HIV VOLUNTARY COUNSELLING AND TESTING.pdf
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Tools for evaluating
HIV voluntary counselling
and testing
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UNAIDS/00.09E (English original May 2000)
© Joint United Nations Programme on HIV/AIDS (UNAIDS) 2000.
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Acknowledgements
This document was written by Rachel Baggaley. Some of the content has been based on an
earlier draft by Alfred Chingono and Samuel Kalibala. However, many other sources were
consulted, and we would like to thank the following people in particular for their considerable
technical input into the development of this document:
Donald Balmer, Kenyan Association of Professional Counsellors, Nairobi, Kenya
Deborah Boswell, Thorn Park Training Centre, Lusaka, Zambia
Kathleen Casey, Albion Street Centre, Sydney, Australia
Alfred Chingono, University of Zimbabwe, Harare, Zimbabwe
Harry Hausler, HIV/TB coordinator, Department of Health, Pretoria, South Africa
Mary Henderson, SAfAIDS , Harare, Zimbabwe
Christine Kolars Sow, Family Health International, Arlington, VA, USA
Karla Meursing, Macfarlane Burnet Centre for Medical Research, Melbourne, Australia
Praphan Phanuphak, Chulalongkorn University, Bangkok, Thailand
Heather Salt, Northwick Park Hospital, London
Prawate Tantipiwatanaskul, Suanprung Psychiatric Hospital , Bangkok, Thailand
Usa Thisyakorn, Thai Red Cross AIDS Research Centre, Bangkok, Thailand
Our thanks to all other colleagues from UNAIDS cosponsoring agencies and elsewhere who
helped to clarify and focus the document in draft form.
We are also very grateful to
Ignatius Kayawe, Sr Shirley Mills, Gita Sheth, Staney Charma, Friday Nsalamo and the
counselling staff and clients at Kara Counselling and Training Trust, Lusaka, Zambia, who
have taken part in pilot testing, and Sarah Chippendale, Mike Jones, Danielle Mercy and the
counselling/health promotion staff at the Mortimer Market Centre, London, and Rose Tobin
and the counselling/health promotion staff at the Archway Centre in London.
The UNAIDS Responsible Staff Member was David Miller.
Acronyms
ARV
antiretroviral
FGD
focus group discussion
IDU
MSM
injecting drug user
men who have sex with men
MCH
maternal and child health
MTCT
NGO
STI
mother-to-child transmission
non-governmental organization
sexually transmitted infection
TB
TBPT
tuberculosis
tuberculosis preventive therapy
TOP
VCT
ZDV
termination of pregnancy
voluntary counselling and testing
zidovudine (also known as AZT)
UNAIDS
Contents
Introduction
5
Cautions, difficulties and limitations with the VCT evaluation tools
9
Section 1.
National preparedness for and commitment to VCT implementation
Tool 1: for evaluation of the national preparedness for VCT implementation
Section 2.
Evaluation of operational aspects of the sites and services
Tool 2: for VCT site evaluation: logistic considerations and coverage
Section 3.
Counsellors' requirements and satisfaction
Tool 3: for evaluation of counsellor selection, training and support
Section 4.
Evaluation of counselling quality and content
4a Counselling quality
Tool 4.1: for evaluation of counselling skills
4b Counselling content
Tool 4.2: for evaluation of pre-test counselling
Tool 4.3: for evaluation of post-test counselling
Tool 4.4: for evaluation of counselling where HIV testing is not available
Section 5.
Counselling for special interventions
5a Counselling for TBPT
Tool 5.1: for evaluation of counselling content for TBPT
5b Counselling for MTCT interventions
Tool 5.2: for evaluation of counselling content for MTCT interventions
Section 6.
"Group counselling"/Group education
Tool 6: for evaluation of group work
Section 7.
Client satisfaction
Tool 7: for evaluation of client satisfaction
Section 8.
Costs of VCT
Tool 8: for evaluation of VCT costs
Appendix
Modified tool for reviewing quality of VCT associated with MTCT interventions
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Introduction
It is only recently that Voluntary Counselling and Testing (VCT) services have
been considered important as an entry point for prevention and care interventions for
HIV/AIDS. Access to VCT services, however, remains limited and demand is often low. In
many high-prevalence countries VCT is not widely available and people are often afraid of
knowing their serostatus because there is little care and support available following testing.
Furthermore, the quality and benefits of VCT, in particular with regard to confidentiality,
counselling and access to clinical and social support, vary enormously.
Setting up VCT and ensuring a quality that will create demand is thus a
considerable challenge. Building in self-assessments, monitoring and regular evaluation is an
important tool to enhance the quality of VCT.
I
This document provides guidance on monitoring and evaluation of the various
aspects of planning and implementing VCT. It provides tools for the evaluation of VCT as part
of a national programme, as well as VCT services at specific institutions, independent sites
and services for special groups, including community-based non-governmental organizations
(NGOs). It includes monitoring and evaluation of VCT services associated with the prevention
of mother-to-child transmission of HIV (MTCT) and tuberculosis preventive therapy (TBPT).
This document revises and adapts previous draft guidelines'-’’4 and incorporates relevant
operational research findings.
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The context of evaluating VCT
The scope and challenges of VCT have changed over the past decade. At the
outset VCT was primarily used to make a diagnosis of infection in symptomatic people to help
medical management, and testing was often accompanied by minimal counselling. It was also
promoted, in a piecemeal way, as a component of HIV prevention. There were reports of
barriers to HIV testing because of the perceived stigma associated with a diagnosis, the lack
of services and interventions available to those who tested seropositive5 and adverse
consequences, particularly for women, following testing6. The development of antiretroviral
(ARV) treatment for people with HIV, less costly interventions to reduce the incidence of HIVassociated infections (such as tuberculosis preventive therapy7 8 and cotrimoxazole
1 WHO draft report (Alfred Chingono). Protocol tor setting and monitoring locally acceptable standards of
counselling in relation to HIV diagnosis, 1994.
2 WHO draft report. Guidelines for implementing HIV/AIDS counselling, 1993.
3 NACO, India, draft report. Counselling policy and related aspects: National AIDS prevention and control
policy, 1998.
4 Miller D, Casey K. Thailand Department of Mental Health HIV/AIDS counselling: participant information and
casework audit form, 1998.
5 Baggaley R. Fear of knowing: why 9 in 10 couples refused HIV tests in Lusaka Zambia, Abstract number
E.1266, 10th International Conference on AIDS and STDs in Africa, Abidjan, December 1997.
6 Temmerman M et al. The right not to know HIV-test results, Lancet, 1996, 345:696-7.
7 Mwingwa A, Hosp M, Godfrey-Faussett P. Twice weekly tuberculosis preventive therapy in HIV infection in
Zambia, AIDS, 1998, 12:2447-2457.
8 WHO/UNAIDS. Policy statement on preventive therapy against tuberculosis in people living with HIV,
document WHO/TB/98.255 UNAIDS/98.34, 1998.
5
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Tools for evaluating HIV voluntary counselling and testing
prophylaxis'’) and relatively cheap and feasible methods to prevent MTCT"’ have made the
need to promote VCT for people with asymptomatic disease more compelling. VCT services
for young people are also being developed and services linked with family planning are
becoming more widely available. The importance and cost-effectiveness of VCT in reducing
HIV transmission are also now recognized".
HIV testing methods have also become simpler and cheaper, making testing a more
feasible option in many developing countries'2. The ease of HIV testing has also increased the role
of the private sector in VCT in many developing as well as industrialized countries. The
monitoring and evaluation of VCT services in the private sector brings additional challenges. VCT
services have also been set up for vulnerable groups such as sex workers, prison populations,
injecting drug users (IDUs) and refugees. These services need particularly careful monitoring to
ensure such groups are not further marginalized and services are truly voluntary and confidential.
Studies evaluating VCT have concentrated on attempting to prove that VCT
reduces incidence of HIV infection and thus contributes to prevention. This is because in
planning and funding of VCT services it has been important to demonstrate that VCT "works".
Studies on the efficacy of VCT have largely concentrated on the role of VCT in risk reduction
and changing sexual behaviour” ”
Monitoring of VCT has depended on reporting
attendance, coverage and return rates. This doc ument aims to provide guidelines to evaluate
not only the implementation and effectiveness of VCT in HIV prevention, but also ways of
assessing the acceptability and quality of services. Il also aims to assess the effectiveness
of VCT in enabling people with HIV to better accept and cope with their infection and access
appropriate services.
t
Counselling without testing
Despite reductions in the costs of HIV testing kits, VCT as a service will not
be available in the near future for the majority of people in high-prevalence developing
countries, especially for those living outside the < apital c ities. Sometimes testing services will
be offered intermittently when test kits are available. However, even where testing is
unavailable, there are often well-developed counselling services for people with symptomatic
HIV and their families, and services providing HIV prevention counselling (such as
counselling about safer sex in family planning clinics). This document, although primarily
aimed at evaluating VCT services, will also inr hide counselling services where testing is not
available, as in many settings this is a much more common option.
Sass.m-Morokro M et al. Significant reduction in mortality attributed to cotrimoxazole prophylaxis among
Hl\ infected tuberculosis patients in Abidjan, Cote d'Ivoire. Abstract 12461, presented at the 12lh World
AIDS Conference, Geneva, Switzerland, 1 <)<)«.
10 Centers for Disease Control and Prevention. Administration of zidovudine during late pregnancy to prevent
perinatal HIV transmission
Thailand 1096 1998, MMWR, 1998, 47:151-153.
11 Sweat M, Sangiwa G, Balmer D, 111V counselling and testing in Tanzania and Kenya is cost effective- Results
for the voluntary counselling and testing study. Abstract no. 33277, presented at the 12th World AIDS
Conference, Geneva. Switzerland, 1998.
12 lhe importance of simple and rapid fests in HIV diagnoses: WHO ret ommendalions Weekly
Epidemiological Record. October 1998. 73(42):321-328.
13 Coates T, Collins C. Preventing HIV infection. Scientific American, July 1998, pages 96-97.
14 Sangiwa G et al. Voluntary HIV counselling and testing (VCD reduces risk behaviour in developing
countries: results from the multisite voluntary counselling and testing efficacy study. Abstract 33269
presented at the 12th World AIDS Conference, Geneva, Switzerland, 1998.
15 Allen S, Serufilira A, Gruber V. Pregnancy and contraceptive use among urban Rwandan women after HIV
counselling and testing. Am I Public Health, 1993. 83:705-710.
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UNAIDS
Testing w ithout counselling
As HIV testing becomes simpler to perform it is increasingly available, often
without counselling or without adequate counselling or follow-up. Furthermore there are
reports of coercion to test and testing which is not truly voluntary. Home testing and testing
in the private sector pose particular challenges.
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Follow -u/) counselling
The majority of people attending VCT, whether they test positive or negative,
will attend one or, at the piost, two post-test counselling sessions. Studies have shown that
even when further counselling sessions are offered or referral to specialized counselling
services is available, many people do not want further counselling, at least not in the
immediate future16. Some people do, however, require ongoing counselling and some will
attend for further counselling in the 1-5 years following VCT. This often coincides with a crisis
or change in personal circumstances. Following VCT, many people find other informal services
or resources in the community to help them with their emotional needs. Church groups,
family members, friends and traditional medical workers often provide emotional support.
VCT services should therefore be flexible and either able to provide ongoing counselling or
have close links with organizations providing this service. They should also be able to refer
people to community organizations and spiritual/church groups when appropriate.
VCT sites
\/cT is being carried out in various settings in developing and industrialized
countries, depending on demands and resources.
• Free-standing VCT sites
• Hospital services
- NGO within the hospital
- integrated into general medical outpatient services in public hospitals
- as part of specialist medical care, e.g. sexually transmitted infections (STI) clinic,
dermatology clinic, chest clinic, antenatal and family planning services
• VCT as entry into the continuum of care/home-based care (including palliative care
services)
• Health centre - urban or rural
• Private sector (clinics and hospitals)
• Workplace clinics
• Referral sites for legal requirements, pre-employment, pre-travel, pre-marital
• Youth health services and school health services
• Health services for vulnerable groups
- sex workers
- prison populations
- refugees
- IDUs
- men who have sex with men (MSM)
- children, orphans and street kids
16 Baggaley R el al. Kara coping study - interim report, Geneva, UNAIDS/WHO, 1998.
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Tools for evaluating HIV voluntary counselling and testing
• Self testing/home testing
• Attached to research project/pilot project
- associated with antenatal services and interventions
- associated with tuberculosis (TB) services and TB preventive therapy
• Blood transfusion services
Different models of VCT are available in many different settings in developing
and industrialized countries. There is no single preferred model and the choice of VCT service
will depend on the needs of the community, HIV seroprevalence, maturity of the epidemic,
attitudes towards HIV, political and community commitment to VCT, available financing and
existing VCT resources.
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UNAIDS
Cautions, difficulties
and limitations with
the VCT evaluation tools
This document consists of a series of tools to evaluate VCT, in order to improve
and develop services. The tools should be used with the cooperation and collaboration of
counsellors, clients and service managers. They should be used in a flexible manner and
should be adapted and modified according to the needs of the services. Some services may
only want to use a single tool to evaluate a specific aspect of their service.
I low to use these tools
Adaptation of the tools to reflect needs of the service
These tools provide suggestions of content areas within counselling services to
be evaluated. The tools are not. intended to be prescriptive. It is expected that managers of
counselling services will assess and adapt the generic tools contained in this document to
reflect specific needs and local circumstances. Some of the sample questionnaires, which
have been designed as comprehensive evaluation tools, are long and complicated to
administer. Hems which are less relevant to the VCT services under consideration may be
reduced or discarded. The Appendix gives an example of how the tools could be modified
when evaluating VCT services associated with MTCT interventions.
The tools are presented in a format so they can be photocopied if required.
These tools are also available via the UNAIDS website, and may be downloaded and adapted
for local circumstances.
Selection of tool/s
There are eight areas in VCT service development and provision for which
monitoring and evaluation tools have been designed. Depending on needs and priorities of
particular VCT services, only some of these eight areas will require monitoring and
evaluation. For example, when setting up VCT services, Tool 2 for VCT site evaluation: logistic
considerations and coverage, can be used to help look at the suitability of sites. Tools 4.1,4.2,
4.3 and 4.4 could be used in training or for periodic assessment of counsellors.
Participatory nature of monitoring and evaluation
Tine tools are intended to be used by service providers so that they can
modify and improve practices and procedures in the services where they work. Providers
need to have a sense of ownership of the monitoring and evaluation process so that it is
clear that the tools are for their own use and benefit. The cooperation and collaboration
of both providers and clients is essential to the evaluation process. Before using the tools
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Tools for evaluating HIV voluntary counselling and testing
it is important to explain their purpose to those participating in the evaluation. The results
should be seen as a way of providing constructive feedback. Participants should be given
an opportunity to discuss the assessment and
provide additional
comments and
suggestions. It is hoped that the tools will be used repeatedly over time - for example
I if
when assessing counselling quality and content - so that counsellors have the opportunity
to respond to previous assessments and so that quality of counselling can be maintained.
The counselling assessment is seen as a way of providing continuous appraisal of, and
feedback for, counsellors and could be built into training and supervision programmes
for counsellors.
Reporting and feedback mechanisms
Before considering using any of the tools, methods for data collection and
analysis, reporting and feedback should be planned. Group discussion of the information
needs for provision of services is important in this process. When evaluating individual
counsellors/counselling sessions, immediate fcedba< k following the (ounselling session (to
the counsellor who is being evaluated) is recommended.
Some of the tools require observation of counselling sessions by the assessor. In
these situations it is important to explain to the client the purpose of the observation (which is
to help with training and development of the counsellor), reassure her/him that confidentiality
will be maintained, and gain her/his permission. If a client is unwilling or feels uncomfortable
about having someone observe the counselling session, this must be respected.
When using Tool 7, a sample of clients can be interviewed following a
counselling session, or at a later date. Clients should be told at the earliest possible time, for
example when they make the appointment, that they may be asked to help with an assessment
of the counselling service. If a client declines to take part this should be respected. If he or she
wishes to be seen at a later time either at the centre or at home this should be arranged. When
this method was used during field-testing of this document in Zambia there were very few
refusals and the majority of clients said that they had found the experience of speaking with the
researcher useful. No adverse consequences were reported.
Specific difficulties with observational assessments
(i) Worries about acceptability of observation
In pilot settings where observational assessments have been used they have had
a much higher acceptance by clients than was anticipated. Both clients and counsellors report
that the observations were much less intrusive than they feared, and many counsellors and
clients said that they were unaware of the observer soon after the session started. Counsellors
said once they had been reassured that the purpose of the observations was to help them
improve their counselling skills and that it was not a test, they felt more comfortable and could
understand the benefit of the process.
Some counsellors and counselling trainers stated that they thought clients would
find it difficult to have an observer sitting in during a counselling session. They were worried
that clients would be unable to discuss sensitive issues in front of a third person. However, in
pilot studies it was found that the majority of clients did not experience any difficulties with
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UNAIDS
having an observer sitting in. A small number of clients said before the counselling session
that they would prefer not to have an observer and this was respected.
As with all the tools described it is important to explain their purpose (to the
counsellor and/or the client), to ensure confidentiality and to allow them to defer or refuse to
take part.
In some countries counsellors have staled that it would not be acceptable to have
counselling sessions observed by an assessor/counsellor. Alternative methods of assessing
counselling sessions, whk h would be possible ways of overcoming this problem, include:
I Audio ic-coidinj of counselling sessions
This has been successfully used in some settings and has been acceptable to
both counsellor and client. Non-verbal communication cannot, however, be observed.
II One-way mirrors
Using a mirrored glass window through which a session can be observed by the
supervisor has been used to assess counselling sessions. Although clients and counsellors may
find this less intrusive than having the observer in the same room it is an expensive option. It
is therefore unlikely to be practical to use on a large scale.
a
III Dummy patients
"Dummy patients" are volunteers trained to present to the counsellor with a
particular problem. They can then report on the content and quality of the counselling
sessions, but if the check-list tools are to be used they will have to fill these in after the
counselling session. It is important that, if dummy patients are used, the counsellors are
warned that this evaluation method has been chosen, otherwise counsellors may perceive a
breach in trust between themselves and the supervisor.
IV Role play sessions
Role-play sessions can be very useful and have been used extensively in training
of counsellors. Trainee counsellors or volunteers can present various case scenarios to the
counsellor while the supervisor and other counsellors observe the role play. One VCT centre
has used the four pails of Tool 4 (counselling evaluation) in training sessions for new
counsellors where participants took it in turn to be clients.
i
V Video recoiding of counselling sessions
Video-recorded counselling sessions have been used in some countries to assess
counselling sessions. It is, however, appropriate only in very limited settings because of
problems with ensuring confidentiality and expense. If video recordings are used, the explicit
consent of the dient and counsellor must be given with the assurance that the counselling
session will only be viewed by the counsellor and supervisor/assessor. Furthermore, a fail-safe
method of ensuring that the video recording be erased following the assessment must be in
place. Video recording of role-play sessions or dummy patients can, however, be useful and
does not have problems with ensuring confidentiality.
(ii) Observation will bids the session
Having an observer sitting in a counselling session may alter the dynamics of.
the counselling session and it could be considered that the counsellor will have an
"improved performance" if he/she is being observed. However, the aim of the observations
is to help counsellors improve their counselling skills, rather than to test them. In field
testing counsellors reported that although they initially felt nervous, the observed sessions
were not substantially different from "normal" ones. Observers staled that they found it easy
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Tools for evaluating HIV voluntary counselling and testing
to identify good aspects in the counselling sessions as well as areas that could be improved.
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(Hi) Who should to carry out the observation^
Hie counselling observations can be carried out by:
A senior counsellor/supervising counsellor
The advantage of this is that there is no need to employ extra people. Logistic
complications are minimized and it is easy to follow up on identified problems and provide
continuous assessment of trainees. Furthermore the counsellor may feel less intimidated if
he/she knows the person sitting in on the session.
However there are some drawbacks. It could be construed that it is in the best
interests of the supervisor to demonstrate that his/her counsellors are all competent, because
this could be seen to reflect on his/her ability to train and supervise. However, it should be
emphasized that the evaluation is not a pass/fail test of competence, but a way of enhancing
performance and highlighting strengths and weaknesses in the service with a view to
improving them.
There is also the potential for personal dynamics to interfere in the evaluation of
a counsellor by a supervisor, for example if a counsellor likes or dislikes a particular counsellor.
Fellow/peer counsellors
There are some advantages in using peer counsellors' observations. They can
benefit from the experience of other counsellors and if this is a reciprocal practice it is likely
to be unthreatening. The senior counsellor/supervisor must, however, have a role in reviewing
the process with the counsellors. This method has been used successfully in pilot-testing.
Independent/external assessor
An independent assessor may provide a more objective assessment and can
make comparative observations across sites. Providing and training an independent assessor
may be expensive, especially if a service is to be evaluated as part of its regular activities.
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UNAIDS
I
SECTION 1
National preparedness
for and commitment to
VCT implementation
I
Introduc lion duel background
\A/iether VCT is seen as a priority for the health system will depend on the HIV
seroprevalence in the community, the resources available for HIV prevention and care, and the
perceptions of politicians, service planners and managers and health care workers. In lowerprevalence low- and middle-income countries, such as those in North Africa, Eastern Europe
and some countries in Asia, it may be appropriate to target services at more affected groups, but
in so doing it will be important to guard against increasing stigma and blame.
In high-prevalence areas it will be more appropriate to develop services for the
general population. It is important not to provide VCT services in isolation, but develop them in
conjunction with support services for those who test seropositive and HIV prevention services.
VCT should not only be developed in conjunction with adequate support
services. There should also be a link between the type and quality of HIV education in the
community and offering VCT. If the predominant views in the community are that
"HIV=AIDS=death", that "you can do nothing about it" and that HIV is a disease of
"promiscuous" people, interest in VCT will be low. People base their decision on having an
11IV test on the balance of advantages and disadvantages of knowing their status. If community
attitudes are unfavourable, interest in VCT will be low. If, however, the community has
received education and information on the benefits of VCT for individuals and their families,
people are more likely to accept it. VCT services need to be built on the fact that HIV is a
discussible disease and that HIV risk is discussible too. This is the case in Uganda, and this
has been achieved by the long-term commitment of its leaders to openness about AIDS. A
community that feels helpless against HIV and defends itself by stigma may not be "ready" for
VCT, although promoting VCT will help achieve community openness.
For the benefits of VCT to be understood and hence used, services must be
endorsed by and included in the National AIDS Programme plan. The success of VCT in
Uganda, compared with other countries in sub-Saharan Africa, is thought to be in part due to
the political commitment to VCT as part of the overall HIV prevention and care programme.
Some low-income, high-prevalence countries will continue to consider VCT a low priority, and
others may consider developing VCT in a phased manner. This will be particularly appropriate
if support services for people living with HIV or AIDS are not well developed and resources are
very limited, or when the infrastructure is not sufficiently developed to support VCT services.
However, even if political commitment to VCT does not exist, NGOs can
advocate the concept and set up projects to demonstrate the need for and benefits of VCT. The
Thai Red Cross set up the "Anonymous Clinic" VCT service in Bangkok in July 1991 when
HIV was a notifiable disease and mandatory HIV testing was widely practised. The success of
the Anonymous Clinics succeeded in persuading the Government to change the law on
mandatory reporting. This was followed six months later by a policy to set up VCT sites in
every province of Thailand.
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3
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Tools For evaluating HIV voluntary counselling and testing
Tool 1
For evaluation of the national preparedness for VCT implementation
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How to use
I
respondents = programme planners
Illi
This group would include National AIDS Programme (NAP) managers,
counselling service coordinators, and NGO coordinators involved in VCT activities. It may be
appropriate to interview other policy-makers in, for example, associated ministries such as
education. As these will be few in number an effort should hr made to interview them all.
Sampling will therefore not be necessary. The interviews should be conducted individually
and the respondents encouraged to elaborate on any of' the
‘ items, qualify statements and
provide additional comments where appropriate.
Country background
Per capita GNP
Per capita spending on health
HIV sentinel survey figures
Urban antenatal
Rural antenatal
Other available seroprevalence data, please specify
How is VCT seen by the NAP?
Major priority
J
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Priority in some settings
□
Not a priority
Have VCT services been developed in your country?
Comprehensive country-wide service
Limited service (capital and selected large cities)
Limited service provided by NGOs
Other
Please describe the VCT services in detail
Please describe any obstacles to implementation
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UNAIDS
Tool 1
Does a national policy on VCT exist?
Yes J
No
In preparation
Have national guidelines for implementing HIV counselling been developed?
Yes _1
In preparation Q
No LI
Please describe how these were developed and state whether there have been any
difficulties in their implementation.
Is VCT promoted as part of HIV prevention and care services?
Yes
In preparation LI
No
Is HIV testing a legal requirement under any circumstances?
Pre-marital
Migrant workers
Other (specify)'
Is HIV testing frequently performed in:
Pre-operative screening
Pre-employment
General antenatal care
u
As part of MTCT intervention
Prisons
Military recruitment
I DU treatment
STI clinic
TB clinic
Are VC I services available?
General services
Yes
Being considered LI
No
Services for young people
Yes
Being considered LI
No O
YesO
Yes
YesO
Yes
Yes
Yes
Being considered
No
Being considered
No
Being considered
No
Being considered LI
No
Being considered
Being considered
No
No
Services for special groups
MSM
Sex workers
IDUs
Refugees
Prisoners
Others
(please specify below)
15
li
Tools for evaluating HIV voluntary counselling and testing
Tool 1
Are related services available for people living with HIV or AIDS?
Yes LI
In preparation U
NoU
Ongoing social support
YesU
In preparation U
No U
Support group for
YesU
In preparation U
No U
Yes
Yes
Yes
Yes J
YesU
Yes
Yes LI
In preparation U
No U
In preparation U
No U
In preparation U
No U
Ongoing medical care17
people living with HIV or AIDS
Ongoing counselling support
Liaison with NGOs
Family planning
MTCT interventions
TBPT
ARV interventions
Other preventive therapies18
In preparation U
No U
In preparation U
No U
In preparation U
No U
In preparation U
No U
(please specify)
Are HIV preventive services available?
I
Condom supplies
Yes, country-wide programme U
Yes, some sites U
No U
Services for IDUs
Yes, country-wide programme U
Yes, some sites U
No U
Ongoing counselling
Yes, country-wide programme U
Yes, some sites
No U
Other (please specify)
Yes, country-wide programme U
Yes, some sites U
NoU
Are HIV counselling training courses being run?
If YES, at what level
Yes U
No
U
National
Provincial
District
Testing site
t
u
How many counsellors have been trained?
What are the backgrounds of the people being trained as counsellors?
Nurses
U
Clinical officers
U
Social workers
U
People living with HIV or
Others (please specify)
AIDS U
U
17 Describe what services are available, e.g. CD4, viral load monitoring. Are these services available for all
people living with HIV or AIDS or only available for a minority of people who can pay?
18 For example cotrimoxazole prophylaxis, specify intervention.
16
UNAIDS
Tool 1
What training is offered?
Basic counselling training
Yes
In preparation
Advanced training
Yes
In preparation
No
Follow-up supervision
Yes
In preparation
No
Follow-up assessment of counsellors
No
Yes, countrywide programme
Yes, some sites
No
Number of training courses held
How long is the training?
Please describe in detail the training offered'9
If counsellors are assessed for the quality of their counselling how this is achieved?20
Are statistical data about the counselling service regularly compiled?
Yes
No
If YES, by whom
19 For example, give an indication of the teaching methods, course content, curriculum (if available), etc.
20 For example, are counsellors subject to regular supervision?
17
I
Tools for evaluating HIV voluntary counselling and testing
SECTION 2
Evaluation
of
operational a
of the
e sites and services
Introduction and background
(i) Site
Accessibility and convenience
VCT services need to be accessible for the population they are serving. Opening
hours need to take into account the needs of the clients. To allow easy access for working
people, lunchtime, early evening and weekend services should be considered.
In services used by women, or families, providing a supervised space where
children can play would enable less interrupted counselling.
Privacy
For VCT to be carried out correctly and effectively, privacy must be ensured.
Discussion of risk factors and sexual relationships is part of VCT for HIV infection, and key
information essential to the process will not be elicited unless people can discuss these issues
in private. Private space will be required.
Waiting area
In addition, a well-ventilated waiting area is important. TB infection is
commonly associated with
HIV and people with reduced immunity are particularly
vulnerable to nosocomial tuberculosis infection.
(ii) Confidentiality
for VCT services to be acceptable, confidentiality must be guaranteed. HIV
remains a stigmatizing condition in most countries and uptake of services will be low if it is
not known that confidentiality will be respected. Therefore a system must be in place to avoid
breaches of confidentiality at all stages in the VCT process. In some settings it has been shown
that people feel more comfortable about attending VCT services if they can give a
pseudonym21, and anonymous testing is commonly available in many industrialized countries.
(Hi) Linkages
VCT has been shown to be more effective when it is developed in conjunction with
support services (medical, social and emotional, family planning services, STI services, antenatal
services, home-based care services and palliative care services), spiritual services and traditional
healers, support groups for people living with HIV or AIDS, community groups and NGOs.
In high-prevalence areas a wide range of care and support activities, may
already be in place in the community. It will be important for counsellors to be aware of these
resources and to be able to make appropriate referrals. Counsellors must also be aware of the
21 Baggaley R, Kelly M, Weinreich S, Kayawe I, Phiri G, Mulongo W, Phiri M. HIV counselling and testing in
Zambia: The Kara counselling experience SAfAIDS News, 1998, 6(2):1 -9
18
UNAIDS
special medical needs of people living with HIV or AIDS. The package of TB care (including TB
screening and TB preventive therapy) may be available; in some countries ARV therapy is
available, though often only for a minority. The spiritual needs of people living with HIV or AIDS
have been shown to be important in many countries-’-’, and counsellors should be aware of these
for referral.
(i\) lll\ testing methods (ini hiding iiunlit) control)
Although HIV testing methods have become much more sensitive and specific
(especially for sera from Africa), evaluations have shown that without rigorous quality control
high numbers ot false positive and negative results are common. Not only can this be extremely
damaging for individuals, but it can undermine the credibility of the service. If the
WHO/UNAIDS testing strategies2‘ are carried out for all tests, whatever method is used,
laboratory errors can be reduced to a minimum. It is particularly important when setting up an
HIV testing service, or when changing an HIV testing method, that tests are cross-checked at a
reference centre. Even when these are used, large numbers of clerical errors are often reported.
Therefore a cross-checking system for results is important.
(i) Cost .md siisl.iindhilit\
Many developing countries are undergoing health reforms that include a degree
of cost-sharing of medical services. However, for services to be affordable for the majority of
people, they will usually have to be provided at low cost. In some countries the services are
provided free to a limited number of people, or "free days" are built into the system to ensure
that people who cannot afford to pay even a small amount are not excluded from the
services24.
It is also important to have a medium-term plan for the service. If a service has to
be shut, or scaled down after an initial period, confidence will be lost and the community will
feel let down after expectations have been raised.
(vi) Services tor special and vulnerable groups
VCT services may be considered for groups of people particularly affected by
IIIV. For example there is experience from working with sex workers in southern Africa25
showing that VCT services must be carried out sensitively.
22 WHO. TASO Uganda, the inside story: Participatory evaluation of the HIV/AIDS counselling, medical and
social services. Geneva, World Health Organization, 1995.
23 UNAIDSAA/HO. Recommendations for the selection and usage of HIV antibody tests. Weekly
Epidemiological Record, 1997, 72:81-83.
24 Knowlege is power: voluntary HIV counselling and testing in Uganda. UNAIDS Best Practice Collection
Case Study, Geneva, UNAIDS, 1999.
25 Wilson D. Provisional rapid assessment guidelines for prostitute interventions in sub-Saharan Africa and
Plummer F, Ngugi E, Moses S. The Pumwani experience: Evolution of a partnership in disease control,
Published in Focusing interventions among vulnerable groups for HIV infection: experiences from Eastern
and Southern Afric a NzXRESA Monograph No. 2, 1994.
19
-
!'
Tools for evaluating HIV voluntary counselling and testing
Tool 2
For VCT site evaluation: logistic considerations and coverage
How to do
respondents = VCT managers
In some countries several VCT sites exist. Where a small number exist an effort
should be made to interview managers from all sites. Where there are numerous sites a
representative sample of managers from the various categories of VCT sites should be made -
for example one each from a blood transfusion site, free-standing VCT site, hospital clinical
setting, private sector, research site, etc. The sample should also contain examples of both
rural and urban sites where appropriate.
Which services do you offer?
Pre-test counselling
Post-test counselling
Ongoing counselling
HIV testing
HIV diagnostic counselling
J
(without testing)
II
If pre- and post-test counselling are undertaken,
Yes
do carefully defined procedures exist?
No
Please describe these-”’
Opening hours
Are you open at any of the following times?
Early evening (after 17:00)
No
Yes
Lunch hour
No
Yes LI
Weekends
No 'J
Yes '—1 (specify Sat. or Sun. or both)
(specify how many evenings)
Do you have an appointment system?
Yes
No
Yes
Yes U
Yes
No L)
If YES, what happens if someone comes without an appointment?
They are asked to make a future appointment
They will always be seen the same day
They will usually be seen the same day
No
No
Privacy
Do you have adequate space to ensure counselling sessions can be private?
Yes, there is adequate space
J
There is some private space, but not enough
No
Specify,
private office
J
cubicle
other (describe)
curtained-off area
26 For example, do written policies, checklists, data management systems, etc., exist?
20
UNAIDS
Tool 2
Wdiling area
Describe the waiting area
Confidentiality
Yes
Does the site have a written policy on confidentiality?
No
Describe the steps that have been taken to ensure confidentiality
I lave any of the following staff received specific guidance about the role of counselling
and confidentiality?
Yes
Yes
Yes
Yes
Yes
Yes
Counsellors
Laboratory staff
Non-counselling medical staff
Ward attendants
Receptionists
Ancillary staff (e.g. cleaners)
No
No
No
NoQ
;
NoU
No
Others (specify)
Linkages
Do you receive referrals from any of the following?
No
Medical services (e.g. clinics/liospital)
Yes
Occasionally
Social services
Yes
Occasionally
No
Other (ounselling services
Yes J
Occasionally
No
N(i( )s
Yes —1
Occasionally
No
Family planning services
Yes LI
Occasionally
No
MCI I services
Yes
Occasionally
No
TB/chest < link:
Yes J
Occasionally
No
STI services
Yes -J
Occasionally
NoQ
Traditional healers
Yes
Occasionally
No
Spiritual/religious groups
Yes
Occasionally
No
Medical services (e.g. clinics/hospital)
Yes
Occasionally
No
Social services
Yes U
Occasionally
NoQ
Other counselling services
Yes J
Occasionally
No
i
■
'i
■
Others (specify)
Do you refer to any of the following?
NGOs
Yes -I
Occasionally
No
Family planning services
Yes _l
Occasionally
NoQ
MCH services
Yes. J
Occasionally
NoQ
TB/chest clinic
Yes
Occasionally
NoO
STI services
Yes U
Occasionally
NoO
Traditional healers
Yes
Occasionally
NoQ
Spiritual/religious groups
Yes J
Occasionally
No
Others (specify)
27 For example, are files kept in a locked filing cabinet, is a system in place to protect confidential
computerized information?
21
I
Tools for evaluating HIV voluntary counselling and testing
Tool 2
Describe how the referral systems work and any problems and successes
Do you feel there are adequate referral services available, particularly for the needs of people
who test positive?
HIV testing methods
Where do you carry out HIV tests?
All testing done on site
Preliminary tests done on site, confirmations sent to other laboratory
u
All testing carried out in other laboratory
What is the time interval between taking blood and- results being available?
Describe the HIV testing schedule employed "
Yes
Do you have external quality control for HIV testing?
No
If YES, describe
Cost and sustainability
Do you charge for services?
Counselling only
No
Yes
amount
Testing
No J
Yes _J
amount
Ongoing counselling
No
Yes
amount
If YES:
Are there any people who do not pay?
Yes -J
No J % who do not pay
How is the service funded?
How long is the funding of the services ensured?
Are any inducements given to people attending the site?
No
(e.g. transport costs, refreshments, etc.)
If YES, specify
Yes
28 For example, schedule for confirmation of test results, policy about testing in the window period.
22
UNAIDS
Tool 2
Services for special and vulnerable groups
Do you have special services for any of the following groups?
Pregnant women
Yes
No
Young people
Yes
No
Children and families
Yes Cl
Nod
Sex workers
No
Refugees
Yes
Yes
MSM
Yes LI
No
IDUs
Yes
No
No LI
Level of service provision and utilization
In the last 3 months:
How many people have presented at the site?
What % of people have had pre-test counselling?
What % of people have been tested for HIV?
What % of people have returned for their result?29
What % of people have been given post-test counselling?
What % of people have received ongoing counselling?
What % of speople have been referred to other services?
List the services to which most referrals have been made:
Describe any problems and successes you have observed in people returning for test results
I
Outreach counselling (counselling in non-clinical settings)
Yes
Is outreach counselling carried out?
NoO
If YES,
How many people, on average, per group?
How many outreach sessions in the past 3 months?
b.i
Where are outreach sessions held?
Advertising and promotion of the VCT service
Do you advertise or promote your service in any way?
If YES, describe
Yes
No
Yes
NoQ
•i
:
Group counselling
Is group pre-test counselling carried out?
J
If YES,
How many people, on average, per group?
How many group counselling sessions in the past 3 months?
How long, on average is each session?
29 It is important to note here that "return rates" to collect HIV test results may be very dependent on the HIV
testing method used. Where simple/rapid testing strategies are used it may be virtually impossible for.clients
not to get their test results as they are available shortly after the sample is taken and the client may be asked
to remain in the clinic to receive the test result. If, however, ELISA testing is used and blood samples are sent
to a central laboratory, a delay of 2-3 weeks is common between taking the blood test and the results being
available to the client. This may result in fewer clients receiving their test result for logistic reasons or due
to people changing their minds.
■ i
23
Tools for evaluating HIV voluntary counselling and testing
SECTION 3
ll
Counsellors' requirements
and satisfaction
Introduction <md bnck^round
Counsellor selection
If'"';
Reports of counsellor selection have indicated that this process is often
inadequate’0. Counsellors are often selected by managers who have little understanding of the
needs and responsibilities of counsellors. It has, however, been shown that health care workers
who are motivated to counsel are more likely Io be empathetic and profit lent counsellors".
Therefore counselling training should not be a mandatory part of work, but rather assigned Io
health care workers who feel committed to counselling. In order to avoid over-commitment or
the imposition of the counsellor's own personal agenda, regular supervision of counsellors is
important. Counsellors may not necessarily have a health background, and lay counsellors,
people living with HIV or AIDS and people from other professions, such as teachers'2, have
been trained as counsellors in many developing countries.
Counsellor attitudes
I
Counsellors will often have clients from different backgrounds and with different
health and social beliefs. If they are dealing with groups such as sex workers, drug users, or
young people, they may require training in special communication skills. Welcoming, friendly,
sensitive and non-judgemental attitudes from counsellors are essential.
Counsellor training (including counsellor training materials)
Counsellors in VCT services will need training which should consist of basic
information on HIV, transmission routes, risk factors, and possible and available interventions,
as well as the role and processes of pre-test, post-test and ongoing counselling. For the
latter they will often need to acquire new skills. There are several models of counselling
training. A short course (usually 1-2 weeks) followed by practical work, then a further 1-2
weeks, is a common time-scale”. Some centres offer longer, more in-depth training. The need
for refresher courses and ongoing training and support is widely recognized.
Counsellor recognition
Many people in high HIV-prevalence areas have received training in HIV
counselling, but are often unable to use their skills because counselling is not recognized by
30 Miller D, Casey K. Draft report on a consultancy on strategic counselling development in Thailand, Chang
Mai, UNAIDS, July 1997.
31 tie (., Biswalo P. Perception of appropriate I ll\ AIDS counsellors in Arusha and Kilimanjaro regions of
Tanzania: Implications for hospital counselling, AII)S ( .i/e, 199-1, 6(2):1 19 1 r> 1.
32 Baggaley R el al. IIIV stress in the classroom and al home* as identified by primary sc hool teachers in I usaka,
Zambia. International /ourihil of Public Health, 1999, 77( 1):284-2B8.
33 Regional AIDS Training Network, Nairobi, Kenya, 1999.
24
UNAIDS
their colleagues as being important. Furthermore, other routine activities often take
precedence over counselling or counselling-trained staff are transferred to other posts where
they cannot carry (Hit their duties. If counsellors are trained and given additional duties in HIV
counselling, this rule must be recognized and appreciated, and they must be allowed
sufficient time to carry out these duties.
Counsellor support and follow-up
Many counsellors experience considerable stress as a result of full-time
counselling for HIVU
In order to minimize "burnout", and avoid losing valuable and
experienced staff, regular support and supervision should be planned and provided. This has
been shown to be effective and feasible, even in busy hospitals providing care in high HIVprevalence communities’*. The questions on burnout have been adapted from previous
studies17. Counsellors may be able to function more effectively if they alternate their
counselling with other activities. It must also be recognized that many health care workers,
even those working in high-prevalence areas, may have had little formal training in HIV and
may have similar prejudices to those held by others in the community. These prejudices may
have to be challenged during training. Furthermore, some of the issues they will be expected
to discuss (such as condom use, or safer sex practices for young girls) may go against their
own religious beliefs, or what they have been advising previously. It has also been reported
that when health care workers start to discuss HIV issues with their patients, their own
anxieties and vulnerabilities to HIV may surface18. Counsellors who are themselves living with
HIV or AIDS report particular need for support as, when they give seropositive results, they
may relive their own experiences and empathize too closely with their clients who test
hi
seropositive. These counsellors also reported the benefits of alternating counselling with other
activities. In some countries counsellors have formed groups to provide mutual support and
to discuss complex cases. Counsellors, many of whom may have limited training or work in
isolated situations, need a structure for supervision and referral of difficult cases.
II
34 Baggaley K el dl. IIIV counsellors' knowledge and attitudes and vulnerabilities to HIV. AIDS Care, 1996,
8:155-166.
J5 Kalibala S. Research, interventions and current issues in burnout and response, in Health Workers and AIDS,
Ld. Bennett I, Miller D, Ross M, Hardwood Academic Publishers, Switzerland, 1995.
16 van Dis H, van ()ongen E. Burnout in IIIV/AIDS health care and support, Amsterdam University Press, 1993.
17 Questions adapted from Miller D. Dying to caref Work, stress and burnout in HIV/AIDS. Social aspects of
AIDS, London, Routledge, 2000; Bennett, Kelaher & Ross, AIDS impact scale, 1992; Maslach & Jackson,
Maslach Burnout Inventor, 1982.
38 WHO. TASO Uganda, the inside story: Participatory evaluation of the HIV/AIDS counselling, medical and
social services. Geneva, World Health Organization, 1995.
25
Tools for evaluating HIV voluntary counselling and testing
Tool 3
For evaluation of counsellor selection, training and support
How to use
This tool is not designed to evaluate the individual counsellor's counselling
skills and counsellor competence, which will be covered in the section on counselling
evaluation. Rather it is to highlight the counsellor's perceived adequacy of his/her selection,
training support and work satisfaction.
Respondents = counsellors
This tool is a semi-structured interview that should be carried out individually
by a trained researcher. As it will require some time to perform, a small random sample of
counsellors should be used. The interviewee must be assured of his/her anonymity. The
interviewer should be trained to be non-judgemental and allow the interviewee to express
his/her anxieties. Additional points and comments may be recorded w here appropriate.
What is your background?
Social worker
□
□
□
Person living with HIV or AIDS
J
Nurse
Clinical officer
Other (specify)
Selection
How were you selected to be a counsellor?
□
□
Proposed by senior colleague
Self-motivated (expand)39
Do you feel that you have been pressurized into doing counselling? (explain)40
Training
Describe the counselling training have you received?4'
How would you rate your counselling training?
very good
I
good .J
adequate —I
inadequate U
39 For example, give reasons why you decided to train as a counsellor, e.g. "concerned about the impact of
HIV in the community", "following personal experience" - e.g. have friend, relative with HIV, etc.
40 For example, is counselling something you feel comfortable doing, or do you feel it is a strain, or that you
have to do it as part of your job?
41 For example, number of courses and duration of courses attended.
26
UNAIDS
Tool 3
What were the good things and poor things in your training?
Are there any areas in which you feel you need more training?
I lave you had follow-up or ongoing training?
Yes
NoQ
Yes
No
If YES, dcstribe it.
If NO, do you think ongoing training would be a good idea?
If YES, describe how it might, or might not, help.
Support and supervision
How many hours a week do you spend in counselling activities?
I
What proportion of your working life is spent counselling?
Yes
Do you attend a counsellor support group?
NoU
If YES, in what way is the group helpful or not helpful?
If NO, in what ways do you think you would benefit (or not benefit) from a support group?
I
Do you have support for your counselling from other sources?
Yes
No
Yes
No
■
If YES, explain whom and how does it help
Do you have access to a designated counselling supervisor to
provide you with support and technical back up?
If YES, who provides:
s u p po rt
supervision
:_________________
!
27
Tools for evaluating HIV voluntary counselling and testing
Tool 3
"Burnout"
How do you feel about your job?
Do you feel valued or undervalued by clients (explain in what ways)?
Do you feel valued or undervalued by other staff (explain in what ways)?
Do you feel valued or undervalued by your superiors (explain in what ways)?
Are you given adequate time in your job to carry out your counselling duties?
Please indicate how you feel about the following statements
"I feel emotionally drained by my work"
always
often
occasionally
never
often
occasionally
never
occasionally
never
occasionally _J
never
"My work is very stressful"
always
"My work is very rewarding"
always
often
J
"My work environment is very stressful"
always
often
"I learn something new in my work every day"
always J
often _J
occasionally -J
never
occasionally
never
"I feel isolated in my work"
always J
often
"I have problems communicating with my colleagues"
always J
often _1
occasionally _J
never
often
occasionally U
never
J
occasionally —I
never
J
"I can help my clients"
always J
"I have no confidence in my clinical skills"
always
often
Please elaborate on any of the above statements
28
UNAIDS
Tool 3
How many years have you been counselling?
How many hours per day do you do counselling?
If your daily schedule varies, please give an approximate indication of the number of hours
you spend, for eac h day of the week:
Counselling about HIV-related problems
hours
Counselling about other issues
hours
Other work (specify)
hours
How many days per week do you do counselling?
I
How many clients do you see per day?
If your daily schedule varies, please give an approximate indication of the number of clients
you see for each day of the week:
Clients with HIV-related problems
Clients with other problems
---------------------------------
I
How do you see your future in counselling42?
I
I
(
42 For example, "...will go on with my counselling job for the foreseeable future", "...find counselling too
stressful/difficult and want to find a new job".
29
Tools for evaluating HIV voluntary counselling and testing
ii
SECTION 5
Counselling for specie
interventions
5o
Counselling
for TBPT
jir
Introduction unci background
Tuberculosis (TB) is the leading cause of death in people with HIV in many
countries. In countries where TB is common many people will have been infected, subclinically, during childhood and adolescence. If they then become infected with HIV a
reactivation of this latent TB infection can occur causing clinical disease. It has been shown
that by giving tuberculosis preventive therapy (TBPT), usually isoniazid 300 mg daily for 6
months, the incidence of clinical TB in people with HIV can be halved”. It is, however
important to screen people for active TB before 1 BP I is given. Il has been proposed that FBI
could be offered to seropositive people following VCT". Specific information needs to be
discussed with clients during the post-test counselling session. In addition, the following areas
would have to be covered during the* post-test counselling session.
!
43 Mwingwa A, Hosp M, Godfrey-Faussett P. Twice weekly tuberculosis preventive therapy in HIV infection in
Zambia, AIDS, 1998, 12:2447-2457.
44 WHO/UNAIDS Policy statement on preventive therapy against tuberculosis in people living with HIV,
document WHO/TB/98.255 UNAIDS/98.34, 1998.
36
UNAIDS
Tool 5.1
For evaluation of counselling content for TBPT
How to do
respondents = observers of counselling sessions
This section should be completed by an external assessor, counselling supervisor
or counsellors who have training. It is aimed at assessing the standards of the counselling of
individuals taking place in the various contexts of IIIV testing, care and support services. The
standards assessed are based on the performance skills of the counsellors and these are best
assessed through the observation of real counselling situations. Not more than three to five
sessions need to be observed at each counselling site. Where there are many counsellors, a
random sample (three to five), should be selected from among them. For each selected
counsellor an observation could be made on the first counselling session conducted on the day
of monitoring. When only one or two counsellors exist, three to five counselling sessions could
be selected at random. Before the observer sits in, the client is informed about the observation
and its purpose. Consent is sought. The observer must ensure that he/she is as unobtrusive as
possible and does not disrupt the counselling session. Assurance of confidentiality must also be
given. Immediate feedback to the counsellor by the trained supervisor is advised, with an
opportunity for the counsellor to express his/her opinions and concerns.
Occasionally counsellors feel unhappy about a supervisor observing their
session. Where there are irreconcilable concerns about observations by supervisors,
alternative evaluation methods include using peer counsellors as observers, role play or
audio-taped consultations (see Introduction).
During the session have the following occurred?
Have specific questions about TB and TB treatment been covered?
Questions for TB screening (symptoms explored)
No
Productive
YesU
Yes
Fever
Yes
No
Weight loss
Yes
No
Family ( onta( I with TB
YesU
No
Drug reactions
Yes
No
Other medicines being taken
No
Past history of TB
Yes
Yes
Yes
Past history of TB medication
Yes
No
Cough
No
Contraindications and cautions to TBPT discussed
Pregnancy
No
No
The regimen explained
Yes
No
The need to take medicines continually according
Yes
No
Yes
No
Yes
No
to the regimen and the dangers of taking
TBPT erratically
medical help
Understanding checked for
37
s
li
Explanation of TBPT adequately given including
The possible side-effects and when to seek
I!
Tools for evaluating HIV voluntary counselling and testing
5b
Counselling
for MTCT
interventions
Introduction nnd Ihickground
The risk of HIV transmission from an infected mother to her child can be
reduced by 50% by giving short-course zidovudine from 36 weeks of pregnancy
I during
labour, and by avoiding breastfeeding. Preliminary results from trials of sing'
dose
intrapartum and postpartum (to the infant) Nevirapine have also shown significant reductions
in MTCT45. To be able to make informed decisions about infant feeding and access to
antiretroviral (ARV) therapy, where this is available, a pregnant woman needs to know and
understand her HIV status.
Pregnant women will require the same information as other people in pre- and
post-test counselling sessions but additional areas will need to be explored. An ai a which
will require sensitive counselling is sharing results with the baby's father/her partner and close
family members, as interventions to reduce MTCT may involve decisions to change infant
feeding methods and to take ARVs, both of which will make it difficult to conceal a
seropositive status. Furthermore there may be considerable benefits of sharing HIV results r
pregnancy so that women may have adequate emotional support.
Even in areas of high HIV prevalence the majority of women tested during
pregnancy will be seronegative and it is important to use this opportunity to reinforce safer
sex messages.
I!'
1 i
Women who become infected with HIV during pregnancy or during
breastfeeding are at increased risk of transmitting 111V to their babies due to the high viral load
associated with acute infection4'’.
Studies have indicated that, for women testing in the antenatal setting, there is
great benefit for women of being tested together with their partners47
If women are tested
alone, or their partners refuse to be involved in the VCT process, or if they feel unable to
disclose their status to their sexual partner, it is difficult for women to take full advantage of
the benefits of VCT. They will have difficulties in making decisions about using safer sex
practices, planning for their and their families' future, accessing care and support, and making
infant feeding choices. Despite the problems of women testing alone, in pilot projects on
I
MTCT prevention it is usual for this to occur, and disclosure to partners may only happen in
a minority of cases. Where interventions to prevent MTCT are available, antenatal testin
should always be offered to couples. Testing women individually should be the exception (ai
the woman's request) and not the rule.
45 Guay L, Musoke P, Fleming F, et al Intrapartum and neonatal single-dose nevirapine compared with
zidovudine for prevention of mother-to-c hild transmission of HIV-1 in Kampala, Uganda: HIVNET 01 2
randomised trial, Lancet, 1999. 354:795-802.
46 UNICEF/UNAIDSAVHO. .4 review of I ll\' transmission through breast-feeding in HIV and Infant feeding,
1999, CHD/98.3
47 Meursing K. A world of silence, Li\ ing w ith IIIV in Matabeleland, Zimbabwe, doctoral thesis, Royal Tropical
Institute, The Netherlands, 1997.
48 Allen S, Tice J, Van der Perre P. Effect of serotesting with counselling on condom use and seroconversion
among HIV discordant couples in Africa, 8A1/, 1992, 304:1605-9.
38
UNAIDS
TOOL 5.2
For evaluation of counselling content for MTCT interventions
How to do
Respondents
observers of counselling sessions
An external assessor, counselling supervisor or counsellor who has had training
should complete this section. It is .
at assessing the standards of the counselling of
individuals taking place in the various < > ...:cxts of HIV testing, care and support services. The
standards assessed are based on the performance skills of the counsellors and these are best
assessed through the observation of real counselling situations. Not more than three to five
sessions need to be observed at each counselling site. Where there are many counsellors, a
random sample (three to five) should be selected from among them. For each selected
counsellor an observation could be made on the first counselling session conducted on the
day of monitoring. When only one or two counsellors exist, three to five counselling sessions
could be selected at random. Before the observer sits in, the client is informed about the
observation and its purpose. Consent is sought. The observer must ensure that hp/she is as
unobtrusive as possible and does not disrupt the counselling session. Assurance of
confidentiality must also be given. Immediate feedback to the counsellor by the trained
supervisor is advised, with an opportunity for the counsellor to express his/her opinions
and concerns.
Occasionally counsellors feel unhappy about a supervisor observing their
session. Where there are irreconcilable concerns about observations by supervisors,
alternative evaluation methods include using peer counsellors as observers, role play or
audio-taped consultations (see Introduction).
During the session have the following occurred?
In early pregnancy:
Have the following areas been adequately covered?
Yes
No
Yes
No
Yes
No Q
Implications of a HIV-positive result for her baby
Yes
No
Implications of a HIV-positive result for future children
Yes
No
Implications of a HIV-positive result for decisions about infant feeding
Yes
No
Yes
No
Client's views on pregnancy explored
Full information about HIV in pregnancy and the risk of transmission
to the infant given
Possible benefits of knowing her status and interventions available
if the result is positive (including making it clear that ARV therapy
cannot be given to women whose status is not known)
Implications of a HIV-positive result for her relationship with the
baby's father
Discussions around the benefits of testing together with her partner/
Yes LI No CJ
her baby's father
Implications and benefits of sharing a HIV-positive result with her
Yes LI No Q
partner/her baby's father
Explaining that testing is not mandatory and that she will not be
denied access to antenatal care or other services if she chooses
not to be tested
Yes
No
Yes
NoQ
Options for termination of pregnancy (TOP) (if available legally
and safely)
39
Tools for evaluating HIV voluntary counselling and testing
f
Tool 5.2
Post-test counselling for HIV-positive women attending maternity services
In addition to the general issues that should be covered in post-test counselling,
counselling for pregnant women who are HIV seropositive should include:
Yes
Information on ARVs, if available
NoU
Information on infant feeding options
and the benefits and risks of breastfeeding
Yes U No U
■
YesU No U
Information on family planning
Information about treatment, care and
support services available and referral
Yes
No
Yes
NoU
Yes
NoU
Discussion of potential benefits and risks of sharing information
about their HIV status with partner, family
Information about safer sex and using condoms
to prevent transmission of HIV and STIs
Information about care of the child (including nutritional advice
and seeking early treatment for illnesses)
Yes U NoU
Planning for the future
(including emotional, spiritual and legal support)
Options for referral if required
S
Yes U NoU
Yes U No U
Have specific questions about MTCT and ARV treatment been covered?
Previous ARV use
Yes U No U
Not a cure
Yes U No U
Need to attend maternity services
Yes U No U
Need to take ARVs as prescribed
Yes U No U
Understanding checked for
Yes
No U
Contraindications and cautions to ZDV discussed
Drug reactions
Yes U No U
Other medicines being taken
YesU NoU
Explanation of ZDV therapy for prevention of MTCT adequately given including:
Yes U NoU
The regimen explained
The need to take medicines continually according to the
regimen and the dangers of taking ZDV erratically
Yes
NoU
The possible side-effects and when to seek medical help
YesU NoU
Understanding checked for
YesU NoU
Post-test counselling for HIV-negative women attending maternity services
Information about safer sex and using condoms to prevent infection
(especially during pregnancy and breastfeeding)
Explain about discordancy
Yes U No U
Yes U No U
40
UNAIDS
SECTION 6
"Group counselling"/
Group education
Introduction and background
i n situations with limited resources and few counsellors it has been suggested that
"group counselling" can be used to maximize the number of people having access to VCT. Video
information can also be used in this setting. This model has been used to provide pre-test
information to women in antenatal settings and to couples and groups of young people in various
settings in developing countries49. It may be more appropriate to describe this group interaction,
where people learn details about HIV transmission, risks, testing and interventions, as "group
education" rather than counselling. It may be very difficult for individuals to discuss personal
issues and fears in a group setting and people may feel swayed by the opinion of the group and
need time to discuss their own circumstances. Although group work has been used successfully
as part of pre-test preparation, it should not replace individual pre-test counselling. Everyone
being tested for HIV should have the opportunity for individual pre-test counselling. Giving HIV
test results and post-test counselling should always be conducted individually, unless a significant
other has been invited to attend by the client, or with children and minors. The counsellor who
leads the group session will need similar skills to those required for individual counselling, but in
addition will need to cope with the complex dynamics which may arise in a group:
• dealing with an over-assertive, dominant individual
• inc hiding quiet, shy or overwhelmed individuals, yet respecting "listeners"
• allowing all participants to speak
• coping with people who become emotionally distressed in a group
• being non-judgemental and inclusive of different beliefs (religious, cultural, medical, etc.) of
group members
• refraining from "lecturing" the group - allowing the group to learn from each other's
experiences.
There are many examples of post-test groups where people gain mutual support
from people who have been through VCT50. This, again, should not replace post-test and
ongoing counselling which should be available for all people following VCT.
Important characteristics of group work
Clear identification of participants
’ Group participants should share a similar goal - for example women attending
antenatal clinic seeking information on VCT for MTCT interventions.
49 Allen S et al. Confidential HIV testing and condom promotion in Africa. JAMA, 1992, 8:3338-3343.
50 WHO. TASO Uganda, the inside story: Participatory evaluation of the HIV/AIDS counselling, medical and
social services. Geneva, World Health Organization, 1995.
41
Tools for evaluating HIV voluntary counselling and testing
Confidentiality
As with individual counselling sessions group participants should agree that
personal information disclosed in the group should remain confidential to the group.
Small numbers
If individuals are to be able to participate in a group numbers need to be limited
to fewer than 20.
Language
The group must agree upon a common language and the group leader should
be aware of the educational background of the group participants, using clear, jargon-free
language.
Group structure
Ideally the group should sit in a circle with the group leader being part of the
group, rather than adopting a teacher/class model.
I
Counselling back-up
i
Individual counselling should always be available for group participants. If
someone in the group becomes distressed and c annot be adequately helped in (he group,
there should be the opportunity for him/her to be Liken out of the group for individual support.
I
■
i
42
UNAIDS
Tool 6
For evaluation of group work
How to do
respondents = observers of group sessions
Assessors who have counselling training and training in group work should
complete this section. It is aimed at assessing the standards of the counsellor in leading groups
that take place in the various contexts of HIV testing, care and support services. The standards
assessed are based on the performance skills of the counsellors and these are best assessed
through the observation ot real groups. Not more than three to five sessions need to be
observed at each counselling site. Before the observer sits in the group, the participants are
informed about the observation and its purpose.
Consent is sought. Assurance of
confidentiality is also given.
Function
Skills
Score
Establishing
Greets participants
3 2 1*
group
Introduces self
3 2 1
relationship
Facilitates group introductions
3 2 1
Ensuring
Allows all members to participate
3 2 1
group
Seeks clarification about information
3 2 1
participation
given/discussed
Comments
I
Directs discussion appropriately
3 2 1
Summarizes main issues discussed
3 2 1
Giving
Gives information in clear and simple terms
3 2 1
information
(lives partic ip.ints time to absorb information
3 2 1
i
and to respond
Has up-to-date knowledge about HIV/
3 2 1
MTCT etc**.
Repeats and reinforces important
3 2 1
information
Handling
special
circumstances
Checks for understanding/misunderstanding
3 2 1
Summarizes main issues
3 2 1
Accommodates language difficulty/
3 2 1
differences in the group
Talks about sensitive issues plainly and
3 2 1
appropriately for the culture/group composition
Prioritizes issues to cope with limited time
3 2 1
Manages participants' distress
3 2 1
*3= best
**depending on the aim/requirements of the group
43
I
Tools for evaluating HIV voluntary counselling and testing
SECTION 7
Client satisfaction
Introduction and background
Outcome measures
The aim of VCT is to enable people to know and understand their HIV status. Thus
it is hoped that, for those who test seropositive, they can access care and support at an earlier
stage, cope better emotionally with their infection, plan for their and their dependants' future, and
prevent HIV transmission to sexual partners. For those who test seronegative, the main aim of VCT
is to enable them to make decisions about their sexual (or other risk) behaviour in order to remain
negative. Balanced against this are the possible negative consequences of HIV testing, such as
depression and anxiety for the individual who tests positive, and the possible stigma,
discrimination and abuse for those who share their positive status with others'” ”. In attempts to
evaluate these matters, generic tools have been developed to be administered by research
workers to clients after counselling sessions. One has been used in several developing and
middle-income developed countries and was modified for use in Zambia where it has been most
extensively used. The modified questionnaire included many open-ended questions to explore
people's attitudes, feelings and behaviour in depth following VCT: 377 people were interviewed
on three occasions during the two years following their post-test counselling session. A further 50
people were interviewed who had undergone VCT, but did not return for their test results'’54”.
Areas covered in the Zambian VCT evaluation
First interviews
• Recruitment from different sites
• HIV seropositivity
• Demographic characteristics
• Counselling sessions
• Motivation for HIV testing
• Sharing HIV test results
• Knowledge of partner's HIV status
• Coping with HIV result
• Family planning
• Marriage/relationship issues
• Safer sex practices
• Medical needs - allopathic/western; traditional; spiritual
• Psychological needs/support
• Self-help/support groups
• Government and community assistance
• Planning for the future
• Legal and discrimination issues
• Financial/work planning
® Terminal care
51 Temmerman M et al. The right not to know HIV-test results. Lancet, 1994, 345:696-697.
52 McGreal C. This is worse than apartheid. The Guardian, London, 16 March 1999.
53 Kayawe I et al. Client's views on HIV counselling and testing. Is it helpful? Abstract 33265, 1 2th World AIDS
Conference, Geneva, Switzerland, June 1998.
54 Baggaley R, Kelly M, Mulongo W. To tell or not to tell: sharing HIV results with sexual partners, SANASO
Conference in Mbabane Swaziland, October 1997.
55 Baggaley R et al. HIV counselling and testing in Zambia: The Kara counselling experience, SAfAIDS News,
1998, 6(2):1-9.
44
UNAIDS
Follow-up
• Sexual behaviour and "safer sex"
• Medical care
• Self-help groups and social support
• Family planning and marriage
• Coping
financially
emotionally
• The future/terminal care
Key issues
(i) Sexual behaviour
Other evaluations have concentrated on looking at reported sexual behaviour
following VCT and have looked at, for example, number of sexual partners and condom use56 57 58.
It has been argued that reported information of sexual behaviour must be interpreted with
caution. People may wish to please the interviewer by reporting what they perceive to be
"good" sexual behaviour, or may not wish to disclose sensitive information on a
questionnaire. In order to provide a direct measure of the impact of VCT on sexual behaviour
a study from Rwanda looked at rates of STIs, pregnancy and the incidence of HIV following
VCT in groups of people who had been tested and had received their test results compared
with groups of people who were not told their test results59.
(ii) Sharing results
Id make changes in sexual behaviour to reduce HIV transmission following
VC I, it is important to be able to share HIV results with sexual partners, and ideally to
persuade partner/s to be tested as well. It has also been shown that people with HIV often
gain much support if they are able share knowledge of their infection with partners, friends or
famiIy''”’1. However, unless couples present together, or are particularly targeted, reports have
often shown a low level of partner notification and subsequent partner testing62. This is
particularly marked at VCT sites targeting women for MTCT interventions, where it has
recently been shown that the proportion of men who accepted VCT after their spouse
tested positive did not exceed 1% in West Africa and 5% in South Africa63. However, in
Zambia, although people were often reluctant to share their test results initially, over time
56 Sangiwa G et al. Voluntary HIV counselling and testing (VCT) reduces risk behaviour in developing
countries: results from the multisite voluntary counselling and testing efficacy study. Abstract 33269
presented at the 12th World AIDS Conference, Geneva, Switzerland, 1998.
57 Moore M et al. Impact of HIV counselling and testing in Uganda, Abstract WS-C16-4 presented at the 9th
International Conference on AIDS, Berlin, Germany, 1993.
58 Allen S et al. Confidential HIV testing and condom promotion in Africa, JAMA, 1992, 8:3338-3343.
59 Allen S, Serufilira A, Gruber V. Pregnancy and contraceptive use among urban Rwandan women after HIV
counselling and testing, Am J Public Health, 1993, 83:705-710.
60 Kaldjian L, Jekel J, Friedland G. End-of-life decisions in HIV-positive patients: the role of spiritual beliefs,
AIDS, 1998, 12( 1 ):103-107.
61 Williams G. From fear to hope. AIDS care and prevention at Chikankata Hospital, Zambia, Strategies for
Hope 1, Actionaid, 1990, ISBN 1 87250214 8.
62 Fenton K, French R, Giesecke J. An evaluation of partner notification for HIV infection in genitourinary
medicine clinics in England, AIDS, 12(1 ):95-l03.
63 Cartoux M et al. Acceptability of voluntary HIV testing and interventions to reduce mother-to-chi!d
transmission of HIV in developing countries, Ghent International Working Group/UNAIDS/EU Final report,
1999.
45
Tools for evaluating HIV voluntary counselling and testing
more people were able to discuss this with their partner and the vast majority were able to tell
someone about it. The level of partner notification should not be seen as a simple indication
of success, as cultural and social factors will be of importance in this issue. In some contexts
it may be appropriate for women not to reveal their status, and pressurizing them to do so may
lead to abuse.
(Hi) Follow-up care and support
For people to benefit fully from VCT, it is important for them to have access to
further emotional, medical and social support. An indication of the availability and uptake of
these services and unmet needs is important.
(i\) Satisfaction with the service
It is important to examine how the client views the service so that any problems
can be addressed. The client's view of the services covering the following areas could be
looked at:
• convenience (site and opening hours)
• waiting time
to get appointment
to see counsellor
to get result
• counsellor
warmth/rapport/confidence
confidentiality
consistency of counsellor
• physical environment (privacy)
• unresolved problems/needs
46
UNAIDS
Tool 7
For evaluation of client satisfaction
How to do
respondents = exit interviews with people attending counselling
This tool is designed to evaluate how those attending the service felt about it.
Ihis tool is a semi-str<
I interview, which should be carried out individually
by a trained and experienced rescan her. The interviewer should be trained to be nonjud^mental and allow the interviewee to express his/her anxieties. Additional points and
comments may /)<• tec orded h here appropriate. As it will require some time Io perform, a small
sample of people should be interviewed. To avoid a selection bias, a convenience sampling
method can be used. All people receiving counselling within a specific period (e.g. one week)
will be asked by their counsellor to attend a confidential and anonymous exit interview. If the
number of people attending the service over this period is too great, random sampling can be
adopted to space people through each day and through the week. The interviews will be
voluntary and the clients should be assured that they are anonymous and confidential.
Have you talked to your counsellor today about:
Having an HIV test
Yes LI
No
Receiving test results
Yes
No
Yes
No
Issues arising from an HIV test taken some
time ago
Other issues (specify)
How did you first come to the centre?
Referred (specify by whom)
Recommended to come (e.g. by partners/friend)(specify)
Just dropped in
Other (specify)
Why did you come to the centre?
How much time did you spend:
Getting your first appointment
Waiting for your HIV test result
Waiting to see your counsellor today
In the session with your counsellor today
i!
Flow do you view your counsellor? Describe the good and bad things about him/her
47
Tools for evaluating HIV voluntary counselling and testing
I
Tool 7
Do you wish you had a different counsellor (different sex, older, younger)?
Were you able to see the same counsellor for discussion both before and after the test?
If a friend or relative were in a similar position to you before you came to the service, would
Yes Cl
No Q
you recommend that he/she came to the service?
Why?
Have you recommended the service to any one else? (Specify who and how many people)
48
UNAIDS
SECTION 8
Costs of VCT
Introduc tion dncl back^roLincl
When planning VCT services it will be important to estimate the additional
costs that will be required to either develop an independently functioning VCT service or to provide
VCT as an integrated part of other health services. Furthermore, when promoting interventions, or
deciding on their feasibility for wider application, it may be important to assess how cost-effective
they are. For example, cost-effectiveness models for MTCT interventions have been described
where VCT cost estimations have been included1,4 bS6667. These models estimate the cost per case
of HIV averted or cost per disability adjusted life year (DALY). If VCT projects are part of pilot
projects it is also important to have realistic estimations of their start-up and running costs if
services are to be expanded or replicated. Underestimating costs will mean that services may be
developed with inadequate funding, leading to frustration and poor implementation.
VCT costs associated with MTCT interventions per woman tested
Mansergh in a sub-Saharan African developing country setting 1996: US$ 18.50
Mansergh in a sub-Saharan African developing country setting 1998: US$
8.00
Marseille in a sub-Saharan African developing country setting 1998: US$
4.00
I
The costs described in these models are based only on the cost of HIV testing, rental
of premises and staff time and are less that the actual operating costs described by VCT sites, such as
AIC, Uganda, and Kara, Zambia. They do not include the costs of setting up and developing a service
and the costs of ongoing care and emotional support that some people will need following testing.
Some additional costs which have not been included in these models may also
need to be considered:
Organization of services
• providing appropriate or additional accommodation for confidential counselling services
• laboratory equipment for HIV testing
• transportation costs if testing is carried out at a laboratory at a distance from the VCT site
• safe disposal of clinical waste (including sharps)
• quality assurance system for HIV testing
• development of record system to ensure confidentiality of HIV results
• support of referral services (e.g. home care, medical services, ongoing counselling services,
social support)
Staff training and support
• counselling training related to VCT
• performance of laboratory tests
• ongoing counsellor support and supervision to ensure quality of counselling and to minimize
staff burnout
64 Mansergh G et al. Cost-effectiveness of short-course zidovudine to prevent perinatal HIV type 1 infection in
a sub-Saharan African developing country setting, JAMA, 1996, 276(2):1 39-145.
65 Mansergh C. el al. (1998) Cost-effectiveness of zidovudine to prevent mother to child transmission of HIV
infection in a sub Saharan African developing country setting, JAMA, 1998, 280(1 ):3O-31.
66 Marseille E, Kahn J, Saba J. Cost-effectiveness of zidovudine to prevent mother to child transmission of HIV
infection in a sub-Saharan African developing country setting, AIDS, 1998, 12(8):939-948.
67 Wilkinson D, Floyd K, Gilks C. Antiretroviral drugs as a public health intervention for pregnant HIV infected
women in rural South Africa: an issue of cost-effectiveness and capacity, AIDS, 1998, 12(13):1675-82.
49
Tools for evaluating HIV voluntary counselling and testing
Tool 8
For evaluation of VCT costs
How to do
respondents = VCT managers
In some countries several VCT sites exist. Where a small number exist an effort
should be made to interview managers from all sites. Where there are numerous sites a
representative sample of managers from the various categories of VCT sites should be made
(for example one each from a blood transfusion site, free-standing VCT site, hospital clinical
setting, private sector, research site, etc.). The sample should also contain examples of both
rural and urban sites where appropriate.
Set-up costs
Additional accommodation required
If additional accommodation has been built or .idapted, estimate (osts
Project development costs
When setting up the service, start-up costs may be incurred. These may include the following
categories. Where possible make estimations of the cost of these activities.
Advertising of the service
Community sensitization
Development of record system to ensure
confidentiality of HIV results
Other (specify)
Ongoing/running costs
Estimations for running costs should be made for a specified period, e.g. quarterly or annually,
depending on existing accounting systems:
Number of additional staff required*
Counsellors
FT
PT
total salary costs
Phlebotomists
FT
PT
total salary costs
administrative
Fl
PI
total salary costs
Laboratory staff
FT
PT
total salary costs
Drivers
FT
PF
total salary costs
()ther (specify)
FI
PT
total salary costs
Clerical/
*Some services will use existing clinic staff or redeploy existing funded staff - details of this
should be included.
50
UNAIDS
Tool 8
Additional accommodation required
If additional accommodation is required, estimate rental
Service running costs
Electricity
Water
Taxes
Rubbish collection, inc hiding clinic .il waste and sharps disposal
Transport
Laboratory supplies
Gloves
Needles & syringes
HIV test kits
Reagents
Equipment
Maintenance
Quality control (external)
Staff training and support
Please give details of training, including frequency of training and numbers of staff involved
and estimates of costs:
Initial training
Ongoing training
Counsellor support/supervision
il
51
Tools for evaluating HIV voluntary counselling and testing
Appendix
Modified tool tor reviewing quality
of VCT associated w ith MTCT interventions
The following checklist can be used where VCT is offered as part of
interventions to reduce MTCT of HIV In some of the pilot projects being developed for MTCT
interventions a model of group pre-test information/discussion followed by individual or
couple counselling is suggested1'3. The following checklists suggest minimum contents and
quality of pre- and post-test counselling.
Reviewing quality and content of HIV counselling associated
with MTCT interventions
1. Background information
I
I
respondents = VCT managers
What is the VCT setting ?
ANC clinic
1
J
Hospital VCT services
Free-standing VCT service
Other
What is the uptake of VCT by the antenatal women attending the service?
100%
!
90-99%
f
70-89%
50-69%
<50%
What is the return rate to collect HIV test results by the antenatal women
attending the service?
100%
J
_J
J
J
90-99%
70-89%
I
50-69%
<50%
68 UNAIDS/UNICEFAVHO. Local monitoring and evaluation of the integrated prevention of mother to child
HIV transmission in low income countries. Abidjan, May 1999.
52
UNAIDS
2. Observational study of pre-test content
GROUP EDUCATION TOPICS
INDIVIDUAL COUNSELLING TOPICS
1. HIV-related issues
LI Knowledge about HIV and transmission
□ Assessment of personal risk of HIV
□ Misconceptions about IIIV transmission
exposure and how to avoid it
□ I he I IIV testing process
(e.g. safer sex)
□ The "window period"
U Capacity to cope with a positive result
LI The meaning and possible implications
□ Potential needs and possible support
of I IlV-positive and I IlV-negative results
U The value of getting partner/father
□ Clarification of understanding
about information given
□ Time to think through issues and
involved
LI Potential needs and available support
for answering questions
LI Informed consent/dissent given freely
□ Follow-up arrangements after
counselling session
2. MTCT-related issues
J Full information about HIV in pregnancy
□ Implications of a positive result for the
and risk of transmission to the infant
baby and for future children
□ Possible benefits of knowing HIV status
□ Implications of a positive result
and interventions available if positive
LJ Testing is not mandatory and antenatal
for decisions about infant feeding
□ Implications of a positive result
for the relationship with the baby's father
care and other services will not be
denied if mother decides not to be tested
□ Desirability of getting partner/
father involved
□ ARV therapy for MTCT is not a cure/
□ Options for termination of pregnancy
treatment for mother
□ The need to attend maternity services
(if available legally and safely)
□ Previous ARV use
regularly
LI Check for understanding
□ Known adverse effects and drug
interactions
53
Tools for evaluating HIV voluntary counselling and testing
Post-test counselling
1
As with post-test counselling in other circumstances, results should always be
given individually or to couples who were tested together. The following checklist suggests
minimum contents of post-test counselling.
3. Observational study of post-test content
INDIVIDUAL COUNSELLING TOPICS
1. Breaking the news
□ Results given simply and clearly
□ Time allowed for result to sink in
□ Checking for understanding
□ Discussion of the meaning of the result for the client
□ Discussion of personal, family and social implications
U Who to tell, and how to tell them
□ Managing immediate emotional reactions
U Checking for immediate follow-up support outside the clinic
□ Review options and resources
LI Immediate plans, intentions and actions reviewed
2. MTCT-related issues
□ Explanation of the delivery processes (e.g. maintaining confidentiality through ARV
administration in labour)
□ Implications of the positive result for the baby and for future children
□ Implications of the positive result for decisions about infant feeding (e.g. benefits and
risks of breastfeeding) and information on feeding options
□ Information on family planning
LI Previous ARV use
□ Explanation of the ARV regimen and the role of ARVs
□ The need for medicines to be taken regularly and according to the regimen
3. HIV-related issues
□ Implications of sharing the positive result for the relationship with the baby's father, and
the family
□ Desirability of getting the father involved in counselling and follow-up
□ Information about safer sex and using condoms to prevent transmission of HIV and STIs
Q Options for termination of pregnancy (if available legally and safely)
!
LI Information about care of the child (including nutritional advice, seeking early
treatment for illnesses)
□ Information on support services in the community
LI Check for understanding
□ Next appointment made (possibly with partner)
54
UNAIDS
4. Counsellor skills
The following checklists suggests a minimum quality for pre and post-test
counselling skills.
FUNCTION
SKI! I S
1. Interpersonal relationship
uces self
..
Listens actively and supportively
Non judgemental
2. Gathering information
Uses open questions
Seeks clarification
Summarizes appropriately
3. Giving information
;
Clear and simple
Gives time to respond
Checks for (mis)understanding
Summarizes appropriately
4. Special circumstances
Appropriate and sensitive discussion
Prioritizes issues with the client
Manages client distress sensitively and
appropriately
Flexible in involving partner
5. Assessing acceptance of counselling in MCH settings with exit interviews
This is a semi-structured interview. It aims to help assess client satisfaction in
counselling, and should be administered by a trained researcher. It should be used on a
convenience sample of, for example, all people receiving counselling within a specific period
(e.g. one week), who have agreed to be interviewed in this way when asked previously by
their counsellor. If the numbers are too large, random sampling may be used at specific
periods each day through the week. The exit interview should be voluntary, undertaken in
privacy and confidentiality assured.
Have you talked to your counsellor today about (you may answer more than one):
Having an HIV test
Yes
No
Receiving test results
Yes
No O
Issues associated with having been tested some time ago
The health of your baby
Yes
Yes
No
No
Yes
No Li
Yes
No
Did you come specifically to discuss testing for HIV?
Did you come specifically to discuss receiving treatment
to protect your baby from HIV?
55
Tools for evaluating HIV voluntary counselling and testing
i
How long did you wait for your first appointment to visit the clinic?
days
How long did you wait before someone talked with you in the clinic?
mins
How much time did you spend with your counsellor today?
mins
How many visits have you made to your counsellor at this clinic?
visits
Did you feel comfortable with your counsellor?
Yes
No O
Was there enough privacy during your counselling?
Yes
NoO
Yes
NoU
What were the good things about your counselling?
What were the bad things about your counselling?
1
What information did you receive from the counsellor?
Did you see the same counsellor before and after the test?
Did you want to see a particular counsellor this time
(a specific person)?
Yes
.
No
Would you recommend using this service to a friend
or family member?
Yes LI
Why?
56
No
Forth er reading from
UNAIDS
.See ulso httpV/www.unaids.org tor j full listing of UNAIDS
publii utions
Caring for Carers: Managing stress in those who care Ffor people with
HIV and AIDS. UNAIDS Busi Practice Collection Case Study, Geneva,
UNAIDS,2000 (available in English)
Comfort and hope: Six case studies on mobilizing family and community
care for and by people with HIV/AIDS. UNAIDS Best Practice
Collection Case Study, Geneva, UNAIDS, 1999 (available in English)
Counselling and HIV/AIDS. UNAIDS Best Practice Collection Technical
Update, Geneva, UNAIDS, 1997 (available in English, French
and Spanish)
Counselling and voluntary HIV testing for pregnant women in high HIV
prevalence countries: Elements and issues. UNAIDS Best Practice
Collection Key Material, Geneva, UNAIDS, 1999 (available in English,
French and Spanish)
From principle to practice: Greater involvement of people living with or
affected by HIV/AIDS (GIPA). UNAIDS Best Practice Collection
Key Material, Geneva, UNAIDS, 1999 (available in English, French
and Spanish)
Knowledge is power: Voluntary HIV counselling and testing in Uganda.
UNAIDS Best Practice Collection Case Study, Geneva, UNAIDS, 1999
(available in I nglish and French)
Voluntary Counselling and Testing fVCT). UNAIDS Best Practice
Collection Technical Update, Geneva, UNAIDS, 2000 (available
in English)
The Joint United Nations Programme on HIV/AIDS (UNAIDS) is the leading advocate for
global action on HIV/AIDS. It brings together seven UN agencies in a common effort to
Fight the epidemic: the United Nations Children's Fund (UNICEF), the United Nations
Development Programme (UNDP), the United Nations Population Fund (UNFPA), the
United Nations International Drug Control Programme ILJNDCP), the United Nations
Educational, Scientific and Cultural Organization (UNESCO), the World Health
Organization (WHO) and the World Bank.
UNAIDS both mobilizes the responses Io the epidemic of its seven cosponsoring
organizations and supplements these efforts with special initiatives. Its purpose is to lead
and assist an expansion of the international response to HIV on all fronts: medical, public
health, social, economic, cultural, political and human rights. UNAIDS works with a
broad range of partners - governmental and NGO, business, scientific and lay - to share
knowledge, skills and best practice across boundaries.
I-
Joint United Nations Programme on HIV/AIDS
wW UNAIDS
mW
UNICEF • UNDP • UNFPA • UNDCP
UNESCO • WHO • WORLD BANK
Joint United Nations Programme on HIV/AIDS (UNAIDS)
20 avenue Appia - 1211 Geneva 27 - Switzerland
Tel. (4-41 22) 791 46 51 - Fax (+41 22) 791 41 65
e-mail: unaids@unaids.org - Internet: http://www.unaids.org
L
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