC is Not Your Friend, by Mark Bowers,
InfoPack, v.2 #2 Win 1994, p. 6 (533)
MEPRON Warning, by Sally Cooper, Notes
from the Underground, #23 Dec. 1993, p.
1(534)
Opportunistic Infections,Project Inform, #4
Feb 1994, p. 6 (535)
Oral Manifestations of HIV, by Laury
McKean, STEP Perspective, v.5 #3 Dec. 1993,
p. 11(536)
PCP Prevention: the Basics, by Mike Immel,
Wellspring, Mar7Apr., p. 13(537)
Preventing Opportunistic Infections, by
Richard Ehara, Wellspring, Jan?Feb. 1994,
p.3 (538)
Primary Therapy Prevents Initial Bout of
PCP, MAID AIDS Agenda, Winter 1994, p. 4
(539)
Routine Immunization for the HIV Infected
Adult, by Susan Buchbinder, AIDSFILE, v.7
#4 Dec. 1993, p. 5 (540)
Should Isoniazid (INH) Prophylaxis be
Given to Anergic Patients with HIV Disease,
by Gisela F. Schecter, AIDSFILE, v.7 #4 Dec.
1993,10 (541)
HIV Treatment Information Exchange
Task Force Offers Prevention and Treat
ment Recommendations for AIDS-Related
MAC, MAID AIDS Agenda, Winter 1994, p. 2
(542)
Treatment for Opportunistic Infections,
BETA, Mar. 1994, p. 40 (543)
ANTIRETROVIRAL
TREATMENTS
— Please Note —
No representation, warranty, or endorse
ment — expressed or implied — is made
as to the accuracy or completeness of this
information. This information is provided
as source material only and has not been
independently verified by HANOI or NHF.
NHFdoes not recommend particular treat
ments for individuals. NHF recommends
that you consult your physician or local
treatment center before pursuing any
course of treatment.
Molecular Scissors
by Ben Cheng
Project Inform, February 1994, p. 4
Protease inhibitors are an upcoming
class of antiretroviral drugs that are
now entering into large scale clinical
trials. Some initial results have shown
that these drugs have very few side ef
fects and also show activity against
HIV. There is a great deal of interest in
this class of compounds from both the
HIV community as well as from indus
try.
Nucleoside analogs like AZT, ddl,
ddC, and d4T inhibit the HIV enzyme
reverse transcriptase, which is at the
beginning of the viral assembly line,
after the virus has invaded a cell, but
before it takes complete control. Pro
tease inhibitors act at the intermediate
stage of viral assembly, after the virus
has incorporated into the cell and is
ready to begin mass production. These
viral proteins are like parts of a model
airplane that must be cut from a plastic
frame. Protease is like a chemical scis
sors that snips the parts from the frame,
and other enzymes 'glue' the parts to
gether.
Like reverse transcriptase, protease is
an enzyme required by the virus to re
produce. Enzymes are needed at each
step of the assembly-line process to
build viral particles. Protease is re
quired for the newly-assembled virus
particles to be infectious. Virus as
sembled without protease is defective
and cannot infect other immune system
cells. Protease inhibitors target the virus
when, or shortly after, a newly-as
sembled virion buds out of a cell. In
test tube experiments when protease
was inhibited, HIV viral replication
was completely blocked.
Early on, the development of pro
tease inhibitors was complicated by a
number of factors:
• The compounds were potent
inhibitors of protease in test
tubes, yet had poor antiviral
activity in other experiments.
• The compounds did not ab
sorb well into the system
when taken orally and what
was absorbed cleared the sys
tem very rapidly. This re
sulted in the necessity for
intravenous administration of
very large quantities of drug
in order to achieve any mea
surable antiviral activity.
• Animal studies of these com
pounds demonstrated many
harmful side effects.
• Thecompoundsare very d i fficult to manufacture.
Some of these obstacles have been
overcome and newer, more potent, oral
drugs are now moving into clinical tri
als.
Several protease inhibitors are in
clinical trials, including Hoffman-La
Roche's Ro 31-8959, which was the first
of this class of drugs to be tried in hu
mans. The Phase I safety studies were
done in England, France and Italy. This
is one of the original series of com
pounds which, while very potent
against HIV, is not absorbed well when
taken orally, though a little better when
taken with food. Additionally, this com
pound is extremely difficult to manu
facture. Results from the European
studies show that the drug was well
tolerated with very few side effects and
the high dose (600 mg three times a
day) showed some antiviral activity.
Study participants saw slight in
creases in CD4+ cell counts, a drop in
viral load and a decrease in p24 anti
gen. Better antiviral activity was ob
served when this drug was combined
with AZT. Currently Ro-318959 is in
Phase II studies (ACTG 229) in the US
with larger Phase III studies planned
for the beginning of 1994.
Abbott Laboratories, another com
pany involved in protease research,
found that their first compound A77003, had good antiviral activity in
animals but suffered from very poor
oral absorption and had to be continu
ously dosed intravenously in humans.
Abbott tried again with A-80987, but
the drug was found to cause serious
side effects to the liver. Both A-77003
and A-80987 have been withdrawn
from development despite some evi
dence of modest antiviral activity.
Abbott has another protease inhibitor,
A-84538, which in test tubes is about
nine fold more potent against HIV than
A-80987. This compound can be admin
istered orally and is expected to go into
Phase I safety studies in Amsterdam by
the first quarter of 1994.
Merck, another company involved in
this research, has an oral protease in
hibitor L-735,524 that is now in Phase
11 clinical studies at Bellevue Hospital
in New York, SUNY Stonybrook, Pacific
Oaks Medical Group in Los Angeles,
University of Pennsylvania and the
University of Pittsburgh. Initial data
from Phase I studies have shown that
this drug is well tolerated and has anti
viral activity. The maximum tolerated
dose found from the Phase I studies
was 400 mg four times a day. Some en
couraging news regarding L-735,524 is
that thus far the virus does not appear
to develop resistance to the drug, po
tentially allowing for longterm antiviral
benefit. Additionally, the antiviral ac
tivity of L-735,524 appears to be en
hanced when combined with AZT or
DDL
One other oral protease inhibitor is in
Phase I dose escalating safety studies in
Berlin, Germany. Searle's SC-52151, in
test tube studies, shows potent antiviral
activity as well as good oral absorption.
It is hoped that after the Phase I studies
in Europe, SC-52151 will be studied in
the US.
The rapid emergence of viral resis
tance to approved antivirals, AZT, ddl
and ddC, has limited their longterm
usefulness in the treatment of HIV.
Emerging results suggest that HIV re
sistance to AZT is a marker for more
rapid progression of disease. The devel
opment of resistance to AZT is related
to: stage of disease; positive count for
p24 antigen; high viral load, but not to
the length of time on AZT therapy. It is
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hoped the development of resistance
will be much slower and at a lower
level for protease inhibitors. However,
low level resistance has already been
found in some protease inhibitors
Combining a protease inhibitor with a
drug like AZT or ddl may delay the
onset of resistance to both drugs.;. In ad
dition, additive and synergistic antiHIV activity was seen in test tubes
when a protease inhibitor was com
bined with AZT, ddl, ddC, or alpha in
terferon. It is also hoped that the pro
tease inhibitors will still have sufficient
antiviral activity against HIV strains
which have already developed resis
tance to the nucleoside analogs.
Protease inhibitors are likely to
emerge as the next class of drugs for the
treatment of HIV. Initial results from
the current generation of protease in
hibitors give reason for cautious opti
mism. Future generations of these
drugs will hopefully be more potent
against HIV and companies will over
come manufacturing obstacles. It is still
unclear whether there will be any drug
interactions with standardly used
antivirals or commonly prescribed
drugs for the prevention and treatment
of opportunistic infections. Since most
protease inhibitors are metabolized in
the liver, chances are there will be some
possible interactions with other com
mon HIV/AIDS therapies that are also
metabolized in the liver including;
clarithromycin, TMP/SMX Bactrim or
Septra), rifabutin, rifampin and flucona
zole. Further studies will be needed to
better understand ow these drugs
should be used as therapies for HIV.
HIV Drug Resistance,
Convergent Combination
Therapy and the NNRTIs
by Rick Loftus
InfoPack (at head of title: Community
Prescription Service) v.2 #2 Winter
1994, p. 1
For people with HIV, the development
of drug resistance may have negative
health effects. So far, resistance has
been identified as an important prob
lem only in people taking AZT, but in
fact the virus has developed resistance
against most of the drugs tested against
it in the lab. This suggests that the
problem could occur with other agents,
raising a major hurdle in the develop
ment of more effective anti-HIV drugs.
Scientists have only begun to examine
how drug resistance affects the course
of HIV disease, but meanwhile new
antivirals and new ways of using or
combining them are being investigated
in hopes of finding strategies to curtail
the problem.
Resistance occurs when HIV mutates
at one or more points in its genetic
code, decreasing the virus's susceptibil
ity to drugs used against it. In the case
of AZT, the most important resistance
mutation is believed to take place at
"codon," or location 215, of reverse
transcriptase, a crucial enzyme needed
by HIV to reproduce as well as the "tar
get" of AZT. In the test tube, 16 times
the amount of AZT that kills unmutated
virus is required to kill virus with this
mutation, a dose so high as to be toxic
in humans.
Currently it is not known why certain
strains of virus become resistant, but
the length of therapy and the stage of
disease a person is at when treatment is
initiated both seem to be significant fac
tors. Clinical trials suggest that resis
tance can emerge more rapidly—in as
few as six months—in people who start
AZT later, at T-cell levels below 500.
For people who start AZT at levels
above 500, resistance may take as long
as three years to appear, although the
average time seems to be between six
and 18 months. For example, a recent
study of 40 people who had taken AZT
for two to four years found that 17 car
ried the 215 mutation. Patients who
had taken higher doses ( 1,200 or 1,500
mg a day) of the drug before the lower
doses came into general use, in 1989,
were more likely to have resistance;
however, these 17 had also been using
the drug an average of seven months
longer than the group without resis
tance.
How resistance mutations affect the
health of people with HIV is only dimly
understood, but several studies have
found a strong association between the
appearance of the 215 mutation and
accelerated declines in T-Cell levels.
The same study found that people
whose blood cells harbored viral genes
with the 215 mutation experienced over
the study's two years, an average 50
percent decline in T cells, while those
with "wild-type," or unmutated, virus
saw an 11 percent increase.
(Editor’s Note: The article continues
with discussion of convergent combina-
tion therapy and non-nucleoside re
verse transcriptase inhibitor com
pounds. The National Hemophilia
Foundation will take part in a future
study, ACTG 261, that will test
Delavirdine (U90152), alone and in
combination with AZT, The section of
the article on Delavirdine is included
here.]
Delavirdine
Upjohn, which claims to currently
spend one quarter of its research bud
get on AIDS treatments, has proclaimed
delavirdine ( also known as U-90,152,
or U-90) its lead NNRTI (non-nucleoside reverse transcriptase inhibitor]
compound. A member of the BHAP
class, delavirdine appears in the test
tube to be 50 to 100 times more potent
than atevirdine, its parent, or first-dis
covered compound. Delavirdine has
blocked replication of 25 different HIV1 strains, including some resistant to
AZT and ddl. In laboratory cell culture,
delavirdine has shown low toxicity and
proved superior to AZT in inhibiting
the spread of HIV-1; when combined
with AZT, HIV replication was com
pletely prevented.
Delavirdine appears not to be cross
resistant with other NNRTIs—in other
words, the major mutations (103, 181 or
188) that confer resistance to nevirapine
and L-661 do not appear to reduce the
effectiveness of this drug. Scientists at
the NIH and at Upjohn theorize that if
adequate drug levels in the blood can
be achieved, this compound should be
able to inhibit virus resistant to the
other NNRTIs. An even more intriguing
finding is that both delavirdine and
atevirdine can induce a novel mutation
at 236. This makes mutant strains 7 to
10 times more sensitive to other
NNRTIs. So far, the major side effect
seen with delavirdine has been a rash,
which develops in 20% to 25% of pa
tients. As with nevirapine, this side
effect can be reduced by starting pa
tients at lower doses of the drug and
escalating to full dose.
[article is excerpted - please contact
HANDI to receive complete text]
New Resources
Protease Inhibitors: Overview and
Analysis
CMHC Treatment Issues, v.8 #2, March
1994 provides an overview of this impor-
HIV Treatment Information Exchange
tant class of anti-virals and an analysis of
each company’s protease compounds.
Compounds covered include Hoffman-La
Roche's Ro 31-8959, saquinvir; Merck’s L735,524; Abbott’s A-84538; Searle’s SC52151.
[please contact HANOI to receive a copy
of the full issue]
Available From HANOI
Amphobearables, Notes from the Under
ground, #23 Dec. 93, p. 3 (544)
AZT May Reduce the Risk of Maternal
Transmission of HIV, by Rae Trewartha,
AIDS Treatment News, #194, Mar. 4,1994, p.
5(545)
AZT Resistance, Syncytia, and Disease
Progression, Common Factor, #7 Feb. 1994,
p. 18 (546)
New Antivirals Available in Boston Clinical
Trials, by Mike Immel, Wellspring, Mar./Apr.
1994, p. 3 (554)
Protease Inhibitor Efficacy Study Begins, by
Derek Link, Treatment Issues (GMHC), v.7
#3, p. 11 (555)
Protease, Tat, and Rev, Common Factor, #7
Feb. 94, p. 15 (556)
San Francisco: Phase I Trial of Bucast
(Castanospermine Analog) Recruiting, by
John S. James, AIDS Treatment News, #193,
February 18,1994, p.4 (557)
Stavudine (d4T) Clinical Trials, Antiviral
Agents Bull, v.6 #12 Dec. 93, p. 358 (558)
AZT Update, National Hemophilia Founda
tion of Australia, #82 Feb. 1994, Insert (547)
Thymosin Alpha 1: Sustained T-Helper
Count Rise in Three Drug Combination,
AIDS Treatment News, #194, Mar. 4,1994, p.
7 (559)
FDA Advisory Committee Reviews ddC,
Project Inform, #4 Feb. 1994, p. 4 (548)
Treatment for HIV Infection, BETA, Mar. 94,
p.38 (560)
ISIS 5320: New Combinatorial Approach to
Drug Development, by John S. James, AIDS
Treatment News, #194, Mar. 4,1994, p. 8
(549)
LTR Inhibitors, a New Kind of Potential
AIDS Treatment: Interview with Arthur B.
Pardee, Ph.D., by Charles Davidson, and
John S. James, AIDS Treatment News, #192,
Feb. 4,1994, p. 1 (550)
Major Antiviral Conference Surveys AIDS
Research, by Dave Gilden, AIDS Treatment
News, #190, Jan. 7,1994, p. 3 (551)
Medical Update • November 22,1993, by
Mark Katz, Being Alive, Jan. 94, p. 3,15 (552)
Merck Protease Inhibitor Viral Resistance
Suspected, Large Trials on Hold, by John S.
James, AIDS Treatment News, #194, Mar. 4,
1994, p. 1 (553)
IMMUNOTHERAPEUTICS
— Please Note —
No representation, warranty, or endorse
ment — expressed or implied — is made
as to the accuracy or completeness of this
information. This information is provided
as source material only and has not been
independently verified by HANOI or NHF.
NHFdoes not recommend particular treat
ments for individuals. NHF recommends
that you consult your physician or local
treatment center before pursuing any
course of treatment.
Immune Restoration Research
Finds New Energy
by Mark Mascolini
PAACNOTES, December 1993, p. 499
Reconstituting an immune response
that is weakened and ultimately rav
aged by HIV will remain a formidable
clinical challenge even if more potent
antiretroviral agents are found. So fash
ioning the tools that can rebuild fragile
immune systems is fast becoming a top
research priority. Results of early trials.
some still unpublished, already suggest
that this sharpened focus may be pay
ing off.
Anthony S. Fauci, MD, Director of the
National Institute of Allergy and Infec
tious Diseases (NIAID), explained this
revitalized search for immune strategies
in a recent interview with
PAACNOTES. Currently available
antiretrovirals block HIV replication at
least briefly, he says, and immunologi
cal reconstitution might be able to pro
ceed during that period and ultimately
allow the normal immune response to
assist or complement the blocking of
virus replication."
At year's end, signs were rife of this
push to refine immune-boosting regi
mens:
• In Baltimore early in Novem
ber, Fauci joined 30 other clini
cal investigators actively pursu
ing immune restoration strate
gies at a three-day think tank
sponsored by Project Inform,
the San Francisco advocacy
group.
• An article that Fauci wrote for
the November 12 issue of Sci
ence underscored the urgency
of making immunebased thera
pies a standard part of the anti
HIV protocol.
• At the NlAID's Division of
AIDS Clinical Science Section,
Jonathan Kagan, PhD, another
think tank attendee, planned
several meetings on stem cell
transplantation and cell-expan
sion therapies.
• In December, at the First Na
tional Conference on Human
Retroviruses and Related Infec
tions in Washington, DC, a
French team reported promis
ing results with a novel passive
immunotherapy protocol.
Salk Enlists Australian Collaborator
We need multiple strategies at differ
ent phases and stages of infection," in
sisted vaccine maven Jonas Salk, MD, at
the Baltimore meeting. His Salk immu
nogen, a whole killed virus intended to
stimulate cell mediated immunity after
a person becomes infected, inspired
headlines but only sparse peer support
at the June 1993 international Confer-
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HIV Treatment Information Exchange
ence on AIDS in Berlin. At a press conference in Baltimore, Salk said that the
latest data from his study cohort reinforce his confidence in bolstering cellular immunity, but he declined to reveal
any of those results outside the think
tank's closed sessions.
Salk made at least one convert to his
cause during the meeting: John M.
Dwyer, MD, PhD, professor of medicine and head of the School of Medicine
at the University of New South Wales
in Sydney. Dwyer is harvesting T cells
early in the course of HIV infection,
then expanding and freezing them to be
reinfused later, when the donor's im
mune system falters.
Honing T-cell Harvesting Strategies
Dwyer is one of several investigators
testing the effectiveness of harvesting
and cryopreserving immune system
cells. His team has already collected T
lymphocytes from 50 HIV-positive
people. After expanding and freezing
the cells, Dwyer explains, "we want to
put (the] cells back that we may have
harvested five years earlier and see if
/ / they'll turn the clock back and rejuveUi:
nate the immune system with the ca•S
pacity that it had all those years ago."
x:::i The obstacles to an effective harvestand-reinfusion tactic are legion, re
searchers concur. First, the target cells
have to be harvested early enough so
that they are still relatively healthy.
"Probably the earlier that we can get
cells from people who are infected to
put away for a rainy day, the better,"
says Dwyer. A second considerable
25; hurdle is culturing the cells so that they
not only expand but also retain their
original immunostimulatory potency.
When to thaw and begin doling back
the expanded cells is not clear. "It's a bit
like planning a marathon race," sug< gests Dwyer. "How often along the
road do you want to put the water
stops? When is the immune system get
ting tired and needing a bit of help?"
The thorniest question for cell harvest
ers may be ethical: Who will be the best
candidates for what would surely be an
expensive therapy, and how much of a
say will they have in deciding when
and how their own cells are used?
Several teams in the United States are
launching their own cell expansion
studies, but with strategies very differ
ent from Dwyer's. Judy Lieberman,
qZ
MD, PhD, of Tufts University in Boston,
1
1
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a
is collecting blood cells from 16 HIV
positive people with CD4+ T-cell
counts between 100/mm3 and 400/mm 3
and no AlDS-defining opportunistic
infections. Her goal is to stimulate the
harvested cells to increase only those
cytotoxic T lymphocytes (CTLs) that
specifically recognize and kill HIV-in
fected cells.
"I found that the T cells of patients
infected with HIV recognize a small
number of peptides that are encoded by
the virus," she told PAACNOTES. "We
can use those little pieces of the virus to
identify and selectively expand theT
cells—predominantly CD8+ cells—that
recognize those parts of the virus."
In a phase I/II trial, Lieberman has so
far given 1 billion expanded cells in
single infusions to six patients and 5
billion cells in single infusions to three
others, with no signs of toxicity. Early
data charting reductions in viral burden
and increases in CD4-r counts have
been encouraging. "In some patients
there was a sustained decrease in viral
titer by at least 1 log that was sustained
for up to six months," says Lieberman.
"In other patients we had significant
increases in CD4+ counts which were
also sustained." If the results hold up
when they are tallied and analyzed in
the next few months, Lieberman hopes
to pursue the study in more patients. A
larger study, she notes, will probably
require a less labor-intensive technique
that is as safe as her current method.
At Johns Hopkins University in Balti
more, Charles Flexner, MD, has a simi
lar protocol on the drawing board. "Up
to this point," he told PAACNOTES,
"cell therapies primarily involved tak
ing CTLs of any sort and
nonspecifically expanding them. In
other words, they're expanding not
only HIV-specific CTLs, but CTLs that
will recognize all sorts of other infec
tions." Like Lieberman, Flexner plans to
pinpoint those cells that will home in
on HIV-infected targets before multi
plying them. "If you're going to have
some immunologic effect on the virus,"
Flexner argues, "it may make more
sense to stimulate only those CTLs
whose job it is to search out and find
HIV-infected cells."
These investigators are not alone in
their optimism about cell therapies for
HIV infection. Several researchers at
Project Inform's Baltimore conference
believe these early studies are only the
vanguard of a sustained assault. "1
think this is the year coming up when
many new cell therapy trials will be
started," predicts Thomas C. Merigan,
Jr, MD, Director of the Center for AIDS
Research at Stanford University.
Passive Immunotherapy with Anti
body-rich Plasma
French investigators from Paris and
Villejuif have had some success with
another approach to immune restora
tion: transfusing antibody-rich plasma
from recently infected HIV-positive do
nors into patients with CDC class IV
disease. In this phase II study, a control
group of patients received plasma lack
ing the antibody. The apparent ability
of the antibody-laden plasma to ward
off AIDS-defining events encouraged
an independent review panel to halt the
randomized trial. At the First National
Conference on Human Retroviruses
and Related Infections, Jeans-Jacques
Lefrere, MD, and Daniel Vittecoq, MD,
said they believe the therapy may in
duce "a partial restoration of the im
mune system."
Plasma donors had CD4-t- T-cell
counts above 400/mm3, a high concen
tration of anti-p24 antibody, and no
symptoms of HIV infection. After the
plasma was heated to 56C°, 300-mL
transfusions were given to 42 subjects
every 14 days for one year. The 40 con
trol subjects received antibody-negative
plasma. All subjects were also receiv
ing zidovudine (ZDV) and "conven
tional prophylactic treatments."
When the review panel stopped the
trial, the treatment group had signifi
cantly fewer cumulative AIDS-defining
events than the control group. The time
to the onset of the first such event was
significantly longer in the treated pa
tients. Because of the small size of the
study group, the difference in survival
(seven deaths in the treatment group
and 11 among the controls) was not sig
nificant. CD4+ T-cell counts did not
differ between the two groups.
Robert T. Schooley, MD, of the Uni
versity of Colorado, Chair of the
conference's scientific committee ob
served that the most frequent infection
in the study group was Toxoplasma en
cephalitis. "That may not be the case in
other settings," Schooley said, "and
certainly, if one were using other pro
phylaxes, there may be other ways be
sides passive immunotherapy to pre
HIV Treatment Information Exchange
vent these events." Even so, Schooley
rated the French results "a very impor
tant insight into the potential role of
humoral immunity in late-stage dis
ease... a lesson we shouldn't pass up."
X
of IL-2.
IL-6."
At Stanford University, Merigan and
Another salient similarity in the work
his colleagues have already published a
of these two groups is that ZDV be
phase I/II open-label study of IL-2
comes, in effect, adjunctive therapy.
given with ZDV to 19 HIV-positive
Fauci looks forward to the day when
people. The Stanford study differed in
Immune Boosts Logged in Early IL-2
more effective antiretrovirals can team
several ways from the NIAID trial.
Studies
up with immune therapies to promote
First, IL-2 was given by intermittent
Two luminaries at the Project Inform
"complete shutting off of virus at the
peripheral venous infusion rather than
think tank, Fauci and Merigan, are also
same time that you're enhancing the
by continuous central venous infusion,
</)
leading advocates of immune therapy
immune response." In the meantime,
a modification the Stanford group
with interleukin 2 (IL-2). Fauci's group
he says, "I don't see the lack of 'perfect'
hopes will pave the way to a more prac antiretroviral agents as something that's
at NlAID's Laboratory of
Immunoregulation produced encourag tical long-term dosing regimen. Sec
going to be absolutely inhibitory to de
ond, the IL-2 was bound to polyethyl
ing but still unpublished results with
veloping immune-based therapies,
ene glycol (PEG), which increases its
five-day infusions of this cytokine to
though it would be nice to have a com
half-life approximately tenfold.
bination of both."
patients receiving ZDV. Fauci's col
Third, the doses of IL-2 were gener
laborators Joseph Kovacs, MD, and H.
Something Old, Something New:
ally
lower than in the NIAID study. Fi
Clifford Lane, MD, demonstrated sig
Thymus and Marrow Transplants
nally, seven of the subjects had CD4+
nificant increases in CD4+ T-cell counts
Two other immune-boost therapies
counts
below
200/mm
3
.
in seven of 10 patients whose initial
near the top of most priority lists are
The Stanford investigators gave sub
counts were at least 200/mm3, and
thymus transplants and xenogeneic
jects
three weekly infusions of IL-2 (3
"three or four of the .10 had really dra
bone marrow transplants. Fauci pon
million units escalated to a final dose of
matic increases," Fauci told
dered the merits of both approaches in
10 million units) followed by three
PAACNOTES. The continuous infu
an interview with PAACNOTES. "I am
weeks of ZDV alone in the first phase
sions began at 18 million units daily but
not certain whether thymic epithelial
of their study. In the second phase, they
had to be reduced, sometimes to as few
cell or thymic microenvironment trans
gave infusions to patients with CD4+
as 6 million units, because most pa
plants will be a feasible way to go with
counts below 200/mm3 every 14 days
tients could not tolerate the higher
HIV," he said. "But I called for reopen
over eight to 16 weeks. The doses of
dose.
ing that book and rethinking the possi
PEC-bound IL-2 in this phase were set
A key element of the study design
bility of doing research, given the ad
at
10 million units for the eight infusions
was a seven-week rest after the five-day
vances we have made in understanding
to those with counts above 200/mm3.
infusion. Fauci's team improvised the
the immune system."
Those with lower counts got four infu
strategy when they found that T cells
The thymus transplant book was first
sions of 10 million units and four of 3
became refractory to expansion if sub
opened
in 1986 by Dwyer, who trans
million units.
jected to continuous infusions. The rea
planted thymic epithelial fragments
In the first phase of the study, CD4+son, he suspects, is that "continuous
into 15 patients with advanced AIDS.
counts
increased significantly, as did
stimulation does not allow the IL-2 re
"The school in the body where the im
natural killer cell activity and HIV-spe
ceptors to reexpress themselves." The
mune system gets educated is the thy
cific cytotoxicity. In the second phase,
seven-week rest may allow T cells to
mus gland," he explained at the Balti
CD4+ counts rose by 16 percent in the
spawn a new generation of IL-2 recep
more meeting. HIV destroys both T
eightweek study group and 33 percent
ft
tors, Fauci explained, "and then the/re
cells and thymus tissue, so a healthy
in the 16 week group, but the doses
ready for the next barrage of IL-2."
immune system cannot be generated
3
needed to bring about these gains were
The NIAID team is now recruiting an
without outside intervention, even if
close to the maximum levels the pa
additional 50 patients, some of whom
the virus stopped dead in its tracks.
tients could tolerate.
will have CD4+ T-cell counts below
Although transplanted thymic frag
Besides regulating normal immune
200/mm3. This trial will compare IL-2
ments survived for months and ap
function, cytokines such as IL-2 can also
plus antiretroviral therapy with
peared to repopulate the circulating Tinduce
replication of HIV-I. As a result,
antiretroviral therapy alone. "It's diffi
cell pool in some patients in the 1986
any cytokine therapy may become a
cult to prove a clinical benefit in a pa
study, the transplants were not effective
double-edged sword. However, in both
tient who is reasonably well," Fauci
enough on their own to merit further
■D
the NIAID and Stanford studies, IL-2
notes, "because most of the time those
study. "While technically the trans
did
not
spur
increased
production
of
S’
patients do well clinically anyway. The
plants worked, any cells that were gen
ora
the
virus.
Fauci
surmises
that
IL-2
is
real proof of the pudding is when you
erated were soon killed by the virus,"
not as potent an inducer of viral expres
take someone who has a low number of
Dwyer said. 'This was before the days
sion as some other cytokines. "Any
T4 cells and who has something like a
of
AZT and other antiretrovirals and
thing that activates a cell that's infected
progressing Kaposi's sarcoma or a re
before we knew as much as we do now
has the potential of increasing virus
fractory infection." Boosting T-cell lev
"0
about the chemicals that support these
replication,"
he told PAACNOTES.
els in those patients at the same time
rE
cells in the body." One imposing hurdle
CTQ
"But there are a number of other
O
that they improve clinically would
that remains, according to Dwyer, is
cytokines
that appear to be much more
ro
strengthen the rationale for wider study
tricking the transplanted thymus tissue
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potent in doing that, such as TNFa and
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HIV Treatment Information Exchange
into working smoothly as part of another person's immune svstem.
Fauci and others at the Baltimore
think tank cited xenogeneic (cross-species) bone marrow transplants as a
promising avenue down which investi
gators are just beginning to venture.
Fauci's own laboratory showed that
syngeneic marrow transplants from
uninfected twins to their infected sib
lings are safe. But even if the immuno
logic benefits of such transplants prove
to be more than fleeting, syngeneic
transplants are an option for only the
tiny minority of patients lucky enough
to have identical twins. Transplants
from other species, if they worked,
would go a long way toward solving
the supply problem.
'There's a lot of exciting work, at
least in animal models, on xenogeneic
bone marrow transplants," says Fauci.
"If that work moves along nicely, hope
fully [xenogeneic transplants] could be
applied in HIV-infected individuals."
One researcher intrigued by that pos
sibility is David H. Sachs, MD, director
of the Transplantation Biology Research
Center at Massachusetts General Hospi
tal in Boston. He and his coworkers
have been studying xenogeneic trans
plants as a way to overcome the scar
city of transplantable human organs.
Because a transplant patient's immune
system is more likely to reject an organ
from another species than it is to reject a
human organ, they are working hard to
promote tolerance across a xenogeneic
barrier.
"One of the things we've learned,"
Sachs told PAACNOTES, "is that it is
very helpful to get bone marrow cells
across that xenogeneic barrier to per
sist" because they can help induce toler
ance. The scenario that excites both
Sachs and Fauci is that marrow cells
transplanted to HIV patients from an
other species might confer that immune
potential while resisting HIV infection
themselves. In other words, explains
Sachs, such transplants might "im
prove the immune system of the recipi
ent by taking advantage of the (healthy]
immune system of that xenogeneic do
nor." Sachs and his colleague Megan
Sykes, MD, have agreed to pursue this
route in further discussions with Fauci
and are drawing up a proposal for a
formal study.
Who Will Pay the Immune Therapy
Bill
How well these immune restoration
researchers will compete for their share
of funding dollars is an unanswered
question. But, so far, many worthy
projects have not gone begging. Dr.
Lieberman, for example, found money
for her work through the NIAID's Di
vision of AIDS Treatment Research Ini
tiative, and Fauci has been able to
sweep enough intramural funding into
his laboratory to keep his work on a fast
track. AIDS Clinical Trials Group
money supported Merigan's IL-2 study.
Martin Delaney, director of Project
Inform, is optimistic that the funding
faucet will stay open for immune
therapy research. "There's a new pro
gram at NIH that was created with
some of this (research] in mind," he
said during the Baltimore meeting.
"Special Programs for Innovative Re
search on AIDS Treatment StrategiesSPlRATS-is a fund that's been created
to deal with ventures that don't have
an immediate product payoff."
Delaney is quick to add that immune
restoration will not have an immediate
clinical payoff either. "A lot of these
protocols initially will not save pa
tients," he says, "but we will learn
something from them that may make it
possible to save the next patient."
Available From HANOI
Getting the Right Message, AIDS Treatment
Data Network, FebTMar. 1994, p. 1 (561)
IL-12 Potential Treatment Restores in
Laboratory Test, by John S. James, AIDS
Treatment News, #189 December 17,1993, p.
3 (562)
Immune Modulation Therapy Interleukin-2
and Interleukin-12, by Ronald A.Baker,
BETA, Mar. 1994, p. 12 (563)
The Immune System—an Overview, by Paul
A. Linnemeyer, STEP Perspective, v.5 #3 Nov.
1993, p. 8 (564)
Multifactorial Nature of HIV Disease:
Implications for Therapy, by Walt Senterfitt,
Being Alive, Jan. 1994, p. 4 (565)
COMPLEMENTARY
THERAPY
— Please Note —
No representation, warranty, or endorse
ment — expressed or implied — is made
as to the accuracy or completeness of this
information. This information is provided
as source material only and has not been
independently verified by HANDI or NHF.
NHFdoes not recommend particular treat
ments for individuals. NHF recommends
that you consult your physician or local
treatment center before pursuing any
course of treatment.
Using Chinese Herbs and
Acupuncture
by Jin-Lin Wang, LAC, MD (China)
Being Alive, January 1994, p.6
At the Oriental Medical Center, we be
gan treating people with HIV/AIDS in
1986. Our approach was to use a treat
ment combination of Chinese herbs,
specifically formulated for their antivi
ral and immune enhancing effects, and
acupuncture. Since we began this pro
gram, we have kept records on 201 pa
tients who were continuously treated
for from six months to over five years.
The Study Groups
For the purposes of evaluation, we
divided our 201 patients into two
groups. The first group (Group A) used
only acupuncture and Chinese herbs.
The second group (Group B) added
Western medicine to their treatment
regimen.
The first group included 103 adults
(101 men and 2 women). At the begin
ning of their treatment program, 11
had CD4 counts of less than 200, 63
were in the 200-500 range, and 29 had
CD4 over 500.
The second group consisted of 98
adults (95 men and 3 women). In this
group, 57 had initial CD4 less than 200,
32 were in the 200-500 range, and only
9 had CD4 greater than 500. As you can
see, the average initial CD4 for Group A
was a good deal higher than for Group
B.
The Treatment Program
Treatment included both acupunc
ture and Chinese herbs. Acupuncture
was administered once or twice a week.
For those who understand such things,
the basic points were: LI-4, ST-36, RE-6,
EarSpleen. Additional points were used
as individually indicated.
The Chinese herbs consisted of two
HIV Treatment Information Exchange
basic formulas. An immune enhancer
was taken twice daily (three capsules
each time), and an antiviral three times
daily (also three capsules each time).
Additional herbs were prescribed as
specific cases indicated.
Standards of Evaluation
Only twelve years have passed since
the first cases of AIDS were diagnosed
in 1981. We do not yet completely un
derstand the natural progression of this
disease. Some research indicates that
50% of HIV+ people will progress to
AIDS within five years. Other research
reports that 35% of HIV+ people can
survive more than 10 years with normal
CD4 counts. Thus, we believe that to
evaluate the effects of a treatment, both
its short term effects and long term sur
vival must be observed.
To evaluate the short term effects of
treatment, the CD4 count is used. The
CD4 count is the standard used by the
FDA to evaluate the effects of antiviral
drugs. The CD4 count is also generally
accepted internationally as an indicator
of the condition of the human immune
system. There is some disagreement
about this; however, because of its gen
eral acceptance, we use the CD4 count
as a surrogate marker.
The CD4 count fluctuates daily. We
apply a classification to minimize con
fusion caused by fluctuations. We clas
sify someone as Improved if CD4 count
is up 50 points or more from the origi
nal level. Someone is Stable if CD4
count is plus or minus 1 to 49 points
from their initial count. Finally, we call
someone Decreased if CD4 drops 50
points or more from the original level.
To determine the long range value of
the treatment program, we look at the
three year survival rate, as well as the
rate of progression to AIDS among the
study subjects.
Results for Group A
Sixty-eight people (or 66% of the
group) improved during the treatment
program (according to the criterion
noted above). At the start of the pro
gram, average CD4 count for the Im
proved was 435; at the end of the evalu
ation period, average CD4 stood at 616.
Twenty-five people in Group A were
Stable, while only 10 (or 9.7% ofthe
group) were classified as Decreased.
In Group A, 23 patients were ob
served for from two to five and a half
years. None of these patients either pro-
gressed to AIDS or died.
Two cases from this group are good
examples. One man began treatment in
June of 1988 with an initial CD4 count
of 317. He was treated continuously for
four and a half years. During this time,
his CD4 count rose to 661, and he re
mained free of symptoms. Another
man began treatment in January of 1987
and started with a CD4 level of 300.
Results were even more dramatic. After
four and a half years of continuous
treatment, his CD4 count increased to
710 and he stayed asymptomatic.
Results for Group B
Group B, which combined Chinese
and Western treatments, began the
treatment program with an average
CD4 count lower than Group A. Results
for this group were somewhat less suc
cessful. Only 29 people or 30% of the
cases could be classified as Improved.
However, 44 or some 45% remained
Stable. Twenty-five patients in Group B
decreased.
Thirteen cases in Group B were ob
served during continuous treatment of
from two to four and a half years, of
this subgroup, four of the thirteen died.
Using only Chinese Herbs and Acu
puncture
We find that it is very difficult to get
the CD4 count to return to normal
range once it has dropped below 200.
The best indication for sole use of tradi
tional Chinese medicine is when the
CD4 count is still above 300.
The Concorde study reports that AZT
is not as beneficial for early HIV infec
tion as previously believed. Our pur
pose with acupuncture and Chinese
herbs is to slow or stop the average an
nual loss of T-cells and to keep the
patient's immune system intact until a
cure is discovered.
Some research indicates that the CD4
count will drop 70-80 points annually.
Our results indicate that 66% of the 103
patients treated solely with traditional
Chinese medicine showed a CD4 in
crease instead of a decrease. Twenty of
the 103 patients whose CD4 counts
were in the abnormal/low range in
creased into the normal range.
Combining Chinese and Western
Treatments
Research demonstrates that tradi
tional Chinese medicine may
strengthen immune function and inhibit
the HIV virus. Our clinical practice and
results support these findings. Acu
puncture and Chinese herbs have the
additional advantages of cost effective
ness and general lack of side effects.
However, it is our opinion that tradi
tional Chinese medicine cannot cure
HIV infection at this time. Thus, it is
vital to recognize when Western medi
cations are indicated and useful for the
protection of the patient.
Because AIDS suppresses the im
mune system, the patient may be sus
ceptible to infection. Western medica
tions can prevent opportunistic infec
tions as exemplified by the use of
Bactrim to prevent PCP. We are testing
Chinese herbs to prevent opportunistic
infections. At this time, however, we do
not have a Chinese herbal replacement
for such medications as Bactrim.
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The Value of Acupuncture
The mechanism of acupuncture can
increase the endorphin level. Endor
phins are recognized as pain relievers.
Within the last three years, studies of
endorphins also demonstrate that they
increase T-cell count and natural killer
cell activity, as well as inducing the
body to form interferon.
rz
Continuous Treatment Enhances Ben
efits
Our work during the past seven years
indicates that there are clear benefits to
the continuous use of Chinese herbs
and acupuncture. When a patient seeks
treatment for only a short time or on an
intermittent basis, the value of the Chi
nese approach is diminished.
Two cases illustrate this important
point. One man began treatment in
April of 1987; his initial CD4 count was
430. He was treated continuously with
only Chinese herbs and acupuncture for
three years. At the end of this period,
his CD4 had risen to 530 and his p24
antigen had gone from positive to nega
tive. The patient chose to discontinue
treatment. When he returned almost
three years later, his CD4 count was
only 55 and his p24 antigen was again
positive.
Another man began treatment in
early 1988 with a CD4 count of 443. He
continued with regularly scheduled
treatments for almost three and a half
years. At the point that he discontinued
treatment, his CD4 stood at 500. Only a
year and a half later, he had an attack of
shingles and returned for treatment.
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His CD4 count had dropped to 150.
When you compare these two cases
to the ones reported in our Group A
results, you can see that uninterrupted
treatment seems more effective. If an
HIV+ patient does choose to discon
tinue treatment, we strongly recom
mend that they check their CD4 count
every three months.
[This article includes a box describing
an Oriental Medical Center clinical
study - please contact HAND! for infor
mation ]
Acemannan
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by Jason Heisman
Notes from the Underground, #23
December 1993, p. 7
Acemannan is a polysaccharide, or
complex sugar, extracted from the aloe
vera plant. Aloe barbardensis Miller.
Aloe Vera has been used in many cul
tures as a traditional treatment for
burns, digestive problems, and other
ailments, and has become a popular
alternative treatment for AIDS. It is cur
rently being promoted for use in combi
nation with DNCB,
dinitrochlorobenzene, another alterna
tive treatment that has recently been
receiving a new round of attention.
Acemannan was patented by
Carrington Laboratories under the
brand name Carrisyn, and has been ap
proved by FDA for the treatment of
fibrosarcoma, a form of cancer, in cats
and dogs. Certain laboratory studies
have shown that acemannan is capable
of inhibiting HIV replication in the test
tube, increasing the production of
cytokines, and enhancing the efficacy of
AZT. Unfortunately, a recently con
cluded trial could not reproduce these
findings.
Results from two studies of
acemannan were presented as poster
abstracts at the IX International Confer
ence on AIDS in Berlin. One abstract
presented the long-awaited results of a
placebo-controlled clinical trial of
acemannan in combination with AZT
or ddl. The trial was conducted by the
Canadian HIV Trials Network, and
funded by the Canadian government
(abstract # PoB 28-2153)
This study enrolled sixty-two pa
tients with t-helper counts between SOSOO. The results showed that people
taking acemannan declined more
slowly than those not taking the drug.
but by the end of the 48 week study,
both groups had similar losses in thelper cells. No difference was noted
for p24 antigen, and no interaction with
the antiretroviral drugs was observed.
In a different study, paid for by
Carrington Laboratories, performed by
researchers from Carrington Laborato
ries and Dallas-Fort Worth Medical
Center, in Texas, followed the progress
of the five survivors of a six year open
label clinical trial (abstract #PoB 292179). The t-helper counts of these five
patients stayed constant over six years,
while their CD8 cells increased from an
average of 359 to an average of 1395. It
is not specified whether these patients
were receiving antiretroviral therapy.
Although their results seem contra
dictory to those of the larger Canadian
trial, the researchers of the open-label
study reported that acemannan in
creased the production of CD8 cells,
and cytokines (immune regulators)
including IL-6, and TNF-alpha (the
same cytokines stimulated by
echinacea—see following piece). Based
on this information the authors suggest
that acemannan increased survival
time amongst these patients. According
to the abstract, "the clinical deteriora
tion of 10 deceased study patients
closely paralleled their compliance for
the daily intake of acemannan."
Self-selection in the open label study,
as well the inevitable lack of objectivity
on the part of the manufacturers of the
product may explain the contradictory
findings.
Echinacea: My Immune
Booster May be Your Downer
Notes from the Underground, #23,
December 1993, p. 7
Extracts from echinacea, that purple
coneflower blooming in your garden,
have been used by herbalists since pa
gan times, and seem to be becoming
more and more popular in the back-toMother- Earth-'90's. A lot of laboratory
work supports what the nature healer
types have contended all along; that
echinacea can kick start the immune
system into combating infections and
maybe even cancerous cells. So
echinacea may deserve the tag
"immunomodulator", and because of
its reputation, a lot of people with HIV
use it to try and give their immune sys
tem a boost.
[The "Boost"]would be great if the
immune system was a simple sort of
thing that turns on or off. But its more
like a maze of interlaced wires and
switches, with hidden feedback loops
and all the instructions are in hiero
glyphics. Or to use a more natural
metaphor, the immune system is like
the ecosystem, in which the disappear
ance of some tiny fish leads to global
starvation.
HIV disease uses the complexity of
the immune system to defeat it. HIV
triggers responses from some parts of
the immune system that would nor
mally keep other infections in check,
but that wind up only feeding HIV and
gradually disturbing the natural bal
ance of all the elements of the immune
system. By the time someone has fifty
CD4 cells, its not that the immune sys
tem is "deficient" so much as it is all oux
of whack. Any product that claims to be
an immune booster should be looked
very carefully to be sure that it isn't jus
aggravating this imbalance.
So where does echinacea fit into this7
Hard to say, since these extracts appea
to do a number of different things.
Echinacea has been shown to activate
cells called macrophages that eat dis
eased cells or infectious things like
bacterias or viruses. Macrophages are
very important when it comes to fight
ing off certain infections such as MAI.
In this process the macrophages pro
duce large amounts of chemicals such
as IL-1, IL-6, and TNF-alpha. These
chemicals stimulate HIV, and a number
of other conditions such as KS and
wasting. What's worse is that if mac
rophages clean up cells infected with
HIV, they can become infected them
selves and act as reservoirs for the vi
rus. There are no studies of whether
echinacea causes more of your mac
rophages to get infected. But there are
studies showing that taking echinacea
increases levels of IL-1, IL-6, and TNFalpha in seronegative people.
On paper this seems like a catch-22.
In your body, who knows, it may de
pend on your stage of disease.
Echinacea might help you in one stage,
and hurt you in another. It's very hard
to get a grasp of the big picture by piec
ing together these small test tube stud
ies. There are no studies of echinacea in
PWAs. It sounds sort of hollow to al
ways this repeat demand for clinical
trials, since they take so much time and
HIV Treatment Information Exchange
money to design and implement and
there are just so many things to study.
Where does that leave you? Once again
with a lot of decisions to make and little
more than your good sense to guide
you.
Personals
[Editor's Note: The quest for knowl
edge, self and scientific, is essential to the
advancement of HIV treatment. In recent
articles on complementary therapy, the
authors advocate the importance of clini
cal trials and empirical data. While the
lack of scientific assessment of the effi
cacy of therapies in HIV treatment con
tinues to be a barrier, the sharing of per
sonal experiences by persons already
undergoing complementary treatments
may become the starting point for better
future efforts.
HANDI excerpts of these personal ac
counts are included in this issue of HTIE
to enrich the exchange of experiences a nd
ideas of persons with HIV.]
— Please Note —
No representation, warranty, or endorse
ment — expressed or implied — is made
as to the accuracy or completeness of this
information. This information is provided
as source material only and has not been
independently verified by HANDI or NHF.
NHFdoes not recommend particular treat
ments for individuals. NHF recommends
that you consult your physician or local
treatment center before pursuing any
course of treatment.
Steve Keale
The following is a quote from an ar
ticle by Steve Keale, "Acupressure,
Herbs and Spirituality," published in
The Common Factor, #7, February,
1994, p. 9.
"My path to health began about five
years ago after I could no longer hide
from the perceived death sentence of
hiv [Ed. - Steve explains in his article that
he does not "give anything that focuses on
imperfection the benefit of capital letters"]
capitalizing hiv in his article.] I was alone
and confused. During that time, my
knee was giving me an incredible
amount of pain that made it impossible
to keep working. My doctor told me
that my knee would be fused within a
year and that there was nothing that
could be done for it. They also informed
me that aids was getting everyone else
and my time was limited. My reaction
at the time was to hold in my tears until
I got to the car and went home in anger.
I was so angry. I needed to do some
thing, so I started counseling. This
helped me develop my own thoughts
and beliefs and to come to the decision
that I needed time to get better. I de
cided to go on short-term disability,
which turned out to be more like abil
ity, and it gave me the time to recover,
relax, and investigate what was going
on.
I had heard through the grapevine
that people with cancer and aids were
able to heal themselves, sometimes
through what I considered a form of
hocus pocus. If it worked for them,
though, maybe it could work for me. I
bought a book on Zen and one about
taking responsibility for one's life. This
reading changed my life, and from then
on, I knew that love could overcome all
negativity and that I am in total control
of my life. Now I had to retrain myself
in order to take control again.
I started visualizing, reading more
books, going to seminars, and visiting a
few acupuncturists. The acupuncturists
were able to stop my bleeds, and the
visualization allowed me to stop a few
on my own. My reading helped me re
alize that there was a common thread
running through all spiritual paths and
holistic health practices."
[ please contact HANDI to receive
complete text]
Ken
The following is a quote from an ar
ticle by Kristen Fehlhaber, "Alterna
tive Therapies and HIV Disease:
Three Personal Experiences," pub
lished in Wellspring, March/April
1994, p.l.
"Ken 41, was diagnosed with AIDS
five years ago. He was immediately
put on AZT, but he says, "I felt very
ignorant about the treatment. The more
I read about it, the more 1 questioned it.
And I was feeling worse." After two
months, he decided to stop taking AZT
and began to experiment with vitamin
supplements and herbs. After two
years of treatment with herbs and vita
mins, Ken began acupuncture after get
ting a respiratory infection against
which no drugs were effective. But he
wasn't without his reservations. Dur
ing the first meeting with his acupunc-
turist at the Cambridge Hospital, no
needles were used. Instead he asked a
lot of questions and made sure he un
derstood the process before beginning
the therapy. Currently, he goes to the
AIDS Care Project for treatment twice a
week, where he also consults with a
herbologist. As with many practitio
ners of holistic therapies, most of his
information came from word of mouth.
"I asked my friends what they were
taking and went from there." He at
tributes his health to all of these thera
pies, but also "to a healthy outlook -1
keep my curiosity up so I can keep
searching things out and keep asking
questions."
[please contact HANDI to receive
complete text]
X
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New Resources
CMHC Treatment Issues, v.7
#11/12, 1993/94 Issue on
Alternative Therapies
Includes the Alternative Treatment
Activist Manifesto by Jon Greenberg
and the following articles: Historical
Background; Common Alternative
Therapies; an Interview with Jane
Buckle; Vitamins; Chinese Herbs; Anti
oxidants; Evaluating Therapies; and the
FDA Vitamin Controversy. The article
on Common Alternative Therapies in
cludes short columns on Acemannan,
Coenzyme Q10, Compound Q
(GLQ223), Echinacea, Hypercin, PCM4, and other substances. The article ad
dressing vitamin issues covers vitamins
A, B, B-6,B-12, and C. Two accompany
ing tables, Core Foods for Vitamins
and Vitamin Toxicities, are available.
An article on Antioxidants, Oxidative
Stress, and NAC complements the sec
tion on Vitamins.
[please contact HANDI to receive
complete text of issue]
AIDS Project of Los Angeles
Alternative Treatment Library
Among the collection of treatment
packets are traditional oriental medi
cine, anabolic steroids, anti-oxidants,
and many others.
2
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Available From HANDI
Aloe Vera: The Plot Thickens... But Does
the Concentrate?, Notes from the Under-
3
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HIV Treatment Information Exchange
ground, #23 Dec. 93, p. 6 (566)
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Alternative Therapies and HIV Disease:
Three Personal Experiences, by Kristen
Fehlhaber, Wellspring, MarVApr. 1994, p. 1
(567)
Chinese Medicine and HIV, by Misha Cohen,
InfoPack, v.2 #2 Winter 1994, p.4 (568)
Clinical Homeopathy, Bioallergic Remedies
& Electro-Acupuncture Devices, by Luc
Chaltin, Townsend Letter for Doctors, #126
Jan. 94, p. 38 (569)
ELF Prescription: Extremely Low Frequency
Utility of Electromagnetic Pain Manage
ment, Immunology, Klaus Kaufman,
Townsend Letter for Doctors, Feb./Mar. 1994,
p. 198 (570)
a
Ginseng, by Neil Okrent, Townsend Letter for
Doctors, Feb/Mar. 1994, p. 162 (571)
1
Journey to Life: Native People with HIV
Disease and Traditional Healing by Marcie
Rendon, Seasons, Autumn 1993, unpaged
(572)
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Lively Components of Yogurt, by Morton
Walker, Morton, Townsend Letter for
Doctors, #125 Dec. 1993, p. 1184 (573)
A More Effective Approach to Homeopathy
for Modern Times, by Rudolph
Verspoor,Townsend Letter for Doctors, #126
Jan. 1994, p. 44 (574)
Where East Meets West, by Nancy Hokenson,
Holistic Living, June/February 1994, p.6
(580)
OTHER TREATMENT
ISSUES
Doxil Reported 90% Effective Against
Kaposi’s Sarcoma, Vancouver PWA, #75 Feb.
1994, p. 8 (581)
Care: Beyond the Clinical, by Kelly Harmon,
PAACNOTES, Jan. 1994, p. 26(582)
Difficult Questions: Can Drug Approvals
Come too Fast, by Spencer Cox, Positively
Aware, Nov. 1993, p. 9 (583)
Evaluating and Treating Fatigue in
Individuals with HIV Infection, by Douglas
Arditti, STEP Perspective, v.5 #3 Nov. 1993,
p. 1 (584)
Fluconazole, Combination AZT/ddI Gain
Support at Retrovirus Conference, by Mark
Mascolini, Positively Aware, Feb. 1994, p.4
(585)
Future Directions in AIDS Research, by
Martin Delaney, Project Inform, #4 Feb 1994,
p. 1 (586)
Primary HIV Infection, and the Immune
Response, by Dave Gilden, AIDS Treatment
News, #191, p. 5 (593)
The Racial Divide: the Effect of Race on
Treating HIV, by David Thomas, Positively
Aware. Feb. 1994, p. 15 (594)
Report from the ACTG Meeting, by Walt
Senterfit, Jan. 1994, Being Alive, Jan 1994
(595)
Report on Women & HIV Conference, by
Terri O’Neil, STEP Perspective, v.5 #3,
November, 1993, p. 14 (596)
The Skin and HIV Infection, by Kark
IHeman,BETA, Mar. 1994, p. 20 (597)
A Survey of the Future of AIDS Research:
the First National Conference..., by David
Gilden, BETA Mar. 1994, p.30 (598)
The Top Ten HIV/AIDS Stories of 1993, by
Mark Katz, Being Alive, Jan. 1994, p. 1,14
(599)
Tracking Your CD4 Count, by David Thomas,
Positively Aware, Mar. 1994, p. 8 (600)
The 1993 International Conference on
AIDS, by Mike Barr,, InfoPack, Winter 94, p.
2 (601)
Depression and HIV, by Scott Fulford, STEP
Perspective, v.5 #3 Nov. 1993, p. 7 (602)
Ozone in Medicine: Overview and Future
Directions, by Gerard V. Sunnen,Townsend
Letter for Doctors, FebyMar. 1994, p. 182
(575)
HIV Conference Touts Therapies of the
Future, by Mark Mascolini, PAACNOTES,
Dec. 1993, p. 482 (587)
HIV-Related Gynecological Disorders,
PAACNOTES, Jan. 1994, p. 18 (588)
Take Zinc to Heart, by Anthony Cichoke,
Townsend Letter for Doctors, Feb./Mar. 1994,
p. 170 (576)
Hepatitis and HIV Co-Infection, by Donald
M. Jensen, Positively Aware, Feb. 1994, p.5
(589)
HIV and Psychiatric Treatments: Interview
with J. Kevin Rist, M.D., by Denny Smith,
AIDS Treatment News, #189 Dec. 12,1993, p.
1 (603)
The Healing Power of Reflexology, by Jim
O’Brien, Your Health, Jan. 25, p. 33 (577)
Increasing Access to Care: the Native Special
Initiatives Program, by Jay Johnson, Seasons,
Autumn 1993, unpaged (590)
An Overview of Holistic Therapies, by
Jennifer Matias,, Wellspring, Jan/Feb 1994, p.
20 (578)
Myopathy, by Jeffrey T Shouten, STEP
Perspective, v.5 #3 Nov. 1993, p. 5 (591)
The Strange Phenomenon of Antidoting by
Judyth Reichenberg-Ullman, Townsend
Letter for Doctors, Feb/Mar 1994, p. 154-155
(579)
PAAC Launches Los Angeles Standards of
Care and AIDS IPA Projects, by Brett
Hufziger, PAACNOTES, November 93, p. 448
(592)
New Study Gives Little Support to MindOver-Body Theory, AIDS Alert, Jan. 1994, p.
8 (604)
Using the Psyche in the Fight Against
AIDS: a Revolutionary Mind?, Body
Program, by Henry Dreher, Natural Health,
JanVFeb. 1994, p. 84 (605)
Balancing Cost Effectiveness with Drug
Effectiveness Is the Theme for U.S.
Pharmacists, by Lawrence M. Prescott,
Positively Aware, Mar. 1994, p. 6 (606)
HIV Treatment Information Exchange
The High Cost of Living, by Erin McBreen,
Positively Aware, Mar. 1994, p. 18 (607)
HIV Flipflops the Rules of Personal
Finances: a Primer for People with Financial
Options, The Body Positive, Jan. 1994. p. 19
(608)
Living Benefits — Options and Resources,
by Thomas P. McCormack, AIDS Treatment
News, #193, p. 6 (609)
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Want New York State to Pay Your Health
Insurance Premium?, The Body Positive,
Jan. 1994, p. 21 (610)
Heavy Petting, by Christopher LaMorte,
Positively Aware, Mar. 1994, p. 16 (sugges
tions for pet owners) (611)
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HIV Treatment Information Exchange
CE Rheumatoid Arthritis Advance
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May Be Relevant to AIDS”
by John S. James
AIDS Treatment News (02/18/94) No.
193, P. 5
London researchers report promising
results in treating rheumatoid arthritis
with a monoclonal antibody against
tumor necrosis factor (TNF), a condition
that is found naturally in the body but
is often too high in HIV/AIDS patients.
TNF can stimulate HIV growth directly,
and is suspected to be an important
contributing element of wasting syn
drome. Pentoxifylline and thalidomide,
two drugs being tested as potential
AIDS therapies, reduce the levels of
TNF in the body. The monoclonal anti
body, produced by Philadelphia's
Centocor company, may also be highly
effective in blocking TNF. All of the 50
or so volunteers, who had failed stan
dard treatments for rheumatoid arthri
tis, have had apparent success when
treated with the monoclonal antibody,
according to reports on the British
C Broadcasting Corporation. While this
o :< drug is not yet widely available, the
■ results of the study—if confirmed—
may advance the research on other
drugs with a similar mechanism of ac
tion. (612)
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High-Purity Factor
Concentrates in Prevention of
AIDS
By H.P. Schwarz, et al.
Lancet (Great Britain) (02/19/94) Vol.
343, No. 8895, P. 478
Seremetis et al. conclude that high-pu
rity products should be preferred for
treating HIV-positive hemophiliacs.
They base their recommendation on a
study which showed that stabilization
of CD4 cells with high-purity concen
trates is the most striking seen with any
AIDS treatment or prevention ap
proach. If these findings are valid, say
Schwarz et al. of Immuno AG in Aus
tria, high-purity factor VIII concentrates
would also have to be considered for
treatment of HIV-positive patients who
are not hemophiliacs. To prevent false
hopes for these patients, Schwarz et al.
suggest that the findings of Seremetis
and colleagues be confirmed. In their
opinion, the Seremetis study has several
serious flaws. According to Schwarz et
al., the methods of analysis did not
properly consider the potential for bias
in patient selection and use of
antiretrovirals, the questionable end
point, and selective withdrawal. (613)
Medical Briefs: Pioneering
Gene Therapy
Advocate (03/08/94) No. 650, P. 19
Vical Inc., a San Diego-based biotech
nology firm, is exploring a "naked
DNA" approach to gene therapy for
AIDS and other diseases. Gene therapy
involves the insertion of specific bits of
DNA or genes into human cells to
prompt them to fight disease. One way
genes can be delivered to cells is to pig
gyback them on deactivated viruses,
which are injected into the body. In the
other method, cells are removed from a
patient, modified, then returned. There
are, however, disadvantages to both of
these techniques, including side effects
and high cost. The system under devel
opment by Vical attempts to avoid
these obstacles by directly injecting na
ked DNA into the patient. While there
are some limitations to this method of
gene therapy, significant progress is
being made. (614)
New Drug Touted for Ability to
Kill AIDS Infected Cells
by Paul Taylor
Toronto Globe and Mail (Canada) (03/
08/94) P. A6
A Canadian and British research
team says it has developed a new drug
that can selectively kill cells infected
with HIV without harming healthy
ones. The drug, EF 13, has been tested
only in a laboratory environment, and
director of research Dr. Michael
Winther concedes that it is uncertain
what will happen when the drug is ac
tually administered to an AIDS patient.
EF 13 is made from naturally occurring
compounds in the body gamma lino
lenic acid and lithium salt of polyun
saturated fatty acid. When introduced
into a test tube containing both healthy
and HIV infected cells, EF 13 entered
both types but appeared to have a nega
tive effect only on the infected cells.
The compound distorted the cell mem
brane, hindering the ability of the cell to
eliminate its normal waste products.
Eventually, the build up caused the cell
to die. "When the cells are killed, the
important thing is that any of the vi-
ruses inside the cells die as well," says
Winther. The drug was initially devel
oped in Nova Scotia by Efamol Re
search, the Canadian subsidiary of the
British based firm Scotia Pharmaceuti
cals Ltd. Winther, who is laboratory
director of Efamol, says researchers at
the Medical College of St.
Bartholomew's Hospital in London pro
duced similar results in recent tests of
EF13. (615)
Hemophiliacs With HIV Get
Clinic of Their Own
by Holly Selby
Baltimore Sun (03/11/94) P. IB
Today marks the opening of a new
medical clinic at Johns Hopkins Hospi
tal established expressly for
HIV positive hemophiliacs. The clinic,
which will be staffed by personnel from
both Hopkins and St. Agnes Hospitals,
aims to provide comprehensive health
care to adult hemophiliacs in Maryland
who contracted HIV through the blood
products meant to help them lead better
lives. The Hopkins clinic gives hemo
philiacs better access to one stop treat
ment. Otherwise, Maryland patients
would have to travel to Philadelphia,
Washington, or Hershey, Pa., to receive
care in one medical center. "This may
be a small clinic, but it's a major thing
for these people," says Annette Maurits,
president of the Maryland chapter of
the National Hemophilia Foundation.
Today, half of America's 20,000 hemo
philiacs are infected with HIV. Most
were infected between 1979 and 1985,
when testing for HIV in the blood sup
ply was implemented. (616)
UBI Approved to Test a Novel
Immunotherapy for AIDS
Business Wire (03/24/94)
The Food and Drug Administration has
granted approval to United Biomedical
Inc. of Hauppauge, N.Y., to conduct
clinical trials to evaluate a novel ap
proach for treatment of HIV infection.
UBI has developed the therapy de
signed to delay progression to AIDS by
specifically stimulating the body's im
mune responses known as cytotoxic or
"killer" T lymphocytes (CTL), which
are responsible for identifying and de
stroying HIV-infected cells. The ability
to stimulate HIV-specific CTL has major
implications for accelerating develop-
HIV Treatment Information Exchange
ment of the UBI global AIDS vaccine
currently undergoing international
clinical study. The company has de
signed a cocktail of lipid-modified-peptides that can stimulate HIV-specific
CTL responses. (617)
Lab Tests Show New Way to
Block HIV Infection
Lidia Wasowicz
United Press International (04/01/94)
Researchers at the University of
Southern California said their labora
tory experiments indicate that HIV in
fection may be avoided with antibodies
produced in response to two autoim
mune disorders, mixed connective tis
sue disease (MCTD) and systemic lupus
erythematosus. "We predicted that be
cause of what is called molecular mim
icry, the way in which some molecules
are so similar they can actually replace
one another in biologic functions, these
particular autoimmune antibodies
would be effective in blocking HIV in
fection of healthy cells," said Dr.
Angeline Douvas, USC assistant profes
sor of medicine. The protein 70K is the
natural target of antibodies produced in
response to MCTD and lupus, two dis
orders in which the body attacks itself.
The protein is similar in structure to
two proteins found on the surface of
HIV, the researchers reported. They
hope to use 70K to boost immunity and
antibody production in HIV patients.
"Of immediate interest is preventing
the transfer of the [AIDS] virus from
infected mothers to their fetuses," said
Douvas. "By using the autoimmune
antibodies, we can bypass the use of
AIDS infected blood to manufacture the
antibody preparation." (618)
New Nation-Wide Trial Tests
Timing of Switch From AZT
by John S. James
AIDS Treatment News (04/02/94) No.
196, P. 4
The first clinical AIDS trial to be con
ducted jointly by the federally spon
sored AIDS Clinical Trials Group and
military institutions will examine
whether an advanced blood test can
indicate the most appropriate time to
switch from AZT treatment alone to
other therapies. All volunteers will be
gin the study by taking AZT alone as
the active drug. As the trial progresses,
their blood will be tested for the pres
ence of a particular mutation of HIV
known as codon 215—the most serious
mutation known to cause resistance to
AZT. When, if at all, mutation is de
tected, the patients will be secretly as
signed to either continue AZT therapy,
switch to AZT plus ddl, or switch to the
triple combination of AZT plus ddl and
nevirapine. The objective of the trials is
"to validate that [the '215 mutation'!
precedes the increase in viral
burden...and decline in CD4 count
which had been observed in association
with clinical failure" of AZT, and to
determine if adding other drugs will
prevent the increase in viral burden and
drop in T-helper count. (619)
Drug Firms Announce
Combination AIDS Strategy
by Gail Fitzer-Shiller
Reuters (04/13/94)
The Inter-Company Collaboration on
AIDS Drug Development (ICC), a coali
tion of 16 pharmaceutical firms, has
agreed on a new clinical plan to rapidly
test triple-drug combinations to combat
AIDS. ICC officials say the new proto
col is identical to the same clinical
model that yielded treatments for lep
rosy, tuberculosis, and various cancers.
Each trial, they explain, will enroll 100
relatively healthy patients who have
some manifestations of AIDS, but have
not been treated with other drugs.
Combinations showing promise will
advance to larger, more tightly con
trolled studies to determine long-term
safety and efficacy. Under this proto
col, triple drug combinations can be
tested more quickly than in double
blinded, placebo-controlled studies.
"It's really an attempt with a relatively
rough and quick method to identify
those combinations out of a great num
ber of combinations that may have spe
cial merit in treating AIDS and there
fore deserve further and more formal
study," says Dr. Juergen Drews, chair
man of the ICC scientific panel. The
first four trials are scheduled to begin
this fall and, according to Drews, will
involve Wellcome PLC's AZT in combi
nation with Hoffman-La Roc he's ddC
and proteinase inhibitor R031-8959;
AZT in combination with Bristol-Myers
Squibb's ddl and Boehringer
Ingelheim's Nevirapine; AZT in combi
nation with ddl and Glaxo Holdings
PLC's 3TC; and AZT in combination
with ddC and Nevirapine. Each of the
trials will be funded by the companies
those drugs are being tested. (620)
Comparison of Long-Term
Prognosis of Patients With
AIDS Treated and Not Treated
With Zidovudine
by Jens D. Lundgren
Journal of the American Medical
Association (04/13/94) Vol. 271, No.
14, P. 1088
To determine the connection between
time elapsed since beginning treatment
with zidovudine and survival in AIDS
patients, Lundgren et al. of the AIDS in
Europe Study Group studied 4,484
AIDS patients at 51 centers in 17 Euro
pean nations. All of the participants
had been diagnosed with AIDS be
tween 1979 and 1989, had survived
their initial AlDS-defining event, and
had not started taking zidovudine be
fore AIDS diagnosis. For those being
treated with zidovudine, the death rate
was significantly lower than for un
treated patients who had developed
AIDS at the same time. For longer
times since beginning treatment with
zidovudine, the association with a re
duced mortality rate diminished. For
patients who survived for more than
two years after initiating zidovudine
therapy, the mortality rate was higher
than for untreated patients who had
developed the disease at the same time.
Lundgren et al. concluded that
zidovudine, when initiated after an
AIDS diagnosis, was linked to im
proved prognosis, but for no more than
two years after beginning therapy. (621)
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Treating AIDS
United Press International (04/14/94)
A traditional medicine research center
in Wuhan, China, claims to have devel
oped an effective treatment for AIDS,
according to a report by the Wen Wei
Po newspaper. The center says it has
treated 22 AIDS patients, with varying
success, with sheng ming quan. That
medicine was selected as the first choice
of medicines for AIDS treatment by the
Committee of Chinese AIDS Prevention
and Treatment, said the paper. Al
though a number of Chinese medicine
shops and chemical companies have
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heralded AIDS cures, few receive offi
cial endorsements. Not long ago, a Chi
nese company promoted an aerosol
spray to kill HIV, which turned out to
be nothing more than a disinfectant.
Traditional Chinese medicines have
gained some credibility in the past few
years, but little has been done in terms
: of supporting research efforts for a cure
for AIDS in China. (622)
NAC, Glutathione and HIV—
San Francisco, May 7
AIDS Treatment News (04/15/94) No.
197, P. 8
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Researchers at Herzenberg Laboratory
at Stanford University are currently
coordinating a trial to research the use
of N-acetylcysteine (NAC) as a poten
tial treatment for HIV. The theory be
hind the studies is that glutathione lev
els in the cells are known to be abnor
mally low in many HIV patients. This
low level of ~glutathione may cripple
. the
antioxidant defense of the cells, and the
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oxidative stress that results may also
stimulate the growth of HIV. Some
have proposed NAC as an efficient
means of increasing glutathione levels
but, because others question whether it
is adequately absorbed, use of NAC
remains controversial. ACT-UP/San
Francisco will sponsor a talk on Satur
day, May 7, by Dr. Leonore Herzenberg
of Stanford's Genetics Department, who
will present recent research regarding
the use of NAC as a potential treatment
for HIV infection. (623)
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Itchy Skin in HIV
by Michelle Roland
AIDS Treatment News (04/15/94) No.
197, P. 1
Pruitis, or itchy skin, is a condition
common to HIV patients. Although
health care professionals have in the
past been tempted to attribute this
symptom to HIV itself, clinicians and
researchers now know that a specific
diagnosis is often within reach. The
specific cause of the itchiness may be
linked to HIV associated immunosup
pression or, less commonly, to specific
organ diseases caused by opportunistic
infections, cancer, or non HIV related
illnesses. The most common causes of
pruitis in HIV infection fit into several
classifications: scabies and insect bite
reactions; inflammations of the hair fol
licles that include either eosinophilic or
bacterial folliculitis; drug reactions; dry
skin; a group of scaly skin disorders
that include psoriasis; and photosensi
tivity dermatitis. Doctors Toby Maurer
and Tim Berger, researchers at San
Francisco General Hospital, examined a
group of HIV patients who had itchy
skin. They found that they could make
a diagnosis based on a relevant clinical
history, physical examination, and
sometimes a skin biopsy in 90 percent
of the patients. Once diagnosed, the
majority of these skin disorders can be
treated. While some are very respon
sive to therapy, others are resistant to
currently available treatment options.
Patients, physicians, and dermatologists
must work together in difficult cases of
itchy skin to establish a diagnosis and
come up with an effective treatment
regime. (624)
HIV Alters DNA, Causing Rare
Cancer
by E.Pennisi
Science Newj (04/16/94) VoL 145, No.
16, P. 244
Researchers at the University of Cali
fornia at San Francisco have for the first
time demonstrated a direct link be
tween HIV and tumor growth. The
team discovered that a piece of HIV
genetic material had inserted itself into
human DNA near a particular
cancer causing cell, thereby activating
this oncogene, which is associated with
several other types of tumors. In seven
HIV patients, white blood cells had
multiplied and spread out of control,
creating a lymphoma with a mixed cell
type. Previously, most lymphomas ob
served in AIDS patients came from a
single white cell type, often B cells.
These AIDS related cancers seem to sur
face as a result of a weakened immune
system. The seven San Francisco pa
tients, however, tended not to exhibit
symptoms of immune suppression. In
stead, "most of them had this (cancer]
as their (first AIDS] symptom," accord
ing to researcher Michael S. McGrath, a
cancer biologist at USCF. McGrath of
fers two explanations for the sudden
appearance of this cancer in HIV pa
tients. HIV may be evolving and may
have developed different ways of acting
inside white blood cells, which suggests
that HIV may also alter the way it in
fects people. The second explanation is
that these cancers may be an unwel
come result of HIV patients living
longer because of treatments that com
bat opportunistic infections and delay
the spread of the virus in the body.
(625)
Megestrol Helps Enhance
Appetite
AIDS Alert (04/94) Vol. 9, No. 4, P. 61
Megestrol (Megace), a synthetic proges
terone agent, has won approval for the
treatment of anorexia, cachexia, and
weight loss among AIDS patients. Two
unpublished trials conducted from 1988
to 1991 found that AIDS patients gained
between 10.7 to 11.2 pounds after 12
weeks of treatment with megestrol. At
a dose of 800 mg a day, however, some
patients experienced impotence, rash,
or hypertension. Cutting the dosage in
half may help impotence and other side
effects, according to Isadore Pike, vice
president of medical affairs for the
Bristol-Myers Squibb Oncology-HIV
Products Division. He recommends
that the dosage be reduced from 800 mg
to 400 mg when the patient has gained
enough weight. Pregnant women
should not take megestrol, and women
who are not pregnant should use con
traception when taking megestrol be
cause of a potentially heightened risk of
birth defects. "If you see somebody
with AIDS, you see that his appetite
really drops off, and there is no other
obvious reason for that, that's the point
you ought to consider instituting treat
ment" with megestrol, says Pike. "If
the anorexia or weight loss appears to
be a function of the disease itself, then I
think (megestrol) becomes appropriate.
But I don't think you need to wait to try
it until they lose a tremendous amount
of weight." It is not known through
what mechanism the drug improves
appetite. (626)
FDA Approves Clinical Trial of
Hyperthermia
Washington Blade (04/22/94) Vol. 25,
No. 16, P. 29
The U.S. Food and Drug Administra
tion (FDA) on March 29 approved a
clinical trial of a controversial HIV
treatment known as hyperthermia.
Within two months, IDT Corporation of
Pittsburgh, Pa., is expected to begin a
"feasibility study" testing hyperthermia
HIV Treatment Information Exchange
in 10 patients. The treatment involves
removing the blood from an HIV pa
tient, heating it to about 110 degrees to
kill the virus, then returning the blood
to the patient. Officials at the National
Institutes of Health (NIH) said there
was no value in the treatment, and that
no further research was necessary. But
Sen. Frank Lautenberg (D-N.J.) says he
has met with NIH and FDA officials to
push for hyperthermia research. (627)
Gilead Sciences Announces
Second Phase II/IH Pivotal
Study of GS 504 in CMV
Retinitis Patients With
Initiation of Clinical Trial
Conducted by SOCA
Business Wire (04/25/94)
Gilead Sciences Inc. has initiated a sec
ond Phase II/III pivotal trial to evaluate
GS 504 as a potential treatment for cy
tomegalovirus (CMV) retinitis in AIDS
patients. The study of GS 504, an anti
viral compound from a class of drugs
known as nucleoside analogues, is be
ing conducted by the Studies of the
Ocular Complications of AIDS (SOCA)
research group, part of the National
Institutes of Health. The trial is de
signed to enroll 90 patients through the
II SOCA-affiliated clinical centers in
the United States, and to determine the
potential ability of the compound to
prevent the progression of CMV
retinitis. In January, Gilead announced
commencement of the initial Phase II/
III pivotal study. That trial has so far
enrolled half of an anticipated 48 pa
tients. Results from Gilead's Phase I/II
studies demonstrated anti-CMV activity
with regular intravenous dosing of GS
504. CMV, the most common opportu
nistic infection among people with
AIDS, affects approximately 90 percent
of patients. (628)
Pasteur Institute Set to Begin
AIDS Vaccine Test
Reuters (04/28/94)
Researchers at the Pasteur Institute in
Paris will soon begin a major human
trial of an AIDS vaccine cocktail that
demonstrated great promise in tests on
chimpanzees, according to Dr. Marc
Girard, director of molecular virology
at the institute. Girard said that 25 vol
unteers would participate in the
one year study. The vaccine is a combi
nation of a protein from a virus affect
ing canaries that strengthens the bod/s
own immune system, and a specially
altered amino acid compound that
boosts the ability to protect against nu
merous HIV strains. Up until now, re
searchers have not been able to induce
antibodies that would be active against
numerous wild strains of HIV, Girard
said. He cautioned that while the new
compound may be able to induce serum
antibodies to stave off HIV in the blood
stream, little has been discovered to
block infection in mucous secretions
during sexual activity, which is how
most HIV infections are transmitted.
(629)
Antiviral d4T to be Approved
AIDS Alert (04/94) Vol. 9, No. 4, P. 61
The antiviral d4T, a nucleoside in the
same class of drugs as AZT, ddl, and
ddC, is expected to be approved this
year, reports Susan J. Yarin, spokes
woman for Bristol-Myers Squibb Co.,
which manufactures Zerit, a brand
name version of the drug. Currently,
d4T is available only as part of the Food
and Drug Administration's Parallel
Track Program for patients who cannot
tolerate the drug (AZT), or for whom
other therapies have failed. Nearly
11,000 HIV/AIDS patients have re
ceived d4T through the program at no
charge; however, data on the trials will
not be available until later this year,
says Yarin. (630)
Herpes Drug Lengthens AIDS
Patients Lives—Study
Reuten (05/02/94)
High doses of Acyclovir, a drug used to
treat herpes infection, can significantly
prolong the survival of people with
AIDS, according to a study by one of
Australia's leading research institutions
for the disease. The 1992 study indi
cated that compared to placebos.
Acyclovir could lengthen survival time
in AIDS patients. "The study has
shown that Acyclovir can extend life by
around six months, a significant advan
tage in this serious disease," said David
Cooper, director of the National Centre
in HIV Epidemiology and Clinical Re
search at the University of New South
Wales. The Health Department of the
Australian government is considering
licensing Acyclovir as a therapeutic
drug in the battle against AIDS. (631)
Theory Tested on Why Body's
Defenses Go Haywire in AIDS
by Natalie Angier
New York Timei (05/03/94) P. C3
While AIDS gradually breaks down
the bod/s immune system, it creates
mass confusion at every node of the
defense network, as some immune cells
overreact to the invasion and others fail
to respond when called. Now, re
searchers at Stanford University School
of Medicine suggest something known
as oxidative stress may play a critical
role in the slow decay of the immune
system. The damage resulting from too
many dangerous oxygen molecules
banging around inside immune cells,
they say, may disrupt the cells' perfor
mance and ultimately cause them to
die. The Stanford scientists believe that
an important feature of AIDS is a sharp
decline in the body's concentration of
glutathione, an important mechanism
that absorbs excess oxygen and protects
from oxidative harm. The researchers
suggest that replenishment of the
bod/s stores of glutathione could delay
progression of disease. A clinical trial is
currently being conducted to evaluate
the usefulness of N acetylcysteine
(NAG), a compound from which glu
tathione is made, in blocking the malig
nant course of HIV infection. Scientists
warn, however, that NAG would, at
best, only slow the pace of deteriora
tion, not act as a cure. (632)
§
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is available by contacting HANOI.
• 1-800-TRIALS-A. This treatment information line is maintained by the National AIDS Clearinghouse.
It offers information on HIV clinical trials and drugs used to treat HIV infection.
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HIV Treatment Information Exchange
Article Index
A-77003
p.19
Acemannan
p.26
Acupuncture
p.24-26,27
Adoptive Cellular Immunotherapy
p.5
Alternative Therapies
p.24-28
Anti-viral/retroviral Treatments p.l9-21
Antibody-rich Plasma
p.22-23
AZT
p.1-2
Resistance
p.20
BHAPs
p.20
Bacterial/Mycobaderial Infection Treatment.. p.l 6-17
Beta-Carotene
p.5-6,p.!2
Cell Therapy
p.5-6,22-24
Chinese Herbs.....................
p.24-26
Complementary Therapies. ..... p.24-28
Cytomegalovirus Infection. ..... p.17-18
Dehydration
............. P-9
Delavirdine..........................
p.20
Echinacea ..............................
p.26-27
Fungal Infection Treatment ........... P-17
Gammagard......................... ............. P-4
Glutathione..........................
p.10-11
Hemophilia & HIV.............
p.3-4,27
Herbs.....................................
p.24-26
IFNs
............. P-5
IL-2........................................ ............. P-5
IVIG
............. P-5
Immunotherapeutics
p.4-8,21-24
Interferons
.P-5
Interleukin-2
..p.5,23
Intravenous Immunoglobulin ....... P-5
L-524
p.19-20
L-735
p.19-20
Liquid Nutrition Supplements .. p.l2-13
Longevity of Hemophiliac Persons .... p.3-4
Maternal/Fetal Transmission ... ... p.1-2
N-acetylcysteine
p.10-11
NAC
p.10-11
Nutritional Therapies
p.9-14
Opportunistic Infections
p.14-19
POP
p.15-16
Polygam
p.4
Pregnant Women
p.1-2
Prophylaxis of Opportunistic Infections. p.14-18
Protease Inhibitors
p.19-20
RO 31-8959
p.19-20
SC-52151
p.19-20
TMP/SMX
p.15-16
Thymic Transplants
p.23-24
Traditional Chinese Medicine.... p.24-26
U-90
p.20
Vitamin B
p.10-11
Vitamins, Minerals & Nutrients p.10-13
Weight Loss Wasting
p.11-13
Women with AIDS
p.1-2
Bibliography and
New Resources Index
o
m
X
Accelerated Benefits.......
p.29 #609 Combination Therapy
ACTG199
.... P-21
#552
p.21 #547,#549,#551,#559
Acupuncture
.... P-28 #567
p.28 #585,#587
Adriamycin......................
p.28 #581
p.31 #619-621
Aerosolized Pentamidine
p.18 #537 Complementary Therapies
Aloe Vera
p.28-29 #566
p.14 #501,#505,#507-8,#510
Alpha Interferon.............
p-14 #506
p.28-29 #566-#580
Alternative Therapies
see also New Resources section, p.27
p.14 #501,#505, #507-8,#510 Cryptococcal Meningitis
p.18 #528
Meningitis
p.28 #566-#580
p.21 #544
see also New Resources section, p.27 Cytokines ................................. p.24 #565
AmBisome
p.21 #544 Cytomegalovirus
p.19 #543
Amphotericin
p.18 #528
p.]8 #531,#535
......................................... P-21 #544 d4T.....................................p.21 #558,#560
Ampligen
p.14 #506 Dapsone
p.18 #537
Dapsone
Anabolic Steroids
p.14 #512 ddC....................................p.21 #547,#548
Angular Cheilitis
p.18 #536 ddl............................................... p.21 #547
Anti-Cytokine Therapy
p.l4 #506
p.28 #585
Anit-viral/Retroviral Treatments . p.21 #544-#560 Delavirdine
p.21 #554
Delavirdine
see also New Resources section, p.l8 Depression and Other Mood Disorders
““
see also New Resources section, p.20
p. 29 #602-#605
Antidoting
p.28 #579 Dermatological Conditions .... p.29 #597
Antioxidants
p.l 4 #500,#515
Antisense
p.l9 #543, p.21 #552 Dieting
Dieting........................................ p.14 #523
g
Aphthous Ulcers
p.l8 #536 Doxil
—
Doxil........................................... p.28 #581
—
Azithromycin
p.18 #533 Drug Prices
p.29 #606
1K
AZT
p.21 #545-#547,#551 Drug Research
p.28 #583,#586
B
p.28 #585,#59l Drug Resistance . p.21 #546-7,#551,#553
p.31 #619-#621 Drug Stores
p.29 #607
AZT and ddC Alternation
p.21 #560 Drug Therapies-general
p.l 8 #530
p.29 #597
Bacterial Infections .
&
p.28 #585,#586,#587
Bactrim/Septra
p.18 #537,#539 Drug Therapies-costs p.28-29 #606-#607
Bucast......................
p.21 #557 Drug Toxicities
p.l 8 #530
s
s
Cachexia..................
p.14 #504 EF-13
p.30 #615
e.
Cancer......................
p.32 #625 Exercise
p.l 4 #510
Candidiasis.............
p.18 #536 Factor VIII
p.30 #613
§
CD8+ Expansion
p.24 #563 Family Planning
p.28 #588
•
Cervical Neoplasms
p.28 #588 Fatigue
p.28 #584
Chinese Traditional Medicine
Financial Issues
p.29 #606-#609
.... p.28 #567,#568,#571,#578,#580 Fluconazole
p.18 #528,#529
see also New Resources section, p.27
p.28 #585,#587
Clarithromycin
p.18 #527,#533
Food Precautions
p.14 #518,#519
i
MOW TO USE THSS INDEX
Clarithromycin--------„..<zp.l^/#527A#533x,
MAC lacid«nce
May Be Top 01, by Peter
Ceorgr, Posfrive IMng, Feb. 1994 and Mar. 1994
(532)
\MAC if Not Your Fritnd, by Mirk Bowers,
\
v2 #2 Win 1994. p. 6/$33),
The page in HTIE where
the resource is cited
The HTIE reference number of
the resource can be found at the
end of the listing.
(m
5
¥
1
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p.32
X
LU
Q
HIV Treatment Information Exchange
Bibliography and New Resources Index
(continued from previous page)
Fungal Infection Treatment.. p.18 #529,#536
Kaposi's Sarcoma
p.18 #536
Rifabutin
p.18 #532-#533
p.21 #544
p.28 #581
p.19 #542
p.29 #597 L-524
p.21 #553 rHGH
.......... p.14 #512
Ganciclovir
p.19 #543
L-735
p.21 #553 RO 31-8959
p.21 #554,#560
p.28 #587
LTR Inhibitors
p.21 #550 Surrogate Markers
p.29 #600
Gene Therapy for HIV
p.21 #551
Liposomals
p.28 #581 Syncytia.................
p.21 #546
p.30 #614
p.29 #599 Tat Inhibitor..........
p.21 #556
Growth Hormone
p.14 #512 MEPRON
.......
p.18 #534 Testosterone..........
p.14 #512
Gynecologic Care
p.28 #588
Marijuana, Medicinal Use
p.14 #508 Tetanus..................
p.18 #540
Haemophilus Influenza b (HIB) .. p.18 #540 Marino!
p.14 #508,#515 Tetracycline..........
p.21 #560
Hairy Leukoplakia
p.18 #536
Measles
........ p.l8 #540 Thymosin................
p.21 #559
Health Care Costs.... p.28-29 #606-#607,#610 Mediterranean Diet
p.14 #516 TMP-SMX..............
p.18 #537
Health Care Services
p.28 #582 Megace
p.14 #509,#511,#515,#524
p.19 #543
HemaCare
p.14 #506
p.32 #626 TNF
p.30 #612
Hemophilia and HIV
p.30 #616
Megestrol
(see Megace) Toxicities
see Drug Toxicities
Hepatitis
p.28 #589
Mind and Body
p.29 #605 Toxoplasmosis
1........ p.19 #543
Hepatitis B
p.18 #540
Mother/Fetus Transmision .... p.21 #545 Traditional Chinese Medicine
Herbs
p.14 #510,#568 Mycobacterial Infection .p.18 #532,#533
see Chinese Traditional Medicine
ao
p.28 #571
............. p.19 #542 Trental
........ p.21 #560
see also New Resources section, p.27
see also New Resources section, p.l8 Trimethoprim Sulfamethoxazole
Herpes
p.18 #536
Myopathy
J............. pp.28
.28 #591
p.18 #537,#539
#591
HIV/AIDS Treatment-general p.18 #540
N-acetylcysteine
p.l
4 #515
1......... p.]9 #543
p.!4#515
p.21 #552
p.32 #623 Tuberculosis
........ p.19 #541
fa
1.........p.21 #554
p.28 #592
Neoplasm Treatment
p.!8#536 U-90
p.29 #595,#599,#601
Neoplastic Disorders
p.29 #597 Vitamins, Minerals & Nutrients
X
HIV Vaccines
p.14 #506
NeuTrexin
p.19 #543
....p.l4#500,#515,#521,#522,#526
p.28 #587 NNRTIs
p.21 #552
p.28 #576
5
Homeopathy.
p.28 #569,#574,#579 Nutritional Therapies.... p.14 #500-#526
.......... p.29 #598
Human Growth Hormone
p.!4#515
p.28 #573
see also New Resources section, p.27
Hydrazine Sulfate
p.14 #505
Oligonucleotide
...............p.18 #531
Weight Loss Wasting
p.14 #507 Opportunistic Infections p.18 #527-#543
Hydrochloric Acid Tablets
.. p.14 #504-#505,#507-#509,#511,
O • Hypercin
. p. 21 #554 Oral Lesions
p.18 #536
#512, #514-#517,#520,#524-#525
IFN-alpha
p.!4#506 Oxandrone
p.l4#512
p.32 #626
IL-2
p.24 #561
Pancreatin
p.14 #507 Women with AIDS
p.21 #545
IL-12
p.24 #562 Peer Education
.
p.28 #582
p.28 #582,588
H
Immune Reconstitution ... see Immunotherapeutics Pentoxifylline
p.21 #560
p.29 #596
Immune Modulation Pets
see Immunotherapeutics
...................... 1.
p.29 #611 Xerostomia
p.18 #536
Immunizations
p.18 #540
Pharmacies
p.28 #606 Yogurt
.....p.28 #573
Immunology
p.l8 #540
Pneumococcal Vaccine
p.18 #540 Zerit
..... p.21 #560
p.24 #564
Pneumocystic Carinii Pneumonia
Zinc
..... p.l 4 #526
p.29 #593
p.18 #534,#537,#539
p.28 #576
Immunotherapeutics
p.14 #501,#506
p.19 #543
p.21 #545
p.21 #551
Pregnant Women J
.... p.24 #561-#565 Prophylaxis
p.18-19 #529-#530,
p.29 #599
#532-3, #537-9,#542
p.30-31 #617,#618
J
p.28 #599
Influenza
p.l 8 #540
Protease Inhibitors
Insulin-like Growth Factor
p.!4#512
....p.21 #551,#553,#555,#556,#560
Insurance Issues....
p.29 #610
p.28 #587
Integrase Inhibitor
p.21 #551
see also New Resources section, p.21
Interleukins
p.24 #561-#563
Protozoal Infection Treatment
<2
ISIS 2922
........ p.18 #531
......p.l8 #528,#534
p.19 #543
Racial and Ethnic Communities
ISIS 5320
p.21 #549
p.28-29 #572,#590,#594
Isoniazid
p.l 8 #541
Reproductive Counseling
p.28 #588
ii
•s
g1
I
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I
......
HlayviwiN e ws
A COALITION OF PEOPLE AFFECTED BY HIV
May 1994
MISSION
We are diverse people living with HIV, united to promote self-empowerment
and enhanced quality of life for HIV affected individuals through advocacy,
education, peer support, and treatment activism.
To Err is Inhumane!
by Mark King
On April 11, a bizarre scene was being
played out at the DeKalb County
Courthouse, a scene which would lead to
confinement, media stories and eventually,
huge protests. John Kappers, a man with
AIDS who serves as Chair of AIDS S urvival
Project Board of Directors, was being
escorted to a courtroom on the third floor.
His escorts: three armed guards and his
lawyer, all riding an elevator wearing
surgical masks. The elevator would then be
shutdown, closed with police tape, and used
only to transport this high-profile guest in
and out of his court appearance.
Kappers had chosen not to comply with
a DeKalb County Board of Health order for
‘ ‘respi ratory isolati on,” an order wh ich wou Id
mean house arrest at his home. DeKalb
County Health Department considered him
a “threat to public health” because of his
diagnosis in December 1993 of multidrugresistant tuberculosis (MDR TB).
When Kappers, a longtime AIDS nurse,
learned of his MDR TB in December, he
immediately began a treatment regimen,
and for nearly two months beginning in
January, he was quarantined in his home
while being treated. MDR TB is a serious
illness, especially for its usual target: people
living with AIDS. However, Kappers
responded well to treatment and eventually
his chest x-ray became clear. His clinical
symptoms disappeared as well, but most
importantly, the lest used around the country
to detect TB, a TB “smear,” turned negative.
And then the next smear was negative. And
the next. Eventually, Kappers produced
over twelve negative smears for MDR TB.
Standardof care throughout the country,
from the CDC to the health departments in
New York to Miam i, consider three negative
smears and a clear chest x-ray as reason to
lift isolation. But back in that courtroom in
DeKalb, those results were not good enough
for the DeKalb County Health Department.
“We have produced a positive ‘culture’
forTB,”saidDr. SandersofDeKalbCount\.
“and we would rather err on the side of
caution in this case.” Sanders spoke through
a mask, as did virtually everyone in court
due to an order by Judge Daniel Course).
The only exceptions were Kappers lawyers,
who refused the judge’s fear-inducing
demands.
Dr. Vernon Houk, former Director of
Environmental Health for the CDC and a
man considered a national expert on TB.
testified that Kappers posed no risk to the
public, and the County’s reliance on the TB
culture was “irrelevant.” “The people in
this courtroomHouk testified, “have more
of a risk riding MARTA than they do sitting
here with John Kappers.” Houk a Iso refused
the mask order.
Without missing a beat, the Judge gave
his decision immediately after closing
arguments were complete. “I was impressed
by Dr. Houk's testimony, yet I rule for the
county,” Courson said. “Court adjourned."
Fear of contagion ruled while none was
proved.
wB4- ‘'IS
Pl
X——..
•-1'-----
Stunned by the decision, AIDS Survival
Project went into action. A protest, co
sponsored by ACT UP Atlanta, was set for
the following Thursday, and over 65 people
converged on the DeKalb County Board of
Health, shouting “Free John!” and placing
the building under mock quarantine. A
huge sign under the building’s name read
“QUARANTINE: Dangerous Levels of
Stupidity Present.”
In media interviews, Dr. Sanders
attempted to confuse the severity of MDR
TB with its infectiousness. No one disputes
its severity, but this strain is no more
infectious than normal TB, and the same
precautions should be taken. The same
criteria for non-contagion should also be
used.
In short, to strip a man of his civil rights
and freedom who has shown medical proof
that he poses no risk is a travesty.
Finally, the real issue here is that there
is no plan in Georgia, no protocol, to deal
with MDR TB. Kappers was the first
documented case, and the county chose to
lock him in confinement. Is that the extent
of their plan? “I like my home,” Kappers
said, “but this is imprisonment.”
continued on page 6
AIDS Survival
Project and ACT UP!
Atlanta members and
their supporters
"quarantined" the
Dekalb County Board
of Health on April
14th, in response to a
quarantine placed on
Board President John
Kappers.
Dear Friends.
thanks arc due this month.
Letter From As youSome
read this newsletter, it is
the Editor
(hopefully!) the month of May. but at
press time, it is mid-April, and this
Joe Greenwood
organization is in the middle of
demonstrations and extra advocacy work.
due to the John Kappers quarantine. You
will therefore find plenty about it in this issue—on the front page, the last page, and
several pages in-between.
As for my two cents worth, let me just say that John Kappers has become one of
my heroes. He has made all of his choices intelligently, honestly, and courageous!}:
he has become an inspiration to many HIV-affected people like myself. On behalf of
everyone here at AIDS Survival Project, I’d like to express to him our thanks for his
brave actions, our pride in his integrity, and our best wishes for the most positive
outcome possible. John even made sure to give me an HIV4- Advisor column (page 10-it's in the Treatment section now) during this turbulent time in his life. What a guy!
I would also like to thank Candyce, a new volunteer who now assists me with this
newsletter’s production. It’s not every day that I meet a volunteer so prompt,
conscientious and friendly. She has given generously of her personal time to help us
here, and in fact typed the overwhelming majority of articles in this issue, and did it
quickly and accurately. She is a pleasure to work with—thanks. Candyce. and
welcome aboard!
Finally, with Mothers’ Day this month, I guess I have some mothers to thank: m\
mom, Jane Greenwood, for her love and attention; my “other mom." Patti Greenwood,
for her kindness and inspiration; and my “mom” around this office, Liz England, who
makes all of our boo boos better, but can always be a real “mother" when she needs to
be. I love you all, and I’m very glad I have your support in my life.
Don’t forget your mothers on the Sth, and don’t forget John Kappers. either. Get
out today and appreciate your freedom, kids—I’ll be talking at you again next month!
In This Issue of Survival News:
P RO J EC T HA P P ENIN OS
TREATMENT U PDATE...............
H IV IEWP0 I NT S---------------------------COMMUNITY OUTLOOK........
CALENDAR OF EVENTS.......
CLASSIFIEDS...
TEAR OUT LETTER.................
3
7
....... . Il
13
14
'.«.««•***«« I
17
Volunteer Contributors
Candvce Avn
BillHarris
Don Harwell
Rose Nathan
John Ira Smith
David Stanley
Please direct all correspondence to:
AIDS Snrviva] Project,
44 Twelfth Street, NJE.
Atlanta, GA 30309-3979
Phone (404) $74-7926
FAX (404) $72-1192
Survival News is produced and pu lished
by rhe AIDS Survival Project which is
solely responsible for its content. If you
have articles you would like to submit,
please contact the AIDS Survival Project
office during/regular hours.
PLEASE NOTE: News and resources
included in this newsletter are for
informational purposes only and do not
constitute any endorsement or
recommendation of, or for, any medical
treatment or product by the
.AIDS Survival Project.
With regard to medical information, the
AIDS Survival Project recommends that
any and all medical treatment you
receive or engage in be discussed
thoroughly and frankly with: a competent
medical practitioner, preferably: your
personal physician.
Opinions expressed in various articles, of
this newsletter are not necessarily those
of AIDS Survival Project members.
Any individual’s association with the
AIDS Survival Project or mention of an
individual’s name should not be, and is
not, an indication of that person’s health
status,
Board Members
Tom Blount; Bonita Judon; Don Kricst,
Pharm.D-; Stosh Osirow, MD;
Chip Rowan, JD; Eppie Shields. RN;
Leigh VanderEls.
whose generous support
has in part made it possible
to publish Survival News.
SURVIVAL
Circulation: 3,700
Joe Greenwood, Editor
Board of Directors
John Keppers, President
Lola Halpin, Vice-President
Greg Stowers. Treasurer
Jim. Perry, Secretary
David C. W ill is. Member at Large
Caremark
1994
Formerly Atlanta NAPW'A News
newsletter sent to them stapled shut
should contact the AIDS Survival
Project.
AIDS Survival Project
would like to thank
May
HlsuEMNews
AIDS Survival Project Staff
Mark King, Executive Director
Alicia Cut ver. Associate Director
Liz England, Office Manager
Dawn Averitl-Doherty, Treatment
Resource Specialist
NEWS
Page
2
P R
E C T
HAPPENINGS
Free John Kappers! Develop a protocol for MDR TB! Respect the civil rights
of people with AIDS! Now that I have that out of my system, here’s a story for you.
H Craig Walker from 2()th Century Consulting presented a recent training for
AIDS Survival Project on cultural diversity. He told us about a school for dogs he once
visited, where they were trained to become seeing eye dogs for the blind.
Mark King
A trainer at the school explained to H Craig that dogs were taught empowerment.
How can a dog be empowered'?, he asked. The trainer presented this scenario. A dog is
leading its master to an intersection, and although the walk sign says it’s okay, the dog sees a huge truck barrelling toward the
intersection. The master commands the dog to move forward, and the dog resists, keeping its master out of harm’s way.
“That’s empowerment,” said the trainer. “When you are being told by a ‘superior’ to do one thing, but after interpreting the facts
you decide to do another.” By disobeying the master’s orders, the dog had become empowered. The trainer went on to say that there
are two types of dogs who will never pass the school. Those who never follow orders, and those who always follow orders.
Wait a minute. If a dog can become empowered, then so can we as people affected by HIV/AIDS. We can listen to the advice of
our parents and our doctors and other “superiors.” and then make the best choice based on our own assessment of the facts.
John Kappcrs is an empowered person living with AIDS. He sees this massive truck of hysteria barreling into our community, and,
despite the objections of uninformed “superiors,” he has resisted that dangerous walk into the intersection.
And I’m right there with him, as you should be. The story of John Kappers. and the lack of a rational policy in Atlanta for people
who may become infected with MDR TB, should sound the alarm to all of us.
Speak out! Mail the tear-out letter! Find out how you can become a part of forcing our health officials to develop rational policy
by calling us today.
Director’s
Report
The TB Culture Clash
by Mark King
In the case of John Kappers (see story
page 1), the bone of contention between TB
experts and the DeKalb County Health
Department is DeKalb’s use of a TB
“culture” to prove Kapper’s infectiousness,
Across the country, the standard of care
utilizes aTB “smear.” What’s the difference?
First, the smear. A patient is asked to
produce a sputum sample, which is phlegm
from deep in the lungs. This sample is
smeared across the lab glass, and investigated
for levels of TB bacilli present. A positive
smear would indicate that there are levels of
bacilli which could potentially infectanother
person. In some cases, bacilli may in fact be
found, but at levels not considered to be
infectious. Standard of care tells us that
three consecutive negative smears, taken
over the course of a week, prove the patient
to be non-infectious. Kappcrs has tested
completely negative to at least twelve of
these tests.
The TB culture is a different animal
entirely. A specimen, drawn the same wa\
from the patient as a smear, is placed in a
culture medium. Then, using “ideal
conditions,” thcspecimen is allowed to grow
until a TB culture is produced. The point of
aculturc, say TB expertsand most protocols,
is to measure how successful treatment has
been, or if a change in treatment is required.
No other state or county health department.
or even theCDC, uses cultures to determine
infectiousness.
Also important to note is thatonecough
by a TB patient in the presence of another
person is not necessarily grounds for
infection concern. Guidelines only consider
‘prolonged, intimate contact” with an
infectious person of concern in regards to
infection.
These facts are incredibly important to
the usual target of MDR TB, people with
AIDS. We must educate the public (and our
own health departments) so that we do not
return to the infection hysteria that we all
witnessed in the early 1980’s.
Texas HIV Quarantine Considered
i ..|t
j>.- i ~ ,..s JB
The Galveston County Republican convention passed a
resolution by majority vote of the 300+ members present on
March 26 calling for the quarantine of all HIV-positive
individuals. The resolution recommends the isolation and
quarantine of persons infected until a cure is found as well as
identification of those carrying the virus. The resolution was
blasted by AIDS activists in Texas, who equated the idea to
Hitler’s concentration camps.
The resolution is one of 115 that has been forwarded for
consideration to the state Republican convention that will take
place in June in Forth Worth, Texas.
Over 70 people demonstrated in front of the Dekalb County
Hoard of Health to demand a humane protocol for dealing with
MDR TH.
Need, to get the latest infoon^^^
AIDS Survival Project events and services?
^Call the HOTLINE: (404) 874-0384
Page
NEWS
3
SURVIVAL
May
1994
Why I Became a Peer Counselor
by Bill Harris
When I was initially asked to share my
reason for becoming a peer counselor, I
thought, “great, that will be easy.” Now in
retrospect, I realize that it took me a long
time to get to the pointof making the decision
to become a counselor.
I got “the test” in 1988 because it was
the thing to do, having nothing to fear
because I had been in a monogamous
relationship since 1985 with someone who
had just tested negative. When I was told I
was HIV positive, I felt anger and denial
both at once. I immediately recalled the one
“risky” act that happened back in 1985 and
I was mad that I had been so careful except
for that one time. I didn’t want to be living
proof that it only takes once, especially
when I knew of so many others who had not
been the least bit careful and were carrying
on as if they were immortal. The denial
aspect was basically the feeling of “no way ;
this isn’t happening to me.”
Well over a year after testing positive
my denial gave way to fear and I finally
decided to see a doctor. I knew very little
about AIDS other than the chances of
survival were better if it was caught early.
By this time I had actually lost a friend, so
the fear really hit me. The doctor I chose
was excellent for me and we have a great
healing relationship. My cells were low
enough that I had to be put on AZT, which
I took willingly and have had no problems
with.
Two years after testing, only my lover
and my doctor knew my status and the
issues started to build for me. My lover
supplied a lot of information but little
emotional support, and this eventually
became a reason for our break up. My
doctor was my source of information and
encouragement. Somehow I heard about a
positive support group, which after weeks
of building courage, I decided to attend. It
was great. After over two years of isolation
I was able to open up, express my fears and
learn to deal with my issues. I was very
lucky in that I found a group that was very
positive about living. I learned that AIDS
wasn’t a death sentence, that I did nothing
that I should feel guilty about, and that I
shouldn’t fear anything, especially my
emotions. The love and support from this
group over the next three years helped me
grow into a heightened awareness of who I
am. I learned that I had dealt with so much
fear and guilt on my own and that was
May
1994
•
eventually replaced by hope and love. Il
became vitally important to me that I love
who I am, learn to live each day fully and
completely, and share as much joy and hope
as I have to give. Five years ago I would
have said, “Bill, grip reality.” The reality is
you get back only as much as you can give.
I slowly started seeking information
and resources, and that was how I learned
about Operation: Survive! With my friend
and fellow support group buddy, Joe
Wheeler, we took it together. Everything
you’ve heard about Operation: Survive! is
true; it is a truly great experience. The
information was abundant and so were the
expressions of hope and love. It was from
that weekend that I knew that I had done a
lot on my own and that I was to the point that
I needed to give back all that I could. Others
shouldn’t have to go it alone as I fell that I
had done.
Joe and I both got involved. Joe is the
Tech Team Leader and does an excellent
job. Only I can say, “I knew him when.” I
have recently completed training as a peer
counselor and an Operation : Survive! group
leader. In addition to working my 40+ hour
a week regular job. I dedicate time to be a
peer counselor, and with each phone call I
realize that there was that one time that I wa>
at the other end of the line. I know' my time
is helping is important because it feels so
right.
In March, I got my first experience as a
group leader for Operation Survive!, which
turned out to be incredible. My purpose was
io listen, give and be there for the people in
my group. Little did I realize that they
would open up so much and give back so
much to each other and to me. I was on a
high for days. The emphasis for the group
and the weekend was not “dealing” with
AIDS but “surviving” AIDS and “living”
life. Two thoughts have been on my mind
since my first experience as a group leader.
First, only when we see the light at the end
of the tunnel is everything that lies before us
fully illuminated and second, the journey
begins long before we reach our destination,
and both should be enjoyed.
The reason I became a peer counselor is
simple. When I introduce myself at
Operation: Survive!, I say that I have been
HIV positive for eight years and positive
about life for four. I know that those last
four years have been not just surviving, but
learning to live as fully as possible. I have
realized that there is really nothing to fear
but my perceptions and that knowledge and
awareness are keys to the doors of life. I
hope that through my being a peer counselor
and group leader that in some way others
will realize that they don’t have to settle for
surviving, as I did for four years, but that
there is a long, full and complete life yet to
be lived.
(If you'd like to be an AIDS Survival
Project Peer Counselor, please call and ask
for a new peer counselor packet at 8747926. Training begins with Operation:
Survive! May 21 and 22. and will conclude
in June. We could sure use your help!)
AIDS Survival Project Sponsors Float For Gay Pride
by Greg Stowers
Lesbian and Gay Pride weekend this
year will commemorate 25 years since
the Stonew'all riot. This event marked
the beginning of the struggle for gay
rights. No longer were gays to be
subjugated to dark bars fearing the
inevitable police raid. Twenty five years
ago the patrons of the Stonewall bar in
New York city decided to act up and
fight back. Gays and lesbians have
come a long way since that evening and
still have a long way to go for equality.
The gay community was the first to
respond to the AIDS crisis in America
and still contributes greatly to the cause.
Each year during Pride weekend, wc
raise much needed funds for AIDS
SURVIVAL
Survival Project and we need your help.
This year Pride weekend in Atlanta will
be June H 8c 12. We will have a float i n
the parade on Sunday for those people
who rather ride than march
We need volunteers to help design
our float and decorate the booth. This
year’s theme is “From Stonewall to
Atlanta.” We also need people to help
during the weekend and march in the
parade. To volunteer, plan to attend the
May 17th special events committee
meeting at 6:00 p.m. at 44 Twelfth St
Or call Liz at 874-7926 and sign up. If
you would like to march with us, be at
the Civic Center before noon on Sunday,
June 12 and look for our float and banner.
NEWS
Page
4
Programs
A Listing of Free Programs
Offered by the AIDS Survival Project
Update
Alicia Culver
PEER COUNSELING
If you are HIV+ and have a healthy
approach to your life and health, we still
need you as a peer counselor. The rewards
are many and you would be amazed at the
difference you can make in someone clse’s
life. Peer counselor scheduling is quite
flexible-some peer counselors work once a
week, some as little as once a month-and
we do have evening and Saturday hours. If
you are interested, please call 874-7926,
and ask to be sent a peer counselor packet.
Here are the training dates for new
counselors:
May 21 & 22: Operation: Survive! at the
Ponce Medical Center
June 8, 6-10pm: Orientation and
Community Resource Training
June 18, 10:30am to 4:30pm:
Counseling Skills Training
I’m thrilled that we can now offer peer
counseling at the Grady Infectious Disease
Program on Ponce from 1:00 to 4:00p.m. on
both Tuesday and Thursday afternoons. Go
to the community room or just ask someone
in education.
OPERATION: SURVIVE!
Operation: Survive! goes on the road
(slightly) in May. The next workshop will
be Saturday and Sunday, May 21st & 22nd
at the Grady Infectious Disease Program at
the Ponce Medical Center (341 Ponce de
Leon). We are very excited about the
opportunity to reach more people with this
exceptional educational and empowering
workshop. If you would like to learn more
about HIV, treatments, complimentary
therapies, disability, legal issues, nutrition
and much, much more--jusi call ahead to
register, 874-7926. Call early though, space
is limited and the workshop fills up fast!
We will need as many technical team
people as we can get so the workshop will
go smoothly. If you’ve got a few hours to
spare during the weekend of the 21st and
22nd, please help! We’re also in pretty dire
straights for food for upcoming workshops
after May. If you are a food vendor or you
have some buddies in the restaurant biz.
please call me right away to help us get food
donated. There is no funding for this, so we
can only provide food if we can get it donated.
Page
5
The AIDS Survival Project offers a variety of programs available free of charge
to our members. To be a member, one must only be affected by HIV. To
participate in a program or to volunteer. please contact our office at (404) 8747926.
Advocacy
The AIDS Survival Project uses its
collective voice to advocate for
topics ranging from health services
to housing to public policy. The
Advocacy Committee is at your
service should you have an issue
regarding your rights as an HIV
positive individual and need their
assistance.. Contact us at (404) 8747926.
Peer Counseling
Sometimes you need to speak with
someone who knows what it's like
to live with HIV: our peer
counselors are HIV positive and
.. specially trained to hear your
concerns and offer support and
referrals. Peer counselors arc
available weekdays. Mondax
evenings and Saturday afternoons
Contact our office at (404) 8747926 for hours - appointments arc
not necessary.
Operation: Survive!
If you have tested HIV positive, or
are otherwise affected by HIV. this
intensive seminar is a wealth of
information and support. Lead b\
HIV
positive
facilitators.
Operation: Survive! coders HIV
treatments, legal issues, insurance,
safer sex, stress management and
much more. Contact the AIDS
Survival Project office to reserve .i
place for the next presentation of
this invaluable program.
Treatment Resource Center
Open weekdays and Wcdnesdax
evenings, our treatment library
SURVIVAL
NEWS
offers a vast collection of the latest
information on HIV treatments,
drugs and therapies. Volunteers
are available to assist you in finding
what you need, and you are
welcome to copy and take whatever
information you find helpful. The
Treatment Resource Center is
located in our offices.
Treatment Forums
Several times per year we sponsor
a noted physician or AIDS
researcher to come share the latest
in HIV information. Recent guests
have included Martin Delaney
( Project Inform), Dr. Larry Waites
and Dr. Paula Sparti of Miami.
Check the newsletter for upcoming
forums or contact our office for
more information.
Support Groups
The AIDS Survival Project
currently hosts three support
groups in our offices for persons
affected by HIV/AIDS, including
a group for women only. More are
currently being developed. For
information on times and days,
please contact our office.
PWArty Saturdays
The 1st and 3rd Saturdays of each
month, the AIDS Survival Project
hosts a party at our offices for the
HIV positive and "HIV friendly.”
Come join us for a bar-b-que, board
games or videos in an atmosphere
where HIV disclosure isn’t an
issue. Reservations are not
required: please drop in or contact
our office for information.
May
1994
i
Volunteer
Corner
Liz England
Hope you all are surviving the pollen
that has been raining down upon us for the
past month. I have not had time to even
think about it!
I am beginning to feel like the boy
who cried wolf, what with my need for
volunteers all the time. I had an article
several months ago interviewing Michael
Jaye in which I talked about the need for
help with the PW Arties. I got no response,
I mean nil. Now I am in really desperate
need of people to help with the PWArties!
Michael Jaye has had a change in his work
schedule and is no longer able to spearhead
this important program. A committee is
being formed to steer these social events
and we need you to be a part of it! There
is no financial obligation needed on your
part-your time and imagination are all
that is needed to make the PWArties a rip
roarin good time for all. If you are a
doubting Thomas, come by the next
PW Arty and see for yourself! They are on
the first and third Saturday of every month.
I want to thank all the volunteers who
put in extra time this month; you helped
with our Spring Cleaning days: Paul,
Peter, Dave, and Steve. And many of you
came out after hours to experience
diversity training. There were too many
to name; you know who you are, and I
thank you!
Please oooh and aahh over our new
gutters and ceiling tiles in the library. The
HIV/AIDS Action Group from UUCA
(Unitarian Universalist Congregation of
Atlanta) spent a great deal of time and
money to repair our facilities for us. They
are truly a fabulous bunch of folks! Special
thanks to Terrie and Gary Beale for
heading that project up.
I also want to say a big thank you to
all those folks who turned out to
demonstrate against the Dekalb Count\
Board of Health on April 14. You were
given short notice and you came anyway
to show your solidarity and support. Your
presence and voice there made a big
difference. And it is always heartwarming
to see that so many people still care. People
who say activism is dead in the AIDS
community obviously don’t know you
guys!
Finally, I want to let those of you that
have yet to get involved know that our
next new volunteer open house and
orientation will be on May 24 from 6:00
p.m. to 7:30 p.m. here at the office. The
curious, sure and unsure alike are welcome
and encouraged to come. Remember,
exploration of options is very important!
Hope to see you there! Oh, and make sure
to check the calendar of events! There are
some fun events in the works!
To Err is Inhumane!
continued from page 1
What will the state do with case number this issue to Dr. Kathleen Toomey at DHR,
two? If Kappers, who all parties at the who oversees DeKalb County, and tell her
hearing testified was a “model patient;'
that this state deserves better. Tell her that
cannotescape housearrest, what will become
we must have a rational protocol to deal
of
of another
another person
person without
without his
his resources to
with an illness that has only begun to show
fight back?
its face in our state.
Another protest on April 21st at the
Meanwhile, John Kappers sits and
Georgia Department of Human Resources
waits, fighting off his own cabin fever. 'Tm
(DHR) drew a crowd of over 50 people.
wondering," said Kappers, "how many
What can you do? Send the tear-out letter in positive tests will be enough."
The Survival Campaign
&
A List of Support
The AIDS Survival Project -wishes to gratefully acknowledge the kind support of those listed below, the members of The
Survival Campaign. These donors are making a difference in our programs, and their numbers are growing daily. To
find out how you can become a part of The Survival Campaign, contact our offices at (404) 814-1926.
Champions
($10,000 and above)
Anonymous
Burroughs Wellcome
Elton John AIDS Foundation
Metropolitan Atlanta Community Foundation
Schering Company
Straight from the Heart
United Way
Advocates
(SI,000 - $4,999)
Atlanta Preferred Plan
Caremark
Hollywood Hots
Carlos Lopez. M.D.
Option Care
Pfizer Roerig
Pride Medical Group
Sheraton Colony Square Hotel
Dean Bergman Smith
Mark Tanner. M.D.
Founders
($5,000 - $9,999)
Bacchanalia Restaurant
The Care Group
Caremark
Hoffmann-LaRoche, Inc.
Dr. Rick Hudson
Managed Healthcare Services
Michael D. Rankin, M.D.
SmithKline Beecham
Southern Voice
Benefactors
(S500 - $999)
Adria Laboratories
Dick & Sandi Averill
The Heretic
William E. Menecly
Slosh Ostrow. M.D.
Dr. Jesse Peel
May
SURVIVAL
1994
Sponsors
($200 - $499)
Anonymous
Gary Buffington
John Chambers
James & Mary Grace Earhart
Rick Glass
Ada C. Goff
Martin A. Haber
David M. Harris
Michael Jaye
Susan Kupferberg
David Muir
Gary Nightingale
Roberi Sattler
Ava Diamond Suber
David C. Willis
Cl he listing of individual donors reflects their
level ofpart icipat ion inThe Survival Campa ign,
and may not include other gifts of support.)
NEWS
Page
6
ft
TREATMENT U P D A :
The Facts About Tuberculosis
Treatment
As many of you know. Tuberculosis (TB) has been in the news quite a bit lately.
News
Unfortunately, there are quite a few misunderstandings and misconceptions floating
around. Here’s what we knowAas well as what we think we know about Tuberculosis.
TB is a communicable disease caused by a bacteria called Mycobacterium
tuberculosis (my-ko-back-tear-e-um to-ber-kyoo-low-sis). This bacteria usually
affects the lungs, but it can affect any organ in the body. TB is spread by airborne
particles coughed or sneezed by a person with active disease. This distinction is important because an estimated 10 million
Americans carry the bacterium and only 3-10 percent of these people will actually develop active disease. Although, people who
are infected with both TB and HIV have a 7-10 percent chance each year of developing active disease.
Active TB is usually diagnosed by a sputum culture coupled with fluid on chest x-rays and clinical symptoms. Sputum is a
mucous material produced by the cells lining the respiratory tract-also known as phlegm (sounds like “flem”). The culture is a
test of the sputum to see how long it takes to grow TB bacteria. This is a timely process since it can take up to twelve weeks to
analyze a sputum culture.
The test that is the standard for measuring infectiousness, meaning the ability to pass TB from one person to another, is a test
of the sputum called a sputum smear. A smear is literally a smear of the sputum that is mixed with a colored dye to show if TB
bacteria is present in the sputum. If this test is positive it means that the potential is there for bacteria to be coughed or sneezed
into the air, which is how TB is spread.
There are two types of Tuberculosis. The most common is a form of TB that is treated effectively with a combination of the
many drugs specifically indicated for TB. The other is a form of TB called Multi-drug Resistant Tuberculosis (MDR-TB). MDRTB is TB that docs not respond to at least two of the approved drugs for treatment. The strains of MDR-TB are identified by how
many and which drugs they are resistant to.
The case we have all been hearing about is a strain of MDR-TB called ‘‘Strain W. Strain W appears to be resistant to six drugs.
This has caused a great deal of concern in the community for obvious reasons. Whm is important to understand is that although
Strain W is considered a more serious form of MDR-TB because there are fewer treatment options, there is no literature available
that suggests that it is more infectious than any other form of TB.
Tuberculosis can be a serious threat to someone living with HIV or AIDS, but TB is not easy to contract in normal every day
situations. It is most commonly spread in hospital rooms between patients, one of which who has active, contagious TB, that spend
hours or days breathing the same air. It is not contracted in a parking lot. walking dow n your street, or playing in the park. If you
are concerned about TB or have any questions about information that you have heard, drop by the office and visit our Treatment
Resource Center. More importantly, ask questions and educate yourself.
Any person living with HIV should be tested for exposure to Tuberculosis. If that test is positive, it is very important to begin
preventative treatment. We should all be aware that the symptoms of active pulmonary TB can be very similar to the symptoms
presented by other opportunistic infections such as PCP and MAC/MAI.
Dawn
Averitt-Doherty
Georgia Task Force on AIDS Seeking Nominations
The Georgia Task Force on AIDS recently amended ihcir by-laws section on membership to include six new members! Of those
six members, four slots are specifically for self-disclosed HIV+ representatives from iheir respective communities. The other two
are also for people involved in their HIV/AIDS community, but who are not necessarily HIV+. This is a really important
breakthrough and an excellent opportunity for people living
with HIV and AIDS to be directly involved in state-wide policy
Safer sex is
and decision making.
serious business,
If you are interested in nominating yourself or someone
but getting it can
else, the following materials must be received by May 31.1994:
still be a game...
• nominee's resume or curriculum vitae
• at least 2 letters of recommendation
• letter from nominee explaining interest and qualifications
You should be aware that if you are interested in the HIV +
spccific positions that you must be willing to disclose your
status and be comfortable with that disclosure. Interested
parties should send the required materials to: Diana Kirkpatrick,
Coordinator, Georgia Task Force on AIDS, Epidemiology
and Prevention Branch, Georgia Department of Human
"We're putting the sex back into safer sex."
Resources, 2 Peachtree Street, 10th Floor, Atlanta. Georgia
Every Friday at 9 pm at the HERETIC
30303-3186. If you have any further questions you may contact
Info: (404)325-3061.
Dawn at our offices, 874-7926.
Safe
Connection
Night
Page
7
SURVIVAL
NEWS
May
1994
Women Get HIV, Too!
We all know how difficult it is to find
good, thorough research and clinical
information on women and HIV. Whether
you are a woman living with HIV, a friend,
a caregiver, a peer counselor, or a health
care provider, we’ve just made your search
a little easier! AIDS Survival Project and
Sisterlove are co-sponsoring Dr. Judith
Cohen, a Research Epidemiologist and
Director of Project AWARE (Association
for Women’s AIDS Research and
Education), to be the guest speaker for a
women’s issues forum in June. Dr. Cohen
has been involved in studies on women
and HIV since 1983 when she became
Program Director for the Association for
Women’s AIDS Research and Education
in the AIDS Division at San Francisco
General Hospital. She should provide a
great deal of insight and serve as a
motivator in our efforts to encourage more
women specific trials.
The forum, our sixth in the 1994 HIV
Survival Series, willbe Sunday, June 12th
from 3:00pm-5:00pm at the Grady
Infectious Disease Program and is free
and open to everyone. There will be child
care available from 2:45pm-5:15pm. For
more information, please call our offices
at 874-7926.
From our March forum
on "Staying Healthy
with HIV" (I. tor.):
Richard Copeland, one
of our two featured
speakers; Dawn AverittDoherty, Treatment
Resource Specialist;
David Baker, RN, MSN,
our other featured
speaker; and Dennis
Davis, Executive
Director of the Atlanta
Buyers Club, who co
sponsored the event
with AIDS Survival
Project.
The 1994
HIV
I Series
Iva
Clinical Trials Update
with
Michael Saag, M.D.
Director of Birmingham AIDS Trials Site
Of Special Interest in May
ROOMMATES
Starring
RANDY QUAID and ERIC STOLTZ
Sunday, May 15, 1994
2:00 PM - 4:00 PM
Colony Square Hotel
Co-sponsored by
AIDS Research Consortium of Atlanta
(ARCA)
This is a free presentation open to the public, and
reservations are not required. For more information,
please contact AIDS Survival Project at 404/874-7926.
Don't miss Randy Quaid and Eric
Stoltz as two men with AIDS from
different backgrounds.
On NBC-TV May 30, they star as
unlikely roommates who come to terms
with their prejudices during a
compelling two-hour film inspired by a
real-life situation.
May 30 at 9:00 pm EDT
on NBC-TV
(Channel 11 in the Metro Atlanta area)
May
1994
Another free program of..
r M A A AIDS------------------------------
fl SURVIVAL
▼
A PROJECT -
A COALITION OF PEOPLE AFFECTED BY HIV
44 Twelfth Street NE Atlanta GA 30306 874-7926
SURVIVAL
NEWS
Page
8
Atlanta Buyers Club
P.O. Box 77003 • Atlanta, GA 30357-7003
Phone: (404) 874-4845 • Fax: (404) 874-9320
Available at ABC
Acidophilus
100 softgels $ 7.00
Vitamin E
1.000 I.U.
$ 8.00
B12 Nasal Gel
400mcg.
9.00
NAC effervescent
600m g
11.00
Beta Carotene
25,000 I.U.
9.00
Jarrow Pak+ multi Vit./minerals
25.00
Co-Q-10
30mg,
26.00
PCM-4
30 day supply
70.00
Curcumin
500mg.
14.00
Pentamidine
3()0mg.
30.00
d4T
lOmg.
37.00
Peptidc-T
90mg.
73.00
Derma Heal
8.00
Resist!
750 mg, 180 tablets
44.00
DHEA
250mg.
60.00
Sporanox
lOOmg, 15 capsules
22.50
Hypericin
lOmg.
36.00
St. Johnswori
.Olmg hypericin
10.00
L-Carnitine
25Omg.
14.00
Hypericin
img. 30 capsules
30.00
Leucotrofina
8Omg.
38.00
Vitamin C buffcred/powdcred
10.00
NAC lOOcaps
500mg.
12.00
Viroterm
200 I.U.
55.00
NAC 200caps
500mg.
23.00
Ampnotcricin B lozenges
28.00
Some products carry special requirements such as a doctors prescription, physician monitoring form or
informed consent. Please call ABC at (404) 874-4845 for further information.
New Products
This month, ABC introduces three new products. Amphotcricin-B throat lozenges for treatment of recur
rent, chronic, non-responsive thrush is available, lOmg each. 60 per box. Current suggested price is $28.00. A
physician prescription is required.
We have acquired forms of vitamin E and acidophilus that arc free of sugar, starch and preservatives. The
vitamin E comes 50 softgels per bottle. 1,000 I.U. each and costs $8.00. Acidophilus is packaged 100 softgels
per bottle and cost is $7.00.
Acidophilus
(The following is reprinted from Treatment Issues, the Gav Men's Health Crisis Newsletter, Volume 7, Number
11U2.)
Lactobacillus acidophilus (L. acidophilus) is the most well known of a type of acidophilus bacteria (bacte
ria attracted to acid). It has been suggested that L. acidophilus is a beneficial or so-called “friendly bacteria”
which provides an important function in the body. Live cultures of L. acidophilus can be found in a number of
brands of yogurt or acidophilus milk and in the form of powders, capsules, tablets and liquids which are available
in health food stores. L. acidophilus is measured by the amount of viable bacteria per dosage (in the millions).
Test tube studies have shown that L. acidophilus can inhibit the growth of Candida albicans (candidiasis),
the fungus associated with “thrush” in the mouth, esophagus or vagina. Varying levels of success have been
reported using yogurt and L. acidophilus as a treatment for vaginal candidiasis.
A study conducted by researchers at Long Island Jewish Hospital and published in the Annals of Internal
Medicine, reported that women with recurrent vaginal candidiasis who consumed eight ounces a day of yogurt
high in L. acidophilus had a threefold reduction in the number of Candida infections and laboratory measured
Candida colonizations. The authors of this report also noted that a number of dairy products did not contain the L.
acidophilus that had been advertised on the label.
Some suggest the use of L. acidophilus to rcimplant friendly bacteria into the gastrointestinal system. A
number of physicians routinely suggest that patients undergoing anti-biotic therapy, consume eight ounces per day
of yogurt with L. acidophilus. It has also been suggested, based on test tube studies that L. acidophilus may have”
potential anti-biotic effects of its own. There have been no reports of L. acidophilus related toxicities; however, it
is unknown whether the compound has any effects on the absorption of anti-biotic medication.
Please Note: The service of providing access io or information about treatments or therapies in no way implies any claim,
endorsement or recommendation. We at ABC arc not licensed medical profcssionu/.\. We strongly encourage you to discuss all
treatment options and strategies with your health care provider.
Page
9
SURVIVAL
NEWS
May
1994
II
■W!
%
Attention Readers: This column is designed to answer any HTV+ related
questions. Medical and legal professionals will be consulted as necessary.
If you have an H1V+ related question you would like answered, please send it
to: AIDS Survival Project, HIV+ Advisor,
44 Twelfth Street,Atlanta, GA 30309 or FAX to (404) 872-1192.
HIV+
Advisor
rJohn Kuppers, R,
Vi
Q. Dear HIV+ Advisor:
I’ve noticed a couple of friends with
facial warts. Are these related to HIV
infection? -T.R., Smyrna
A. A specific type of wart, molluscum
contagiosum, is a viral disease that occurs
more frequently in the HIV infected person.
Treatment options include freezing them
with liquid nitrogen or light electrocautery.
The lesions can be spread by shaving, so use
a new disposable razor each time. Retin A
cream is somewhat successful in preventing
new lesions.
Q. Dear HIV+ Advisor:
What is NAG? -J.B., Atlanta
A.
N-Acetyl-Cysteninc (NAC) is
categorized as an amino acid anti-oxidant.
The usual dose is 1000 to 3000 mg. per da\.
Intial research has indicated stablization of
CD-4 counts and users report increased
energy. It is thought to be synergistic with
AZT and Vitamin C. Contact the Atlanta
Buyers Club at 874-4845 or AIDS Survival
Project's Treatment Library for more
information.
Q. Dear HIV+ Advisor:
I have ulcers in my mouth. I have been
losing weight because it’s painful to eat or
drink. What can I do till the ulcers are gone?
-C.C., Atlanta
A. Avoid hot or cold liquids; try fluids at
room temperature. Eat soft foods such as
pudding, and supplement your diet with
nutritional liquids such as Ensure.
Q. Dear HIV+ Advisor:
Any possiblily of an IL-2 study
happening in Atlanta? -G.B.. Atlanta
A. ARC A has apparently formed a study
group to look at the possibility of a study on
IL-2. Contact ARCA for further information
or to get involved in making it a reality.
1000 Expected to “March With a Buddy”
During Stonewall 25
so
’
Critic
Q
light
<
&
W
Q
w
o
fit
With your donation of $25, you will receive a t-shirt or
tank top with the meanings of the pride flag, shorts with
side pockets imprinted with a pink triangle, and an AIDS
Survival Project button.
^Send S25 to AIDS Survival Project, 44 Twelfth St., Atlanta. GA 30309-3979
n
|NAME
i
ADDRESS
CITY
ST
ZIP
J SHIRT SIZE: M L XL or TANK SIZE: M L XL
J SHORTS SIZE: S M L XL
i
| VISA/M as terCard
| Expiration Date
^Signature
J.
May
1994
I
I
i
A casual remark by a homebound Al DS patient was the inspiration
for whai is sure to be one of the most dramatic, emotional moments of
the Stonewall 25 march on the United Nations, Sunday June 26.
"I wish I had walked in a Gay Pride parade,” was the comment
made by Bob Cohen io his friend Ron Antman. After Cohen’s death
last year, Antman was determined to fulfill his wish.
And so. ■'March With a Buddy," a part of the Stonewall 25 march,
was conceived. Initially, Antman intended to march in the parade with
Cohen’s snapshot is his pocket. After mentioning the idea to friends,
Antman discovered that many knew ill people they wanted to represent
in the march, too. So with the help of his business partner, Owen
Fragcr. Antman decided to do something that would remind everyone
of the hundreds of thousands of people who are cither too ill to march
or who have aireach succumbed to AIDS.
Now in the works, the actual "March With a Buddy” program is
much loftier that the original idea. Instead of snapshots, participants
will march \\ uh posicr-size enlargements. And instead of a few dozen
marchers, organizeis anticipate upwards of 1000 people.
"The plan kept growing,” Antman said. “Yet, w'e realized we
could never afford anything this ambitious ourselves. So we began
looking fora company willing and able to help make it happen.” Enter
Priority Pharmacy, one of the nation’s largest overnight home delivery
prescription services.
The partners wrote to David Zeigcr, president of the San Diego
based company, outl ining the parade’s concept and asking for his help.
“When I read the letter, I thought about all of our clients and all the
other PWA’s,” Zeigcr said. We’ve been working with AIDS patients
since 1987 and many have become like family. It seemed incredibly
important that they be represented in this march.”
After agreeing io underwrite the event, Zeigcr made some small
additions to the program. Priority will give each marcher a “March
With A Buddy” T-shirt to wear in the parade. “Ideally, theT-shirts will
unite the marchers. They will also make a great momento of the event,
and help that the participants.”
To participate in the event and receive a registration form, cither
as a marcher or to have a picture carried, call 800-313-8485. All
marchers will be noticed when and where to pick up their poster and Tshirt, which we be dose to the march’s origination point.
SURVIVAL
NEWS
Page
10
Z/ZKiewpoints
From A to (Compound) Q: Some Pros and Cons of Alternative Therapies
by Don Harwell
When the cure is found, and it will be and massage therapies arc also useful if not Touch, a healing energy exchange delivered
found, who knows from whence it will essential.
by a trained practitioner. It really seems to
come: maybe from the research department
AIDS Survival Project has considerable help. I have also taken several different
at the NIH, the CDC, the French researchers information on many such alternatives, as herbs and vitamins over the years, but none
who first isolated HIV, from Harvard or well as data about clinical trials of anti religiously, until recently. And I feel that all
Vanderbilt. Or, it may come from Native virals and treatment and prevention of certain of us have the responsibility and the right to
American compounds, ancient Chinese opportunistic infections. I would encourage make all of these choices for ourselves.
therapies or from a common plant, animal all PWA's to familiarize yourself with the
When investigating experimental
or pharmaceutical source.
many options available. I truly admire the programs, keep a few things in mind. The
As we follow the progress (or the lack diligence and confidence of those who ones which are above board are usually free
thereof), we must remember that no cure aggressively seek out. investigate and or low cost, can provide results published in
has ever been found for any viral or retroviral participate in these trials and experimental reputablejoumals, are usually affiliated with
infection. Vaccines, antibiotics and careful programs.
an established research or medical center
infection control have led to incredible
Two words of caution, however. and are modest in their claims. If the costs
progress in treating and preventing bacterial Whatever approaches you elect to try. let are prohibitive, promises are elaborate,
infections and antifungals (such as Diflucan) your doctor know about them. There may testimonials largely anecdotal and theresult
have proven effective as well. We can only be side effects, contraindications or arc not verifiable, you are probably wasting
hope that similar breakthroughs await the synergistic interactions you may not know your time and money.
world of virology.
about. A good doctor will usually offer his
Participation in clinical trials such as
Like diabetes, scientists hope that HIV or her opinion, but will respect your decision those in Birmingham and Nashville can be
will eventually become a long term, chronic in such matters. Secondly,! personally feel re warding, a source of hope, and can benefit
manageable illness, even if a cure continues that unapproved and largely untested both the PWA and others in the future.
to prove elusive. Many AIDS activists regimens should be attempted in conjunction Most, however, have stringent requirement
claim that AZT is killing more people than with approved medications, not as a regarding T-cell counts, previous medication
it helps, and the studies are inconclusive on complete replacement for them.
use, previous or current opportunistic
its long term effectiveness. Yet, whatever
Frankly, I have been to too man\ infections, age and other criteria.
your opinion about AZT, ddl, and ddC (all funerals for PWA’s who either refused all Considerable travel time may also be
anti-retrovirals), there is no question about traditional methods or dispensed with them required along with additional lab work,
the tremendous strides made in treating and in favor of herbalists, meditation or other pledges to refrain from taking other meds,
preventing many of the opportunistic holistic measures exclusively. Then again. and most involve a long term commitment.
infections which PWA’s often develop. I I have probably been toeven more funerals In February 1994, Emory University at last
recently read that of the 27 AIDS defining for those who followed only medical models. agreed to participate in selected clinical
illnesses, only a handful are without Particularly insidious are those who trials-a first for Atlanta.
prophylactic measures. Pneumocystis convince end-stage AIDS patients to avoid
Also know that Phase I trials are by
pneumonia has often been prevented or any and all pain medication and comfort definition only to determine toxicity levels
effectively treated with Bactrim, measures. There is too much suffering as it and Phase II experiments for dosage
Pentamidine or Dapsone.
is.
determination. Tests of newanti-retrovirals
Before going any further, I should
I also admit to a rather healthy use AZT for the control group, and placebos
acknowledge that I have a bias toward the skepticism about some of the alternative are appropriately avoided.
medical model. I have worked in hospitals therapies, especially those which promise
Don’t be afraid to investigate alternative
for most of my professional life, I trust my “cures” and which cost tens of thousands of therapies, to participate in clinical trials and
doctors and have lived for five years with a dollars. Since I began following HIV to lake charge of your own health. At the
T-cell count in double digits. I would also disease, miraculous results have been same time, approach them with your eyes
admit that many of the health problems I reported or rumored for Ampligcn, egg open, hedge your bets, check them out from
have suffered have come from medication lipids. Compound Q, hyperthermia, bitter several objective sources and be realistic
allergies and adverse reactions: pancreatitis, melon, seaweed derivatives, ozone enemas. about possible outcomes. And do not turn
skin rashes, personality changes, Aloe Vera, bone marrow transplants, your life savings over to crooks and kooks
sleeplessness and fevers.
macrobiotics and a variety of other methods. who promise the moon but deliver little.
Many PWA's have experienced Almost all of them have since been shown You’ll need the money later. For in the end,
phenomenal results by combining traditional to be useless, harmful orof dubious benefit, both the traditional and the non-traditional
therapies (perhaps not the most accurate Many “make sense” in a primitive way. approaches are needed, nay necessary. The
term) along with non-traditional approaches especially when we want then to work so best results just may be from therapies that
(again, an odd choice of words). Many of us desperately, but do not stand up to objective are the cheapest, the most simple or even
take certain herbs, vitamins, food scientific scrutiny.
free. When a cure for AIDS is found, it
supplements and buyer’s club products, and
Yet, my skepticism (some would say won’t be a closely guarded secret for longothers have undergone experimental cynicism) has not destroyed my conviction -we will all learn about it together. What a
diagnostic and therapeutic procedures. Of that HIV should be fought on a variety of day that will be!
course good nutrition, exercise, relaxation fronts. For years I have received Therapeutic
Page
11
SURVIVAL
NEWS
May
1994
Positive
Attitude
David Stanley
The Serenity Prayer
Stress can come in two forms, good and
bad. Good stress can keep you active and
alert. It can push you to set and reach goals
and it can help bring the good feelings that
come with accomplishments.
Bad stress can result from trying to do
too much, or from worrying about things
that are completely out of your control. It
can also come from any fear you might have
or from regrets over something you did.
A wonderful lesson in learning to avoid
bad stress is called the “Serenity Prayer”. It
plays a major role in most 12 step programs
and goes like this:
“God, grant me the serenity to accept
the things I cannot change, the courage to
change the things I can, and the wisdom to
know the difference.”
One does not need to be recovering
from an addiction before seeing the wisdom
in this prayer. One can also be totally non
religious and still benefit from the prayer.
The wisdom contained in thos^ few words
is universal.
Probably the last pan is the most
difficult, knowing which things can be
affected by your time, energy and emotion,
and which things that will not change, no
matter what. Sometimes, emotions get in
the way, but usually, lack of good
information is what makes n difficult to
know the difference. Once again, the phrase.
“Knowledge is Power," plays an important
part. Only after studying all the available
options, can you sec if there is anything you
can do to change the situation.
Something that is happening to me as I
write this can serve as an example.
According to my dentist. I have been losing
bone around the roots of my teeth for several
years. It has reached the point where there
is not much left to anchor my back molars.
HIV may be the cause of the bone loss. In
any case, one tooth has tocornJoutno^ and
probably several others will come out later.
I don’t want to loose my teeth and will
research to see if there are any options my
dentist doesn’t know about. If there are no
options. I’ll loose my teeth and adjust to the
situation. I won’t worry about it. I’ll know
that I did everything I could to keep my
teeth.
If there is any reason to believe that you
can change a situation for the better, by all
means, use your time and energy to make
the change. If you cannot make a change,
accept the situation and don’t worry about
it. Conserve your energy for other things.
Get over it.
Regrets from the past arc also a waste of
time and energy. If apologies arc due, then
in tike the apology and forget about it. No
amount of worrying will change the past.
The point of all this is that your present
happiness can be jeopardized by worrying
about things needlessly. Worries can clutter
up your mind so that you can’t make good
decisions about your present time and future.
When you have HIV, you want to conserve
your energy and make the best decisions
possible. The Serenity Prayer can help you
do that.
POZ
A magazine review by John Ira Smith
I don’t know whether it is good or bad,
but we--those with AIDS-now have our
own magazines. Yes, I do mean more than
one! We are no longer to be found only in
the shadow of articles about questionable
fashion practices. We may be plague-ridden,
socially delinquent pariahs, but we now rate
glossy, four-color covers every month or
two. It is somewhat depressing, though, we
get advertising not from Absolut but from
Ensure. Gag! Can Depends be far behind?
They estimate that the homosexual
community wields approximately 500
billion (yes, BILLION) dollars worth of
economic clout. Has someone suddenly
found out that a substantial portion of that
clout is medically related? Is it any
coincidence that my lover gets Delia
Frequent Flyer mileage if he uses a particular
hospital?
Well, enough of my ramblings. Yes, I
have received acopy of Positively Aware. It
did little for me. Too little of something and
too much of something else. Today I
received complementary copy of POZ. (I
question the name. Then again, for some
reason I rebelled against THE FONZ. How
about calling a spade a spade and change the
May
1994
name to POX.) Problems with the name HIV positive. (And don’t forget, he will
aside, I really liked this magazine. POZ was drop his pants fora photographer.) We need
not only put together handsomely, but these public and/or semi-public person’s
contained information for everyone from, admission of infection in the worst way. It
shall we say. the novice to the expert. Kind is preferable they come forward before they
of a cross between U.S. News and H <></</ die. I admire Mr. Ross’s courage and the
Reports and The New Yorker. The onh support that his family is giving. Perhaps
suggestion I would have would be regarding his story will make life easier for those who
the addition of a writer of the month section. have not crossed the bridges of truth and
Sort of a Gore Vidal does AIDS thing. The\ ;acceptance. Wc will not come to a true cure
wouldn’t even have to be erotic! Although. until wc dissolve our feelings of shame. Itis
I can’t say it would hurt.
my suggestion that POZ dedicates every
I must admit, I can see the editors <cover to someone who has a story to tell and
running out of truly relevant material. I is strong enough to tell it. (And if they arc
hope POZ. is not in danger bf becoming male and have a really, really nice butt, they
another Advocate or Out. I just don't want have to consent to be naked!)
to open up a future issue and be greeted with
POZ is, obviously, this HIV/AIDS
an article titled "Final Stages Sportswear." imagazine which won my heart. I must also
I also need to purge my soul of a little irecommend Positively Aware. Actually, I
fact that could, in the future, eliminate my irecommend reading anything that helps you
clout as a reviewer. The cover story of this tdeal with HIV/AIDS or being gay or being
first issue was Ty Ross. (And he was ithe child of an alcoholic or the survivor of
NAKED! Naked, naked, naked. We’re ;abuse...I am a firm believer that, no matter
talking the big buffo here, folks.) Ty Ross, ithe wound, you cannot heal until you rid
for those who don't keep up with these ;yourself of the pain of isolation. If you have
things, is the grandson of Barry Goldwater. AIDS, this bi-monthly magazine called POZ
H is prominence, while guaranteed b\ family, i is a good place to start.
is magnified by the fact that he is ga\ and
SURVIVAL
NEWS
Page
12
C O M M U N I T
Getting and Keeping Health Insurance
From the AIDS
Legal Project
by Rose Nathan, Attorney at Law
If you have HIV or Al DS and do not have health insurance, you probably will not
be able to get it. This is because insurance companies are free to ask health questions,
including questions about HIV, and refuse to insure people they believe arc "bad risks.”
One way you may be able to get insurance is by going to work for an employer, i f you arc able, who offers insurance to all employees
without asking about health or health history. Many large employers offer insurance this way. Some even offer insurance to parttime employees.
If you have insurance through a job or are able to work for an employer who offers insurance to all employees, you usually can
keep your insurance even after you leave or lose your job. This is true even if you have had insurance through the job for just a short
period of time.
If you work for an employer with 20 or more employees, you will be entitled to COBRA continuation of you insurance, unless you
were fired for gross misconduct. Under COBRA, you can continue your insurance lor 18 months. If you are totally disabled at the
lime you leave or lose your job, you can continue COBRA for 29 months. The insurance plan administrator must notify you of the
right to elect COBRA. You then must make the election within the time required by the notice and pay your premiums as they become
due.
At the end of the COBRA continuation period, you may be able to convert your policy to an individual policy and keep it as long
as you pay your premiums. You also may be able to convert a group policy if you are not entitled to COBRA because your employer
did not have 20 employees or because you had the insurance privately (not through the job). You should check your policy to see
if it provides for a conversion option and to find out when you need to make the election to convert.
Finally, if you are totally disabled at the lime you lost your group health insurance coverage for any reason other than for cause,
you have the right to extend benefits for 12 months at no cost to you. After the 12 months, however, you may not convert to an
individual policy.
Insurance issues can be complicated. This article points out some general principles about getting and keeping insurance.
Exceptions do exist; therefore, if you arc having an insurance problem or question, please call the AIDS Legal Project at 612-3969.
FREE PEER COUNSELING
It’s Time for Wigwood Again!
Mark your calendar, start wig
shopping; Wigwood ’94 will be held
Sunday, May 22, 1994 at The Metro, the
Video Bar. This annual festival of "Peace,
Love, and Wigs" will feature drag
performances, music, a "celebrity wig and
things" auction, and much more. Wigwood
is sponsored by Etcetera Magazine.
Wigwood was inspired by Wigstock,
the New York City Labor Day event of
wigs founded by the Lady Bunny, formerly
of Atlanta.
The Metro is located at 48 Sixth St..
N.E., in midtown Atlanta. Doors open at
3:00 p.m. and entertainment continues
until midnight. Ages 18 and up arc
admitted: everyone must be 21 and have
I.D. to drink. Admission is S5.00 at the
door, with all proceeds benefiting the
Atlanta chapter of the AIDS Coalition to
Unleash Power. For more information,
call ACT UP/Atlanta at 874-6782.
IN METRO A TLANTA:
Call (404) 874-7926
or come by the AIDS Survival Project offices,
44 Twelfth Street NE, Atlanta
MON. 10 am - 9 pm
TUE. thru FRI. 10 am - 5 pm
__________ SAT. 2 p.m. - 5 p-m.___________
AT THE GRADY
341 Ponce de Leon Ave. NE, Atlanta
in the Community Room
TUE. and THU. 1 pm - 4:30 pm
_______ For info, call (404) 616-9761________
IN ROME/ELOYD COUNTY:
_____ Call Thurman at (706) 295-6123
IN GWINNETT AND HALL COUNTIES:
Call Ed at (404) 256-6950
AIDS Athens Hires Executive Director
Responding to growth and demand for
their resources and programs, AIDS Athens,
a community-based nonprofit organization
which serves Athens and the surrounding
counties, has hired 31-year-old Iris Tropp
as their first executive director. Tropp will
be accountable for coordinating all activities
conducted by the organization which include
care and support for clients with the AIDS
virus, HIV prevention education programs,
grant applications, and fund raising.
“I envision myself as that key person to
facilitate
intra-organizational
communication so that we can target
programs and services to the populations
Page
13
which have been underserved." explains
Tropp.
Tropp comes to AIDS Athens with a
background in health promotion, stemming
from her masters degree in Health Advocacy
from Sarah Lawrence College. She brings
service experience as a former patient
representative on the AIDS unit for Intcrlanli
Medical Center In Brooklyn. In 1987. Tropp
began service work as a graduate student
and subsequently organized an Hl\
prevention program for Manhattan high
school students through the HIV center at
Columbia University.
The targci areas that Tropp hopes to
SURVIVAL
NEWS
impact most arc the education and outreach
programs. “We need to develop an outreach
mechanism for HIV prevention in the 10
county area,” says Tropp. “Outreach allows
you to disseminate effective messages.”
While the addition ofTropp as executive
director marks a milestone of development
and maturity for the seven-year-old AIDS
organization, the issues AIDS Athens faces
arc as menacing as ever. “Il’s a shame that
we have to expand,” AIDS Athens CoChairman St. John Flynn reflects ironically,
"but the HIV disease is spreading soquickly
among the various communities that wc
have to expand inorder to remain effective.”
May
1994
CALENDAR
F
May
1994
Sunday
Monday
—......... -
Tuesday
4—
6:00pm
Treatment Committee
Wednesday
7:30pm
Positively Living
Support Group
—
2:00 ■ 4:00pm
7:30pm
Positivefy Living
Support Group
----
8
—ANewsletter
—
Deadline
HIV Survival Series:
Dr. Michael Saag
at Colony Square
i©
1®
—A600pm
Volunteer Orientation
17
—A-5:15 ■ 6:45pm
11
18
13
^4
MEMORIAL DAY
(Off ice closed)
7:30pm
Growing Hean h.er
Suopon Group
14
<
A---------------------------------Operaton: Survive!
Day 1
at Grady IDP
(Call 874-7926 to register)
1©
——A
YT
7:30pm
Women s Support Group
8:00pm - til?
PWAny
2©
11
—A
Growing ■wealthier
Support Group
25
—6-
—6-730pm
-----
13
7:30 - 9:30pm
Interact
Board Meeting
PuOlic invited to attend
7:30pm
ACT UP
—A
Hemophilia Assoc
Meeting
12
5:30pm
Aovocacy Committee
7
—A--------1.00-4:00pm
06:30pm
---------------- —A-------
Women's Support Group
730pm
ACT UP
Q .
j
7:30pm
Positively Living
Support Group
7:30om
Growing Healthier
Support Group
1 I
A-5:15- - 6:45pm
600pm
Special Events Committee
5
—A
A------------------
5:i5- 6:45pm
Women's Support Group
Saturday
A
8:00pm ■til’’
PWAny
7:30 ■ 9:30pm
interact
4
A------------------------
V------------------------------
7:3Cpm
Positively Living
Support Group
Operation: Survive!
Day 2
at Grady I DP
(Call 874-7926 to register)
3
7:30pm
ACT UP
©
15
>
1
—A
Friday
J 7:30pm
Growing Heaitnie'
Support Group
5:t 5 • 6:45pm
Women's Support Group
1
—
MOTHERS’ DAY
Thursday
A-----------------------------1:00pm
Newsletter Committee
7:30pm
ACT UP
EVENTS
26
17
—v
------- V-
ACT UP
7:30pmPositively Living
Support Group
a©
30
31
June
Sunday
Monday
Tuesday
1994
Wednesday
Thursday
1 00pm
Newsletter Committee
5:15 - 6:45om
Women's Support Group
<------------------6:00pm
—A7:30pm
-----
Treatment Committee
ACT UP
12 noon
Gay Pride March
3:00 - 5:00pm
HIV Survival Senes:
Dr. Judith Cohen
at Grady IDP
Positively Living
Support Group
—
FATHERS' DAY
5:15 ■ 6 45pm
Women s Support Group
■
7:30pm
Positively Living
Support Group
14
5:3Cpm
Advocacy Committee
1©
O
7:30pm
Positively Living
Support Group
15
JA7:30pm
■A----------------------------------- V---------------------------600pm
5:15 ■ 6:45pm.
Speca Events Committee
Women s Support Group
1994
21
—A------■
3
■6" ■
----------------Gay Pnde Weekend
Begins
28
SURVIVAL
1©
—A-----------
11
Gay Games Weekend
interact
10:00am -4 OOprn
Peer Counselor
T raining
8:00pm - til’’
’I 8
17 PWAny
‘
---- </
------V*
23
14
18
—«
G’owmg i-<ea!tnier
Support Group
22
5:i 5 6:45pm
Women's Support Group
ACT U=
17
IS
May
1©
-6-7:30pm
......
Board Meeting
Public invitee to attend
7:30pm
Growing heannie'
Suopon Group
7:30pm
ACT UP
Stonewall 25 March
in New York City
9
—A-----------—A------6:30pm
7:30 ■ 9:30pm
A-------------------------Newsletter Deadline
ACT UP
13
-----------------
Growing Healthier
Support Group
6
7
-A7:30pm
1^
2
—A
V-------------------7:30pm
8:00pm-til?
PWArty
6:00 • 1000pm
Peer Counselor
Training
S
—A7:30pm
Saturday
7:30 - 9:30pm
Interact
I
A--------------------------------5:15 - 6:45pm
Women's Support Group
7:30pm
Positively Living
Support Group
Friday
7:30pm
Growing Heafthie'
Support Group
Y 7:30pm
G'Owing Heaitnie'
Support Group
2©
—A-
15
—<
30
NEWS
Page
14
s
. s s
All listings in this section will be printed one time. To have something listed, call the AIDS Survival Project office at 8747926. If you want the listing to continue, you will need to notify the office prior to each publication deadline. AU Classifieds
are printed free of charge for AIDS Survival Project members and concerned friends.
c
ROOMMATES
J
The 1 994 Hollywood Hots U.S.O. Tour
HoKvwoix: 1 Ion. .he AIDS fundraiser, is gearing up for its 1994 show. Hollywood
Hots is a caoarc. unacr ir.c Mars (hat features some of the southeast’s finest entertainment.
Phis year s cvcni win in rcid September 10 and will be behind the Heretic on Cheshire
• Gay Hispanic male seeking HIV+ GHM or GWM to share
2 BR/1 BA apt. in Midtown area. Rent S75/wk. or S300/mo..
includes elec., gas, local phone. Derrick Rosa, (404) 888-0948. Bridge iw. The
w.:i chat of a u.s.o. tour.
Th is is: re <x:h ycaroflloiiywood Hots helping people with AIDS. The event began
• GWM, HIV+, Roommate wanted for nice 3-story private
townhome near Avondale MARTA. Must be considerate, neat, in 1989 to assis: rcskier.is with AIDS in an apartment complex to pay their rent. In 1993
Hollywood I lots ended up loosing their home when the complex would not allow the
positive-type person. I smoke some and have 2 cats. S3()0/month event. 1 he owners ol the I leretic were kind enough to allow the event to be held in their
includes all except telephone. Call Jim at 687-9472.
back pars.-r-.g ioi. 1
\.-ar I loilywood Hots will benefit AIDS Survival Project and
• GWM orF, someone to share 2 BR/2 BA, W/D. large porch, Jerusalem Hou
The show ;s current/.- look: ng for volunteers for all areas of the production. We need
overloooks pool. S300/month + 1/2 utilities. John, 325-1587.
people now to help build the stage and help with fund raisers thoughoutthesummer. Please
• I-75/Delk Rd., 3800 sq. ft. condo, 3 floors, share or have one contact Hollywood 1 lot* at 321 -3983 for more information. Or write to Hollywood Hots,
floor. Jacuzzi, sauna/steam room, 4 BR, 4BA, oversized. $350 to 3267 Buford I Iwy. \i:, Sulite '72O-3O8, Atlanta, GA 30329 for a volunteer application.
S400 depending on Social Security or SSI. Smoke. Pets. More
T h c AID S Survival Project is incorporated in the state oA
info, 988-0146, Ron.
1
Georgia
as a 501 (c)3 nonprofit corporation. All donations are
• One bedroom apt. (nice), 745 Monroe Drive, H/HW/Park.
|
lax-deductible.
A large percentage of our annual budget is
Pets, Secure HIV Friendly Community, Near IDC, 1920's bldg.
|
funded
solely
by
your contributions, the rest is supplemented
16-apts, Roommate OK, Small Deposit (waived for HIV+ & Hlth.
'
by
grams
solicited
from private foundations.
wrkrs.), S400/month. 841-0076, Tom: Bear Atlanta.
• Roommate needed for 3 bedroom house in Decatur. Rent ;
We arc happy to provide the newsletter to people who
$325 + 1/2 utilities. Dogs welcome. Smoker OK. House has |
I
cannot
afford to purchase a subscription; however, we ask that
washer & dryer, 2 screened-in porches, fenced in back yard. I
who can at ford to subscribe, do so.
Steve, 378-0147.
*
ji anyone
-
JOBLINE
) j r- I am a person living with HIV/AIDS and want to
be a member of the AIDS Survival Project.
• CNA with experience working with PWA's seeking :
employment. Fees negotiable. Call Essinita, 752-6598.
Lj Enclosed is S2().()() for a one year subscription.
I cannot afford to pay for a subscription. Please enter my
• Experienced HIV caregiver, looking for 6 to 15 hrs. a week,
subscription.
S4.50/hr. Call Pat, 633-3873.
free
• HIV+ individual, healthy, looking for odd jobs,
housecleaning, etc. Cash only. Reasonable rates. Call Mark at Name:
892-7005.
■ Address:
(
(MISCELLANEOUS) • City. State. Zip:_____________________________________
• AIDS Survival Project is looking for a volunteer with a
pick-up truck (or something similar) to help move furniture, etc.,
approx, once every 2 months. Please contact Liz at 874-7926.
Please contact the AIDS Survival Project office for
permission to duplicate any of the information
contained within this newsletter.
Our Wish List
The following items are things that the AIDS Survival
Project has been desperately searching for in order to enhance
our programs and improve the building’s appearance. If you
know of anyone who might be able to donate any of those
items, please contact Liz at 874-7926. Thanks!
IBM 486 computer with printer & modem
Macintosh computers
Projection screen t.8 x 8 or larger)
Table lamp
Foldingchairs
Message pads
Plants for courtyard
Page
15
SURVIVAL
Phone Day:
Evenings:
Please contact me about volunteering for the following:
Newsletter Committee
Opera non: Sur v z ve!
Il Peer Counseling
. [Zj Treatment Advisory Committee
: Q Advocacy Committee
I
Special Events Committee
! C I have other special skills I would like to offer:
I would like to make a donation in Memory of:
11 ! I would like to make a donation in Honor of:
' O Please acknou. ledge this donation to:
' Name:_
I Address:
^City, State. Zip:
NEWS
May
1994
National
d
a
t
HIV
Network
e
e
To Run Your Ad, Write Dave at 8204 Trollev Square. Atlanta. GA 30306 or Call 875-5087
FREE ADS FOR THOSE AFFECTED BY HIV
Man Seeking Man
GWM, 40, S'S", 145. br/br, beard, handsome, healthy, hairy, aggresive bottom,
outgoing, smoker. Would like to meet someone 30-50 “top" for friendship or possible
relationship. Jack (404) 633-0904
GWM. 43. 120, brown/blue, avg. looks, OUT!, symptomatic but healthy. New to GA.
seek OUT! masc. men mid-30s-40s; LT possible but fnendship prionty:' non-dogmatic
spirituality; vegetarian (include, dairy), Ute smoker, not into bar scene/wallflowcrs much
Quiet evenings my homc/yours. sunnse/sunset, walks, pets, gardening, most music and living
LIFE to its fullest. Want to share the journey? Shaync (404) 614-0949 (L5P/Candlcr)
GWM. 40. 170, brown/hazel, 5’9'', healthy, seek relationship but welcome friendship
Versatile. Seek WM 20-45. Stan (404) 296-9687 (Clarkston)
GBM, 23, 5’8", 140, attractive, good personality, senous. non-bar scene. Seek
attractive masc/dom, mature, athletic and relationship onented GBM for cooking and quiet
evenings at home. Serious only. Reggie (404) 329-9378
7 PM 306-79ISO’bl°nd/brown- Seek friendship, possible relationship. Caroll after
Hispanic GM, 31, 5'8”, 140, mustache, goatee, crew cut, military looks. Interests
u«dud^. Reading, movies, dining out, plus more. All welcome to reply GBM a plus. 875GWM, 31,5'5". 135, brown/blue. I'm boyish smooth, love movies, seek teen to 30. also
boyish. Leave msg. David 257-0987
GWM, 6'1'', 190,38,aubum/brown. Seek olderman for friendship possible relationship
Frank 528-9588. Into cuddling.
GWM. 27,190,6'4", black/litc brown, clean shaven. Good personality, sense of humor,
positive outlook, straight acting. Like hiking, camping, movies, art. music, running. Seek
relationship but friendships welcome. New to area. Seek similar looks and outlook. Nathan
145 Tyson Road. Cordele, GA. 31015. (912) 273-7337
Want to meet GWM not afraid to have relationship w/GB.M. 36, 158.5'11", considered
good looking, passionate, sensuous, dancers body. Michael 875-8931
GWM, 5'10", blond/bluc, 160. Interested in movies, dining, bike nding. Over bar scene
Seek LT relationship w/someone around my age or younger. David 242-8667
GWM, new to ATL, very healthy, 6', 190, bm/bm, attractive, versatile, non-smoker,
clean cut, lead normal life, good times & great sex. Seek similar GWM. Well hung & versatile,
financially secure & healthy. No fems. Honest, masc. Take a chance & call. No eames please
Glenn 627-5396
GBM, 6'2", 160, 38. Like to have fun. Scott (404) 786-9759
GWM, 6', 160, young 43. Seek someone to simply have fun. Not into crazy stuff. Good
old American boy. Race unimportant. Sex important but not necessary Seek masculine
fricnd/companion. Would love to develop good relationship. Must have income. Tom (404)
816-6686
GBM, 26, 5'6', 140. Seek mature indiv. for fr.endship/possiblc relationship Race
unimportant. Tim (404) 250-5177 (voice mail)
GWM, 33 look 27 or 28, 5’10", 140, bm/bm. Part (small amt) Indian. Seek someone
teen to twenties, blond/blue. Prefer duty blond/blue. Seek LT relationship or jus: fnendship.
LDce movies, dining out or just slaying at home. Must love dogs. No fats. fems, drugs or S&M
Lite drinkers OK. WM only. Charles or Tiger (404) 880-0169
GWM, 31, brown/hazel. moustache, 180, 5’7", healthy, fin. stable, enjoy variety of
things from country music & dancing, theatre, dining out. weekend get-aways & quiet times
at home, easy going nonsmoker, romantic. Seek masculine same or older, facial hair a plus,
for friendship or lasting relationship. Tim (404) 724-9758
Masculine GWM, 5’11 , 150, 38, healthy, well educated, professional, in closet. Seek
sincere Christian, masculine, tender, drug-free non-smoker, 28-45 for friendship, possible
relationship. Seek one special person who is at peace with God & himself. Mark H P.O.B
1206, Jonesboro, GA 30237-1206
GBM, 37, 5’10", 160, healthy. Paraplegic. Like cooking. music, theatre, church,
positive attitude. Seek friendship only, possibly more. Joseph (404)681-5507
Sensuous, sexy, sincere GBM, 26, 5’11". 170. straight acting/looking. Seek tall
attractive, regguedly masculineGBM25-40for fnendship and relationship. Must becharmmu.
romantic & enjoy cuddling. Al 297-4360.
GWM, 30. brown/hazel, seek someone 30-40 for fnend, possible lover. Been alone too
long, need someone to love! Serious only. Terry (706) 234-3205
GBM. 6’1", 230,37, versatile, seek GWM to have fun with, not just sex. Someone into
healthy lifestyle and positive attitude. Dan (404) 872-1982
Buddy wanted. GWM, 5’11", 165, 37, brown/blue. short beard, masculine bottom,
french & grcck passive, gregarious, conversation, genuine LT friendship, honest, auractive.
well hung, not feminine, nature, outdoors, affection, active, music 60s-90s. some country,
positive attitude. Seek similar top. Call or send note, photo. John. P.O.B. S5S4, Atlanta GA
30306 (404) 373-6978
GWM. 5’10", 145. br/br, very hairy, moustache, boyish looking, cooking, church,
music, nudism, seeks same. Versatile, any age. race. Non-smoker. John 634-94X3^ficr 7 30
PM
GWM, 39. 5'7", 160. Average guy who likes to have tun Enjoy spending time with
friends, cooking/reading. Seek similar guy. Life's too short to go n alone ’ D.rvuf '-nui 5X4-
208-0650 ieignai paguri alter 5 o'clock only1 fired of bar scene.
GWM. 37. 5 ’10". 160. hlond/blue. healthy, seek LT relationship, senous calls only. No
games. Davie 4()4/88X-0S09
Masculine GWM. predominantly bottom. 5’11”. 145. 40. short hair, bald top, positive
attitude, many interests, goatee. Lynn 706/798-4345
GBM. 32. 5'10". 1 S5. healthy, cooking, reading, churche, theatre. Seek African Amer,
only. Tracy 404/491-631 I
*10 -28. 140. blond/bluc. Seek relationship. I'm very good looking. John404/
GWM,44. chunky, hairy,moustache. beard.bm/hazcl,5'5'',non-yuppy,non-barsccnc.
non-smoker, versatile. Like flea markets, reading, dogs. Seek masculine 30-45 for friendship
possible relationship. JR 404/897-1355
GWM. 28. healthy, .7'1 I". 155. brownish blond/bluc, clean 5 o’clock shadow, good
personality, humor, positive outlook and straight acting. Like hiking, camping, movies,
shooting pool. art. music and many more to come Life too short for games. Seek 20-35 good
build, clear, shaver, (moustache ok) enjoys talking and similar hobbies. Douglas, 138
Kimberly Way SW. Manelta, GA 30064. Photo, phone, letter only
GW M. 45.6’2", 200. fit long term survivor. Looking for someone into healthy lifestyle,
404/607 9360°k blC-VClu’e' roCk chrTlbing' vegetarian, alternative therapies. Any age. Jeff
GWM. 26. 6
:4' brown hair/moustachc. Interested in ATL GWM or BiWM for
friendship or possible relationship. Must be good looking, self supporting and have good
altitude Scot; 404/ 9t*S-o3"6 before 11 PM. if not in leave msg. w/friend
Woman Seeking Man
SBF. li'.lctcsted in corresponding w/mcn who arc open minded, intelligent and knows
what he want' .n life (age. race. Health not an issue) looking for a friend. Women are welcome
to wntc also Denise 1’ 0 Box 103. Clarkdale. GA 30020
CA - SW Mom. 35. 5' I o ’, brown/biuc. seek friendship, possibly more. Into nature,
outdoors, animals, spei
lending lime w/2 year old son Am healthy, high t-cell count. Seek big'
tall black man. 6'2"- preferree. Others welcome to reply. Tern. 1289 Ayala Dr., #4,
Sunnyvalc. CA 040X6
BF. 27. 5 11. |48 Need someone to talk with, possibly more. Non-smoker, non
drinker. Must like children Trudy 244-9784
DW F. nealthy. 26. nrown/brown, 5’3", med. build, seeking 30-40 y.o. open minded,
honest, no aniggies. Race unimportant. Julie 404/352-2247 (leave msg)
BF. 34. wants a man who knows what he wants in life. Not a partv animal. 404/9083965 (voice mail)
DBF. 36. 4 . ; , 16o W ant to meet a good man looking for a good woman. Must like
children Steacy, hard working and lonclv. Writeme. Jeanette Williams, 392Blvd NT #101
Atlanta. GA 30308
Man Seeking Woman
C.-\ ■ V- VI. ircnch ccsccnt. 4()s. 5'11”. 160. Like sports, working out, swimming, white
water rafting. Would like to exchange photos w/woman who has got it together tn her 30s or
so. Latmak especially welcome. Tom Bourdonnay, 3400 Richmond Pkwy., #515 Richmond
CA 94806(510) 669-9570
CA - WM. 37. 6'. 211) brown,/brown. Motorcyclist. Into health, no drugs. Seek slim
I- 18-40 to share tune with. Kevin 669 ObcrUn Ave., Berkeley, CA 94708 (510) 524-7490
WM. 5‘i ] ■_ 3s. ;45, blond/bluc. Smoker, energetic child at heart, work out, travel,
history, cyclist, music, upbeat, good cook, type A personality. Seek slim F or TV for
875l5O87iP Orlncndsh:p
airhcilds- Davc 8204 Trolley Square. Atlanta. GA 30306 (404)
(?A Healthy, witty, heterosexual. San Francisco grad student. Considering ATL to
reiocate/visit. Seek committed, monogamous relationship. Someone to share the good times
as well as the bad. Darryl. Box 42. 1001 Page St.. San Francisco. CA 94117 (415)431-3739
SBM. 5 7 , 140, brown, non-smoker, dnnker. Seek honest, serious relationship. Not
a party animal Like outdoors, camping, scouting, any kind of music, church and living right.
Race unimportant. Sidnev Whitehead III. 404/260-5831 (beeper) 404/288-2984 (home)
BM. 32. 171. God learing, sensitive, healthy, love cooking, soft music, church. Seek
slender female 25-34 with similar interests. Norman 297-0994
DW M. 37.
i6o hrown/blue and beard. Enjoy movies, eating out. an and craft
•^vor':;rT
garde.-: Seek WF 27-40 w/stmilar interests, houston county. David 912/
DWM. 33. b;onJ/g:cen. 6’3”. 165. Seek friendship w/attractivc F 25-34 w/similar
inlcr^1^
beachc.v. mountains, music and good books, positive altitude a must. Tim
WM. auractive. mteliigcnt. Seek F for loving relationship. Warren 622-3391
BM.6.: ' 95. 3~. music. I V. movies, panics, eating out. Age/racc unimponant. I’m
healthy John 404/2ds. 16: i : leave msg.)
W M. s’;() ; Si). 2“ eating out. movies, exccilcnt cook, healthy Will 404/458-3450
SBM. 27. 132. dars skinned, inleli.. sensitive, seeks F 100-125 lbs. for possible
relationship l-.xtra leminiiic. God fearing F encouraged to respond. Andre 404/874-3760
Variations
GBM. 160, 6'. Outdoors, movies, quiet walks, relaxing. Seeks laid-back male, race
unimportant. Jobicr 404/691-6736. Best time to call midnitc to 2 PM afternoon
GBM, 25. 6'. 190. Like to rent movies, working out, travel, stuex. Seek masculine
acting man 25-35. Mark 404/572-9317
GWM, 30, 5'11", 130. blond/blue, moustache. Seek someone teen to twenties lor
friendship, fun & hopefully a relationship. Joncsboro/Southiakc area. T:m 404/960-9066
GBM, 24. 5’16", 140. seek masculine GBM 25-35. Love music, travel, good movies.
Seek dating person, possible relationship. Damonc. P O B. 57! 01. Atlanta. GA*30343 Photo
would be nice
GWM, youngish 50, 6', 1 85, brown/blue, moustache, into movies, theatre, travel, quiet
evenings, cuddling & LT relationship. Into Grcck love. Litcsmokcr/drinker. Seek GW.\i 3655 similar. Jcre 404/458-4238
GWM. 5'11 ",42 (look 32) 155, goatee, young at heart, sensitive, love music, former DJ.
looking for relationship but welcome fnendship. very versatile, positive person. Mike 404/
May
1994
l<> Atlanta.
Alidf.lu.
i
New to
n.i.o
.isc to meet girl friends to talk on phone, run around, etc. Trudy
244-97X4
B:SW |- interested tr corresponding with men or women who are IHV+, open minded,
mteii. and! attractive (age. race, health not an issue.) I am tall, full figured, striking, sexy,
outgoing anc somewhat eccentric. Would love to travel south and escape cold. No drugs or
heavy drinkers, Mary Ann. I’.O.B. 1031. Cumberland. MD 21501
BiWF. 2?. ini: ! ig.ircc. dark hair *.t eyes, love music, walks, movies. Looking for F for
possible relationship A: romance. Tonya 404/921 -6900
Inmates
Seeking ■’Pc:: Friends'" I am WM, young 39, brown/brown, 5’9”, 155. Well educated,
hut no; immune to stupidity" which is the only reason I have for being in the Ark. Dept, of
Corrections. Incarcerates since 2/92. Seek someone into letters as much as 1 am. Mail is my
mam contact wnn the "1 ree world." So, why don’t you give me some contact and wntc David
T. SncE Jr. #98186, Diagnostic L’nil ■ RSVP. 8001 West 7th St., Pine Bluff. AR 71603
SURVIVAL
NEWS
Page
16
Appendix 7: Announcements of Seminars and Public Forums
AIDS information projects that offer educational seminars and public forums use handouts or fliers to
advertise these services to their communities. The following are samples of such fliers used by two of
the projects included in this report. Organizations setting up AIDS information dissemination projects
can use these examples as models for designing their own materials for announcing educational events
and public meetings.
i.
Seattle Treatment Education Project (STEP)—flier announcing the STEP HIV Health
Management Series.
2.
AIDS Survival Project Treatment Library—fliers announcing an Operation Survival seminar
and a lecture titled "Clinical Trials Update."
Seattle Treatment Education Project
presents
HIV HEALTH MANAGEMEN2E5mE&A SIX-PART SERIES DESIGNEE TO EMPOWER INDIVIDUALS WITH
HIV TO TAKE CHARGE OF THEIR HEALTH
January 5th: Taking Control of Your Health
Long-term survival; working with your health care provider; understanding laboratory
tests; and monitoring your immune system
January 12th: Antivirals
Learn about various conventional and naturopathic antivirals; how antivirals work;
other antivirals that are currently being studied
January 19th: Alternative Therapies
Learn how to evaluate treatments; access buyer's clubs; promising immunomodulators;
and in-depth information on vitamins and minerals
January 26th: Advanced Nutrition
Mechanisms of malnutrition; power packing your diet; lactose intolerance; fat malab
sorption; problems which may interfere with eating and ways to deal with them; and
food safety
February 2nd: Manifestations of HIV
Tips for dealing with some of the symptoms and "smaller" problems that HIV can cause
such as thrush, canker sores, impotence, itching, fatigue, and many others
February 9th: Opportunistic Infections
Learn about the opportunistic infections which people with HIV are susceptible to and
how to prevent and treat them
All classes are from 7:00 - 9:00 pm on Wednesdays
Call our hotline, 329-4857 for location and registration
Classes are free and a 250-page class manual is provided
It’s about survival.
It’s about time.
If you or
someone you
love
has
tested HIV
positive, reg
ister now for
this free twoday seminar
presented by
AIDS Survival Project. Led by HIV positive facilita
tors, Operation: Survive! covers HIV/AIDS treat
ments, legal issues, stress management, safer sex, in
surance and much more. Come receive information and
support, and start being a part of HTV survival.
□PERfiTION:
QPERflTI
SURVIVE!
Datesfor next two seminars:
Saturday and Sunday
March 5 and 6
or
May 21 and 22
For more information or to register,
contact AIDS Survival Project at 404/874-7926.
Anotherfree program of..
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Appendix 8: Bibliographies and Guides to Materials
AIDS information projects produce guides to assist patrons in locating information in their materials
collections. The following are samples of such tools produced by two of the projects included in this
report, as well as two guides produced by the CDC National AIDS Clearinghouse. Organizations
setting up AIDS information projects can use these examples as prototypes for designing their own
research tools.
1.
What About AIDS? Recommended Books and Videos— AIDS Information Network Library
2.
AIDS/HIV In the Workplace—AIDS Information Network Library
3.
General Video Bibliography for Adolescents/Young Adults—AIDS Information Network
Library.
4.
Women and AIDS/HIV— AIDS Information Network Library.
5.
Subject Guide to Books in the AIDS Resource Library—Monroe Community College AIDS
Resource Center.
6.
Index to AIDS Resource Library Journals—Monroe Community College AIDS Resource
Center.
7.
Using Indexes and Abstracts to Find HIV/AIDS Information—Monroe Community College
AIDS Resource Center.
8.
Resources for the Religious Community—CDC National AIDS Clearinghouse.
9.
A Guide to Locating Information About Condom Efficacy and Use—CDC National AIDS
Clearinghouse.
32 N Third St
Hi i I a d e I p h i a PA 19106
2I5 922.5120 voice
215 922.6762 fax
215 922.7999 TDD
B
AIDS
■
■
INFORMATION
B
B
WET WORK
AIDS Library
SafeGuards- Critical Path AIDS Project
WHAT ABOUT AIDS?
The following books and videos are recommended for purchase (or purchase and resale)
by the museums and institutions participating in the national exhibit, What About AIDS?.
This listing can also be used by other organizations wishing to build AIDS/HIV collections.
BOOKS
Come Sit By Me (Margaret Merrifield) Women’s Press, 1990 [Grades: Preschool-2]
Paper, 5.95 ISBN 0-88961-141-6
You Can Do Something About AIDS (Stop AIDS Project) 1990 Paper, 1.00 ISBN 0945972-02-4
iQu6 es un virus? un libro para nines sobre el SIDA (Fassler & McQueen) Waterfront
Books, 1990 [grados esculares: escuela elemental] Paper, 8.95 ISBN 0-914525-17-4
Teens With AIDS Speak Out (Mary Kittredge) Julian Messner, 1992 Paper, 8.95 ISBN
0-671-74543-3
Magic Johnson: Champion With A Cause (Keith Elliot Greenberg) Lerner, 1992 Paper,
4.95 ISBN 0-8225-9612-1
Risky Times: How To Be AIDS-Smart and Stay Healthy - A Guide For Teenagers
(Jeanne Blake) Workman Publishing, 1990 Paper, 5.95 ISBN 0-89480-656-4
C6mo protegerse contra el SIDA (Earvin "Magic" Johnson) Times Books, 1992 Paper.
3.99 ISBN 0-8129-2068-6
Cartooning AIDS Around The World (Forman & Horsey) Kendall-Hunt, 1992 Paper.
11.95 ISBN 0-8403-7600-6
And The Band Played On, 2nd ed. (Randy Shilts) Penguin, 1988 Paper, 12.95 ISBN 0-14011369-X)
A copy al the AIDS Information Network's official 'registration and
financial information may be obtained from the Pennsylvania Department
of State by calling toll-free within Pennsylvania. 1.800.7 3 2.0999.
Registration does not imply endorsement.
Wise Before Their Time: People With AIDS And HIV Talk About Their Lives
(Richardson; Bolle) Harper Collins, 1992 Paper, 9.00 ISBN 0-00627648-2
The Quilt: Stories From The NAMES Project (Cindy Ruskin) Pocket, 1988 Paper, 22.95
ISBN 0-671-66597-9
Virus Hunting: AIDS, Cancer, And The Human Retrovirus...(Robert Gallo) BasicBooks,
1993 Paper, 15.00 ISBN 0-465-09815-0
The Essential AIDS Fact Book, rev. ed. (Douglas; Pinsky) Pocket Books, 1992
VIDEOS
Absolutely Positive. 1991 87 min. color vhs Select Media, 74 Varick St. New York. NY
10013; 212-431-8923 $295
As seen on PBS’s 1991 "P.O.V." series, this award winning documentary is one of the
best. Eleven people, ages 17 to 55, from diverse backgrounds, tell their stories of fear
and hope, anger and love, courage and affirmation. A celebration of the human spirit.
Jugandose La VIDA (Playing With Your Life). 1991 15 min. color vhs New York State
Health Dept., Corning Tower, Room 1084, Empire State Plaza, Albany, NY 12237; 518474-5370 $25
Set in a New York barrio, focusing on Manny, Estrella, his girlfriend, and her brother, Rey,
this story includes discussion of various risk factors including denial, unprotected sex, and
sharing drug works. These likable characters show the benefits of communication,
accurate information and behavioral change.
Seriously Fresh. 199? 21 min. color vhs (discussion guide) Select Media, 74 Varick St.,
Suite 303, New York, NY 10013; 212-431-8923 $65
Focusing on young African American males, this is one of the best videos for teens; a
candid, positive presentation for discussing and practicing safer sex. Models self
empowerment, decision making, negotiating skills and assertiveness.
Time Out: The Truth About HIV, AIDS And You. 1992 42 min. color vhs Paramount
Corp., 555 Melrose Avenue, Hollywood, CA 90038; 213-956-5000 $8.50
Produced by Arsenio Hall, featuring Magic Johnson and a myriad of other celebrities, this
breezy, MTV generation video (directed by Malcolm-Jamal Warner) gives the facts about
AIDS/HIV, shows how to use a condom and tells the stories of non-celebrities living with
HIV.
Compiled by
Jean Hofacket, Director of Information Services
AIDS Information Network
32 N Third St
Philadelphia PA 19106
215 922.5120 voice
215 922.6762
215 922.7999
AIDS
I NFORMATION
NETWORK
AIDS Library
I
SafeGuards
Critical Path AIDS Project
HIV/AIDS
VIDEOS FOR ALL AUDIENCES
Come Sit By Me. 1992 8 minutes color/vhs AIMS Media, 9710 DeSoto Avenue,
Chatsworth Ca. 91311-4409 800-367-2467 [fax 818-341-6700] $99.95 (Audience: ages 4-8)
This story explores the emotions and fears that Nicholas, his friend Karen and their
classmates undergo; introducing young viewers to the concept of AIDS and HIV in a
realistic and comforting way.
Thumbs Up For Kids 23 minutes color/vhs AIMS Media (see above) $99.95 (Audience:
ages 4-8) Available in English, Spanish
Former ’’Romper Room" teacher Ruby Peterson leads discussion on disease prevention
through song, dance and pictures. Designed for discussion before and after each of its three
segments.
AIDS: Allie’s Story 14 minutes color/vhs AIMS Media (see above) $99.95 . (Audience:
teens, college, adults)
The clear message of the story of Allison Gertz - a teenage, heterosexual, non-drug user
who contracted AIDS after spending one night with her boyfriend - is that AIDS does not
discriminate. This film is a good example of HIV/AIDS being an equal opportunity disease
and can be used to promote peer education.
AIDS: Everything You Should Know 20 minutes color/vhs AIMS Media (see above)
$99.95 (Audience: teens, adults) Available in English, Spanish^ French
Hosted by Whoopi Goldberg, this film opens with segments of everyday teenage life. This
is wonderfully informative for young people - not a lecture. Teen involvement in the film
is great and reinforces the idea that "life needs protecting as well as celebrating."
A copy ol the AIDS Information Network'^ official registration and
financial information may be obtained from the Pennsylvania Department
of State by calling toll-free wnhm Pennsylvania. 1.800.7 3 2.09 99
Registration does not imply endorsement.
fax
TDD
The Quilt 1992 10 minutes color/vhs Health Sciences Consortium, Distribution Center,
201 Silver Cedar Court, Chapel Hill, North Carolina 27514-1517 $75.00 (Audience: teens*
adults)
Using the quilt laying event in Washington D.C. as a focus, this program shows the enormity
of human loss associated with this epidemic - not only the lives lost, but also the number
of lives affected by each death. A good general introduction to the social and personal
impact of AIDS.
The HIV Test 1992 15 minutes color/vhs Health Sciences Consortium (see above) $75.00
(Audience: teens, adults)
This program deals with the. issues of who should be tested for HIV, why a person should
be tested for HIV, and what the meanings of the positive and negative results are and what
types of behavior modifications should be considered following a positive or negative test
result.
Belinda 1993 29 minutes color/vhs Appalshop Film and Video, 306B Madison Street,
Whitesburg, Kentucky 41858 800-545-7467.[fax] 606-633-1009 $35.00 (Audience: general)
A native of eastern Kentucky, Belinda Mason was, as she says "a small-town journalist, a
young mother and a reliable Tupperware party guest" until she became infected with the
HIV virus in 1987. Funny, down-to-earth, and never self-pitying, Belinda speaks with a
moving eloquence of our need for a collective response to AIDS which is not crippled by
racism, homophobia, fear or ignorance. (If you can only afford one title on this list - give
this one serious consideration.)
The Time To Know 1991 20 minutes color/vhs Eastern Maine AIDS Network, P.O. Box
2038, Bangor, Maine 04402-2038 $50.00 (Audience: teens, adults)
Cited as "the best available (film) for women in rural areas, one of the best available for
women in the nation" - this is a unique documentary about five HIV+ women who talk
openly about how HIV has affected their lives, futures, relationships and decisions about
having children after becoming HIV+.
Compiled By
Jean Hofacket, Director of Information Services
* Additional information concerning HIV/AIDS videos is available from the AIDS
Information Network.
S:\publicat\bibliogs\videos\avlist.lib
4/13/94
32 N Third St
Philadelphia PA 19106
215 922.5120
215 922.6762
215 922.7999
VO-C!
(ax
TDD •
AIDS
Heshie Zinman
I N FOR MATI ON
executive director
NETWORK
AIDS Library
SafeGuards
Critical Path AIDS Project
AIDS/HIV IN THE WORKPLACE
A Resource Listing
Books
AIDS In The Workplace: Legal Questions and Practical Answers ( William F. Banta) Lexington
. (Macmillan), 1993.
CDC Business Responds To AIDS Manager’s Kit CDC National AIDS Clearinghouse HIV/AIDS
Materials, 1992.
ACT NOW: Managing HIV AND AIDS In The Canadian Workplace Canadian AIDS Society
(Ottawa, Canada), 1990.
The Next Step: HIV In The 90’s Impact AIDS, 1990.
A Benefits Counselor’s Guide Impact AIDS, 1990.
AIDS In The Workplace: Resource Material, 3rd ed. Buraff Publications, 1989.
AIDS And The Law: A Basic Guide For The Non Lawyer (Allen H. Teri) Taylor and Francis,
1992.
The Guide To Living With HIV Infection (lohn Bartlett and Ann K Finkbeiner) lohns Hopkins University
Press, 1991.
The Essential AIDS Fact Book (Paul Harding Douglas and Laura Pinsky) Pocket Books, 1992.
The Americans with Disabilities Act - Access and Accommodations: Guidelines for Human Resources,
Rehabilitation and Legal Professions (Nancy Hablutzel, J.D., Ph.D. &. Brian T. McMahon, Ph.D., C.R.C.)
Paul M. Deutsch Press, Inc., 1992.
AIDS & Ethics (Frederic G. Reamer) Columbia University Press. 1991.
Videos
An Epidemic Of Fear Impact AIDS, 1988.
One Of Our Own Baxley Media Group, 1988.
The Next Step: HIV In The 9Ofs Impact AIDS, 1990.
Too Close For Comfort Wild Ginger Productions, 1990.
Articles
Jordheim, Anne E "Removing Tie Mystery From AIDS Education." Management Review February,
1990. pp. 20-25.
Woolsey, Christine 'Digital Pioneers Program To Fight AIDS, Ignorance." Business Insurance.
October 7, 1991. p. 80.
Fried, Lisa I. "When AIDS strikes the office." Mananagement Review. February, 1990. pp. 12-18.
* copy of the AIDS Information Ne.tvork'i official registration and
financial inlntmarioa may He obtained from the Pennsyleama Department
of State by calling' toll-free within Penntylvaoia. I 800.13 2.09*9
legutration does not imply endorsement.
Fremgen, Boonie; Whitty, Michael "Corporate AIDS Policy Response In One Midwestern City."
AIDS Public Policy Journal. Winter, 1992. pp. 234-237.
Banas, Gary E "Nothing Prepared Me To Manage AIDS." Harvard Business Review. July/August.
1992. pp. 26-28, 30-33.
Landsbergis, Paul A eLal "AIDS and employment policies: the roie of labor unions." AIDS 8c
Public Policy’ Journal. Summer, 1991. pp. 76-82.
Slodghill, Ron, eLal "Managing AIDS: How One Boss Struggled To Cope." Business Week. February 1,
1993. pp. 48-52
Pamphlets\Brochures
"AIDS In The Workplace: A Guide For Employees" Impact AIDS, 1991.
"HIV & AIDS: The Basics" GMHC (available in both English and Spanish)
"When A Friend Has HIV" Impact AIDS, 1992
"Women Need To Know About AIDS" GMHC (available in Spanish and English)
SOURCES
CDC National AIDS Clearinghouse. P.O. 6003 Rockville, Maryland 20849-6003. 1-800-458-5231 (voice) 1-800-2437012 (TDD). .
Canadian AIDS Society. 100 Sparks Street, Suite 701 OntarioKlp 5B7 Ottawa, Canada. 613-230-3580 (voice) 613563-4998 (fax).
Impact AIDS. 3692 18th St. San Francisco, Ca. 94110. 415-861-3397 (voice) 415-621-3951 (fax).
Bureau of National Affairs, Inc. 1350 Connecticut Ave, N.W. Washington, D.C. 20036 1-800-333-1291 (voice) 202862-0999 (fax).
Baxley Media Group (formerly Carle Medical Communication). 110 West Main Street Urbana, Illinois 61801-2700
217-384-4838 (voice).
Wild Ginger Productions 1204 Lakewood Drive, British Columbia V5L 4M4, Vancouver, Canada. 604-254-8998
(voice).
Gay Men’s Health Crisis (GMHC). 129 West 20th Street, New York, New York 10011. 212-807-6664 (voice) 212807-6655 (Hotline).
Compiled by Lauren Ferguson, Allie Fraser and Jenny Pierce
These and other titles available at the AIDS Information Network
/.• yj>uOlccut \
\ wrkplc. bib
AIDS
INFORMATION
NETWORK
AIDS Library i SafeGuanl* I Critical Path AIDS Project
32 North 3^ Street • PhilMieiphia. PA 19106
(215) 922-5120
GENERAL VIDEO BIBLIOGRAPHY
For Adolescents / Young Adults
Growing Up In The Age Of AIDS. 1992 75 min. color vhs MPI Home Video, 15825 Rob Rov Drive Oak Forest,
IL 60452; 708^687-7881 519.98
This ABC special hosted by Peter Jennings is geared toward teenagers and focuses on issues specific to that age
group. Participants include a live studio audience, HIV infected teens, callers from around the country and
HTV/AIDS experts. Various issues including prevention, testing peer pressure and health care are explored through
dialogue, dramatic presentations, and individual stories.
Beginning^: You Won’t Get AIDS. 1990 14 min. color vhs/beta AIMS Media, 6901 Woodley Avenue Van Nuys,
CA 91406-4878; 800-367-2467 5295.00 (Rental @ 575-4 days)
Produced for 6-11 year olds, this video combines lively animation with live action and song to answer children’s
questions about AIDS/HIV, calm their fears and help them develop an awareness of their ability to be in control
of their health.
Time Out: The Truth About HIV, AIDS And You. 1992 42 min. color vhs Paramount Corp., 555 Melrose Avenue,
Hollywood, CA 90038; 213-956-5000 58.50
Produced by Arsenio Hall, featuring Magic Johnson and a myriad of other celebrities, this breezy, MTV generation
video (directed by Malcolm-Jamal Warner) gives the facts about AIDS/HIV, shows how to use a condom and tells
the stories of non-celebrities living with HIV.
A Million Teenagers. 1991 22 min. color vhs Churchill Films 12210 Nebraska Ave. Los Angeles, CA 90025; 213-2076600, 800-334-7830 5480.00 (Rental @ 560.00)
Young Adult. This much honored program on sexually transmitted diseases has been changed to add a major section
on AIDS. Much of the information now comes out through a lively exchange between older peer counsellors talking
with tenth graders. Spanish version available.
AIDS - What Everyone Needs to Know. 1990 20 min. color vhs Churchill Films 12210 Nebraska Ave. Los Angeles,
CA 90025; 310-207-6600, 800-334-7830 5390.00 (Rental 560.00)
Young Adult. Animation & live action explain[s] how the HIV virus works, risky <&. safe behaviors, &. the latest
advances in the diagnosis & manangement of AIDS. Second revision. Spanish version available.
AIDS Prevention: Choice Not Change. No Date Given color vhs Educational Activities Inc. 1937 Grand Ave.
Baldwin,NY 11510; 516-223-4666, 800-654-3739 579.00
Ages 9-11. Positive approach to AIDS prevention is a factual, non-threatening video providing information without
sensationalizing or using material inappropriate for children. (Includes activity masters and guide.)
Common Threads:Stories From The AIDS QuilL 1989 80 min. color vhs Direct Cinema Ltd. P.O. Box 10003 Santa
Monica, G4 90410; 800-345-6748; 291 S. La Cienega, Penthouse Los Angeles, G4 90069; 310-652-8000 8150.00
Presents profiles of five individuals - including an IV drug user, a former Olympic decathalon star & a boy with
hemophilia - whose stories reflect the diversity and common tragedy of those who have died of AIDS.
Kids-TV, VoL 4: Understanding AIDS. No Date Given 30 min. vhs JCI & Associated Labels 5312 Derry Ave., No.
M Agoura Hills, CA; 800-223-7479 vhs 811.95
The Kids-TV crew decides to do a show on AIDS. This documentory shows that knowing about the facts is better
than just being afraid.
Ryan While Talks to Kids about AIDS. No Dale Given 28 min. color vhs Films for the Humanities &. Sciences
Video Division(s): FFH Video Box 2053 Princeton, NJ; 609-452-1128, 800-257-5126 8249.00 (Rental 875.00)
Hosted by Phil Donahue. At the age of 16, Ryan White is an expert on AIDS - on the disease itself & its social side
effects. Ryan, a hemophiliac who contracted the disease from contaminated blood products must contend with
schools that do not want him, all the while supported by a strong caring mother.
Teens, Sex and AIDS. 28 min. color vhs Films for the Humanities & Sciences Video Division(s): FFH Video Box
2053 Princton, HI; 609-452-1128, 800-257-5126 8249.00 (Rental 875.00)
Adolescence. Hosted by lim I. Bullock & Rebecca Street. Contributions by Lynda Madaras & Christian Haren.
Combines an open <k candid discussion betweens teens about their AIDS concerns with dramatization of teens
dealing with decisions about sex.
Thumbs up for Kids: AIDS Education. 23 min vhs AIMS Media 6901 Woodlev Ave., Van Nuys, CA 91406AS78;
818-773-4300, 800-367-2467 S250.00 (Rental 875.00)
Featuring Ruby Peterson. Ruby Peterson, a former "Romper Room" teacher &. producer, interacts with a group of
children while teaching about disease prevention in general &. AIDS in particular.
Except for the first three all descriptions are taken from Bowker’s Complete Video Directory 1993
COMPILED BY JENNY PIERCE
S: \PUBUCA T\BIBLIOCS \ VTDEO6.8TH
11/11/93
32 N Third Si
f ] ....
AIDS Library
SafeGuards
Philadelphia PA 19106
215 922.5120
215 922.6762
215 922.7999
I 1ST FORMATION
NETWORK
Heshie Zinman
executive director
Critical Path AIDS Project
WOMEN AND AIDS/HIV
INTRODUCTION
Women Need To Know About AIDS (brochure) (GMHC) 1991
Women, AIDS & Activism (ACT UP/New York, Women and AIDS Book Group) South End Press, 1990
Women And AIDS (video) GMHC, 1987
The Essential AIDS Fact Book, Updated (Paul Harding Douglas, Laura Pinsky) Pocket Books, 1992
AIDS: The Women (Ines Rieder, Patricia Rupplet) Cleis Press, 1988
Women And AIDS (Bonnie Lester) Continuum, 1989
Women And AIDS (Diane Richardson) Methuen, 1988
LIVING WITH HIV
Living With HIV: A Guide For Women (brochure) (Impact AIDS) 1991
Living In Hope (Cindy Mikluscak) Celestial Arts, 1991
Living With AIDS (video) Carle Medical Communications,
Surviving With AIDS: A Comprehensive Program of Nutritional Co-Therapy (C. Wayne Callaway, Catherine
Whitney) Little, Brown and Co., 1991
The Guide To Living With HIV Infection (lohn G. Bartlett, Ann K. Finkbeiner) lohns Hopkins University, 1991
RESOURCE GUIDES
AIDS And Women: A Sourcebook (Sarah Barbara Watstein, Robert Anthony Launch) Oryx, 1991
Women And AIDS Clinical Resource Guide (Women’s Program, San Francisco AIDS Foundation) 1987
AIDS Information Sourcebook, 3rd ed. (H. Robert Malinowsky, Gerald J. Perry, ed.) Oryx, 1991
Women And AIDS/HIV (United States Conference of Mayors) 1991
PERSONAL STORIES
Why I Survive AIDS (Niro Markoff Asistent) Simon & Schuster/Fireside, 1991
A Shallow Pool Of Time: An HTV+ Woman Grapples With The AIDS Epidemic (Fran Peavey) New Society
Publishers, 1990
In The Absence of Angels (Elizabeth Glaser, Laura Palmer) G.P. Putnam’s Sons, 1991
Olga's Story (video) Georgetown University
Alicia (video) Georgetown University
PREVENTION/SAFER SEX
Making ILA Woman's Guide To Sex In The Age Of AIDS (Cindy Patton, lanis Kelly) Firebrand Books, 1990
Making Sex Safer (brochure) (American College Health Association) 1990
Abstinence (brochure) (ETR Associates/Network Publications) 1990
Condoms For Couples (brochure) (San Francisco AIDS Foundation) 1988
Safe S/M: Advice On AIDS Prevention (brochure) (AIDS Committee of Toronto) 1990
Women Loving Women (brochure) (GMHC) 1991
i copy of ihe AIDS laltrmitio* Network's official rrgntratioo and
fioancial information may b« obtained from the Penntyleania Department
of State by calling toll-free within Peoosylvama. 1.800.1 J 2.0♦ 11
lefittration does not imply endorsement.
©
voice
fax
TDD
CHILDREN
Morning Glory Babies: Children With AIDS And The Celebration Of Life (Tolbert McCarroll) St. Martin’s Press,
1988
Children, Adolescents, & AIDS (Jeffrey M. Seibert, Roberta A. Olson, ed.) University of Nebraska, 1989
Dr. Good On AIDS (video) Churchill Films, 1990
Courage To Care: Responding To The Crisis of Children With AIDS (Gary Anderson) Child Welfare, 1990
AIDS Kills Women And Babies (Brochure) (San Francisco AIDS Foundation) 1988
Children And The AIDS Virus; A Book For Children, Parents, & Teachers (Rosmarie Hausherr) Clarion Books,
1989
Alex, The Kid With AIDS (Linda Walvoord Girard) Albert Whitman, 1991
TEENS
Sex, Drugs And HIV (video) Select Media, 1991
AIDS/HIV: Answers For Young People, 2nd ed. (video) Churchill Films, 1990
Teens With AIDS Speak Out (Mary Kittredge) Julian Messner, 1991
Risky Times..A. Guide For Teenagers (Jeanne Blake) Workman Publishing 1990
Teens And AIDS: Why Risk It? (brochure) ETR Associates, 1987
Risky Business (comic book) Impact AIDS, 1988
CAREGIVING
Caring For A Loved One With AIDS (Marie Annette Brown, Gail M. Powell-Cope) Univ, of Washington, 1992
The Caregivers’Journey (Mel Pohl, Deniston Kay, Doug Toft) Hazelden/HarperCollins, 1990
When Someone You Love Has AIDS: A Book of Hope For Family And Friends. (BettyClare Moffat) NAL Penguin,
Inc. 1986
The AIDS Caregiver’s Handbook (Ted Edison) St. Martin’s Press, 1988
Take These Broken Wings And Learn To Fly: The AIDS Support Book For Patients, Family and Friends (Steven
D. Dietz, M. Jane Parker Hicks) Harbinger House, 1989
When Someone You Know Has AIDS: A Practical Guide (Leonard J. Martelli. Fran D. Peltz. William Messina)
Crown PubUshers, 1987
GRIEF, DEATH AND DYING
To Live Until We Say Goodbye (Elizabeth Kubler-Ross) Prentice Hall, 1978
I Never Know What To Say: How To Help Your Family And Friends Cope With Tragedy (Nina Hermann
Donnelley) Ballentine, 1987
Being Human In The Face Of Death (Deborah Roth, Emily LeWier) IBS Press, 1990
In The Midst Of Winter: Selections From The Literature Of Mourning (Mary Jane Moffat) Vintage Books, 1992
Letting Go With Love: the Grieving Process (Nancy O’Connor) La Mariposa Press, 1984
VOLUNTEERING
Simple Acts Of Kindness: Volunteering In The Age OfAIDS (John Griggs. Sally J. Rogers, David A. Gould) United
Hospital Fund of New York/AMFAR, 1989
You Can Do Something About AIDS (Sasha Alyson) The Stop AIDS project, Boston, 1990
j; \publicat \ ibhogs \ women
Monroe Community College
AIDS Resource Center
SyBtPECT ®WDE
TO B©©KSOW
THE Ail OS -KESOyKCE L
Corrpnad by Susan Cstsrman
nay, i9y3
This SUBJECT GUIDE TO BOOKS IN THE AIDS RESOURCE
LIBRARY has been prepared to help you find the information you
need more easily. Books have been arranged in subject lists with
call numbers given. So if, for example, you need information on
teenagers and AIDS turn to the section entitled ADOLESCENTS,
and you'll find a listing of books in the collection that are about
teenagers and AIDS, or at least have sections on that topic. You
can then go to the shelves and find the books you want by call
number.
We have tried to make this guide as complete as possible, but
since new books are coming in all the time, and since some books
include information about many, many aspects of AIDS, there may
be useful information in books not listed under your topic of
interest. So use this guide as a starting point for your research,
but if you’re not finding the information you need, please see the
AIDS librarian for further help (hours are listed below).
Videotapes have not been included, but in our collection
holdings list there is a summary the contents of each video.
There is a holdings list in the back of this guide, please consult it
to find videos on your topic.
To conduct a more complete subject search of AIDS Resource
Library materials, you can use "ALEX", the on-line catalog.
There is a terminal just outside the AIDS Resource Library next to
study room 314, and a brief instruction sheet is included in the
back of this guide. If you need further help, a librarian will be
happy to assist you.
Besides books and videos, you should also look for information in
the vertical file. It contains newspaper clippings, article
reprints, reports, curricula, brochures, pamphlets, and
bibliographies. Materials are grouped in folders by topics. There
is a listing of topics in the first folder of the file.
EPIDEMIOLOGY
FAMILY RELATIONSHIPS
GENERAL WORKS
HISTORY...............................................
CRIMINAL JUSTICE
INFANTS AND CHILDREN
DIRECTORIES
.......................................
JUVENILE/
ADOLESCENT
LITERATURE
LEGAL ASPECTS
MEDICALAND
CARE
MORAL
ETHICAL ASPECTS
MINORITIES...........................................
NUTRITION
POLITICAL
ASPECTS
ADOLESCENTS
PREVENTinw Akin i-nr-JTDni
ART AND LITERATURE
PSYCHOSOCIAL FACTORS
BIOGRAPHY
PUBLIC OPINION
CARE-GIVING......................................
PUBLIC POLICY
RELIGION
RESEARCH
SELF-CARE
TESTING
VOLUNTEERISM
WOMEN
WORLD INCIDENCE
~7
4
6
7
8
9
10
* ■?
13
14
15
17
18
19
20
24
25
26
2'3
T
34
7ET
35
37
36
39
40
TOllEfSTgEINiriSI
PC 200.2 N68 1988
Teen guide to safe sex
Nourse
RO 607 .A26 A345725 1988 Quackenbush
The AIDS challenge
RC 607 A26B59 1990
Blake
Risky times
RC 607 A26 M4 1992
NY C
Hum. Res.
The mental health needs of well adoles
cents in families with AIDS
RJ 387 .A25 C45 1989
Seibert
Children, adolescents and AIDS
1
NX 504 .738 1993
Vaucher
Muses from chaos and ash
PH 771 .A64 1992
Nelson
AIDS: the literary response
PS 509 A.43 P4 1989
Preston
Personal dispatches: Yvriters confront AIDS
PS 595 .A36 P64 1 989
Klein
Poets for life: seventy
AIDS
PS 627 _A53 V/38 1990
Osborn
The way we live now: American plays and
the AIDS crisis
P.A 644 .A25 376 1988
Robbins
Strip AIDS USA
RC 607.A26D74131988
Dreuilhe
Mortal embrace
RO 607 A.26 N58 1991
Nixon
People with AIDS
RS 644 A.25 566 1989
Sontag
AIDS and its metaphors
TT 335 ,R88 1988
Ruskin
The quilt: stories from the NAMES project
r
■ T
/
NX 50-4 ■ *> 1593
Yaucher
Muses from chaos and ash
fii 644 A25 C665 1992
Cvt'S:?
: he mv-lspie epidemic' me story- or women...
RA 544 a23 .<85 I 989
Kukiin
Fig hand back
4A 344 A25 S48 1 387
Shiite
And the band played on
RC 597 .A25 A3545 1988
Re ide-
AIDS. the ■■vorr-ehi
MC 5ij7 A25 A85 1391
Asistent
Whv i survive A iOS
-C 507 A26 S59 1990
Biake
Risky cirres
RC 507 A26 033 1990
Oailen
Surviving AiOS
RO 507 .A25 D7413 1983
Creuilhe
Morta; embrace
RC 607 A26 k'73 1989
kramer
Reports from the holocaust
RO 607 .A26 M66 i 988
Mcne-re
Sorm-Wd time
RO 607 A25 N58 1991
-ixon
People ydth AIDS
hC 507 .A25 N86 198 <
Nungesser
Epidem c of courage
RD 607 A25 P4£ ■! 990
Peteo-v
Dancing against the darkness
PC 607 .A26 P77 1991
Brown
a promise to '-membe-'
RC 307 ACS R545 1993
Rimer
Hiv‘< work inc the system
RC 607 .A25 755 i 990
i iileraas
0 ircie of hope
RC 607 A26 v667 1985
ReaPocy
: he screaming room
RC 507 A26 W495
whitmore
Someohe was here
R.J 387 ACS K57 1989
Kim
Learning by heart AIDS and schooi
criiloren m emenca a communities
$ 25 -iRO ’OSS
-cakm
i he guifc series to~ the Ne
om-ect
BY 4460.7 .0466 1991
Christensen
The Samaritan’s irnperitive: compassionate
ministry to people living with AIDS
BY 4460.7 .S86 1937
Sunderland
AIDS, a manual for pastoral care
RA 644 .A25 B367 1992
Bare uh
S upport groups
RA 644 A25 K85 1985
Kuklin
Fighting back
RA 644 A25 Y68 1988
Alyson
You can do something about AIDS
RO 607 .A26 A3454 1991
NYSDSS
AIDS in-sen/ice for the home care worker
RC 607.A26 B376 1991
Bartlett
The ouide to Irrinq with HIV infection
RC 607 .A26 B755 1992
Brown
Caring fora loved one with AIDS
RC 607 A26 D48 1988
Haskell
Developing AIDS residential settings
RC 607 A26 F33 1989
Dill
Face to fa.ee: a guide to AIDS counseling
RC 607 A.26 H395 1988
Hay
The AIDS Owr-.
RC 607 .A26 H577 1990
Tallmer
HIY positive: perspectives on counseling
RC 807 .A26 K57 1990
Kirkpatrick
AIDS: sharing the pain
RC 607 A26 M37 1990
Martin
AIDS home care and hospice manual
RC 607 .A26 N87 1988
Lewis
Nursing care of the person with AIDS/ARC
RC 607 .A26 022 1992
O'Brein
Living with HIY: experiment in courage
RC 607 .A26 P64 1990
Pohl
The caregivers’ journey
RC 607 A26 Q35 1990
S hennan
Quality food and nutrition sen,'ices
RC 607 .A26 R545 1 993
Rimer
HIY+: working the system
RC 607 A26 T86 1988
Tuohey
Caring for persons with AIDS and cancer
RJ 387 .A25 C68 1990
Anderson
Courage to care
RT61 F751986
Friedman
Home health care
4
HV 7936.H4 H31987
Hammett
AIDS and the law enforcement officer
HY 8843.H36 1986
Hammett
AIDS in correctional facilities
6
IKIlB’ErGiWBIIES
RA 644 .A25 A345 1991
Mulinowsky
The guide to resources on wrnen and
AIDS
RA 644 A.25 G843 1991
RA 644 ,A25 L38 1992
PA, 644
L42 1989
AIDS infomnaiion sourcebook 3rd ed
HDI
Latina AIDS action plan
AMFAR
Learning AIDS
Local AIDS services: national directory
RA. 644 A,25 L6 1 988
RA 644 A25 P42 1991
Pearlberg
Women, AIDS and communities
RA 644 A.25 R69 1987
Row
AIDS: a public health challenge
RC 607 .A26A26 1988
AMFAR
AIDS information resources directory
RC 607 A26 A3 1981/86
Weissberg
AIDS bibliography for 1981-86
RC 607 A26 A3475 1988
Malinowsky
AIDS information sourcebook
RC 607 A.26 B354 1992
Baker
Early care for HIV disease
RC 607 A.26 H9 1991b
Huber
Howto find information about AIDS
RC 607 .A26K87 1988
Kurland
Coping with AIDS
RC 607 A26 L56 1 988b
Lingle
How to find information about AIDS
RC 607 A.26 R45 1986
Reed
do research
RC 607 A.26 U454
USOASH
Surgeon General's report
RJ 337 A.25 C45 1938
CWLA
Report of the CWLA task force on
children and HIV infection
RJ 337 A.25 C68 1 990
Anderson
Courage to care
INDEX TO ARL JOURNALS
1994
ADAP
Gilden, Dave. California Drug Assistance Program adds new
medications. AIDS TREATMENT NEWS; February 4, 1994; (192): 8.
ADOLESCENTS
Health-risk behaviors among people aged 12-21 years - United
States, 1992. MORBIDITY AND MORTALITY WEEKLY REPORT; April *
1994; 43(13): 231-235.
New York State Department of Health. AIDS among adolescents and
young adults. AIDS SURVEILLANCE QUARTERLY UPDATE; December
1993: 7-10.
Rosenfeld, Shoshana. The hidden effects of childhood sexual abuse
on adolescent and young adult HIV prevention. AIDS & PUBLIC
POLICY JOURNAL; Winter 1993; 8(4): 181-186.
AFRICA
Rowley, Jane. Modeling the impact and cost-effectiveness of HIV
prevention efforts. AIDS; April 1994; 8(4): 539-548.
ALTERNATIVE MEDICINE
Ali Shaaban, Mohamed. Alternatives, alternatives, alternatives.
. POSITIVE DIRECTIONS; December 1993; 6(4): 11.
Dickinson, Ken. Massage and HIV. POSITIVE DIRECTIONS; December
1993; 6(4): 7.
FDA to restrict access to vitamins and minerals. POSITIVE
DIRECTIONS; December 1993; 6(4): 16.
Kraak, Vivica Ingrid. Managing HIV-related diarrhea. BODY
POSITIVE; April 1994; 7(4): 17-18.
Life with the FDA, or your tax dollars at work. NOTES FROM THE
UNDERGROUND; January/February 1994; (24): 7-8.
New study gives little support to mind-over-body theory. AIDS
ALERT; January 1994; 9(1): 8-9.
AMERICANS WITH DISABILITI
Turner, Ronals. AIDS, The Americans With Disabilities Act, and
disability-based insurance distinctions. AIDS & PUBLIC POLICY
JOURNAL; Winter 1993; 8(4): 177-181.
AMPHOTERICIN
Smart, Theo. Liposomal amphotericin B enters U.S. trials.
TREATMENT ISSUES; April 1994; 8(3): 6+.
ANTIBBODIES
Jansson, Marianne. Peptide serology for analysis of the interand intra-individual variation in HIV-1 V3 domain. AIDS;
APril 1994; 8(4): 413-421.
ANTIBODIES
Kroon, Frank. Antibody response to influenza, tetanus and
pneumococcal vaccines in HIV-seropositive individuals in
relation to the number of CD4+ lymphocytes. AIDS; April 1994;
8(4): 469-476.
Scarlatti, Gabriella. Neutralizing antibodies and viral
characteristics in mother-to-child transmission of HIV-1.
AIDS; November 1993; 7(Supplement 2): S45-S48.
Torres, Gabriele. Antiviral highlights from the European AIDS
conference. TREATMENT ISSUES; April 1994; 8(3): 1-3.
ANTIVIRALS
Bruisten, Sylvia M. Use of competitive chain reaction to
determine HIV-1 levels in response to antiviral treatments.
AIDS; November 1993; 7(Supplement 2): S15-S20.
Gilden, Dave. Major antiviral conference surveys AIDS research.
AIDS TREATMENT NEWS; January 6, 1994; (190): 3-6.
Gilden, David. Protease inhibitors: overview and analysis.
TREATMENT ISSUES; March 1994; 8(2): 1-8.
David. Study finds AZT reduces mother-to-child
Gilden, David.
transmission. TREATMENT ISSUES; March 1994; 8(2): 15-16.
James, John S. Major protienase inhibitor trials to begin. AIDS
TREATMENT NEWS; February 18, 1994; (193): 3-4.
James, John S. San Francisco: Phase 1 trial of Bucast
(castanospermine analog) recruiting. AIDS TREATMENT NEWS;
February 18, 1994; (193): 4-5.
Kojima, Eiji. Monitoring the activity of antiviral therapy for
HIV infection using a polymerase chain reaction method
coupled with reverse transcriptase. AIDS; November 1993;
7(Supplement 2): S101-S105.
Most physicians say AZT benefits outweigh fears, risks. AIDS
ALERT; April 1994; 9(4): 53-55.
Sande, Merle A. Antiretroviral therapy for adult HIV-infected
patients. AIDS REFERENCE GUIDE; January 1994: section 1318.
Torres, Gabriele. Antiviral highlights from the European AIDS
conference. TREATMENT ISSUES; April 1994; 8(3): 1-3 .
ART AND LITERATURE
Currier, Jameson. Looking for heroes. BODY POSITIVE; April 1994;
7(4): 14-16.
Shapiro, Howard. The kvetch kronicles. BODY POSITIVE; April 1994;
7(4): 25.
ASIA
Celentano, David. HIV-1 infection among lower class commercial
sex workers in Chiang Mai, Thailand. AIDS; April 1994; 8(4):
533-537.
World Health Organization. AIDS surveillance in the WHO Western
Pacific region. AIDS REFERENCE GUIDE; April 1994: section
224, pp 1-5.
Wright, Nicholas. Was the 1988 HIV epidemic among Bangkok's
injecting drug users a common source outbreak? AIDS; April
1994; 8(4): 529-532.
ASSOCIATIONS
AIDS private funding: new survey published. AIDS TREATMENT NEWS;
January 7 1994; (190): 8.
Novick, Alvin. Conflict within the HIV/AIDS advocate/activist
communities. AIDS & PUBLIC POLICY JOURNAL; Winter 1993; 8(4):
153-156.
AUSTRALIA
Infection control breach cited in HIV transmission via surgery.
AIDS ALERT; February 1994; 9(2): 24-26.
McDonald, Ann. The pattern of diagnosed HIV infection in
Australia, 1984-1992. AIDS; April 1994; 8(4): 513-519.
AZT
Gilden, Dave. Major antiviral conference surveys AIDS research.
AIDS TREATMENT NEWS; January 6, 1994; (190): 3-6.
Gilden, David. Study finds AZT reduces mother-to-child
transmission. TREATMENT ISSUES; March 1994; 8(2): 15-16.
Gray, Francoise. Zidovudine therapy and HIV encephalitis: a 10year neuropathological survey. AIDS; April 1994; 8(4): 489493.
Most physicians say AZT benefits outweigh fears, risks. AIDS
ALERT; April 1994; 9(4): 53-55.
Sande, Merle A. Antiretroviral therapy for adult HIV-infected
patients. AIDS REFERENCE GUIDE; January 1994: section 1318.
Torres, Gabriele. Antiviral highlights from the European AIDS
conference. TREATMENT ISSUES; April 1994; 8(3): 1-3.
BEHAVIOR MODIFICATION
CDC looking at new model for enhanced HIV counseling. AIDS ALERT;
January 1994; 9(1): 4-6.
BLOOD
Clerici, Mario. HIV-specific T-helper activity in seronegative
health care workers exposed to contaminated blood. AIDS
REFERENCE GUIDE; April 1994: section 928, pp 1-5.
Harris, Gordon. Altered cortical blood flow in HIV-seropositive
individuals with and without dementia: a single photon
emission computed tomography study. AIDS; April 1994; 8(4):
495-499.
Red Cross might be held liable in blood suit, U.S. judge says.
AIDS POLICY AND LAW; April 15, 1994; 9(7): 3-4.
BUCAST
James, John S. San Francisco: Phase 1 trial of Bucast
(castanospermine analog) recruiting. AIDS TREATMENT NEWS;
February 18, 1994; (193): 4-5.
BULLETIN BOARD SERVICES
Tobias, Tadd. AIDS research databases now free to community
organizations, public libraries, and individuals. AIDS
TREATMENT NEWS; February 4, 1994; (192): 5-6.
Tobias, Tadd. Computer access to treatment information. AIDS
TREATMENT NEWS; January 21, 1994; (191): 6-8.
BUYER'S CLUBS
Life with the FDA, or your tax dollars at work. NOTES FROM THE
UNDERGROUND; January/February 1994; (24): 7-8.
CASE MANAGEMENT
Case managers increase attention to HIV pain management. AIDS
ALERT; January 1994; 9(1): 9-11.
CD4+ T CELL
Charlegue, Daniel. A 7-year analysis of anti-Gag (pl7 and p24)
antibodies in HIV-1 seropositive patients with haemophilia:
immunoglobulin G titre and avidity are early predictors of
clinical course. AIDS; November 1993; 7(Supplement 2): S87S90.
Clerici, Mario. HIV-specific T-helper activity in seronegative
health care workers exposed to contaminated blood. AIDS
REFERENCE GUIDE; April 1994: section 928, pp 1-5.
Gallagher, John. Zero and counting. AIDS PATIENT CARE; February
1994; 8(1): 13-15.
CD4+ T-CELL
Orendi, Jurgen M. Enhancement of HIV-1 replication in peripheral
blood mononuclear cells by Cryptococcus neoformans is
monocyte-dependent but tumor-necrosis factor independent.
AIDS; April 1994; 8(4): 423-429.
CLARITHROMYCIN
Clarithromycin (Biaxin) formally approved for MAC. AIDS TREATMENT
NEWS; January 7, 1994; (190): 7.
Gllden, Dave. New California law requires off-label coverage.
AIDS TREATMENT NEWS; February 4, 1994; (192): 8.
Newly approved drugs include antivirals, appetite enhancer. AIDS
ALERT; April 1994; 9(4): 60-62.
CLINICAL TRIALS
Acyclovir-resistant herpes: trial of topical HPMPC. AIDS
TREATMENT NEWS; January 7, 1994;
1994 ; (190): 7.
CMV retinitis: new trial of HPMPC as first treatment. AIDS
TREATMENT NEWS; January 7, 1994; (190): 7.
Jacobson, Mark. Phase II dose-ranging trial of foscarnet salvage
therapy for cytomegalovirus retinitis in AIDS patients
intolerant of or resistant to ganciclovir (ACTG Protocol
093). AIDS; April 1994; 8(4): 451-459.
James, John S. Major protienase inhibitor trials to begin. AIDS
TREATMENT NEWS; February 18, 1994; (193): 3-4.
James, John S. Rheumatoid arthritis advance may be relevant to
AIDS. AIDS TREATMENT NEWS; February 18, 1994; (193): 5.
James, John S. San Francisco: Phase 1 trial of Bucast
(castanospermine analog) recruiting. AIDS TREATMENT NEWS;
February 18, 1994; (193): 4-5.
New York City, Philadelphia, Pittsburgh,Sherman Oaks, Stony
Brook: Important Protease Trial recruiting. AIDS TREATMENT
NEWS; January 21, 1994; (191): 4.
reference
ymso®
T© HS®
INDEXES AND ABSTRACTS - WHAT THEY ARE:
In order to do any in-depth searching for HIV/A1DS information, you will
need to use periodicals, such as magazines, journals, and newspapers. And
to find the information you need in periodicals, you’ll have to use indexes
and abstracts.
Like the index in a book, periodical indexes list contents of publications by
subject (and, often, by author). Abstracts do the same thing, but also provide
a summary of the article contents. As a rule, the indexes and abstracts to
periodicals are not included as part of the journal, but are published as
separate research tools. And usually a periodical index or abstract provides
information on more than one periodical, sometimes thousands!
Indexes and abstracts choose the periodical titles they index based on broad
topic areas. For example, the INDEX TO DENTAL LITERATURE only indexes
those publications most likely to carry articles on dentistry.while the
SOCIAL SCIENCES INDEX covers a very different range of titles. Using
several different indexes in an search will give you information from a
larger number of periodical titles.
Because periodicals are published a number of times each year, the indexes
to periodicals must also be updated frequently. Periodical indexes are
available in monthly., quarterly., and yearly cumulations. The monthly and
quarterly issues allow you to discover what’s new in your topic of interest.
The yearly issues let you do a more comprehensive information search. Both
indexes and abstracts will provide all the bibliograhic information you need
to track down the article you want
USING INDEXES AND ABSTRACTS:
indexes and abstracts are usually not difficult to use once you get used to
the basic method. Generally., all you need to do is to look up your topic
alphabetically. The index will then give you a list of articles you might be
interested in.reading. With the information the index provides you can then
qo to the actual magazines and journals to find the complete articles. A few
of the indexes and abstracts are more complex than this, but they all have
complete instructions for use in the front. And, as always, the librarians
will be very happy to assist you in learning how to use these research tools.
FINDING THE ARTICLE YOU NEED:
Once you have located an article you want from an index , you need to copy
down some of the information provided. You’ll need the title of the
TITLE: READERS' GUIDE TO PERIODICAL LITERATURE
SCOPE: Broad coverage of English language periodicals of general interest.
Indexes more than 200 titles, including most of the mass market weeklies
and monthlies. Published monthly, with quarterly and annual cumulations.
LOCATION: Index Tables, 2nd floor
FORMAT & USAGE: Articles are listed alphabetically by title under main
topics and subheadings. Keys to abbreviations are provided. An index of book
reviews is included.
MOST RELEVANT SUBJECT HEADINGS:
ACT UP (Organization)
AIDS (DISEASE) [many subheadings]
AIDS (DISEASE) AND [various]
HIV VIRUSES
SAMPLE ENTRY:
1------AIDS (DISEASE)
See also
AIDS Project Los Angeles
AIDS by definition, will soon get worse, u US. ^ews
World Report 114:9 Ja 11 ’93
AIDS it ain’t [immune disorder, similar to AIDS, where
patients have low CD4 count] Time 141121 F 22
’93
3
5
Are some people iThmune to AIDS? fop* - [o have
2"
thrived with HTVlXG Gorman. U ITonej 14..1:49-51-^
Mr 22 ’93—7—7
Gene therapists jump ship; Top AIDS omoai to leave
[National Institutes of Health] L Thompson and J.
Cohen. Science 259:303 Ja 15 ’93
Immune syndrome remains mysterious [AIDS-like ICL
syndrome] K. Fackelmann. Science News 143:119 F
20 *93
1) Subject heading
2) Article title
3) Author
4) . Journal title
5) Volume
6) Pages
7) Publication date
TITLE: SOCIAL SCIENCES INDEX'
SCOPE: Indexes over 300 English language periodicals in the areas of
community health and medicine, social work, sociology, law, psychology,
economics, and related fields. Published quarterly with annual cumulations
LOCATION: Index tables, 2nd floor
FORMAT & USAGE: Articles are indexed by subject and author. A book
review index is included in the back of each issue.
MOST RELEVANT SUBJECT HEADINGS
AIDS (Disease) [many subheadings]
AIDS (Disease) education
AIDS (Disease) in children
AIDS patients
HIV viruses
SAMPLE ENTRY:
1) Subject heading
2) Article title
3)
4)
5)
6)
7)
Author
Journal title
Volume number
Page numbers
Publication date
1—AIDS (Disease)
See also
Attitudes toward AIDS (Disease)
in homosexual and bisexual men
2---- Serum prolactm levels' in
with HIV infection. J.. M Gorman and others^_j2m ■4
J Psychiatry_A^^r^
5
6i
7
article, the title or the magazine or Journal fn which it appears, the
date of the magazine, and the pages of the article
Both in the AIDS Resource Library and at the index tables of the main library
(2nd floor) you will find copies of a printout entitled MAGAZINES,
NEWSPAPERS, AND INDEXES IN THE LEROY V. GOOD LIBRARY. This lists the
title of all periodicals the MCC libraries subscribe to, and where you can
find them. Search for the journal title you need alphabetically in the
printout. If it is listed there, we have it; if it is not listed, we don’t. Let’s
assume you are in luck and that we carry the title you need. The printout
will also tell you how long we have carried it, and where back issues are
located.
EXAMPLE:
1) Journal title
2) Location
3) Date library first
began subscription
2
JOURNAL Or NURS2NC ZOUCATION
V.1G-3
B0UN2
1 -----JOURNAL OF NUTRITION EDUCATION
2 ---- MICROFILM
3
Concerning location - If the location listed is AIDS RESOURCE LIBRARY all
issues of the journal are housed in Room 315. If the location is BOUND,
several months of the most current issues are on the magazine racks on the
second floor of the library. The older issues are bound together in hardcover
and stored on shelves nearby. If the location is MICROFILM, again recent
issues are on the magazine racks but earlier ones are stored on microfilm tn
the microfilm room on the 2nd floor. All are welcome to use the microfilm
resources, but they can only be read by using a reader machine. If you don’t
know how to use one, a librarian will be glad to teach you.
IF THE MCC LIBRARIES DO NOT SUBSCRIBE TO THE PERIODICAL YOU
NEED:
There are many hundreds of journal titles likely to carry important
information on HIV/AIDS, and it is impossible for any one library to carry
them all. If this library does not hold the title you want, you may be able to
locate an equally relevant article in a publication we do carry. If you really
need an article from a periodical we don’t have, you still may be able to
obtain it.
If you are a student or staff member at MCC. you can order your article
through interlibrary loan (it may take a week or longer to arrive). If you are
associated with another school or research institution, you can probably
obtain materials through your institution's interlibrary loan department. It
you are not affiliated with such an institution, you may be able to obtain
your article from the public library, either directly from their collection or
via interlibrary loan. Or a librarian here can help you find out which
libraries in the area hold the journal you need; you may be able to go there in
person and photocopy what you want.
If none of these are possible for you, please consult, the AIDS Resource
Library's librarian. As a rule, where there's a will there's a way!
USING THIS GUIDE:
This guide provides a list of the indexes and abstracts available in the
libraries at Monroe Community College that can help you find the HIV/AIDS
information you need. Each page gives the title of an index, the areas of
interest it covers, where it is” located in the library, a few hints on usage,
and a list of some suggested subjects to look under. There is also a sample
entry from the index with brief explanations. As you use these indexes and
abstracts, please remember a few points:
1.) In-depth HIV/AIDS research will often require the use of
periodicals.
2.) To locate information in periodicals effectively, yoiTFl need to
use indexes and abstracts.
3.) Indexes list the contents of various periodicals by subject.
4.) Each index has instructions for use in the front.
5.) The more you use the indexes, the easier you will find them to
use.
6.) The index will tell you what periodical contains the article
you want. If we don't own that periodical you can still probably
obtain a copy of the article through interlibrary loan or from
another local library.
7.) The librarians will always be happy to assist you in your
research. DON'T BE AFRAID TO ASK FOR HELP!
TITLEABRIDGED index nedicus
SCOPE: Produced by the National Library Of Medicine. "Each issue contains
citations from 119 English-language journals . Covers all branches of
clinical medicine. Published monthly with annual cumulations.
LOCATION: Index Tables, 2nd floor
FORMAT & USAGE: Articles are listed under subject headings, alphabetized
by the name of the journal in which they appear. An author index is produced
as a separate volume.
MOST RELEVANT SUBJECT HEADINGS:
ACQUIRED IWUNODEFIENCY SYNDROME [many subheadings]
AIDS-ASSOCIATED NEPHROPATHY
AIDS DEMENTIA COMPLEX
AIDS-RELATED COMPLEX
AIDS SERODIAGNOSIS
AIDS VACCINES
HIV
HIV ANTIBODIES
HIV ANTIGENS
HIV INFECTIONS [many subheadings]
HIV SEROPOSITIVITY
HIV SEROPREVELANCE
HIV-1
HIV-2
SAMPLE ENTRY:
1'
1) Subject heading
2) Article title
3) Author
4) Journal title
5) Publication date
6) Volume and issue
numbers
7) Pace numbers
2----3-
6
acquired immunodeficiency
SYNDROME
4.
Medical and dental students'’ attitudes
attitudes abpdt
a^df the AIDS
er
al.
Aad
epidemic. Bernstein CA, e: ai. Add Med 1990 Jukj
AIDS: just another disease? Kettei LJ. Acad Med 1990 Jui:
65(7):446-7
.
.
Initial evaluation of HIV-mfected patients [news]
Am Fam Physician 1990 Nov;42(5 Suppi):30S
TITLE. AIDS BIBLIOGRAPHY
SCOPE: One of the most extensive indexes of HIV/AIDS information.
Includes journal articles, books,and audiovisuals resources. Covers
preclinical & clinical aspects, epi demi oiogy, diagnosis, and prevention.
Offers thorough indexing to the abstracts of the International Conference on
AIDS, as well as other HIV/AIDS conferences. A very important research
tool. Produced monthly.by,the National Library of Medicine.
LOCATION: AIDS Resource Library
FORMAT & USAGE: Divided into “subject ’ and “author” sections. Subject
section is further divided into subsectionS'Joumal Articles, Monographs,
and Audiovisuals. Titles of journals are abbreviated., but no list of full
titles is given, which can be frustrating.
MOST RELEVANT SUBJECT HEADINGS: Enormous range of subject
headings. Some experimentation with terms may be necessary to pinpoint
desired articles. For initial searching use subheadings under the‘following
subjects:
ACQUIRED IMMUNODEFIENCV SYNDROME
AIDS-RELATED OPPORTUNISTIC INFECTIONS
HIV INFECTIONS
SAMPLE ENTRY:
1) Subject heading
2) Article title
3) Author
4) Journal title
5) Publication date
6) Volume and issue
numoers
7) Page numbers
^ ACQUIRED IMMUNODEFICIENCY
SYNDROME
4
2----- Medical and dental students' attitudes
epidemic. Bemsrein CA. et al. Add Med 1990
3-
6
AIDS: just another disease? Kettel LJ. Acad Med 1990 Jul.
65(7j:446-7
.
.
Initial evaluation of HIV-infected patients [news]
Am Fam Physician 1990 Nov;42(5 SuPPi):80S
.
TITLE: AIDS LITERATURE & NEWS REVIEW
SCOPE: Selected HIV/AIDS articles dealing with a wide range of issues.
Indexes a variety of journals and several major newspapers. Coverage
includes medical care, research, public policy, prevention, education, etc
Published monthly.
LOCATION: AIDS Resource Library
FORMAT & USAGE: Simple alphabetical arrangement by broad subject
headings. Citations to major articles include abstracts.
MOST RELEVANT SUBJECT HEADINGS:
Subjects are listed alphabetically on the first page of each issues
SAMPLE ENTRY:
7
1) Subject heading
2) Author
3) Affiliation
SEXUAL BEHAVIOR
2
D.O. Perkins (UNC School ofMeSicine, Dept of Psychia
try, CB #7160, Chapei Hill, N.C. 27599) et al.. “Psychoso------ 4
ciai Predictors of High-Risk Sexual Behavior among
HTV-Negarive Homosexual Men,” AIDS Education and~~~__ 5
6
7) Publication date
Prevention
(S u m mer 1993): 141-52.----- 8
8) Pages
Perkins er ai. surveyed 53 HIV-aegarive gay men attending
9) Abstract
North Carolina’s Coping in Health and Illness Project to learn
what caused gay men to participate in sexual activities that
9 _J placed them at risk for HIV. The authors found that 23
percent of their subject practiced high-risk sexual behavior;
these individuals were also most likely to have a sense of
optimism and invincfoiiity, to have high levels of anger
toward the world, and to have little sense of self-worth
because they were gay.
4) Article title
5) Journal title
6) Volume & issue
TITLE: APPLIED SCIENCE A& TECHNOLOGY INDEX
SCOPE: Indexes English language periodicals covering engineering,
mathematics, metallurgy, chemistry, and other industrial and mechanical
arts. Produced monthly, with quarterly and annual cumulations. Main value
lies in citations to articles on the pharmaceutical industry, and to
mathematical models of HIV/AIDS epidemiology
LOCATION: Index tables, 2nd floor
FORMAT & USAGE: Entries are listed alphabetically by title under main
topics and subheadings. Lists of abbreviations are provided.
MOST RELEVANT SUBJECT HEADINGS:
AIDS (Disease) [many subheadings]
HIV viruses
SAMPLE ENTRY
,
AIDS (Disease)
4/
5
a
-y
\
X
\
1) Subject heading 2^, AIDS: where has HIV been hiding? H. M. Temin and
EX p, Boiognesi. fl Nature 3^2:292-3 Mr 25 ’93---2) Article title
Attitudes
of dentists to HIV-positive patients. S. Porter
3) Author
and
others,
bibi Lancet 341:1032 Ap 17 ’93
4) Journal title
decides, at last, to increase spending on AIDS.
5) Volume number
D. Spurgeon. Nature 362:199 Mr 18 ’93
6) Page numbers
7) Publication date
TITLE- CONSUMER INDEX TO PRODUCT EVALUATIONS AND
information sources
SCOPE' An index to ’magazine articles and government resources that
provide Xnmion on consumer end health-related topics and on pecilK
products and services." Use this index to find brief updates on HIV/A DS
products therapies, services, and issues. Provides short summanes or
listed articles. Quarterly and annual cumulations.
LOCATION: Index tables.. 2nd floor
FORMAT & USAGE: Articles are listed under subject, within chapters
Simplest way to use is to look
devoted to broad areas of consumer concern.
the front of the book. Turn to
of .merest
most relevant subject headings
AIDS (DISEASE)
SAMPLE ENTRY:
1— AIDS (DISEASE)
1)
2)
3)
4)
5)
6)
7)
8)
Subject
2
Th« AIDS File.' Griffin, Kathenne.
Article title
a numage Scans* a n
Author
dnjc avaflabte tor AIDS patients suffenng from cytomegato
Article summary
o
higher risk tor women who engage in unprotected sex.
Journal title
5---------yS
n7,
Cec/Jan, 19S1/199Z pi2.
Volume & issue
roX AIDS rile discus^/me rate of HIV infecsori _n
Publication date
teenagers; and reasons why seme peooie mgmsno r.rougn standar
Pages
AIDS antibody tests.
Hearth vo ni, Feo/Mar. 1992. p2O.
-TKo
Ale * Franklin. Deborah.
^rnnmns tmee articles mat oisejss: AIDS cono-accon by mrants.
heterosexual and me etlecaveness ci ™
tefdrng AIDS drugs (zrdovudine and didecxyc/ecine! when use
comoination.
Health vo n2. Apr. 1992. pi6.
4
TITLE CUMULATIVE INDEX TQ NURSING & ALLIED HEALTH
LITERATURE
SCOPE: Indexes over 500 journals: Includes almost all English language
nursing journals, as well as selected journals in allied health fields such as
social service in health care, occupational therapy, health education, etc.
Also some coverage of consumer health, biomedicine, and health sciences
librarianship. Includes selected nursing dissertations,standards,and
conference proceedings. Issued bimonthly.
LOCATION: Index Tables, 2nd floor
FORMAT & USAGE: Use Subject Section volumes (white pages). Journal
titles are abbreviated; lists of abbreviations are in the front of each
volume. Articles are listed alphabetically by journal title under subject
headings.
MOST RELEVANT SUBJECT HEADINGS
ACQUIRED IMMUNODEFIENCY SYNDROME [Many subheadings]
AIDS ASSOCIATED NEPHOROPATHY
AIDS DEMENTIA COMPLEX
AIDS PATIENTS
AIDS RELATED OPPORTUNISTIC INFECTIONS
AIDS SERODIAGNOS1S
AIDS VACCINES
HIV INFECTIONS [Many subheadings]
HIV SEROPOSITIVITY [Many subheadings]
HUMAN IMMUNODEFICIENCY VIRUS
SAMPLE ENTRY:
1—-ACQUIRED IMMUNODEFICIENCY
SYNDROME
1)
2)
3)
4)
5)
Subject heading
Article title
Author
Journal title
Publication date
6) Volume & issue
7) Pages
8) Notes
For /transmission consider also HUMAN
IMMUNODEFICIENCY VIRUS
/transmission.
see also ATTITUDE TO AIDS
What nurses don't know about AIDS
(Neighbors M et al) ADV CLIN CARE 1991
Mar-Apr; 6(2): 27 (7 ref)
2__ information nurses need about AID§^
:ARE 1991
2-___-(Neighbors M et al) ADV CLIN CARE
May-Jun^6(3): 49250 (5 reA
" —3
Models of clinical care (Pinching AJ) AIDS
1989; 3( ): suppl 1: S209-13 (4 bib)
AIDS’ the year in review (Hutman S) (review)
AIDS PATIENT CARE 1990 Dec; 4(6): 11-5
TITLE: CURRENT INDEX TO JOURNALS IN EDUCATION (CUE)
SCOPE: Indexes selected articles gleaned from more than 750 educationrelated journals. Issued monthly with semi-annual cumulations appearing
twice a year.
LOCATION: Index tobies, 2nd floor
FORMAT & USAGE: One of the more complex indexes to use. First part of
the index is the MAIN ENTRY SECTION which provides complete citation to
the article, along with a good abstract of contents. Articles are arranged ir
numerical order by an assigned accession number. The second section is the
SUBJECT INDEX. This is the place most researchers need to start. Article
citations are listed under broad subject headings. An accession number is
given.for each entry. When a relevant listing is found, go to the MAIN ENTRY
SECTION and look up the article numerically for complete information. CUE
also includes an AUTHOR INDEX and a JOURNAL CONTENTS INDEX. Photocopies
of most articles listed in CUE can be ordered from University Microfilms
International (for a hefty fee). Instructions for ordering are provided in the
introductory section.
MOST RELEVANT SUBJECT HEADINGS
Acquired immune Deficiency Syndrome
Human Immunodeficiency Virus
SAMPLE ENTRY:
SUBJECT INDEX
Subject heading
Article title
Journal title
Volume number.
Issue number
Page numbers
5) Publication date
6) Accession number
1)
2)
3)
4)
1---- Acquired Immune Deficiency Syndrome
___ The HIV-Positive Student Applicant: A Legal Perspective
on Admission to Allied Health Education
-Journal of Studies in Techmeal Careers
3-
5-- Win 1991
C4AIN ENTRY SECTION
10
Accession number
l-EJ 440 585
CE 523 499Article title
2 -The HIV-Positive Student Applicant A Legal Per
spective on Admission to Allied Health Education
Author
“
rams. Holland, Susan A. Journal of Studies — 4
Journal
.
'echnicai
Careers:
n 1 p35-39/ Win 199
Volume number
5
vS-fReprint: UMIK
Issue number
Descriptors: •Acquired Immune Deficiency
Pages
8Syndrome; *Allied Health Occupations
6) Publication date
I Education; *Admission Criteria: ‘Legal
7)
Reprint availability I Responsibility; Postsecondary Education:
8) Subject identifiers
•College Applicants
9) Article summary
Institutions offering programs in allied health will have to I
.9
10) Clearinghouse no.
face the problem of whether or not to admit a quaiihed
candidate who is HIV-positive. Requiring an HIV test of i
students creates a web of complex legal ramifications.
(Author)
1)
2)
3)
4)
5)
TITLE. EDUCATION INDEX
SCOPE: Indexes educational publications in the English language. Covers,
elementary, secondary, higher and adult education, as well as counseling and
personnel services, teaching methods, and curriculum. Includes articles on
health education, psychology, and mental health, and social sciences.
Quarterly and annual cumulations.
LOCATION: Index tables, 2nd floor
FORMAT & USAGE: Arranged alphabetically by title under broad subject
headings. Articles are also indexed by author’s name. A separate section
cites book reviews.
MOST RELEVANT SUBJECT HEADINGS:
AIDS (Disease) [many subheadings]
AIDS patients
HIV viruses
SAMPLE ENTRY:
1) Subject heading
2) Article
3) Author
4) Journal title
5) Volume number
6) Pages
7) Date
AIDS (Disease)
See also
AIDS patients
5
<
3
Children with AIDS \
t
2—College students’ attitudes tqwardViAEDS. F. Biasco and
Coll Stud J 25:398-400 S ’91 ——7
4—'-FdrTdays at Dartmouth, panels of the AIDS memorial
quilt bring tears, memories, and a riot of color to
8,700 visitors. L. Biemiller. il Chron Higher Educ
371A28-30 My 29 ’91
TITLE. GENERAL SCIENCE INDEX
SCOPE: Indexes English language journals covering various branches of
science, including medicine and health. Issued monthly, with quarterly and
annual cumulations.
LOCATION: Index tables, 2nd floor
FORMAT & USAGE: Articles are listed alphabetically by title under main
topics and subheadings. List of abbreviations are provided. Includes an index
of book reviews.
MOST RELEVANT SUBJECT HEADINGS:
AIDS (Disease) [many subheadings]
AIDS antibody test
AIDS education
AIDS virus
SAMPLE ENTRY:
4
1) SubjecL heading 2
2) Article title
3) Author
4} Journal tide
5) Volume number
6) Page numbers
7) Publication date
5
TPS (Disease)
I
\
\
\ .
AIDS- where has HTV been hiding?
M. Temin and
D7nP. Boiognesi ii Nature 362:292-3 Mr 25 ’93
y
Attitudes of dentists to HIV-positive patients. S. Porter
and others, bibi Lancet 341:1032 Ap 17 ’93
Canaria deride at last, to increase spending on AIDS.
D. Spurgeon. Nature 362:199 Mr 18 93
TITLE: HUMANITIES INDEX
SCOPE: Index to English language periodicals in the fields of language and
literature, history, interpersonal communication, religion and theology,
anthropology and related subjects.
LOCATION: Index tables, 2nd floor
FORMAT & USAGE. Articles are indexed by subject and author. Citations
are alphabetized by article title. A separate section indexes book reviews.
MOST RELEVANT SUBJECT HEADINGS
AlDS(Disease) [various subheadings]
AIDS (Disease) in art
AIDS (Disease) in literature
AIDS (Disease) in mass media
AIDS (Disease) in motion pictures
AIDS patients
AIDS quilt
HIV viruses
SAMPLE ENTRY:
1) Subject heading
2) Article title
3) Author
4) Journal title
5) Volume number
6) Page number
7) Publication date
4
5
6
AIDS (Disease)
--AIDS as monster i science lotion and honror cinema.
---- E. Guerrero, il J Pop Film
Fall ’90
Are we spending too much on .AIDS? M. Fumento.
Commentary 90:51-3 O ’90
The contemporary historiography of AIDS. E. Fee and
D. M. Fox. J Soc Hist 23:303-14 Wint ’89
Mass media use and knowledge of AIDS. C. A. Stroman
and R. Seltzer. Journal Q 66:381-7 Wint ’89
Power and the conditions of silence. C. Patton. Crit
Q 31:26-39 Aut ’89
7
TITLE: INDEX TO DENTAL LITERATURE
SCOPE: Produced by the National Library of Medicine, this index contains
citations to journal articles and conference/symposia proceedings. Covers
many aspects of dental medicine and oral health. Produced quarterly with
yearly cumulation.
LOCATION: Index Tables, 2nd floor
FORMAT & USAGE: Articles are listed under subject headings, alphabetized
by the name of the journal in which they appear. Also includes an author
index.
MOST RELEVANT SUBJECT HEADINGS:
ACQUIRED IMMUNODEFIENCY SYNDROME [various subheadings]
AIDS-RELATED COMPLEX
AIDS SERODIAGNOSIS
HIV
HIV ANTIBODIES
HIV ANTIGENS
HIV INFECTIONS [many subheadings]
HIV SEROPOSITIVITY
HIV SERO PREVALENCE
HIV-1
HIV-2
SAMPLE ENTRY:
1) Subject heading
2) Article title
3) Author
4) Journal title
5) Publication date
6) Volume and issue
numoers
7) Page numbers
^ACQUIRED IMMUNODEFICIENCY
SYNDROME
4
2----- Medical and dental students'
the AIDS
students' attitudes si
3.
-niH-mic. Bernst
Bernstein
CA, c.
et al. Acad Med
epidemic.
ein CA,
65(7):45^-^0—
6
AIDS: jus: another disease? Kenel U. Acad Med 1990 Jul:
65(7):446-7
.
,
Initial evaluation of HIV-infected patients [news]
Am Fam Physician 1990 Nov;42(5 Suppl):SOS
TITLE: INTERNATIONAL NURSING INDEX
SCOPE: Published in cooperation with the National Library of Medicine.
Indexes over 270 nursing journals from around the world as well as selectee
articles from 2700 allied health and biomedical journals. Produced
quarterly and annually.
LOCATION: Index Tables, 2nd floor
FORMAT & USAGE. Articles listed under subject headings, alphabetized by
the name of the journal in which they appear. Also includes an author index.
MOST RELEVANT SUBJECT HEADINGS:
ACQUIRED IMMUNODEFIENCY SYNDROME [many subheadings]
AIDS DEMENTIA COMPLEX
AIDS-RELATED COMPLEX
AIDS-SERODIAGNOSIS
AIDS VACCINES
HIV
HIV ANTIBODIES
HIV INFECTIONS [many subheadings]
HIV SEROPREVALENCE
HIV-1
HIV-2
SAMPLE ENTRY:
i1) Subject heading
2) Article title
3) Author
4) Journal title
5) Publication date
6) Volume and issue
numoers
7) Page numbers
ACQUIRED IMMUNODEFICIENCY
SYNDROME
4
2----- Medical and dental students’ attitudes abpdt the AIDS
epidemic. Bernstein C.A. et al. Acad Med 1990 Jul:^
65C7):453-60---- 7
6
AIDS: just another disease? Kenel U. Acad Med 1990 Jul:
65(7):446-7
Initial evaluation of HIV-infected patients [news]
Am Fam Phvsician 1990 Nov;42(5 Suppi):30S
3-
TITLE: NEW YORK TIMES INDEX
SCOPE: Indexes news articles, features, and editorials printed in the daily
and Sunday editions of the New York Times. Indexes are produced biweekly,
with quarterly and annual cumulations.
LOCATION: Index tables, 2nd floor
FORMAT & USAGE: Entries consist of brief summaries of articles arranged
chronologically by date of publication under broad subjects. Has value not
only as an index, but also as a concise chronological overview of the topic.
MOST RELEVANT SUBJECT HEADING:
ACQUIRED IMMUNODEFIENCY SYNDROME (AIDS)
SAMPLE ENTRY:
1
1) Subject heading
2) Article sununary
3) Article length
4) Date
5) Section
6) Page
7) Column
2
—ACQUIRED IMMUNE DEFICIENCY SYNDROME
(AIDS)
...
.
Town of Sanford. Florida, joins in campaign agains^ Aiu
out of comcassion for family of Thomas E Wliigham. wno
died last year at age 35: his family’s earlier fear ot
revealing his illness recalled (Sanford Journal) ( )• a 1 Act-Up, Aids Coalition to Unleash Power, has played role
in shifting Government policy on epidemic with rash,
disruptive demonstrations such os that in St Patrick s
Cathedral recently; photo: shrill tactics are promoted ov
zrouo that is predominantly homosexual, white and male
Federal scientists revise their estimates of new Acquired
‘ Immune Denciency Syndrome cases in next three years,
saving that while diagnoses will continue to nse snarpiy.
total number wiil be at least 10 percent fewer man
previously predicted (M). Ja 4.D.20:4^
3
4
5
6
7
TITLE: PSYCHOLOGICAL ABSTRACTS
SCOPE; Provides more than 30,000 abstract references to journal articles
and books each year. Areas of coverage include all aspects of behavioral,
educational, and physiological psychology, as well as social processes and
issues, personality, and treatment and prevention of psychopathology. A very
important resource for locating in-depth information.
L8CATI0N: Index tables, 2nd floor
FORMAT & USAGE: Can be challenging and tedious to use. Look up your topic
in the subject index (which is in two volumes). You 11 find a long list of
simple article descriptions, each followed by an assigned abstract number.
Scan the list until you find a description of interest. Write the accession
number down, and go to the main entry section (which is in four quarterly
volumes). Find the volume which includes your accession number (range of
numbers are listed on the spine) and search numerically until you find your
article. Full bibliographic information and a good abstract will be given.
Confused? See a librarian for help!
MOST RELEVANT SUBJECT HEADING:
Acquired Immune Deficiency Syndrome
Venereal Diseases
SAMPLE EMTRY:
1) Subject
2) Article
descriptor
SUBJECT INDEX
Acquired Immune Deficiency Syndrome
^^2
acceptance of HIV antibody testing, adults seeking outpatient
treatment for cocaine abuse, 20321
3) Abstract number
JOURNAL ARTICLE ABSTRACT
1)
2)
3)
4)
5)
6)
Abstract number
Author (s)
Author’s affiliation
Title of article .
Title of journal &
bibliographic data
Article summary
2O3~,l Weddington, William W. i Brown, Barry S. (U Chicago IL) Acceptance of HIV-antibody testing by persons^seeking outpatient treatment for cocaine abuse. Journal
Substance Abuse Treatment. 1988, Vol 5(3), 1^5-149. -100 of
.
101 applicants for outpatient treatment for cocaine abuse con
sented to voluntarv human immunodeficiency virus (HIV) anti- i
bodv testing. 12 Ss tested HIV-antibody positive: 8 of these had
injected druzs parenterally with syringes and needles used by
other addicts' and 4 had never taken drugs iv. A subgroup of 48
Ss were interviewed regarding their knowledge of HIV infection,
acquired immune deficiency syndrome (AIDS), and risk ^ct09
associated with transmission of HIV. All 43 had heard of HI ,
AIDS, and recommendations that they use condoms, clean sy
ringes. and needles. None reported that they used condoms: I 0
reported reduced sexual activity and number of sexual partners,
and none of those who shared needles reponed that they hac
discontinued sharing other addicts drag paraphemaiia.
CDC
CENTERS FOR DISEASE CONTROL
AND PREVENTION
CDC National AIDS
Clearinghouse
x/
Resources for the Religious Community
This resource guide, developed by the CDC National AIDS Clearinghouse in collaboration with the AIDS
National Interfaith Network, includes materials from a variety of sources on issues related to HIV/AIDS
and the religious community. Each entry includes the source organization or author followed by
information about ordering the item. On the last page are national organizations to contact for additional
information.
AIDS: A Christian Perspective. Day, D. &C. Everett Koop, M.D.: Word Inc., P.O. Box 1790, Waco, TX 76703.
(817) 772-4200. (Videotape)
AIDS: A Christian Student’s Response. Chance, H.L. 1990: Broadman Press, 127 Ninth Avenue, N., Nashville,
TN 37234. (615) 251-2548. (Book)
AIDS: A Guide for Study and Response. 1987: Baptist State Convention of North Carolina, Council on Christian
Life and Public Affaire, P.O. Box 1107, Cary, NC 27512-1107. (Brochure)
AIDS: A Salvationist Response. 1991: Salvation Army, Office of Media Ministries, P.O. Box 3608, Dallas, TX
75221. (Videorecording)
AIDS: An Orthodox Perspective. 1988: Greek Orthodox Telecommunications, 27-09 Crescent Street, Astoria, NY
11102. (800) 888-6835. (Videorecording)
AIDS and the African-American Church: An AIDS Education and Training Guide for African-American Church
Religious Leaders and Ministers. Hartwell, V., et. al. 1991: Jackson State University, National Alumni AIDS
Prevention Project, P.O. Box 18890, Jackson, MS 39217. (601) 968-2519. (Teaching Guide)
AIDS and the Church: The Second Decade. Shelp, E.E., and Sunderland, R.H. 1992: Westminster/John Knox
Press, 100 Witherspoon Street, Louisville, KY 40202. (502) 569-5043 ext. 8022. (Bocdc)
AIDS and Your Religious Community: A Hands-On Guide for Local Programs, (includes 27 proven models).
Blumenfeld, W.J., et. al. 1991: Unitarian Univerealist Association, 25 Beacon Street, Boston, MA 02108. (617)
742-2100; AIDS National Interfaith Network, 110 Maryland Avenue, N.E., Suite 504, Washington, DC 20002.
(202) 546-0807. (Manual)
AIDS Bibliography: Selected Resources for Church Educators. Shafer, M. 1989: United Methodist Board of
Global Ministries, General Board of Global Ministries, Health and Welfare Ministries, 475 Riverside Drive, Room
350, New York, NY 10027. (212) 870-3600. Focus Paper No. 5. (Bibliography)
The AIDS Caregivers Handbook. Revised Edition. Eidson, Ted, ed. 1993: St. Martin's Press, 175 Fifth Avenue,
New York, N.Y. 10010. (Book)
AIDS Education Church Bulletin Insert. 1990: District of Columbia Commission of Public Health, 1660 L Street,
N.W., Washington, DC 20036. (202) 673-3425. (Brochure)
AIDS A Ethics. Reamer, F.G., ed. 1991: Columbia University Press, 562 W. 113th Street, New York, NY 10025.
(212) 316-7100. (Book)
U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES
Public Health Service
AIDS: Facing Facts, Confronting Fears; Handle With Caring. 1988: Baptist General Convention of Texas,
Christian Life Commission, 333 N. Washington Street, Dallas, TX 75246. (214) 828-5190. (Information Package)
AIDS Ministry Models. Hunter, J. 1990: National Association of Evangelicals, P.O. Box 28, Wheaton, IL 60189.
(708) 665-0500. (Proceedings)
AIDS Packet. 1988: Unitarian Universalist Association, 25 Beacon Street, Boston, MA 02108. (617) 742-2100.
(Information Package)
AIDS Policy: The Moody Church. 1993: Moody Church, 1609 N. LaSaUe Blvd., Chicago, H 60614. (312) 9430466. (Report)
AIDS Policy: Calvary Memorial Church. 1990: Calvary Memorial Church of Oak Park: Illinois, 931 Lake Street,
Oak Park, IL 60301. (708) 386-3900. (Policy Statement)
AIDS: The Spiritual Dilemma. Fortunato, John E.: Harper & Row Publishers, 1160 Battery Street, San Francisco,
CA 94111. (415) 477-4400. (Book)
AIDS: What is Now Known. Selwyn, P. 1986: HP Publishing, 55 5th Avenue, New York, NY 10003. (212) 9892100. (Book)
The Atlanta Declaration. We Are Living With AIDS: An Interfaith Call to Hope and Action. AIDS National
Interfaith Network, 110 Maryland Avenue, N.E., Suite 504, Washington, DC 20002. (202) 546-0807. (Statement)
Christianity and Crisis. Vol. 52, No. 13, September 21, 1992. Christianity in Crisis, Inc. P.O. Box 6415,
Syracuse, NY 13217; United Methodist AIDS Network, 475 Riverside Drive, Room 350, New York, NY 10115.
(212) 870-3909. (Magazine)
Christians in the Age of AIDS. Smith, S. and Smith, A. 1990: Americans for A Sound AIDS/HTV Policy, P.O.
Box 17433, Washington, D.C. 20041. (703) 471-7350; Victor Books, 1825 College Avenue, Wheaton, IL 60187.
(Book)
A Christian Response to the AIDS Crisis. 1990: The Church of the Nazarene, Nazarene Publishing House, P.O.
Box 419527, Kansas City, MO 64141. (800) 877-0700. (Videotape)
The Church’s Response to the Challenge of AIDS/HIV: A Guideline for Education and Policy Development.
MAP International. 1991: Americans for A Sound AIDS/HIV Policy, P.O. Box 17433, Washington, D.C. 20041.
(703) 471-7350. (Booklet)
The Color of Light: Daily Meditations for All of Us Living With AIDS. Tilleraas, P. 1988: Hazelden Foundation,
Educaticmal Materials, P.O. Box 176, Center City, MN 55012-0176. (612) 257-4010. (Book)
Congregation-Based Care Teams: A Guide and Resource Manual for Practical Support and Pastoral Cart of
Persons With AIDS. Austin, M.S., et. al. 1992: Associated Catholic Charities of New Orleans, Regional AIDS
Interfaith Network, 1000 Howard Avenue, New Orleans, LA 70113. (504) 523-3755 ext. 2917. (Manual)
Cry Pain, Cry Hope. An Opportunity for Interfaith Prayer in Response to the Crisis of AIDS. 1989: Interfaith
Conference of Metropolitan Washington, 1419 V Street, N.W., Washington, DC 20009. (202) 234-€300. (Script)
Developing Your Church AIDS Policy. Crumb, D. 1992: AIDS Information Ministries, 6032 Jacksboro Highway,
Suite 100, Fort Worth, TX 76136. (817) 237-0230. (Book)
An Early Journey Home: Helping Dying Children and Grieving Families. Froehlich, M.A. 1992: Baker Book
House Company, P.O. Box 6287, Grand Rapids, MI 49516-6287. (616) 676-9185. (Book)
An Epistle of Contfort: Scriptural Meditations and Passages for Persons Sitffering From AIDS. Dobbels, W.J.
1990: National Catholic Reporter Publishing, Inc., Sheed and Ward, P.O. Box 419492, Kansas City, MO 641416492. (816) 531-0538. (Book)
Face to Face: A Guide to AIDS Counseling. Dilley, J.W., et al., 1990: University of California San Francisco,
AIDS Health Project, P.O. Box 0884, San Francisco, CA 94143-0884. (415) 476-6430. (Book)
For Those We Love: A Spiritual Perspective on AIDS. 1986: AIDS Ministry Program, the Archdiocese of Saint
Paul and Minneapolis, Riverside Medical Center, 2450 Riverside Avenue, South, Minneapolis, MN 55454. (612)
672-4345. (Book)
The Gospel Imperative in the Midst ofAIDS: Towards a Prophetic Pastoral Theology. Des, R.H. 1989: Morehouse
Publishing, 78 Danbury Road, Wilton, CT 06897. (203) 762-0721. (Book)
In the Midst of Winter. 1992: Pyramid Film and Video, P.O. Box 1048, Santa Monica, CA 90406. (310) 828-7577;
(800) 421-2304. (Videorecording)
Leprosy in the Church Today: AIDS. Skol, R. and Skol, C. 1987: Exhortation Ministries, P.O. Box 433,
Streamwood, EL 60107. (Paper)
Lights of Hope. Parra, R. 1991: CDC National AIDS Clearinghouse, P.O. Box 6003, Rockville, MD 20849-6003.
(800) 458-5231. CDC NAC Inventory No. V035 (English); No. V036 (Spanish). (Videorecording)
Ministry to Persons With AIDS: A Family Systems Approach. Perelli, R.J. 1991: Augsburg Publishing House,
P.O. Box 1209, Minneapolis, MN 55440. (612) 330-3300. (Book)
Mortal Fear: Meditations on Death and AIDS. Snow, J. 1987: Cowley Publications, 980 Memorial Drive,
Cambridge, MA 02138. (617) 876-3507. (Book)
Nothing Can Separate Us From the Love of God. Help From the Scriptures for Coping With AIDS. 1989:
American Bible Society, 1865 Broadway, New York, NY 10023. (800) 248-6571. Also available in Spanish. (Book)
Our Church Has HIV/AIDS: Respond to HIV/AIDS - A Presbytery Task Force. 1992: Presbyterian Distribution
Management Service, 100 Witherspoon Street, Louisville, KY 40202-1396. (800) 524-2612. (Book)
Prayer Journey for Persons With AIDS. Nugent, R. 1989: Saint Anthony Messenger Press, 1615 Republic Street,
Cincinnati, OH 45210. (513) 241-5615. (Book)
Praying With HIV/AIDS: Collects, Prayers A Litanies in a Time of Crisis. 1990: Forward Movement Publications,
412 Sycamore Street, Cincinnati, OH 45202. (513) 721-6659. Also available in Spanish. (Brochure)
The Presiding Bishop’s National Day ofPrayerfor Persons Living With HIV/AIDS: Episcopal Church HIV/AIDS
Resources. 1991: Episcopal Church Center, Joint Commission on AIDS, 815 2nd Avenue, New York, NY 10017.
(212) 867-8400. Also available in Spanish. (Book)
RACE (Reducing AIDS Through Community Education). 1991: Southern Christian Leadership
Conference/Women’s Organization Movement for Equality Now, National AIDS Minority Information Education
and Training Program, 330 Auburn Avenue, NE, Suite 216, Atlanta, GA 30303. (404) 681-2437. (Brochure)
Saving a Life: A Jewish Response to AIDS. Kahn, R.Y. 1990: Union of American Hebrew Congregations, 838
5th Avenue, New York, NY 10021-7046. (212) 249-0100. (Brochure)
Suggested Guidelines for Counselling Family Members of People With AIDS. Bender-Laitman, L. 1990. Union
of American Hebrew Congregations, 838 5th Avenue, New York, NY 10021-7046. (212) 249-0100. (Brochure)
Suggested Guidelines for Counselling People With AIDS. Bender-Laitman, L. 1990: Union of American Hebrew
Congregations, 838 Sth Avenue, New York, NY 10021-7046. (212) 249-0100. (Brochure)
Teaching About AIDS. Flynn, E.P. 1988: National Catholic Reporter Publishing, Inc., Sheed and Ward, P.O. Box
419492, Kansas City, MO 64141-6492. (816) 531-0538. (Study Guide)
Ten Tips for an Enthusiastic Love A Action Volunteer Team. 1993: Love and Action Midwest, Inc., 107 S. Hi
Lusi, Mt. Project, IL 60056. (708) 392-3123. (Fact Sheet)
A Time for Caring: A Pastoral Approach for Persons With AIDS. 1989: Lazarus Project. W. Hollywood
Presbyterian Church, 7350 Sunset Blvd., Hollywood, CA 90046. (213) 874-6646. (Videorecording)
UAHC Committee on AIDS: An Annotated Bibliography of AIDS. Edelheit, J. A. 1990: Union of American
Hebrew Congregations, 838 Sth Avenue, New York, NY 10021-7046. (212) 249-0100. (Bibliography)
When AIDS Comes to Church. Amos, W.E. 1988: Westminster/John Knox Press, 100 Witherspoon Street,
Louisville, KY 40202. (502) 569-5043 ext. 8022. (Book)
Why Me? 1993: American Scripture Gift Mission, P.O. Box 2126, Upper Darby, PA 19082; Scripture Gift
Mission, 300 Steelcase Road West #32, Markham, L3R 2W2, Canada. (Book)
Worship Resource for HIV A AIDS Ministries. Brown, Ph.D., et. al. 1991: United Methodist Church, General
Board of Global Ministries, Service Center, 7820 Reading Road, Caller No. 1800, Cincinnati, OH 45222-1800.
(513) 761-2100. (Book)
National Religious AIDS Organizations
AIDS Advocacy in African American Churches, 110 Maryland Ave., NE, Washington, DC 20002. (202) 5460807; (202) 546-5103. Contact: Jacquelyn Wilkerson.
AIDS National Interfaith Network, 110 Maryland Avenue, N.E., Suite 504, Washington, DC 20002. (202) 5460807; (800) 288-9619. Contact: Ken South.
Christian AIDS Services Alliance, P.O. Box 3612, San Rafael, CA 94912-3612. (410) 268-3442. Contact: Brad
Sargent.
Disciples of Christ AIDS Network, 747 N. Taylor Ave., Kirkwood, MO 63122. (314) 822-3296; (314) 772-2309.
Lutheran AIDS Network, Holy Cross Lutheran Church, 1165 Seville Drive, Pacifica, CA 94044. (415) 359-2710.
Contact: Rev. Michael Pozar.
National Catholic AIDS Network, P.O. Box 422984, San Francisco, CA 94142-2984. (707) 874-3031; (707) 8741433 (FAX). Contact: Rodney J. DeMartini, SM.
National Episcopal AIDS Coalition, 2025 Pennsylvania Ave., NW, #509, Washington, DC 20006-1813. (202) 6286628. Contact: Ted Karpf.
Presbyterian AIDS Network, 747 N. Taylor Avenue, Kirkwood, MO 63122. (314) 822-3296; (314) 722-2309
(FAX). Contact: Peg Atkins.
Presbyterian AIDS Network, RD 1 Box 112, Fredrickstown, PA 15333. (412) 377-0728; (412) 323-2256 (FAX).
Contact: Phil Jamison.
Union of American Hebrew Congregations, 6300 Wilshire Blvd., Suite 1730, Los Angeles, CA 90048. (213) 6539962; (213) 653-9236 (FAX) or Temple Beth Chayim Chadashim, 6000 W. Pico Blvd., Los Angeles CA 90035.
(213) 931-7023; (213) 931-1490 (FAX). Contact: Rabbi Marc Blumenthal.
United Church AIDS Network, Urbandale United Church of Christ, 7002 Oliver Smith Dnve, Urbandale, LA
50322. (515) 276-0625. Contact: Pat de Jong. 1417 W. Olive Avenue, Chicago, IL 60660. (312) 935-8300; (312)
935-6199 (FAX). Contact: Chuck Seiner.
United Methodist AIDS Network, 475 Riverside Drive, Room 350, New York, NY 10115. (212) 870-3909; (212)
870-3873 (FAX).
Unitarian Universalist Association AIDS Program, 25 Beacon Street, Boston, MA 02108-2800. (617) 742-2100;
(617) 523-4123 (FAX). Contact: Meg Riley.
Universal Fellowship of Metropolitan Community Churches AIDS Ministry, 5300 Santa Monica Blvd. #304,
Los Angeles, CA 90029. (213) 464-5100; (213) 464-2123 (FAX). Contact: Rev. A. Stephen Pieter.
•a*
Additional Resources
The CDC National AIDS Hotline is open 24 hours a day, 7 days a week, 365 days a year to answer questions from
the general public on HTV/AIDS. 1-800-342-AIDS; 1-800-344-7432 (Spanish); 1-800-243-7889 (deaf access/TDD).
Clergy and others can contact the CDC National AIDS Clearinghouse for assistance in organizing an HTV
program, developing materials, or to order bulk materials at P.O. Box 6003, Rockville, MD, 20849-6003.
1-800-458-5231 (voice); 1-800-243-7012 (deaf access/TDD).
Other national organizations with a religion and HTV/AIDS initiative or focus:
Americans for A Sound AIDS/HIV Policy, P.O. Box 17433, Washington, D.C. 20041. (703) 471-7350. Contact:
Shepard Smith.
The Congress of National Black Churches, 1225 Eye Street, N.W., Suite 750, Washington, D.C. 20005-3914.
(202) 371-1091. Contact: Rev. Michael Lemons.
National Council of La Raza, 810 1st Street, NE, Suite 300, Washington, D.C. 20002-4205. (202) 289-1380,
(FAX) (202) 289-8173.
10/93 :B538
CENTERS FOR DISEASE CONTROL
AND PREVENTION
CDC National
AIDS Clearinghouse
and Use
U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES
Public Health Service
A Guide to Locating Information About
Condom Efficacy and Use
Introduction
Recent studies provide compelling evidence that latex condoms are highly effective in protecting against
HIV infection when used correctly and consistently for every act of intercourse. This guide was produced
by the CDC National AIDS Clearinghouse as a tool to assist program developers and health educators
in locating information about condom efficacy and use. It includes information about key reports, studies,
and journals that highlight the scientific evidence about the ability of condoms to prevent HIV
transmission. Both print and electronic resources are provided; availability information is included for
each resource. For information about ordering materials that are available from the Clearinghouse, please
call 1-800-458-5231 (voice); 1-800-243-7012 (TDD).
The guide also includes a list of organizations with expertise in this area. These groups conduct research
on condoms as risk reduction tools or provide condom education to the target audiences that they serve.
Many are willing to provide assistance to others who are planning condom education programs.
Key Subject Terms
When conducting research in libraries or using online resources, the use of certain terms will help you
formulate your search. Since much of the literature on condoms has been published in journals and books
that focus on contraception, several of the terms below are drawn from the field of family planning.
AIDS (Disease)
Barrier methods
Condom
Contraception
Contraceptives
HIV Infection
HIV Prevention
Human Immunodeficiency Virus
Safer Sex
Sexually Transmitted Diseases
Sexually Transmitted Disease-Prevention
1. Selected Reference Resources
"Update: Barrier Protection Against HTV Infection and Other Sexually Transmitted Diseases,"
Morbidity and Mortality Weekly Report, Centers for Disease Control and Prevention, August 6, 1993,
Vol. 42, No. 30, 589-597, available from the CDC National AIDS Clearinghouse,inventoryno. D445.
This report describes laboratory and epidemiologic findings regarding the effectiveness of condoms
in the prevention of HIV infection and other STDs. Data from these studies indicate that in
heterosexual couples in which one partner is HIV positive and the other is HIV negative, use of a latex
condom substantially reduces the risk for HIV transmission. An Editorial Note describing proper
condom use and methods for prevention of HIV infection is also included.
Facts About Condoms and Their Use in Preventing HIV Infection and Other STDs, July 1993, Centers
for Disease Control and Prevention, Available from the CDC National AIDS Clearinghouse, inventory
no. D444.
This fact sheet summarizes recent studies that provide compelling evidence that latex condoms are
highly effective in protecting against HIV infection when used properly for every act of intercourse.
It also includes a list of steps for correct use of condoms, addresses common myths about condom use,
and discusses other HIV prevention strategies.
Hatcher, Robert, A., et al. Contraceptive Technology, 1990-1992 edition available from Bridging the
Gap, 1014 Sycamore Dr., Decatur, GA 30032, (404) 373-0530. 1994-1996 edition will be available
in January 1994.
This comprehensive biannual guide to contraception, provides background information on all methods
of contraception. The 1990-1992 edition includes information on condoms and their use in preventing
the transmission of HIV.
The Facts (series of fact sheets from the Center for Population Options, 1025 Vermont Ave., NW, Suite
200, Washington, DC 20005, (202) 347-5700. These fact sheets provide concise information on
condom use and include bibliographies.
Adolescents, HIV and Other Sexually Transmitted Diseases, May 93
Condom Efficacy and Use Among Adolescents, January 1993
Adolescents and Condoms, October 1991
Adolescent Contraceptive Use, June 1990
Adolescent Sexuality, Pregnancy and Parenthood, December 1993
Bao, D., Thorne, B., Condom Educator’s Guide, Condom Resource Center, Oakland: 1991. P.O. Box
30564, Oakland, CA 94604, (510) 891-0455.
This monograph gives advice to college students educating their peers about safer sexual conduct and
HIV infection. It provides detailed information about different types of condoms and how to use
them, with emphasis on behavior modification and the importance of attitudes.
Population Reports^ "Condoms—Now More Than Ever," Population Information Program Series H,
No. 8, September 1990; available from Population Information Program, Center for Communication
Programs, Johns Hopkins School of Hygiene and Public Health, 111 Market Place, Suite 310,
Baltimore, MD, 21202. (410) 659-6336 or -6337; Fax (410) 659-6266.
This issue of Population Reports provides an excellent overview of condom education worldwide and
includes an extensive bibliography. Articles cover a broad range of topics related to condom use in
developed and developing countries; efficacy in prevention of STDs and pregnancy; promotional
methods with respect to different audiences and challenges, and examples of successful marketing;
counseling on condom use; increasing availability; national condom standards; and steps in the
development of new types of condoms for men and women. It includes an illustrated cut out flyer on
correct condom use and statistics on condom use for family planning and efficacy in prevention of
pregnancy.
2
2.
Key Journals and Newsletters
Current information on HIV/AIDS research studies and findings is frequently published in journals,
newsletters and newspapers. The following publications regularly address questions relating to condom
efficacy and use. They can be found in most university and medical libraries.
Contraceptive Technology Update
This monthly newsletter for health professionals provides information and analysis about contraception,
prevention of STDs and pregnancy, counseling, product labeling, education, federal funding, and group
behavioral studies. Articles include educational materials reviews, legislation analysis, quarterly STD
update, and a question and answer section. Available from American Health Consultants, Inc., 3525
Piedmont Road, Building 6, Suite 400, Atlanta, GA 30305. (800) 688-2421; (404) 262-7436.
FDA Drug Bulletin
The Food and Drug Administration’s monthly bulletin reviews new drugs and medical devices (including
condoms) approved by the FDA, and evaluates drug treatment and effects. Available from FDA Drug
Bulletin, Circulation Dept., HFI-43, 5600 Fishers Lane, Rockville MD 20857. (301) 443-3220.
Family Planning Perspectives
A bi-monthly journal. Family Planning Perspectives includes articles, book reviews, letters, digests and
program spotlights. Research articles about the United States and the developed world are intended to
be of practical assistance to professionals in the fields of family planning, population studies and maternal
and child health. A quarterly journal, International Family Planning Perspectives, includes articles about
developing countries covering contraceptive practice, and research; fertility levels; trends and
determinants; public policies and legal issues; STDs; and reproductive maternal and child health. Both
journals are available from the Alan Guttmacher Institute, 111 Fifth Ave., New York, NY, 10003. (212)
254-5656; Fax (212) 254-9891.
Network
Network is a quarterly journal, published in English, Spanish, and French, for health professionals
covering contraceptive development, family planning, reproductive health, and AIDS prevention around
the world. Available from Family Health International, P.O. Box 13950, Research Triangle Park, NC
27709. (919) 544-7040; Fax (919) 544-7261; Telex 579442.
Population Reports
These topic-focused reports cover family planning and population information in the United States,
Europe, and developing countries. All aspects of family planning and contraception, including specific
methods, correct use, efficacy in preventing STDs and pregnancy, counseling, and the impact of family
planning on fertility, family planning programs, youth and education are covered. Some issues of
Population Reports are available in Arabic, French, Portuguese, and Spanish. Series H and L deal with
STDs, contraception, and AIDS. Available from Population Information Program, Center for
Communication Programs, Johns Hopkins School of Hygiene and Public Health, 111 Market Place, Suite
310, Baltimore, MD 21202 (410) 659-6336 or 6337; Fax (410) 659-6266.
SIECUS Report
Contraception, sexuality, AIDS and other STDs are covered in this bimonthly report. Issues include
stories, publication reviews, fact sheets, listings of educational resources, and a conference calendar.
Available from the Sex Information and Education Council of the United States, 130 West 42nd Street,
Suite 2500, New York, NY, 10036 (212) 819-9770.
3
3. Print and Electronic Indexes to Journals
Print, CD-ROM, and online databases are available to help locate articles in the journals and newsletters
described above as well as in other periodicals. The print indexes described below can be found in most
public libraries; the online databases are available in some public libraries and in most university and
medical libraries.
Print Indexes
SIRS (Social Issues Resources Series) is an informational service, released monthly, covering AIDS and
other social science questions of high visibility. Each edition includes an index and the full text of 1-5
articles per month.
Readers Guide to Periodical Literature is a monthly index to popular literature. Topics of articles can
be searched by subject headings.
CD-ROM Indexes
Magazine Index (TM), Magazine Article Summary (TM), and Infotrac (TM) are CD-ROM article
summary services of popular literature that are updated monthly. They can be searched by author, title,
journal, or keyword; publication information and abstract can be printed directly from the computer
screen.
Online Databases
The following databases can be searched to find articles about condoms in journals, conference
proceedings, reports, and monographs. Consult your university or public librarian for additional
information on these and other electronic resources. A list of commercial vendors that make these
databases available is included following the descriptions.
AIDS Daily Summary
Provided by the CDC National AIDS Clearinghouse, this service provides summaries of AIDS-related
articles from major newspapers and journals. The AIDS Daily Summary is available online to registered
users (organizations working in the fields of AIDS prevention, research, support and care) of NAC
ONLINE, the CDC National AIDS Clearinghouse’s electronic network. Searches of the AIDS Daily
Summary are available free by calling a reference specialist at the CDC National AIDS Clearinghouse.
Call 800-458-5231 to inquire about becoming a registered user or to obtain a free search.
CDC National AIDS Clearinghouse Educational Materials Database
The CDC National AIDS Clearinghouse Educational Materials Database is a collection of information
about 12,000 hard-to-find print and audiovisual materials that can be used in AIDS education programs,
including those that focus on risk reduction strategies. The database is available online to registered users
of NAC ONLINE. Searches are available free by calling a reference specialist at 1-800-458-5231.
4
AIDSLINE Database
Produced by the National Library of Medicine (NLM), this database covers AIDS-related literature from
1980 to the present and is available in print as the AIDS Bibliography. The database covers biomedical,
epidemiological, social, and behavioral aspects of the disease as well as health policy issues. AIDSLINE
also includes abstracts from International Conferences on AIDS. For information about obtaining access
to AIDSLINE through NLM’s MEDLARS system, call 1-800-638-8480. AIDSLINE can also be
accessed using NLM’s Grateful Med, a user-friendly software package available from the National
Technical Information Service at (800) 423-9255. AIDSLINE is also available from DIALOG, Data-Star,
BRS (see below for phone numbers).
POPLINE (Population Information Online)
Made available through the National Library of Medicine, POPLINE consists of citations, with abstracts,
from the following sources: Center for Population Options, Johns Hopkins University; Carolina
Population Center, University of North Carolina; Center for Population and Family Health, Columbia
University; and the Office of Population Research, Princeton University. POPLINE includes ciutions
from 1970 to date from the worldwide literature on population, family planning and family-related health
care, law, and policy issues including contraceptive methods and AIDS in developing countries. It covers
journals, monographs, and technical reports. POPLINE is available on MEDLARS (800) 638-8480 and
in CD-ROM, from SilverPlatter (see below for phone number).
Psyclnfo/Psychological Abstracts
Produced by the American Psychological Association, this database provides access to the international
literature in psychology and related behavioral sciences from 1967 to the present. Psyclnfo/Psychological
Abstracts is available on DIALOG, BRS, and DataStar; PsycLIT, a CD-ROM version is available from
SilverPlatter (see below for phone numbers).
Online Database Vendors
DIALOG
AIDSLINE;
PsycINFO
(800) 334-2564
BRS
AIDSLINE-closed June
1992;
Psychological Abstracts;
Sociological Abstracts
(800) 289-4277
Data-Star
AIDSLINE;
Psychological Abstracts
(800) 221-7754
Silver Platter
(CD-ROM)
POPLINE
(800) 874-1130
5
4. Resource Organizations
**American College Health Association
P.O. Box 28937
Baltimore, MD 21240-8937
(410) 859-1500
The American College Health Association is a professional association which focuses on health promotion
to students and other members of the college community. It offers continuing AIDS education programs
for health professionals and students, faculty, and college administrators; coordinates safer sex and AIDS
prevention programs; publishes newsletters, reports, and educational materials including a list of condom
machine manufacturers and installers; and maintains an extensive library.
American Social Health Association
National STD Hotline
P.O. Box 13827
Research Triangle Park, NC 27709
(800) 227-8922
The American Social Health Association’s National STD Hotline provides basic information about
sexually transmitted diseases to the general public, as well as free literature and referrals.
**Center for Population Options
1025 Vermont Ave., NW.
Ste. 210
Washington, DC 20005
(202) 347-5700
The Center for Population Options (CPO) seeks to improve adolescent decision-making through life
planning and other sexuality education programs; to promote access to comprehensive health care,
including family planning, through school-based and other community-based clinics; and to prevent the
spread of HIV and other sexually transmitted diseases among adolescents. CPO operates the National
School Condom Availability Clearinghouse which maintains information about current school condom
availability programs, programs that are in development, and those that have been rejected. Staff provide
technical assistance to individuals and school districts in the areas of program design, implementation,
and evaluation.
**Condom Resource Center
P.O. Box 30564
Oakland, CA 94604
(510) 891-0455
The Condom Resource Center is dedicated to reducing the incidence of sexually transmitted diseases,
including AIDS, and unintended pregnancy by increasing the proportion of sexually active persons who
use condoms. It sponsors National Condom Week and provides outreach education, technical assistance,
and print and audiovisual materials.
Alan Guttmacher Institute
111 5th Ave.
New York, NY 10003
(212) 254-5656
The Alan Guttmacher Institute is a nonprofit organization that provides research findings and policy
analysis in the areas of family planning and reproductive rights.
★★Indicates that the organization is willing to provide assistance in developing condom education programs.
6
Mariposa Education and Research Foundation
3123 Schweitzer Dr.
Topanga, CA 90290
(818) 704-4812
The Mariposa Education and Research Foundation is a nonprofit organization involved in research and
prevention of sexually transmitted disease, in general, and AIDS in particular.
National Collegiate AIDS Network
HAVOC Director
321 South Jordan Ave.
Bloomington, Indiana 47401
(812) 332-2092
The National Collegiate AIDS Network’s goal is to serve as an avenue by which institutions of higher
learning across the United States and agencies which serve them can exchange information, ideas, and
resources on HIV/AIDS concerns among the college student population. The Network publishes a
newsletter three times per year.
**Planned Parenthood Federation of America
810 7th Ave.
New York, NY 10019
(212) 541-7800 (national headquarters)
(800) 230-PLAN (automatic connection to the nearest local affiliate)
The Planned Parenthood Federation of American (PPFA) is a federation of family planning organizations
nationwide that provide reproductive health care and sexuality education. PPFA affiliates provide
educational materials, safer sex counseling, referral services, and community education. Most PPFA
affiliates offer anonymous and/or confidential HIV testing counseling. PPFA staff can provide technical
assistance in launching condom information and promotional campaigns. Some affiliates house resource
centers with condom education information.
**Sex Information and Education Council of the US
130 West 42nd St, Suite 2500
New York, NY, 10036
(212) 819-9770
The Sex Information and Education Council of the U.S. (SIECUS) was founded to provide information
and education on family life and related issues to health care professionals, educators, policy makers,
students, and the general public. SIECUS provides technical assistance with the implementation of
condom promotion campaigns and events; conducts workshops on issues related to sexuality and
HIV/AIDS; maintains a library containing a major collection of AIDS and sexuality-related resources;
and provides educational materials and bibliographies.
5. Other Resources
The following are other resources to consider when planning condom education activities:
•
AIDS service organizations and other community organizations in your local area that already
provide AIDS prevention education or sexuality education. Call the CDC National AIDS
Clearinghouse for information about local AIDS service organizations.
•
Major manufacturers of condoms in the U.S.
•
State and local health departments for technical assistance and materials for
use in condom education programs.
★★Indicates that the organization is willing to provide assistance in developing condom education programs.
7
l/94:D002
Appendix 9: AIDS Education General Information System (AEGIS)
AIDS information projects can benefit from the resources available through the AIDS Education
General Information System’s bulletin board network. This appendix describes the components of
AEGIS.
AEGIS - HIV/AIDS INFORMATION BBS.
Modem phone (714) 248-2836
Internet address: mary.elizabeth@aegis.hivnet.org
This comprehensive information collection is current and easily accessible; simply stated,
this is one of the best. HIV/AIDS Information BBS serves as the central hub of the
AEGIS (AIDS Education General Information System) network which links AIDSrelated bulletin boards and networks in many U.S. and Canadian cities, and in Africa,
Asia, Australia, and Europe. A complete list of the AEGIS affiliates is included at the
end of this document.
As with many bulletin board systems, HIV/AIDS Information BBS consists of two basic
parts: a message area and a file area. The message area allows you to read and write
messages, either to public, subject-specific conferences, or privately to other AEGIS
users through electronic mail. The AEGIS public conferences available are AIDS.DATA,
AIDS.DIALOGUE, AIDS.DRUGS, AIDS.NEWS, AIDS.SPIRITUAL, AIDS.TRIALS,
and AIDS.WOMEN. Users can post relevant information, ask questions, or simply read
what others have written. In addition to these AEGIS conferences, the system makes
available: HIVNet (which is a European sister organization to AEGIS, with conferences
in French, German, and Dutch); FidoNet conferences AIDS/ARC, AIDS-HIV, ACTUP,
and THE WHITE HOUSE; as well as the Internet Newsgroups sci.med.aids and
bionet.molbio.hiv. (Some of these conferences are read-only for users of HIV/AIDS
Information BBS.)
The second component is the files area. Known on this system as Online Library
Services, it has over 140,000 files available for reading immediately or for downloading
(transmitting to your computer for use later), with hundreds of new files added each
month. These files include information on current AIDS-related treatment, research,
epidemiology/surveillance, education/prevention, etc., available from the U.S. Public
Health Service, National Institutes of Health, National Institute of Allergies and
Infectious Diseases, Food and Drug Administration, Centers for Disease Control,
National AIDS Information Clearinghouse, and National Library of Medicine. Several
newsletters are available, including AIDS TREATMENT NEWS, Being Alive, Critical
Path AIDS Project, STEP Perspective from Seattle Treatment Education Project, and
Treatment Issues from Gay Men’s Health Crisis. Information is also available from major
newspapers and wire services. Other resources include conference proceedings, research
abstracts, an AIDS bibliography for books in print, a glossary of AIDS-related
terminology, an introductory course in AIDS, and a listing of AIDS support
organizations.
This is only a brief overview of the some of materials available. To make the information
more accessible, a keyword search is provided. Users can search most of the databases
using up to ten keywords, which can be combined using the operators ’and’, 'or', and 'not'.
After the search, the results are presented and the user is given the choice of viewing the
text immediately, or downloading the files for reading later.
We encourage people to connect with this system to explore it for themselves. Callers
have immediate free access to the bulletin board, though each caller is limited to 40
minutes per call, 6 calls daily because the demand is high. Callers who wish to remain
anonymous may log on as "aids info," but then they can only read information; it is
necessary to register to get permission to write to the conferences. Once connected, we
strongly recommend reading the notice for first-time callers, available from the main
menu. It provides some important information regarding the use of this system.
If you have difficulty or questions, you may contact the system operator, Mary Elizabeth,
by voice telephone at 714/248-5843 (9 am to 4 pm Pacific time). She is willing to provide
whatever assistance may be necessary.
Copyright 1994 by John S. James. Permission granted for noncommercial reproduction,
provided that our address and phone number are included. Subscription and Editorial
Office: P.O. Box 411256, San Francisco, CA 94141 - 8OO/TREAT-1-2 toll-free U.S. and
Canada - 415/255-0588 regular office number - fax:415/255-4659 Internet:
aidsnews.igc.apc.org Editor and Publisher: John S. James
Global Electronic Network for AIDS (GENA)
AEGIS-GayCom-GCL-GreenNet-GSN-HIVNET-PrideNet-StudsNet
05/29/94
UNITED STATES
Alabama
Torch Song BBS (SNet 1:3602/69)
205.328.1517
Sysop: Phil Tidwell
Location: Birmingham
California
AEGIS/America (1:103/927)
714.248.2836
Sysop: Mary Elizabeth
Location: San Juan Capistrano
Internet: mary.elizabeth@aegis.hivnet.org
The Clovis Co of Fresno (AEGIS 1:205/48)
Sysop: Rod Jessen
Location: Clovis
Feed: 1:2608/31
209.323.7583
The Hiding Place (AEGIS 1:125/3110)
707.887.1341
Sysop: Doug Olson
Location: Forestville
Special Times BBS (GaySubNet 1:102/528)
213.665.9486
Sysop: Kevin Walker
Location: Hollywood
The Silent Partner BBS
Sysop: Jim Schooler
818.832.4585
Location: Los Angeles
Stephanie's Playhouse (AEGIS 1:202/1824)
619.569.8788
Sysop: Stephanie Anderson
Location: San Diego
Fog City BBS (GayCom 207:1/5; 1:125/100)
415.863.9697
Sysop: Bill Essex
Location: San Francisco
STUDS BBS (STUDSnet 1:125/572)
415.495.2929
Sysop: Hans Von Braun
Location: San Francisco
The Sprawl (1:102/903)
Sysop: John Schofield
818.342.5127
Location: Tarzana
THE ART GALLERY - SOUTH BBS (StudsNet)
Sysop: Mike Reeves
Location: Torrance
Colorado
The Colorado Leather Company (PrideNet 156:1850/3)
Sysop: Robert Schlup
Location: Denver
310.791.7278
303.399.4385
The Denver Exchange (1:104/909)
303.623.4965
Sysop: James Craig
Location: Denver
Regional Hub and GayComm Gateway (201:1/4; 201:1/12)
Telepeople (AEGIS 1:104/69)
Sysop: Marshall Barry
303.426.1866
Location: Denver
Connecticut
AEGIS/Connecticut (AEGIS 1:141/650)
203.624.8990
Sysop: Kenny Teel
Location: New Haven
Regional Hub
Lifestyles (GAY) BBS (GCL 1:141/107)
203.481.4836
Sysop: Rick Sande
Location: Branford
Rainbow View - AEGIS/Danbury (1:141/991)
Sysop: Bill Hausler
Location: Danbury
203.744.0179
The Nursing Network (AEGIS 1:141/896)
203.237.1131
Sysop: Michael Rostock
Location: Meriden
LambdaConn Health AEGIS/Milford (AEGIS 1:141/215)
Sysop: Jeffrey Lizotte
Location: Milford
Chrometics (AEGIS 1:141/755)
Sysop: Tom Ruddy
203.877.6667
203.270.8676
Location: Newtown
The Soft Parade (AEGIS 1:141/485)
203.924.5603
Sysop: Mike Robinson
Location: Shelton
Emerogronican BBS (AEGIS 1:141/666)
203.949.0189
Sysop: Steve Ambrossini
Location: Wallingford
The Vampire Connection (AEGIS 1:141/808)
203.269.8313
Sysop: The Vampire Lestat
Location: Wallingford
District of Columbia
The Baobab (APC 1:109/151)
202.296.9790
Sysop: Bob Barad
1Location: Washington, D.C.
Internet: sysop@baobab.fidonet.org
Florida
The Beach Board BBS (1:371/1)
813.337.5480
Sysop: Dave Ward
Location: Fort Myers
Northeast Florida AIDS Network (AEGIS 1:112/1612)
Sysop: David Gano
Location: Jacksonville
The Mineshaft BBS (StudsNet
Sysop: Teddy Bear
904.358.2854
305.477.0550
Location: Miami
Compu-Link (GaySubNet 1:363/1571)
Sysop: Bill Wenzel
Location: Orlando
Medical Center of Excellence (AEGIS 1:3600/3)
Sysop: Bill Mathews
Location: Raiford
407.240.7952
904.431.1913
Aftermidnite BBS (AEGIS 1:3603/103)
813.823.3163
Sysop: Dell Edwards
Location: St. Petersburg
Does Your Mother Know (IGIS 1:137/406)
Sysop: Al Anderson
Location: Venice
813.484.0673
Georgia
Trash Shack BBS (AEGIS 1:133/518)
404.320.0026
Sysop: Clifford Deans
Location: Atlanta
Zap (GaySubNet 1:3611/6)
Sysop: Robin Stacy
912.788.6811
Location: Macon
Illinois
Scandal's (GaySubNet 1:115/266)
708.356.5633
Sysop: Roger Hyttinen
Location: Lake Villa
Kentucky
The Backstreet
Sysop: Tony Myers
502.459.2870
Location: Louisville
Maryland
Info Connection (AEGIS 1:109/561/PrideNet 156:2600/0)
Sysop: Steve Deller
Location: Beltsville
The Honey Board CBCS (AEGIS 1:109/543)
Sysop: Heather James
Location: Wheaton
Massachusetts
The Den (AEGIS 1:101/225)
Sysop: Ray Gouin
301.937.6704
301.933.1467
617.662.6969
Location: Melrose
The Lighthouse (AEGIS 1:322/605)
508.892.8857
Sysop: George Lafreniere
Location: Leicester
The Foundation BBS (AEGIS 1:322/732)
508.797.9563
Sysop: Phil Collins
Location: Worcester
Michigan
Auburn Hills Hub (AEGIS/Michigan 1:120/2310)
810.852.4444
Sysop: Jeff Bonner
Location: Auburn Hills
Minnesota
DRAGnet (AEGIS 1:282/1007)
Sysop: Gordon Gillesby
612.753.1943
Location: Andover
Carolyn’s Closet (AEGIS 1:282/3015)
612.891.1225
Sysop: Carson Kimble
Location: Apple Valley
Missouri
Doc in the Box (AEGIS 1:289/8)
Sysop: Mark D. Winton
Internet: mwinton@med.itc.com
314.893.6099
Location: Jefferson City
Boardrooms to Bedrooms BBS (PrideNet 156:2850/1)
Sysop: Terry Goodlett
Location: Kansas City
816.483.7018
ARC ANGEL EXPRESS (AEGIS 1:284/7)
417.864.4573
Sysop: Charlie Munhollon
Location: Springfield
New Jersey
The Underground BBS (AEGIS 1:107/425)
908.262.9666
Sysop: David Brian
Location: Bricktown
gLiTcH (GayCom 207:1/4; FidoNet 1:2605/633)
Sysop: JOD
Location: Piscataway
New York
Access BBS (AEGIS 1:267/136)
Sysop: Maureen Allen
908.968.7883
518.885.4192
Location: Ballston Spa
Brooklyn College ONLINE! (AEGIS 1:278/0)
Sysop: Howie Ducat
Location: Brooklyn
718.951.4631
The Backroom (GayCom 207:1/1)
718.951.8256
Sysop: Tiger Tom
Location: New York
Queer ConX (PrideNet 1:278.504@fidonet)
212.780.9475
Sysop: Derek Felska
Location: New York
SOTB BBS (AEGIS 1:272/113)
Sysop: Lyssa Wess
914.723.3397
Location: Scarsdale
North Carolina
Swamp Ward (AEGIS 1:3660/814)
919.751.2324
Sysop: Mike Whatley
Location: Goldsboro
Connie's Comer RyBBS (1:3660/850)
919.527.6194
Sysop: Connie Anne
Location: Kinston, NC
Oklahoma
The Looking Glass BBS (AEGIS 1:170/706)
Sysop: Arnie Holder
Location: Tulsa
918.838.7575
Pennsylvania
Black Bag Medical BBS (AEGIS 1:273/701)
610.454.7396
Sysop: Edward Delgrosso
Location: Collegeville
Regional Hub (1:278/0)
Internet: ed@blackbag.com
P.A.& W. BBS (AEGIS 1:129/228)
412.381.6878
Sysop: Doug Segur
Location: Pittsburgh
Feed: 1:2608/31
Rhode Island
GAYtway (GayCom 207:1/20
401.739.1380
Sysop:
Location: Providence
Texas
River City Mailbox (GaySubNet 1:382/4)
George Sharpe
Location: Austin
512.327.5376
The Super Collider Project
Sysop: Patrick Presley
409.833.8583
Location: Beaumont
Puss-N-Boots (AEGIS 1:124/3103)
214.437.0688
Sysop: Aaron Davis
Location: Grand Prairie
Feed: 1:130/55
Murphy’s Law (PrideNet 156:370/0; 1:106/365)
Sysop: Gregg Holland
Location: Houston
AIDS Chat Line (AEGIS 1:130/55)
Sysop: John Pfeifer
Location: Irving
Hub (1:124/3103)
713.584.0348
214.256.5586
Lambda World BBS (GaySubNet 1:387/330)
210.732.6451
Sysop: Jay Smith
Location: San Antonio
Virginia
A New Day BBS (AEGIS 1:2621/15)
804.736.8688
Sysop: Maynard Ernest
Location: Keysville
Washington
Capitol Hill BBS (PrideNet 156:3950/1)
206.322.6725
Sysop: John Murrow
Location: Seattle
Seattle AIDS Info BBS (AEGIS)
206.323.4420
Sysop: Steve Brown
Location: Seattle
Wisconsin
The Back Door BBS (GayCom 207:1/108)
414.744.9336
Sysop: Paul Parkinson
Location: Bay View
OVERSEA CONNECTIONS
AFRICA
Cite d'iroire (Ivory Coast) [French]
Acos BBS (APC 5:7721/1)
+225.20.5111
Sysop: Joseph Mayega
Location: Abidjan
Internet: sysop@adbabjacos.gn.apc.org
Kenya [English]
Elc (APC 5:731/1)
Sysop: Doug Rigby
Internet: sysop@elci.gn.apc.org
+254.2.567043
Location: Nairobi
Unics (APC 5:731/100 a/k/a 5:731/4
+254.2.561000
Sysop: Shem Ochuodho
Location: Nairobi
Internet: shem@arcc.gn.apc.org
Senegal [French]
Enda (APC/GreenNet 5:7711/1)
Sysop: Moussa Fall
Internet: endadak.gn.apc.org
+221.21.7627
Location: Dakar
Enda (APC/GreenNet 5:7711/1.25)
011.221.21.7627
Sysop: Kate White
Location: Dakar
Ethiopia
Padisnet (APC/GreenNet 5:751/1)
+251.1.514412
Sysop: Lishan Adam
Location: Addis Ababa
Internet: sysop@padis.gn.apc.org
Mozambigue [Portuguese]
Afroline (APC 5:7221/1)
+258.1.415303
Sysop: Helder Santos
Location: Maputo
Internet: sysop @ afroline.gn.apc.org
South Africa
Worknet (APC/GreenNet 5:7101/26)
+27.11.484.3724
Sysop: Simone Shall
Location: Johannesburg
Internet: sysop@worknet.apc.org
Tunisia [Arabic]
Enda-Arabe (APC 5:7911/1)
+216.1.70.1827
Sysop: Michael Cracknell
Location: Tunis
Internet: sysop@enda-arabe.gn.apc.org
Uganda
Makerere University (APC 5:7321/1)
+256.41.532440
Sysop: Charles Musisi
Location: Kampala
Internet: sysop@mukla.gn.apc.org
Zambia
Unza (APC/GreenNet 5:761/1)
Sysop: Mark Bennett
Internet: sysop@unza.gn.apc.org
+260.1.252892
Location: Lusaka
Zimbabwe
Mango (APC/GreenNet 5:7211/1)
+263.4.738692
Sysop: Rob Borland
Location: Harare
Internet: sysop@mango.apc.org
ASIA: APC/GreenNet
India
Live Wire BBS (APC 6:606/1)
Sysop: Suchit Nanda
Internet: sysop@inbb.gn.apc.org
Philippine Islands
E-Mail Center (APC 6:751/401)
+91.22.5787812
Location: Bombay
+63.2.921.9976
Sysop: Roberto Verzola
Internet: sysop@phil.gn.apc.org
Location: Quezon City
Thailand
Ccan (APC 6:608/3)
Sysop: Yongchai Jerdampai
Internet: sysop@ccan.gn.apc.org
+662.208.9373
Location: Bangkok
AUSTRALIA
Queensland
Atom BBS (PrideNet 3:640/813)
Sysop: Wayne Dallachy
011.61.7.288.6643
Location: Ipswich
CANADA
Alberta
Connections BBS (AEGIS 1:134/32)
403.234.7169
Sysop: Matthew T. Lewis
Location: Calgary, AB
Regional Hub
The Polish Pickle (AEGIS 1:134/151)
403.259.5439
Sysop: Neil Bamford
Location: Calgary, AB
Rainbow Connection (IGIS 1:134/172)
403.244.0794
Sysop: Brent Rector
Location: Calgary, AB
British Columbia
Lambda Speaks BBS (1:153/756)
604.681.3667
Sysop: Warren Cox
Location: Vancouver
Ontario
Villa Gryphus (GaySubNet 1:244/106)
905.545.5013
Sysop: Kelly Ryan
Location: Hamilton
Mother’s Board (1:243/38; 207:1/203; 250:1/1)
Sysop: Perry Davis
Location: Ottawa
613.728.4122
Life is a Journey (La’Net 250:1/3)
613.729.5930
Sysop: John Hamick
Location: Ottawa
The Gay Blade (GayCom 207:1/202; 1:250/214)
Sysop: Phil Dermott
Location: Thornhill
Quebec
S-TEK (GayCom 207:1/201)
Sysop: Eric Blair
EUROPE
Belgium
905.882.4800
514.597.2409
Location: Montreal
euro carrefour SantQ (2:512/186)
Sysop: Peter Kauffman
011.31.58.122512
Location: Leeuwarden
Carrefour Sant£ (2:293/3211)
Sysop: Philippe Rasquinet
011.32.71.518162
Location: Marchienne
Czech Republic
Econnect (APC 2:424/10)
Sysop: Vojta Kment
Internet: sysop@ecn.gn.apc.org
+42.2.802908
Location: Csfr Prague
France [French]
HIVNET/Jean-Luc Dalou (2:320/303)
Sysop: Jean-Luc Dalou
Location: Paris
33.1.42544519
Globenet (APC 2:320/211)
+33.1.45806556
Sysop: Assad Kondakji
Location: Paris
Internet: sysop@globenet.gn.apc.org
Germany [German]
HIVNET (2:2410/205)
Sysop: Joerg Schulze
49.30.4542605
Location: Berlin
A&M Soft (2:2410/202)
Sysop: Michael Vogt
49.30.3915186
Location: Berlin
KumpelnestBBS (2:242/1205.3
Sysop: Matthias Ganick
49.30.4026340
Location: Berlin
Null Device (Matrix 2:2410/200)
Sysop: Karsten Ebeling
49.30.742.2535
Location: Berlin
Krypta.UUCP (Matrix 2:2410/208)
Sysop: Alexandras Gougousoudis
49.30.817.5954
Location: Berlin
Macchiavelli BBS (2:242/1234)
Sysop: Marco Kratzenberg
49.30.452.1380
Location: Berlin
Access BBS (2/244/1312)
Sysop: Alexander Mangold
49.6104.797283
Location: Frankfurt
Nice Bitts BBS (2:244/1164)
Sysop: Stephan Grosse
49.69.4960751
Location: Frankfurt
SGBB BBS (2:2403/43.5)
Sysop: Thomas Blaesing
49.40.8505958
Location: Hamburg
Medical System (2:246/63)
Sysop: Arnulf Bultmann
49.89.295223
Location: Muenchen
Infopool Stuttgart IPS (2:246/1817)
49.7152.56330
Sysop: Roland Teich
Location: Rutesheim
The Organpipe BBS (2:243/7011)
49.2051.56866
Sysop: Michael Smetten
Location: Velbert
Manbox Nuernberg (2:2490/2069)
011.49.9129.9621
Sysop: Frank Schwarz
Location: Wendelstein
Ireland
Toppsi (APC 2:263/151)
+353.1.6711047
Sysop: David Doyle
Location: Dublin, Ireland
Internet: sysop@toppsi.gn.apc.org
Italy [Italian]
FantOZZY - la "barracca" (PNet 91:1/1 (Mail Only)
39.81.8701576
Sysop: Alfonso Martone
Location: Castellammare di Stabia
Senza Confine (Pnet)
Sysop: Andrea Sannucci
+39.733.236370
Location: Macerata
Wolfnet Point’s Line (APC 2:332/602)
Sysop: Cesare Dieni
Location: Pisa
Internet: sysop @wolfnet.gn.apc.org
The Netherlands
BIB (2:500/279)
Sysop: Freek Kempink
+39.50.589050
31.5437.74203
Location: Aalten
Chaps in Paradise! (25:250/504; FidoNet 2:2801/29)
31.20.6633546
Sysops: Martijn Wismeijer
Location: Amsterdam
HIVNET (2:280/413)
Sysop: Tjerk Zweers
31.20.6647461
Location: Amsterdam
ArtNet (2:280/204)
Sysop: Martin Cleaver
31.20.6163698
Location: Amsterdam
Utopia (2:280/308)
Sysop: Felipe Rodriquez
31.20.6273860
Location: Amsterdam
PCN (2:280/415)
Sysop: John Kessel
31.20.6962860
Location: Amsterdam
Broomcupboard (2:500/296)
Sysop: Jochem Broers
31.20.6362575
Location: Amsterdam
HIVNET Testlab (2:280/419)
Sysop: Matthew Lewis
Internet: matthew@nl.hivnet.org
31.20.6125918
Location: Amsterdam
Dutch Health BBS (2:500/211)
Sysop: Ruud vd Linden
31.55.337951
Location: Apeldoom
MadCat's (2:284/120)
Sysop: Lodewijk Otto
31.4990.60548
Location: Breugel
HIVNET (2:284/306)
31.45.231754
Sysop: Lucas Vermaat
CommPoort (2:281/403)
Sysop: Dennis Hammerstein
Location: Heerlen
31.71.124350
Location: Leiden
HIVNET Rijnmond (HIVNET 2:286/117)
31.01880.45978
Sysop: Nico Hollander
Location: Rijnmond
Interface (2:281/506)
Sysop: Ron Huiskes
31.70.3361380
Location: Rijswijk
HIVNET (2:285/818)
Sysop: Simon Bignell
31.10.2130501
Location: Rotterdam
Bommel’s BBS (2:285/800)
Sysop: Nitz Neder-Helman
31.10.4700939
Location: Schiedam
The Helpdesk BBS (2:285/251)
Sysop: Freerk Westera
+31.13.350529
Location: Tilburg
Slovenia
Abm BBS (APC 2:380/102)
Sysop: Dalibor Cerar
Internet: sysop@abm.gn.apc.org
+38.61.218663
Location: Ljubljana
Sweden
Night Owls of Linkoeping (2:204/426)
011.46.13.143828
Sysop: Johan Olofsson
Location: Linkoeping
TGT The Gay Telegraph (HIVNET 2:201/2106)
011.46.8.326152
Sysop: Robin Nyman
Location: Stockholm
Switzerland
HIVNET Zuerich (2:301/724)
Sysop: Manuel Vincenz
United Kingdom [English]
POS+NET/HIVNET (2:25/555)
Sysop: Ron Dixon
Spartacus (2:255/27)
Sysop: Barry Kingston-Wyatt
011.41.1.241.15.39
Location: Zuerich
44.81.6956113
Location: London
03.273.509152
Location: Frome, Somerset
Dataserve Systems BBS (2:440/23)
44.795.590170
Sysop: Graham Jenkins
Location: Faversham Kent
Gnfido (2:254/70)
Sysop: Karen Banks
44.71.608.1899
Location: London
Out BBS (2:441/55)
Sysop: Damien Marcus
44.71.490.8493
Location: London
Quadris Technics (2:441/99)
44.81.649.9408
Location: London
Sysop: Michael Pereira
Appendix 10: Resource Guide
AIDS information projects can use the materials and resources listed in tthe
’ following
~ '
guide as they set
up their own projects. The Resource Guide is divided into these five sections:
1.
Setting Up a Library/Information Service.
2.
Producing Newsletters.
3.
Electronic Bulletin Board Software.
4.
Funding Information.
5.
Selected Resource Organizations.
1.
Setting Up a Library/lnformation Service
How to Start and Run an Alcohol and Other Drug Information Center: A Guide. 1990. Edited
by Virginia Rolett and Jean Kenney. Available from the National Clearinghouse for Alcohol
and Drug Information, P.O. Box 2345, Rockville, MD 20852.
This publication is a practical guide for setting up and running a small alcohol and other drug
information center, directed at those who would like to organize this information for their
own use and for the use of others, but who are not trained in library science. The manual
offers basic suggestions for organizing a small collection using only techniques that do not
require the purchase of any specialized equipment or supplies. In addition to covering all
major information collection, organization, and dissemination areas, it includes a glossary
defining library-related terms, sample forms, and lists of resources.
The following materials on basic information service process and procedures are available from the
Special Libraries Association (SLA), 1700 18th St., NW, Washington, DC 20009-2508,
(202) 234-4700. (See also description of SLA in section 5 of this appendix.)
The Best of OPL: Five Years of The One-Person Library, by Andrew Berner and Guy St.
Clair. 147 pages, 1994. Price: $27.50 for members, $34.50 for non-members. This document
includes original and adapted articles, selection lists, and profiles, as well as marketing and
management strategies.
Database Design: An Introductory Guide to Planning and Creating a Database, by Anne
Conway Fernaid. 1991. Price: $60 for members, $75 for non-members. This workbook is a
self-study course that takes the non-programmer through the steps of creating a database on a
microcomputer, using software available in the marketplace.
A Fundraising Handbook. 14 pages, 1989. Price: $10 for members, $15 for non-members.
This handbook contains advice on how to recruit volunteers, write proposals, and resolve tax
and legal questions associated with fundraising. Ideas for creating effective fundraising
projects are also supplied.
Library Without Walls: Plug in and Go, compiled by Susan B. Ardis. 208 pages, January
1994. Price: $25 for members of the association, $31 for non-members. This book includes
information on defining the technologies that may be found in an electronic library. It
describes the new technologies by category, for example, marketing and managing the
electronic library.
Networking and Special Libraries, compiled by Sharyn Ladner. 1990. Price: $15 for
members, $20 for non-members. This spiral-bound kit offers information on current issues
affecting resource sharing and the exchange of information, materials, and services. It
includes a bibliography and sources of information on existing networks and consortia.
A Sampler of Forms for Special Libraries, compiled by Washington, D.C. Chapter of the
Social Science Group, SLA. 328 pages, 1991. Price: $29 for members, $35 for non-members.
This book contains use-tested forms for acquisitions, cataloging, reference, inter-library loans,
budgeting, and more.
Subject Indexing: An Introductory Guide, by Trudi Bellardo. 1991. Price: $60 for members,
$75 for non-members. This workbook is for those with no prior knowledge of indexing or
subject cataloging. It covers the fundamentals and gives a sound orientation for ±e novice.
2.
Producing Newsletters
Producing a First Class Newsletter, by Barbara Fanso. Price: $18. Self Counsel Press.
Newsletters from the Desktop, by Joe Grossman and David Doty. Price: $30. Bantam Press.
Both are available from the American Society of Association Executives, 202-626-2748.
Success in Newsletter Publishing: A Practical Guide, by Frederick D. Goss. 332 pages. Price:
$39.50 plus $3.50 postage and handling. Available from Newsletter Publishers Association,
1401 Wilson Blvd., Suite 207, Arlington, VA 22209 (703-527-2333); outside VA, 1-800356-9302. This book covers all aspects of newsletter production from conception to
publication. It answers literally hundreds of questions to help you get started publishing a
newsletter.
3.
Electronic Bulletin Board Software
The following three magazines provide reviews of BBS software, news and articles about Internet,
and online tips.
BBS: The Bulletin Board Systems Magazine. Monthly. Annual subscription of $18. Callers
Digest, Inc., 701 Stokes Rd., Medford, NJ 08055, 1-800-822-0437.
Boardwatch Magazine: Guide to Online Information Services and Electronic Bulletin Boards.
Monthly. Annual subscription of $35. Boardwatch Magazine, 8500 W. Bowles Ave., Suite
210, Littleton, CO 80123.
Connect: The Modem User’s Resource. Bimonthly. Annual subscription of $18. Pegasus
Press, Inc., 3487 Braeburn Circle, Ann Arbor, MI 48108-2619.
Several articles on BBS software that have been published by these magazines are referenced below.
"The Major BBS 6.2: A Professional Bulletin Board System." Connect. July-Aug 1994 p
46-51.
’
’ T
"Multiline Bulletin Board Systems and a Trip to the Land of the Gal actino ids," by Jack
Rickard. Boardwatch, June 1994, p. 36.
"A Powerful Cat from the Big Horse,” BBS. August 1994, p. 8-16.
"The Worldview of 15.2,” BBS, September 1994, p. 8-16.
These materials published by CompuMentor may also be helpful in dealing with computer-related
issues. To order, contact CompuMentor at 89 Stillman St., San Francisco, CA 9410^ (415) 512-7784,
Fax (415) 512-9629. Internet address: cmstaff@well.sf.ca.us. (See also description of CompuMentor
in Section 5 of this appendix).
Guide to Automating I&R Systems, 133 pages. Price: $6. This guide is the culmination of a
year-long study of agencies in California that provide information and referral. It is designed
to help the information and referral (I&R) administrator cope with the challenges of
automating a paper I&R filing system or upgrading an existing I&R computer system. Built
around a series of worksheets, the guide helps the reader decide whether automation is
appropriate and then find and implement the best solution. It is illustrated with case studies,
useful tips, and ideas from many information and referral agencies.
Guide to Online Systems for Nonprofits, 61 pages. Price: $12.50, plus $1.06 sales tax within
California. This guide profiles the leading online systems (such as HandsNet and
CompuServe) in terms of nonprofit needs. It offers guidelines on how to select an online
system. Information provided for each system includes costs, ease of use, and special
features. Nonprofit networks can quickly survey viable options and narrow their choice.
Software Redistribution Catalogues. Price: $15 for one-year subscription. Free to
CompuMentor members. Through donations from software publishers, magazines, and
reviewers, CompuMentor assembles a quarterly catalogue of several hundred useful software
packages and books. These high quality Mac, DOS, and Windows-compatible programs are
available for nominal handling charges to nonprofits throughout the United States.
4. Funding Information
These materials on foundation and corporate giving are available from The Foundation Center’s
collections in New York, Washington, Cleveland, San Francisco, and Atlanta and its network of
library reference collections. To find out the locations of these collections, call 1-800-424-9836.
AIDS Funding: A Guide to Giving by Foundations and Charitable Organizations, 3rd Edition.
196 pages, November 1993. Price: $75. This directory lists more than 450 grantmakers who
have stated or demonstrated a commitment to AIDS-related services and research. It includes
current information on grantmaking programs of foundations, corporate giving programs, and
public charities. Most entries list recently awarded grants.
AIDS Fundraising. 49 pages, July 1991. Price: $10. Published in conjunction with Funders
Concerned About AIDS (FCAA), this guide helps nonprofit groups plan a strategy for raising
money. It covers a vast array of money-generating initiatives, from membership drives to
special events, direct mail, and grant applications.
The Foundation Center's Guide to Proposal Writing. 191 pages, August 1993. Price: $29.95.
This instructional manual takes readers through the entire proposal-writing process, from pre
proposal planning to the writing itself to the post-grant follow-up. It also includes tips from
Appendix 11: Services of the CPC National AIDS Clearinghouse
The CDC National AIDS Clearinghouse (CDC NAC) is a national reference, referral, and distribution
service for HIV/AIDS-related information. All of the Clearinghouse’s services are designed to facilitate
the sharing of information and resources among people working in the field of HIV prevention, treatment,
and support. Clearinghouse staff members serve a diverse network of people who work in international,
national, state, and local settings. For all Clearinghouse services, call I-800-458-5231 deaf access l800-243-7012.
To accomplish its mission, the Clearinghouse offers a number of services including:
Comprehensive Reference and Referral Services
Comprehensive reference and referral services are provided by the Clearinghouse’s multidisciplinary staff
of reference specialists. Reference specialists answer questions and provide technical assistance to people
working for community-based organizations, public health and other health care professionals, educators,
and others working in the HIV/AIDS field. Using the Clearinghouse’s online databases and other
resources, reference specialists provide information on AIDS-related organizations, educational materials,
and funding opportunities. Bilingual reference specialists are available to speak to Spanish-speaking
callers.
CDC NAG Databases
The Clearinghouse staff organizes much of the information it collects into databases that cover all aspects
of HIV/AIDS prevention, care and social support. The largest of these databases is the Resources and
Services Database, which contains information on more than 19,000 national, state, and local
organizations that provide HIV/AIDS services.
The Clearinghouse’s Educational Materials Database contains descriptions of over 14,500 materials
including brochures, videotapes, curricula, reports, and other hard-to-find publications for use in
prevention activities and training programs. The materials in this database assist AIDS program directors
and educators in locating appropriate educational and training materials.
The Funding Database includes information about federally and privately sponsored HIV/AIDS funding
opportunities for community-based organizations. Using this database, seekers of funds can keep up to
date on the current availability of funds as well as identify organizations that have been funders in the
past.
Publications Distribution Services
The Clearinghouse is a major distributor of HIV/AIDS educational materials including up to date
information on scientific findings, CDC guidelines, and changing trends in the HIV epidemic. The
Clearinghouse distributes brochures, posters, and videotapes that can be used for HIV prevention
activities as well as selected reprints from CDC’s Morbidity and Mortality Weekly Report (MMWR) series
and issues of the HIV/AIDS Surveillance Report. Many of the prevention materials are available in
Spanish.
Resource Centers
The Clearinghouse Resource Centers, located in Rockville, Maryland, and Atlanta, Georgia, house
extensive collections of educational materials and HIV/AIDS newsletters that deal with many issues raised
by the epidemic. Visitors can examine these resources, and receive personalized assistance from Resource
Center staff.
CDC NAC ONLINE
CDC NAC ONLINE is the computerized information network of the CDC National AIDS Clearinghouse.
It provides current information from CDC and other federal agencies on a wide variety of HIV/AIDSrelated topics; offers a medium for information exchange among people working in the field of
HIV/AIDS; and provides a convenient way to access Clearinghouse services. Using a personal computer
and a modem, users can keep current with HIV-related news through the AIDS Daily Summary;
participate in interactive forums; communicate through electronic mail; access CDC’s AIDS-related
MMWR articles; and search the Clearinghouse databases. Information from all of these sources can be
easily printed out at the user’s site or downloaded into a file for future use. To date, over 500
organizations (mostly community-based organizations) have used CDC NAC ONLINE.
AIDS Clinical Trials Information Service
The AIDS Clinical Trials Information Service (ACTIS) provides up-to-date information on clinical trials
that evaluate experimental drugs and other therapies for adults and children at all stages of HIV infection.
ACTIS reference specialists respond to inquiries from people living with HIV infection, care givers, and
health professionals. Bilingual reference specialists are available to speak with Spanish-speaking callers
Call 1-800-TRIALS-A (1-800-874-2572); deaf access, 1-800-243-7012.
HIV/AIDS Treatment Information Service
The HIV/AIDS Treatment Information Service (ATIS) provides information about federally approved HIV
treatment guidelines to health care providers and people with HIV infection and AIDS. ATIS is staffed
by reference specialists who are health care professionals; bilingual staff are available to speak with
Spanish-speaking callers. Call 1-800-HIV-0440 (1-800-448-0440); deaf access, 1-800-243-7012.
Business and Labor Respond to AIDS Resource Service
The reference specialists of the Business and Labor Respond to AIDS Resource Service help businesses,
labor unions, and other organizations develop AIDS-related workplace policies and employee education
programs. Bilingual staff are available to speak with Spanish-speaking callers Call 1-800-458-5231 • deaf
access, 1-800-743-7012.
Appendix 12: Glossary of Library-Related Terms
Acquisition: The process of acquiring, or gathering, materials for a library or information service
Bookjobber: A company that provides a link between a publisher and a purchaser. Bookjobbers allow
you to get many of the books you need from one source, even through they may come from different
publishers. Working with them can simplify ordering and cut down on paperwork.
Catalog: A list of the holdings of a particular library, or group of libraries.
Cataloging and classification: Library processes for describing and organizing a library’s collection.
Circulation: The process of lending library materials to borrowers and keeping a record of the loan.
Dewey Decimal classification system: Divides all knowledge into 10 groups. Each group is further
divided into classes, which represent the main subdivisions of the subject. The Dewey Decimal
System is commonly used to classify materials in public library settings.
Interlibrary loan: A cooperative borrowing arrangement among libraries.
Library of Congress (LC) classification system: This scheme was originally developed for books in
the Library of Congress, but has been adopted by many other libraries. The LC system divides the
whole field of knowledge into 21 groups, using the letters of the alphabet to represent the classes.
MeSH: The National Library of Medicine’s Medical Subject Headings are the most widely used
indexing list for medical libraries.
OCLC: A bibliographic network incorporated in 1967 as the Ohio College Library Center,
establishing an online, shared cataloging system. A library using the OCLC Online Cataloging system
has access to millions of bibliographic records of materials in locations around the country. Libraries
at remote locations can access the system, edit the data if necessary, and add in-house data to the
record.
Thesaurus: The controlled vocabulary of an indexing language, arranged in a known order and
structured so that relationships among the terms are clearly displayed and identified. The primary
purposes of a thesaurus are to facilitate retrieval of documents and to achieve consistency in the
indexing of documents.
Vertical file: A collection made up primarily of pamphlets and clippings which are housed in file
drawers or similar containers.
The above definitions were taken from the following books:
1.
Introduction to Cataloging and Classification, 6th Edition, by Bohdan S. Wynar. Libraries
Unlimited, 1980.
I
2.
Organizing and Administering the Small Hospital Library, edited by Ruth W. Wender. Talon
1979.
3.
Scientific and Technical Libraries, Their Organization and Administration, Second Edition.
Edited by Lucille J. Strauss, Irene M. Shreve, and Alberta L. Brown. Wiley-Becker-Hayes,
1972.
4.
The Vertical File and Its Satellites: A Handbook of Acquisition, Processing, and Organization,
by Shirley Miller. Libraries Unlimited, 1971.
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